# LAM ACTION

## Details

- **Country:** England & Wales
- **Charity number:** 1167610
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 10, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1167610


## Contact

- **Address:** 6 Brun Crescent, CLITHEROE, Lancashire
- **Postcode:** BB7 2FJ
- **Phone:** 07710 527636
- **Email:** finance@office.lamaction.org
- **Website:** http://lamaction.org



## Activities

**Objects:** 1) TO PROVIDE SUPPORT AND INFORMATION FOR THOSE WITH LYMPHANGIOLEIOMYOMATOSIS ("LAM") AND THEIR FAMILIES; 2) TO SUPPORT RESEARCH WHICH FURTHERS UNDERSTANDING OF LAM, INCLUDING THE CAUSE OF LAM AND POTENTIAL TREATMENT FOR LAM IN ACCORDANCEWITH REGULATORY REQUIREMENTS; 3) TO INCREASE AWARENESS AMONGST HEALTH PROFESSIONALS ABOUT HOW LAM PRESENTS AND WHERE SUPPORT FOR THOSE DIAGNOSED WITH THE DISEASE CAN BE OBTAINED, AND TO PROMULGATE GOOD CLINICAL PRACTICE FOR THE MANAGEMENT OF LAM AMONGST HEALTH PROFESSIONALS; 4) TO SHARE RESEARCH, CLINICAL AND PATIENT SUPPORT EXPERIENCE WITH OTHER MEDICAL, PATIENT AND RESEARCH GROUPS IN THE UK AND OVERSEAS.

**Activities:** LAM Action?s main objectives are to: provide support and information for those with lymphangioleiomyomatosis (?LAM?) and their families; support research which furthers understanding of LAM; increase awareness amongst health professionals about LAM and promulgate good clinical practice for its management; and share research, clinical and patient support experience in the UK and overseas.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £89392 | £57816 | — | — |
| Dec. 31, 2023 | £102582 | £63955 | — | — |
| Dec. 31, 2022 | £65464 | £69970 | — | — |
| Dec. 31, 2021 | £44647 | £64884 | — | — |
| Dec. 31, 2020 | £88765 | £64930 | — | — |



## Trustees

- Adam James Davidson — appointed Nov. 1, 2023
- Alison Hilary Bronwen Merritt-Collins — appointed Nov. 26, 2018
- Clare Elizabeth Lyon — appointed Feb. 8, 2025
- DAVID ARTHUR MERCER — appointed June 10, 2016
- GILLIAN ELIZABETH HOLLIS — appointed June 10, 2016
- JOHN DAVID WOOD — appointed June 10, 2016
- Joanne Patra Pisani — appointed Nov. 4, 2019
- KELLY VANCE — appointed June 10, 2016
- PROFESSOR SIMON RICHARD JOHNSON — appointed June 10, 2016
- SARAH LOUISE SHARPLES — appointed June 10, 2016
- Stephanie Jane Evans — appointed Oct. 15, 2025