## **Trustees’ Annual Report for the period**
**From 01 January 2023 To 31 December 2023**
## **Charity name: Foundation for Angelman Syndrome Therapeutics UK (FAST UK)**
## **Charity registration number: 1167984**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|The objects of the CIO are:-
1. the advancement of health for the benefit
of the pubic by the provision of support
towards research into Angelman Syndrome
including their treatment and cure, and the
publication of the useful results of such
research; and
2. the relief of those in need of care,
assistance and support as a consequence
of living with Angelman Syndrome.|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|Foundation for Angelman Syndrome
Therapeutics UK has been working very
hard over the last year to assist Oxford
University in the putting together a Natural
History Study for Angelman Syndrome. The
study is about to start recruiting patients
and is fully funded by FAST.|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|The trustees have had regard to the
guidance issued by the Charity
Commission on public benefit.|
## **Additional information (optional)** You may choose to include further statements where relevant about:
SORP reference Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment
Para 1.38 Contribution made by volunteers Other
## **Achievements and Performance**
||SORP reference||
|---|---|---|
|Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|Fund raising activities and donations
through-out the financial period have raised
income of £267,648.
FAST was founded in 2008 with an urgent
mission: to cure Angelman syndrome.
Today, with operations in the United
States, Australia, the UK, Canada, Italy,
France, Spain and Latin America, FAST is
the largest non-governmental funder of
Angelman syndrome research.
During 2023, FAST has been continuing to
fund the Natural History Study in
conjunction with Oxford University.
Funding of £495,622 has been provided in
the year ended 31 December 2023, being
the final amount originally committed to
fund the study.
In 2024, Foundation for Angelman
Syndrome Therapeutics UK has been
working hard over the past 4 years in
assisting Oxford University in the running of
the Natural History Study. The Study has
been extended by a further 2 years and will
continue to be fully funded by FAST UK.
FAST UK continue to liaise with the MHRA
and other governing bodies to ensure
preparedness for clinical trials in the UK as
and when is appropriate.|
**Additional information (optional)** You may choose to include further statements where relevant about:
|Achievements against
objectives set|Para 1.41||
|---|---|---|
||||
|Performance of fundraising
activities against objectives
set|Para 1.41||
|---|---|---|
|Investment performance
against objectives|Para 1.41||
|Other|||
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of the period|Para 1.21|At the end of the period the charity was in a
net asset position of £189,369.|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|There is no reserves policy, and no
reserves are held.|
|Amount of reserves held|Para 1.22|Nil. Cash at year end was £189,369, none
of which is specifically held in reserves.|
|Reasons for holding zero
reserves|Para 1.22|The charity is small and has no fixed costs
or expenses, as such no reserves are
required. In the current year the charity
paid its last instalment of the amounts
committed to Oxford University to fund the
Natural History Study, no reserves are
required to cover this funding liability and
the charity has no other liabilities.|
|Details of fund materially in
deficit|Para 1.24|N/A|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|There are no uncertainties over the
charity’s ability to continue as a going
concern.|
## **Additional information (optional)**
## You may choose to include further statements where relevant about:
|The charity’s principal||
|---|---|
|sources of funds (including|Para 1.47|
|any fundraising)||
|Investment policy and||
|objectives including any|Para 1.46|
|social investment policy||
|adopted||
|A description of the principal|Para 1.46|
|risks facing the charity||
|Other||
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25|Constitution|
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|A Charitable Incorporated Organisation|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Apart from the first charity trustees, every
trustee must be appointed by a resolution
passed at a properly convened meeting of
the charity trustees.|
## **Additional information (optional)** You may choose to include further statements where relevant about:
||||
|---|---|---|
|Policies and procedures
adopted for the induction
and training of trustees|Para 1.51||
|The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51||
|Relationship with any related
parties|Para 1.51||
|Other|||
## **Reference and Administrative details**
|Charity name|Foundation for Angelman Syndrome Therapeutics UK|
|---|---|
|Other name the charity uses|FASTUK|
|Registered charity number|1167984|
|Charity’s principal address|13 Inglethorpe Street,
London,
SW6 6NS|
|||
## **Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Tom Keogh|Chair|||
||Tamsin Keogh||||
||Antonia Felix||||
||Louise Prince||||
||Julien de Bournet||||
||Katharine Hamilton||||
||Irina Karaseva*||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
*Resigned 6 September 2024
## – Corporate trustees names of the directors at the date the report was approved
## **Director name**
Name of trustees holding title to property belonging to the charity
**Trustee name Dates acted if not for whole year**
## **Funds held as custodian trustees on behalf of others**
Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
## **Names and addresses of advisers (Optional information)**
|**Type of**
**adviser**
**Name**
**Address**|**Type of**
**adviser**
**Name**
**Address**|**Type of**
**adviser**
**Name**
**Address**|
|---|---|---|
||||
||||
||||
||||
|**Name of chief executive or names of senior staff members (Optional information)**|||
||||
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
**N/A**
## **Other optional information**
**N/A**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s) Full name(s)** Tom Keogh **Position (eg Secretary,** Chair **Chair, etc) Date** 25/10/2024
CHARITY COMMISSION
FOR ENGLAND AND WALES
Independent examiner's
report on the accounts
Section A
Independent Examiner's Report
Report to the trusteesl
members of
Foundation for Angelman Syndrome Therapeutics UK
On accounts for the yoar
ended
31 D&cember 2023
Charity no
(if any)
1167984
Set out on pages
I report to the trustees on my examination of the accounts of the above
charity I'the Trust"} for the y8ar 8nd8d 3111212023.
Responsibilities and As the charity trustees of the Trusl, you are responsible for the preparation
basis of report of the accounts in accordance with the requirements of the Charities Act
2011 ("the Act.).
I report in respect of my examination of the Trust's accounts carried out
under section 145 of the 2011 Act and in carrying out my examination, I
have followed the applicable Directions given by the Charity Commission
under seclion 145151(bl of the Act.
I have completed my examination. I confimi that no material matters have
come to my attention {other than that disclosed below ') in connection with
the examination which giv8s me cause to believe that in, any material
respect..
accounting records were not kept in accordance with section 130 of
the Act or
the accounts do not accord with the accounting records
Independent
examinerfs statement
I have no concerns and have come across no other matters in connection
with the e,,
ention should be drawn in order to enable a
proper uni
iunts to be reached.
Pleas
brackets if they do not apply.
Signed:
Date..
lot
Namo:
Relevant professional
qualification(s) or body
(if any):
(3006563)
Address:
JL-LL
IER
October 2018
Section B
Disclosure
Only ¢offlplete if the examiner needs to highlight matters of concern (see CC32,
Independent exarninalion of charity accounts.. directions and guidance for
examiners).
Give here brief details of
any items that tho
examiner wishes to
discloso.
IER
October 2018
||Foundation for Angelman Syndrome Therapeutics UK|Foundation for Angelman Syndrome Therapeutics UK|Foundation for Angelman Syndrome Therapeutics UK|1167984|||
|---|---|---|---|---|---|---|
||Annual accounts for theperiod||||||
||Period start date
**01/01/2023**||**To**|Period end
date|31/12/2023||
||||||||
|**Section A**|**Statement of**|**financial activities**|||||
|**Recommended categories by**
**activity**
**Incoming resources (Note 3)**
**Income and endowments from:**
Donations and legacies
Charitable activities
Other trading activities
Investments
Separate material item of income
Other
**Resources expended (Note 4)**
**Expenditure on:**
Raising funds
Separate material item of expense
Other
Net gains/(losses) on investments
**Extraordinary items**
Other gains/(losses)
**_Reconciliation of funds:_**
**_Total_**
**_Net movement in funds_**
Total funds brought forward
**_Total funds carried forward_**
**_Total_**
**Net income/(expenditure) before investment**
**gains/(losses)**
**Net income/(expenditure)**
**Transfers between funds**
**Other recognised** **gains/(losses):**
Gains and losses on revaluation of fixed assets for the charity’s own
use||**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Prior year**
**funds**
**£**
**£**
**£**
**£**
**£**|||||
|||267,648|-|-|267,648|328,007|
|||-|-|-|-|-|
|||-|-|-|-|-|
|||-|-||-|-|
|||-|-|-|-|-|
|||-|-|-|-|-|
|||267,648|-|-|267,648|328,007|
||||||||
|||13,076|-|-|13,076|5,544|
|||-|-|-|-|-|
||||-|-|-||
|||13,076|-|-|13,076|5,544|
||||||||
|||254,571|-|-|254,571|322,463|
|||-|-|-|-|-|
|||254,571|-|-|254,571|322,463|
|||-|-|-|-|-|
|||-|-|-|-|-|
||||||||
|||-|-|-|-|-|
|||-|-|-|-|-|
|||254,571|-|-|254,571|322,463|
||||||||
|||65,202
-|-|-|65,202
-|387,665
-|
|||189,369|-|-
189,369||65,202
-|
## **Section B Balance sheet**
|**Current assets**
**Cash at bank and in hand (Note 9)**
**_Total current assets_**
**Creditors: amounts falling due within**
**one year (Note 7)**
**_Net current assets/(liabilities)_**
**_Total assets less current liabilities_**
**Creditors: amounts falling due after**
**one year (Note 7)**
**_Total net assets or liabilities_**
**Funds of the Charity**
**Unrestricted funds**
**_Total funds_**
Signed by one or two trustees on behalf of all
the trustees|**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total this**
**year**
**Total last**
**year**
**£**
**£**
**£**
**£**
**£**|**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total this**
**year**
**Total last**
**year**
**£**
**£**
**£**
**£**
**£**|**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total this**
**year**
**Total last**
**year**
**£**
**£**
**£**
**£**
**£**|**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total this**
**year**
**Total last**
**year**
**£**
**£**
**£**
**£**
**£**|**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total this**
**year**
**Total last**
**year**
**£**
**£**
**£**
**£**
**£**|
|---|---|---|---|---|---|
||189,369|-|-|189,369|430,360|
||189,369|-|-|189,369|430,360|
|||||||
||-|-|-|-|283,348|
|||||||
||189,369|-|-|189,369|147,012|
|||||||
||189,369|-|-|189,369|147,012|
|||||||
||-|-|-|-|212,214|
|||||||
||189,369|-|-|189,369|- 65,202|
|||||||
||189,369||-|189,369|65,202
-|
||189,369|-|-|189,369|65,202
-|
|||||||
||||Print Name||Date of
approval
dd/mm/yyyy|
||||Tom Keogh||21/10/2024|
||||Katharine Hamilton||21/10/2024|
**Section C Notes to the accounts**
## Note 1 **Basis of preparation**
## _**This section should be completed by all charities** ._
## **1.1 Basis of accounting**
These accounts have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant note(s) to these accounts.
The accounts have been prepared in accordance with:
|• and with*||the Statement of Recommended Practice: Accounting and Reporting by Charities
preparing their accounts in accordance with the Financial Reporting Standard applicable in
the UK and Republic of Ireland (FRS 102) issued on 16 July 2014|
|---|---|---|
|• and with*||the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland
(FRS 102)|
- and with the Charities Act 2011.
The charity constitutes a public benefit entity as defined by FRS 102.*
- -Tick as appropriate
## **1.2 Going concern**
_**If there are material uncertainties related to events or conditions that cast significant doubt on the charity's ability to continue as a going concern, please provide the following details or state "Not applicable", if appropriate:**_
|**_appropriate:_**||
|---|---|
|**_An explanation as to those factors that_**
**_support the conclusion that the charity is a_**
**_going concern;_**|The charity operates by raising donations and has no fixed costs or
liabiliites other than the commitment made to fund Oxford University
Natural History Study and there is an agreement in place with a donor to
cover any shortfall in general donations to cover this liability. As such there
is no uncertainty over the charities ability to contiue as a going concern.|
|**_Disclosure of any uncertainties that make_**
**_the going concern assumption doubtful;_**|Not Applicable|
|**_Where accounts are not prepared on a_**
**_going concern basis, please disclose this_**
**_fact together with the basis on which the_**
**_trustees prepared the accounts and the_**
**_reason why the charity is not regarded as a_**
**_going concern._**|Not Applicable|
## **1.3 Change of accounting policy**
The accounts present a true and fair view and the accounting policies adopted are those outlined in note 2.
|Yes*||* -Tick as appropriate|
|---|---|---|
|No*|||
## _**Please disclose:**_
|**_Please disclose:_**||
|---|---|
|**_(i) the nature of the change in accounting policy;_**|Not Applicable|
|**_(ii) the reasons why applying the new accounting policy_**
**_provides more reliable and more relevant information;_**
**_and_**|Not Applicable|
|**_(iii) the amount of the adjustment for each line affected in_**
**_the current period, each prior period presented and the_**
**_aggregate amount of the adjustment relating to periods_**
**_before those presented, 3.44 FRS 102 SORP._**|Not Applicable|
## **1.4 Changes to accounting estimates**
No changes to accounting estimates have occurred in the reporting period (3.46 FRS 102 SORP).
|Yes*||* -Tick as appropriate|
|---|---|---|
|No*|||
## _**Please disclose:**_
|**_Please disclose:_**||
|---|---|
|**_(i) the nature of any changes;_**|Not Applicable|
|**_(ii) the effect of the change on income and expense or_**
**_assets and liabilities for the current period; and_**|Not Applicable|
|**_(iii) where practicable, the effect of the change in one or_**
**_more future periods._**|Not Applicable|
## **1.5 Material prior year errors**
No material prior year error have been identified in the reporting period (3.47 FRS 102 SORP).
|Yes*||* -Tick as appropriate|* -Tick as appropriate|
|---|---|---|---|
|No*||||
|**_Please disclose:_**||||
|**_(i) the nature of the prior period error;_**|||Not Applicable|
|**_(ii) for each prior period presented in the accounts, the_**
**_amount of the correction for each account line item_**
**_affected; and_**|||Not Applicable|
|**_(iii) the amount of the correction at the beginning of the_**
**_earliest prior period presented in the accounts._**|||Not Applicable|
**Section C Notes to the accounts (cont)**
**Note 2 Accounting policies**
## **2.1 RECONCILIATION WITH PREVIOUS GENERALLY ACCEPTED ACCOUNTING PRACTICE**
**Please provide a description of the nature of each change** There have been no changes in accounting policy in the current year. **in accounting policy**
**Section C Notes to the accounts (cont)**
## **Note 2 Accounting policies 2.2 INCOME**
_This standard list of accounting policies has been applied by the charity except for those ticked "No" or "N/a". Where a different or additional policy has been adopted then this is detailed in the box below._
|**Recognition of income**
Gifts in kind for use by the charity are included in the SoFA as income from donations
when receivable.
Donated goods for resale are measured at fair value on initial recognition, which is the
expected proceeds from sale less the expected costs of sale, and recognised in 'Income
from other trading activities' with the corresponding stock recognised in the balance
sheet. On its sale the value of stock is charged against 'Income from other trading
activities' and the proceeds from sale are also recognised as 'Income from other trading
activities'.
Goods donated for on-going use by the charity are recognised as tangible fixed assets
and included in the SoFA as incoming resources when receivable.
These are included in the Statement of Financial Activities (SoFA) when:
• the charity becomes entitled to the resources;
· it is more likely than not that the trustees will receive the resources; and
• the monetary value can be measured with sufficient reliability.
**Donated goods**
**Contractual income and**
**performance related**
**grants**
**Offsetting**
There has been no offsetting of assets and liabilities, or income and expenses, unless required or
permitted by the FRS 102 SORP or FRS 102.
**Grants and donations**
Grants and donations are only included in the SoFA when the general income
recognition criteria are met (5.10 to 5.12 FRS102 SORP).
This is only included in the SoFA once the charity has provided the related goods or
services or met the performance related conditions.
Donated goods are measured at fair value (the amount for which the asset could be
exchanged) unless impractical to do so.
In the case of performance related grants, income must only be recognised to the extent
that the charity has provided the specified goods or services as entitlement to the grant
only occurs when the performance related conditions are met (5.16 FRS 102 SORP).
**Legacies**
Legacies are included in the SOFA when receipt is probable, that is, when there has
been grant of probate, the executors have established that there are sufficient assets in
the estate and any conditions attached to the legacy are either within the control of the
charity or have been met.
**Government grants**
The charity has received government grants in the reporting period
**Tax reclaims on**
**donations and gifts**
Gift Aid receivable is included in income when there is a valid declaration from the donor.
Any Gift Aid amount recovered on a donation is considered to be part of that gift and is
treated as an addition to the same fund as the initial donation unless the donor or the
terms of the appeal have specified otherwise.
Donated services and facilities that are consumed immediately are recognised as
income with an equivalent amount recognised as an expense under the appropriate
heading in the SOFA.
The cost of any stock of goods donated for distribution to beneficiaries is deemed to be
the fair value of those gifts at the time of their receipt and they are recognised on receipt.
In the reporting period in which the stocks are distributed, they are recognised as an
expense at the carrying amount of the stocks at distribution.
**Donated services and**
**facilities**
Donated services and facilities are included in the SOFA when received at the value of
the gift to the charity provided the value of the gift can be measured reliably.|Yes
No
N/a|Yes
No
N/a|Yes
No
N/a|
|---|---|---|---|
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
|**Settlement of insurance**
**claims**
Insurance claims are only included in the SoFA when the general income recognition
criteria are met (5.10 to 5.12 FRS102 SORP) and are included as an item of other
income in the SoFA.
**Support costs**
The charity has incurred expenditure on support costs.
**Volunteer help**
The value of any voluntary help received is not included in the accounts but is described
in the trustees’ annual report.
**Redundancy cost**
The charity made no redundancy payments during the reporting period.
**Deferred income**
No material item of deferred income has been included in the accounts.
**Creditors**
The charity has creditors which are measured at settlement amounts less any trade
discounts
**Provisions for liabilities**
A liability is measured on recognition at its historical cost and then subsequently
measured at the best estimate of the amount required to settle the obligation at the
reporting date
This includes any realised or unrealised gains or losses on the sale of investments and
any gain or loss resulting from revaluing investments to market value at the end of the
year.
**Income from interest,**
**royalties and dividends**
This is included in the accounts when receipt is probable and the amount receivable can
be measured reliably.
**Income from membership**
**subscriptions**
Membership subscriptions received in the nature of a gift are recognised in Donations
and Legacies.
Membership subscriptions which gives a member the right to buy services or other
benefits are recognised as income earned from the provision of goods and services as
income from charitable activities.
**2.3 EXPENDITURE AND LIABILITIES**
**Liability recognition**
Liabilities are recognised where it is more likely than not that there is a legal or
constructive obligation committing the charity to pay out resources and the amount of the
obligation can be measured with reasonable certainty.
**Investment gains and**
**losses**
The charity accounts for basic financial instruments on initial recognition as per
paragraph 11.7 FRS102 SORP. Subsequent measurement is as per paragraphs 11.17
to 11.19, FRS102 SORP.
**Governance and support**
**costs**
Support costs have been allocated between governance costs and other support.
Governance costs comprise all costs involving public accountability of the charity and its
compliance with regulation and good practice.
Support costs include central functions and have been allocated to activity cost
categories on a basis consistent with the use of resources, eg allocating property costs
by floor areas, or per capita, staff costs by the time spent and other costs by their usage.
**Grants with performance**
**conditions**
Where the charity gives a grant with conditions for its payment being a specific level of
service or output to be provided, such grants are only recognised in the SoFA once the
recipient of the grant has provided the specified service or output.
**Grants payable without**
**performance conditions**
Where there are no conditions attaching to the grant that enables the donor charity to
realistically avoid the commitment, a liability for the full funding obligation must be
recognised.
**Basic financial**
**instruments**|Yes
No
N/a|Yes
No
N/a|Yes
No
N/a|
|---|---|---|---|
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
||
|||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
||Yes
No
N/a|||
|||||
## **2.4 ASSETS**
**Tangible fixed assets for** These are capitalised if they can be used for more than one year, and cost at least **use by charity**
|**Intangible fixed assets**
**Heritage assets**
They are valued at cost.
The charity has intangible fixed assets, that is, non-monetary assets that do not have
physical substance but are identifiable and are controlled by the charity through custody
or legal rights. The amortisation rates and methods used are disclosed in note 9.5
They are valued at cost.
The charity has heritage assets, that is, non-monetary assets with historic, artistic,
scientific, technological, geophysical or environmental qualities that are held and
maintained principally for their contribution to knowledge and culture. The depreciation
rates and methods used as disclosed in note 9.6.1.4.
The depreciation rates and methods used are disclosed in note 9.2.
They are valued at cost.
**Investments**
Fixed asset investments in quoted shares, traded bonds and similar investments are
valued at initially at cost and subsequently at fair value (their market value) at the year
end. The same treatment is applied to unlisted investments unless fair value cannot be
measured reliably in which case it is measured at cost less impairment.
Investments held for resale or pending their sale and cash and cash equivalents with a
maturity date of less than 1 year are treated as current asset investments
**Stocks and work in**
**progress**
Stocks held for sale as part of non-charitable trade are measured at the lower or cost or net
realisable value.
Goods or services provided as part of a charitable activity are measured at net realisable value
based on the service potential provided by items of stock.
Work in progress is valued at cost less any foreseeable loss that is likely to occur on the contract.
**Debtors**
Debtors (including trade debtors and loans receivable) are measured on initial recognition at
settlement amount after any trade discounts or amount advanced by the charity. Subsequently,
they are measured at the cash or other consideration expected to be received.
**Current asset**
**investments**
The charity has has investments which it holds for resale or pending their sale and cash and
cash equivalents with a maturity date less than one year. These include cash on deposit and
cash equivalents with a maturity date of less than one year held for investment purposes rather
than to meet short term cash commitments as they fall due.
They are valued at fair value except where they qualify as basic financial instruments.|**Intangible fixed assets**
**Heritage assets**
They are valued at cost.
The charity has intangible fixed assets, that is, non-monetary assets that do not have
physical substance but are identifiable and are controlled by the charity through custody
or legal rights. The amortisation rates and methods used are disclosed in note 9.5
They are valued at cost.
The charity has heritage assets, that is, non-monetary assets with historic, artistic,
scientific, technological, geophysical or environmental qualities that are held and
maintained principally for their contribution to knowledge and culture. The depreciation
rates and methods used as disclosed in note 9.6.1.4.
The depreciation rates and methods used are disclosed in note 9.2.
They are valued at cost.
**Investments**
Fixed asset investments in quoted shares, traded bonds and similar investments are
valued at initially at cost and subsequently at fair value (their market value) at the year
end. The same treatment is applied to unlisted investments unless fair value cannot be
measured reliably in which case it is measured at cost less impairment.
Investments held for resale or pending their sale and cash and cash equivalents with a
maturity date of less than 1 year are treated as current asset investments
**Stocks and work in**
**progress**
Stocks held for sale as part of non-charitable trade are measured at the lower or cost or net
realisable value.
Goods or services provided as part of a charitable activity are measured at net realisable value
based on the service potential provided by items of stock.
Work in progress is valued at cost less any foreseeable loss that is likely to occur on the contract.
**Debtors**
Debtors (including trade debtors and loans receivable) are measured on initial recognition at
settlement amount after any trade discounts or amount advanced by the charity. Subsequently,
they are measured at the cash or other consideration expected to be received.
**Current asset**
**investments**
The charity has has investments which it holds for resale or pending their sale and cash and
cash equivalents with a maturity date less than one year. These include cash on deposit and
cash equivalents with a maturity date of less than one year held for investment purposes rather
than to meet short term cash commitments as they fall due.
They are valued at fair value except where they qualify as basic financial instruments.|Yes
No
N/a|Yes
No
N/a|Yes
No
N/a|
|---|---|---|---|---|
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
|||Yes
No
N/a|||
||||||
||||||
|**POLICIES ADOPTED**
**ADDITIONAL TO OR**
**DIFFERENT FROM**
**THOSE ABOVE**|Not Applicable||||
**Section C Notes to the accounts (cont)**
## **Note 3 Analysis of income**
|**Note 3 Analysis of income**|**Analysis of income**|**Analysis of income**|**Analysis of income**|**Analysis of income**|**Analysis of income**|**Analysis of income**|
|---|---|---|---|---|---|---|
|**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**Prior year**
**£**
**£**
Donations andgifts
267,648
- - 267,648
328,007
- - - - -
**Total** 267,648
- - 267,648 328,007
- - - - -
- - - - -
- - - - -
**Total**
- - - - -
267,648
- - 267,648 328,007
**Other information:**
**Analysis**
**Donations**
**and legacies:**
**Charitable**
**activities:**
**TOTAL INCOME**|**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**Prior year**
**£**
**£**
**Analysis**||||||
||Donations andgifts|267,648|-|-|267,648|328,007|
|||-|-|-|-|-|
||**Total**|267,648|-|-|267,648|328,007|
||||||||
|||-|-|-|-|-|
|||-|-|-|-|-|
|||-|-|-|-|-|
|||-|-|-|-|-|
||||||||
|||267,648|-|-|267,648|328,007|
||||||||
**All income in the prior year was unrestricted except for: (please provide description and amounts)**
All income in the current year and prior year was unrestricted. A donation of £212,214 (prior year: £283,388) was received and whilst not restricted, the donation was designated for funding the charity's commitment to fund the Oxford University Natural History Study.
**Where any endowment fund is converted into income in the reporting period, please give the reason for the conversion.**
Not Applicable
**Where any endowment fund is converted into income in the prior period, please give the reason for the conversion.**
**Within the income items above the following items are material: (please disclose the nature, amount and any prior year amounts)**
Not Applicable Material donations have been received in the current and prior year to fund the the Oxford University Natural History Study commitment.
**Section C Notes to the accounts (cont)**
## **Note 4 Analysis of expenditure**
|**Analysis**
**Expenditure on raising funds:**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|**Unrestricted**
**funds**
**Restricted**
**income funds**
**Endowment**
**funds**
**Total funds**
**Unrestricted**
**funds**
**Restricted**
**income**
**funds**
**Endowment**
**funds**
**Total funds**
**£**
**£**
**This year**
**Last year**|
|---|---|---|---|---|---|---|---|---|
|Incurred seeking donations|562|-|-|562|562|-|-|562|
|Staging fundraising events|12,232|-|-|12,232|4,805|||4,805|
|Advertising, marketing, direct mail, publicity
and administration|223|-|-|223|177|-|-|177|
||-|-|-|-|-|-|-|-|
|**Separate material item of expense**
**Total expenditure on raising funds**|13,016|-|-|13,016|5,544|-|-|5,544|
||||||||||
||-|-|-|-|
-|-|-|-|
||-|-|-|-|-|-|-|-|
||-|-|-|-|-|-|-|-|
|**TOTAL EXPENDITURE**
**Total**|-|-|-|-|-|-|-|-|
||||||||||
||13,016|-|-|13,016|5,544|-|-|5,544|
**Section C Notes to the accounts**
## **Note 5 Details of certain items of expenditure**
**Fees for examination of the accounts**
|**Other fees (for example: financial advice, consultancy, accountancy services) paid to**
**the independent examiner**
**Independent examiner’s fees**
**Assurance services other than audit or independent examination**
**Tax advisory fees**|**This year**
**£**|**Last year**
**£**|
|---|---|---|
||-|-|
||-|-|
||-|-|
||-|-|
**Section C Notes to the accounts (cont)**
## **Note 6 Grantmaking**
## **This year:**
## **6.1 Analysis of grants made**
|**This year:**
**6.1 Analysis of grants made**|||||
|---|---|---|---|---|
|**Analysis**|**Grants to**
**institutions**|**Grants to individuals**|**Support costs**|**Total**|
||||**£**|**£**|
|Oxford UniversityNatural HistoryStudy|-|-|-|-|
|**_Total_**|**-**|**-**|**-**|**-**|
## **6.2 Grants made to institutions**
The charity has not made any additional grants in the current year. In the year ended 31 December 2020 the charity made a commitment to fund the Oxford University's Natural History Study of up to £1,077,103. In the current year payments were made under this commitment of £495,622 (prior year: £293,610). At the end of the reporting period the outstanding funding committment was £0 (prior year:£495,652) (see note 7 and note 8). Details of the institution supported, purpose of the grant and total paid to each institution is available on the charity's web site.
https://cureangelman.org.uk/oxford-natural- history study
|**Names of institution**|**Purpose**|**Total amount of**
**grantspaid £**|
|---|---|---|
|Oxford University|Angelman Syndrome Natural History Study|495,622|
|**_TOTAL GRANTS PAID_**
**_Total grants to institutions in reporting period_**||**495,622**|
|||495,622|
## **Last year:**
## **6.3 Analysis of grants made**
|**Last year:**
**6.3 Analysis ofgrants made**|||||
|---|---|---|---|---|
|**Analysis**|**Grants to**
**institutions**|**Grants to individuals**|**Support costs**
**£**|**Total**
**£**|
|Oxford UniversityNatural HistoryStudy|-|-|-|**-**|
|**_Total_**|**-**|**-**|**-**|**-**|
## **6.4 Grants made to institutions**
_**My charity has made grants to particular institutions that are material in the context of its grantmaking. Details of the institution supported, purpose of the grant and total paid to each institution is available on the charity's web site.**_
https://cureangelman.org.uk/oxford-natural- history study
|**Names of institution**|**Purpose**|**Total amount of**
**grantspaid £**|
|---|---|---|
|Oxford University|Angelman Syndrome Natural History Study|495,622|
|**_TOTAL GRANTS PAID_**
**_Total grants paid to institutions in reporting period_**||**495,622**|
|||495,622|
**Section C Notes to the accounts (cont)**
## **Note 7 Creditors and accruals**
## **7.1 Analysis of creditors**
## **Accruals for grants payable**
|**Total**|**Amounts falling due within**
**oneyear**|**Amounts falling due within**
**oneyear**|**Amounts falling due after**
**more than oneyear**|**Amounts falling due after**
**more than oneyear**|
|---|---|---|---|---|
||**This year**
**£**|**Last year**
**£**|**This year**
**£**|**Last year**
**£**|
||-|283,388|-|212,174|
||-|283,388|-|212,174|
**Section C Notes to the accounts (cont)**
## **Note 8 Reconciliation of funding commitments**
## **8.1 Movements in funding commitment during the period**
**Balance at the start of the reporting period Amounts added in current period Amounts paid in the current period Balance at the end of the reporting period**
|**This year**
**£**|**Last year**
**£**|
|---|---|
|495,562|789,172|
|-|
-|
|- 495,622|- 293,610|
|- 60|495,562|
## **8.2 Please provide:**
|**8.2 Please provide:**
**- a brief description of any obligations on the balance**
**sheet and the expected amount and timing of**
**resulting payments;**
**- an indication of the uncertainties about the amount**
**or timing of those outflows; and**
**- the amount of any expected reimbursement, stating**
**the amount of any asset that has been recognised for**
**that expected reimbursement.**
**8.3 Where unrestricted funds have been designated**
**to a fund commitment, please disclose the nature of**
**any amounts designated and the likely timing of that**
**expenditure.**|**Thisyear**
**Lastyear**|**Thisyear**
**Lastyear**|
|---|---|---|
||
The only obligation of the charity relates
to the funding commitment made to
Oxford University for the Natural History
Study. Of the £1,077,103 committed £0
remains due at the end of the reporting
period.|The only obligation of the charity relates
to the funding commitment made to
Oxford University for the Natural History
Study. Of the £1,077,103 committed
£495,562 remains due at the end of the
reporting period. The remaining amount
will be paid over the next 2 years, with
£283,388 payable in the next year.|
||Not Applicable, the payments are to be
made in accordance with the budget
agreed within the commitment
agreement.|Not Applicable, the payments are to be
made in accordance with the budget
agreed within the commitment agreement.|
||No amounts are expected to be
reimbursed and no assets have been
recongnised in relation to any expected
reimbursments.|No amounts are expected to be
reimbursed and no assets have been
recongnised in relation to any expected
reimbursments.|
||||
||The charity's only funding commitment
relates to the Oxford University Natural
History Study. No formal designation of
untrestricted funds has been made but it
is expected that these amounts will be
paid out of unrestricted funds. There
were no funding commitments at the end
of the reporting period.|The charity's only funding commitment
relates to the Oxford University Natural
History Study. No formal designation of
untrestricted funds has been made but it
is expected that these amounts will be
paid out of unrestricted funds.|
**Section C Notes to the accounts (cont)**
## **Note 9 Cash at bank and in hand**
**Cash at bank and on hand Other Total**
|**This year**
**£**|**Last year**
**£**|
|---|---|
|189,369|430,360|
|-|-|
|189,369|430,360|
## **Section C Notes to the accounts (cont)**
## **Note 10 Events after the end of the reporting period**
## **Please provide details of the nature of the event**
**Provide an estimate of the financial effect of the event or a statement that such an estimate cannot be made**
**This year Last year** Further payments have been made to fund the Oxford University Natural There were no material events after the History Study in line with the end of the reporting period. commitment made. Payments of £283,388 were made in the after the end of the reporting period but before the accounts were approved. This reduced the funding N/A commitment liability to £212,174.
**Section C Notes to the accounts (cont)**
## **Note 11 Transactions with trustees and related parties**
## **11.1 Trustee remuneration and benefits**
## **This year**
**None of the trustees have been paid any remuneration or received any other benefits from an employment with their charity or a related entity (True or False)**
## **Last year**
**None of the trustees have been paid any remuneration or received any other benefits from an employment with their charity or a related entity (True or False)**
**TRUE TRUE**
## **11.2 Trustees' expenses**
**No trustee expenses have been incurred (True or False)**
_**TRUE**_
## **11.3 Transaction(s) with related parties**
_**Please give details of any transaction undertaken by (or on behalf of) the charity in which a related party has a material interest, including where funds have been held as agent for related parties. If there are no such transactions, please enter 'true' in the box provided.**_
## **This year**
**There have been no related party transactions in the reporting period (True or False)**
_**TRUE**_
_**In relation to the transactions above, please provide the terms and conditions, including any security and the nature of any payment (consideration) to be provided in settlement.**_ Not Applicable
_**For any related party, please provide details of any guarantees given or received.**_ Not Applicable
## **Last year**
|**Last year**|**Last year**||
|---|---|---|
|**There have been no related party transactions in the reporting period (True or False)**||**_TRUE_**|
||||
|**_For any related party, please provide details of any_**
**_guarantees given or received._**
**_In relation to the transactions above, please provide the_**
**_terms and conditions, including any security and the nature_**
**_of any payment (consideration) to be provided in settlement._**|||
||Not Applicable||
||||
||Not Applicable. In the previous reporting period one of the trustees together
with another individual has agreed to make up any shortfall in funding if the
chairty are unable to fund the amounts committed to the Oxford University
Natural HistoryStudy.||
**Section C Notes to the accounts (cont)**
**Note 12 Additional Disclosures**
**The following are significant matters which are not covered in other notes and need to be included to provide a proper understanding of the accounts. If there is insufficient room here, please add a separate sheet.**
No additional significant matters to note.