Charity registration number 1167783
THE GRACE KELLY CHILDHOOD CANCER TRUST ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2023
THE GRACE KELLY CHILDHOOD CANCER TRUST
LEGAL AND ADMINISTRATIVE INFORMATION
| Trustees | V E Billings BA CIM | |
|---|---|---|
| R Dawson-Jones | ||
| A Kelly | ||
| E John-Featherby | ||
| D Wilkins | (Appointed 15 March 2023) | |
| N Francis | (Appointed 15 March 2023) | |
| Senior management | Dr J Kelly | |
| E L Williams | ||
| Charity number | 1167783 | |
| Principal address | The Piggery | |
| Cowsden Hall Farm | ||
| Cowsden, Upton Snodsbury | ||
| Worcester | ||
| WR7 4NZ | ||
| Independent examiner | Kendall Wadley LLP | |
| Granta Lodge | ||
| 71 Graham Road | ||
| Malvern | ||
| Worcestershire | ||
| WR14 2JS | ||
| Bankers | NatWest | |
| Worcester Cross | ||
| 1 The Cross | ||
| Worcester | ||
| WR1 3PR |
THE GRACE KELLY CHILDHOOD CANCER TRUST
CONTENTS
| Page | |
|---|---|
| Trustees' report | 1 - 7 |
| Statement of trustees' responsibilities | 8 |
| Independent examiner's report | 9 |
| Statement of financial activities | 10 - 11 |
| Statement of financial position | 12 |
| Notes to the financial statements | 13 - 27 |
THE GRACE KELLY CHILDHOOD CANCER TRUST
TRUSTEES' REPORT FOR THE YEAR ENDED 30 JUNE 2023
The trustees present their annual report and financial statements for the year ended 30 June 2023.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the charity's constitution, the Charities Act 2011 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019).
Objectives and activities
As worded in the charity's constitution, the Grace Kelly Childhood Cancer Trust aims to promote and protect good health among children, by raising funds and allocating them to meet its specified objectives which are:
a) Raising awareness of childhood cancers.
b) Providing funds or grants for research into the causes of and treatment of aggressive childhood cancers, including malignant rhabdoid tumours.
c) Provision of discretionary grants to aid the specific treatment of individual cases of childhood cancer when not available within the NHS.
d) Provision of Support for families affected by childhood cancer.
The Trustees confirm that they have referred to and had regard for the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the Trust's aims and objectives and in planning future activities for the charity.
Policy on research grant making
The Grace Kelly Childhood Cancer Trust policy on the awarding of research grants was established to ensure that money raised is used to fund the most useful and beneficial research for childhood cancer.
The aim of the charity is to fund research into better and kinder treatments for children, specifically targeting rare cancers, including rhabdoid tumours, which are currently considered to be under-researched.
The Grace Kelly Trust is proud to be an AMRC registered research charity. This means that we have our own Research Advisory Panel, and we fund all our research through a robust review process involving experts to ensure that we fund only the best research which has been reviewed in detail to make sure it makes the best possible use of our funds.
We have now completed our second independent research funding round and are proud to have collaborated with two other like-minded charities to fund research using the advice of our expert Research Advisory Panel. The Trust strongly believes that collaboration between organisations to fund research that otherwise may not have been funded could be a way towards significant breakthroughs.
Volunteer contribution
The Trust is so grateful for the support that volunteers have given us over the last 12 months. From volunteering at fundraising events, collecting or cleaning collection tins to knitting worry bears for our family support service, our volunteers make a real difference. Thank you so much to everyone that has volunteered for us in any way over the last year.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Achievements and performance
Summary of the main achievements to this year
The trustees are satisfied with the financial position of the charity at the year-end. We have now completed our seventh full year as a registered charity, and we are proud of all that has been achieved during the current unfavourable economic climate. Our income for the year has again exceeded our modest income predictions however, the need for our services has risen again significantly. This is particularly apparent in our family support service where many of our families are struggling financially with the steep rise in living costs. As word of our work has spread, referrals to our service have grown exponentially.
To meet the rising demand, the Trust has expanded further over the last 12 months to become a team of seven members, with an eighth team member due to join us later in the year. Our family support team now has three busy team members led by our newly appointed Family support team lead. It has been wonderful to watch the team expand into the dynamic, supportive and dedicated staff team that we now have today.
Awareness cards
Over the last 12 months, we have dispersed another 450,000 signs and symptoms awareness cards nationally. We continue to reach many parents through the inclusion of our awareness cards into the Personal Child Health Record (red book) pack in many regions of the UK.
Our cards have now reached over 2.5 million families to date. With one child in every 450 receiving a diagnosis of cancer by their 15th birthday, our cards could have reached up to 5,500 families who will have a child who will be diagnosed with cancer in childhood. Armed with the right knowledge, these families are well placed to ensure the best possible outcome for their children by visiting the doctor at the earliest possible stage.
Our regional red flags awareness cards for clinicians are continuing to be used in the teaching and updating of GPs in many surgeries across the UK and Ireland. We have recently worked in partnership with the Institute of Health Visitors (UK) to update the teaching factsheets that we have produced for Health Visitors and an additional factsheet for parents.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Publications
This year, we have rewritten and released four new publications written specifically for the parents of children diagnosed with rhabdoid tumours. To our knowledge, these are the only information booklets available for families affected by this cancer type in the UK.
Until the Grace Kelly Childhood Cancer Trust authored these booklets, there was no information available to give families at this incredibly difficult time. Our resources are medically up-to-date, self-explanatory and aimed to be accessible for the families that need them. They have been written by medics and peer-reviewed by experts in line with our PIF Tick accreditation (which is reassessed annually).
“When my daughter Grace was diagnosed with a rhabdoid tumour, her diagnosis was written down and handed to us on a piece of scrap paper, there was nothing else to give. We are proud to be able to change this for future families so there are simple, truthful and informative booklets ready and waiting at the major treatment centres for childhood cancer nationally. This will make such a difference to these families.” Dr Jen Kelly, GP and author of the booklets
“When our daughter was diagnosed with a rhabdoid tumour, we were given your rhabdoid tumour information booklet. It made such a difference to be given something so simple but informative when we had no idea where we could turn. We found out about the support you could give us and your online support group so we didn’t feel so alone.”
Parent of a child who had a rhabdoid tumour.
Over the last 12 months, a further 9,000 copies of our information booklets and publications have been ordered by both professionals and families across the UK. To date, over 48,000 copies have been dispersed. Further copies have been downloaded digitally nationally and internationally in countries such as the USA, Australia, China and Israel. It is an honour to see how widely the booklets are being used.
“Thank you, your resources look amazing, and I have literally spent hours on your website it is really fantastic full of really useful information.” Dianne Wootten, Hertfordshire Community NHS Trust
Research
Continued research into rare and aggressive childhood cancers is vital to improve survival rates in children. The Trust prioritises research that could potentially have a direct clinical impact or could contribute to altering future treatments (and their monitoring) for children.
During the last charity year, we were pleased to announce a pioneering research collaboration between ourselves and Sarcoma UK to find more effective ways of treating childhood sarcomas. The £100,000 project aims to improve outcomes for children and young people who are diagnosed with sarcoma, a less common cancer that can affect any part of the body on the inside or outside, including the muscle, bone, tendons, blood vessels and fatty tissues. This exciting new research project hopes to change the landscape of how sarcoma is treated in children, focusing on a new type of cancer treatment called immunotherapy.
Unlike other cancer treatments, immunotherapy harnesses the power of the patient’s own immune system to fight and kill cancer cells. The immune system is precise, so it targets only the cancer cells, leaving the patient’s healthy cells unharmed. This also means that side effects may be less pronounced than for other types of cancer treatment. In addition to this exciting new project, we have funded year 2 of the two promising research projects that were commenced last year. The first project was a 3-year project led by Dr Ruhman Rahman at Nottingham University entitled “Recapitulating the post-surgical brain microenvironment of atypical rhabdoid teratoid tumours to identify proteins for targeted therapy.”
The second project was a 3-year project and is led by Dr Daniel Williams at the University of Newcastle and is entitled, “Liquid biopsies and minimal residual disease measurements for the management of Malignant Rhabdoid Tumours and other SMARCB1 mutated tumours,” which was funded in collaboration with like-minded charity LoveOliver.
All three projects show significant potential to make positive steps towards treating rare aggressive cancers such as rhabdoid tumours and sarcomas more effectively.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Support for families
Our family support service at the Trust has now been running for approaching two years. It has grown from informal ad hoc support from our staff team during covid-19 to a team of three support workers.
Demand for our services has grown rapidly due to a large number of new diagnoses because we are now working with local professionals who routinely refer all families (who would like to be seen) to us at diagnosis. Over the last 12 months, our support team has supported 115 families locally, double the number of the previous year. They have had over 4,000 family support contacts and carried out over 550 home and hospital visits across Worcestershire, Herefordshire and Gloucestershire.
Our dedicated support workers provide emotional and practical support, not only for the child with cancer, but for their siblings and parents too. Often talking things through and providing a listening ear is what our families need most of all. Our support workers’ days consist of home visits, visiting children in hospital or at school and running therapeutic support groups. Our support workers liaise closely with the medical teams, schools and other care settings such as hospices to ensure that our families are given as much support as they need during this difficult time.
“The support you have given our family during [my son’s] treatment has meant the world to us.” Parent of a child who received support from the Trust.
Unlike many support services, the Trust has no limit on the length of time we can support a family. Every family is different and has varying needs. As such we are proud to say that we do not discharge families from our service until our families feel ready to do so. They can also self-refer back to us at any time.
Financial and practical support
Every child that is diagnosed receives a new diagnosis support bag and is offered a non-means-tested support grant to help with extra costs that the family will be facing. They also receive support from our family support workers. Later on, if a child sadly relapses or passes away, the family is offered additional financial support. Over the last 12 months, £43,000 of financial support has been given to families.
Thanks to incredible fundraising efforts from our Ladybird Legend Fund, Be More Frank, we have been able to double the size of the support grants we offer and to offer support to all families who have a child diagnosed in Worcestershire, Herefordshire, Gloucestershire, Monmouthshire and Powys. Simply amazing.
In addition, thanks to the fundraising efforts of one of our first Ladybird legend funds, Biff’s Battle, we have been able to double the size of the grants that we offer to families in Devon which has made such a difference to these families given the rising cost of living nationally.
Both Be More Frank and Biff’s Battle are making a palpable difference to so many families in Frank’s and Elizabeth’s memories. Thank you so much to both funds for such hard work and dedication in making a difference to the lives of others.
Rhabdoid support
We have now been running our rhabdoid parents online support group for over five years. It now has over 250 members internationally and helps to provide support to families of children who have rhabdoid and other very rare, aggressive cancers of childhood.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
AV1 Robots for Children with cancer
By giving isolated children a 'window' to their friends and the outside world, our AV1 avatar robots can help them to bridge the gap. They enable children in a hospital bed to interact with their classroom and peers at the same time. Over the last 12 months, another 14 children have benefitted from receiving an AV1 robot, a device that can make such a difference to these children.
This has had a positive impact on the children themselves, their families and their school friends. These children have felt less isolated and have been able to stay connected with their peers whilst spending prolonged periods of time away from the classroom.
An additional 11 children have received tablet devices to enable them to keep in touch with school, to interact with friends and to do schoolwork. Tablet devices give a great deal of comfort to children when they are away from home and unwell.
Financial review
The results for the year are set out in the financial statements commencing on page 6. The financial statements show net incoming resources of £336,026 (2022 net incoming resources of £200,069).
Total reserves at the end of the financial year amounted to £1,179,837 (2022 £843,811).
The charity has reserves which are accounted for under three headings: restricted, designated, and unrestricted (free).
Restricted reserves of £245,549 (2022 £205,216) consist of funds ring-fenced to finance particular projects and cannot be used for any other purpose.
Designated funds are those unrestricted funds that trustees have agreed to set aside for specific purposes.This currently equates to £616,370 (2022 £258,831) in total.
Unrestricted funds of £315,948 (2022 £379,764) represent the balance of the total reserves and can be used at the discretion of the trustees. After making allowances for tangible fixed assets the free reserves of the charity amount to £317,918 (2022 £379,764).
Reserves policy
The Charity undertakes to ensure that an unrestricted contingency reserve of 60% of the previous year's recurrent expenditure is retained to cover periods of reduced income or unexpected costs.
One of the key objectives of the Charity is to be able to help fund relevant research. The time and resources required to conduct meaningful medical research makes projects expensive, and funding in the region of £100,000 is normally the minimum required to complete a distinct package of work. More substantial projects can require significantly more than this and the charity will therefore aim to build its reserves over a period of time to fund appropriate research. For this reason, the charity's reserves may fluctuate depending on the timing of grants, and research grants are excluded from recurrent costs when calculating required reserves.
The trustees are of the opinion that reserves as of 30 June 2023 are in line with this policy
Investment policy summary
A low-risk approach has been taken. The Charity will seek to place surplus cash on deposit to ensure liquidity whilst minimising risk.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Structure, governance and management
The Grace Kelly Childhood Cancer Trust is a registered charity, controlled by its constitution contained in the Trust deeds, dated 7 April 2016. The charity was formed and entered in the register of charities on 22 June 2016 as a Charitable Incorporated Organisation.
The charity was set up in memory of Grace Elizabeth Kelly who passed away in 2014 at the age of 4 after developing a rare form of cancer. The aims of the Grace Kelly Childhood Cancer Trust are to help save the lives of children with cancer by funding much needed research and raising awareness of the signs and symptoms of childhood cancer, working towards earlier diagnosis. We provide emotional, financial and practical support to families in Worcestershire, Gloucestershire, Herefordshire and provide financial support to families in Powys, Monmouthshire and parts of Devon in addition.
Nationally, we support children affected by rhabdoid (and other similar) tumours both financially and through and online support group. We produce information booklets, which are written and reviewed by experts, for families affected by childhood cancer to give them the information they need at the time they need it most.
The Trust is increasinly becoming involved in the education of GPs and other professionals about the signs and symptoms of childhood cancer and providing guidance on how best to support families. We are proud to have been invited into a number of coalitions and working groups with whom we are working to improve the care of children with cancer nationally including the newly formed Tessa Jowel Centre of Excellence for Children.
New trustees are elected and appointed by existing trustees and serve for three years after which they may put themselves forward for reappointment. The constitution provides for a minimum of three trustees up to a maximum of twelve trustees.
At bi-monthly trustee meetings, the trustees agree on the broad strategy and areas of activity for the charity. They take into consideration research grant-making, reserves, risk management policies and charity performance. The day-to-day administration and processing of the charity is delegated to the CEO, the Charity Operations and Fundraising manager, the Family Support Team lead and their administrative team. On 30 June 2023, the Board of Trustees consisted of six members.
The trustees who served during the year and up to the date of signature of the financial statements were: V E Billings BA CIM R Dawson-Jones A Kelly E John-Featherby D Wilkins (Appointed 15 March 2023) N Francis (Appointed 15 March 2023)
Trustees are appointed based on skills required by the charity and ability to commit the necessary time and empathy with the objectives of the charity. The existing trustees comply with the ICSA guide, "Recruitment, Appointment and Induction of Charity Trustees," and brief new trustees on the history of the charity and the powers and responsibility of the trustees.
New trustees are briefed on the content of the Trust's constitution, decision making processes and current financial position of the charity. In addition, we provide a trustee handbook and a copy of the Charity Commission's guidance, 'The essential Trustee: What you need to know." On appointment, new trustees sign a model trustee declaration statement and receive copies of the minutes of the last three trustee meetings and a copy of the Trust's constitution. They are also given access to all charity policies.
Any trustee can resign from office at any time by serving one month's written notice to the other trustees.
Trustees are required to disclose all relevant interests and register them and must withdraw from specific decisions where a conflict of interest arises. Neither the Trust nor the trustees have interests with the pharmaceutical industry; but any such interests would be disclosed should there be a trustee that had an interest in this in the future.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
Pay policy and staff
All salaries are based upon an assessment of the employment market, the skill levels required, the size of the charity and the salary levels required to obtain the services of appropriate staff.
Principal risks and uncertainties
The trustees have considered the major risks to which the charity is exposed and have ensured systems and procedures are in place to manage these risks. Our major operational risk is the extent to which the research grants awarded successfully advance the knowledge and practice to the benefit of children suffering from rare solid tissue tumours. The trustees manage this risk by collaborating with specialist, accredited committees and charities to ensure that grant applications are properly scrutinised, as well as retaining trustees and staff with sufficient medical knowledge to understand applications. These measures ensure that funding is provided to the most appropriate research projects, although the nature of medical research means that this risk cannot be eliminated.
The charity has in place several policies aimed at managing the other risks the charity faces. These include financial policies, employment policies and policies in relation to the awarding of other grants by the charity.
The trustees' report was approved by the Board of Trustees.
V E Billings BA CIM Chair of Trustees
17 January 2024
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THE GRACE KELLY CHILDHOOD CANCER TRUST
STATEMENT OF TRUSTEES' RESPONSIBILITIES
FOR THE YEAR ENDED 30 JUNE 2023
The trustees are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
The law applicable to charities in England and Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources of the charity for that year.
In preparing these financial statements, the trustees are required to:
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select suitable accounting policies and then apply them consistently;
-
observe the methods and principles in the Charities SORP;
-
make judgements and estimates that are reasonable and prudent;
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state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; and
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prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping sufficient accounting records that disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
INDEPENDENT EXAMINER'S REPORT
TO THE TRUSTEES OF THE GRACE KELLY CHILDHOOD CANCER TRUST
I report to the trustees on my examination of the financial statements of The Grace Kelly Childhood Cancer Trust (the charity) for the year ended 30 June 2023.
Responsibilities and basis of report
As the trustees of the charity you are responsible for the preparation of the financial statements in accordance with the requirements of the Charities Act 2011 (the 2011 Act).
I report in respect of my examination of the charity’s financial statements carried out under section 145 of the 2011 Act. In carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiner's statement
Since the charity’s gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. I confirm that I am qualified to undertake the examination because I am a member of The Institute of Chartered Accountants in England and Wales, which is one of the listed bodies.
Your attention is drawn to the fact that the charity has prepared financial statements in accordance with Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) in preference to the Accounting and Reporting by Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has now been withdrawn.
I understand that this has been done in order for financial statements to provide a true and fair view in accordance with Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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1 accounting records were not kept in respect of the charity as required by section 130 of the 2011 Act; or
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2 the financial statements do not accord with those records; or
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3 the financial statements do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
Sarah J. Morley ACA
Kendall Wadley LLP
Granta Lodge 71 Graham Road Malvern Worcestershire WR14 2JS
Dated: 17 January 2024
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THE GRACE KELLY CHILDHOOD CANCER TRUST
STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 30 JUNE 2023
| Current financial year Unrestricted Unrestricted Restricted funds funds funds general designated 2023 2023 2023 Notes £ £ £ Income from: Donations and legacies 3 239,578 256,594 243,069 Other trading activities 4 1,262 - - Total income 240,840 256,594 243,069 Expenditure on: Raising funds 5 47,010 - - Charitable activities 6 151,088 - 206,379 Total expenditure 198,098 - 206,379 Net incoming resources before transfers 42,742 256,594 36,690 Gross transfers between funds (104,588) 100,945 3,643 Net (expenditure)/income for the year/ Net movement in funds (61,846) 357,539 40,333 Fund balances at 1 July 2022 379,764 258,831 205,216 Fund balances at 30 June 2023 317,918 616,370 245,549 |
Total 2023 £ 739,241 1,262 740,503 47,010 357,467 404,477 336,026 - 336,026 843,811 1,179,837 |
Total 2022 £ 490,832 8,985 |
|---|---|---|
| 499,817 | ||
| 38,304 | ||
| 261,444 | ||
| 299,748 | ||
| 200,069 - |
||
| 200,069 643,742 |
||
| 843,811 |
The statement of financial activities includes all gains and losses recognised in the year.
All income and expenditure derive from continuing activities.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
STATEMENT OF FINANCIAL ACTIVITIES (CONTINUED) INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 30 JUNE 2023
Prior financial year
| Unrestricted Unrestricted Restricted funds funds funds general designated 2022 2022 2022 Notes £ £ £ Income from: Donations and legacies 3 220,349 - 270,483 Other trading activities 4 8,985 - - Total income 229,334 - 270,483 Expenditure on: Raising funds 5 38,304 - - Charitable activities 6 86,520 - 174,924 Total expenditure 124,824 - 174,924 Net incoming resources before transfers 104,510 - 95,559 Gross transfers between funds 11,428 - (11,428) Net (expenditure)/income for the year/ Net movement in funds 115,938 - 84,131 Fund balances at 1 July 2021 263,826 258,831 121,085 Fund balances at 30 June 2022 379,764 258,831 205,216 |
Total 2022 £ 490,832 8,985 |
|---|---|
| 499,817 | |
| 38,304 | |
| 261,444 | |
| 299,748 | |
| 200,069 - |
|
| 200,069 643,742 |
|
| 843,811 |
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THE GRACE KELLY CHILDHOOD CANCER TRUST
STATEMENT OF FINANCIAL POSITION
AS AT 30 JUNE 2023
| Notes Fixed assets Intangible assets 12 Property, plant and equipment 13 Current assets Trade and other receivables 14 Cash at bank and in hand Current liabilities 15 Net current assets Total assets less current liabilities Income funds Restricted funds 16 Unrestricted funds-general Designated funds 17 General unrestricted funds |
2023 £ £ 6,263 19,964 26,227 12,075 1,182,771 1,194,846 (41,236) 1,153,610 1,179,837 245,549 616,370 317,917 934,288 1,179,837 |
2022 £ £ 2,194 32,895 35,089 17,220 799,593 816,813 (8,091) 808,722 843,811 205,216 258,831 379,764 638,595 843,811 |
2022 £ £ 2,194 32,895 35,089 17,220 799,593 816,813 (8,091) 808,722 843,811 205,216 258,831 379,764 638,595 843,811 |
|---|---|---|---|
| 35,089 808,722 |
|||
| 843,811 | |||
| 205,216 638,595 |
|||
| 843,811 |
The financial statements were approved by the Trustees on 17 January 2024
V E Billings BA CIM Trustee
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THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2023
1 Accounting policies
Charity information
The Grace Kelly Childhood Cancer Trust is charitable incorporated organisation registered in England and Wales. The registered address is The Piggery, Cowsden Hall Farm, Cowsden, Upton Snodsbury, Worcestershire, WR7 4NZ.
1.1 Accounting convention
The financial statements have been prepared in accordance with the charity's [governing document], the Charities Act 2011, FRS 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland” (“FRS 102”) and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019). The charity is a Public Benefit Entity as defined by FRS 102.
The financial statements have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a true and fair view. This departure has involved following the Statement of Recommended Practice for charities applying FRS 102 rather than the version of the Statement of Recommended Practice which is referred to in the Regulations but which has since been withdrawn.
The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.
The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.
1.2 Going concern
At the time of approving the financial statements, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements.
1.3 Charitable funds
Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives.
Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.
Endowment funds are subject to specific conditions by donors that the capital must be maintained by the charity.
1.4 Income
Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.
Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.
Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
1 Accounting policies
(Continued)
1.5 Expenditure
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.
Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.
1.6 Intangible fixed assets other than goodwill
Intangible assets acquired separately from a business are recognised at cost and are subsequently measured at cost less accumulated amortisation and accumulated impairment losses.
Intangible assets acquired on business combinations are recognised separately from goodwill at the acquisition date where it is probable that the expected future economic benefits that are attributable to the asset will flow to the entity and the fair value of the asset can be measured reliably; the intangible asset arises from contractual or other legal rights; and the intangible asset is separable from the entity.
Amortisation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the following bases:
Computer software over 3 years
1.7 Property, plant and equipment
Property, plant and equipment are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses.
Depreciation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the following bases:
Plant and equipment over 2-3 years Fixtures and fittings over 3 years Computers over 3 years
The gain or loss arising on the disposal of an asset is determined as the difference between the sale proceeds and the carrying value of the asset, and is recognised in the statement of financial activities.
1.8 Impairment of non-current assets
At each reporting end date, the charity reviews the carrying amounts of its tangible and intangible assets to determine whether there is any indication that those assets have suffered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of the impairment loss (if any).
1.9 Cash and cash equivalents
Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
1 Accounting policies
(Continued)
1.10 Financial instruments
The charity has elected to apply the provisions of Section 11 ‘Basic Financial Instruments’ and Section 12 ‘Other Financial Instruments Issues’ of FRS 102 to all of its financial instruments.
Financial instruments are recognised in the charity's balance sheet when the charity becomes party to the contractual provisions of the instrument.
Financial assets and liabilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.
Basic financial assets
Basic financial assets, which include trade and other receivables and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.
Basic financial liabilities
Basic financial liabilities, including trade and other payables and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.
Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.
Trade payables are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade payables are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.
Derecognition of financial liabilities
Financial liabilities are derecognised when the charity’s contractual obligations expire or are discharged or cancelled.
1.11 Employee benefits
The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.
Termination benefits are recognised immediately as an expense when the charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits.
1.12 Retirement benefits
Payments to defined contribution retirement benefit schemes are charged as an expense as they fall due.
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THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
2 Critical accounting estimates and judgements
In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.
The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.
- 16 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
3 Donations and legacies
| Unrestricted Unrestricted Restricted funds funds funds general designated 2023 2023 2023 £ £ £ Donations and gifts 223,594 251,594 87,358 Grants 15,984 5,000 155,711 239,578 256,594 243,069 |
Total Unrestricted Restricted funds funds general 2023 2022 2022 £ £ £ 562,546 220,349 225,514 176,695 - 44,969 739,241 220,349 270,483 |
Total 2022 £ 445,863 44,969 |
|---|---|---|
| 490,832 |
- 17 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
4 Other trading activities
| **Unrestricted ** | Unrestricted | |
|---|---|---|
| funds | funds | |
| general | general | |
| 2023 | 2022 | |
| £ | £ | |
| Shop income | 1,262 | 8,985 |
| Raising funds | ||
| **Unrestricted ** | Unrestricted | |
| funds | funds | |
| general | general | |
| 2023 | 2022 | |
| £ | £ | |
| Fundraising and publicity | ||
| Staff costs | 47,010 | 38,304 |
| 47,010 | 38,304 |
5 Raising funds
- 18 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 30 JUNE 2023
6 Charitable activities
| Restricted Funds Unrestricted Funds 2023 2023 £ £ Staff costs 91,348 - Depreciation and impairment 19,827 - COVID -19 support for families 4,640 - Hospital costs 2,575 - Provision for medical treatment 11,014 - Equipment and resources 12,453 - Printing and stationery 13,290 - Staff travel expenses 5,910 - 161,057 - Grant funding of activities (see note 7) - 111,699 Share of support costs (see note 8) 79,611 - Share of governance costs (see note 8) 5,100 - 245,768 111,699 Analysis by fund Unrestricted funds - general 115,992 35,096 Restricted funds 129,776 76,603 245,768 111,699 |
Total 2023 Restricted Funds Unrestricted Funds 2022 2022 £ £ £ 91,348 41,211 - 19,827 16,026 - 4,640 8,384 - 2,575 6,761 - 11,014 10,324 - 12,453 - - 13,290 - - 5,910 - - 161,057 82,706 - 111,699 - 97,653 79,611 76,724 - 5,100 4,361 - 357,467 163,791 97,653 151,088 65,004 21,516 206,379 98,787 76,137 357,467 163,791 97,653 |
Total 2022 £ 41,211 16,026 8,384 6,761 10,324 - - - |
|---|---|---|
| 82,706 97,653 76,724 4,361 |
||
| 261,444 | ||
| 86,520 174,924 |
||
| 261,444 |
7 Grants payable
| Restricted Funds Unrestricted Funds 2023 2023 £ £ Grants to institutions (2 grants): Newcastle University 24,467 - Nottingham University - 31,846 Grants to individuals (174 grants) 52,136 3,250 76,603 35,096 |
Total 2023 Unrestricted Funds 2022 £ £ 24,467 - 31,846 - 55,386 97,653 111,699 97,653 |
Total 2023 Unrestricted Funds 2022 £ £ 24,467 - 31,846 - 55,386 97,653 111,699 97,653 |
|---|---|---|
| 97,653 |
- 19 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 30 JUNE 2023
7 Grants payable
(Continued)
8 Support costs
| Support costs Governance costs £ £ Staff costs 28,028 - Other expenses 16,104 - Staff training 1,780 - Office overheads 19,464 - Bank charges 198 - Advertising 1,804 - Bad debt - - Equipment and resources - - Printing and stationery - - Rent, rates and utilities 12,233 - Accountancy fees - 5,100 79,611 5,100 Analysed between Charitable activities 79,611 5,100 |
2023 Support costs Governance costs £ £ £ 28,028 25,000 - 16,104 15,065 - 1,780 2,355 - 19,464 11,878 - 198 271 - 1,804 167 - - 900 - - 8,737 - - 5,052 - 12,233 7,299 - 5,100 - 4,361 84,711 76,724 4,361 84,711 76,724 4,361 |
2022 £ 25,000 15,065 2,355 11,878 271 167 900 8,737 5,052 7,299 4,361 |
|---|---|---|
| 81,085 | ||
| 81,085 |
Governance costs includes payments to the independent examiner of £3,600 (2022- £3,600) for accountancy fees.
9 Trustees
None of the trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.
10 Employees
The average monthly number of employees during the year was:
| 2023 | 2022 | |
|---|---|---|
| Number | Number | |
| Fundraising | 2 | 2 |
| Charitable Activities | 3 | 3 |
| Administration | 1 | 1 |
| Total | 6 | 6 |
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THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
| 10 Employees Employment costs Wages and salaries Social security costs Other pension costs |
(Continued) 2023 2022 £ £ 151,271 96,181 7,679 4,239 7,436 4,095 166,386 104,515 |
(Continued) 2023 2022 £ £ 151,271 96,181 7,679 4,239 7,436 4,095 166,386 104,515 |
|---|---|---|
| 104,515 |
There were no employees whose annual remuneration was more than £60,000.
11 Taxation
The charity is exempt from tax on income and gains falling within section 505 of the Taxes Act 1988 or section 252 of the Taxationof Chargeable Gains Act 1992 to the extent that these are applied to its charitable objects.
12 Intangible fixed assets
| Intangible fixed assets | |
|---|---|
| Computer software | |
| £ | |
| Cost | |
| At 1 July 2022 | 4,596 |
| Additions | 6,720 |
| At 30 June 2023 | 11,316 |
| Amortisation and impairment | |
| At 1 July 2022 | 2,402 |
| Amortisation charged for the year | 2,651 |
| At 30 June 2023 | 5,053 |
| Carrying amount | |
| At 30 June 2023 | 6,263 |
| At 30 June 2022 | 2,194 |
- 21 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 30 JUNE 2023
| 13 Property, plant and equipment Plant and equipment Fixtures and fittings Computers £ £ £ Cost At 1 July 2022 42,188 6,303 6,786 Additions - 2,369 1,878 At 30 June 2023 42,188 8,672 8,664 Depreciation and impairment At 1 July 2022 19,763 1,278 1,342 Depreciation charged in the year 12,478 2,287 2,412 At 30 June 2023 32,241 3,565 3,754 Carrying amount At 30 June 2023 9,947 5,107 4,910 At 30 June 2022 22,426 5,025 5,444 14 Trade and other receivables 2023 Amounts falling due within one year: £ Other receivables - Prepayments and accrued income 12,075 12,075 15 Current liabilities 2023 £ Other taxation and social security 4,710 Trade payables 32,919 Accruals and deferred income 3,607 41,236 |
Total £ 55,277 4,247 |
|---|---|
| 59,524 | |
| 22,383 17,177 |
|
| 39,560 | |
| 19,964 | |
| 32,895 | |
| 2022 £ 95 17,125 |
|
| 17,220 | |
| 2022 £ 4,490 - 3,601 |
|
| 8,091 |
- 22 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
16 Restricted funds
The income funds of the charity include restricted funds comprising the following unexpended balances of donations and grants held on trust for specific purposes:
| Balance at 1 July 2021 r £ Biff's battle 17,551 Molly's Way 12,770 Funds resticted for medical treatment costs 13,019 Greggs AV1 944 The National Lottery Community Fund AV1 55,119 Tesco AV1 11,682 Family support service fund 10,000 Publications - Donations for Ukraine - Be more Frank - Alfie's Fund - Family Support Grants - Information Technology - Joey's Fund - Research - Florence Be more Fab Fund - Kai's Warrior's Fund - 121,085 |
Movement in funds Incoming esources Resources expended £ £ 3,966 (3,750) - (12,770) - - - (666) 44,969 (31,801) - (6,772) 79,140 (48,461) 5,254 (3,983) 1,183 (2,680) 35,372 (6,750) 156 (250) 65,000 (50,727) 10,000 (5,376) 38 (38) 24,467 (900) 863 - 75 - 270,483 (174,924) |
Transfers Balance at 1 July 2022 r £ £ - 17,767 - - (13,019) - - 278 - 68,287 - 4,910 - 40,679 - 1,271 1,497 - - 28,622 94 - - 14,273 - 4,624 - - - 23,567 - 863 - 75 (11,428) 205,216 |
Movement in funds Incoming esources Resources expended £ £ 5,741 (8,795) - - - - - (325) 48,360 (39,564) - (4,109) 46,285 (82,175) - (2,157) - - 77,625 (21,842) - - - (17,500) - (1,195) 50 - 61,226 (24,467) - - 3,782 (4,250) 243,069 (206,379) |
Transfers Balance at 30 June 2023 £ £ - 14,713 - - - - 47 - (47) 77,036 - 801 - 4,789 886 - - - - 84,405 - - 3,227 - - 3,429 - 50 - 60,326 (863) - 393 - 3,643 245,549 |
Transfers Balance at 30 June 2023 £ £ - 14,713 - - - - 47 - (47) 77,036 - 801 - 4,789 886 - - - - 84,405 - - 3,227 - - 3,429 - 50 - 60,326 (863) - 393 - 3,643 245,549 |
|---|---|---|---|---|---|
| 245,549 |
- 23 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED)
FOR THE YEAR ENDED 30 JUNE 2023
16 Restricted funds
(Continued)
Biff's Battle - to provide financial support grants to families in parts of Devon when their child is diagnosed with cancer to help with additional costs they will face. Further grants can be issued if a child relapses or sadly passes away.
Molly's Way - to fund research into finding more specific and gentler treatments for children with cancer.
Funds restricted for medical treatment costs - This individual treatment fund had been held for 5 years and has now been moved into general funds.
AV1 National Lottery Community Fund – AV1 robot devices for children were purchased to help bridge the bed between hospital bed and classroom and to target child and family isolation in different ways. This is an ongoing project to provide these devices to look at other ways of reaching these families.
Tesco AV1 - AV1 robot devices for children were purchased to help bridge the bed between hospital bed and classroom.
Family support service fund - Funds that are restricted for the use of running the family support service and associated costs.
Publications - Funding from the Little Princess Trust to produce new information booklets for children.
Be More Frank to provide financial support grants to families in Herefordshire, Worcestershire, Powys and Monmouthshire when their child is diagnosed with cancer to help with additional costs they will face. Further grants can be issued if a child relapses or sadly passes away.
Family support grants for families - To provide financial support grants to families in the West Midlands when their child is diagnosed with cancer to help with additional costs they will face. Further grants can be issued if a child relapses or sadly passes away.
Information technology – Grant funding for IT equipment and telecommunications to enable efficient mobile working.
Research – Funds from Scottish charity LoveOliver to fund a specific pre agreed research project at Newcastle University.
- 24 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
17 Designated funds
The income funds of the charity include the following designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes:
| Balance at 1 July 2021 r £ Oscar's Fund 258,831 Florence Be more Fab - Dan Williams Research Project - Rhuman Rhaman Research Project - Carmella De Santo Project - 258,831 |
Movement in funds Incoming esources Resources expended £ £ - - - - - - - - - - - - |
Movement in funds Transfers Balance at 1 July 2022 Incoming resources Transfers Balance at 30 June 2023 £ £ £ £ £ - 258,831 100 - 258,931 - - 256,494 863 257,357 - - - 37,169 37,169 - - - 37,013 37,013 - - - 25,900 25,900 - 258,831 256,594 100,945 616,370 |
Movement in funds Transfers Balance at 1 July 2022 Incoming resources Transfers Balance at 30 June 2023 £ £ £ £ £ - 258,831 100 - 258,931 - - 256,494 863 257,357 - - - 37,169 37,169 - - - 37,013 37,013 - - - 25,900 25,900 - 258,831 256,594 100,945 616,370 |
|---|---|---|---|
| 616,370 |
Oscar's fund - individual treatment fund, funds raised for potentially lifesaving treatment for Oscar.
Be More Fab for Florence - individual treatment fund, funds raised to fund potentially lifesaving treatment for Florence.
Other monies have been set aside for specific research costs.
- 25 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
18 Analysis of net assets between funds
| Analysis of net assets between funds | ||
|---|---|---|
| Unrestricted funds Designated funds Restricted funds 2023 2023 2023 £ £ £ Fund balances at 30 June 2023 are represented by: Intangible fixed assets - - 6,263 Property, plant and equipment 1,970 - 17,994 Current assets/(liabilities) 315,948 616,370 221,292 317,918 616,370 245,549 |
Total Unrestricted funds Designated funds Restricted funds 2023 2022 2022 2022 £ £ £ £ 6,263 - - 2,194 19,964 - - 32,895 1,153,610 379,764 258,831 170,127 1,179,837 379,764 258,831 205,216 |
Total 2022 £ 2,194 32,895 808,722 |
| 843,811 |
- 26 -
THE GRACE KELLY CHILDHOOD CANCER TRUST
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 30 JUNE 2023
19 Related party transactions
Remuneration of key management personnel
The key management personnel of the Charity comprise the Trustees (who did not receive remuneration for their role as Trustees) and the Director as listed on Page 1. The total amount of employee benefits (including employer pension contributions and employer national insurance contributions) received by key management personnel for their services to the Charity was £40,684 (2022 - £35,941).
The Charity has not entered into any related party transaction during the year, nor are there any outstanding balances owing between related parties and the Charity at 30 June 2023 (2022 none)
- 27 -