ACTION FOR HYDROCEPHALUS – REGISTERED CHARITY NO. 1169606
TRUSTEES’ ANNUAL REPORT & ACCOUNTS FOR 05/04/2023 - 05/04/2024
TRUSTEES: JORDAN ADAMS, GREG JAMES PhD FRCS (Neuro. Surg.), LEWIS THORNE BSc, MB ChB, FRCS (Neurosurgery).
CHARITY ADDRESS: The Annexe, Mayfield, Wellgreen Lane, Kingston, Lewes, BN7 3NS
ACTION FOR HYDROCEPHALUS IS A CIO AND USES A CONSTITUTION AS A GOVERNING DOCUMENT.
Structure & Management
Action For Hydrocephalus has three trustees in total:
Lewis Thorne (consultant neurosurgeon) - trustee since charity established Greg James (consultant paediatric neurosurgeon) - trustee since charity established Jordan Adams (patient with hydrocephalus). - trustee since charity established
All trustees hold equal responsibility within the charity. Meetings may be called by any trustee and chaired by any trustee. Actions taken to fulfil the purposes of the charity are carried out when a unanimous vote in favour is achieved. No further trustees have been appointed since establishment of the charity. When working with donors/organisations receiving donations from us, all trustees meet to agree the terms under which each donation will be received and carried out. Only when all trustees are in full agreement does a proposed donation proceed.
Objectves & Actvites
Summary of purposes of Acton For Hydrocephalus: To provide relief of sickness and presentation of health of babies and children diagnosed with hydrocephalus living in areas which lack adequate care. Improving treatment and diagnosis, the supply of diagnostic aids, the establishment of neurosurgical training schemes between National Hospital for Neurology & Neurosurgery (and possibly Great Ormond Street Hospital) and countries lacking in qualified neurosurgeons, providing consistency and opportunity for trainee neurosurgeons overseas. To set up a shunt/neurosurgical equipment donation scheme operating from the UK.
Summary of the main actvites in relaton to those purposes for the public beneft
-
The supply of diagnostic aids
-
Improving treatment and diagnosis
-
To provide relief of sickness and presentation of health of babies and children diagnosed with hydrocephalus living in areas which lack adequate care
-
Jordan had previously contacted by Reco Medical, asking for her input in the development of a wireless ICP monitor they are currently developing, given that she has had ICP monitoring done so many times. She had a Zoom meeting with the team members and updated Lewis and Greg, who were very interested in the project. Jordan discussed the possibility of the device (once completed and on the market) being used in remote areas of Vietnam for work with Action For Hydrocephalus. Reco Medical are keen to help out with this venture so an in-person meeting was arranged for later in 2024. In the meantime, Jordan submitted personal statements and
supporting letters for Reco Medical as they were about to go through the final stages of funding and needed such documents.
-
Jordan contacted two rotaries in Vietnam who were interested in progress being made by GAPSBiF, which Jordan still attends regular meetings with. Discussions were had with regard to the hospitals and charitable organisations they each deal with in Vietnam and areas Action For Hydrocephalus might be able to help.
-
A meeting was held with Lewis and Greg to discuss these developments. Greg is looking for a suitable partner in Vietnam on InterSurgeon, which he and Greg are members of.
-
Jordan has been in touch with four health centres in Vietnam (outside of the main cities) and they are relaying their experiences and issues with children and babies who have hydrocephalus. It is clear that nothing is available to them in terms of facilities or treatment options. Money is a big block so Lewis, Greg and Jordan discussed the possibility of starting to fundraise in 2025. Due to work commitments with all three trustees, fundraising is not a possibility for 2024.
TRUSTEE STATEMENT
All trustees have had regard to the guidance issued by the Charity Commission on public benefit when planning and implementing activities to achieve its objectives.
ACCOUNTS
Income: No money has been received from any source since establishment of the charity.
Expenditure: No money has been spent by Action For Hydrocephalus in the carrying out of its objectives since it was established in 2016. All medical items received have been donated by suppliers and any postage costs have been covered by the donors. Activity during 2023-2024 has been research-based so no financial outlay has been necessary or required.