Charity Registration No. 1166531 PARKINSONS.ME ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2024 4 Parkinsons.Me PARKINSONS.ME LEGAL AND ADMINISTRATIVE INFORMATION Trustees Nomian Telford (resigned as Chair 31 March 2024) Ruth Bachelor Rosie Chadwick Peter Cook Martin COV￿11 (resigned 31 De￿mber 2024) Gary Strickland Charity number 1166531 Address of prlnclpal office Parkinsons.Me clo 21 The Old Pound Wootton ABINGDON Oxfordshire OX13 6BQ PARKINSONS.ME CONTENTS Page Trustees, report ststement of financial actrvities Statement of financial position Notes to the accounts 10 PARKINSONS.ME TRUSTEES. REPOR T FOR THE YEAR ENDED 30 APRIL 2024 The trustees present their report and accounts for the year ended 30 April 2024. The accounts have been prepared in accordan￿ wtth the accounting policies set out in note 1 to the ac¢ounts and compty with the chanvs constitution, the Charities Act 2011 and 'Accounting and Reporting by Charities.. Statement of Recommended Practice applicable to charities p￿paring their accounts in accordan￿ with the Financial Repothng Standard applicable in the UK and Republic of Ireland (FRS102)' (as amended for accounting periods commencing from 1 January 2016). About Parkinsons.me Pathinsons.Me was founded in 2016 by Ewan and Tracey Stutt following Ewan's diagnosis with Parkinson's at the age of 41. Ewan and Tracey recognised that when someone is diagnosed the focus (understandabty) is on the person wtth the diagnosis, but in reality the impact is much whler. Family members value help and support to navigate challenges and establish a 'new nomial,. Communty support also goes a long way, and all of us friends, neighbours, employers - can play our part, helped by a better understanding of the condition. Reflecting this. Parkinsons.Me exists to provide support, advice and information to help people with Parkinson's and those closest to them manage their daily lives in the most positive way possible. Our formal 'charitable objects, _ the aims guiding our activities - are set out below. The trustees have paid due regard to the Charty Commission's guidance on public benefit in carrying out their duties and Iwking at how best to fulfil these objects. Our charitable objects: To promote good health and wellbeing for the public benefft in particular but not exclusive￿ by= educating and offering support to people with Parkinson's raising awareness of the condttion providing practical infomiation and resources to people with Parkinson's and their families following up on and reporting on the latest research with regard to diagnosis, prevention and treatment (infomiing the public on the useful results of such research). PARKINSONS.ME Our key activities and achievements The year saw the further developrrEnt of established a¢tivities- our community garden, Moveme exercise classes and linked Moveme Mates group, regular coffee mornings and Hearme counselling offer together with an increase in awareness raising, outreach and partnership development. Parkinsons.Me community garden Our community garden continued to flourish thanks to tireiess and creative leadership from trustee Gary Strickland. aided by a team of volunteers. Key physical enhancements through the year included installation of a composting toilet, made possible by a generous donation of £1.000 from local councillor Sally Povolotsky., construction and planting of a gravel garden,. creation of a mini orchard and a rose bed planted up with eight specialist roses. The following local companies provided support through their corporate charty volunteering initiative-. Taylor Francis, Richardo, Millar Cameron. The charity also benefitted from a donation of gravel for the gravel garden and from a set of lightr*veight gardening tools donated by the company Wilkinson Sword. A team of four volunteers helped to maintain the garden on a regular basis. The team supported three Duke of Edinburgh students during the year, enabling the students to develop horticulture skills and other lrfe skills such as following instwGtions. planning and problem solving. The charty ran a second green therapy course in conjunction with a local GP, securing funding for further 'gardening on prescription, courses in 2024-25. Another highlight of the yearwas the annual summer party, hosted at the garden in July 2023. This was well attended by the Pathinsons.Me community. friends, and individuals that had attended the gardening on prescription course. Quotes left on the graffiti board in the garden highlight the many dtfferent benefits that people gain from coming to the garden, as these examples illustrate. Class place with a great message We loved painting. I hope you enjoy the colourful bench W8 came again, had great fun being the umpire This place is amazing. Thank you. It is really nice here and very calming. Thank you It is so relaxing and Calming We've had the best day in such a beautiful and unique place. Thank you so much. Wow! What a great place to come aGross. Amazing. We love coming here to the 'SpeGial Garden, PARKINSONS.ME Moveme The year saw the fifth anniversary of Moveme exercise classes. We held forty-three dasses across the year, alternating be￿een fa￿-tO-faCe classes and sessions over zoom. Fourteen new members joined during the year. With Ihirty-seven members registered in all, managing the take-up of places so that everyone who wished to could take part was a regular preoccupation. Feedback received over the year by physios Jo and Sherene underlines the benefts members gain from tsking part". I want to thank you for all of the sessions you've done this year, they have been very helpful and also enjoyable. Can I say a big thank you for all your efforts on our behalf over the last year......it really makes a big difference to our quality of life. I LOVE your class I do find your classes fvn and very helpful. Thank YOU Jo - and most of all foryour caring and smiling, upbeat leadership of Move. Me. That is hugely appreciated by us all. Thank you so muGh foryour wonderful sessions. The charity continued ts support got a second Moveme class. in Caversham. Momentum at this class built slowly but steadily through the year, though the 'companion' Movememates group continued to be harder to develop. Movememates The original 'MoveMeMates' _ partners, drivers, family members and carers of Moveme class members - met regularly through the year in parallel with in-person Moveme classes. The group continues to be h￿hlY valued as a COnf￿entIal Spa￿ where people can speak freely, be guided to sources of further information and help. chat with people in similar positions, laugh and enjoy each others, company over coffee and cake. Having a partner in the exercise class is not compulsory.. during the year the trustees agreed that, where appropriate, the charity would cover the cost of carer support to enable partners of people with Parkinson's to take part in Movememates. Hearme The charty continued to receive a small number of requests from people with Parkinson's or family members to take up our offer of counselling sessions, with five individuals supported through the year (￿0 ongoing and three new people within the year) and other enqUIr￿S responded to. One of those supported had Parkinson's, while four were relatives of people with Parkinson's. Our hope is thal take-up will increase as awareness of the seprfice grows, since feedback suggests that this support can be invaluable. PARKINSONS.ME Coffeeme Coffee Me, our informal monthly coffee gathering where peop￿ affected by Parkinson's, their friends and family members can spend social time together, went from strength to strength during the year, with attendance approaching thirty in peak months. Those attending describe being helped by being able to 'meet up locally with lovely people who are also in the same posrtion as us., As this person put it: 'We look forward to these catch ups every monthl Sharing similar experiences and helping with useful tips how to live with Pathinson's and manage symptoms is a great benefit for us all. Communications The year saw a step change in awareness raising and partnership development, supported by production of new marketing materials and work on website development. Four newsletters were sent to our database, successfulty engaging with our existing network of 'friends' and supporters. Contacts made with 76 care homes and 62 medical ￿ntreS across Oxfordshire resulted in 3 key care homes expressing interest in collaborating with Parkinsons.Me. Meetings were also held with the Chair of Oxfordshire County Council and with the local MP, paving the way for future collaborations and support. In May 2023 the charty hosted a Care and Share event in conjunction with Parky Pals and Home Instead charities. Nearty 40 attendees. a number of whom were new to Parkinsons.Me, attended the event which featured a range of presentations on topics such as exercise, diet and constipation, Parkinson UK'S First Steps programme and the offers of the charities involved. Feedback on the event was very positive. with suggestions that it might be repeated. The year saw signÈficant growth across all communications channels with Fa￿book followers up 90h to 9,289., Instagram followers up 390/0 to 2,081- website visits up 240 to 2,215" a new p￿sence estsblished on Linkedln and a 200h increase in email subscribers. These connections and developments are crucial as we work to expand our impact and support those affected by Parkinson's in Oxfordshire and beyond. Fundraising We continued to benefit from many acts of generosity, including some substantial donations, for which we are extremely grateful. Additional fundraising activities, many led by our Communications Officer Justine Nunn. resulted in Parkinsons.Me securing grants from TRUCK, the Hospital Fund. OCVAJthe Connected Communities Fund, the Co-op and Wallingford Dog Show. PARKINSONS.ME Other Finally, the year saw innovative work by former Parkinsons.Me chair Mike Ayre to design an insert for a mug aimed at helping people with Parkinson's manage hot drinks safely and work by volunteer John Govans to explore the potential of a bow15 group. Costs of prototyping the mug have so far proved prohibitive, but we hope this imaginative work will bear fruit in the future. With funding now secured for bowls equipment we hope this further exercise opportunty can shortly be put in place. Looking ahead In the year ahead we intend to continue with awareness raising and partnership development so that all those who can benefft from support know about the help on offer. Other plans involve= further developing the garden, including delivering two gardening on prescription courses supporting the continuing development of Moveme and Moveme Mates, including in Caversham increasing take up of Hear Me introducing bowling. Efforts are underway to recruit new trustees, including a replacement for our interiim Chair who stepped down in March 2024. We will be continuing these efforts in 2024-25. We will also be maintaining our emphasis on fundraising, both to sustain our current projects and to develop new models of support to benefit people living wtth Parkinson's and their families. Structure, governance and management Parkinsons.Me is a charitable incorporated organisation registered with the Charity Commission for England and Wales on 14 April 2016. Our Board of Trustees met eKJht times in 2023-24. TTUStees are identffied through a mix of open adverbsing and targeted approaches. During the reporting period half of our trustees had personal experience of Parkinson's, either themselves or through a member of their family, bringing first hand insKJhts into our deliberations. The Board has agreed an appropriate set of policies and procedures to govern our day-to-day activities. Trustees have also assessed the major risks to which the charity is exposed and agreed appropriate mitigation measures. PARKINSONS.ME Financial review Both income and expenditure increased by about £2,000 over the prior year, resulting in deficit of some £5.000 in both years. The trustees have agreed it is appropriate to hold sufficient unrestricted reserves lo cover our regular outgoings for some six to eight months. As at 30 April 2024 our unrestrided reserves weie £19,955. equating to just over eight months. regular outgoings. We have refocused some communications activity on fundraising and will continue to control our income and expenditure carefully to remain compliant bwth our reserves policy. Th8 trustees. report was approved by the Board of Trustees. £ TEL6DB Trustee" Dated: PARKINSONS.ME Notes to the financial statements 1. Accounting policies ChaAty infornlation Parkinsons.me is a charTtable incorporated organisatk)n registered with the Charrties Commission for England and Wales. 1.1 Accounting convention The accounls have been prepared in accordance with the charity's the Charlties Act 2011 and "Accounting and Reporting by Charrties". Statement of Recommended Practice applicable to chartties preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republ￿ of Ireland IFRS 102}" {as amended for accounting periods commencing from 1 January 20161. The charity is a Public Benefrt Entity as defined by FRS 102. The charity has taken advantsge of the provisions in the SORP for charities applying FRS 102 Update Bulletin 1 not to prepare a Statement of Cash Flows. The accounts have departed from the Charities (Accounts and Reports) Regulations 2008 onty lo the extent required to provide a true and fair view. This departure has involved following the Stalement of Recommended Practice for charrties apptying FRS 102 rather than the version of the Statement of Recommended Practice wh￿h is referred to in the Regulations but which has since been withdrawn. The accounts are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £. The accounts have been prepared under the historical Cost convention. The principal accounting policies adopted are setout belu4Y. 1.2 Goingconcern At the time of approving the accounts, the trustees h8ve a reasonable eXpe￿allOn thal the chanty has adequate resourcesto continue in operational existence forthe foreseeable future. Thus. the trustees continue lo adopt the going concern basis of accounting in preparing the accounts. 1.3 Charitablelunds Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charrtable objectives unless the funds have been designated for other purposes. Restricted funds are subject to s￿IfiC condrtions by donors as to how they may be used. 1.4 Incoming resources Income is recognised when the charTty is legalty eniffled io tt after any performance conditions have been met, the amounts can be measured reliabty, and rt is probable that income will be received. Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance condf(ions require deferral of the amount. Income lax recoverable in reLqtion to donations ieceived under Gift Aid or deeds of covenant is recognised at the time of thedonation. Leg8cie$ are recognised on receipt or otheFwise if the chanty has been notified of an impending distribution, the ar￿Unt is known. and receipt is expected. If the 8nKsunt is not known. the legw is treated as a contingent asset 10 PARKINSONS.ME 1 Accounting policies l¢ontinued) 1.5 Rosources expended All expendf(ure is included on an ac¢ruaL8 basis and is recognised when there is a legal or constructive obligation to do $0. Charitable activities indude expendrture aSs￿lated with meeting tts charitable objectives. This includes the cost of grant making. and direct provision of charitable Se￿ices. Governance Costs include those incurred in the govemance of the chartty and its assets and are primarily asS￿lated with constitutional and ststutory requirements. 1.6 Cash and cash equlvalents Cash and cash equivalents include cash in hand, dewsits held at call wtth banks. other short- tenn liquid investrnenls with original maturtties of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in Current liabilibes. 8asic flnancial assets Basic financial assets, which include debtors and cash and bank balances. are initialty measured at Iransaction price including transaction costs and are subsequently carried at amortised cost using the effectNe interest melhod unless the arrangement con5trtules a financing transaction. where the transactK)n is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivablewrthin one year are not amortised. Basie financial liabilities Basic finan￿al liabilities, including credf(ors and bank loans are inf(ialty recognised at transaction priee unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabiltties classrfied as payable wrthin one year are not amortised. Debt instruments are subsequently carried at amortised cost. using the effective interest rate meth¢Jd. Trade credttors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities rf payment is due within one year or less. If not. they are presented as non-current liabilities. Trade credrtors are recognised inf(ialty at transaction price and subsequently ured at amortised cost using the effective intwesl method. Derecognition oi financial liabilities Financial liabilities are derecognised when the chanty's contractual obligations expire or are discharged or ¢ancelbed. Critical ac¢ountingestimatesand Judgements In the appI￿￿10n of the charit￿S accounting pOl￿￿e5, the trustees are required to make judgements, estimates and assumptions aboutthe carying amount of assets and liabilities that are not readi￿ apparent from other sources. The estimates and associated assumptK>ns are based on historical experience arKI other factors that are considered to be relevant. Actual results may differ from these estimates. The estimates and underlying assumptions are reviewed on an ongoing basis_ Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects onty that period, or in the period of the revision and future peri(xYs where the revision affects L￿?th current and future periods. 11 PARKINSONS.ME N¢)tos tt) the FhTranGrylStatsmÈnts{c