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2022-12-31-accounts

REGISTERED CHARITY NUMBER: 1165808

REPORT OF THE TRUSTEES AND

UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022 FOR

ANN CONROY TRUST CIO

Read, Milburn & Co 71 Howard Street North Shields Tyne and Wear NE30 1AF

ANN CONROY TRUST CIO

CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022

Page
Report of the Trustees 1 to 4
Independent Examiner's Report 5
Statement of Financial Activities 6
Balance Sheet 7
Notes to the Financial Statements 8 to 13

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022

The trustees present their report with the financial statements of the charity for the year ended 31 December 2022. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

OBJECTIVES AND ACTIVITIES

Objectives and aims

The aims of the Charity continue to be "Support, Education and Research". Ensuring that patients and their families have support when needed has been of paramount importance to the trustees of the Ann Conroy Trust. In addition, the Charity puts in a great deal of effort as regards providing education about the medical conditions that it covers. Such services are provided both for patients and for medical, nursing and other health care workers who may be called upon to treat these conditions. The Charity also offers grants to support research projects when such projects are deemed appropriate and worthy of support.

Public benefit

In explaining how the activities of the charity meet the public benefit of its work, the trustees have met the requirements of the Charities Act 2011.

ACHIEVEMENT AND PERFORMANCE

Support for patients

Providing appropriate support for people living with the neurological disorders Chiari malformation, syringomyelia and associated conditions is seen by the Charity as being a vital part of what we do. Those supported include people living with the conditions, their families and the medical professionals who treat them.

In 2022 the Charity was able to restart our Autumn members meeting, albeit in a new venue. It was lovely to be able to draw our core membership together again post pandemic.

The Charity magazine became a vital lifeline for members in 2022 and the mixture of personal stories, reports on fundraising updates and medical information were enthusiastically received by members.

Our new website was launched to enable us to provide accurate and up to date information and stories for members and the newly diagnosed a like. One of our new Trustees took on the role of Website Liaison Officer, the Trustees see this as a key focus for us so that we fulfil our role of being a source of information for medical practitioners, people living with the condition and their families and carers.

Page 1

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022

ACHIEVEMENT AND PERFORMANCE - continued

Support for healthcare professionals

The British Syringomyelia-Chiari Group continues to meet twice a year, paradoxically the pandemic benefitted attendance at these meetings as being virtual a wider audience was drawn to them. Attendance continues to be higher than at pre-covid times. Meetings are alternately virtual and face to face. At these meetings individual case histories are discussed (anonymously), in order that the presenter (usually a neurosurgeon) can then learn from colleagues who may have had experiences of similar cases. This helps the presenting consultant then to come to a decision as to the best management of the affected individual. Discussions are wide-ranging and provide a unique and invaluable opportunity for specialists who treat syringomyelia and Chiari malformations to gain some understanding about complicated cases and to share views about what should be up-to-date, best practice.

Awareness and fundraising

The Charity continues to support a public Facebook page, to enable us to communicate with members and supporters alike. Merchandise is still a popular awareness-raising tool as well as giving us a way of raising donations.

FINANCIAL REVIEW

Financial position

The charity's income for the period under review amounted to £34,399 (2021 - £21,248). Expenditure amounted to £21,283 (2021 - £9,946). At the balance sheet date total reserves were £513,455 (2021 - £500,339), there were no restricted funds.

The Trustees are giving careful thought to how best to use our reserves for our charitable aims. In the meantime we have taken steps to protect the funds in the event of a banking crisis and also to maximise the interest rates available from mainstream banking. No more than £85,000 is held in any one banking group to ensure we received FSCS protection on all funds.

Reserves policy

There is no formal reserves policy in place. The trustees are considering this as part of our review of the finances of the charity.

Going concern

After making enquiries, the trustees have a reasonable expectation that the charity has adequate resources to continue for the foreseeable future. Accordingly, they continue to adopt the going concern basis in preparing the annual report and accounts.

FUTURE PLANS

The charity remains committed to the support of those living with the conditions of Chiari Malformation and Syringomyelia, the education of medical professionals and the funding of appropriate research.

Page 2

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

The charity is controlled by its constitution, and constitutes a Charitable Incorporated Organisation.

Recruitment and appointment of new trustees

Trustees are appointed via a vote from the current Trustees and are sought to ensure a balance between people living with syringomyelia and/or Chiari malformation and medical advisors/health care professionals who deal with these conditions.

Organisational structure

An executive committee of up to ten trustees manage the charity. All members of the executive committee remain in office until they submit their resignation or are asked to do so by the remainder of the committee.

Induction and training of new trustees

New trustees are given adequate training to meet the requirements of the charity.

Risk management

The trustees have made assessments of the major financial and operating risks that the charity faces and have put in place controls to mitigate or eliminate these risks. They have regular meetings to review the position of the trust and the level of reserves.

REFERENCE AND ADMINISTRATIVE DETAILS

Registered Charity number

1165808

Principal address

The Gateway, 85-101 Sankey Street, Warrington, Cheshire, WA1 1SR

Current Trustees

Mr Graham Flint Miss Julie Millward Mrs Gill Brereton Mr Nicholas Haden Mr Joseph Yates

Chairman Publications Editor Treasurer Medical Advisor Website Liaison Officer

Retiring Trustees

Mr Graham Winstanley (retired September 2022) Mrs Rebecca Dodwell-Pitt (retired October 2023)

Other Officers

Marian Flint

Honorary Secretary

Page 3

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2022

REFERENCE AND ADMINISTRATIVE DETAILS - continued

Medical Advisers

Mr Jay Jayamohan Mrs Sara Kewin Mr Georgios Tsermoulas

Patrons

Mr Jamie McDonald Mr Terry Woods Mrs Barbara Woods

Independent Examiner

Read, Milburn & Co., 71 Howard Street, North Shields, Tyne and Wear, NE30 1AF

Bankers

CAF Bank, 25 Kings Hill Avenue, Kings Hill, West Malling, Kent, ME19 4JQ Flagstone Group Ltd, 1st Floor Clareville House, 26-27 Oxendon Street, London, SW1Y 4EL

STATEMENT OF TRUSTEES' RESPONSIBILITIES

The trustees are responsible for preparing the Report of the Trustees and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

The law applicable to charities in England and Wales, the Charities Act 2011, Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure, of the charity for that period. In preparing those financial statements, the trustees are required to

The trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Approved by order of the board of trustees on 28 October 2023 and signed on its behalf by:

Mr Graham Flint, Chairman

Page 4

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF ANN CONROY TRUST CIO

Independent examiner's report to the trustees of Ann Conroy Trust CIO

I report to the charity trustees on my examination of the accounts of Ann Conroy Trust CIO (the Trust) for the year ended 31 December 2022.

Responsibilities and basis of report

As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').

I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or

  2. the accounts do not accord with those records; or

  3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Nicholas J Liley

Read, Milburn & Co 71 Howard Street North Shields Tyne and Wear NE30 1AF

30 October 2023

Page 5

ANN CONROY TRUST CIO

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2022

2022
Unrestricted
fund
Notes
£
INCOME AND ENDOWMENTS FROM
Donations and legacies
2
22,371
Charitable activities
Charitable activities
6,934
Other trading activities
3
1,200
Investment income
4
3,894
Total
34,399
EXPENDITURE ON
Raising funds
223
Charitable activities
5
Charitable activities
21,660
Total
21,883
NET INCOME
12,516
RECONCILIATION OF FUNDS
Total funds brought forward
500,339
TOTAL FUNDS CARRIED FORWARD
512,855
2021
Total
funds
£
16,886
585
1,111
2,666
21,248
195
9,751
9,946
11,302
489,037
500,339

The notes form part of these financial statements

Page 6

ANN CONROY TRUST CIO

BALANCE SHEET 31 DECEMBER 2022

Notes
CURRENT ASSETS
Debtors
9
Cash at bank and in hand
CREDITORS
Amounts falling due within one year
10
NET CURRENT ASSETS
TOTAL ASSETS LESS CURRENT
LIABILITIES
NET ASSETS
FUNDS
11
Unrestricted funds
TOTAL FUNDS
2022
Total
funds
£
2,120
511,583
513,703
(848)
512,855
512,855
512,855
512,855
512,855
2021
Total
funds
£
2,403
498,766
501,169
(830)
500,339
500,339
500,339
500,339
500,339

The financial statements were approved by the Board of Trustees and authorised for issue on 28 October 2023 and were signed on its behalf by:

Mr Graham Flint, Chairman

Mrs Gill Brereton, Treasurer

The notes form part of these financial statements

Page 7

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.

The presentation currency of the financial statements is the Pound Sterling, rounded to the nearest Pound (£).

Going Concern

The financial statements are prepared on the going concern basis. In the opinion of trustees, no material uncertainties exist about the charity's ability to continue.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Tangible fixed assets

Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.

Improvements to property - 20% on cost Office equipment - 33% on cost and 20% on cost

Taxation

The charity is exempt from tax on its charitable activities.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

continued...

Page 8

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2022

1. ACCOUNTING POLICIES - continued

Debtors

Debtors (including prepayments) are recognised at the settlement amount due (or amount prepaid) .

Cash at bank

Cash at bank includes cash and short term highly liquid investments.

Creditors

Creditors (including accruals) are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors are recognised at their settlement amount.

Irrecoverable VAT

Irrecoverable VAT is charged against the expenditure heading for which it was incurred.

Financial Instruments

All financial assets and financial liabilities of the charity qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value.

2. DONATIONS AND LEGACIES

Donations
Gift aid
Legacies
Subscriptions
OTHER TRADING ACTIVITIES
Fundraising events
Sales of merchandise
2022
£
17,081
438
692
4,160
22,371
2022
£
1,120
80
1,200
2021
£
9,461
61
3,969
3,395
2021
£
9,461
61
3,969
3,395
16,886
2021
£
1,111
-
1,111

3. OTHER TRADING ACTIVITIES

continued...

Page 9

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2022

4. INVESTMENT INCOME
2022 2021
£ £
Interest receivable 3,894 2,666
5. CHARITABLE ACTIVITIES COSTS
Support
Direct costs (see
Costs note 6) Totals
£ £ £
Charitable activities 13,006 8,654 21,660
6. SUPPORT COSTS
Governance
Management costs Totals
£ £ £
Charitable activities 7,916 738 8,654
The following is included within Governance costs
2022 2021
£ £
Independent Examiner's remuneration (including irrecoverable VAT) 738 720
Support costs, included in the above, are as follows:
2022 2021
Charitable Total
activities activities
£ £
Storage 2,742 2,743
Telephone and internet 264 265
Printing, postage and stationery 3,403 3,365
Advertising 160 102
Sundries 205 151
Travel and accommodation - 243
Bank charges 1,142 1,091
Accountancy and legal fees 738 720
8,654 8,680

continued...

Page 10

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2022

7. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 31 December 2022 nor for the year ended 31 December 2021.

Trustees' expenses

Expenses incurred on behalf of the charity amounting to £nil (2021 - £2,656) were reimbursed to 1 trustee.

8. TANGIBLE FIXED ASSETS

Improvements
to
Office
property
equipment
£
£
COST
At 1 January 2022 and
31 December 2022
2,593
1,912
DEPRECIATION
At 1 January 2022 and
31 December 2022
2,593
1,912
NET BOOK VALUE
At 31 December 2022
-
-
At 31 December 2021
-
-
9.
DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2022
£
Other debtors
268
Prepayments and accrued income
1,852
2,120
Totals
£
4,505
4,505
-
-
2021
£
475
1,928
2,403

continued...

Page 11

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2022

10.
CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Other creditors
Accruals and deferred income
11.
MOVEMENT IN FUNDS
At 1/1/22
£
Unrestricted funds
General fund
500,339
TOTAL FUNDS
500,339
Net movement in funds, included in the above are as follows:
Incoming
resources
£
Unrestricted funds
General fund
34,399
TOTAL FUNDS
34,399
Comparatives for movement in funds
At 1/1/21
£
Unrestricted funds
General fund
489,037
TOTAL FUNDS
489,037
2022
2021
£
£
110
110
738
720
848
830
Net
movement
At
in funds
31/12/22
£
£
12,516
512,855
12,516
512,855
Resources
Movement
expended
in funds
£
£
(21,883)
12,516
(21,883)
12,516
Net
movement
At
in funds
31/12/21
£
£
11,302
500,339
11,302
500,339

continued...

Page 12

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2022

11. MOVEMENT IN FUNDS - continued

Comparative net movement in funds, included in the above are as follows:

Incoming Resources Movement
resources expended in funds
£ £ £
Unrestricted funds
General fund 21,248 (9,946) 11,302
TOTAL FUNDS 21,248 (9,946) 11,302

12. RELATED PARTY DISCLOSURES

There were no related party transactions for the year ended 31 December 2022.

Page 13