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2020-12-31-accounts

Trustees' Annual Report for the period

Period start date Period end date Day Month Year Day Month Year From 01 January 2020 To 31 December 2020

Section A Reference and administration details

Charity name Foundation for Angelman Syndrome Therapeutics UK Other names charity is known by FAST UK Registered charity number (if any) 1167984

Charity's principal address 13 Inglethorpe Street

London Postcode SW6 6NS

Names of the charity trustees who manage the charity

1
2
3
4
5
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7
8
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10
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12
13
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20		 Trustee name Office (if any) Dates acted if not for whole
**year **		 Name of person (or body) entitled
to appoint trustee (ifany)
Tom Keogh Chair
Tamsin Keogh
Antonia Felix
Louise Prince
Julien de Bournet
Katharine Hamilton

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

TAR

March 2012

1

Names and addresses of advisers (Optional information)
Type of adviser
Name
Address		 Names and addresses of advisers (Optional information)
Type of adviser
Name
Address		 Names and addresses of advisers (Optional information)
Type of adviser
Name
Address

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Constitution

Type of governing document (eg. trust deed, constitution) A Charitable Incorporated Organisation How the charity is constituted

(eg. trust, association, company)

Apart from the first charity trustees, every trustee must be appointed by a Trustee selection methods resolution passed at a properly convened meeting of the charity trustees. (eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

Section C Objectives and activities

The objects of the CIO are:-

Summary of the objects of the charity set out in its governing document

  1. the advancement of health for the benefit of the pubic by the provision of support towards research into Angelman Syndrome including their treatment and cure, and the publication of the useful results of such research; and

  2. the relief of those in need of care, assistance and support as a consequence of living with Angelman Syndrome.

TAR

March 2012

2

Foundation for Angelman Syndrome Therapeutics UK has been working very hard over the last year to assist Oxford University in the putting together a Natural History Study for Angelman Syndrome. The study is about to start recruiting patients and is fully funded by FAST.

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where relevant, about:

TAR

March 2012

3

Section D Achievements and performance

Summary of the main achievements of the charity during the year

Fund raising activities and donations through-out the financial period have raised funds of £212k.

FAST UK is linked with FAST US who are making huge steps into finding a cure for Angelman Syndrome through scientific research, and FAST UK have continued to support FAST US’s efforts with this.

One of the main achievements of FAST UK this year has been the successful creation of the Natural History Study in conjunction with Oxford University.

TAR

March 2012

4

Section E Financial review

There is no reserves policy.

Brief statement of the charity’s policy on reserves

Details of any funds materially in deficit

N/A

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s)

Full name(s) Tom Keogh Position (eg Secretary, Chair, Chair etc) Date 12/10/2021

TAR

March 2012

5

Foundation for Angelman Syndrome Therapeutics UK

1167984

Receipts and payments accounts

CC16a

For the period 01/01/2020 31/12/2020 To from

Section A Receipts and payments

A1 Receipts Unrestricted
funds
to the nearest £
209,797
2,994
-
-
-
-
-
-
212,791
-
-
-
212,791
2,359
-
446
167
420
-
-
-
3,392
-
-
-
3,392
209,399
-
161,596
370,995		 Restricted
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Endowment
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Total funds
to the nearest £
209,797
2,994
-
-
-
-
-
-
212,791
-
-
-
212,791
2,359
-
446
167
420
-
-
-
-
3,392
-
-
-
3,392
209,399		 Total funds
to the nearest £
209,797
2,994
-
-
-
-
-
-
212,791
-
-
-
212,791
2,359
-
446
167
420
-
-
-
-
3,392
-
-
-
3,392
209,399		 Last year
to the nearest £
Donations 209,797 41,145
Fundraisingevents 2,994 60,578
- -
- -
- -
- -
- -
- -
Sub total(Gross income for
AR)		 212,791 101,723
A2 Asset and investment sales,
(see table).
-
-
 -
~~Sub total~~ - -
Total receipts
A3 Payments
101,723
Cost of fundraisingevents 2,359 1,785
Cost ofgeneratingdonations - -
Charitablegivingwebsite membership 446 561
Printing,Postage,IT Costs 167 203
Travel 420 49
Donations to FAST US - -
Fundingresearchproject - 11,181
-
- -
**Sub total ** 3,392 13,779
A4 Asset and investment
purchases, (see table)
-
-
**Sub total ** - -
Total payments
Net of receipts/(payments)
A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end
13,779
209,399 - - 209,399 87,944
- - - - -
161,596 - - 161,596 73,652
370,995 - - 370,995 161,596

CCXX R1 accounts (SS)

19/10/2021

1

Section B Statement of assets and liabilities at Section B Statement of assets and liabilities at the end of the period
Categories
Signed by one or two trustees on
behalf of all the trustees
B1 Cash funds
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B5 Liabilities
B3 Investment assets		 Signature
Details
Details
Cash at Bank
Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
370,995
-
-
-
-
-
370,995
-
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
-
-
-
-
-
Print Name
Katharine Hamilton
Tom Keogh		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
Katharine Hamilton 11/10/2021
Tom Keogh 11/10/2021

CCXX R2 accounts (SS)

19/10/2021

2

CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner 5 Report Report to the twstsesl membws of Foundation for Angelman Syndrome Therapeutics On accounts for the year ended 31 December 2020 Charty no (rf any) 1187984 Set out on pagos I report to the trustees on my examination of the a(xounts of the above charity (Ihe Trust") for year ended 3111212020. ResponslbSlltles and As Ihe tharity trustees of the Trust. you are responsible for the weparation basls of rowt of the accounts in accordance with the requirements of the Charities Act 2011 fthe Acr). I report in respect of my examinalion of the Trust's accounts carried out urKler section 145 of the 2011 Act and in carrying out my examination. I have followed the applicable Directions given by the Chanty Commission under section 145(5)(b) of the Arl. I have cOMp￿d my e￿￿MInatiOn. I confinn that no material matters have me to my attention (other than that disclosed below ') in connection with the examination which gives me cause to believe that in. any material respect: accounting records were not kept in accordance with section 130 of the Act or the accounts do not accord with thè accounting records Independent •xam5ner's ststem•nt I have no concems and have come across rio other matters in ¢onne¢tion wilh the examination to vthich altention should be drawn in order to enable a proper understarKling of the accounts to be reached. Pleas del te the words in the b￿CketS rfthey do not apply. Slgned: iy Name: Patrick Meehan Relevant professlonal quallflcatlon(s) or body (if any): ACCA (2CK16363) Address: 96 Palewell Pa SW14 8JH IER October 2018

Section B Disclosure Onty complete if the examiner needs to highlight matters of Gon￿rn (See CC32, Independent examination of charity accounts: directions and guidance for examiners). Give hern brlef detalls of any Items that the examlner wishes to dlsclose. IER October 2018

Ill4￿ ((wA￿luN 1167•04 Receipts and payments accounts CC16a 01101r20 3111V2020 To Section A Receipts and payments funds l￿d% Total fvnd8 A1 Re¢01 FU￿1￿m￿j events 0•.571 AR) 2117•t 212.T91 1lll.72J Totalre¢elpts nts Cost $61 Pnrtsng. Postaje. tr Costs T￿y LknathTh to FAST US Fu 167 420 167 49 13,779 3.392 13,779 209.3•9 AS TraMfor8 l>•lwMn funds A6 Cash lund• last STrar￿d Cash fvnds th1$ yur end 370.995 CCXX R1 {SSI I2110￿21

Section B Statement of assets and liabilities at the end of the period Endowm8nt fund lo n•unt£ Categories D•tsils funds to B1 Cash Iwd• rotsi cash 374H5 R•stslet•d fvnds fvnd$ funds Dètsils nMr•Btt Oetails 83 Invo•lm•nt •ss•ts Dtails B4 As••t8 rolalnfjd for th• chrWs (wm us• Oetalls B5 Llablllll•s &gnJ byry￿ *wt•OS Dale of Kathwi)• 1111012021 1111012021 17110r2W21