Trustees' Annual Report for the period Period start date Period end date Day Month Year Day Month Year From 6 4 2024 To 5 4 2025
Section A Reference and administration details ~~ee~~
Charity name Amyloid Action ~~PO~~ Other names charity is known by Non ~~PO~~
Registered charity number (if any) 1171957 ~~|~~
Charity's principal address 94 MAINS LANE POULTON-LE-FYLDE LANCS
Postcode FY6 7LD
Names of the charity trustees who manage the charity
Trustee name Office (if any)
Dates acted if not for Name of person (or body) entitled whole year to appoint trustee (if any)
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1 Richard Preston Chair Kathryn May
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2 Preston Charles James
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3 Purvis
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Professor Adrian
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4 Bloor Professor Julian
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5 Gillmore
6
7
8
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9 10 11 12 13 14 15 16 17 18 19 20
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year
Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)
Section B Structure, governance and management
Description of the charity’s trusts
Type of governing document CIO Foundation Constitution
(eg. trust deed, constitution)
How the charity is constituted Constitution of a CIO whose only voting members are (eg. trust, association, company) its charity trustees
Trustee selection methods Elected by other trustees
(eg. appointed by, elected by)
Additional governance issues (Optional information)
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You may choose to include additional information, where relevant, about:
All trustees give of their time freely and no trustee remuneration was paid in the year. No trustee expenses were claimed in the year.
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policies and procedures adopted for the induction and training of trustees;
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the charity’s organisational structure and any wider network with which the charity works;
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relationship with any related parties;
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trustees’ consideration of major risks and the system and procedures to manage them.
Section C Objectives and activities
Summary of the objects of the charity set out in its governing document
To assist in the treatment and care of persons suffering from amyloidosis in England and Wales by the provision of equipment, facilities, services, financial assistance, support, education and practical advice and research. To advance the education of the general public and medical professionals in all areas relating to amyloidosis.
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| Amyloid Action has established its grant making policy | Amyloid Action has established its grant making policy | Amyloid Action has established its grant making policy | ||
|---|---|---|---|---|
| to achieve its objects for raising funds for | equipment | |||
| and research at the Christie Hospital and | the National | |||
| Amyloidosis Centre and for the public benefit of | ||||
| improving the lives of amyloidosis sufferers by | ||||
| providing funds and equipment to sufferers and also to | ||||
| raise awareness/education about this rare disease of | ||||
| Amyloidosis amongst the general public. | ||||
| Summary of the main activities undertaken for the public benefit in relation to these |
We continue to deliver virtual presentations and discussions throughout our professional network - |
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| objects (include within this section the statutory declaration that trustees have |
these include The Institution of Engineering and Technology, The association for Project Management, |
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| had regard to the guidance | universities, medical organisations and local | |||
| issued by the Charity Commission on public benefit) |
companies. This has both raised funds and helped to raise awareness of this little known disease. |
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| In carrying out all of the above, the trustees confirm | ||||
| that they have referred to the guidance contained in | ||||
| the Charity Commission’s general guidance on public | ||||
| benefit when reviewing our aims and objectives and in | ||||
| planning future activities and setting the grant making | ||||
| policy for the year. | ||||
| Additional details of objectives and activities (Optional information) | ||||
| Youmay chooseto include | ||||
| further statements, where | ||||
| relevant, about: | ||||
| • policy on grantmaking; |
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| • policy programme related |
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| investment; | ||||
| • contribution made by |
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| volunteers. |
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Section D Achievements and performance
Summary of the main Our activities have been mainly virtual discussions with some local
achievements of the charity face to face. We have spread awareness of amyloidosis, through our
during the year activities with professional and trade bodies and educational establishments, our fundraising has been more limited.
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Section E Financial review
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Brief statement of the charity’s The charity has minimal overheads and accordingly does not need policy on reserves large reserves. A minimum balance of around £200 is envisaged.
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Details of any funds materially in deficit ~~oo~~
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Further financial review details (Optional information) You may choose to include additional information, where relevant about: • the charity’s principal sources of funds (including any fundraising);
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• how expenditure has supported the key objectives of the charity;
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• investment policy and objectives including any ethical investment policy adopted.
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Section F Other optional information ~~_~~
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~~_~~ Section G Declaration
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The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
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Signature(s
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----- Start of picture text -----
Full name(s Richard Preston
Position (eg Secretary, Chair, etc Chair
Dat
3/2/2026
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| ~~CHARITYCOMMISSION~~ FOR ENGLAND AND WALES |
Charity Name ~~—~~ |
Charity Name ~~—~~ |
Charity Name ~~—~~ |
No (if any) ~~—~~ |
CC16a ~~—~~ |
|---|---|---|---|---|---|
| AMYLOID ACTION ~~—~~ |
1171957 ~~—~~ |
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| Receipts and payments accounts ~~—~~ |
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| For the period from | Period start date | To ~~—~~ |
Period end date ~~—~~ |
||
| 06/04/2024 | 05/04/2025 ~~—~~ |
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| Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year ~~CHARITY COMMISSION~~ ~~—~~ |
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| to the nearest £ | to the nearest £ | to the nearest £ | to the nearest £ | to the nearest £ | |
| A1 Receipts | |||||
| VoluntaryDonations | £120.00 | £0.00 | £0.00 | £120.00 | £0.00 |
| Interest(CAF Cash Account) | £9.24 | £0.00 | £0.00 | £9.24 | £0.00 |
| Interest(CAF Gold Account) | £197.00 | £0.00 | £0.00 | £197.00 | £0.00 |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| Sub total(Gross income for AR) | £326.24 | £0.00 | £0.00 | £326.24 | £0.00 |
| A2 Asset and investment sales, (see table). |
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| £0.00 | £0.00 | £0.00 | £0.00 | ||
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| Sub total | Sub total £0.00 |
£0.00 | £0.00 | £0.00 | £0.00 |
| £326.24 | |||||
| Total receipts | £326.24 | £0.00 | £0.00 | £0.00 | |
| A3 Payments | |||||
| CAF Bank MonthlyCharges | £60.00 | £0.00 | £0.00 | £60.00 | £0.00 |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | |
| Sub total | £60.00 | £0.00 | £0.00 | £60.00 | £0.00 |
| A4 Asset and investment purchases, (see table) |
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| £0.00 | £0.00 | £0.00 | £0.00 | ||
| £0.00 | £0.00 | £0.00 | £0.00 | ||
| Sub total | £0.00 | £0.00 | £0.00 | £0.00 | £0.00 |
| Total payments | £60.00 | £0.00 | £0.00 | £60.00 | £0.00 |
| Net of receipts/(payments) | £266.24 | £0.00 | £0.00 | £266.24 | £0.00 |
| A5 Transfers between funds | £0.00 | £0.00 | £0.00 | £0.00 | £0.00 |
CCXX R1 accounts (SS)
02/02/2026
1
A6 Cash funds last year end £0.00 £0.00 £0.00 £0.00 £0.00 Cash funds this year end £266.24 £0.00 £0.00 £266.24 £0.00 ~~eeee~~
| A6 Cash funds last year end ~~eeee~~ |
£0.00 ~~eeee~~ |
£0.00 ~~eeee~~ |
£0.00 ~~eeee~~ |
£0.00 ~~eeee~~ ~~ee~~ |
£0.00 ~~eeee~~ |
|---|---|---|---|---|---|
| Cash funds this year end ~~eeee~~ |
£266.24 ~~eeee~~ |
£0.00 ~~eeee~~ |
£0.00 ~~eeee~~ |
£266.24 ~~eeee~~ ~~ee~~ |
£0.00 ~~eeee~~ |
| ~~eeee~~ | ~~eeee~~ | ~~eeee~~ | ~~eeee~~ | ~~eeee~~ ~~ee~~ |
~~eeee~~ |
| Section B Statement of assets and liabilities at the end of the period Categories Details Unrestricted funds Restricted funds Endowment funds ~~a~~ |
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| ~~—_~~ | ~~—_~~ | to nearest £ ~~—_~~ |
to nearest £ ~~—_~~ |
to nearest £ ~~—_~~ |
|
| B1 Cash funds ~~—_~~ |
CAF Bank Cash Account ~~—_~~ |
£4,688.00 ~~—_~~ |
£0.00 ~~—_~~ |
£0.00 ~~—_~~ |
|
| CAF Bank Gold Account ~~—_~~ |
£8,477.00 ~~—_~~ |
£0.00 ~~—_~~ |
£0.00 ~~—_~~ |
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| ~~—_~~ | £0.00 ~~—_~~ |
£0.00 ~~—_~~ |
£0.00 ~~—_~~ |
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| ~~—_~~ | Total cash funds ~~—_~~ |
£13,165.00 ~~—_~~ |
£0.00 ~~—_~~ |
£0.00 ~~—_~~ |
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| ~~—_~~ | (agree balances with receipts and payments account(s)) Agreement Error OK OK Unrestricted funds Restricted funds Endowment funds ~~—_~~ |
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| Details | to nearest £ | to nearest £ | to nearest £ | ||
| B2 Other monetary assets | £0.00 | £0.00 | £0.00 | ||
| £0.00 | £0.00 | £0.00 | |||
| £0.00 | £0.00 | £0.00 | |||
| £0.00 | £0.00 | £0.00 | |||
| £0.00 | £0.00 | £0.00 | |||
| £0.00 | £0.00 | £0.00 | |||
| ~~Se~~ | Details ~~Se~~ |
Fund to which asset belongs ~~Se~~ |
Cost (optional) ~~Se~~ |
Current value (optional) ~~Se~~ |
|
| B3 Investment assets ~~Se~~ |
~~Se~~ | ~~Se~~ | £0.00 ~~Se~~ |
£0.00 ~~Se~~ |
|
| ~~Se~~ | ~~Se~~ | £0.00 ~~Se~~ |
£0.00 ~~Se~~ |
||
| ~~Se~~ | ~~Se~~ | £0.00 ~~Se~~ |
£0.00 ~~Se~~ |
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| ~~Se~~ | ~~Se~~ | £0.00 ~~Se~~ |
£0.00 ~~Se~~ |
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| ~~Se~~ | ~~Se~~ | £0.00 ~~Se~~ |
£0.00 ~~Se~~ |
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| ~~Se~~ | ~~Se~~ | ~~Se~~ | ~~Se~~ | ~~Se~~ | |
| Details | Fund to which asset belongs |
Cost (optional) | Current value (optional) |
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| B4 Assets retained for the charity’s own use |
£0.00 | £0.00 | |||
| £0.00 | £0.00 | ||||
| £0.00 | £0.00 | ||||
| £0.00 | £0.00 | ||||
| £0.00 | £0.00 | ||||
| £0.00 | £0.00 | ||||
| £0.00 | £0.00 | ||||
| £0.00 | £0.00 | ||||
| £0.00 | £0.00 | ||||
| ~~SS~~ | Details ~~SS~~ |
Fund to which liability relates ~~SS~~ |
Amount due (optional) ~~SS~~ |
When due (optional) ~~SS~~ |
|
| B5 Liabilities ~~SS~~ |
~~SS~~ | ~~SS~~ | £0.00 ~~SS~~ |
~~SS~~ | |
| ~~SS~~ | ~~SS~~ | £0.00 ~~SS~~ |
~~SS~~ | ||
| ~~SS~~ | ~~SS~~ | £0.00 ~~SS~~ |
~~SS~~ | ||
| ~~SS~~ | ~~SS~~ | £0.00 ~~SS~~ |
~~SS~~ | ||
| ~~SS~~ | ~~SS~~ | £0.00 ~~SS~~ |
~~SS~~ | ||
| ~~SS~~ | ~~SS~~ | ~~SS~~ | ~~SS~~ | ~~SS~~ | ~~SS~~ |
| Signed by one or two trustees on behalf of all the trustees |
Signature | Print Name | Date of approval | ||
| RICHARD PRESTON | 3 Feb 2026 | ||||
CCXX R2 accounts (SS)
02/02/2026
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