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2020-12-31-accounts

REGISTERED CHARITY NUMBER: 1165808

REPORT OF THE TRUSTEES AND

UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2020 FOR

ANN CONROY TRUST CIO

Read, Milburn & Co 71 Howard Street North Shields Tyne and Wear NE30 1AF

ANN CONROY TRUST CIO

CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2020

Page
Report of the Trustees 1 to 4
Independent Examiner's Report 5
Statement of Financial Activities 6
Balance Sheet 7
Notes to the Financial Statements 8 to 13
Detailed Statement of Financial Activities 14 to 15

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2020

The trustees present their report with the financial statements of the charity for the year ended 31 December 2020. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

OBJECTIVES AND ACTIVITIES

Objectives and aims

The aims of the Charity continue to be "Support, Education and Research". Ensuring that patients and their families have support when needed has been of paramount importance to the trustees of the Ann Conroy Trust. In addition, the Charity puts in a great deal of effort as regards providing education about the medical conditions that it covers. Such services are provided both for patients and for medical, nursing and other health care workers who may be called upon to treat these conditions. The Charity also offers grants to support research projects when such projects are deemed appropriate and worthy of support.

Public benefit

In explaining how the activities of the charity meet the public benefit of its work, the trustees have met the requirements of the Charities Act 2011.

ACHIEVEMENT AND PERFORMANCE

Support for patients

Providing appropriate support for people living with the neurological disorders Chiari malformation, syringomyelia and associated conditions is seen by the Charity as being a vital part of what we do. Those supported include people living with the conditions, their families and the medical professionals who treat them.

In 2020 the Charity was unfortunately unable to hold our normal members meetings in due to the pandemic and the government restrictions in place at the time.

The Charity magazine became a vital lifeline for members in 2020 and the mixture of personal stories, reports on fundraising updates and medical information were enthusiastically received by members.

During this period the Trustees have been working hard with a web designer to redevelop our website, giving it a fresh new look and new content to ensure we have up to date information readily available for members and the wider community. The Trustees see this as a key focus for us so that we fulfil our role of being a source of information for medical practitioners, people living with the condition and their families and carers.

Support for healthcare professionals

The British Syringomyelia-Chiari Group continues to meet twice a year, although for 2020 these meetings were virtual. At these meetings individual case histories are discussed (anonymously), in order that the presenter (usually a neurosurgeon) can then learn from colleagues who may have had experiences of similar cases. This helps the presenting consultant then to come to a decision as to the best management of the affected individual. Discussions are wide-ranging and provide a unique and invaluable opportunity for specialists who treat syringomyelia and Chiari malformations to gain some understanding about complicated cases and to share views about what should be up-to-date, best practice. Both meetings of the Group were very well attended in 2020.

Page 1

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2020

ACHIEVEMENT AND PERFORMANCE

Awareness and fundraising

The Charity continues to support a public Facebook page, to enable us to communicate with members and supporters alike. Merchandise is still a popular awareness-raising tool as well as giving us a way of raising donations.

FINANCIAL REVIEW

Financial position

The charity's income for the period under review amounted to £153,416 (2019 - £34,453). Expenditure amounted to £10,442 (2019 - £13,371). At the balance sheet date total reserves were £489,037 (2019 - £346,063), there were no restricted funds.

The charity received a substantial legacy in 2020 from Olwyn Baker which, on top the funds held at end of 2019, has considerably boosted our reserves. This has been in a year when our normal activities have been very curtailed.

The Trustees are giving careful thought to how best to use our reserves for our charitable aims. In the meantime we have taken steps to protect the funds in the event of a banking crisis and also to maximise the interest rates available from mainstream banking. No more than £85,000 is held in any one banking group to ensure we received FSCS protection on all funds.

Reserves policy

There is no formal reserves policy in place. The trustees are considering this as part of our review of the finances of the charity.

Going concern

After making enquiries, the trustees have a reasonable expectation that the charity has adequate resources to continue for the foreseeable future. Accordingly, they continue to adopt the going concern basis in preparing the annual report and accounts.

FUTURE PLANS

The charity remains committed to the support of those living with the conditions of Chiari Malformation and Syringomyelia, the education of medical professionals and the funding of appropriate research.

STRUCTURE, GOVERNANCE AND MANAGEMENT Governing document

The charity is controlled by its constitution, and constitutes a Charitable Incorporated Organisation.

Recruitment and appointment of new trustees

Trustees are appointed via a vote from the current Trustees and are sought to ensure a balance between people living with syringomyelia and/or Chiari malformation and medical advisors/health care professionals who deal with these conditions.

Organisational structure

An executive committee of up to ten trustees manage the charity. All members of the executive committee remain in office until they submit their resignation or are asked to do so by the remainder of the committee.

Page 2

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2020

STRUCTURE, GOVERNANCE AND MANAGEMENT Induction and training of new trustees

New trustees are given adequate training to meet the requirements of the charity.

Risk management

The trustees have made assessments of the major financial and operating risks that the charity faces and have put in place controls to mitigate or eliminate these risks. They have regular meetings to review the position of the trust and the level of reserves.

REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number

1165808

Principal address

The Gateway 85-101 Sankey Street Warrington Cheshire WA1 1SR

Trustees

Mr Graham Flint Mrs Rebecca Dodwell-Pitt Prof. James van Dellen Miss Julie Millward Mr Graham Winstanley Mrs Gill Brereton Mr Nicholas Haden

Chairman Nurse Advisor Medical Advisor Publications Editor Assistant Treasurer Treasurer Medical Advisor

Mrs Fiona Adams (retired May 2020) Mrs Lynn Burton (retired May 2020)

Other Officers

Marian Flint

Honorary Secretary

Patrons

Mr Jamie McDonald Mr Terry Woods Mrs Barbara Woods

Independent Examiner

Read, Milburn & Co 71 Howard Street North Shields Tyne and Wear NE30 1AF

Page 3

ANN CONROY TRUST CIO

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2020

REFERENCE AND ADMINISTRATIVE DETAILS

Bankers

CAF Bank 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ

STATEMENT OF TRUSTEES' RESPONSIBILITIES

The trustees are responsible for preparing the Report of the Trustees and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

The law applicable to charities in England and Wales, the Charities Act 2011, Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure, of the charity for that period. In preparing those financial statements, the trustees are required to

The trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Approved by order of the board of trustees on 15 October 2021 and signed on its behalf by:

Mr Graham Flint, Chairman

Page 4

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF ANN CONROY TRUST CIO

Independent examiner's report to the trustees of Ann Conroy Trust CIO

I report to the charity trustees on my examination of the accounts of Ann Conroy Trust CIO (the Trust) for the year ended 31 December 2020.

Responsibilities and basis of report

As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').

I report in respect of my examination of the Trust's accounts carried out under section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the Trust as required by section 130 of the Act; or 2. the accounts do not accord with those records; or

  2. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Nicholas J Liley Institute of Chartered Accountants in England and Wales Read, Milburn & Co 71 Howard Street North Shields Tyne and Wear NE30 1AF

19 October 2021

Page 5

ANN CONROY TRUST CIO

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2020

2020
Unrestricted
fund
Notes
£
INCOME AND ENDOWMENTS FROM
Donations and legacies
2
149,646
Charitable activities
Charitable activities
505
Other trading activities
3
-
Investment income
4
3,265
Total
153,416
EXPENDITURE ON
Raising funds
265
Charitable activities
5
Charitable activities
10,177
Total
10,442
NET INCOME
142,974
RECONCILIATION OF FUNDS
Total funds brought forward
346,063
TOTAL FUNDS CARRIED FORWARD
489,037
2019
Total
funds
£
20,614
1,320
8,845
3,674
34,453
215
13,156
13,371
21,082
324,981
346,063

The notes form part of these financial statements

Page 6

ANN CONROY TRUST CIO

BALANCE SHEET 31 DECEMBER 2020

Notes
FIXED ASSETS
Tangible assets
8
CURRENT ASSETS
Debtors
9
Cash at bank
CREDITORS
Amounts falling due within one year
10
NET CURRENT ASSETS
TOTAL ASSETS LESS CURRENT
LIABILITIES
NET ASSETS
FUNDS
11
Unrestricted funds
TOTAL FUNDS
2020
Total
funds
£
-
1,742
488,144
489,886
(849)
489,037
489,037
489,037
489,037
489,037
2019
Total
funds
£
132
791
345,906
346,697
(766)
345,931
346,063
346,063
346,063
346,063

The financial statements were approved by the Board of Trustees and authorised for issue on .15 October 2021 and were signed on its behalf by:

Mr Graham Flint, Chairman

Mrs Gill Brereton, Treasurer

The notes form part of these financial statements

Page 7

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2020

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Tangible fixed assets

Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.

Improvements to property - 20% on cost Office equipment - 33% on cost and 20% on cost

Taxation

The charity is exempt from tax on its charitable activities.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

Financial instruments

All financial assets and financial liabilities of the charity qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value.

continued...

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ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020

2.
DONATIONS AND LEGACIES
Donations
Gift aid
Legacies
Subscriptions
3.
OTHER TRADING ACTIVITIES
Fundraising events
4.
INVESTMENT INCOME
Interest receivable
5.
CHARITABLE ACTIVITIES COSTS
Charitable activities
2020
£
25,344
241
120,231
3,830
149,646
2020
£
-
2020
£
3,265
2019
£
14,767
461
860
4,526
20,614
2019
£
8,845
2019
£
3,674
Support
costs (see
note 6)
£
10,177

continued...

Page 9

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020

6. SUPPORT COSTS

SUPPORT COSTS
Governance
Management Other costs Totals
£ £ £ £
Charitable activities 9,331 132 714 10,177
The following is included within Governance costs
2020 2019
£ £
Independent Examiner's remuneration (including irrecoverable VAT) 714 702
Support costs, included in the above, are as follows:
2020 2019
Charitable Total
activities activities
£ £
Storage 2,554 2,541
Telephone and internet 428 649
Printing, postage and stationery 5,744 4,124
Advertising 258 -
Sundries 287 222
Travel and accommodation - 429
Bank charges 60 61
Depreciation of tangible fixed assets 132 234
Accountancy and legal fees 714 702
10,177 8,962

7. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 31 December 2020 nor for the year ended 31 December 2019.

continued...

Page 10

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020

7. TRUSTEES' REMUNERATION AND BENEFITS - continued

Trustees' expenses

Expenses incurred on behalf of the charity amounting to £396 (2019 - £118) were reimbursed to 3 (2019 - 2) trustees.

8. TANGIBLE FIXED ASSETS

Improvements
to
Office
property
equipment
£
£
COST
At 1 January 2020 and 31 December 2020
2,593
1,912
DEPRECIATION
At 1 January 2020
2,593
1,780
Charge for year
-
132
At 31 December 2020
2,593
1,912
NET BOOK VALUE
At 31 December 2020
-
-
At 31 December 2019
-
132
9.
DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2020
£
Other debtors
85
Prepayments and accrued income
1,657
1,742
Totals
£
4,505
4,373
132
4,505
-
132
2019
£
-
791
791

continued...

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ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020

10.
CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Other creditors
Accruals and deferred income
11.
MOVEMENT IN FUNDS
At 1/1/20
£
Unrestricted funds
General fund
346,063
TOTAL FUNDS
346,063
Net movement in funds, included in the above are as follows:
Incoming
resources
£
Unrestricted funds
General fund
153,416
TOTAL FUNDS
153,416
Comparatives for movement in funds
At 1/1/19
£
Unrestricted funds
General fund
324,981
TOTAL FUNDS
324,981
2020
2019
£
£
135
64
714
702
849
766
Net
movement
At
in funds
31/12/20
£
£
142,974
489,037
142,974
489,037
Resources
Movement
expended
in funds
£
£
(10,442)
142,974
(10,442)
142,974
Net
movement
At
in funds
31/12/19
£
£
21,082
346,063
21,082
346,063

continued...

Page 12

ANN CONROY TRUST CIO

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020

11. MOVEMENT IN FUNDS - continued

Comparative net movement in funds, included in the above are as follows:

Incoming Resources Movement
resources expended in funds
£ £ £
Unrestricted funds
General fund 34,453 (13,371) 21,082
TOTAL FUNDS 34,453 (13,371) 21,082

12. RELATED PARTY DISCLOSURES

There were no related party transactions for the year ended 31 December 2020.

Page 13

ANN CONROY TRUST CIO

DETAILED STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2020

INCOME AND ENDOWMENTS
Donations and legacies
Donations
Gift aid
Legacies
Subscriptions
Other trading activities
Fundraising events
Investment income
Interest receivable
Charitable activities
Meetings and events
Total incoming resources
EXPENDITURE
Raising donations and legacies
Sundries
Charitable activities
Event costs
Support costs
Management
Storage
Telephone and internet
Printing, postage and stationery
Advertising
Sundries
Travel and accommodation
Bank charges
2020
£
25,344
241
120,231
3,830
149,646
-
3,265
505
153,416
265
-
2,554
428
5,744
258
287
-
60
9,331
2019
£
14,767
461
860
4,526
20,614
8,845
3,674
1,320
34,453
215
4,194
2,541
649
4,124
-
222
429
61
8,026

This page does not form part of the statutory financial statements

Page 14

ANN CONROY TRUST CIO

DETAILED STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2020

Management
Other
Depreciation of tangible fixed assets
Governance costs
Accountancy and legal fees
Total resources expended
Net income
2020
£
132
714
10,442
142,974
2019
£
234
702
13,371
21,082

This page does not form part of the statutory financial statements

Page 15