2024-09-30-accounts - Ileostomy And Internal Pouch Association

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Ileostomy and Internal Pouch Association Registered Charity No. 1172338 (England and Wales) and SC048658 (Scotland) A Company limited by guarantee in England and Wales No. 10375943

ANNUAL REPORT and ACCOUNTS 2024

Because we know, we care

o ~~m~~ Ileostomy and Internal Pouch Association (Originally established 1956) Registered Charity No. 1172338 Registered Company No. 10375943

PRINCIPAL ADDRESS AND REGISTERED OFFICE

Danehurst Court, 35-37 West Street, Rochford, Essex SS4 1BE

PRESIDENT:

Professor Gordon Carlson CBE, BSc (Hons), MB ChB (Hons), MD, FRCS, FRCS (Gen), FRCSEd (Ad Hom)

BOARD OF TRUSTEES

Chair: Mr Stuart Hay Vice-chair: Ms Anna Rennie Finance sub-committee chair: Mr Amar Panchal Trustees: Mr Justin Bishop Ms Cepta Burke Mr Scott Clifford Mr David Drakeley (until 24 November 2024) Mrs Carol Katté RGN, DipN(Lond), NDNCert, ENB216 Mrs Jacqui Sibbald Ms Brigitte Siefken Mr John Smail Mr Neil Smart MBBS(Hons), MD, PhD, FRCSEd, MFMLM Ms Tracey Usher

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NATIONAL OFFICERS

Chief Executive Officer and National Treasurer: Mr Michael Bell National Office Manager: Ms Leann Lepley PR & Communications Manager/IA Journal Editor: Mrs Caroline Bramwell

PROFESSIONAL ADVISERS

Legal advisers: Bates Wells & Braithwaite LLP 10 Queen Street Place London EC4R 1BE Principal bankers: The Co-operative Bank PO Box 250, Delf House, Southway, Skelmersdale WN8 6WT Auditors: Sumer Audit Piper House, 4 Dukes Court, Bognor Road, Chichester PO19 8FX Investment manager: Rathbone Investment Management Limited George House, 50 George Square, Glasgow G2 1EH

Annual Report 2024

BOARD OF TRUSTEES REPORT (INCLUDING DIRECTORS’ REPORT)

The Board of Trustees has pleasure in presenting its report for the year ended 30 September 2024. This report represents a Directors’ Report as required by s417 of the Companies Act 2006.

The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the charity’s governing document, the Companies Act 2006 and “Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS102)” (as amended for accounting periods commencing from 1 January 2019).

LEGAL STATUS AND OBJECTS

Ileostomy and Internal Pouch Association is a Company Limited by Guarantee in England and Wales (10375943) and is a Charity registered in England and Wales no. 1172338 and in Scotland no. SC048658 with a working name of IA. The Charity is governed by its Articles of Association, last amended in August 2018. Although the Company was incorporated on 14 September 2016 it remained dormant until 30 September 2018, with the Charity operating until that date as an unincorporated association registered in England and Wales under charity number 234472 in the name of IA. The Charity’s principal address and registered office is Danehurst Court, 35-37 West Street, Rochford, Essex SS4 1BE.

In setting the Charity’s objectives and planning its activities the Trustees have given careful consideration to the Charity Commission’s general guidance on public benefit and in particular to its supplementary public benefit guidance on the relief of those in need by reason of ill-health. IA's objects are:

To help anyone whose colon has been, or is about to be, removed by surgical procedure or who has an ileostomy or an internal pouch;
To promote and co-ordinate research into bowel disease and other conditions leading to the removal of the colon, surgical procedures pertaining thereto, and related matters, and further to promote the dissemination of knowledge gained by such research;
To keep ileostomists and others informed of all matters of interest to the Charity by the periodic dissemination of information by way of publications, by arranging conferences, seminars and courses on topics of interest, and in any other manner which is charitable and which the trustees consider appropriate.

ORGANISATIONAL STRUCTURE

This charity was originally founded in 1956 and operated as a charitable unincorporated association registered under charity number 234472 until 30 September 2018. At that point, it transferred its undertakings, including all activities, employees and assets subject to all its liabilities in its entirety to a charitable Company Limited by Guarantee, Ileostomy and Internal Pouch Association, company number 10375943 (England and Wales) through which it now operates.

Throughout its existence, IA has operated a number of local groups, known as member organisations, which are located throughout the United Kingdom. Member organisations operate either as an Integrated Branch (hereinafter termed “Branch”) of the national charity, or as an Affiliated Member Organisation (hereinafter termed “Affiliate”) which is a separate charity from the national charity, with the relationship between the Affiliate and the national charity being governed by an Affiliation Agreement. During the period under review there were 44 member organisations, of which 36 operated as Branches and 8 as Affiliates.

The trustees of the national charity, who are also the directors for the purposes of company law, who served during the year, are listed on page 2. None of the trustees has any beneficial interest

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in the company. All of the trustees are members of the company and guarantee to contribute £1 in the event of a winding up.

The members of the Company consist of the board of trustees and one representative from each member organisation, ensuring that member organisations are central to the charity’s governance and policy setting. There are generally four board meetings a year which was the case in the year under review, with three meetings taking place online and one in person. The Trustees believe that working in this way is both more economic and a more efficient use of time and resources, and that this does not affect their ability to discuss important issues and make decisions where appropriate.

Applications for elected trustee positions are invited from member organisations when a position becomes available and any applications are dealt with by the Trustee Recruitment and Selection sub-committee, who carry out an interview and selection process with the successful candidate(s) being put forward for election, subject to board approval. Trustees are elected at a general meeting of the company for an initial period of three years, following which they are eligible for re-election for two further terms of three years. Once elected, they receive an induction which includes visiting the charity’s national office where possible and receiving training as and when required.

Authority for the day to day management of the charity is delegated to the Chief Executive Officer, Mr. Michael Bell, as per the charity’s governing document. Remuneration for all staff including key management personnel is agreed by the remuneration sub-committee. Salaries are reviewed annually by the committee and are benchmarked against similar charities using independent data to ensure that salary levels are appropriate and competitive, whilst taking into account performance, the past year’s achievements and other relevant factors.

The management committee, which consists of senior staff and Trustees, meets regularly to consider matters of both strategic and operational natures, making recommendations to the Board of Trustees where relevant. All meetings are held online as this has proved more effective logistically.

The unincorporated association IA (charity registration number 234472 (England & Wales)) remains in existence as a dormant shell charity in order to safeguard any future legacies in its name that might otherwise have failed due to the manner in which a particular will was written and therefore might have been distributed instead to another charity or beneficiary. The Company holds £100 on trust for the unincorporated association and is one of the two trustees of this shell charity, the other being the chair of the Company.

ACHIEVEMENT OF CHARITABLE OBJECTIVES

To help anyone whose colon has been, or is about to be, removed by surgical procedure or who has an ileostomy or an internal pouch.

Having seen a significant increase of 30% in 2022/23 of the total number of enquiries received at IA national office from members of the public, healthcare professionals and others with a professional interest in the work of IA, enquiries continued at this increased level in 2023/24. Membership enquiries resulted in 244 joining as new members, 217 (89%) of whom joined on-line, in keeping with recent years where the majority of applications are made via our website.

Each new member received an information pack containing booklets and leaflets on a wide range of relevant subjects covering many aspects of life with an ileostomy or internal pouch. This literature has been specially written by IA’s honorary consultant advisers and by members with particular experiences and expertise upon which they can draw. A total of 433 requests for literature and publications were received from a combination of healthcare professionals, members and member organisations this year, which was a significant 53% increase on the previous year’s levels. During the year, a number of our leaflets received updates and we also introduced a new leaflet “Maintaining kidney health with an ileostomy or internal pouch”, explaining the increased risk of acute kidney injury that is related to having an ileostomy or internal pouch and what to do to protect your kidneys.

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Enquiries regarding travel continued to be received at the same levels as in recent years, and and there is still a demand our popular travel certificates which, in a range of languages, explain the conditions of ileostomy and internal pouch.

Promotional items were made available to local groups and members for distribution at exhibitions, meetings and open days to further publicise the support that is available from IA.

We currently have 44 member organisations located throughout the United Kingdom. These continue to provide information, advice and assistance to existing, new and potential members. We also continue to offer valuable support via our One2One Support service, our new Support Through Therapy service and our Specialist Core Rehabilitation program, further details of which are provided below.

To promote and co-ordinate research into bowel disease and other conditions leading to the removal of the colon, surgical procedures pertaining thereto, and related matters, and further to promote the dissemination of knowledge gained by such research.

No new funding applications for research were received during the year under review, which was disappointing given there are funds available. There has been a dearth of grant applications in the years since Covid, and we would encourage potential applicants to consider applying for grant funding as we continue to look for high quality research to support. As an organisation we are looking at how we can improve take up of the funds available and are already aware of potential applications in the pipeline, so we hope to be able to provide positive news in next year’s report.

Although there was no funded research undertaken this year, IA continues to assist with a variety of research projects involving members’ participation through the dissemination of surveys and questionnaires covering a wide range of subjects. In the year under review this included -

Pouch Fistula Quality of Life survey for St Mark’s Hospital, London.
Knowledge, Attitudes and Hydration Practices in Ileostomists research by the University of Ulster’s Nutrition Innovation Centre for Food and Health.
The Pelvic Floor Society and the James Lind Alliance asked firstly for suggestions for subjects for research around faecal incontinence, and then to prioritise those subjects.
Sleep after Cancer, research carried out by the Irish Sleep Society.
Department of Health’s Consultation on Part IX of the Drug Tariff Medical Devices in Primary Care.
Department of Health Medical Technology Directorate’s consultation on Medical Devices and Products Patient Experience.

To keep ileostomists and others informed of all matters of interest to the Charity by the periodic dissemination of information by way of publications, by arranging conferences, seminars and courses on topics of interest, and in any other manner which is charitable and which the trustees consider appropriate.

The quarterly IA Journal continues to be the primary form of communication between the Charity and members, providing updates with the latest developments in products and services along with human interest stories and other articles of interest, such as readers’ letters, medical articles and news items. The regular article from an exercise expert continues to be well received by readers, as does the regular article on diet from a qualified dietician. This year we have also added a regular article from a business psychologist, dealing with the topic of working life as an ostomate, and including issues such as workplace rights. The Journal Editor will continue to incorporate new ideas into the Journal moving forward.

Although the IA Journal remains the primary form of communication with a lot of our members, social media channels also play an increasingly important role in communicating with members and the wider stoma community. These channels include Facebook, Instagram, X (formerly Twitter) and YouTube. Campaigns run during the year included Ileostomy Awareness Month in

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April, IA Big Bake around the same period and Internal Pouch Awareness Month in October. In addition to public social media channels, our private Facebook group IA Pouch Pals, which is there to help support those with internal pouches and offer them a private safe space to interact, continues to attract new members. All who have an interest in internal pouches are welcome, whether they are IA members or not.

We held a new regional event in November 2023, a Scottish Information Day which took place in Stirling. Over 40 delegates attended the day, which was very well received and included presentations on physical activity and the stoma, stoma surgery techniques and relaxation methods. We aim to repeat this event in 2024 given it allows our Scottish members and nonmembers to attend an Information Day without having to travel long distances.

Following on the successful event last year, we held another Pouch Information Day in June 2024 in Bristol, where a number of delegates attended to hear pouch related presentations from both medical professionals in the form of a colorectal surgeon and senior specialist nurses and also from members of the pouch community, who shared their experiences about ileoanal and Kock pouches. In addition, there were further presentations on the importance of good nutrition from a specialist nutritionist, medication related matter from a consultant pharmacist and the benefits of holistic support from a qualified counsellor.

We held our usual Annual Information Day in April 2024, with numbers attending back to the levels pre-Covid, which was gratifying. With a programme containing presentations on matters such as the gut barrier in health and illness, kidney protection for those with ileostomies and pouches, working life with a chronic condition and a number of popular workshops, the event was well received and allowed both members and non-members the opportunity to meet together in both formal and informal settings to discuss issues of common interest, share personal experiences and learn from the range of talks and workshops provided.

Other online events have been held throughout the year, including monthly Coffee and Chat online session run by the Internal Pouch sub-committee.

The Charity’s website continues to be further developed and improved to ensure it remains relevant and informative for all its users.

SERVICES FOR MEMBERS

Services for members and potential members continued, as did the work of the association under the appropriate national officers as listed on page 3. At national office, enquiries of a general nature came from potential and existing members, healthcare professionals and commercial companies and working relationships continued with member organisations, Government bodies and associated patient support organisations.

IA's website remains a popular resource for information to those looking for guidance on living with an ileostomy and internal pouch.

There were four successful applications for welfare grants this year with total grant payments of £2,043 made from the Welfare Fund. This was a significant increase on the previous year, however, further consideration will be given to updating the welfare grant application process and criteria to make the offer more attractive to potential applicants.

Matched funding continued to assist member organisations to support local projects such as equipment for hospitals and healthcare professionals. This year grants totalling £1,458 were paid out under this scheme (see Note 8 on page 32), compared to £2,853 last year.

Our Specialist Core Rehabilitation Program, run in association with clinical exercise specialist Sarah Russell and funded by the Robert Wainwright fund, continued to provide free online core rehabilitation classes for any member with an ileotomy or internal pouch, as well as those who have reversal surgery or a parastomal hernia. We would encourage members to apply for funding for these classes which have proved very useful for attendees to date.

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Our One2One Support service, continues to go from strength to strength. One2One gives high quality support to patients by volunteers who have lived experience with an ileostomy or internal pouch. IA Support Volunteers work in conjunction with stoma care nurses to offer a unique nonmedical perspective which can be invaluable in recovery from surgery and at the start of a new life with an ileostomy or an internal pouch. Anyone can request support from the volunteers – there is no requirement to be an IA member to use One2One Support. Over the past year we continued to identify and train more volunteers using our new ASCN endorsed online training course. We continue to further develop and actively promote One2One Support going forward. It was gratifying to see the numbers of support requests dealt with by this service increase by over 80% compared to the previous year, evidencing how the changes in the offering over recent years has started to pay dividends.

In October 2024 we launched our Support Through Therapy service, set up for members who require professional emotional support before or after their stoma or internal pouch surgery, this being in addition to and operating alongside our One2One support service. Our growing panel of therapists offer a safe space and an outlet for people to share their issues and get help to process what they are experiencing.

GRANT MAKING POLICY

Members of IA benefit from a number of grants which enable them to apply for funding to attend events and purchase essential items.

Bryan N Brooke IA Overseas Travel Fund: Professor Bryan Brooke, IA’s national founding President, wanted to enable ordinary IA members to attend international meetings, which they otherwise might not consider. Therefore, the Bryan N Brooke (IA) Overseas Travel Fund (BBOTF) was set up to assist IA members with their travel costs for overseas meetings and events. The fund was established as Bryan Brooke’s retirement gift from IA and in memory of his contribution as President for over 20 years.
Victoria Wills (IA) Internal Pouch Bursary: This bursary is available for members with an internal pouch to assist with their travel costs to relevant IA meetings and events.
Welfare Fund: This fund has been set up to assist IA members who are experiencing financial hardship to:
Purchase essential item(s) where ileostomy or internal pouch surgery has directly affected the need for the item(s).
Provide towards a convalescent break immediately following ileostomy or internal pouch surgery.
Purchase essential medical equipment which is not covered by a state grant or benefit.
YIA Bursary Fund: The Young IA Bursary Fund has been set up to fund IA members under the age of 40 to attend events in circumstances whereby the IA member may not be able to attend the event through financial hardship.
Research Fund: This fund supports research being carried out throughout the UK. This support can take the form of financial assistance, or promoting awareness of research being carried out that may be of benefit to members.

Each fund has its own set of grant making guidelines which must be adhered to and all applications are assessed by the appropriate board sub-committee. Information and instructions for making an application are available to members, and application forms available from national office.

These grant making activities contribute to the achievement of IA’s aims and objectives by:

Helping those with an ileostomy and internal pouch who are in financial hardship.

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Providing a service to its members, and keeping ileostomists and those with an internal pouch informed by giving them the opportunity to attend a variety of conferences, meetings and seminars.
Promoting research by enabling members to attend a variety of research events and/or participate in research activities.

We continue to encourage the take up of the various grants available as the level of applications has remained low over recent years.

MEETING STRATEGIC OBJECTIVES

Our current strategic plan runs from 2022-25. During the year under review, we achieved a number of the strategic objectives contained in the plan, such as launching our new Support Through Therapy service, details of which were noted above. In addition to these activities, we also carried out the following in order to meet the strategic objectives included in the plan.

Raising awareness

In October we took part in a stoma awareness debate and reception at the Scottish Parliament in Holyrood, which was hosted by Edward Mountain, MSP, who had a stoma formed following bowel cancer. The event aimed to raise awareness of stoma patients and explore how the care of these patients can be improved, and was attended by ostomates, SCN’s, industry and politicians, along with the First Minister, Humza Yousaf.
We managed to secure an article “Hiking with a stoma” on the BBC Countryfile website.
We participated in the British Journal of Nursing (BJN) 2024 Awards, sponsoring the Stoma Care Nurse of the Year category and presenting the Gold Award to the winner, Ben McDermott from Salford Royal Hospital, Greater Manchester.
We continued to award training bursaries to stoma care nurses to participate in the Advanced Stoma Care Module offered by the University of East Anglia.
We commissioned and had produced bespoke 3D printed models of internal pouches, one version for a J-pouch and one for a Kock pouch, which allows us to offer visual aids to help educate others on what internal pouches are and how they function.
Five runners took part on behalf of IA in the London Landmarks Half Marathon 2024, raising funds for IA through sponsorship.
In order to extend our reach, we attended a number events and exhibitions, including the Association of Stoma Care Nurses (ASCN) annual event, the Association of Coloproctology of Great Britain & Ireland (ACPGBI) conference, the Best Practice conference (an event aimed at UK healthcare professionals in general practice and primary care), the Stoma Tips Ostomates Learning Day in Birmingham in June 2024 and the British Society of Gastroenterology’s BSG Live annual meeting.
We continued to advertise in relevant trade publications, such as the British Journal of Nursing, Community Nursing magazine and the Gastrointestinal Nursing magazine.

Advocating on behalf of our members and representing their interests externally

IA was one of the patient and professional organisations working together in partnership with IBD UK to improve standards of care and treatment for everyone with Inflammatory Bowel Disease, culminating in a report titled “IBD UK report: The State of IBD Care in the UK”. This report describes the results of the 2023 IBD Benchmarking, in which 17,654 people living with IBD and 150 IBD services took part, and supports the long-term outcome of everyone living with IBD in the UK receiving a timely diagnosis and equitable access to quality care. The report recommendations will drive national and local action to deliver improvements and tackle variation in IBD diagnosis and care across the UK.

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We participated in the Advancing Stoma Care Services (ASCS) project now being led by ASCN. The aim of this ambitious project is to formulate an evidence-based ‘best practice stoma pathway’ with the aim of standardising stoma care services nationally.
We are a member of the National Bowel Alliance, which is made up of charities with an interest in the field of bowel cancer, bowel diseases and bowel health, and has been established to bring together charities with an interest in these fields to promote more effective working for the benefit of patients, carers and the public.
We submitted a response to the government consultation on “Medical Devices in Primary Care: Proposals for updating Part IX of the Drug Tariff - medical devices available for prescribing in primary care”. Following the publication of the Government’s Medical Technology Strategy in February 2023, this document sets out a series of proposals to modernise Part IX of the Drug Tariff, and the implementation of these proposals could have a significant effect on product availability.

Improving our service offering

To coincide with Internal Pouch Awareness month in October a new ‘Medicine card’ was launched both for those with an internal pouch and those with a stoma, to highlight that not all capsules could be absorbed by the holder of the card.
We carried out a detailed Membership Survey in summer 2024 to identify what our members wanted from us. Member engagement was pleasing, with close to 30% of our total membership responding, and allowed us to gain a good picture of the direction we should be moving in.

Collaboration and liaison with other organisations

We continue to maintain good working relationships with other ostomy associations in the UK such as Colostomy UK and the Urostomy Association, as well as with internal pouch support groups, with Crohn’s & Colitis UK, and other relevant charities such as A Bear Named Buttony. Membership of the European Ostomy Association (EOA) enabled co-operation with ostomy support organisations in Europe and the worldwide ostomy community, and IA’s PR & Communications Manager Caroline Bramwell sits on the EOA’s Executive Committee, further strengthening ties and co-operation between our two associations and ensuring IA represents the UK at a European and wider level.

Mutual benefit was derived from the continued liaison with the Royal College of Nursing, the Association of Stoma Care Nurses UK, the Royal College of Surgeons of England, the World Council of Enterostomal Therapists, the Kingston Trust, the Association of Coloproctology of Great Britain & Ireland, the Association of Coloproctology Nurses, the Irish Stoma Care & Cancer Nurse Association, the Romanian Ostomy Patients’ Support Foundation, the British Healthcare Trades Association, Patients, Industry and Professionals (PIPs) Forum and the Scottish Stoma Forum.

RISK AND RISK MANAGEMENT

The trustees have a risk management strategy which comprises:

The maintenance of a risk register recording all identified risks.
An annual review of the risk register including the principal risks and uncertainties that the charity faces.
The establishment of policies, systems and procedures to mitigate those risks identified in the annual review.
The implementation of procedures designed to minimise or manage any potential impact on the charity should those risks materialise.

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This work has identified that the performance of its investments is the major financial risk for the charity. Investment income forms a significant proportion of overall income and any reduction in investment income levels could have an adverse effect on the income available to support day-today operations. This risk is mitigated by retaining expert investment managers, Rathbone Investment Management (Rathbones), on a discretionary basis and ensuring that an investment policy is in place which specifies both the level of risk to be applied to the management of the investment portfolio and the approach to income generation. The arrangement with Rathbones is reviewed on an annual basis to ensure that performance continues to meet with the charity’s requirements. Although the usual in-person annual review meeting with Rathbones did not take place this year, regular communication between the charity and Rathbones has continued during this period and email updates are provided by our dedicated investment manager whenever changes to the portfolio’s composition occur. The Trustees also review the portfolio composition and performance at each board meeting.

Attention has also been focused on non-financial risks, the principal ones relating to the employment of staff and the potential loss of key staff and officers. The former risk has been mitigated by the engagement of professional legal advice on employment matters, the latter by the creation of contingency plans that include the identification of alternate resources able to assume responsibility should the loss of key people occur.

FINANCIAL RESULTS AND REVIEW

The full accounts of IA are shown on pages 19 to 43. They show the activities of the principal charity and the Branch member organisations but do not include the activities of the Affiliate member organisations, who are separately registered charities responsible for preparing their own accounts in accordance with the appropriate legislation.

The accounts show a surplus of £347,927 in the financial year to 30 September 2024. This figure includes an amount of £459,292 in relation to gains on investments. Of the £347,927 surplus recorded, £345,814 related to a surplus on unrestricted funds whilst £2,113 related to restricted funds. Taking these results into account, closing assets stood at £5,646,130.

RESERVES POLICY

The Board of Trustees has determined that the following policies will apply in respect of the various funds held.

General Fund

The General Fund provides resources for the day to day running of the charity and should hold reserves sufficient to cover a minimum of six months’ payments based on the expenses incurred in the last full financial year, plus any future planned additional expenditure.

Designated funds

Any designated funds established by the Board of Trustees are intended to provide income for specific purposes. The Capital Investment Fund was established to provide income for the General Fund. All capital in any designated funds may be spent on the authority of the Board of Trustees. In addition to the designated funds noted above, each Branch member organisation has its own designated fund. Further information on this is provided in the section Branch Funds below.

Restricted Funds

Restricted funds have been established either where the donations received are restricted by the donors, or where the fund has been established for a restricted purpose. In the case of the Welfare Fund and the Bryan N. Brooke (IA) Overseas Travel Fund, the intention is to maintain the capital, adding any donations received, and to spend the income providing grants for the purposes for which the funds were established. All other restricted funds are holding donations until such time

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as they can be spent in accordance with the restriction. In addition to the named restricted funds, each Branch member organisation has its own restricted fund(s). Further information on this is provided in the section Branch Funds below.

When assessing levels of reserves in each fund, the Board of Trustees ignores unrealised profits on investments, as these are not considered sufficiently reliable to guarantee future spending levels.

Branch Funds

Each Branch member organisation has its own designated fund and restricted fund. All income for a particular Branch is credited to its designated fund, whilst all expenditure for that Branch is taken from its restricted fund until such time as that fund has been exhausted, when expenditure is then set against the branch’s designated fund. Rather than set an individual reserves policy for each Branch and its funds, the Board of Trustees instead monitor the net position of each Branch on an ongoing basis to ensure that sufficient funds remain in each branch to continue their activities for the foreseeable future.

Overall

All fund balances are in line with or exceed their reserves policy. The total funds held by the charity at 30 September was £5,646,130 of which £5,075,826 was held as unrestricted funds and the remaining £570,304 held as restricted funds. Included in unrestricted funds are designated funds of £4,754,524 leaving £321,302 in general unrestricted funds.

INCOMING AND OUTGOING RESOURCES

Income for the year was £647,745 compared to £393,993 in the prior year, a 64.4% increase year on year.

Looking at income in more detail, income from donations and legacies was £410,188, an increase on the 2023 figure of £128,222. This increase was due in large part to an increase in legacy income, up from £69,068 in 2023 to £342,396 in the year under review. It is in the nature of income from legacies that levels can fluctuate significantly year on year and are neither controllable nor forecastable. Partially offsetting the increase in legacy income was a decrease in external donation income, down from £44,853 in 2023 to £32,792 in 2024.

Income from charitable activities fell 29.4% this year, down from £132,016 in 2023 to £93,168 this year. Of this figure, income from advertising in the IA Journal contributed £31,229, which was down from the previous year’s figure of £53,128. This was disappointing given we had seen increases in advertising revenues over the two financial years prior to the one under review, and was in part due to advertisers cutting their budgets, or in one case ceasing to trade. Also included within income from charitable activities, member organisation annual subscription income of £26,151 (2023: £30,149) credited to unrestricted funds relates to the annual charge payable by member organisations to the national charity and includes £23,310 of annual subscription income charges to Branch member organisations. As the £23,310 is also a cost to the Branches, the same amount is also included in expenditure on charitable activities as this was charged against the Branches’ individual restricted funds. Income from member subscriptions fell to £28,147 (2023: £41,568), although the 2023 figure included a number of overdue subscriptions collected that related to overdue subscriptions from years prior to 2023, thereby inflating the 2023 figure beyond underlying levels.

Income from investments was up at £144,389 in 2024 compared to a figure of £133,755 in 2023 and £139,525 in 2022. Our investment portfolios have a balanced investment objective, which looks to combine the generation of a good level of income with longer term capital growth, rather than a specific income objective, so some fluctuations on income levels are to be expected.

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Expenditure for the year was £759,110 (2023: £615,069), of that £682,235 (2023: £557,504) being charged to unrestricted funds and £76,875 (2023: £57,565) to restricted funds. Of total expenditure, 96% (2023: 95%) or £730,610 (2023: £587,322) was in support of IA's charitable activities with 4% (2023: 5%) or £28,500 (2023: £27,747) being the cost of raising funds. Of the £730,610 incurred as expenditure of charitable activities, £31,963 (2023: £40,098) related to costs borne by Branches as a result of their charitable activities and charged to their restricted funds.

INVESTMENT POLICY

Investments are shown in the accounts at market value. The charity has two investment portfolios managed under a discretionary management agreement with Rathbone Investment Management using a medium risk stance, one main portfolio being the funds of the national charity and a “B” portfolio being the investment of a proportion of funds held on behalf of Branches.

The charity's investment policy is shown in the Financial Regulations document and is "to hold investments to provide income in support of its core operations". Income generated from the “B” portfolio is credited to Branches taking into account their average funds over the financial year as a proportion of total funds. There are no social, environmental or ethical considerations contained within the investment policy.

As noted above, combined total investment income from both portfolios was £144,389 this year compared to £133,755 in 2023. Net gains on investment stood at £459,292 (2023: £102,033). Of the total net gains of £459,292, unrealised gains on investments held within the portfolios at year end were £405,736, whilst realised gains on investment sales were £53,556.

Total return on investments over the 12-month period to 30 September 2024 for the main portfolio was 11.09% when compared to the ARC Charity Steady Growth portfolio reference point of 12.92%, with returns over three years on an annualised basis being 6.40% compared to 7.93% respectively. The “B” portfolio, which has a slightly more defensive strategy than the main portfolio, posted a total return over the 12-month period to 30 September 2024 of 8.81% and returns over three years on an annualised basis were 1.28%, with the same ARC benchmark figures noted above being applicable here. Whilst this performance is slightly disappointing, and can be explained at least in part by an overly cautious approach adopted by our investment managers, leading to a lower weighting in equities than would have been ideal, nevertheless looking over the longer term 10-year period, returns on the main portfolio (the “B” portfolio not having existed for this longer time period) have been 54.4% on a total return basis well ahead of CPI in the UK of 34.8%, which demonstrates that over the long term performance is still satisfactory.

In accordance with the requirements of the Trustee Act, 2000, Part II, section 4(2), from time to time, the trustees review the investments of the trust and consider whether, having regard to the standard investment criteria, they should be varied. Changes in policy would be reflected in the investment management agreement and in the targets set for IA’s investment managers. There were no changes to the investment policy document during the year.

FUTURE PLANNING

As noted above, the year under review saw us continue with our work to implement our current strategic plan. Over the coming year we aim to:

Complete a review of our current membership model and pricing structure, and implement any changes that are identified as part of that review.
Further improve our telephone support service with the introduction of a nursing helpline, allowing access to a dedicated stoma care nurse (SCN).
Review our current organisational structure and staffing, and carry out further recruitment where identified to ensure we have the appropriate resources in place to help us deliver our services.
Carry out further work on our Digital Strategy, considering how best we can harness technology to improve what we offer our members and the wider community.

Annual Report 2024

Build closer relationships with local colorectal nurses, hospitals, GPs and surgeons, as well as collaborate with other organisations with aligned interests.
Continue to develop our research portfolio to broaden and deepen knowledge of bowel disease and the patient journey for those with ileostomies and internal pouches, ultimately leading to better care.

The Trustees consider that the charity will be able to continue to meet its charitable objectives over the coming year.

CONCLUSION

IA continues to have a significant level of assets which offers a cushion against future problems. All funds remain stable and all activities can continue as planned. The Trustees are satisfied that all known commitments can be met for the foreseeable future.

DISCLOSURE OF INFORMATION TO AUDITOR

Each of the trustees has confirmed that there is no information of which they are aware which is relevant to the audit, but of which the auditor is unaware. They have further confirmed that they have taken appropriate steps to identify such relevant information and to establish that the auditor is aware of such information.

Annual Report 2024

STATEMENT OF TRUSTEES’ RESPONSIBILITIES IN RELATION TO THE FINANCIAL STATEMENTS

The trustees, who are also the directors of IA for the purposes of company law, are responsible for preparing the trustees’ annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the trustees to prepare accounts for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources including the income and expenditure of the charitable company for that year.

In preparing the financial statements, the trustees are required to:

select suitable accounting policies and then apply them consistently;
observe the methods and principles in the Charities SORP;
make judgements and estimates that are reasonable and prudent;
State whether applicable UK accounting standards have been followed, subject to any material departures that must be disclosed and explained in the accounts; and
prepare the accounts on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.

The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the accounts comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity's website in accordance with legislation in the United Kingdom governing the preparation and dissemination of financial statements.

This report has been prepared in accordance with the special provisions relating to small companies within Part 15 of the Companies Act 2006.

Approved by the trustees and signed on their behalf by:

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Stuart Ha
Chair of the Trustees
15 February 2025
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nnnin Annual Report 2024 19

INDEPENDENT AUDITOR’S REPORT TO THE TRUSTEES OF ILEOSTOMY AND INTERNAL POUCH ASSOCIATION

Opinion

We have audited the financial statements of Ileostomy and Internal Pouch Association (the ‘charity’) for the year ended 30 September 2024 which comprise the statement of financial activities, the balance sheet, the statement of cash flows and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion the accounts:

give a true and fair view of the state of the charitable company's affairs as at 30 September 2024 and of its incoming resources and application of resources, for the year then ended;
have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and
have been prepared in accordance with the requirements of the Companies Act 2006.

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor's responsibilities for the audit of the financial statements section of our report. We are independent of the charity in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustee's use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charity’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are

described in the relevant sections of this report.

Other information

The other information comprises the information included in the annual report other than the financial statements and our auditor's report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

Annual Report 2024

We have nothing to report in this regard.

Matters on which we are required to report by exception

We have nothing to report in respect of the following matters in relation to which the Charities (Accounts and Reports) Regulations 2008 require us to report to you if, in our opinion:

the information given in the financial statements is inconsistent in any material respect with the trustee's report; or
sufficient accounting records have not been kept; or
the financial statements are not in agreement with the accounting records; or
we have not received all the information and explanations we require for our audit.

Responsibilities of Trustees

As explained more fully in the statement of trustee's responsibilities, the trustees, who are also the directors of the charity for the purpose of company law, are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error. In preparing the financial statements, the trustees are responsible for assessing the charity’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

We have been appointed as auditor under section 144 of the Charities Act 2011 and report in accordance with the Act and relevant regulations made or having effect thereunder.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor's report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud, is detailed below.

In identifying and assessing risks of material misstatement in respect of irregularities, including fraud and non-compliance with laws and regulations, our procedures included the following:

Obtaining an understanding of the legal and regulatory framework that the charitable company operates in, focusing on those laws and regulations that had a direct effect on the financial statements and operations;
Obtaining an understanding of the charitable company's policies and procedures on fraud risks, including knowledge of any actual, suspected or alleged fraud; and
Discussing among the engagement team how and where fraud might occur in the financial statements and any potential indicators of fraud through our knowledge and understanding of the company and our sector-specific experience.

Annual Report 2024

As a result of these procedures, we considered the opportunities and incentives that may exist within the charitable company for fraud. We are also required to perform specific procedures to respond to the risk of management override. As a result of performing the above, we identified the following areas as those most likely to have an impact on the financial statements: compliance with the UK Companies Act and Charities Act.

In addition to the above, our procedures to respond to risks identified included the following:

e Making enquiries of management about any known or suspected instances of noncompliance with laws and regulations and fraud;
e Reviewing minutes of meetings of the board and senior management; e Challenging assumptions and judgements made by management in their significant accounting estimates; and
e Auditing the risk of management override of controls, including through testing journal entries and other adjustments for appropriateness.

Due to the inherent limitations of an audit, there is an unavoidable risk that some material misstatements in the financial statements may not be detected, even though the audit is properly planned and performed in accordance with the ISAs (UK). For instance, the further removed noncompliance is from the events and transactions reflected in the financial statements, the less likely the auditor is to become aware of it or to recognise the non-compliance. A further description of our responsibilities is available on the Financial Reporting Council’s website at: https://www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor's report.

Use of our report

This report is made solely to the charity’s trustees, as a body, in accordance with part 4 of the Charities (Accounts and Reports) Regulations 2008. Our audit work has been undertaken so that we might state to the charity's trustees those matters we are required to state to them in an auditor's report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charity and the charity's trustees as a body, for our audit work, for this report, or for the opinions we have formed.

silt oxfez/wmre Jordan Abbott BSc ACA (Senior Statutory Auditor) for and on behalf of Sumer Audit Chartered Accountants Statutory Auditor Chichester

Sumer Audit is the trading name of Sumer Auditco Limited

Annual Report 2024

Statement of Financial Activities (including income and expenditure account) for the year ended 30 September 2024

	Note	Unrestricted Funds £	Restricted Funds £	Total funds 30/9/2024 £	Total funds 30/9/2023 £ (Note 2)
Income from: Donations and legacies 3 374,017 36,171 410,188 128,222 Charitable activities 4 93,168 - 93,168 132,016 Investments 5 134,843 9,546 144,389 133,755 Total income 602,028 45,717 647,745 393,993 Expenditure on: Raising funds 6 26,606 1,894 28,500 27,747 Charitable activities 7 655,629 74,981 730,610 587,322 Total expenditure 682,235 76,875 759,110 615,069 Net income/(expenditure) before gains and losses on investments (80,207) (31,158) (111,365) (221,076) Net gains (losses) on investments 427,555 31,737 459,292 102,033 Net income/(expenditure) 347,348 579 347,927 (119,043) Transfers between funds 20 (1,534) 1,534 - - Net movement in funds 345,814 2,113 347,927 (119,043) Reconciliation of funds: Total funds brought forward 4,730,012 568,191 5,298,203 5,417,246 Total funds carried forward 5,075,826 570,304 5,646,130 5,298,203
	6 7	26,606 655,629	26,606 1,894 655,629 74,981	1,894 28,500 74,981 730,610	28,500 27,747 730,610 587,322
		682,235	682,235 76,875	76,875 759,110	759,110 615,069
		(80,207)	(80,207) (31,158)	(31,158) (111,365)	(111,365) (221,076)
		427,555	427,555 31,737	31,737 459,292	459,292 102,033
	20	347,348 (1,534)	347,348 579 (1,534) 1,534	579 347,927 1,534 -	347,927 (119,043) - -
		345,814 4,730,012	345,814 2,113 4,730,012 568,191	2,113 347,927 568,191 5,298,203	347,927 (119,043) 5,298,203 5,417,246
		5,075,826	5,075,826 570,304	570,304 5,646,130	5,646,130 5,298,203

IA has no recognised gains or losses other than those dealt with in the Statement of Financial Activities.

The Statement of Financial Activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

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|||||||||| |---|---|---|---|---|---|---|---|---| |Balance|Sheet as|at 30|September 2024| |30/9/2023| |£|£| |ml| |Fixed|Assets|30/9/2024||| |Investments|14| |Total|Fixed|Assets|5,601,026|5,224,613| |Current|Assets| |Debtors|16|53,153|91,889| |Cash|on|deposit|and|in|hand|17|147,438|133,029| |Total|Current|Assets|200,591|224,918| |Liabilities| |Creditors|falling|due|within|one|year|18|155,487|151,328| |Net|Current Assets|45,104|73,590| |Total assets|less|current| |liabilities| |Net Assets| |The|Funds|of the|Charity| |General|unrestricted|income|funds||20&21]|4,594,753|4,562,326| |Revaluation|reserve|481,073|167,686| |Total|unrestricted|income funds|5,075,826|4,730,012| |General|restricted|income|funds|20|&|21|518,171|565,033| |Revaluation|reserve| |Total|restricted|income funds|570,304|568,191|

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Approved by the board on 15 February 2025 and signed on its behalf by Chair Mr. Stuart Hay Qe

Company Registration No. 10375943

Annual Report 2024

Statement of Cash Flows for the year ended 30 September 2024

Notes	Total Funds 2024 £	Total Funds 2023 £
23	(212,859)	(313,634)
	144,389 1,393,081 (1,310,202)	133,755 763,448 (539,239)
	227,268	357,964
	14,409 133,029 147,438	44,330 88,699 133,029
	147,438	133,029

Annual Report 2024

Notes to the Accounts for the Year ended 30 September 2024

1 ACCOUNTING POLICIES

Charity information

Ileostomy and Internal Pouch Association is a private company limited by guarantee incorporated in England and Wales. The registered address is Danehurst Court, 35-37 West Street, Rochford, Essex SS4 1BE.

1.1) Basis of preparation and assessment of going concern

The Charity is a public benefit entity and the financial statements have been prepared in accordance with the governing document, the Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (as amended for accounting periods commencing from 1 January 2019), the Companies Act 2006, the Charities and Trustee Investment (Scotland) Act 2005, the Charities Act 2011, relevant law and accounting standards.

The charity meets the definition of a public benefit entity under FRS102.

The accounts are prepared in sterling, which is the functional currency of the Charity. Monetary amounts in the financial statements are rounded to the nearest pound.

The accounts have been prepared under the historical cost convention, modified to include certain financial instruments at fair value. The principal accounting policies are set out below.

The Trustees consider that there are no material uncertainties about the charity's ability to continue as a going concern, and that they have a reasonable expectation that the Charity has adequate resources to continue in operational existence for the foreseeable future. Thus the Trustees continue to adopt the going concern basis of accounting in preparing these accounts of the incorporated association.

1.2) Income

Income is recognised when the charity has entitlement to the funds, it is probable that the income will be received and the amount of the income can be measured reliably.

Journal advertising is taken on an accruals basis. Donations are recognised when the charity has been notified in writing of both the amount and the settlement date. Legacies are recognised on a case by case basis following the granting of probate when the administrator/executor for the estate has communicated in writing both the amount and settlement date. Where legacies have been notified to the charity, or the charity is aware of the granting of probate, and the criteria for income recognition have not been met, then the legacy is treated as a contingent asset and disclosed if material. Interest on funds held on deposit is included when receivable and the amount can be measured reliably by the charity; this is normally upon notification of the interest paid or payable by the bank. Investment income is recognised on a receipts basis upon notification by the charity's investment manager.

All other income has been taken into account on a cash received basis.

Annual Report 2024

1.3) Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that settlement will be required and the amount of the obligation can be measured reliably.

All expenditure is accounted for on an accruals basis.

“Raising funds” includes all direct costs incurred in running fundraising events and investment management costs.

“Charitable activities” includes all costs incurred in meeting our charitable objects and providing support and information to our beneficiaries. Half of the costs of the annual meeting (formerly known as the National Council meeting) are charged under this heading since this meeting not only fulfils the requirements of an annual general meeting but also includes activities designed to help representatives of IA’s member organisations to run their charities effectively. Included are updates on research undertaken and other matters important to the running of the charity.

In addition 50% of the costs of our national office are included. The national office of IA not only provides administrative support to the Board of Trustees but also acts as the first point of contact for patients needing our advice and support, as well as supporting IA’s member organisations. For this reason the costs are divided between this category and “governance costs”.

Much of the work of IA is managed by sub-committees of the main board. The costs of their meetings are included as part of our charitable activities. In addition, since the responsibilities of the board include much direct charitable work, 50% of the cost of the board meetings is included as charitable activities.

“Governance costs” include all costs incurred in the financial management of IA. In addition, 50% of the cost of the annual meeting, the running of national office and the meetings of the board are shown here. Any other costs of an administrative nature are also charged to this heading.

Grants for research and other purposes are recognised as soon as a written agreement between the parties confirming the amount committed and the work to be carried out has been made. Provisions for grants for research and other purposes are recognised when the intention to make a grant has been communicated to the recipient but there is uncertainty as to the timing of the grant or the amount of the grant payable.

1.4) Tangible and intangible fixed assets

Expenditure on tangible and intangible fixed assets is normally charged to revenue in the year of purchase, unless the level of expenditure on individual items would distort the accounts, or if the asset has been donated to a research project while ownership has been retained by IA. In such cases assets are written off on a straight-line basis at rates calculated to reduce their cost to expected residual value over the term of their anticipated useful lives as follows:

Software 33%

1.5) Investments

All investments are initially recognised at their transaction value and subsequently measured at their fair value as at the balance sheet date using the closing quoted market price. The statement of financial activities includes the net gains and losses arising on revaluation and disposals throughout the year.

All gains and losses are taken to the statement of financial activities as they arise. Realised gains and losses on investments are calculated as the difference between sales proceeds and their opening carrying value or their purchase value if acquired on or subsequent to the first day of the

Annual Report 2024

financial year. Unrealised gains and losses are calculated as the difference between the fair value at the year end and their carrying value. Realised and unrealised investment gains and losses are combined in the statement of financial activities.

1.6) Cash and cash equivalents

Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.

1.7) Financial instruments

The charity has elected to apply the provisions of Section 11 “Basic Financial Instruments” and Section 12 “Other Financial Instruments” of FRS102 to all of its financial instruments.

Financial instruments are recognised in the Charity’s balance sheet when the Charity becomes party to the contractual provisions of the instrument.

Financial assets and liabilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.

Basic financial assets

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at the market rate of interest. Financial assets classified as receivable within one year are not amortised.

Basic financial liabilities

Basic financial liabilities, including creditors and bank loans, are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of future receipts discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.

Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are an obligation to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the Charity’s contractual obligations expire or are discharged or cancelled.

1.8) Funds

IA has both unrestricted and restricted funds, but no endowment funds, as shown below.

Annual Report 2024

Unrestricted Funds

General Fund
Capital Investment Fund (designated to provide income for the General Fund)
Branch member organisation Designated funds

Restricted Funds

Research Fund (to provide grants for research projects relevant to our beneficiaries)
Welfare Fund (to provide small financial grants to members)
Bryan N. Brooke (IA) Overseas Travel Fund (established by our founding president, Professor Bryan N. Brooke, to provide grants to assist members to attend related meetings abroad)
Young IA Bursary Fund (to provide grants to young people to attend events which will aid their recovery after surgery)
The Victoria Wills IA Internal Pouch Bursary (established in memory of Victoria Wills to provide grants to those with an internal pouch to attend events which will aid their recovery after surgery)
IA Annual Award for Innovation (established by former executive committee chairman Carolyn Stammers to provide funds for an annual award offered to IA member organisations for innovative ideas and activities).
Robert Wainwright Fund (established as a result of a pecuniary legacy from the estate of Robert Wainwright to promote exercise and fitness in stoma patients through online classes, videos, workshops and other similar services).
Branch member organisation Restricted funds

One of the unrestricted funds, the Capital Investment Fund, was designated to special purposes (to provide income for the General Fund) by decision of the board, which could be changed in the future.

For the purposes of clarity in these financial statements, all Branch designated funds have been amalgamated into a single reporting line shown as Branch Designated within unrestricted funds and similarly all Branch restricted funds have been amalgamated into a single reporting line shown as Branch Restricted funds under restricted funds.

Further details of each fund are disclosed in note 20.

1.9) Operating leased assets

Leases that do not transfer all the risks and rewards of ownership are classified as operating leases. Payments under operating leases are charged to the statement of financial activities on a straight-line basis over the period of the lease.

1.10) Employee benefits

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefits are recognised immediately as an expense when the Charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits.

As required by law, the charity offers a workplace pension scheme to all eligible employees. The scheme is operated by the National Employment Savings Trust (NEST) and is a defined

Annual Report 2024

contribution scheme with contributions made by both employer and employee. The amount charged to the Statement of Financial Activities in respect of pension costs is the contribution payable by the charity in the year.

1.11) Critical accounting estimates and judgements

In the application of the Charity’s accounting policies, the Trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and the future periods where the revision affects both current and future periods.

Annual Report 2024

2 ANALYSIS OF PRIOR YEAR TOTAL FUNDS SHOWN ON STATEMENT OF FINANCIAL ACTIVITIES

	Note	Unrestricted Funds £	Restricted Funds £	Total funds 30/9/2023 £
Income from: Donations and legacies 3 110,707 17,515 128,222 Charitable activities 4 132,016 - 132,016 Investments 5 124,666 9,089 133,755 Total income 367,389 26,604 393,993 Expenditure on: Raising funds 6 25,903 1,844 27,747 Charitable activities 7 531,601 55,721 587,322 Total expenditure 557,504 57,565 615,069 Net income/(expenditure) before gains and losses on investments (190,115) (30,961) (221,076) Net gains (losses) on investments 94,841 7,192 102,033 Net income/(expenditure) (95,274) (23,769) (119,043) Transfers between funds 20 (5,076) 5,076 - Net movement in funds (100,350) (18,693) (119,043) Reconciliation of funds: Total funds brought forward 4,830,362 586,884 5,417,246 Total funds carried forward 4,730,012 568,191 5,298,203
	6 7	25,903 531,601	25,903 1,844 531,601 55,721	1,844 27,747 55,721 587,322
		557,504	557,504 57,565	57,565 615,069
		(190,115)	(190,115) (30,961)	(30,961) (221,076)
		94,841	94,841 7,192	7,192 102,033
	20	(95,274) (5,076)	(95,274) (23,769) (5,076) 5,076	(23,769) (119,043) 5,076 -
		(100,350) 4,830,362	(100,350) (18,693) 4,830,362 586,884	(18,693) (119,043) 586,884 5,417,246
		4,730,012	4,730,012 568,191	568,191 5,298,203

Annual Report 2024

3 INCOME FROM DONATIONS AND LEGACIES

Funds transferred in from Branch member organisations	Member organisation donations £	Other donations £	Legacies £	Total 2024 £	Total 2023 £
- -	- -	22,417 9,204	332,396 10,000	354,813 19,204	88,652 22,055
-	-	31,621	342,396	374,017	110,707
- -	35,000 -	1,171 -	- -	36,171 -	3,714 13,801
-	35,000	1,171	-	36,171	17,515
-	35,000	32,792	342,396	410,188
13,801	500	44,853	69,068		128,222

As of 1 October 2022, one Affiliate member organisation opted to become a Branch and the transfer of their funds of £13,801 into the national charity is therefore included in donations in the Statement of Financial Activities.

The charity benefits greatly from the involvement and support of its volunteers, details of which are given in our annual report. In accordance with FRS102 and the Charities SORP (FRS102), the economic contribution of general volunteers is not recognised in the accounts.

Annual Report 2024

4 INCOME FROM CHARITABLE ACTIVITIES Unrestricted Restricted Total 2024 Total 2023 funds funds £ £ £ £ IA Journal 31,229 - 31,229 53,128 Annual (National Council) meeting 7,641 - 7,641 7,171 Member organisation annual subscriptions 26,151 - 26,151 30,149 Member subscriptions 28,147 - 28,147 41,568 Total 93,168 - 93,168 132,016 Total 2023 132,016 - - 132,016 Income of £26,151 (2023: £30,149) shown above under unrestricted funds as member organisation annual subscriptions includes £23,310 (2023: £27,314) in relation to annual subscription charges levied on Branch member organisations by the charity. A corresponding ~~|[EEE]~~ expense of £23,310 (2023: £27,314) is included under charitable expenditure to reflect the cost to the individual Branches’ funds. As such, the overall net effect of these items on the charity is zero.

5 INVESTMENT INCOME

Investment and interest income was £144,389 (2023: £133,755) of which £134,843 was unrestricted (2023: £124,666) and £9,546 was restricted (2023: £9,089). It came from the following sources: 2024 2023 £ £ UK listed investments 140,765 133,551 Bank interest 3,624 204 Total 144,389 133,755 ~~[EE~~ 6 EXPENDITURE ON RAISING FUNDS 2024 2023 £ £ Investment management costs 27,870 27,117 Online fundraising costs 630 630 Total 28,500 27,747 ~~===~~

Annual Report 2024

Expenditure on raising funds was £28,500 (2023: £27,747) of which £26,606 was unrestricted (2023: £25,903) and £1,894 was restricted (2023: £1,844).

7 EXPENDITURE ON CHARITABLE ACTIVITIES

IA Journal (including distribution costs) Grants and donations Annual (National Council) meeting (apportioned) Internal Pouch Group activities One2One training Publicity & promotion Information sheets & booklets National office (apportioned) Charitable activities Branch member organisation activities Support costs Governance costs Total	Note	2024 £	2023 £
	8 9 10	52,485 8 49,556 16,131 5,704 5,300 119,565 5,043 210,742 4,558 31,963 9 24,994 10 204,569	56,346 15,245 13,622 8,860 4,350 106,884 3,686 154,863 - 40,098 20,272 163,096
		730,610	587,322

In 2023, expenditure on charitable activities was £730,610 (2023: £587,322), of which £655,629 was expenditure from unrestricted funds (2023: £531,601) and £74,981 was expenditure from restricted funds (2023: £55,721). Expenditure of £31,963 shown above as Branch member organisation activities includes £23,310 in relation to annual subscription charges levied on Branch member organisations by the charity. Corresponding income of £23,310 is included under charitable income to reflect the income due to the unrestricted funds of the charity. As such, the overall net effect of these items on the charity is zero.

Annual Report 2024

8 GRANTS AND DONATIONS

Grants to individuals Grants to institutions and organisations Grants to IA member organisations Other donations Grants from IA branch member organisations to Research Fund	2024 £	2023 £
	7,238 - 1,458 5,860 35,000	4,129 5,000 2,853 3,263 -
Total	49,556	15,245

Recipients of grants to institutions and organisations in 2023 were –

	£
Cardiff and Vale University Health Board: Grant for IDB surveillance project	5,000

9 SUPPORT COSTS

IA Journal Annual (National Council) meeting (apportioned) Publicity & promotion One 2 One Young IA Internal Pouch Charitable activities Total	2024 £	2023 £
	3,231 9,446 6,000 766 - 130 5,421	3,231 3,231 9,446 6,116 6,000 5,505 766 - - 120 130 120 5,421 5,180
	24,994	24,994 20,272

Annual Report 2024

10 GOVERNANCE COSTS

National office (apportioned) Annual (National Council) meeting (apportioned) Other administrative meetings Audit fee Insurance Bank charges & currency costs Legal costs Other expenses Total	2024 £	2023 £
	173,776 6,685 1,284 4,250 4,907 814 3,109 9,744	132,616 7,552 - 4,050 4,606 1,004 4,613 8,655
	204,569	163,096

IA has Trustee Indemnity Insurance to indemnify the trustees and other officers against the consequences of any neglect or default on their part and to cover the trustees of IA's member organisations. The cost of this insurance is £4,907 (2023: £4,606) and is shown above.

11 ANALYSIS OF STAFF COSTS AND REMUNERATION OF KEY MANAGEMENT PERSONNEL 2024 2023 £ £ Salaries and wages 201,687 141,103 Social security costs 15,977 10,559 Pension costs 20,455 13,888 Other benefits 6,104 3,625 Agency/contract staff 78,121 69,256 Total 322,344 238,431 ~~LLL~~ Annual Report 2024 32

The average number of employees during the year was 6 (2023: 4) with all employee time involved in providing either support to the governance of the charity or support to charitable activities. The average number of full time equivalent employees during the year was 4 (2023: 3).

The number of employees receiving total employee benefits (excluding employer pension costs) in excess of £60,000 were Total employee benefits (excluding 2024 2023 employer pension costs) £70,001 - £80,000 1 1 ~~—o~~

The charity considers that its key management personnel comprise the trustees, the Chief Executive Officer and the National Officer Manager. The total employee benefits of the key management personnel were £144,606 (2023: £140,625).

12 PAYMENTS TO TRUSTEES AND RELATED PARTY TRANSACTIONS

The trustees all give freely of their time and expertise without any form of remuneration or other benefit in cash or kind (2023: nil). Trustees were reimbursed expenses incurred in performing their duties as board members, as follows -

Seven trustees (2023: 5) were reimbursed £5,191 (2023: £1,305) for travelling, postage, telephone, stationery and other costs incurred in fulfilling their voluntary activities, including upfront costs incurred in running events.

During the year, one trustee (2023 – nil), Scott Clifford, received payment for providing IT support services to the charity as per an existing contract for services which was in place prior to his appointment as trustee on 18 November 2023 and under the authority provided by the charity’s governing document, contained in clause 4.4.3 of its Articles of Association The total amount paid from date of his appointment was £15,260, this amount being paid to SC Training Services Ltd, a company of which Mr Clifford is a director. The amount outstanding to SC Training Services Ltd at year end was £1,632.

Annual Report 2024

13 INTANGIBLE FIXED ASSETS

Software Cost At 1 October 2023 Additions At 30 September 2024 Amortisation At 1 October 2023 Charge for the year At 30 September 2024 Net book value At 30 September 2023 At 30 September 2024	Total £
	6,211 -
	6,211
	6,211 -
	6,211
	- -

Software comprises the membership database purchased to administer the membership records of the charity. Development costs which enhance the functionality of the software are capitalised. Costs for the software are amortised over a three year life from the date the expenditure was incurred, with amortisation included within expenditure on charitable activities in the statement of financial activities. The trustees have chosen to amortise such costs over a three year period as in their opinion this most accurately reflects the life of all software, which is inherently limited due to ongoing product development and the retirement and replacement of current software products with new improved versions .

Annual Report 2024

14 FIXED ASSET INVESTMENTS

Movements on investments for the year ended 30 September 2024 were as shown below.

Market value basis Quoted investments Brought forward Additions Disposals at carrying value Unrealised gains/losses At market value 30th September At cost 30 September	2024 £	2023 £
	5,224,613 1,310,202 (1,339,525) 405,736	5,346,790 539,239 (690,504) 29,088
	5,601,026	5,224,613
	5,067,820	5,053,769

Prior to October 2019, all investments were held in a single main portfolio, with investments allocated to funds on the basis of the cost input by each fund. At 1 October 2019, the split was as follows:

Capital Investment Fund 87.54% Research Fund 6.64% General Fund 0.00% Welfare Fund 0.46% Elizabeth Clay Memorial Fund 5.18%[Bryan N. Brooke (IA) Overseas Travel ] 0.18% Fund ~~———a~~ In October 2019, £375,000 was transferred from the charity’s bank account into a new “B” portfolio, this being the investment of a proportion of funds held on behalf of Branches in order to generate an income for these Branches. The main portfolio continued to operate using the split noted above until 30 September 2021, when the Elizabeth Clay Memorial Fund was closed and the value of the main portfolio previously allocated to it was transferred to the Capital Investment fund as of 1 October 2021. The split from 1 October 2021 on the main portfolio was therefore as follows:

Capital Investment Fund 92.72% Research Fund 6.64% General Fund 0.00% Welfare Fund 0.46%[Bryan N. Brooke (IA) Overseas Travel ] 0.18% Fund ~~——~~ The table above showing movement on investments for the year represents the combined investments held on both the main and “B” portfolios.

The cash held within the investment portfolios is £42,897 (2023: £24,574). All the investments are quoted on the UK Stock Exchange. IA does not hold any investments outside the UK. Looking at the combined investment portfolios, there are no investments that exceed 5% of the total market value as at 30 September 2024.

Annual Report 2024

15 FINANCIAL INSTRUMENTS

Carrying value of financial assets Instruments measured at fair value through profit and loss	2024 £	2023 £
	5,601,026	5,224,613

16 DEBTORS

Amounts falling due within one year: Legacies due Prepayments Other debtors Due from branch member organisations Rent deposit Total	2024 £	2023 £
	23,000 13,853 12,800 - 3,500	42,468 8,549 37,372 - 3,500
	53,153	91,889

17 CASH ON DEPOSIT AND IN HAND

The balance shown includes an amount of £100 held on trust for the unincorporated predecessor charity, IA (Charity Commission (England & Wales) registration number 234472).

Annual Report 2024

18 CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

2024 £ 2023 £ Accruals 38,053 39,802 Research projects 84,355 84,355 Taxation and social security 5,999 4,044 Due to branch member organisations 1,248 1,178 Other creditors 25,832 21,949 Total 155,487 151,328 19 RETIREMENT BENEFIT SCHEMES Defined contribution schemes The company operates a defined contribution pension scheme for all qualifying employees. The assets of the scheme are held separately from those of the company in an independently administered fund. The company contributes a specified percentage of payroll costs to the retirement benefit scheme to fund the benefits. The only obligation of the company with respect to the scheme is to make the specified contributions. The charge to profit or loss in respect of defined contribution schemes was £20,455 (2023: £13,888). The creditor at the balance sheet date relating to this scheme is £1,633 (2023: £975). ~~TE~~	2024 £ 2023 £ Accruals 38,053 39,802 Research projects 84,355 84,355 Taxation and social security 5,999 4,044 Due to branch member organisations 1,248 1,178 Other creditors 25,832 21,949 Total 155,487 151,328 19 RETIREMENT BENEFIT SCHEMES Defined contribution schemes The company operates a defined contribution pension scheme for all qualifying employees. The assets of the scheme are held separately from those of the company in an independently administered fund. The company contributes a specified percentage of payroll costs to the retirement benefit scheme to fund the benefits. The only obligation of the company with respect to the scheme is to make the specified contributions. The charge to profit or loss in respect of defined contribution schemes was £20,455 (2023: £13,888). The creditor at the balance sheet date relating to this scheme is £1,633 (2023: £975). ~~TE~~
Annual Report 2024 37

2024
£
2023
£
Accruals
38,053
39,802
Research projects
84,355
84,355
Taxation and social security
5,999
4,044
Due to branch member organisations
1,248
1,178
Other creditors
25,832
21,949
Total
155,487
151,328
19 RETIREMENT BENEFIT SCHEMES
Defined contribution schemes
The company operates a defined contribution pension scheme for all qualifying employees. The
assets of the scheme are held separately from those of the company in an independently
administered fund. The company contributes a specified percentage of payroll costs to the
retirement benefit scheme to fund the benefits. The only obligation of the company with respect to
the scheme is to make the specified contributions.
The charge to profit or loss in respect of defined contribution schemes was £20,455 (2023:
£13,888). The creditor at the balance sheet date relating to this scheme is £1,633 (2023: £975).
~~TE~~

Annual Report 2024
37

20 ANALYSIS OF CHARITABLE FUNDS

For the financial year ended 30 September 2024

Balance 1/10/23 £	Income £	Expenditure £	Gains/ (losses) on investment assets £	Transfers between funds	Balance 30/9/2024 £
264,435 4,186,389 279,188	264,435 545,603 4,186,389 - 279,188 56,425	545,603 666,416 - - 56,425 15,819	666,416 - - 427,555 15,819 -	177,680 (177,680) (1,534)	321,302 4,436,264 318,260
4,730,012	4,730,012 602,028	602,028 682,235	682,235 427,555	(1,534)	5,075,826
114,736 35,228 20,137 5,230 1,813 349 54,087 336,611	114,736 44,878 35,228 599 20,137 240 5,230 - 1,813 - 349 - 54,087 - 336,611 -	44,878 1,727 599 2,162 240 48 - - - - - 111 - 5,195 - 67,632	1,727 28,948 2,162 1,992 48 797 - - - - 111 - 5,195 - 67,632 -	- - - - - - - 1,534	186,835 35,657 21,126 5,230 1,813 238 48,892 270,513
568,191	568,191 45,717	45,717 76,875	76,875 31,737	1,534	570,304
5,298,203	5,298,203 647,745	647,745 759,110	759,110 459,292	-	5,646,130

The transfer of £177,680 from the Capital Investment Fund to the General Fund was made to bring the level of General Fund reserves back into line with the charity’s reserves policy. A transfer of £1,534 was made from Branch Designated to Branch Restricted funds to cover deficits on individual Branches’ Restricted Funds accounts.

Annual Report 2024

For the financial year ended 30 September 2023

Balance 1/10/22 £	Income £	Expenditure £	Gains/ (losses) on investment assets £	Transfers between funds	Balance 30/9/2023 £
238,466 4,375,566 216,330	238,466 295,886 4,375,566 - 216,330 71,503	295,886 553,935 - - 71,503 3,569	553,935 - - 94,841 3,569 -	284,018 (284,018) (5,076)	264,435 4,186,389 279,188
4,830,362	4,830,362 367,389	367,389 557,504	557,504 94,841	(5,076)	4,730,012
97,853 34,483 19,774 5,230 1,813 460 58,056 369,215	97,853 12,005 34,483 570 19,774 228 5,230 - 1,813 - 460 - 58,056 - 369,215 13,801	12,005 1,682 570 276 228 46 - - - - - 111 - 3,969 13,801 51,481	1,682 6,560 276 451 46 181 - - - - 111 - 3,969 - 51,481 -	- - - - - - - 5,076	114,736 35,228 20,137 5,230 1,813 349 54,087 336,611
586,884	586,884 26,604	26,604 57,565	57,565 7,192	5,076	568,191
5,417,246	5,417,246 393,993	393,993 615,069	615,069 102,033	-	5,298,203

The transfer of £284,018 made to the General Fund from the Capital Investment Fund was made to bring the level of General Fund reserves back into line with the charity’s reserves policy. A transfer of £5,076 was made from Branch Designated to Branch Restricted funds to cover a deficit on an individual Branch’s Restricted Funds account.

Annual Report 2024

21 ANALYSIS OF NET ASSETS BETWEEN FUNDS

For the financial year ended 30 September 2024

Fixed Assets £	Net Current Assets/ (Liabilities) £	Long Term Liabilities £	Total 30/9/2024 £
- 4,849,752 -	- 321,302 4,849,752 (413,488) - 318,260	321,302 - (413,488) - 318,260 -	321,302 4,436,264 318,260
4,849,752	4,849,752 226,074	226,074	5,075,826
347,308 24,060 9,415 - - - - 370,491	347,308 (160,473) 24,060 11,597 9,415 11,711 - 5,230 - 1,813 - 238 - 48.892 370,491 (99,978)	(160,473) - 11,597 - 11,711 - 5,230 - 1,813 - 238 - 48.892 - (99,978) -	186,835 35,657 21,126 5,230 1,813 238 48,892 270,513
751,274	751,274 (180,970)	(180,970) -	570,304
5,601,026	5,601,026 45,104	45,104 -	5,646,130

Annual Report 2024

For the financial year ended 30 September 2023

Fixed Assets £	Net Current Assets/ (Liabilities) £	Long Term Liabilities £	Total 30/9/2023 £
- 4,520,304 -	- 264,435 4,520,304 (333,915) - 279,188	264,435 - (333,915) - 279,188 -	264,435 4,186,389 279,188
4,520,304	4,520,304 209,708	209,708	4,730,012
323,715 22,426 8,775 - - - - 349,393	323,715 (208,979) 22,426 12,802 8,775 11,362 - 5,230 - 1,813 - 349 - 54,087 349,393 (12,782)	(208,979) - 12,802 - 11,362 - 5,230 - 1,813 - 349 - 54,087 - (12,782) -	114,736 35,228 20,137 5,230 1,813 349 54,087 336,611
704,309	704,309 (136,118)	(136,118) -	568,191
5,224,613	5,224,613 73,590	73,590 -	5,298,203

Unrealised gains on investment assets included above:

Unrestricted funds Restricted funds Total ~~a~~	2024 £ ~~a~~	2023 £ ~~a~~
	481,073 52,133 ~~a~~	167,686 3,158 ~~a~~
	533,206 ~~a~~	170,844 ~~a~~

Annual Report 2024

22 OPERATING LEASE COMMITMENTS

At 30 September 2024 the charity had the following future minimum commitments under a noncancellable lease for office premises as follows:-

Payment due	2024 £	2023 £
No later than one year Later than one year and not later than five years Total	17,979 5,537	16,336 21,350
	23,516	37,686

The amount charged to expenditure on charitable activities in relation to the lease was £17,455.

The charity had no other off-balance sheet arrangements.

23 RECONCILIATION OF NET INCOME/(EXPENDITURE) TO NET CASH FLOW FROM OPERATING ACTIVITIES

OPERATING ACTIVITIES
	2024 £	2023 £
Net income/(expenditure) for the reporting period (as per the statement of financial activities) Adjustments for: Deduct interest income shown in investing activities Deduct gains/add back losses on investments Loss/(profit) on the sale of investments (Increase)/decrease in debtors Increase/(decrease) in creditors Net cash used in operating activities	347,927 (144,389) (405,736) (53,556) 38,736 4,159	(119,043) (133,755) (29,088) (72,944) 47,499 (6,303)
	(212,859)	(313,634)

24 ANALYSIS OF CHANGES IN NET FUNDS

The charity had no debt during the year.

25 MEMBER ORGANISATIONS’ ACCOUNTS

Branch member organisations’ activities are included in these financial statements. Affiliate member organisations, being separately registered charities, prepare their own accounts in

Annual Report 2024

accordance with the appropriate legislation and are accordingly not included in these financial statements.

As noted in notes 4 and 7 above, annual subscription charges of £23,310 were charged to Branch member organisations by the charity and as a result, both charitable income for unrestricted funds and charitable expenditure for restricted funds have been increased by this amount to reflect those transactions. The overall net effect on the charity is zero.

Annual Report 2024