# PTEN UK AND IRELAND PATIENT GROUP

## Details

- **Country:** England & Wales
- **Charity number:** 1172205
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 22, 2017
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1172205


## Contact

- **Address:** 11 Whinchat Close, Hartley Wintney, Hook
- **Postcode:** RG27 8TT
- **Phone:** 07768864667
- **Email:** info@ptenuki.org
- **Website:** www.ptenuki.org



## Activities

**Objects:** A) TO PROMOTE AND PROTECT THE HEALTH OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND BY THE PROVISION OF SUPPORT, INFORMATION AND PRACTICAL ADVICE FOR SUCH PERSONS, THEIR FAMILIES AND CARERS.B) TO IMPROVE THE HEALTHCARE OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND THROUGH ADVANCING THE EDUCATION AND AWARENESS OF MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC. C) TO SUPPORT AND PROMOTE RESEARCH, ESPECIALLY BUT NOT EXCLUSIVELY INTO THE DIAGNOSIS, TREATMENT AND PREVENTION OF PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND.

**Activities:** Promote, protect and improve healthcare of  persons affected by PTEN Hamatoma Tumour SyndromeSupport and promote research into the Syndrome




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Areas of operation

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £47904 | £29236 | — | — |
| Dec. 31, 2023 | £31411 | £24739 | — | — |
| Dec. 31, 2022 | £9454 | £10212 | — | — |
| Dec. 31, 2021 | £1776 | £1908 | — | — |
| Dec. 31, 2020 | £9298 | £3446 | — | — |



## Trustees

- Clare Thurlow — appointed Oct. 1, 2025
- Dr KATHERINE LACHLAN — appointed March 22, 2017
- ELLEN CHALLIS — appointed March 22, 2017
- Eleanor Welsh — appointed Oct. 10, 2024
- IAN STOCK — appointed March 22, 2017
- Kelly Kearley — appointed June 25, 2017
- Priyanka Tibarewal — appointed Jan. 1, 2024