# NORRIE DISEASE FOUNDATION

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1171274
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Jan. 24, 2017
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1171274


## Contact

- **Address:** The Norrie Disease Foundation, PO Box 12476, COLCHESTER
- **Postcode:** CO1 9RB
- **Phone:** 01487 898323
- **Email:** ENQUIRIES@NORRIEDISEASE.ORG.UK
- **Website:** WWW.NORRIEDISEASE.ORG.UK



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY NORRIE DISEASE, THEIR FAMILIES, FRIENDS AND CARERS BY:-1. PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF NORRIE DISEASE IN ALL ITS FORMS INCLUDING BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC;2. RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH NORRIE DISEASE.

**Activities:** Reference no: 061000035663 The activities of the CIO are to relieve the needs of those affected by Norrie disease by promoting greater understanding of the causes, symptoms and treatment of Norrie disease in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training
- **Who:** People With Disabilities, The General Public/mankind



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **WENDY JOAN HORROBIN** | Chair | Jan. 24, 2017 |
| Anthony Reyers |  | Jan. 27, 2021 |
| KELLY LOUISE LEGGETT |  | Jan. 24, 2017 |
| Kelly Robinson |  | March 22, 2018 |
| Prof Cornelis Jan Kros |  | April 24, 2024 |
| THERESA PEACOCK |  | Jan. 24, 2017 |




