- ry Childhood Supportingchildren and Youngpeople and thelrFèmilies 8ndCar6r8AffeGtedbya Dlagnosis of hjeurofibromtstosis Type I info@childhoodtumourtrust.org.uk CHILDHOOD TUMOUR TRUST Registered Charity Number 1165777 Trustees. Report and Financial Statements For the year ended 31" March 2025 CONTENTS Organi5ational Information Trustee Annual Report Independent Examinerfs Report Recelpt$ and Payments Account Statement of Assets and Uabllitie5 Notes to the Accounts r't ry Childhood Supportlngchildren 8nd YoungPeople 8nd theirFamllies and CarersAffectod by8 Diagnosis or Neurofibromtjtosis Typ8 1 info@chlldhoodtumourtrusr.org.uk REPORT FOR THE TRusfEES The Commlttee of Chlldhood Tumour Trust pre$ent51ts annual report and ffnanclal statements for the y¢ar ended 31" March 2025. ORGANISATIONAL INFORMATION Nam• of Charlty: Chlldhood Tumour Trust R•%lstered Charlty Number: 1165777 Legal Form: Charltable Incorporated Oryanlsatton iaoi Gov•rnln¥ Document: Constitutton Adopted 26th February Z016 Trustet Commlttee M•mber5'. Martin Pomphret Danlel Coleman Mel larra Klr5ten Samuel Shaylyn D'Arty Vanessa Martin IResl8ned 04.02.251 Joanne Tully (Resigned 13.07.251 Ellzabeth Brooks (Reslgned 21.07.251 lodle Hod8son IReslgned 22.08.251 Kay Ashton IResigned 26.08.251 Sunil Singh (Resigned 09.12.251 Bankers: The Co-operative Bank Independent Examlner: Brenda Peers-Ross r7 P) Childhood Supportingchildren and YoungPeople and theirFamlli8s and Carers Affected by8 Dlagnosis of N8urofibrorn8tosis Type I info@chlldhoodtumourrrust.org.uk REPORT FOR THE TRUSTEES for the yèar ended March 31 . 2025 Structure. Go¥emance and Management Childhood TumourTrust has a commlttee of Trustees governed by a ton5titution. It became a registe￿d charity on the 26 February 2016. Day to Day management of the Association is vested in the Trustees. who are elected and co-opted under the terms of the constitution. thcf Board of Trustees There are currently 10 Tru5tee5 of Childhood Tumour Trust. The Board of Tru5tee5 shall be administered by no less than three and no more than 12 members. The narnes of the Trustee5 are listed above. The Trustees meet once a year in oddltion to monthly and informal meetlng5. Objectlvès To support thildren, young people and thelr families affected by Neurofibromatosis Type l and to raise awareness of NFI wlth medical professiOFtal5. Raise awareness of NFI through campaigning, Working alongside other or8anisations such as In5titvte of Health Visiting and NHS England to improve both dia8nosis and better care of people with NFI. Link people to the bèst information resources for NFI. Fundrnise and organise social events and actfivitres for families and children affected by NFI. Neurofibromatosls Type I INFI) is an Incurable medical condition which very few people have heard CTT Ichlldhood Tumourfrustl supports children aod their families in a varlety of way5. The Past Year Over the past year, Childhood TumourTrust has continued its vltsl work supporting children. young people, and famllies affected by Neurofibromatosis Type I INFII. The charity has expanded rts services and strengthened its community outreach to ensure that those impacted by this condttion receive the support. understandin& and opportunlttes they need. This report outlines our kev artivities, achievements. and the progress we've made over the last 12 months. n7 ry Childhood Supporting Children and Youngpeople gnd theirF8milies and Cgrers Aff8ctscl bya Diagnosis of Neurofibrom8tosis fype Y info@childhoodtumourtrust.org.uk Report For The Trustees forthe yearended March 31 2025. Our alm is to improve understsnding of NFI, reduce isolationi promote wellbeing, provlde education and to advocate for better care and diagnosis. This year we have held- In Person Family Events, the well-estsblished and atten(led Youth Activltv Camp and for the first tlme a weekenil leadership training camp for volunteers. We held Days Out- inclLtding an Irish Zoo TrtP* a trip to Chessington and to Alton Towers. Our online Zoom 5e5s1ons have continued such as Arts and Crafts, Cookery, sign language and themed parties. These help to Trnprove communlcation skills in a supportive environment and encourage self-exprès5ion and encourdge leaming. they also provide an opportunity for children to meet We have Improved our website hL8ely enabling users to engage and find practt(31 help an(J sources. We have delivered natlonal campalgns inclutllng Breast Cancer Awareness, ralslng aWa￿nesS of the Increased risk of breast cancer to women with NFI. Also our campaigns One Degree of Separatton and '5pot the Slgns, which were for Aare D15ease Day to spread awareness of the condition and the Ilnk to so many diffe￿nt medical specialities. We have a150 promoted an aWa￿nesS in Ophthalmology through CPD medla. We have ralsed awareness by featuring in the Rare Disease Supplement of the Telegraph. We have updated our School's PowerPoint resource to enable schools to present to thelr pupils a little about NFI. We have released an animafjon of Patches and the Dia8n05is. Which Is now av8ilable in British Slgn, German, Greek and Danlsh. We have continued to work with Raremlnds, fundlng mental health support. This year we have concentrated on coun5elling 5essions,' one to one counselllng, and couples counselling. For those dia8n05ed with NFI 01 supporting familles with a diagnosls. crr attended the NFI Conference In Brussels and the RCPCH Conference In Glasgow to raise awaret)e5s amongst medical professlonals. Our social media presence is growlng. Our support group for parent$ and carers of children wlth NFI offers essential emotional support, practical advice and a sense of community. It connects frdmilies facing slmilar challenges and provides a space to sha¢E experiences and aC￿sS 5UPPOrt and resources. Our Facebook 5UPPOrt group increa5e5 by approximately 400 member5 per year- 2851 members currently. 6375 followers on Facebook. Our Instagram has around 2000 followers. Across all social medla platform5 crr has around 3500 views per month. TikTok membership is growing. Our May Awareness campalgn was succÈ5sful and led to local media coverdge this year. l ry Childhood Supportingchildren and YoungPeople 8nd theirFamilies and Car8rs Affected bya Diagnosi$ of Neumfibromatosis Type I info@childhoodrumourrrust.org.uk We have continued our collaboration5 wlth Manclte5ter Metropolitan Unlversity and the Patient Led Research Hub. We have met with the Health Minister. The NHS kreening Lead and MPS to push for breast cancer screening for women with NFI from the age of 40. 2000 HCPS each year approximately are completing the CPD and our new CPD module Is on the verge of going live. We attended an NFPU Barcelona meetfngi and 3 Youths attended Rotterdam as Youth Amba55adors. We have been involved wlth a BMJ paperwhich should be published soon, which shows that care of those with NFI needs to improve. We aim to COn￿nUe our Work, reaching out to more families. chlldren and young people affected by NFI with support from our community. partners, and donors. We alm to carry on ralsing awareness of NFI, to contfnue to campal8n for improved care pathways, to continue our classes, days out, c&mps and support group5 and we look forward to another year of maklng a meanin8ful Impact. Public Benefit The Trustees have considered their duty set out In Section 17 of the Charities Art 2011 to have due regard to public benefit guidattce published by the Commission, and in their opinion the forgoing report on the achievements and perfornian￿ demonstrates that they have compiled therewith. The Treasurer ￿ported that thls year had been flnancially stsble and crr had athieved all it had set out to do. Receipts in this year were £186.241 Payments in thls year We￿ £171,320 Bank Balan￿ as of 31 March 2025 £104,762 Childhood TumourTru5t wlll tofttinue to bulld up its reserves to enable the Charity to fulfil Sts c*bjecttves and financlal plans. Approved by the Management Committee on 21, January 2026 and 51gned on thelr behalf bv Mr Dan Coleman Trustee Dated 21st January 2026 (T ry Childhood ILEfft'ioiJf Supportingchildren and Youngpeople and rheir Families 8nd C8r8rsAffected by8 Diagnosis of NeurDfibromarosis Type I info@childhoodrumourtrust.org.uk Chlldhood Tumour Trust Reglstered Chartty IncorporatÈd Organisatlon (CIO) Number 1165777 Receipts and Payments Account For the Perlod Ended 31" March 2025 Notes Unrestricted Restrlcted 2025 2024 Income From Donations Grant5 Legacies Charltsble Aclivities Other Income 127,486 7,558 51,197 127,486 7,558 51,197 140,285 2,793 55,883 Total Income 186,241 186,241 198.961 Ekpendlture Charltable A¢tlvlt1È5 Ralslng Fund5 Charitable Activlties Other Costs 171,321 171,321 167,012 Total Expenditure 171,321 171.321 167,012 Net Income (Expendlturel Transfer Between Fund5 Other Recognised GainsllLossesl'. 14,920 14,920 31,949 Net Movèment In Funds Total Funds Brought Forward 14,920 ,993 14,920 90,993 31,949 59.044 Totsl Fund5 Carrled FoDHard 105,913 15,913 90,993 Cash Fund$ Unrestricted Funds Designated Funds Restricted Funds 105,913 105,913 90,993 105,913 105,913 90,993 Assets: ¢f ry Childhood Supporting Chlldren and Youngpeople end theirFamNlies and Care￿AffeCted bya Diagnosis of Neurofibromatosis Typ8 7 info@childhoodtumourtrusr.org.uk Tanglble Flxed A55ets 1,151 1,151 1.506 Bank Current Accounts Oebtors 104,762 104,762 89,487 105,913 106.913 90.993 Llabilltfes Credltors 19811 19811 11,6491 19811 19811 11,6491 Net Assets 104.932 104,932 89,344 Net Reserves Cash Asset-Bank Flxed Asset Debtors Credltor5 104,762 i.lsi 104,762 1.151 89,498 1,506 19811 19811 11,649 104,932 104,932 89,344 Presented and approved by the Trnstees of Chlldhood Tumour Trust at a meetin8 held on 13 July 2025 Signed on their behalf Mr Dan Co1eman_.arknrn￿" Trustee Dated 21st January 2026 ry Childhood Supportingchildren and Youngpeople and theirFamilies gnd ca￿r$ Affected by8 Diagnosis of Neurofibrom8tosis Type 7 info@childhoodtumourtrust.org.uk Basis of Preparatlon- The Atcounts have been prepared on a Re￿Ipts and Payment basls using historical cost conventions. applicable to UK Accounting Standards and Charities Act 2011. Funds- General funds unrestritted funds which are available tor use at the dlscretion off the Trustees, In furtherance of the general objettlves of the charlty. Designated funds comprise unrestricted funds that have been set aslde by the trijstees, for partlcular purposes. The aim and use of each deslgnated fund is set out in the note5 to the Accounts. Restrltted funds are funds which are to be used In accordance wlth speclfic restrictions Imposed bv the donors or whlch have been raised by the Charity, for particular purposes. The Accounts include all transactions, a55ets and Ilabilities for whlch the Charlty Is responsible for in law. Fixed Assets - No purchase under El,OW is capitalised. If capltalised the asset wlll be deP￿CIated over its vsefttl life. Short life assets will be depwiated over two years. Long life as5Pts 25% strdight Ilne method. Income Income is brought Into account on recelvable basis in the year in which it is recelved. Intanglhle Income Intangible income In the form of donated facilities and voluntary help etc. is not included in the Accounts Since it is not considered practicable to quantify such income. Empendlture Expenditure is stated inclusive of value added tax and is brought Into account in the period In which It Is pald. Costs are allocated to functional headings on the bases ol dirert cost5 on a fair and reasonable basls. Reserve Pollcy The Charity alm to have adequate reserves to meet known commitments and designated funds for Identlfled specific purposes. f ry Childhood Supporting Children 8nLI YoungPeople 8nd theirF8milies and CarersAffected by8 Diagnosis of Neurofibromatosis Type 7 info@childhoodtumourtrust.org.uk Notes Unrestricted Restricted 2025 Restated 2024 Note I Donations Giants Legacies Donation5 Various Clothworkers Foundation Global Charittes Donation Dixie Rose Foundatlon SprinEworks Alexion Other grants Happy Day5 Child Steel Charitable The P & H Frost Foundation Alexion 39.096 5.200 28,890 3,000 10,000 39,096 5,200 28,890 3,000 iO,l)(KJ 7.900 55.295 74,990 I,¢)00 10.000 io,i)00 12,4 1.000 10.000 10,ooD 12,400 iO.¢x)o 127,486 127,486 140.285 Note 2 Charitable Activltles Employment Costs Note 3 Direct, Expenses, Counselling Oepreciation Travel National Travel International Children Outing Artlvities Camp Consulting Subs¢ription5 Postage Freight & Courier Prlnting & Stationery Mer¢handise General Expenses IT, Software & Consumables Telephone & Broadband Governance Accounting & Payroll Insurance ank Charges 29,371 60.841 355 2,740 4,024 44,239 2,666 8.918 1.591 1.039 2,809 51 10,811 89 29,371 60,841 355 2,740 4,024 44.239 2,666 8,918 1,591 1,039 2,809 51 10.811 89 23,551 58,552 1084 5,338 58,034 3,540 1,033 500 950 4,161 1,613 7.088 462 923 848 923 848 328 750 28 171,321 171,321 167,012 Il ry Childhood IEim4Bur Supporting Children and Young People 8nd theirFamilies 8nd CarersAffectedby& Diagnosis of N8urofibromarosis Type I info@childhoodrumourtrust.org.uk Notes Note a Employment Costs Gross Salarie5 Employer Penslon Unrestrlcted Restrlcted 2025 Reststed 2024 28,893 478 28,893 478 21,162 389 29,371 28,171 23,551 No employee earned in exces5 of £60,000 during the year. The average number of employees during the year was 212024.21. Unrestricted Restritted 2025 2024 Note4 Debtors Pre-pald Note 5 Creditors Other HMRC Accrua15- Independent Examlner 11981 iiooii 14501 14211 15601 14211 15601 19811 19811 11.6491 Note 6 Fixed Assets Computers 1,506 Computers C05t 01.04.24 Additions in year 1,506 Balance at 31.05.25 1,506 1,506 Depreciation at 01.04.24 Charge in year 355 Balance at 31.03.25 355 NBVat31.03.25 Ultimate Controlling Party Childhood Tumour Trust is a Charlty Incorporated Organlsation ICIOI and is controlled by the Board of Trustees named in thls report. 1.151 10 ## **Profit and Loss** ## Childhood Tumour Trust For the year ended 31 March 2025 |**Profit and Loss**
Childhood Tumour Trust
For the year ended 31 March 2025|||| |---|---|---|---| |**Account**|**Total**|**General**|**Alton Towers**| |**Income**|||| |Donations|**39,095.62**|37,753.02|136.60| |Participant contributions|**7,563.50**|15.00|3,448.50| |Fundraisingincome|**50,744.41**|48,221.39|170.00| |Other Revenue|**452.85**|342.35|0.00| |Grant income|**88,390.00**|48,500.00|1,000.00| |**Total Income**
**Direct Costs**|**186,246.38**|**134,831.76**|**4,755.10**| |Direct Expenses|**59,001.47**|11,329.02|957.80| |Counselling|**1,840.00**|0.00|0.00| |**Total Direct Costs**|**60,841.47**|**11,329.02**|**957.80**| |**Direct Surplus**|**125,404.91**|**123,502.74**|**3,797.30**| |**Administrative Costs**|||| |Audit&Accountancyfees|**922.50**|922.50|0.00| |Bank Fees|**5.61**|1.57|0.00| |Childrens Outgoing/Activites|**44,239.43**|50.00|14,457.70| |Consulting|**2,666.50**|2,666.50|0.00| |Depreciation Expense|**354.91**|354.91|0.00| |General Expenses|**47.98**|47.98|0.00| |Insurance|**848.46**|848.46|0.00| |IT Software and Consumables|**10,811.27**|10,811.27|0.00| |Pensions Costs|**280.43**|280.43|0.00| |Postage,Freight & Courier|**1,591.46**|1,027.65|0.00| |Printing& Stationery|**1,039.00**|0.00|0.00| |Salaries|**27,890.83**|24,590.83|0.00| |Subscriptions|**8,917.94**|8,261.60|0.00| |Telephone & Internet|**89.07**|89.07|0.00| |Travel - International|**4,024.33**|(282.91)|0.00| |Travel - National|**2,740.25**|650.12|315.54| |Merchandise|**2,809.42**|2,977.92|(67.00)| |**Total Administrative Costs**|**109,279.39**|**53,297.90**|**14,706.24**| |**Surplus/(Outflow)**|**16,125.52**|**70,204.84**|**(10,908.94)**| ||**Building Community**|**Building Community**|||| |---|---|---|---|---|---| |**Chessington**|**YAG Camp**|**Youth Camp**|**Other **|**onsorship Tina**|**Zoom**| ||||||| |20.00|500.00|0.00|0.00|386.00|0.00| |2,595.00|262.00|820.00|103.00|0.00|320.00| |0.00|2,353.02|0.00|0.00|0.00|0.00| |45.00|5.00|0.00|0.00|0.00|15.00| |0.00|0.00|0.00|0.00|0.00|28,890.00| |**2,660.00**|**3,120.02**|**820.00**|**103.00**|**386.00**|**29,225.00**| |24.50|339.39|7,353.26|579.49|7,220.91|0.00| |0.00|0.00|0.00|1,840.00|0.00|0.00| |**24.50**|**339.39**|**7,353.26**|**2,419.49**|**7,220.91**|**0.00**| |**2,635.50**|**2,780.63**|**(6,533.26)**|**(2,316.49)**|**(6,834.91)**|**29,225.00**| ||||||| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|0.00| |5,995.50|250.00|3,706.00|1,422.65|0.00|17,592.58| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|62.36| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|74.72|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|3,300.00| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|0.00| |0.00|0.00|0.00|110.48|0.00|0.00| |289.70|0.00|1,061.00|273.46|0.00|0.00| |0.00|0.00|0.00|0.00|0.00|0.00| |**6,285.20**|**250.00**|**4,841.72**|**1,806.59**|**0.00**|**20,954.94**| |**(3,649.70)**|**2,530.63**|**(11,374.98)**|**(4,123.08)**|**(6,834.91)**|**8,270.06**| |**Research and**|**Education**| |---|---| |**Education**|**Research**| ||| |300.00|0.00| |0.00|0.00| |0.00|0.00| |45.50|0.00| |10,000.00|0.00| |**10,345.50**|**0.00**| |30,191.39|1,005.71| |0.00|0.00| |**30,191.39**|**1,005.71**| |**(19,845.89)**|**(1,005.71)**| ||| |0.00|0.00| |0.00|4.04| |765.00|0.00| |0.00|0.00| |0.00|0.00| |0.00|0.00| |0.00|0.00| |0.00|0.00| |0.00|0.00| |489.09|0.00| |1,039.00|0.00| |0.00|0.00| |0.00|656.34| |0.00|0.00| |4,196.76|0.00| |150.43|0.00| |(101.50)|0.00| |**6,538.78**|**660.38**| |**(26,384.67)**|**(1,666.09)**| ## Profit and Loss Childhood Tumour Trust For the year ended 31 March 2025 ||||Building Community|| |---|---|---|---|---| |Account|Total|General|Alton Towers|Chessington| |Income||||| |Donations|39095.62|37753.02|136.6|20| |Participant contributions|7563.5|15|3448.5|2595| |Fundraising income|50744.41|48221.39|170|0| |Other Revenue|452.85|342.35|0|45| |Grant income|88390|48500|1000|0| |Total Income|186246.38|134831.76|4755.1|2660| |Direct Costs||||| |Direct Expenses|59001.47|11329.02|957.8|24.5| |Counselling|1840|0|0|0| |Total Direct Costs|60841.47|11329.02|957.8|24.5| |Direct Surplus|125404.91|123502.74|3797.3|2635.5| |Administrative Costs||||| |Audit & Accountancy fees|922.5|922.5|0|0| |Bank Fees|5.61|1.57|0|0| |Childrens Outgoing/Activites|44239.43|50|14457.7|5995.5| |Consulting|2666.5|2666.5|0|0| |Depreciation Expense|354.91|354.91|0|0| |General Expenses|47.98|47.98|0|0| |Insurance|848.46|848.46|0|0| |IT Software and Consumables|10811.27|10811.27|0|0| |Pensions Costs|280.43|280.43|0|0| |Postage, Freight & Courier|1591.46|1027.65|0|0| |Printing & Stationery|1039|0|0|0| |Salaries|27890.83|24590.83|0|0| |Subscriptions|8917.94|8261.6|0|0| |Telephone & Internet|89.07|89.07|0|0| |Travel - International|4024.33|-282.91|0|0| |Travel - National|2740.25|650.12|315.54|289.7| |Merchandise|2809.42|2977.92|-67|0| |Total Administrative Costs|109279.39|53297.9|14706.24|6285.2| |Surplus/(Outflow)|16125.52|70204.84|-10908.94|-3649.7| Page 1 Research and Education Education Research |YAG Camp|Youth Camp|Other|Sponsorship Tina|Zoom|Education||Research| |---|---|---|---|---|---|---|---| |500|0|0|386|0||300|0| |262|820|103|0|320||0|0| |2353.02|0|0|0|0||0|0| |5|0|0|0|15||45.5|0| |0|0|0|0|28890||10000|0| |3120.02|820|103|386|29225||10345.5|0| |339.39|7353.26|579.49|7220.91|0||30191.39|1005.71| |0|0|1840|0|0||0|0| |339.39|7353.26|2419.49|7220.91|0||30191.39|1005.71| |2780.63|-6533.26|-2316.49|-6834.91|29225||-19845.89|-1005.71| |0|0|0|0|0||0|0| |0|0|0|0|0||0|4.04| |250|3706|1422.65|0|17592.58||765|0| |0|0|0|0|0||0|0| |0|0|0|0|0||0|0| |0|0|0|0|0||0|0| |0|0|0|0|0||0|0| |0|0|0|0|62.36||0|0| |0|0|0|0|0||0|0| |0|74.72|0|0|0||489.09|0| |0|0|0|0|0||1039|0| |0|0|0|0|3300||0|0| |0|0|0|0|0||0|656.34| |0|0|0|0|0||0|0| |0|0|110.48|0|0||4196.76|0| |0|1061|273.46|0|0||150.43|0| |0|0|0|0|0||-101.5|0| |250|4841.72|1806.59|0|20954.94||6538.78|660.38| |2530.63|-11374.98|-4123.08|-6834.91|8270.06||-26384.67|-1666.09| Page 2