# UK INFANTILE SPASMS TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1172167
- **Other names:** UKIST - UK INFANTILE SPASMS TRUST
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 21, 2017
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1172167


## Contact

- **Address:** 28 OVERNHILL ROAD, BRISTOL
- **Postcode:** BS16 5DN
- **Phone:** 0117 956 8868
- **Email:** UKINFANTILESPASMSTRUST@GMAIL.COM
- **Website:** https://ukinfantilespasmstrust.org



## Activities

**Objects:** THE RELIEF OF THE NEEDS OF THOSE SUFFERING FROM INFANTILE SPASMS OR WEST SYNDROME BY (BUT NOT EXCLUSIVELY):(A) THE PROVISION OF INFORMATION, ADVICE, OTHER ASSISTANCE AND SUPPORT TO CHILDREN, PARENTS, FAMILIES AND CARERS OF THOSE AFFECTED BY INFANTILE SPASMS OR WEST SYNDROME;(B) THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF INFANTILE SPASMS OR WEST SYNDROME AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH;(C) RAISING THE AWARENESS OF THE PUBLIC AND OF THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS(D) PROVIDING INFORMATION AND TRAINING TO THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS.

**Activities:** Raising money to help families who have children who suffer from spasms with support and care.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £87099 | £40354 | — | — |
| April 5, 2024 | £44248 | £23833 | — | — |
| April 5, 2023 | £23820 | £16025 | — | — |
| April 5, 2022 | £45795 | £16830 | — | — |
| April 5, 2021 | £40081 | £15949 | — | — |



## Trustees

- **JENNIFER RAWLING** (Chair) — appointed March 21, 2017
- Alice Goldhill — appointed May 2, 2020
- Amy Louise Dowding — appointed March 26, 2022
- Chloe Amber Louise Cox — appointed Feb. 24, 2024
- Louisa Coyle — appointed May 2, 2020
- Louise Elizabeth Derbyshire — appointed March 4, 2023
- SAMIA SANDERS — appointed March 21, 2017