ANNUAL GENERAL MEETING 12 September 2024 Trustees’ Report Reg’d Charity no. 1170536
Good evening, and welcome to our AGM.
This has been a very active year for PCaSO, with several changes including four new Trustees. A big thank you to all of our amazing volunteers who keep PCaSO running smoothly - as I have mentioned previously, there are over fifty of us.
Our membership numbers have been increasing, and many have joined the WhatsApp group of over sixty members, all sharing their experiences and helping each other. Subjects range from the many treatment options to side effects. The WhatsApp group is open to all members who were born with a prostate. Since March, we now also have a second WhatsApp group, formed specifically for those members who are on Active Surveillance, which currently has half a dozen members. Do let us know if you are also on Active Surveillance, not having received treatment for prostate cancer, and would like to join this group.
PSA (prostate specific antigen) testing remains a key activity for PCaSO, and is detailed in our county branch reports below. At the time of writing the grand total number of tests conducted by PCaSO stands at 37,651, a figure we are particularly proud of.
Our three long-serving Dorset trustees, Allan Higgin, Barry Taylor and Derek Pilling are standing down as trustees and from the Executive Committee, for well-earned retirement from their volunteer roles. I thank them for all their hard work over the years and wish them well into the future. We are placing PCaSO’s Dorset branch into ‘dormancy’ until new volunteers can be found to run the group and its local events. Details are in the Dorset report below.
After many years of dedicated work Cliff, our IT Administrator, has asked that we share the workload that he has been carrying out. At the request of the Executive Committee we have set up a small group to review our website and its management, using an outside company. This will have a one-off cost of several thousand pounds, and ongoing maintenance costs. Similarly, our new Membership Secretary and Trustee, Mike Tompsett, is reviewing a new membership administration system, which will integrate the collected data more efficiently and reduce time needed to carry out the task. At all times we are very conscious of GDPR and protecting membership personal data.
Substantial donations have been made to our Charity, as mentioned in the group reports below, and the monies are being wisely used by the groups.
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Gift Aid received on donations contributes over £10,000 each year. I’m glad that Tim Bonner, a new Trustee and Executive Committee member, has taken on the important role of Gift Aid Coordinator.
During the year, Roger Bacon completed the review, together with our medical advisors, of our publication "Knowledge Empowers". This is now available on our website, and hard copies are distributed when required. Many copies have been posted to other support groups around the country (paid for by them, of course!).
Tony Ball is currently revising our "Healthy Living" booklet, for publication later this year. Several thousands of the first edition have been handed out to men or their partners at our PSA testing days. Our latest, online version of "Updates" magazine was compiled and published by Hampshire member Paul Bowler. This was well received, and the next edition is in the course of preparation. Contributions of your stories and experiences would be most welcome.
During the autumn 2023 and spring we had several video presentations on various relevant subjects, some of which have been added to our website, and others are awaiting editing and uploading.
This year Tackle (a National umbrella organisation for local groups) decided, with no notice to us, to stop their national helpline. This has not hugely affected us, since we already had in place our own PCaSO helpline on 07879 903407. However, we are now in the process of updating the PCaSO banners used at our PSA testing and other events with our own helpline number, and taking the opportunity to have a general update. Similarly, our leaflets will be updated when new stock is needed.
Brian Holden Chair
Dorset Branch Annual Report 2024 (Allan Higgin)
It is with sadness that I have to report that since the COVID lockdown, there has been no enthusiasm to revive the Dorset Branch. No one has come forward to take on the major management roles of Chairman, Treasurer and Secretary, and no member has requested the revival of regular meetings or any other activity. The decision has therefore been made to place the Branch into a dormant state; please see the proposed process below. As proposed, this dormant state would last for a period of four years, unless the group again becomes active.
Allan Higgin Interim Chair, Dorset Branch
Process for placing PCaSO Dorset branch into dormant status, as agreed by Trustees, pending the identification of new local volunteers who could build up a new active Dorset group:
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Executive Committee Chair, Secretary and Treasurer to hold the equivalent Dorset roles, in dormancy.
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Dorset bank account at HSBC to be closed and the funds held for benefit of Dorset men, ringfenced within the Executive account, although sharing pro-rata with other counties, any relevant, ongoing PCaSO central costs.
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Any donations received during the period of dormancy that are annotated as being for PCaSO Dorset will be applied to the ring-fenced fund.
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An advisory email to go to all Dorset members (or by post if no email address held). NB this is pending further discussion with Membership Secretary regarding Dorset actual member numbers.
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There is no requirement for a Dorset members’ meeting, as the branch is not being wound-up.
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If no new Dorset Branch activity commences within four years of the start of the dormancy, any residual funds will be applied for the general charitable purposes of PCaSO.
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If an active new Dorset group is formed, that group will be invited to provide up to three trustees, as per PCaSO rules.
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An active new Dorset group will, when formed, adopt and adhere to PCaSO's charitable objectives and rules.
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An active new Dorset group will, when formed, be able to open a Branch bank account on the same basis as the other county groups. Any ring-fenced funds will be transferred from the Executive account to the new branch account.
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During the period of dormancy, Dorset members will remain as full members of PCaSO and be able to take part in general meetings, Zoom talks, WhatsApp etc, and receive e-newsletters, "Updates" etc. Any new members of PCaSO resident in Dorset will be regarded as Dorset members unless they wish otherwise.
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This dormancy process is written in good faith and is 'original' in having no practical precedent.
Hampshire Branch Annual Report 2024 (Peter Weir)
We have held eight PSA Testing Events so far, since last AGM:
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Cosham 9th Sept 2023 (269 men tested)
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Eastleigh 21st Oct 2023 (309)
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Havant 18th Nov 2023 (366)
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Hayling Island Feb 10th 2024 (444)
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Portsmouth FC Mar 17th 2024 (384)
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Gosport Apr 26th 2024 (500)
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Comserv Havant, 21st May 2024 (40)
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Fareham, 15th Jun 2024 (449)
2761 men tested, of which 98 were ‘amber’ (elevated PSA level), and 157 ‘red’ (high PSA level).
Future Events:
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Alton, 21st Sep 2024
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Petersfield, 12th Oct 2024
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Swanwick, 26th Oct 2024
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Basingstoke, 16th Nov 2024
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Comserv Havant Dec 2024 (TBA)
Follow-up emails have been sent to all men found to have a raised PSA level at our testing events. An increase in the Graham Fulford Charitable Trust administration fees and laboratory costs, meant an increase of approx £3 per man tested. However, donations from attendees and partner charities were still in excess of costs. A donation of over 3,000 blood collection devices was received from Greiner Bio-One, which offset some of the above increased costs.
In Sept 2023, a “Walk with Men with Kev” event in Petersfield took place in memory of Kevin Birkitt, who died earlier that year. The walk was organised by his family and Hampshire Media Group. The event was a great success, over 300 walkers raising over £10,000, which was split between PCaSO and PCUK. The PCaSO side of the event was organised by Tim Bonner, with a PCaSO display stand present in the Town Square. The event will be repeated on Sunday, 15th Sept 2024 with, hopefully, a bigger turnout.
We continue with face-to-face meetings at Otterbourne and Waterlooville, including three talks - on the BK ultrasound equipment which Hampshire Branch are to purchase for Winchester Hospital; a talk on exercise and health from Nuffield Health; and Prostate Cancer Investigations and Treatment at Southampton Hospitals.
John Keane is currently negotiating supermarket collections with Asda in the area. Collections have been carried out at Havant ASDA Sat December 3rd, Fareham Asda 21st June, Portsmouth Asda August 16th, Eastleigh Asda August 23rd. Asda are keen to help PCaSO in awareness, fundraising and PSA testing.
Purchase of an ultrasound scanning machine specifically for use in the diagnosis and treatment of prostate cancer for the Royal Hampshire Hospital, Winchester, is now ordered and awaiting delivery in August. This will allow men to be treated and investigated in Winchester, and not have to travel to Basingstoke.
Nuffield Health Portsmouth continue to offer keep fit classes for PCaSO, having now moved from Titchfield to Fareham, with a regular attendance of nine or ten men.
Roger Smith, has stepped down as Hampshire Branch Secretary, and Peter Strickland has taken over the role.
Apart from PSA partner charities, donations have been received from King John's Morris Men of Southampton, The Charitable Baker UK, Comserv Ltd, The Brewers Golf Club, and the Richard Kirkman Trust.
Peter Weir, Chair, Hampshire Branch
Sussex Branch Annual Report 2024 (Brian Holden)
We are very fortunate in Sussex group to have a pro-active group of volunteers that ensure its smooth running. As their Chairman, I am encouraged by their commitment to help others with their prostate problems.
After 20 years at the helm of our Eastbourne group, Debbie Hatfield retired, along with her long-term colleague, Christina Cutting. The Trustees thanked them for their invaluable contribution over many years, and wished them well for the future. Our new team in the re-named Eastern Sussex Group - Lorna, Lisa and Clive - have so far held two presentations, with two more planned for this year.
Face-to-face drop-in sessions regularly take place in Eastern Sussex, Central Sussex, Western Sussex and Brighton.
Rob Stanley produces a monthly newsletter for Sussex members, which is also sent to various clinicians and contacts within the local NHS. Gregg McMellon regularly updates our Sussex Facebook page with local events and activities.
PSA testing continues, and two new venues were successfully tried this year, Tonbridge in Kent and Bexhill, East Sussex.
We are exploring ways of continuing our PSA testing events after our current organiser Roger Bacon steps down from the role next year.
Our Sussex group have held four successful events in Spring 2024, testing 477 men at Uckfield, 465 at Billingshurst, 818 at Tonbridge (a very busy day!) and 373 at Bexhill. Of that total 2,133 men, 40 had elevated levels and 91 had high levels of the prostate specific antigen in their blood.
Our next round of PSA testing events in Sussex will begin with Worthing on 14 September, East Grinstead on 19 October, Burgess Hill on 16 November and Peacehaven on 30 November 2024.
Two substantial donations were gratefully received - £22,500 from a golf society called The Breeze Club, and £5,000 from the staff at Tclarke Contacting Ltd, a Breeze Club affiliate. These have been ring-fenced in the Sussex accounts for the sole use of PSA testing.
Brian Holden, Chair
Sussex Branch, and Executive Committee
| PCaSO Consolidated Accounts year ended 31st March 2024 | PCaSO Consolidated Accounts year ended 31st March 2024 | PCaSO Consolidated Accounts year ended 31st March 2024 | PCaSO Consolidated Accounts year ended 31st March 2024 | PCaSO Consolidated Accounts year ended 31st March 2024 | PCaSO Consolidated Accounts year ended 31st March 2024 | PCaSO Consolidated Accounts year ended 31st March 2024 | ||
|---|---|---|---|---|---|---|---|---|
| Dorset | Hants | Sussex | **Executive ** | Consol Adjts | Total 2024 | Total 2023 | ||
| HSBC Current Accounts | 13,314 | 24,799 | 20,502 | 12,800 | 71,415 | 69,188 | ||
| CAF Deposit Account | 3 | 3 | 3 | |||||
| Virgin MoneyDeposit Funds | 30,148 | 12,250 | 24,127 | 9,893 | 76,418 | 76,216 | ||
| Cash Balances at start of theyear | 43,462 | 37,049 | 44,629 | 22,696 | 0 | 147,836 | 145,407 | |
| Receipts | ||||||||
| Subscriptions | 70 | 12 | 82 | 48 | ||||
| Donations - Members | 434 | 1,840 | 1,248 | 3,522 | 3,405 | |||
| Donations - Personal | 149 | 15,783 | 9,566 | -3,140 | 22,358 | 14,845 | ||
| Donations - Corporate | 5,429 | 42,650 | 1,025 | 49,104 | 19,883 | |||
| Donations - PSA Testing | 6,101 | 36,999 | 45,757 | 88,857 | 53,452 | |||
| Fundraising- Public Meetings | 188 | 435 | 623 | 138 | ||||
| Fundraising- Collections | 173 | 0 | 173 | 2,931 | ||||
| Fundraising- Events | 0 | 22 | ||||||
| Interest on Deposits | 245 | 100 | 196 | 80 | 621 | 201 | ||
| GiftAid | 609 | 6,557 | 8,153 | -446 | 14,873 | 10,834 | ||
| Other | 94 | 97 | 191 | 187 | ||||
| 7,538 | 65,323 | 108,667 | -1,124 | 0 | 180,404 | 105,946 | ||
| Payments | ||||||||
| Administration | 69 | 961 | 652 | 2,349 | 4,031 | 2,442 | ||
| Trustee & Public LiabilityInsurance | 488 | 488 | 588 | |||||
| Helpline | 48 | 48 | 178 | |||||
| Newsletter costs | 409 | 409 | 579 | |||||
| Support to members | 317 | 396 | 713 | 401 | ||||
| Awareness | 2,546 | 6,581 | 9,127 | 7,985 | ||||
| Expenses - PSA Testing | 6,915 | 35,555 | 52,470 | 94,940 | 66,349 | |||
| Advertising | 374 | 677 | 1,051 | 187 | ||||
| Fundraising- collections | 120 | 120 | 0 | |||||
| Fundraising- Events | 0 | 0 | ||||||
| Donations | 672 | 6,047 | 6,719 | 21,460 | ||||
| Capital expenditure & software | 308 | 945 | 1,253 | 2,099 | ||||
| Other | 69 | 100 | 169 | 1,249 | ||||
| Inter-Account transfers | 0 | 0 | ||||||
| 7,053 | 40,853 | 66,427 | 4,735 | 0 | 119,068 | 103,517 | ||
| Receipts less payments | 485 | 24,470 | 42,240 | -5,859 | 61,336 | 2,429 | ||
| Total Funds | 43,947 | 61,519 | 86,869 | 16,837 | 0 | 209,172 | 147,836 | |
| Cash & Bank Balances | ||||||||
| HSBC Current Accounts | 13,554 | 19,169 | 62,546 | 6,860 | 102,129 | 71,415 | ||
| CAF Deposit Account | 3 | 3 | 3 | |||||
| Bath Building SocietyDeposit A/C | 30,000 | 30,000 | ||||||
| Virgin Money CharityDeposit A/C | 30,393 | 12,350 | 24,323 | 9,974 | 77,040 | 76,418 | ||
| Total Cash Balances at end ofyear | 43,947 | 61,519 | 86,869 | 16,837 | 0 | 209,172 | 147,836 | |
| Restricted Funds | ||||||||
| Breeze club donation | 22,500.00 | 22,500.00 | ||||||
| T Clake donation | 5,000.00 | 5,000.00 | ||||||
| - | - |
27,500.00 | - |
- |
27,500.00 |
|||
| Debtors & creditors | ||||||||
| Debtors | - | |||||||
| Creditors & accruals | - | |||||||
| Net General Funds | ||||||||
| - | ||||||||
| Notes | ||||||||
| 1 | Breeze club donation to be used for…? | |||||||
| 2 | T Clarke donation to be used for | |||||||
| 3 | ||||||||
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| PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | Charity number: 1170536 | Charity number: 1170536 | ||
|---|---|---|---|---|---|---|---|---|
| Receipts and Payments Account for the year ended 31st March 2024 | ||||||||
| 2024 | 2023 | |||||||
| Unrestricted funds |
Restricted funds |
Total funds | Total funds |
|||||
| £ | £ | £ | £ | |||||
| Receipts | ||||||||
| Members'subscriptions | 82 | 82 | 48 | |||||
| Donations: members | 3,522 | 3,522 | 3,405 | |||||
| Donations: non-members | 22,358 | 22,358 | 14,845 | |||||
| Donations: corporate | 21,604 | 27,500 |
49,104 |
19,883 | ||||
| Donations at PSA testing events | 88,857 | 88,857 | 53,452 | |||||
| Fundraising: public meetings | 623 | 623 | 138 | |||||
| Fundraising: collections | 173 | 173 | 2,931 | |||||
| Fundraising: events | - | - | 22 | |||||
| Interest on deposit account | 621 | 621 | 201 | |||||
| Gift Aid | 14,873 | 14,873 | 10,834 | |||||
| Other | 191 | 191 | 187 | |||||
| 152,904 | 27,500 |
180,404 |
105,946 | |||||
| Payments | ||||||||
| Governance | 4,031 | 4,031 | 2,442 | |||||
| Trustee & Public LiabilityInsurance | 488 | 488 | 588 | |||||
| Charitable activity: newsletter | 409 | 409 | 579 | |||||
| Charitable activity: support to members | 761 | 761 | 579 | |||||
| Charitable activity: awareness | 9,127 | 9,127 | 7,985 | |||||
| Charitable activity: PSA Testing | 94,940 | 94,940 | 66,349 | |||||
| Charitable actvity: donations to charities | 6,719 | 6,719 | 21,460 | |||||
| Fundraising | 120 | 120 | - | |||||
| Advertising | 1,051 | 1,051 | 187 | |||||
| Other | 169 | 169 | 1,249 | |||||
| 117,815 | - |
117,815 |
101,418 | |||||
| Asset and investment purchases | ||||||||
| 1,253 | 1,253 | 2,099 | ||||||
| 1,253 | - |
1,253 | 2,099 | |||||
| Totalpayments | 119,068 | - |
119,068 |
103,517 | ||||
| Net receipts/(payments) | 33,836 | 27,500 |
61,336 |
2,429 | ||||
| Transfers between funds | - | - | ||||||
| Cash funds at beginning of year | 147,836 | - |
147,836 | 145,407 | ||||
| Cash funds at end of year | 181,672 | 27,500 |
209,172 |
147,836 | ||||
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| PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | PCaSO Prostate Cancer Support Organisation | Charity number: 1170536 | Charity number: 1170536 | |||
|---|---|---|---|---|---|---|---|---|---|
| Statement of assets and liabilities as at 31st March 2024 | |||||||||
| 2024 | |||||||||
| Unrestricted funds |
Restricted funds |
Total funds | |||||||
| £ | £ | £ | |||||||
| Cash funds | |||||||||
| Deposit accounts | 107,043 | - |
107,043 |
||||||
| Current accounts | 74,629 | 27,500 |
102,129 |
||||||
| 181,672 | 27,500 |
209,172 |
|||||||
| Other monetary assets | |||||||||
| Gift Aid recoverable | - | - | |||||||
| - | - | - | |||||||
| Assets retained for the charity's own use | |||||||||
| Office Equipment | - | - | |||||||
| - | - |
- |
|||||||
| Liabilities | |||||||||
| Amounts owed to suppliers | - | - | |||||||
| - | - | - | |||||||
| Approved bythe trustees and signed on their behalf by: | |||||||||
| Lance Allen | |||||||||
| Trustee | |||||||||
| Date: | |||||||||
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Independent examiner's report to the trusteos of PCaSO Prostate Cancer Support Organlsatlon - charity number 1170536 I report to the trustees on my examination of the accounts of PCaSO Prostate Cancer Support Organisation for the year ended 31 st March 2024. Responsiblllties and basis of report As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act,). I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. Independent examlner's statement I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: 1. accounting records were not kept in respecl of the Trust as required by section 130 of the Act; or 2. the accounts do not accord with those records. I have no concems and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understsnding of the accounts to be reached. Signed: Name: fET/ Relevant professional qualification or membershi of professional bodies (if any)" CHwLrEr4{ ITi i £ECurz I ry Address. UhiftL6&tF Date: