# LAM ACTION

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1167610
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 10, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1167610


## Contact

- **Address:** 6 Brun Crescent, CLITHEROE, Lancashire
- **Postcode:** BB7 2FJ
- **Phone:** 07710 527636
- **Email:** finance@office.lamaction.org
- **Website:** http://lamaction.org



## Activities

**Objects:** 1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS (&quot;LAM&quot;) AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.

**Activities:** LAM Action?s main objectives are to: provide support and information for those with lymphangioleiomyomatosis (?LAM?) and their families; support research which furthers understanding of LAM; increase awareness amongst health professionals about LAM and promulgate good clinical practice for its management; and share research, clinical and patient support experience in the UK and overseas.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Adam James Davidson |  | Nov. 1, 2023 |
| Alison Hilary Bronwen Merritt-Collins |  | Nov. 26, 2018 |
| Clare Elizabeth Lyon |  | Feb. 8, 2025 |
| DAVID ARTHUR MERCER |  | June 10, 2016 |
| GILLIAN ELIZABETH HOLLIS |  | June 10, 2016 |
| JOHN DAVID WOOD |  | June 10, 2016 |
| Joanne Patra Pisani |  | Nov. 4, 2019 |
| KELLY VANCE |  | June 10, 2016 |
| PROFESSOR SIMON RICHARD JOHNSON |  | June 10, 2016 |
| SARAH LOUISE SHARPLES |  | June 10, 2016 |
| Stephanie Jane Evans |  | Oct. 15, 2025 |




