# HAEMOCHROMATOSIS INTERNATIONAL

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1166280
- **Other names:** INTERNATIONAL ALLIANCE OF HAEMOCHROMATOSIS ASSOCIATIONS, IAHA
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 30, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1166280


## Contact

- **Address:** LONG FIELD HOUSE, STATION ROAD, BRATTON FLEMING, BARNSTAPLE
- **Postcode:** EX31 4TZ
- **Phone:** 01598 710239
- **Email:** haemochromatosis.international@gmail.com
- **Website:** http://haemochromatosis-international.org/



## Activities

**Objects:** THE OBJECT OF THE CIO IS, FOR THE PUBLIC BENEFIT, TO PROMOTE AND PROTECT THE HEALTH OF PEOPLE WITH HAEMOCHROMATOSIS IN ANY PART OF THE WORLD, IN PARTICULAR BY:1. INCREASING AWARENESS OF HAEMOCHROMATOSIS,2. PROMOTING ADVANCES IN DIAGNOSIS, TREATMENT, AND PREVENTION OF HAEMOCHROMATOSIS,3. CONTRIBUTING TO BASIC AND CLINICAL RESEARCH IN THE FIELD OF IRON METABOLISM, THROUGH A NETWORK OF COLLABORATING NATIONAL HAEMOCHROMATOSIS ASSOCIATIONS THROUGHOUT THE WORLD.

**Activities:** Haemochromatosis International (HI) is an alliance of haemochromatosis associations, all are welcome. We aim to advance the health of people with haemochromatosis everywhere. Our priorities are:To improve awareness of haemochromatosis throughout the worldThe geographical expansion of the allianceTo develop an internationally recognised set of guidelines for the treatment of haemochromatosis




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Charities Or Voluntary Bodies, Other Defined Groups



## Geography

- Australia
- Brazil
- Canada
- Denmark
- France
- Germany
- Hungary
- Ireland
- Italy
- New Zealand
- Northern Ireland
- Norway
- Portugal
- Scotland
- Spain
- United States
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Andres Alejandro Vadillo Canto |  | Oct. 6, 2024 |
| Dr Christine O&#x27;Leary |  | Nov. 18, 2021 |
| Dr Dianne Margaret Prince |  | Oct. 29, 2024 |
| Emerencia Teixeira |  | April 10, 2016 |
| HOWARD MICHAEL DON |  | April 10, 2016 |
| Ketil Toska |  | Oct. 23, 2018 |
| MIRIAM FORDE |  | Nov. 16, 2020 |
| Melissa Yssel |  | Dec. 8, 2022 |
| Paul Michael Johnston |  | Dec. 8, 2022 |
| Prof Rob Evans |  | Oct. 23, 2018 |




