# Hughes APS Trust

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1172388
- **Other names:** GHIC, THE GRAHAM HUGHES INTERNATIONAL CHARITY FOR HUGHES (ANTIPHOSPHOLIPID) SYNDROME
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** April 3, 2017
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1172388


## Contact

- **Address:** The Shard, TOG 24/25, 32 London Bridge Street, London
- **Postcode:** SE1 9SG
- **Phone:** 07435683496
- **Email:** hello@hughesapstrust.org
- **Website:** https://www.hughesapstrust.org/



## Activities

**Objects:** (1) THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH OF PEOPLE WITH HUGHES (ANTIPHOSPHOLIPID) SYNDROME (“HUGHES SYNDROME”) IN PARTICULAR THOUGH THE PROVISION OF INFORMATION, SUPPORT AND PRACTICAL ADVICE TO PATIENTS THEIR FAMILIES AND CARERS;(2) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO HUGHES SYNDROME; AND(3) TO PROMOTE AND CARRY OUT FOR THE PUBLIC BENEFIT RESEARCH IN HUGHES SYNDROME AND TO PUBLISH OR OTHERWISE DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH.

**Activities:** GHIC is the only UK and International Hughes (Antiphospholipid) Syndrome Charity that is dedicated to educating patients, doctors and all those affected by Hughes Syndrome, raising awareness for much earlier diagnosis and contributing to research to find better treatment options.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** The General Public/mankind



## Geography

- France
- Ireland
- Italy
- Northern Ireland
- Portugal
- Scotland
- Spain
- United States
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Dr Ali Sadiq Mohammad Jawad Dr |  | Jan. 22, 2018 |
| Dr Arvind Kaul |  | Oct. 10, 2017 |
| Dr Graham Robert Hughes Dr |  | Jan. 18, 2018 |
| Dr Laura Bertolaccini |  | April 3, 2017 |
| MADELEINE MALIK |  | Oct. 6, 2017 |
| Margaret Thompson-McCormick |  | Aug. 14, 2017 |
| SANDRA HAMPSON |  | April 4, 2017 |



