ACTION FOR HYDROCEPHALUS – REGISTERED CHARITY NO. 1169606
TRUSTEES’ ANNUAL REPORT & ACCOUNTS FOR 05/04/2020 - 05/04/2021.
TRUSTEES: JORDAN ADAMS, GREG JAMES PhD FRCS (Neuro. Surg.), LEWIS THORNE BSc, MB ChB, FRCS (Neurosurgery).
CHARITY ADDRESS: The Annexe, Mayfield, Wellgreen Lane, Kingston, Lewes, BN7 3NS
ACTION FOR HYDROCEPHALUS IS A CIO AND USES A CONSTITUTION AS A GOVERNING DOCUMENT.
Structure & Management
Action For Hydrocephalus has three trustees in total:
Lewis Thorne (consultant neurosurgeon) - trustee since charity established Greg James (consultant paediatric neurosurgeon) - trustee since charity established
Jordan Adams (patient with hydrocephalus). - trustee since charity established
All trustees hold equal responsibility within the charity. Meetings may be called by any trustee and chaired by any trustee. Actions taken to fulfil the purposes of the charity are carried out when a unanimous vote in favour is achieved. No further trustees have been appointed since establishment of the charity. When working with donors/organisations receiving donations from us, all trustees meet to agree the terms under which each donation will be received and carried out. Only when all trustees are in full agreement does a proposed donation proceed.
Objectives & Activities
Summary of purposes of Action For Hydrocephalus: To provide relief of sickness and presentation of health of babies and children diagnosed with hydrocephalus living in areas which lack adequate care. Improving treatment and diagnosis, the supply of diagnostic aids, the establishment of neurosurgical training schemes between National Hospital for Neurology & Neurosurgery (and possibly Great Ormond Street Hospital) and countries lacking in qualified neurosurgeons, providing consistency and opportunity for trainee neurosurgeons overseas. To set up a shunt/neurosurgical equipment donation scheme operating from the UK.
Summary of the main activities in relation to those purposes for the public beneft
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The supply of diagnostic aids
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Improving treatment and diagnosis
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To provide relief of sickness and presentation of health of babies and children diagnosed with hydrocephalus living in areas which lack adequate care
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All of the above activities had to be stopped due to the pandemic. This was due to Jordan developing long Covid and Lewis and Greg’s time being taken up with working in the hospitals for the duration of the pandemic.
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Jordan has recently contacted the two charities she had been in touch with before the pandemic to assess where they are at due to everyone in the health sector having been so impacted in the past year. She has also researched two more recent reports to include in the proposal which was due to be completed prior to the first lockdown (focusing on folate education and supplement distribution in Vietnam). This has been the only new information she has been able to source over the past year so once she and Lewis are able to meet again, the proposal can be discussed with regard to moving forward.
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A meeting is needed between all three trustees when availability allows to assess what realistically can be done with the changed situation in the hospitals and increased demands on the health system in general as this may impact previous plans. Small steps forward should be achievable although actions may have to be scaled down for now.
TRUSTEE STATEMENT
All trustees have had regard to the guidance issued by the Charity Commission on public benefit when planning and implementing activities to achieve its objectives.
ACCOUNTS
Income: No money has been received from any source since establishment of the charity.
Expenditure: No money has been spent by Action For Hydrocephalus in the carrying out of its objectives since it was established in 2016. All medical items received have been donated by suppliers and any postage costs have been covered by the donors. Activity during 2020-2021 has been put on hold until time and resources allow us to resume our meetings and plans so no financial outlay has been necessary or required.