Section C: Notes to the accounts Trustees’ annual report for the period
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Period start date 01/10/2022 Period end date 30/09/2023
Charity name SUPERFICIAL SIDEROSIS - THE SILENT BLEED Charity No 1169340 (if any)
Objectives and Activities
| SORP reference |
||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | For the public benefit, to advance the education of everyone about the rare condition Superficial Siderosis– specifically suffers of the condition, their carers, and their physicians. |
| Summary of the main activities in relation to those purposes for the public beneft, in particular, the activities, projects or services identifed in the accounts. |
Para 1.17 and 1.19 |
Education, research, support and community. The charity continues to push for greater awareness by printing written materials, organises events throughout the year to raise money, volunteers with both those who have Superficial Siderosis and their carers and family via email, personal message, telephone and occasionally face-to-face |
| Statement confrming whether the trustees have had regard to the guidance issued by the Charity Commission onpublic beneft |
Para 1.18 | The trustees have reviewed the latest available guidance for from the Charities Commission and have confirmed that they within it. For example, when using money for printed materia running costs or buying consumables, the trustees have sho prudence in making sure that we’ve obtained the best price , efficiencies, not wasted materials and made sure they’ve con |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference |
||
|---|---|---|
| Policy on grant making | Para 1.38 | |
| Policy on social investment including program related investment |
Para 1.38 | |
| Contribution made by volunteers | Para 1.38 | |
| Other |
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October 2016
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Achievements and Performance
| SORP reference |
||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its benefciaries and any wider benefts to society as a whole. |
Para 1.20 | Education & awareness: Website constantly updated with up-to-date Q&A advice from Dr Levy. Fundraising wristbands and information leaflets dispatched around the world. Research: we’re excited and honoured to be part of a UK-based research project through Perspectum. We were invited along to their patient focus group at the Royal Society in London on June 20/06/23. Support: Members supported in a closed social media group for carers and family as well as hundreds of individual private conversations with people affected by Superficial Siderosis |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference |
||
|---|---|---|
| Achievements against objectives set | Para 1.41 | |
| Performance of fundraising activities against objectives set |
Para 1.41 | |
| Investment performance against objectives |
Para 1.41 | |
| Other |
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Financial Review
| SORP reference |
||
|---|---|---|
| Review of the charity’s fnancial position at the end of the period |
Para 1.21 | We are happy to have nearly doubled our income from the year before and been comfortable with coveringexpenditure. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | The charity keeps a small amount in reserve every year. This is to cover modest, regular running costs such as printing leaflets and paying for website hosting. |
| Amount of reserves held | Para 1.22 | £500 |
| Reasons for holding zero reserves | Para 1.22 | |
| Details of fund materially in defcit | Para 1.24 | |
| Explanation of any uncertainties about the charity continuing as a goingconcern |
Para 1.23 |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference |
||
|---|---|---|
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | The charity is funded by fundraisers and individual gifts, largely through the website (some regular ,some one- off). |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | |
| A description of the principal risks facing the charity |
Para 1.46 | |
| Other |
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October 2016
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Structure, Governance and Management
| Description of charity’s trusts: | SORP reference |
|
|---|---|---|
| Type of governing document (trust deed,royal charter) |
Para 1.25 | Foundation model constitution |
| How is the charity constituted? (e.gunincorporated association,CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | By appointment |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference |
||
|---|---|---|
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | |
| The charity’s organisational structure and any wider network with which the charityworks |
Para 1.51 | |
| Relationship with any related parties | Para 1.51 | |
| Other |
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October 2016
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Reference and Administrative details
| Charity name | Superficial Siderosis-The Silent Bleed |
|---|---|
| Other name the charity uses | N/A |
| Registered charity number | 1169340 |
| Charity’s principal address | 1 Laburnam Close, Aldershot GU113DX |
Names of the charity trustees who manage the charity
| Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee(if any) |
|---|---|---|---|
| Jason Robert | CEO | ||
| Amanda Fearn | Senior Officer | ||
| Sydney Fearn-Roberts | Trustee | ||
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October 2016
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Reference and Administrative details (cont)
Corporate trustees – names of the directors at the date the report was approved
Director name Jason Roberts
Name of trustees holding title to property belonging to the charity
| Trustee name | Dates acted if not for whole year |
|
|---|---|---|
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October 2016
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Funds held as custodian trustees on behalf of others
Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
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October 2016
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Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) J Roberts Full name(s) Jason Roberts
Position (eg Secretary, Founder Chair, etc)
Date 22nd July 2025
Charity Accounts templates – Trustees’ annual report for the period
October 2016
| Oct | Oct | Nov | Dec | Jan | Feb | Mar | Apr | May |
|---|---|---|---|---|---|---|---|---|
| Donations | 43.09 | 34.27 | 34.57 | 500.12 | 47.71 | 1323.51 | 216.77 | 76.43 |
| Bank Depos | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Capital | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Total Incom | 43.09 | 34.27 | 34.57 | 500.12 | 47.71 | 1323.51 | 216.77 | 76.43 |
| Insurance | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Direct Debi | 0 | 0 | 0 | 517.11 | 0 | 0 | 0 | 0 |
| Website | 4.99 | 458.59 | 0 | 4.99 | 4.99 | 4.99 | 4.99 | 4.99 |
| Utilities | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Telephone | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Equipment | 0 | 0 | 0 | 0 | 0 | 39.31 | 0 | 0.79 |
| Sundries | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Wages | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
| Total Expen | 4.99 | 458.59 | 0 | 522.1 | 4.99 | 44.3 | 4.99 | 5.78 |
| Profit/Loss | 38.1 | -424.32 | 34.57 | -21.98 | 42.72 | 1279.21 | 211.78 | 70.65 |
| Balance b/f | 5942.46 | 5980.56 | 5556.24 | 5590.81 | 5568.83 | 5611.55 | 6890.76 | 7102.54 |
| profit/Loss | 38.1 | -424.32 | 34.57 | -21.98 | 42.72 | 1279.21 | 211.78 | 70.65 |
| Balance c/f | 5980.56 | 5556.24 | 5590.81 | 5568.83 | 5611.55 | 6890.76 | 7102.54 | 7173.19 |
| June | July | Aug | Sept | Totals |
|---|---|---|---|---|
| 15.43 | 15.43 | 15.43 | 15.43 | |
| 0 | 0 | 0 | 0 | |
| 0 | 0 | 0 | 0 | |
| 15.43 | 15.43 | 15.43 | 15.43 | 2338.19 |
| 0 | 0 | 0 | 0 | |
| 0 | 0 | 0 | 0 | |
| 4.99 | 16.15 | 4.99 | 4.99 | |
| 0 | 0 | 0 | 0 | |
| 0 | 0 | 0 | 0 | |
| 0 | 0 | 0 | 0 | |
| 0 | 0 | 0 | 0 | |
| 0 | 0 | 0 | 0 | |
| 4.99 | 16.15 | 4.99 | 4.99 | 1076.86 |
| 10.44 | -0.72 | 10.44 | 10.44 | |
| 7173.19 | 7183.63 | 7182.91 | 7193.35 | |
| 10.44 | -0.72 | 10.44 | 10.44 | |
| 7183.63 | 7182.91 | 7193.35 | 7203.79 |