Charity Registration No. 1166531 PARKINSONS.ME ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2021 Parkinsons.Me SuppoitiAg you and youi lamily
PARKINSONS.ME LEGAL AND ADMINISTRATIVE INFORMATION Trusteas Mike Ayre (Chair) Rosie Chadwick (Vice Chair) Peter Cook Martin Cowell {appointed 14 October 2020) Phil Dunmore (appointed 14 October 2020) Amanda Seddon Hazel Stanyon (resigned 12 February 2021) Gary Stnckland Charlty number 1166531 Addr•$• of prln¢lpal offlce Parkin80ns.Me 10 16 East Lockinge Waniage Oxon, OX12 8QG
PARKINSONS.ME CONTENTS Pag• Trustees, report Statement of financial activities Statement of financial position Notes to the accounts
PARKINSONS.ME TRUSTEES. REPOR T FOR THE YEAR ENDED 30 APRIL 2021 The trustees present their report and accounts for the p8ri0d ended 30 April 2021. The accourrts have been ppared in accordance with the accounting policres set out in note 1 to the accounts and comply with the charity's ¢onstitLrtion, the Chariti'es Act 2011 and Accounting and Reporting by Chaiities.. statement of Rernmended Pr8Gtice applicable to ch8nties preparing their8ccounts in accordance with the Financial Reporting st8nd8rd 8pplicable in the UK and Republic of Ire18nd (FRS102)' (as amerKled for accounting periods commencing from 1 January 2016). Our objectives Parkinsons Me was founded in 2016 by Ewan and Tfacey Stutt. inspired by their own experience following Ewan's diagnosis wrth Parkinson's aged 41. The charity's objects a.. To promote good health and wellbeing for the public benefft in particular but not exclusively by.. educating and offering support to those suffering wth Parkinson's disease raising awareness of the condrtion providing practical infomiation and resources to people with Parkinson's and their families following up on and reporting on the latest research with regard to diagnosi8, prevention and treatment (informing the wblic on the useful results of such research). Our vision is that people with Parkinson's and their families have the infomation and support they need to manage their daily lives in the most Positive way possible. Ourmission is to provide positive, inspiring and meaningful onlin8, personal and community support for people wrth Parkinson's and their famili6S. The trustees have paid due regard to the Charrty Commission's guidanc8 on public benefit in carying out their dutres and looking at how best to fulfil these obj'ects. Our key actlvltles and achiwements For Parkinsons.Me as for everyone, the year May 2020 to April 2021 was a year of significant disruption due to COVID restridions and limrts on meeting fa¢e-t¢Fface. Despite this. we We able to make headway in a number of aas.
PARKINSONS.ME Parkinsons.Me community garden Situated on the edge of West Lockinge, the Parkinsons.Me communty garden continued to play a valuable role, helping raise awareness of Parkinson's. encouraging exercise and healthy eating (both of which can help make a differen for people with Parkinsons) and providing a tranquil. uplifting space for people to meet. relax and support one anothar. There w8r8 no fonnal events at the garden during this period. and visitor numbers are hard to trad(. However, the garden remained open and took on added value as a place to help cope wth the pressures that came with the pandemic. It was frequently used as part of the permrtted daily exercise, also sèrving as a meeting point for fn'ends, families and neighbours when outdoor meeting was allowed. Families used the garden towards the 8nd of the day as a treat after spending time hom8 schooling. The tsbla tennis was regular hit vrith the children while adults discuswj the latest events and how they were dealing with the changing situation. A core group of 6 volunteers carried out garden maintenance while complying with COVID precautions, ensuring the garden could be enjoyed by everyone during these difficult periods. As restrictions eased, volunteer garden sessions were reintroduced The garden was enhanced through the year with addrtions including a steel arbour, garden benches arKI lable. geoca¢he and renovated poem boards. Feedback from online donors to the charity indudes many appreciative comm8nt8 on the garden, as these examples illustrat8: We visitedyour b88Utrful community garden today, thank youl Support from my mum and I to all thos8 affected by Parkinson's and their faMilS Love tha g8rden that you have cTr8t8d. it's 8 wonderful plac8. The communty garden is looking fantastic. Spnng and better times 8r8 on their way What a wonderful 8nd peaceful plaG8 to sit and Trst for a while. Keep up the good wortf! Moveme After a slight pause, during which YouTube videos were produced to support exercise at home, our Moveme programme moved online. providing regular group exercise sessions for 7-8 people per class (15 group memtErs in all). Class sizes needed restncting to a maximum of 8 due to limits on the number of partiapants who could be safely supervised online. In response to this. the number of classes was doubled from Deomber 2021. Parkinsons Me is indebted to Jo Preston and colleagues from the Oxford Health NHS Physical Disability Physiotherapy Service for their hard work and dedication in providing these sessions.
PARKINSONS.ME 15 months into the programme, in Jun& 2020, a wellbeing questionnaire asked the original Moveme group of 10 people for their feedback on drfferent dimensions of wellbeing. 7 participants responded. All those responding rep)rted an improvement in tsking part in leisure activities and walking half a mile_ There was also an improvement in the number of respondents feeling they needed to Gonceal their Parkinson's from other people, significant improvement in those feeling eMbaaSSed in public due to having Parkinson's and an improvement in the frequency Vth which respondents reported experiencing painful muscle cramps and aches and pains in joints. More people reported experiencing anxious or depressing thoughts, perhaps not surprising in the context of COVID. There was also a slight in¢reas8 in those having dttfi¢ulty dressing themselves. The small group size plus the many other factors at play make it hard to draw fimi conclusions from the sup4ey. The modest improvement in fftness reported is highly encouraging. however. not least given the degenerative nature of Parkinson's. There is also strong evidence in the responses that the classes have helped build an important sense of communty and mutual support amongst the 'MoveMe-ers'. increasing the sense of wèllbeing and selfaconfidence for people in the group. Meetings of the Moveme Mates group of partners and family members were harder to orchestrate online, but group members stayed in touch via phone and email, also managing to meet in the garden from time to time. Blogs written by 3 Moveme members bring to lrfe the difference the programme makes, a differenc8 that goes beyond exercise.. Moveme is am8zing. One main philosophy of P.me is famity support and this has become an essential part of Moveme. Whilst the need for sprfIC PD exeis8 is met, the is 8lso an added dimension, Ihe opportunrty for drivers, fnends and family to sit and chat for an hour over coffee in 8n 8dj8cenl room. This has proved to be a great fonim for sharingioys and Inistr8tions of Iwing with Parkinsons. When the class IS Inished, everyone is welcome to linger for more ffee and chat and the room fllls up. Moveme is 8118ncomp8ssing. Fn)m our fant8StK Iead8r/physther8pI$I Jo Preston and assistant Tessa, to the wonderful tea and coffee fairies who supply us wrth much needed sustenanc8 (including yummy cakes) and frn(ty conversation 8fter an ex8lflS8 class. ThUd8Y momings 8re literally like 8 be8con shining in my week. Mov Me ...is wonderfully led 8nd managed. before during and after, and is a great way to sustain one's exercise gIMe whilst mixing with 8 lovely bunch of people - who all know whal lrfe can be like wrth palnsOn'S Hearme Our pilot Hearme project went live in Au9USt 2020 Developed in response to survey feedback on support priortlies for families affected by Parkinson's. Hearme provides aCsS to counselling therapies for anyone in families affected by Parkinson's - the diagnosed person and their partners. Children. or parents- who would find this helpful. Take up in the first few months has been disapwinting, with one client accessing the service and three more people expressing interest. We suspect that take up has been
PARKINSONS.ME affected by the pandemic but reu)gnise too that we need to do more to get the word OLrt. This will be a pnority in 2021-22. Communications Our website and social media channels continued to be sources of helpful infomation and peer support, with notable addtbons including blogs from people with Parkinsons.Me and family members describing their personal experiences. Work also progressed on communicats'ons strategy to expand our reach and impact. This involves building on our existing strong personal and local support netfflorks. actively engaging with key stakeholders and ensuring regular consistent content communication. It also aims to grow our social media presen from a baseline {a$ at January 2021) of 8421 Facebook followers, 1565 Twitter foll0vrg and 1664 Instagram foll¢)wers. Fundroislng While COVID restrictions made fundraising events impracticable for much of the year, Parkinsons.Me was grateful to receive a Continuing flow of individual donalions. These included a single, significant donation towards the costs of Moveme, supplementing participants, contributions, donations in appreciation of the garden and for new garden fumiture. and funds raised by marathon runners and others taking on challenges on our behalf. Over and above the financial support we greatly appreciate the community SUPPOrt that these donations represent. Looklng ahead Looking ahead we hope to continue welcoming people to th8 garden. We look forward to resuming fa¢e-t¢>face Moveme classes and indoor meetings for Moveme Mates, combining this with online provision to meet group memb8rs' differing Gir¢umslances. We will continue to explo interest from other areas in replicating the Moveme model and to encourage take up of Hearme counselling sessions. As our capacity allows we will explore new support possibiltties based on feedback from familie$ affected by Parkinson's. We also envisage recruiting a communications professional to help us expand our feach and impact. Through our mix of support and Gommunications our aim will be to become the 'go to, organisation for families affected by Parkinson's within a 30-mile radius of Wantage. Structure, governance and management Parkinsons.Me is a charttable incorporated organisation registered wtth the Charty Commission for England and Wales on 14 Apnl 2016. Our Board of Trustees met bi-monthly in 2020r21. Trustees were initially recruited by PaTkinsons.Me founder Ewan Stutt using his netrworks and knowledge of the skills mix needed. Recruitment since has combined open advertising and targeted approaches. wrth an emphasis on securing trustees with personal experience of Parf(inson's, either themselves or through a member of their family. Two of our trusttrs now bnng this lived experience, adding to that of our founders Ewan and Tra¢ey Stutt and greatly enriching our work and understanding.
PARKINSONS.ME The Board has agre8d an appropriate set of policies and procedures to govern our day-to day activities. Trustees have also assessed the major nsks to which the charity is exposed and agreed appropriate mitigats'on measures. Financial review The trustees aim to strike a balan been using funds to achieve our charitable purposes and creating the reserves needed to sustain work underway and build in som8 resilience should our income reduce significantly. The trustees have agreed rt is appropriate to hold unrestricted resep4es suffici8nt to covèr our regular outgoings {including costs of maintaining the community garden and commrtments to exercise classes) for some 6-8 months. As at 30 April 2021 our reserves exc8ed8d that amount. Looking forward we aim to put these reserves to good usa in support of our objectives, aided by the renI appointment of our part-tim8 communications officer The trustees are grateful to John chaol1ck ACIS for his help once again in preparing our a¢counls. John has over 20 years, experience in senior finance roles, including as Finance & Regulation D1ctor of a plc. The trustees, report was approved by the Board of Trustees. Trustee Dated.. J&J IL7fr 20
PARKINSONS.ME statement of FInancl Poshlon As At 30 April 2021 aja) Total 20X Lknr•trl¢i•d R•rf¢t•d Tolal Currnnt A•ts Stock$ Co$h * bar* and in 10 2.287 30.1e6 .473 2.267 30.186 Cr•dltor¥: amt)untsfalllNJ du• wlthln 1 year (911 11,¢)341 Not cunvrl #8•t8 25,347 2.178 29,132 Rejtrtcted Fun Unmst¢IeO Fundj 2.178 2,176 28.958 25.347 Charftabl• Fund• 2S.347 2.178 29.132 Thes• x¢ount8 •)pth•d by tP• T11 Oh.......... .. . Mr IAk¢ Ayre Chair ef TnJ$lee•
PARKINSONS.ME Notes lo th8 accounts AG¢ountlng pollcles Charfty Infonnatk Parkinsons.me B a Charitable incorporated organisation registered with the Chartties Commission for England and Wa. 1.1 Accounllng ¢onventlon The accounts have been prepad in accordance wilh the chanty's crrntlukn, the Charities A¢t 2011 and "Accounting and Reporting by Charrties.. Ststement of Recommended Practice applicable to charrties preparing their ac¢ounts in accordance wrth the Financial Reporting standard applicable in the UK and Republic of Ireland IFRS 1021" las amended for accounting periods commencing from 1 January 2016). The charity is a Public Benefrt Entty as defined by FRS 102. The ¢harity has taken advantage of the provisions in the SORP for ¢harities applying FRS 102 Update Bulletin 1 not to prepare a Statement of Cash Flows. The accounts have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a Irue and fair view. This departure has involved following the Stalement of Recommended PraCte for ¢h8rrties apptying FRS 102 rather than the version of the Statement of Recommended Practice which is refeffed to in the Regulations but whlch has since been withdrawn. Thé ac¢ount$ are prepared in sterling. which 1$ the functh)nal currency of the charty. Monelary amounts in these financial statements are rounded to the nearest £. The accounts have been prepared under the historical cost con¥enlion. The principal accounting poliries adopted are set out below. 1.2 Golngconcern Al the lime ol approving the accounts. the trust88$ have a reasonabl• expectstion that the charity has adequate resources to Continue in operatbonal exislen¢e for the foreseeable future. Thus the trustees conlinue lo adopt the going concem basi$ of accounting in preparing the accounts. 1.3 Charltablefunds Unrestricted funds are available for use at the discretion of the trustees in furtherance of thelr charrtable objectives unless the funds have been designated for other purposes. Re$tricted funds are subject lo specific condrtions by donors as to how they may be used. 1.4 Incomlng rn8ource8 Income is recognised when the charty is legalty entIld to it after any performance conditTrons have been met, the amounts can be measured reliably, and rt is probable that income will be received. Cash donations are re¢ognised on weipt. Other donations are recognised once Ihe charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tsx recoverable in relation to donatnS recerwed under Gift Aid or deeds of Covenant is recognised at the lime of lhed0natn. Legacies are recognised on receipt or other%ws8 if the charity has been notified of an impending distribution, the amunt is known. and receipt is expectod. If the amount is not known, the legacy is treated as a ¢ontingent asset.
PARKINSONS.ME Accounting polycies (Gontsnued} 1.S Resources expended All expenditure is included on an accruals basis and is recognised when there is a legal or constructive obligation to do so. Charrtable activities include expendrture associated with meeting its charrtable objectives. This includes the Gost of grant making, and direct proviSn of chartsble SerVe¥. Governance costs in¢lude those incurred in the governance ofthe chanty and rts assets and are primarity associated with consb"tutr"onal and $tatutory requirements. 1.6 Cash and cash equlvalonts Cash and cash equivalents include cash in hand. deposits held at call with banks, other short- term liquid investments with onginal maturities of three m¢)nths or less, and bank overdrafts. Bank overdrafts are shown wrthin torrowings in current liabilth'es. Baslc Ilnand41 auats Basic financial assets, which include debtors and cash and bank balances. are initially measured al transaction price including transaction cosls and are subsequenlty carried at amortised cost using the effective interest melhthj unless the arrangement ¢onstrtule$ a financing transaction, where the transaction ts measured at the present value of the future receipts discounted al a market rate of interest. Financial assets claSsrf1 as receivablewrthin oneyearare not amort15ed. Baslc flnanclal Ilabllttles Basic financial liabilrties, Including ¢dItOrS and bank k)ans are inrtialty recognised at tranSaCtn price unless the arrangement Constrtutes a financing transaction, where the debl inslrument is measured at Ihe present value of the future payments discounted at 8 market rate of interest. Financial liabilrties classified as payable within one year ara not amortised. Debt instrumen1$ are subsequently carrled at armrttsed cost. using the effectNe Interest rate Method. Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due withln one year or less. If not, they are presented as non-current liabilitie$. Trade creditors are re¢ognised initially at Iransa¢tion pre and subsequently measured at amortised cosl using the effeclive inlerest method. D•r•cognldon of Ilnan¢lal Ilabllhles Financial liabilrtres aTe derecognised when the charity's contractual obligations oxpire or a dlscharged or canGelled. Crltlcal accountlnge8tlmatesandJudgoments In the applicatK)n of the charity's accounts'ng poli¢ie$. the trustees are required to make judgements, estimates and assumptnS aboul Ihe carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumplions are based on historical experience and otherfactors that are considered lo be relevant. Actual results may differ from these estimates. The estimates and undertying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the eskn'mate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.
PARKINSONS.ME Notes to th• Fthanclal SlalDrnenl¥ Iconllnued Forlh• Y•ar End 30 Aprl 2021 2021 R••rf¢i•d Totsl 10.078 17, 7.103 10.678 17. 7.103 4,gCIJ 12,009 93ll Ic 76) 1tr) 12.620 12.8 1,038 1.038 1th9 FuNI• FLrthry wtlklty 58 Ctabl• ¢dtAtt•• 18.296 Ilojg 15 $hw• ccqts Iw KtsTJ 142 143 14¢ 199 17.379 lJ,743 8.474 2,730 9,204 •71 102 CthmpJterNr(dr4 ¢c4tts 40 135 Tta Tru$tees' 43 144 71 16 4n 201 879 crwb18tl8 478 2D1 879 Twu•s 10