Charity registration number 1167783 GRACE KELLY CHILDHOOD CANCER TRUST ANNUAL REPORT AND UNAUDrrED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2024 GRACE KELLY CHILDHOOD CANCER TRUST LEGAL AND ADMINISTRATIVE INFORMATION Trugtees V E Bllings A Stallard D Wilkins N FranLY8 S Rt)S¢ (Appointed 17 January 2024) (Appointed 17 January 2024) T Marh)w.Jon8s Senior management Dr J Kelty K GnrKlon Charity number 116n83 Principal addre99 The Piggery Cowsden Hall Fam Cu*vsden. Up1￿ Snodsbwy Worcester WR7 4NZ Indepondent examlner Kendall Vthlley LLP Granla Lodge 71 Graharn Road Malvem Worcestershire VIR14 2JS Bankord Natwesl rce8ter Cross 1 The Cross lthrrRster IM113PR GRACE KELLY CHILDHOOD CANCER TRUST CONTENTS Pag• Trustees. report Staternent of trustees. responsibilities Independent examinels report Statement of finan¢ial activities 10-11 Statement of financial Po￿1 12 Notes to the financial statements 14-28 GRACE KELLY CHILDHOOD CANCER TRUST TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2024 The trustee5 present their annual report arml statements for the year erKled 30 June 2024. The financial stalemenls have been prepared in acc¥)rdancÉ with the axounting policies set out in note 1 to the finanaal statements and comply with the tharity's ¢onslilution. the Charities Act 2011 and "Accounting and Reporting by Chari*ies-. Slalement of Recommended Pract￿ applutle to charities prep￿ing their accounts In accordance with the FinancAal Reporting Standard applicable in thg UK arvj R6publk of Ireland (FRS 102)" (elle(aive 1 January 2019). OblectI￿$ and aetfylties As worded in the GhaTitrfs constitution, the Grace Kelly Childhood Cancer Twsl aims to promote and proied good health among thldren, by raising fLsnds &nd alkxating them lo meet its specAfied objeGiives wlith are.. RaiS￿g awareness of childhood cancer& b. Providing funds or grants for reseaTch into the ¢￿USeS of and Ireatrnent of aggressive chlldhood cantsrs, incjuding malignant rhabdoid tumours. Provision of dlscrelionary grants to aHJ tl* speufic trealment of indrvidual cases of childhood Car￿er when nol available within the NHS. d. Provision of swport for familiès affe¢t8d by thildho￿ cancer. The Tnjstees confirm that they have referred to and had regard for Ihe guidano contained in the Chartty Commission's general gUIda￿e on publ'c benefit when rev￿Ing the T￿￿t'S aims and obieclives and in planning future 3ctiviti.es lor the chwity. Pollcy on research grant making The Ttust's fes8arch grant policy ensures that funds are direcled toward the most impaGthA researth on childhood cancers. partiGulaty rare cancers Ihat are ￿rrenty underfunded. The aim of the charity is to fund research into better and kinder treatments ts thildren. speaficalty tsrgeting rwe ￿c￿5. w1￿ch are currenlty c4nsdered to be nder4esearthed. We af8 woud to be an AMRC registered research chwity. This means Ihal we have our ovm Research Advisory panel. and we fund all our research through a rigorous review wocess ￿¥￿vIng experts lo ￿SUre thal only the highest-qualty research receives funding. Volunteer contribution Vve extend heartfell thanks to our vokjnteers fof Iheir invaluable contrlbulions 0￿r the pasl year. From assisting with fundraising events to managing donation collections and SourC￿g raffle prize5, our voluDtews have made a tangible impacL Vve deeply appreciate their Wonderf￿ suppo A¢hl•vements and perfommnce Sumrnary of the main achievernents to thi8 ygar The trustees are salisfied with the charTty's finanoal positi(Yi at year-end, ha￿n9 completed our eighth ful year amid challenging economic Cl￿dItiOn. We are pmud of all that has been achivrfed durng thi5 time. While our income slightly exceeded expect*"ons, the demand for our services has also gr(Mn significantly, particularfy ￿ our Family Support Service. which saw a 69% inuease in referrals over the past 12 months. Alongside thts increase in demand has c(*ne increasing costs meaning thwe 15 an ever%r(wirvJ need for further growth of ow Income In the next charity year. Our staff tearn cufrently SL￿d8 at seven. with an addltKK￿ team m8mber joining the chaty so￿. Our Family SuppcKI Team nthv consists of th￿e deoieated profeSsion￿S wovi(liThJ critical support to famlli88 in no￿1. GRACE KELLY CHILDHOOD CANCER TRUST TRUSTEES. REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Signs and symploms awareness Over the last 12 months, we have distributed another 3(XJ.O(NJ signs and symptoms thvarene5s cards natioY)ally. We continue to reach many parenls through the inclusion of ￿r awareness cards irrto tho Personal Child Health Record (red book) pack vi many regions of the UK. Our cards have now reached jusl over 2.5 million families to date. With one th￿d in every 450 receiving a diagnosis of cancer by their 15th birthday, OUT Gards could have reathed just over 5.sw families who will have a child who will be diagnosed with cancer in childhood. Armed wrth the right knowledge, these faM￿leS are well placed to ensure the best possible outcome f(* their children by visthng the docaor at the eadiest possible stage. r reglonal red flags awareness cards for dinicians are continuing to be used in the teaching and updating of GPS in many surgerie$ across the UK and Ireland. This year. we were pleased lo have partnered wrth the award-winnlng GP updates provider, Red Whale. We have supported them lo update their training materials on cancer in children and young people. The resourc8s produced were sent out a$ updales to 44,CQO GPS and heafth care professlonals nationally. They were Written in Sne with current guidance and designed to be ac¢es5ible to an health prolessionals. Publlcatlons Did yoij know that we have nuw written and produced 18 different Informatic￿ boOk￿ts for families and have also Gollaborated with other organisation& to produce another 5 publications for piofessionals? We have recently passed our third annual assessmenl lo retain our eartificalion by The PIF TICK ffruslèd Information Creator). the only UK- wide qualty acueditats'on mark for print and online heath information. This means that lamilie5 and professionals Can be assured thal our inforn)aiicffi resources are evidenc&b8sed. underslandabk. iargofvfree. upl￿date. and produced to the best possible standard. Over the last 12 months, a further 4,1)CK) copies of wr infonnatK>n bookjets have been ordered by both professionals and famillas across Ihe UK. To date, ov8r $4,000 copies have been dispersed. Our digital downloads have occurred inlernationalty in countn.es surjj a5 the USA, Australia, China and Israel. Some of our booklets have even been translated Into Arabic. Chinese and Malay by profeSsi(￿al8 in differing countries so Ihey Can be used locally, and we have been de1￿Med to convert the firsl of our booklets into ￿ audiobook format to aid accessikm'lty. Regeareh Continued rese8rth into rare and aggressive childhood c8ncers is vital to improve swvival rates in children. The Trust priorilises researth thal could potentially have a direct dinical imparA or could contribute to altering future Irestmenls (and their monitoring) for chiklren. During the last tharity year, we have provided over £115,000 af fvnding to researGh projects laking place in the UK. have greatly appreciated ow ongoing collaboralion wilh Sarcoma UK, Iwth b(th thar￿e$ allending a researth event at Bifmingham Univ8TSity to observe the progress b8irKJ made. Th8 project, 18d by tk. Cam)ela De Sanlo, focuses on improwng ￿te￿)MeS for children and young people diagnosed with Sarcom￿ rare cancer that can aff6ct any part of Ihg body, induding musdes. bones, tendons, blood vessels, and fatty tissues. This promlslng research aims to tranSIc￿ the way sarcoma is treated in children. with a focus on irnmunotherapy. an innovative canc8r treatment. Considerable progre88 has been made. arKI the project 13 expected to CO￿4￿je in the Summer of 2025. In addition to this Initiab¥e. wa are fvnding the third year of two promising research prdects already In progress. The first, a Ihrefryear study led by Dr. Ruhman Rahm3n al Nottingham University, is titled 'Recaprtulating Ihe Posl- Surgic81 Brain M1￿00n¥1f0nrn8nt of Atypical Rhabdoid Teraloid Tumours to Identify Protelns for Targeted Therapy." The second, also a three-year project. 1$ led by Dr. Daniel Imlliams at the University of NewcaslS8 8nd 1$ titled 'Liquid Biopsies and Minimal Residual Disease Measurements for the Management of Mal￿nant Rhabdoid TLmours and Other SMARCB1 Mulal¢d Tumours.. Thls projecl ts funded in partnership with thg charity Loveollver. Both th¢se Pfojects trK)Id 8ignificant promise In advancing treatments for rare and aggressive ￿terS $uth a$ rhabdoid tumours and sarcoma5. They are progressing well and are also scheduled lor completion by the summer of 2025. GRACE KELLY CHILDHOOD CANCER TRUST TRUSTEES. REPORT ICONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Support for families Our famity suppcrft service at the Trust has [￿W been running for alrnost Ihree years. It has fftvn from Infc¥mal, ad hoc 8UPPOrt frijm ow staff te￿ during co¥s&19 to a team of IlY8e dedicated support workers. Demand for our services has grcwn swjnificanty <)ver the past year. Our family sUp￿rt t8am18 fKJW Wofking with over 140 familtes. reflecting 8 89Oh increase In new referrals from healthcare professionals. Over the last 12 months, we have conducted 652 home and hospital wsils ac¥oss W￿CesterS￿rB. Herefordshire, and GI￿¢8$18￿ hire, and delivered more than 3,500 family support interactions. Our dedicated support workers offer emotional and praclical assislance nol only lo children with eancer. bul also lo their Siblings and parents. Often. simply having someone to lalk to and listen is what farnihes need mosl. Our support wothefs, daily responsibililies indude home visits, hospital and school vi5ils. and faciltsling therapeutic support groups. They work closely wilh medical teams. schools, and care settings $Lth as hospi{￿S to ensure families receive comprehensive support during these d"tiTicult tsme5. he suppori you have given our fatnily during Imy Son'sl trealment ha$ rr*ant the worfd to us.. A parenl supptyted by the Twst. Unlike many SUPFbOrt services, do nol impose a tiTrE limit on the length of a famty can receive. Every family's needs are unique, and we are proud to offer orooing assistance until they feel ready to move fwward. Families can alsc refer themselves back lo us at any lime. Flnanelal and practlcal support Every child diagnosed with cancer receives a new thagnos5 SUPPfAt bag and is Offe￿ a norHneans-lested supwt grant to help rnver the additFonal cost5 Iheir fafflily may face. They also roreive ongoing support fmm our family 3UPPOrt wothers. If, unfortunately, a child relapses or passes away, we offer the famty fwther f￿￿(￿al assistance. Over the past 12 monlh5, we have provided £47,000 yi finan(aal support to families. Thank5 to the vi(xedlble fUndraI￿r￿j effort5 of our Ladybird Hero Funds, induding B8 More Frnnk and Biifs Battle. wg have been at48 to ¢onts'nue offering non-means-tested support grants to lamilies acwss Worcestershire. Herefordshire, Gloucestershire, Monfflouthshire, Powy5, and Devon when a child is diagnosed. relapses, or sadly pa55e$ away. The Be More Frank lund has akn enabled us to provide eonllTrJen¢y grants to families in need of èxtra support during difficult limes. The impact of both Be More Frank and Brffs 8atlle is truty remarkalAe, ma￿'n9 a tangible difference to countless familie8 in menKJry of Frank and Elzabeth. Rhabdold •upport Our thabdoid parents orfine support group has been running for over five year5 and now has more than 300 members worldwide. The group offers vital 8UPPOrt lo farnilies of children diagn¢)sed wilh rhabdoid and other rare, aggressive thildhood cancers, providing a much-needed space for connection and supp(Kt when option8 ar8 limited. GRACE KELLY CHILDHOOD CANCER TRUST TRUSTEES, REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 AV1 Robots for Chlldron with cancer Our AV1 avatar robots prowde isolated chiktren wrth a Trwndovr to their friends the outside world, helping bridge the gap between hospttal and dassroom life. These innovative d8vices allow children confined to a hospital bed to interact Vdrth Iheir peers and participate in school acts"vits-ès remotely. In the pasl 12 months, 13 more children have beneffted ffom an AV1 robol. bringing the lotsl number of thildren assisted by this Project to 43. This iniliative has posilrvely affected not only the children but also their families and dassmates. The children have fett less isolated a￿1 been able to slay conneded with their friends durin9 prolonged absences Irom school. °Tho AVI r9afy helpad my daughter feel like a part ol the class again after so long a¥vay. Her classmates loved il too. I fbink ￿ look 8way some of the fear for them ol wh81 shp was going thnpugh. Evon jusl bging able lo answ8r hgrnaffle on the was lovely forher." An addilional 10 children have been provided with tsblel dewces. alowing them to stay in iwch with school. interact with frlerAls, and ￿￿tinUe their studies. These tablets offor much•needed Gomfort for children when they are away froffl horne a￿1 feeling Thel. Flnanclal revlevj The results for the year are set (xrt in the financial statements cx)mmencing on page 10. The financial statements show nel expenditure of £11.652 (2023". net incomo of £338,026. (£256,594 of which was designated to individual Ghild appeall). Total funds at the eThJ of the financial year anM)unted to £1,168,185 (2023.. £1,179,83T). The charity has fuNJs vthith are acc￿nted for under three headings.. restncted. designated. and unrestricted (free). Restricted reserves of £200.726 (2023.. £245,549) Ix)nsist of I￿ld$ rin*fenced to finance parti￿19r projects and cannot be used for any other purpose. Designated fund8 are thcw urKe8tricied funds that trustees have agreed 10 8et aside for 4)ecific purposes. This cU￿entlY equates to £718,772 (2023.. £616,370} in total. Unrestricted fur¥Js of £248,687 (2023: £317.918) represent Ihe b818nce of ts total funds 8nd can be used al the th"$¢retion of the InJ8lees. After making allowancRs for tangible fixed assets the free resepdes of the charity amount to £248,687 (2023,. £315,948). Res0Th08 polky The Charity is coffrfnitted to Ma￿tainEng an unrestrKaed eontingew reserve equi%pEent to 60% of the following year's projected tot•1 expendlturè. Thls foservg ertsures coverage during pgriods of reduced In￿Me or unexperted A key objettive of the Charity is to support relevant research, which ofien requires signifieanl funding. Mèdical research projects arg r0sourc8-inlensi￿, wilh a minimum of £100,000 typical￿ needed to ￿mPlete a distinct body ol work Larger projects may require subslants'ally more. and as suth. the Charity aims to build rts reserves over time to fund approwiate research. Many researth projects span three years, and annual research grants are disbursed conts'ngent on satisfaclory Pfogress rewls, ff*aning funds ts fvture years musl be ratained needed, Consequently, Ihe Charity'8 reseNes may fluctuate based on the timing of grants. Resear(*b grants are excluded from recurrent eosl cal￿1all0ns when detemiining reserve requlrements. As of 30 J￿e 2024. the tntstees conftm that reseNe$ are in accord￿Ce with this poIIcy. Invoslm•nt pollcy Summary A low-risk approach has be￿ taken. Tho Chaiity seek to plaLX surplus on deposlt to ensure liquidity whllst minimising ris GRACE KELLY CHILDHOOD CANCER TRUST TRUSTEES. REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Plans for fulurè porlods Experience gained and1088on81oamod Over the past year. our committed team has worted tireles* to ensure the conlinued $u¢xe$s growlh ol the Trust's essential acaivities. Their dedication and passion rK)l only dri￿ our mission forward but also inspire ind¢viduals to 5UPF￿rt ¢)ur fundrai&ng efforts. As the Twsl receives no regular statutory fvndiTrJ. we remain wholly dependent on the generosity of ow fundraisers, c￿e partnors. Trust and Gr￿ and thè fam•lies we serve. In organising fundraising events, we consistentty aim to deliver impactful and We￿exeCU￿￿ experiences that provide a strong relum on inveslment. This year, we were delighted with the success of key events. including our nter Wondeiland Ball 8rKJ our annual Tree cycle event. Both have I￿Ven to be highly effeclive. generating excellent retums. and we are exoted to bring them back nexl year. AddtlDnally. we introd￿ed a number of lower- cosl events, which provided valual￿e insights. ￿lIe Some of these required signifKanl staff time and yielded lower retum on investmenL Ihey have informed our stralegy moving foThYard. We now recognise the importancE of focusing on a smaller number of larger, high-impact Gampaigns lo maximise both our resources and results. Looklng forwards Looking ahead, we aro exiiied alx)ut the fvture of the Gra￿ Kelly Childhood Cancer Ttusl. As our charity continu•$ lo evolve, we have ambitious plans for the CAHr#ng years. Ifyfjth our team growlng and Offi￿ space bec￿71￿ incTrasinOy ￿'mIted. we aim to relocate lo larger pffjmises and recruit additional teaffl members lo manage our expanding workload. Refe￿alS to our semces have risen by 690 over the past 12 months, a trend we expect to continue. It is therefore essential for the truste85 and management team to plan effectively to meet this dernand. In the year? ahead, we intend lo further develop wr family support services. expanding both learn and the rea(* of our wogrammes to ensure we can supp¢xl even more families who urgenlty need our help. We are also c(xnmiUed to strengthening parlnerships with hoswtals. both lo¢dly and n81tonaly, to ensure that families roceive tho highest level of sUPPOrt from diagnosis onwards. Collaboration remains al the heart of our approach. as we firnily believe that working alongside like-minded organisabons can achieve even greater outcomes for children with cancer. Over the next 12 months. we will intensify effort$ to raise awareness of cancer signs a￿1 symptoms while launchlng addition81 research grant frjnding founds to support essential resea￿h. This will be an exiillng and pivotal period for the charity as we Mnlinue to grow. refine our woc•sses. •)d ensure we operate with maximurn effiaency to benefit those we serve. GRACE KELLY CHILDHOOD CANCER TRUST TRUSTEES. REPORT ICONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 strnctsrn, govemanco and managemont The Grace Kelty Childho¢JJ Cancer Trust is a registered charlly. conlrolled by its wistitution conlained in the Trust deeds. dated 7 Awil 2016. The tharity was formed and entered in the register of tharities on 22 June 2016 as Charilat4e Incorpofated Qrg8nisation. The charity was set up In Mern￿ of GraGe Elizabeth Kelly who passed away ￿ 2014 al the age of 4 after developing a rare fom) ol cancer. The aims of the Grace Kelty Childhood Cancer Trust are to help save the liv6s ol children wilh Ca￿er by lunding much needed research and raising awareness of the signs and symptoms of childhood cancer, working towards earlier diagnosis. We provide emotK)nal. financial and practical SUPPDrt to families In Worce51ershir8. Gloucestershire. Hereford5hire and provide financial support to families in Povry8. Monmouthshire and parts of Devon in addilion. Nationally. we provide assistance to children affocted by rhabdoid and ¥imilaf lumours, offering financial support and Tunning an online community. We also produce information bookjets. vthich are written and reviewed by medical experts, for families affected by childhood cancer, ensuring they receive acojrate information al the time they need it mosl. The Trust is also activety involved #i medical education, working alongside healt￿are professionals S￿h as general practilion8rs, nurse practitioners, and health visitor5. Our mission is to equip these professionals Wlth the knowledge necessary to recognise childhood cancer symptoms earty and guide them on appropriale next slep$ when ¢oncorns arise. Chjr educational reS0￿ceS play an important role in promoting eaty diagnosts. ensuring that medlcal professionals are better prepared to make timely intepdentions and provide optimal care for children with cancer. Increasingly, we are recognised as a tnjsted authortty by both professionals and oruanisalions. unlquely bridging the gap between families. healthcare prowders. and policymakers uniquely positioning ourselves as a parent led organisation y￿th medica expertlS8. We are proud to have ￿ntributed to several key initiatives this year, induding partiupalion #i the E8rty Diagnosis Working Group for thè Childhood Cancer Task Force in Westminster. a Parliarnentary Reception at Ihe House ol Lords and a round lable event at GenomiGs England. We were also involved in the designation process for the Tessa Jowell Centres of Excellence and maintain active Involvement in the Children's Canw Coalition. Collaboration remains at the o)re of au efforts. New trustees are eleded by existsng trustees and sep4e a threewyear term. with the oMM)n to seek reappointment. The constitution mandates a ￿nImuM of three Irusteo8 and a maxifflum of Iwel¥e. Al bi4nffithly trustee meelings, the board establishes Ihe strategic dire(1￿ of the tharity, wrth a foTrJs on research grants, reseNes, risk managemenl. and perfomiance. Day.tO•day operations are delegated to the CEO and the Office and Project Manager. As of 30 June 2024, the Board of T￿￿teeS comprised six members. The truslees who served during the year and up to Ihe date of signalure of the fnan(x8F statements were: V E Billing8 R DawsorFJone$ A Stallard E John.Featherby D Imlkins N Francls S Rose T MarlOw-Jc￿eS (Reslgrrtd 31 October 2023) (Resigned 20 Maro* 2024) {Appolnled 17 j￿Uary 2024) (Appointed 17 January 2024) GRACE KELLY CHILDHOOD CANCER TRUST TRUSTEES. REPORT ICONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Tfustees we appointed based ￿ the tharitys needs. con*dering skdls. lime commitmenl, ar#J allgnment wlth our objectives. The existing trustees com￿Y with the ICSA guide, "Recn#lment, Appolitment and InduGlion of Chaniy Truslees," 8ThJ bn'ef neknv trust￿5 on the history of the charity and the p(wers aTrJ responsibilty of the trustees. All new trustees receive the Trust's constiiution, Ifustee handbook, and ChaiTty CommissK)n's guide The Essenlial TnistBe. Whal Yoii N9ed to l(now. Upon appoinlmenl. tfustees sun a declaratsffi. complele a self.disclosure fom), undergo a OBS check, and are provided with the minutes of the pievious three meetings, along with a¢¢ess lo all relevani pollcies. Trustee$ are required to disctose al rele¥anl nterests and register them and must ￿lthdraW from $peclfi¢ decisions where a cA)nfiid of inttyesl arises. Pay pollcy and 81aff All salaries are delermined based on market wnditN)ns, 3kiU reqwgmonts. charity size, and salary levels necessary to attract qualified staff. Principal risks and uncertaintios The trustees have (x>nsidered the mapr risks lo whith the charity is exposed and have ensured systems and procedures We in place lo manage them. The primary operational risk is whether research grants will effe¢b"vely advance knowledge and treatment of rare or aggressive childhood cancers. To mitigate this nsk, an independent R8S8ar¢h Adw'scry Panel reviews all applicalbons in collal)ordlion with awedited s¢ien15fic experts to enswe granl application are properly scnrtinised. The Trusi also retains staff with sufficient medical knovAedge to understarNJ grant proposals. ensurlng lunding 15 alloGated to the most appropriate projects. While risks in mÉdi¢al research cannot be entirety eliminated, the80 measures Pfovide significant safeguards. Additsonal risks are managed throu￿ cr￿Prehensive policies Covgring finances. employmert and the awarding of granls. The Irustees. report was approved by the Bwd of Trustees. V E Billing5 Chair of TNsteo9 15 January 2025 GRACE KELLY CHILDHOOD CANCER TRUST STATEMENT OF TRUSTEES, RESPONSIBILITIES FOR THE YEAR ENDED 30 JUNE 2024 The trustees are reSpons￿le for preparing the Tntstees, Report and the financial statements in aCt0rdan￿ with applicable law and United Kingdom Accounting Standards (United ￿ngdoM Generalty Accepted Accountlng Pfactlx). The law applicable to charities in England and Wales requires the tnjstees to prepare financial Statem￿1$ for ead) financ￿1 year v4hich give a true and fair view of the stsle of affairs of the chanty and of the incomiThJ resources and application of resourc£s of the tharity for that year. In prep￿ing these financial siatements, the trustees are requ￿ed to: - select suilable ac(xJunting policies and Ihen apply Ihem consislenlly- - observe the methods and pnnciples in the charib.es SORP,. - make judgements and estimates that are reasonable and pnxjent.. - state whelher apF4ieable accounting slandards have been fol(ywed. subJe(* to any mateiial dep￿ureS di5dosed and explained in Ihe finanaal statements- and - prepare the ￿anUal statements on the going concem basis unless it is inappropriate io presume that the (*arity will continue in operation. The trustees Ére responsible keeping sufficient accounting records that disclose with reasonable accuracy al any twne the financial posrtion of the charity and enable them to ensure that the financial statements comply wrth the Charities Ad 2011, the Chanty (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding the assels of the charity aThJ hance for taking reasonable steps for th8 prevention and detection of fraud and olher irregulafities. GRACE KELLY CHILDHOOD CANCER TRUST INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF GRACE KELLY CHILDHOOD CANCER TRUST I repC￿ to Ihe trustees <)n my examinati￿ of the finan(xal slatements of Graco Kelly Childhood Cancer Trust (the charity) for the year ended 30 June 2024, Re8pon8ibilitie8 and basls of report As the trustees of the charity you are re8pon¥ble for Ihe preparation of the financial statements in aw)rdance with the requirements of the Charities Act 2011. I report In respeet of my examlnalion of the charitys finanelal statements carried out under sedlon 14S of the Charities Act 2011. In carrwng out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of Ihe Chaiiknes Act 2011. Independent examinefg statement Since the d￿rIty'S gross income exceeded £250.000 yow examiner trnst be a menknr of a body &sted in section 145 of the 2011 Act. I confirffl that l am qualified to undertake Ihe examinatN)n because l am a member of The Institute of Chartered Acojuntants in E￿jIand and Vdaes. whth is C￿e of the Itsted bodies. I have coryleted my examination. l C￿rIrM that M mattws have come to my attentscm in cOn￿lon with the examination gilryng me cause to believe that in any material respect.. accounling reccyds were not k8pt in respect of the charity as requir8d by section 130 of the Charlties Act 2011. the financial statements do not ac￿)rd wilh those records.. or the f￿an(la1 statements do not comply with the appliGable requirements conceming the form and content of ffinancial statements set out in the Charities (Aecounls and Rèports) Regulations 2008 other than any requirement Ihal the financial 5talemenls give a Irue and fair view. whKh is not a matler considered as part of an independent exanNnation. I have no concems and have cc¥ne across no olher matters in connection with the examinath'on to which attention Should be dra￿ in this report in order to enable a proper understanding of Ihe financial 51atemen15 to be reached. Sardh J. Morley ACA Kendall Wadley LLP Granta Lodge 71 Graham Road Mafvem brcestershlre Vfi14 2JS Dated; 1 S January 2025 GRACE KELLY CHILDHOOD CANCER TRUST STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 30 JUNE 2024 Currènt flnanelal year Unrèstrlcted Unrestricted fund fund¥ general deslgnated 2024 2024 Restrlcted funds Totsl Total 2024 2024 2023 Noi0¥ Ineome and endowments from: Donations and legacies {￿her Irading adivits'es Investments t)iher income 170.750 3.128 8.153 I￿3.000 1.937 343.133 515,820 3.128 8.153 100.0 739,241 1.262 Tolal Income 282.031 1.937 343.133 627.101 740.503 Expenditure on: Raising funds Charitable aciwitie¥ 1(X),529 149,077 1,148 376,136 101.677 537,078 47,010 357,467 11,863 Total expendiiurn 249,808 11,863 377,284 638,753 404,477 Net incomellexpenditurnl 32,425 (9.926) (34.151) (11,652) 336,02e Transfers between lurKIs 14 (101,656) 112,328 {10.672} Net movèmènt In funds (69,231 > 102,402 (44.823) (11.652) 336.026 R•¢oncili•llon of fundg: F￿)d balances 8t 1 Juty 2023 317.918 616.370 245.$49 1.179.837 843.811 Fund balanc•8 at 30 June 2024 248.687 718.7n 200,726 1.168.185 1.179,837 The sL*ement of finan(aal adivilies indude5 al gains and losse¥ reo)gnised in the year. ￿1 #ic(xne and expenditure derive from continuing aclivities. 10- GRACE KELLY CHILDHOOD CANCER TRUST STATEMENT OF FINANCIAL ACTIVITIES (CONTINUED) INCLUDING INCOMEAND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 30 JUNE 2024 Prlor fln4n¢lal y•ar Unrestrfctod Unrestricted funds fund8 general deslgnated 2023 2023 Restricted funds Tolal 2023 2023 Income and endowments from: Donations and lega¢ie8 Other trading activities 239.578 1.262 256,594 243,069 739,241 1,262 Tolal incom• 240.840 256,594 243,c￿9 740,503 Expendlture on: Raising fvnds Charitable aclibtyties 47,010 151,088 47,010 357,467 206,379 Total expendilure 198,098 3)6.379 404,477 Net Income 42.742 256.594 38.690 336.026 Transfers between funds 14 (104,588) 100.945 3.643 Net movement In funds (61.848) 357.539 40.333 336.028 R•¢onelllailon of fund8: Fund balances at 1 July 2022 379.764 258,831 205.216 843,811 Fund balances at 30 Juno 2023 317,918 616,370 245,549 1,179,837 11 GRACE KELLY CHILDHOOD CANCER TRUST STATEMENT OF FINANCIAL POSITION AS AT30 JUNE 2024 2024 2023 Notss Fixed assets Intangibk assets Property. plant and equitrnnt 15 3.880 8,530 6.263 19,964 12.410 26.227 Current assets Trade and other receivables Cash al bank and in hand 17 11.551 1.149.331 12.075 1.182.771 1.180.882 15,107) 1.194,846 (41.236) Current Ilabllltles 18 Nel currenl assots 1,1S5,775 1,153,610 Total not a88ets 1,168,185 1,179,837 Funds of tho ¢hafity Restricied funds Unrestricted fund5 Designated funds General unrestricted funds 2tx),726 245.549 21 718.772 248,687 618.370 317,918 967,4S9 934.288 1.168.185 1.179.837 The finanaal 5taternents were approved by the Trustees on 15 Januwy 2025 V E Billings Chair of Trustees 12- GRACE KELLY CHILDHOOD CANCER TRUST STATEMEMf OF CASH FLOWS FOR THE YEAR ENDED 30 JUNE 2024 2024 2023 Note8 C•¥h flows from oporatlng actlvltles Cash (absorbed byygenerated from operations (38,042) 394,145 Investlng aclivitles Purchase ol intangible assets Purthase of property. plant and eqilpment In¥6slment income received 1759) (2.792) 8,153 (6,720) (4,247) Net cash genernted frnffll(u8od inl invg8ting actlvltles 4.602 <10,967) Net IdKreaso)finGreas0 in Ga8h and Ga¥h •qulvalents {33.440) 383,178 Cash and cash equivalents at beginning of year 1.182.771 799.593 Ca$h and cash equivalents at end ol year 1,149.331 1,182.771 13- GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2024 Accounting policies Charity infom)atlon Grace Kelly Childhood Cancer Trust is a chaiity registered in England and Wales (charity number: 1167783). The registered address is The Piggery. Cowsden Hall Fami, Cowsden, Upton Snodsbury. Worc¢stershire, R7 4NZ. 1.1 Accounting convonllon The finanoal slalemenls have been prepared in accordance ¥￿th the charity's governing document, the Charities Act 2011. FRS 102 The Financial Reporting Slandard applicable in the UK and Republic ol Ireland. and the Charilies SORP "Accounts"ng and Reportsng by Charities.. Statement of Recommended Prath"ce applicable to Gharitie5 weparing their accounts in arxordance with the Finan(aal Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)". The th8rity 1$ a Pubffie Benefit Ertity as defined by FRS 102. The financial sL3tements have departed from the charit￿ (Accounts and Reports) Reg￿at￿)nS 2008 only to the éxtent required lo provide a true and fair wew. This departure has involb*d following the Slalement ol RerJ)mmended PractrE for Gharities applying FRS 102 ralher than the versTron of the Ststemerbt of Recommended Pra¢aice which is referred to in the Rogulations but which has sinco been withdravm. The financia statements are prepared in sterling. whid) is Ihe fundM)nal currenw of the chariiy, Moneiary 8mounts in Ihese financial slatemenls are rounded to the neafest £. The financial stat8m8nls have been prepared undgr the historlcal cost convention. The wlndpal accounting poli$3e5 adopled are set out bekm. 12 Golng cone•rn At the time of approwng the financial slatements, the twslee5 have a reasonable expedation that the tharity has adequale resources to continue in operational existence for the foreseeable future and that there are no material uncertainties abjut its abilty to continue. Thu5 th8 trustees continue to adopt the going concern ba51S ol ae¢ountiNJ in weparing the Ilnancial ststements. 1.3 Chorftsbl• funds Unrestricted fimds are available use at Ihe dis(xetson of the tnJstee5 in furtherance of their charitable objectivei. De$ignaled fvnds comprise unreslriGted funds that have bpgn set aside by the ITUStee5 lor particular wrposes. The aiffl and use of each designated fund is set out in the Mles to the financial statements. Restrided funds subj'ect to specific condit￿5 by donors or grant￿5 a5 to how they may be used. The puipose$ 8TrJ uses of the re8lrlcted funds are set out in the notes to the finandal ststements. 1A Income Income is recognised when the d)wity18 legaly entill8d to it after any p8rfmance ¢ondilion8 have been mel, the amounts can be measured reliatAy. and it is probable that iTh%me will be received. Cash donalion8 are recognised on roceipt. Other donations are recogni$8d once th8 charfty has been nolilled of the donation, unless perfomiance conditions require deferral of the amount. Income tax recoverable in rglalion to d￿atiOnS rgceived under CA Aid or degds of covenwrt is rocognised at the time of the that1(￿. Legacies a￿ reeognised M feceipt or otheThthse rf the chm has been notifled of an Impendllg dtstrlbulion. the amount is known. and receipt is expeded. If the amount is not knvwn, the legacy is treated as a contingent asset. 14- GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Accounting polici08 (Conllnuod) 1.S Expondilurn Expenditure is recognised once there is a legal or constructive oblgation lo transfer economic benefit to third party. it is probable that a transfer of economic benefits will be required in settlement. and the amount of the obligation Can be measured reliabty. Expenditure Is dassified by aGliwty. Th6 I￿1$ of eath actlwty 8fe made up of the to181 of direct costs and shared costs. including support costs Invo￿ed in undèrta￿'ng each actiwty. Direct costs allributsble to a single aGtivity are allocated directly lo that aGti¥ity. Shared wsls which conlribule lo more than one adivily and support costs which are nol attributable lo a single actiwty are apportioned between those activities on a basis consistent with the use of resources. Central staff wsts are allocated on the basis of time spenl. and depre(xation tharges are alloGated on the port￿￿ of the assefs use. 1.6 Intsngible fixed asgets other than goodwlll Inlangible assets are recognised at cost and are subsequ* measured at cx>st les5 a￿uMUlated amortisation and accunyjlated impainnenl losses. Amortisation Ss recognised $0 8$ to wrrte off the cost or v21uats.on of assets less their residual values over their useful lives on the following base5'. Computer software over 3 years 1.7 Property. plant and equipment Assets costing £SOO or more are eapiatlised. Tangible fixed assets aro Inltially measured at Cost and sthsequenty measu￿￿ at c4st or valualion, net of depreciation and any impaimenl losses. Deprecialion is re¢A)gnised so a510 vKite (rff the cosl or Valuati￿ ol assets less thelr resKlual valugs Qvgr Ihw Useful lives on the followin9 bases.. Plant and equlpment Fixtures and r￿ing$ Computers 0￿r 2-3 years over 3 years over 3 years The gain 01 loss arising on the disp)sal of an asset is determined as the differenGe be￿een the sale prc￿ed8 and th8 ￿rryIng value of the assel. and is re¢ognised in the Statem￿71 of financial a￿v￿leS. 1.8 Impalrnwnt of nan4urrent assets Al eath feportirvJ end dale, the charity review5 the carying amounts of its tangible and inlangible assets 10 delerniine whether there is any indication that those assets have suffered an impairnient loss. If any such Indi￿110n exists, the recoverable amount of the asset is estimated in order to detemiine the extent of the Impairmgnt108s (if any). 1.9 Cash and eash equlvalents Cash and ￿5h equivalent5 in(aude cash in h￿d. depostls hekl at cal with banks and other short-term liquld h)veslmenls with ¢yignal m8turli8$ of three months or less. 1.10 Financial in$trumgnts The charity onty has financial assets and finanaal liabilities ol a kind that qualfy as basic financial instruments. Basic financial inslrumenis awe initially recogTh8ed at tr￿Sa￿1)n valu8 and 8ub8equently measured al the¥ settlement value. 15- GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Accounting policies (Continuod) 1.11 Debtorn Trade and olher debtors are recognised al th￿r settlement va￿. Prepayments are valued at the amounts prepaid. 1.12 Liabilities Liabilities are recognised when Ih8re is an obligation al the Balance sheet date as a ￿$l$ll of a pasl event. it 1$ probable that a transfer of ecA)nomic benefits will be required in settlement and the amount of Ihe settlement an be estimated reliabty. Liabilities are recognised al the amount that the ¢*arily antiapates il will pay to Sett￿ the debt or the amount is has received as advanced payments the goods or servKes it must provide. 1.13 Employoo ￿nefits The cost of any unused holiday entitlement is recognised in the period in whith the empk)yee's 5eThices are recelved. Terminalion beneffts are recognised irnmeqliatoly as an 8xp8n8e when tho chwity 18 demonstrably committed to tennin8te the employmenl of 8n emtAoyee ￿ lo provide termination benefils. 1.14 Rellrement beneffts Payments to defined contritxrtion retirement benefit sdiemes are charged as an expense as they fall du8. CTIIIGal accounllng esllmates and Judgements In Ihe application of the charity's acc￿ntIng poliues. the trustees are required to make judgements, estimates and assumplions abrxrt Ihe c￿￿ng amount of assets and liabilities that are not readily apparent from other sources. The estim8les and assoc4ated assumptions are based on historical experience and other factors Ihat are ￿)nSIdered lo be relevant. Actual results may differ from these eslimales. The eslimales and underlying a55umplions are reviewed on an ongoing basis. Revision$ to accounting estimates ale recognised in the period in which the estimate is revised where the revis•on affects only thal P￿10d. or li the period of the revi￿On and ftrture F)eriods where the rel￿Sion affects both ¢xrrent and future periods. 18- OoOLDP￿LDOO (OfDO0Nin￿OO a•rf)00- 4np DfDCIOUICI loo0￿C)￿P '%gg=È18 0￿￿(00 IU CJ • C7)5 GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 InGome from other trading actlvltles Unrestricted Unrtsstrlcted funds funds 2024 2023 Shop incomè 3,128 1,262 Income from Invèstm8nts Unrestrleted Unrostrfct6d funds fund5 2024 2023 Interest recwable 8.153 (Xher Ineomè Unrnstrlew Unrnslrfctod lund5 fund5 2024 2023 Relum of grant furKling 100.(X)Q Expendlture on rnlslng funds Unrgstrictsd Rgstrictgd funds lunds 2024 2024 Total Unrestrlcted Regbl¢t•d funds funds 2023 2023 Total 2024 2023 Fundraising and publicty Campaigns *d events sponsorship Printing and stationwy Other lundraislng costs Staff cost5 Depre1>akn￿ and impairment 30.271 2.273 12,883 54.365 30.271 3.071 13.233 54.365 47,010 47.010 737 737 100,529 1,148 101.677 47.010 47.010 18- GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Charilablo a¢llvltlo8 G•o•Thl ￿￿1 lunding tharltalJl• Totsl 2024 G•norn1 Grant fundlng ¢haritsblo tivities Total 2023 2024 2024 2023 2023 Slaff costs Depreciation and Impai￿nent Campaigns and evenl sponsorship Hospitsl cosls Provi6ion for medical treatment Equipmenl and resources Pnnting and slalionery Stsff travel expenses 136,381 136.381 91,348 91.348 16,631 16.631 19,829 19.829 336 4,638 2,575 4,638 2.575 11,9)0 11,014 11,014 19.502 4.801 19.502 4.801 12,453 13.290 5.910 12,453 13,290 5,910 4.427 8,976 4.427 8,976 Rent, fates and utilities Other Ch￿TtafrAe expenditure 10,795 10.795 223,413 223.413 161,057 161,057 Grant fun(fing of acttvities (see note 9) 266.210 266,210 111,699 111.899 Share of support costs (see note 10) Share of governanco costs (see note 10) 42,519 42,519 79,611 79,611 4,934 4,934 5.1 5.100 270,866 266,210 537,076 245,788 111.699 357.467 Anatysis by fund Unrestricled fvnds- general Unrestricted funds- Re$tri¢ted funds 60.207 11.863 198.7 88.870 149,077 11.863 376,136 115,992 35,096 151.088 177,340 129.778 76.e4J3 206,379 270.886 266,210 537,076 245,768 111,699 357,467 19- GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 Grants payable Restrictsd Unrostrictod Funds Funds 2024 2024 Total Ro8trict•d Unrnstrictod 2024 Funds Funds 2023 2023 Total 2023 Grants lo institulions13 granls).. Newea511e Universty Nottingham University Binninghaffl Univwsity R&alloc8tion 75.533 75,533 37.013 99.914 24.467 24,487 31,846 37.013 49,957 31,846 49,957 <9LY)) Support grants lo individuals <109 granls) 52.750 53.750 52.136 3.250 55,386 177.340 88,870 286.210 76.603 35.0 111.699 10 Support Cogts Support Govornance costs 2024 Support Governanco costs 2023 staff cosis Other expenses Stsff training Office overt)eads Bank Charges Advertising Legal and professional fees RenL tate5 and utilths 24.3( 3.723 13 17 236 24,31 3.723 13 17 236 467 28,028 16,104 1,780 19,464 198 1,804 28,028 16.104 1.780 19,464 1.804 10.257 10,257 3,5CKI 12.233 12,233 Acxountarw fees 4,934 4,934 5.100 5,100 42,519 4,934 47.453 79.811 5.100 84,711 Analysed belween Charitsble ackn'vities 42,519 4,934 47.453 79.611 5.100 84.711 Governance costs indudes payments to Ihe independent exarr*ner of £3.6tKI (202& £3.6(X)) for accountsr fees. 11 Trustee¥ None of the trustees (or any persons tX&nnected with them) received any rerwnerat#)n or benefits from the ¢harity during ihe year. GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 12 Employ088 The average m￿thlY nwnber of emF4oyees durirKJ the year was: 2024 Number 2023 Number Fundraiskng Charitable AcliNities AdministratK)n Enwloym•nt C￿ts 2024 2023 Wage5 and salafie¥ Social security costs Other pensiw (xjsts 195,489 11.938 7.625 151,271 7,879 7.436 215.052 166.386 There were no employees ￿those annual remuneration wa3 more than £60,000. Remuneratlon of key managernent pernonnel Total remuneration of key management rwsonnel was £48,034 (2023.. £42.319). Ind￿led in wages and salaries are severance payments lots￿Tr9 £14,OCD. 13 Taxatlon The 1$ oxempt frrffj taX8￿n M its adlvkties becwse am its inc£ffie is ap￿.[ed lor (*HriL*)le purposes. 14 Transfer8 A Iransfer 01 £10,672 was made from reslricted lo unrestricted funds lo ￿Present the Value of fixed assets purchased from restricted funding. A transfer of £12.410 was made from unrestsicted to designated funds to set up a designated fixed asset fund lo represent the net book value of tangible and intangibl8 f￿ed as$o18 at the year end. Two transfers of £100,000 ea(* were mado from unrestricted lo designated funds to represent a new Public Hedth Fund and Research Fund. Transfers tolalling £100.082 were made from designated to unrestricted funds rewesenting the utilsalion of Ihree researth d88ignated funds. 21 GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2024 1 S Intanglble flxed assets Compul•r Klftwarn Cost Al 1 July 2023 Addition$ 11,316 759 At 30 June 2024 12,075 Amortisation At 1 July 2023 Amortisation charged fc( the year 5,053 3,142 At 30 June 2024 8,195 Carryyng amount At 30 June 2024 3.880 At 30 Jun8 2023 6.263 16 pro￿rtY, pl•nt and •qulpm•nt Plant and Fixturns and CWrn •quipment fAtiry¥ Total Cost At l July 2023 Add¢lions Disposals 42.188 8,672 59.524 2,792 (142) 2,792 (142) At 30 June 2024 42,188 8,$72 11,314 62.174 DepreGiati¢)n At 1 July 2023 DepreCiat￿n charged in the year Eliminated in rpsped of disposals 32,241 3,565 3.754 3,252 (142) 39,560 14,226 (142) At 30 June 2024 40,571 6,2(YJ 6,864 53,644 Carylng amount At 30 June 2024 1,617 2.463 4.450 8,530 At 30 J￿e 2023 9.947 5.107 4.91Q 19.964 GRACE KELLY CHILDHOOD CANCER TRUST NOTES TO THE FINANCIAL STATEMENTS (CONTINUED FOR THE YEAR ENDED 30 JUNE 2024 17 Trade and other receivab 2024 2023 Amounts falling duo wlthln onè year. Other receivables Prepayments and accn*d Income 1.766 9,785 12,075 11,551 12,075 18 Current Ilabililles 2024 2023 Other taxation and 80(ial se Trade payables Other payables Accruals and deferred incomo 4,710 32.919 714 793 3,600 3,607 5,107 41.236 19 Rellrement benefit scheme$ 2024 2023 Deflned contributlon schemes Charge to profit or105s in respect of defined c(nlribulion sthemes 7.825 7.436 The charity operates a defined contribulion pensM)n stheme for all qualifying employees. The assets of the sd)effle are held 8eparately from those ot Ihe dwity in an Independe￿ admiNstered fimd. -23- %x 1 ID ¢D OJO