Charity Reglstration No. 1166531 PARKINSONS.ME ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2023 ¥ Parkinsons.Me Supponing you ana youi iamiiy
PARKINSONS.ME LEGAL AND ADMINISTRATIVE INFORMATION Trust Mike Ayre (Chair) (resigned 31 March 2023) Ruth Bachelor Rosie Chadwid( (Vice Chair) Peter Cook Martin Cowell Amanda Seddon (resigned 9 November 2022) Gary Stnckland Noman Telford (Chair w.e.f. 1 A.1 2023) Charlty numbor 1166531 Addr888 of prlnclpal offi¢0 Parklnsons.Me Boston House Grove Business Park Downview Road Wantage OX12 9FF
PARKINSONS.ME CONTENTS Page Trustees, report Statement of financial activities statement of financial position Notes to the accounts 10
PARKINSONS.ME TRUSTEES. REPOR T FOR THE YEAR ENDED 30 APRIL 2023 The trustees present their rewrt and accounts for the year ended 30 Apn'l 2023. The accounts have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply wtth the charity's constitution, the Charities Act 2011 and 'Accounting and Reporting by Charits.. Stat8mgnt of Recommended Practice applicable to chanties pparing Iheir accounts in accordance wth thg Financial R8porting standarrl appIable in the UK 8nd Republic of lrnland (FRS102)' (as amended for accounting F)eriods commencing from 1 January 2018). Our obloctlv Parkinsons.Me was founded in 2016 by Ewan and Tracey Stutt following Ewan's diagno&8 Wlth Parkinson's at the age of 41. The chanty's objects are: To promote good health and wellbeiNJ for the public benefft in part}lar but not exclusively by.. educating and offering support to people with Parkinson'8 raising awarene88 of the condth'on providing practical inforniation and resources to people with Parkinson'8 and their families following up on and reporting on the latest research with regard to dlagnosls, prevention and treatment (infoming the public on the useful results of such fe8earch). We want people with Parkinson's and their familres to have the infomlakn'on and support they need to manage their daily lives in the most positive way possible. We work toward8 this by providing positive, inspiring and meaningful online, personal and community support designed to meet the needs of the whole family. The trustees have paid due regard to the Charity Commi88ion's guidance on public benefit in carrying out their dulles and looking at best to fulfil these objects. Our key acllvftlo4 and •¢hl•v•mw Work conlinued through the year lo consolidate existing and develop initiatives geared to providing practical help for families affected by Parkinson's. Parkln8on8.Mo communlty gardon Our communty garden continued to be w811-maintained and used by a wide rarKJe of visitors, volunteers and community groups, proving its value as a place for people wrth Parkinsons. family members and others from the local communty to enjoy healthy food and exercis8 and relax and socialise in beautrful surroundings.
PARKINSONS.ME This year we have seen an increase in visitors, now estimated to be in the region of 120 each month. There has been increased interest in volunteers helping to maintain the garden on a klY or monthly basis or via On corporate charity support days. We estimate the total time donated at over 550 hour5 across the year. Thanks go to all these volunteers, including those from local compani8s Drax, Taylor Francis and JISC who hav8 given their free time on more than one occasion. The charrty has beneffted from two local stlent5 volurrteering at the garden as part of their Duke of Edinburgh's Award. The local cub pack also assisted with planting out the vegetable plot early in the season arKI constructed bug hotels for the meadow and th8 wlldlife area. A local young reporter, Charlotte Halley. interviewed Head Gardener Gary Strickland and descnbed the evolution of the garden in a pece that Vlent live on social media and attracted much interest on Workl Parkinson's Day. We include here some extracts from Charlotte's report.. This etheTr81 and p8acefvl garden was initially created been 2016 and 2018, for people with Parkinson's who needed to exercise as the condition can cause problems lik8 involuntary shaking and stffi?ess. Since then, the garden has evolved into something much more. It has become 8n inspiring space for communty actwit18s such as the local choirfs practKe. l(A's students volunteering as part of their DofE, families out on walks. hik8rs stopping for a lunchbre8k. children playing on the ng pong table, or wmply ¢0 relax and s(Xi81is8 hern. This isny just lorpeopl8 with palSOn'S but is open every day to anyonel This gafflen 8dmirabty entirety run by volunteernl And donations from the plant sale table near th8 entr8nce funds the g8rden... EVehIng in the garden 18 in h8miony, from the seating to the sensory garden to th8 vege18ble p8lch. The charity is imm8ns81y pleased with attracting sludents from Chartton Primary School and the local cub pack, as they love encouraging the n8Xt generatKin of enthu&astic gard8n813. This garden continues to expand and grow much Ilke the p18nts it nurtuTrs.. This Ioc81 charity P8rkinsons.me has deaty made a bw drffeTrnce to the communty in est8blishing this gardgn, through enh8ncing wellbeing and creating a tTrat of serenity and Ilora. And with spring already flourishing. I hava to encourage passers-by to step in and enjoy the daffodils, tulips, Intilla17e& euphortJi8S, 8nd bluebells in bloom this A¥1. And even to look forw8rd to May, which 11 bnng 8 whole new host of colour from the Solomon's se81. aquilegias, alliums. 8nd lilffjs! This truly is a paradiso. Garden projects for 202>2024 invOe installing a composting toilet, running 8 second green therapy cours8 in conjunction with local GP, and creating a gravel garden wrth plants suited to our changing climate. The chanty is acttvely lookn'ng for financial support, through numerous grarts, to make this happen.
PARKINSONS.ME Mov•Me We held Iwenty-two irFperson Move Me exercise classes over the year. a similar number of sessions via Zoom. Average attendance at fat0-f sessions was 14 to 15, with slightly higher attendance at zoom sessions. Members continue to value sessions highly (as reflected in a poem written by group member Lester Gale) and over the year we've built up a wabting list of people keen to join. We continue to look at ways of accommodating new participants. It has long been our ambition lo plIcate Moveme in other locations, and in 2022-23 we were pleased to take a step towards this by supporting a second dass {in Caversham. near Reading) for a trial period. Sessions started on 5 December. The number of participants in the Caversham class is slowly growiro. reaching eight in April, although the accompanying Moveme Mates group of partners, drivers. carers and family memb8rs 1$ proving harder to develop. We look forward to working wrth our Caversham partners to build momentum in the year ahead. Movem• Mates The 'original' Moveme Mates group continued to meet aloNJsKle the Moveme exercise classes, provKling a much-valued opportunty for family members and fn'ends of people with Parkin80n'8 to laugh, chat and support each other over coffee and cake. The group enjoyed contributions from occasional visiting guests who shared insights for example on help with finding car8r8 and dealing wrth financial issues. Movememates is a totally confidential 8paGe where people can speak freely and they Gan also be guided to source8 of further information and help if required. W8 VlCome n8w people and they do not nece888rily have to have partners in the exerci8e da88. H•arMo Our HeaNe prolect had a total of seven clients er the year. Of these, two were pre- existing while five were new to the s8Nice. Four clients had a diagnosis of Parkinson's: the remainlng thr8e were relatives. We continue to receive rncredibty po8itNe testimonials from peoth who have receNed counselling as a resu of Hearme. as these examples illustrate. .1 found it h8lpfiil to th through my fea and anxieties about PD in thi8 context. .1 found the CoUe enlightening and valual)le and it gave me new inShtS into mys8ff and certain pattems of beh8viour, which I'm now hard to ameliorate." 'Afy counsellor has been such a wonderful support over the last few months and I really don't know what I )Uld have done M"thout her. Atthough I'm still very much struggling with my b*ryk/fin8ncial situatM)n this has allowed my diagnOS lo sink in and to realise what is important and to prftvitise my heatth and to priontise doing things that are really import8nt to me whilst I'm the best I'm gng to be before any further progression and although I'm not suTr whether I'll ever fully accept this diagnosis at my ag6 1 have cne a l(ry way through thi8N)ume
PARKINSONS.ME "ljust W8nt to say a massive thank you to you and the ch817ty for gNing me this support. It really has made 8 differenc8 to. not onty how I f881, but how my Husband is too. It has helped our latnship and forme to leam cong strategS whén things get too much, seeing him as MO than PsinSOn's and that Yhe real. him is still there inside, 8$ well as looknng at the fytU with morn perspectwe 8nd hope." Coffa•Mè Starting in late May 2022 Y Vre pleased to revive an infonnal monthly coffee gathering, where people affected by Parkinson's, their friends and family members Gan spend social time together. Typically held at the Court Hill Centre on the second Sunday of each month, these sessions hav8 been enthusiastically received, often with twenty plus participants. Alongside members of Moveme and Moveme Mates we have been pleased to welcome Others not involved in the exer¢bse ¢1888es and people who found out about the $8ssions via publicty online. Re8oarch A major milestone in 2022-23 involved completiNJ our survey of people and families living with Parkinson's to deepen our understanding of what Support will be most helpful and what gets in the way of 8cce88ing supporL In all we received 187 re8pon8e8. The box below give8 more inforniation on respondents. About respondents to our surva 107 (57%) of survey responses were from people wtth PansOn'S, 54 (29%) were from partners of people with Parkinson's arKI 26 (14%) from people where a parent or other family member had Parkin8on'8. Respondents ranged from people in their 30,8 to people over 80, though with most (82%) aged between 51 and 80. 26% were in employment. Nearly three quarters of the (173) respondents who gave their gender were female. Almost all respondents vftre lfyhite. Nearly 213rds (63%) person or family member dlagnosis was relatively recent, 2018 or later. Feedback from the survey underline the thallenges faced by many in talking about their real feelings about Parkinson's. Amost half {47%) said they found it not at all easy {11 %) or not very easy (36%) to discuss their feelings. Barriers described included feelings of embarrassment, 8 wish to protect others, not wanting to be treated dfferently or dominate the conversation, feeling that othèrs didn't want to hear- Ihey all just tune oirt, . or didn't really understand, not least as Ihere are lots of Misc0nPtions., Finding the right person, or people, to talk to comes across strongly as an issue for both Feople with Parkinson's and family members. Asked who they already talked to about Parkinson's 75% of those responding said they talked to family members and 70% to medical professionals but 8% said they spoke to ni.
PARKINSONS.ME Responses also highlight the big gap betreen who resFKxthnts already talk to and who they would like to talk to about PD. 6% of respondents had spoken to a ¢ounsellor compared wth 32% said they'd like to do this. 40% had spoken to someone else with Parkinson's. but 55% saKI they'd like to do this. In the same way. large gaps can be seen between the Sour of support that respondents to our survey currently receive and sources of support that they YlId like. 8% received finanrial advice compared with 38% who would like to receive it. 10% received practical sUPPOrt around the home compared with 44% who said they would like it. 2% received advice on how to manage relationship8 affected by Parf<insons compared Vth 54% who would like to receive ii. 2% advice on managing or changing your career and income. but 24% 8aid they would like this. (Xher strong Ihem88 from response8 concem.. the challenge8 of dealing wrth the uncertainty associated with Parkinson's,. a thirst for more, and more regular, contact with health professionals who are knowledgeab ab(Krt Parkinson's; the benefits of exercise,. a need to make the many and drfferent 8ourc8s of infomiation aboul Parkinson'8 much easier to access and navigate; and the importance of family members, and the public more generally, being much better infomied about Parkinson's, its impacts and ways that they can help. These findings reaffirm the need for Parkin80n's.Me's current projects but also provide important insights on areas requiring further work. We a grateful to the focus group of people affected by Parkinson's for their help, both in designing the suDiey and reflecting on its findings. Communlcatlons Work continued to raise awareness of Parkinson's, and what we offer as a charity, including through talks to local groups. involvement in a charity project at St Birinus School, a visit to a local care home and our presence at a Wellbeing event hosted at the Beacon, Wantage's eAvic centre. We also overhauled our printed literature and used social media lin particular our Facel)ook presence) to share inspiring stories, helpful podcasts, updates on clinical trials and therapies and more. Fundralslng As in previous years we have beneffted greatly from many acts of 98nen)sty. Thanks go to the many individuals and organisations who have helped us by taking on sporting challenges, organising charity fundraisers. donating proceeds from events and giving gifts of time andlor money.
PARKINSONS.ME Looklng ahead Alongside plans for the garden, described earlier. we aim to Continue to promote. and grow, our Hear Me project. RjeW the second Moveme dass, leamirvJ lessons about effective replication. Produce a new suite of literature. Take stock of vthat other5 are doing in areas emerging from our survey, helping us identrfy things that V might progress with others and new support we should prioritise. Renew our emphasis on fundraising to sustain our current woiects and enable new ones. Throughout vle'll continue to wort( dosely with people living with Parkinson's and their families, recognizing that their full involvement arKI insights are key to creating a more responsive. indusive and effectlve Parkinsons.Me. Structure> gov•mance and management Parkinsons.Me is a dwrtable incorporated organisation registered with the Charity Commission for England and Wale8 on 14 April 2016. Our Board of Trustees met monthly in 2022r23. trustees are Klentified through 8 mlx of open advertising and targeted approaches. We are pleased to now have three trustee8 with per80nal experience of Parkinson'8. either themselves or through a member of their family. The Board ha8 agreed an appropriata set of policie8 and procedures to govern our day-tO- day activities. Trustees have a180 ass888ed the major risks to which the chanty 18 8XP08ed and agreed appropriate mItatIOn measures. Flnanclal rnvlew The trustee8 have agreed it is appropriate to hold Sufficient unrestricted reserves to cover our regular outgoings for some six to eight months. As at 30 A11 2023 our unrestrictad reserves were £29,205, equating to just over twelve morrths. regular outgoings. The truste88 gard thi8 extra headroom as appropriate at this time. given our increased outgoings and the further sperKling likely to be needed to deliver on wiortlies identif18d through our Suey. The trustees, report was approved by the B¢Jard of Trustees. Tru8tee: Dated: 11. i->*
PARKINSONS.ME Notos to the accounts 1. Aecountlng poll¢lg8 Charlty Infrmatlon Parkinsons.me is a charitable incorporated organisation rngistered with the Charilios Commission for England and Wales. 1.1 Accountlng conventlon The accounts hav8 been prepared in eOrdanCew1th the charivs the Charitte8Act 2011 and "Accounting and Reporting by Charities.. Statement of Re¢ornmended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). las affEnded for ac¢ounllng peri¢Jds commencing from 1 January 2016). Thecharity is a Public Benefrt Entty as defined by FRS 102. The charlty has taken advantage of the provIsn5 In the SORP for charit$ apptying FRS 102 Update Bulletin 1 not to prepare a Ststement of Cash FI. The a¢¢ounts have departed from the Charitss (Accounts and Reports) Regulations 2008 only to the extent required to provkle a true and lalr view. This departure has involved following the Slatement of Recommended Practice for chanties applying FRS 102 rather than the version of the Statement of Recommended Practice which is referred to in tho Regulations bul which has since been withdrawn. The accounts are prepared in slerling. which is the fun¢th)nal currency ofthè charity. Monetsry amounts in Ihese financial statements are rounded to the nearest £. The accounts have been kyepared under thè histoital cost convents'on. The principal accounting policies adopted are sel oui below. 1.2 Golngeoncorn At the time of approving the accounts, the tru8tee8 have a rea8onable expectation that the charlty has adequate resour8 to continue in operational existence forthe foreseeable future. Thus. the trustee8 contsnue to adopt the going concern basis of xcounting in preparing Ihe account5. 1.3 Charltablofund8 Unrestricted funds are a¥ailabl8 for w at the dlscretion of the trustees in furtherance of their charitable obie¢tive5 unless the funds have been deswJnated for other purposes. Restricted funds are subject to specffic conditions by donors as to they may used. 1.4 Incoming rn•ources Income is rocognised when the charity is legalty entilknl to It afler any performance conditions have been met, the amounts can be measured reliabty, and it is probable that inco will be receTrved. Cash donations are recognised on receipt. Other donations are recognised once tho charity has been notifie(l of the donation. unless perf0mnCe conditi'ons require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of venant is recognised at the time of thedonatN)n. Legacies are recognised on receipt or othevwise rf the charity has been notified of an impending distribution. the amount 1$ kntY•vn, and receipl is expected. If the amount is known. the legacy is treated as a ¢ontingent asset. 10
PARKINSONS.ME 1 Accountlng polleies (continued) 1.5 Re8OUTCos expended All expendrture 1$ included on an xcnBls basis and is recognised when there Is a legal or construclive obligation to do so. Charitsble actNities include expenditure associated wfth meeting rts charitable objective8. This includes the cost of granl making. and direct provision of Charitab services. Govem8n¢e costs include those incurred in the govemance of the chaiity and its assets and are primari associated wrth constitutional and statutw requirements. 1.6 Cash and cash equivalents Cash and cash equivalents include cash In hand. deFrt)slls held at call with banks, other short- term Ilquid investrnenls wrth original maturTties of three rnthS or less, and bank overdrafts. Bank overdrafts are shown within borrtrwings in curn1 liabilities. Ba¢ fln•n¢l•l ass•¢$ Ba$1¢ financial assets, whlch include debtors and cash and bank balances, we Initially measured at transacllon price including tran%2Ctn costs and are $ubs8quentty carried at amortised cost using the effethve interest method unless the arrangement con$litutes a financing Iransaction, where the transactn 1$ measured al the present value of the future receipts di8counted at a market rate of interest. Financial assetsGlassified as receivablewlthin one yearare not amortised. 8•$1¢ flnanclal Ilabllltt•s Basic financial liabilitiès, including ueditor8 and bank loan8 are Initially recognised at transadion price unless the arrangement ¢onstrtute8 a financlng transaction. where the debt Instrument is mèasured at the present value of the future payments discounted at a mark81 rata of intere8t. Financial liabilitie8 clas81fied as payable within one year are not amortised. Dobl instruments are subsequenty carried at amrtised cost. using the effeclive intere8t rate Trade creditors are oblgallons to Poy for go(xts or Services that hava been acquired in th8 ordinary course of operations from suppliers. Amounts payable are classffjed 8$ current liabilities if payment is due within one year or S8. If nol. they are presented as non-current li8bilitie8. Trade creditors are recognised inrlialty at transaction price ancl subsequentty measured at amorti8ed cost Un9 the effect8 interest method. Derecognltlon ol Ilnanclal Ilabllhles Fin¥ncial liabililie8 are derecognised vthen the Gharty's contractual oblwjatlons explre or are discharged or cancelled. Crltl¢al accountIn9tImots• andJudgoment• In the application of the charty's accourrting policies. the trustees are required to make judgements. egtlmates and assumptions aboutthe carrying amountof assets and liabilitie$ that are not readily apparent from other sources. The estimates and as8c¢iated assumptions a based on hislorical experience and other factors that are consldered to be relevant. A£tual resulls may drffer from the90 estimates. The estimates and undertying assumptions are reviewed on an ongoing basi5. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects onty that penod, or in the perK)d of the revision and future periods where the revision affects both current and future perM)ds. 11
PARKINSONS.ME ForthoYeorEnd*t SO £• 21th6 2Y.SIS 243e7 ?lJJ15 447 7J17 14 13271 412 14 145 14.440 Emplo 11 1J3 261 12