**Trustees' Annual Report for the period**
|**Trustees' Annual Report for the period**|**Trustees' Annual Report for the period**|**Trustees' Annual Report for the period**|**Trustees' Annual Report for the period**|**Trustees' Annual Report for the period**|**Trustees' Annual Report for the period**|**Trustees' Annual Report for the period**|**Trustees' Annual Report for the period**|
|---|---|---|---|---|---|---|---|
|**From**|Period start date|||**To**|Period end date|||
||Day
01|Month
April|Year
2024||Day
31|Month
March|Year
2025|
## **Section A Reference and administration details**
Ring20 Research and Support UK CIO
Charity name Ring20 Research and Support UK CIO Other names charity is known by Registered charity number (if any) 1165651 Charity's principal address Lytchett House, 13 Freeland Park Wareham Road Poole, Dorset BH16 6FA
Names of the charity trustees who manage the charity
|1
2
3
4
5
6|Trustee name|Office (if any)|Dates acted if not
for whole year|Name of person (or body)
entitled to appoint trustee
(if any)|
|---|---|---|---|---|
||Lydia Hirst|Chairperson|||
||Kim Parks|Treasurer|||
||Dale Ward|Patient Representative|||
||Tim Buckinx|PatientRepresentative|||
||Clara Tang|Research|||
||Antonio Gil-Nagel|Chief Medical Advisor|||
||Names of the trustees for the charity, if any, (for example, any custodian trustees)||||
||Name||Dates acted if not for whole year||
||||||
Names and addresses of advisers (Optional information) **Type of adviser** Name Address
Name of chief executive or names of senior staff members (Optional information) Allison Watson – CEO
## **Section B Structure, governance and management**
Description of the charity’s trusts
Type of governing CIO association constitution document
(eg. trust deed, constitution)
CIO association constitution (formed 19 February 2016) How the charity is constituted (eg. trust, association, company) Trustee selection By appointment of registered members at general meetings and by Trustees methods (eg. appointed by, elected by)
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Additional governance issues (Optional information) You **may choose** to Susie Inman acts as Secretary to the Board of Trustees. include additional Ring20 continues to operate with one part-time member of staff (CEO, Allison information, where Watson, 0.4 FTE) supported by a committed group of volunteers and student relevant, about: placements. External consultants are also engaged as required.
• policies and procedures adopted for the induction and training of trustees; • the charity’s organisational structure and any wider network with which the charity works; • relationship with any related parties;
- trustees’ consideration of major risks and Our CEO also volunteers an equivalent amount of unpaid time and oversees all
- the system and operational areas, including family support, research, communications, and
- procedures to volunteer management.
- manage them.
The Board of Trustees meets regularly to review strategic priorities and governance, supported by an International Scientific Advisory Board (SAB) of clinicians and researchers from multiple disciplines and countries. New Trustees are expected to abide by a Code of Conduct, sign a Trustee Declaration Form and a Fit and Proper Persons Form. DBS checks are also carried out.
The SAB is chaired by Dr Antonio Gil-Nagel, Associate Head of Neurology at Ruber International Hospital in Madrid, Spain and is made up of 16 other healthcare researchers and scientists.
Ring20 collaborates extensively with partners across the rare disease and neurological sectors to maximise impact and ensure the voice of our community is represented nationally and internationally. The charity is a member of the following networks:
- Genetic Alliance UK (GAUK): CEO sits on Patient Advisory Group (inputting to the England Rare Diseases Action plan) and UK Patient Empowerment Group (PEG)
- Neurological Alliance, England: CEO represents Ring20 in the Rare Disease subgroup
− CamRARE: CEO attends Companies Forum (2x p.a.) as a Patient Advocacy Group representative and also supports CamRARE/PLRH in developing the Rare Disease Research Network (RDRN) platform
- International Bureau for Epilepsy (IBE) – UK chapter
- EURORDIS, RC NET/RareQOL, Rare Revolution, Rare Epilepsy Network (REN), NCVO
The CEO is also founder of the UK Rare Epilepsies Together (UKRET) network, bringing together charities supporting families affected by rare epilepsies across the UK to improve service delivery across the NHS and drive research.
Section C Objectives and activities
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The objects of the charity are the advancement of health and the relief of disability, by providing support and information to individuals, families, and health professionals affected by Ring Chromosome 20 Syndrome (r(20)), an ultra-rare epilepsy syndrome causing drug-resistant seizures and cognitive challenges. Summary of the objects of the Ring20 Research and Support UK is the only charity dedicated to people charity set out in its governing living with Ring Chromosome 20 Syndrome (r(20)). It was founded by document families, for families, with a simple mission: **to ensure no one faces Ring20 alone** —and to accelerate the research that leads to earlier diagnosis, better treatment, and improved quality of life.
The charity raises funds to help promote research into r(20) with the aim of improving overall quality of life for those living with the disease.
Ring chromosome 20 syndrome [r(20)] is a rare epilepsy syndrome with Summary of the main activities case numbers likely to be under-reported worldwide due to lack of undertaken for the public benefit awareness of the signs and symptoms and under-diagnosis. in relation to these objects (include within this section the **How the charity helps:** statutory declaration that Provides Services trustees have had regard to the Provides Advocacy/advice/information guidance issued by the Charity Trustees confirm they have had due regard to the Charity Commission’s Commission on public benefit) guidance on public benefit in planning and delivering the charity’s activities.
Additional details of objectives and activities (Optional information)
|You**may choose**to include
further
statements,
where
relevant, about:
•
policy on grantmaking;
•
policy programme related
investment;
•
contribution
made
by
volunteers.|The Ring20 Trustees would like to thank our volunteers for their support
throughout the year.
Special mention should go to our key volunteers during the period:
Belinda Hunt (Bid Writing)
Ian Allen (Accounts/Payroll)
Kallif Garlicki (Step Into The Ring)
Laura Giordana (Italian families support)
Several of our family members act as Ring20 Champions, meeting
regularly helping to connect families in their own countries/languages.
Dale Ward (UK)
Yvonne Goodson (UK)
Andre Reis e Silva (Portugal)
Steve Baumley (USA)
Junko Okuda (USA/Japan)
Tim Buckinx (Belgium/Netherlands)
Arantxa Miralles (Spain)
Thanks also go to those who provided pro bono support during the year:
Unikoo (formerly BlueZoo): helping to schedule our social media|
|---|---|
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Section D Achievements and performance
Summary of the main **Families Support / Information Services** achievements of the charity during the year
During 2024–25, Ring20 continued to be a vital source of information, connection, and emotional support for families living with r(20) worldwide.
We reached families in over 20 countries and supported more than 160 family members through peer-to-peer contact, social media engagement, and regular online meetings.
Our **peer support network** —including our Ring20 Champions—played a pivotal role in helping families navigate the challenges of daily life with r(20). Champions offered one-to-one contact, facilitated introductions between new and existing members, and supported translation of resources into multiple languages, ensuring inclusivity across our global community.
We delivered **online “Coffee and Chat” sessions** and dedicated **“Step Into the Ring” peer meetings** for adults living with r(20). These safe and supportive spaces allowed participants to share experiences, reduce isolation, and build confidence in managing their condition. Feedback consistently highlights the value of these sessions in helping families feel heard and less alone.
Our **website and digital channels** remain the central hub for reliable information on r(20). Content is automatically translated into nine languages, extending our reach to clinicians and families worldwide. Updates are shared regularly through e-newsletters and social media, helping to raise awareness among healthcare professionals and the public alike.
Ring20 continues to provide **direct one-to-one support** to families by phone, email, and video calls, offering guidance on clinical care, education, and emotional wellbeing. Families often tell us that we are “the only organisation that truly understands” their situation.
This year, we also began planning for the launch of a **Family Liaison Pilot** , aiming to offer a single trusted point of contact for families seeking personalised advice on education, health, and social care. This initiative, dependent on future funding, will strengthen our support model and ensure consistency of care for newly diagnosed families.
## **Promoting Opportunities for, and Participating in Research**
Our research activities are directly informed by the lived experiences of families, ensuring that future studies address the most pressing challenges faced by those affected by r(20).”
We continued to build on the success of the 2024 “Impact of Living with Ring Chromosome 20 Syndrome” study, using findings to shape policy discussions and awareness campaigns.
Our collaboration with clinicians, academic researchers, and genomic partners such as Illumina are helping to advance understanding of structural chromosomal abnormalities often missed by standard genetic testing.
We actively contributed to sector-wide meetings, including the Rare Disease Research Network, and engaged in discussions to improve clinical recognition and pathways for diagnosis.
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Section D Achievements and performance
## **Training and Mentoring**
Our CEO participated in leadership training and mentoring programmes through Beacon for Rare Diseases to strengthen our impact across research and policy arenas, including the Decoding Diagnostics, Mentoring Programme, and Patient Group Pathway. These initiatives strengthened our advocacy capacity and built our skills for engaging effectively across the research and healthcare landscape. Ring20 also hosted and mentored university placement students from Aston University, who supported our outreach efforts.
## **Achievements in Research, Advocacy and Education**
Throughout 2024–25, Ring20 built new alliances and strengthened relationships across the rare-disease ecosystem — participating in key events and collaborative networks to amplify the voices of families affected by r(20). These partnerships are essential in driving change — from clinical recognition to policy advocacy.
|Throughout 2024–25, Ring20 built new alliances and strengthened
relationships across the rare-disease ecosystem — participating in key
events and collaborative networks to amplify the voices of families
affected by r(20).
These partnerships are essential in driving change — from clinical
recognition to policy advocacy.|Throughout 2024–25, Ring20 built new alliances and strengthened
relationships across the rare-disease ecosystem — participating in key
events and collaborative networks to amplify the voices of families
affected by r(20).
These partnerships are essential in driving change — from clinical
recognition to policy advocacy.|
|---|---|
|During the year, Ring20 engaged widely across the sector, presenting,||
|attending, and contributing to multiple events, meetings, and||
|collaborations.||
|**We**|**presented at:**|
|−|Aspire Biosciences Rare Neurology / CNS Partnering Cohort|
|−|RAREfest24|
|−|World Orphan Drug Congress|
|−|British Paediatric Neurology Annual Conference|
|−|Rare Disease Research UK co-production webinar|
|**We**|**represented Ring20 at:**|
|−|Young Epilepsy / Epilepsy Research Institute (May 2024)|
|−|EDIRA Building Trust Symposium (June 2024)|
|−|BPNA Stakeholder Engagement Meeting (Sept 2024)|
|−|UKRET Challenges to Diagnosis, Treatment and Care Roundtable|
||(Sept 2024)|
|−|UKRET Solutions to Diagnosis, Treatment and Care Roundtable (Mar|
||2024)|
|−|PPP Rare Disease Insights Report Launch (Nov 2024)|
|−|Festival of Genomics (Jan 2025)|
|−|Rare Disease Day Parliamentary Reception (Feb 2025)|
|**We**|**contributed to meetings and workshops as a Patient Advocacy**|
|**Expert at:**||
|−|CamRARE Companies Forum (May & Dec 2024)|
|−|Genetic Alliance UK Rare Disease Patient Advisory Group (PAG) –|
||including input to the NHS 10-Year Plan|
|−|UK Rare Disease Patient Empowerment Group (PEG) – including|
||input to the Quality Standard on Rare Conditions|
|−|Rare Disease Research Network|
|−|UCB Hosted Patient Organisation Day|
|−|DHSC Rare Disease Workshop|
|−|UCB Rare Epilepsies Workshop|
|−|Rare Disease Individualised Therapies System Information Day|
|−|Gene People Symposium|
|−|AMRC & Genetic Alliance 10-Year Plan for Health Workshop|
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## Section D Achievements and performance
- Patient Engagement (for Genomics England)
- CREA / E+
## **We engaged with Pharma & industry:**
- LifeArc
- Oxford Nanopore
- − Lundbeck
- Aparito
- Acadia
- PacBio
- Mendelian
- − UCB
Through these activities, Ring20 has continued to raise awareness of r(20) across scientific, clinical, and policy arenas, positioning the charity as a key voice in rare epilepsy advocacy.
## **Leadership**
Our CEO founded and leads the UK Rare Epilepsies Together (UKRET) network and represented Ring20 and UKRET during the:
- NICE HTA appeal process for Fenfluramine, successfully contributing to its approval for Lennox–Gastaut Syndrome — a meaningful outcome for the rare epilepsy community.
- Both The Challenges and the Solutions Roundtables building: A Case for Change for Rare and Complex Epilepsies in the UK
## Section E Financial review
Brief statement of the charity’s The charity maintains restricted funds dedicated to specific projects, policy on reserves including family support and research activities.
Our restricted funds currently total £104,695 comprised as follows:
**----- Start of picture text -----**
Restricted Funds 2024-25
£90,000
£80,000
£70,000
£60,000
£50,000
£40,000
£30,000 2024
£20,000
2025
£10,000
£0
Families
Illumina Research
Conference
2024 £21,710 £1,654 £80,262
2025 £21,710 £0 £82,985
**----- End of picture text -----**
We are currently evaluating applications for our Research Fund following an Open Call offering a grant of up to £80,000 to be awarded for innovative research into r(20) syndrome.
We plan to use our Families Conference fund towards the delivery of an event for families in Q3 2026.
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General reserves are held in cash to ensure operational stability and cover unforeseen events. The trustees aim to hold reserves sufficient to cover approximately six months of operating costs.
|The general reserves are the unspent unrestricted funds of the charity.|
|---|
|The charity currently owns no fixed assets, so the general reserve is held|
|in cash. The general reserve is therefore the free reserves of the charity|
|**plus any designated funds**, also termed ‘unrestricted funds’ in the|
|charity’s balance sheet. The purpose of the general reserve is:|
| To fund working capital and time lags in the receipt of promised|
|funds|
|To fund unexpected expenditure, e.g., when projects overrun, or|
|unplanned events occur|
|Manage economic or regulatory changes which may have|
|unforeseen financial consequences|
|We assess the level of general reserve needed by looking forward and|
|considering the risks to our funding balanced against our expenditure|
|commitments. Future plans show levels of committed expenditure for|
|which we are seeking funding, but to ensure we can continue to operate|
|in accordance with our plans, we hold free reserves in the range £10,000|
|- £12,000 to cover unfunded committed costs for 6 months.|
|**General Reserves before funds designated**
**£ 45,178**|
|**_Designated Funds towards next financial year 2025-26_**|
|**_Personnel_**|
|Salaries (6 months)
£ 8,623|
|Family Liaison Officer
£ 6,000|
|Virtual Assistant
£ 2,500|
|Bid Writer
£ 6,000|
|**_Other Expenditure_**|
|Events
£ 2,500|
|CRM
£ 1,200|
|Overheads (6 months)
£ 1,717|
|FLO Costs
£ 3,000|
|**TOTAL FREE RESERVES**
**£ 13,639**|
|Our general reserve as at 31 March 2025 was £45,178 (of which £31,539|
|has been designated as above) leaving £13,639 of Free Reserves, which|
|is a little more than the reserves policy recommends.|
Details of any funds materially in deficit
n/a
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## Further financial review details (Optional information)
You **may choose** to include additional information, where relevant about:
- the charity’s principal sources of funds (including any fundraising);
- how expenditure has supported the key objectives of the charity;
- investment policy and objectives including any ethical investment policy adopted.
## **Income**
Our income reflects a strong year of community engagement and collaboration, with a continued focus on diversifying our funding streams including the introduction of consultancy services.
Year on year donations and community fundraising are lower, reflecting the impact of the cost-of-living crisis on individual giving. The widely reported significant rise in grant requests received by Trusts and Foundations due to the current economic situation and the influx of AI applications has impacted on our ability to secure funds via this revenue stream, despite our increased efforts.
During the financial year ending 31 March 2025, Ring20 generated income of £37,103, comprised of:
**----- Start of picture text -----**
Income 2024-25
£30,000
£25,000
£20,000
£15,000
£10,000
£5,000
£0
Community Consultancy Bank Grant
Donations
fundraising Services Interest Funding
2024 £18,140 £25,765 £0 £2,247 £4,000
2025 £8,090 £16,470 £8,320 £2,723 £1,500
2024 2025
**----- End of picture text -----**
## **Expenditure**
To mitigate against lower revenue generation, we invested in a CRM and Virtual PA increasing capacity to allow us to continue to deliver services.
During the financial year ending 31 March 2025, Ring20 expenditure totaled £35,758 comprised of:
**----- Start of picture text -----**
Expenditure 2024-25
£20,000
£15,000
£10,000
£5,000
£0
Expeditu
Director Hosting Attendin Core Virtual
re on CRM
salaries events g events costs PA
Services
2024 £17,246 £185 £2,581 £0 £2,500 £0 £0
2025 £17,245 £5,840 £4,049 £3,275 £2,575 £1,439 £1,335
**----- End of picture text -----**
## **Section F Other optional information**
## **Looking Ahead**
In 2025–26, Ring20 aims to expand peer support services, strengthen research collaborations, and secure additional funds to launch our Family Liaison Pilot, ensuring that every person affected by r(20) has access to the information, care, and connection they need.
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## Section G Declaration
The trustees declare that they have approved the trustees’ report above.
|Section G Declaration
The trustees declare that they have approved the trustees’ report above.|Section G Declaration
The trustees declare that they have approved the trustees’ report above.|Section G Declaration
The trustees declare that they have approved the trustees’ report above.|
|---|---|---|
|Signed on behalf of the charity’strustees
Signature(s)
Full name(s)
LydiaHirst
Kim Parks
Position (eg Secretary, Chair,
etc)
Chair
Treasurer
Date
28 / 11 / 2025|||
||||
||||
||LydiaHirst|Kim Parks|
||||
||
Chair|Treasurer|
||28 / 11 / 2025||
||28 / 11 / 2025||
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Audit trail
Sign
Ring20 Trustee Report Title Ring20_Annual_Tru...2024-25_FINAL.pdf File name Document ID f9125e5b3709f9c343aa95b98951b4b4c1d3609c Audit trail date format DD / MM / YYYY Status Signed
**28 / 11 / 2025** Sent for signature to Kim Parks (kim@parksbookkeeping.co.uk) 11:28:53 UTC and Lydia Hirst (lydia@ring20researchsupport.co.uk) from allison@ring20researchsupport.co.uk IP: 95.145.34.45 **28 / 11 / 2025** Viewed by Kim Parks (kim@parksbookkeeping.co.uk) 11:32:20 UTC IP: 90.202.124.226 **28 / 11 / 2025** Signed by Kim Parks (kim@parksbookkeeping.co.uk) 11:32:53 UTC IP: 90.202.124.226 **28 / 11 / 2025** Viewed by Lydia Hirst (lydia@ring20researchsupport.co.uk) 13:41:29 UTC IP: 80.192.61.21 **28 / 11 / 2025** Signed by Lydia Hirst (lydia@ring20researchsupport.co.uk) 13:41:59 UTC IP: 80.192.61.21 **28 / 11 / 2025** The document has been completed. 13:41:59 UTC
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# **RING20 RESEARCH AND SUPPORT UK CIO**
Charity number 1165651
**FINANCIAL STATEMENTS FOR THE YEAR ENDED 31st MARCH 2025**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **CONTENTS FOR THE YEAR ENDED 31 MARCH 2025**
||Page|
|---|---|
|Statement of financial activities|1|
|Balance Sheet|2|
|Notes to the financial statements|3-4|
|Independent examiner's report|5|
**RING20 RESEARCH AND SUPPORT UK CIO**
## **STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MARCH 2025**
|**Note**
**Incoming resources from charitable activities:**
Donations and legacies
**2**
Charitable activities
**3**
**Total income**
**Resources expended**
**Charitable payments**
Charitable activities
**4**
Fundraising expenditure
**Total expenditure**
**Net receipts/(payments)**
**Transfer between funds**
**Change in accounting policy**
**Net of receipts/(payments)**
**Cash funds brought forward**
**5**
**Cash funds carried forward**
**5**|**Unrestricted**
**Fund**
**£**
2,797
24,243|**Restricted**
**2025**
**Fund**
**Total**
**£**
**£**
5,293
8,090
4,770
29,012
**10,063**
**37,103**
7,349
35,758
-
-
**7,349**
**35,758**
**2,714**
**1,344**
(1,645)
-
-
(248)
**1,069**
**1,096**
103,626
148,777
**104,695**
**149,873**|
|---|---|---|
||**27,040**
28,409
-||
||**28,409**||
||**(1,369)**
1,645
(248)||
||**28**
45,151||
||**45,179**||
The notes on page 3 - 4 form part of these accounts
**1**
## **RING20 RESEARCH AND SUPPORT UK CIO**
## **BALANCE SHEET AS AT 31 MARCH 2025**
|||**2025**|
|---|---|---|
||**Notes**|**£**|
|**Current assets**|||
|Cash at bank and in hand||143,996|
|Debtors|**5**|8,398|
|||**152,394**|
|**Current liabilities**|||
|Creditors|**6**|2,521|
||**6**|-|
|||**2,521**|
|**Total assets less liabilities**||**149,873**|
|**Represented by**|||
|Unrestricted funds|**5**|45,179|
|Restricted funds|**5**|104,695|
|||**149,873**|
These accounts were approved by the Trustees, and signed on their behalf by:
Trustee: Name: Kim Parks
Date: 28/11/2025
**2**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025**
## **1. Accounting policies**
## **Basis of the preparation of the accounts**
From this financial period, the accounts have been completed on an accruals basis. Previously the accounts were prepared on a cash basis. The change in accounting policy has been made by the trustees to better reflect the financials for each year. As a result of the change of policy, there are no comparative figures for the year ended 31 March 2025.
## **Incoming resources**
All material incoming resources have been included on a receivable basis i.e. they are included if the date receivable falls within the period covered by these accounts.
## **Resources expended**
These have been analysed using a natural classification.
## **Going Concern**
The charity is operating on a going concern basis.
|**2. Donations**
General donations
**3. Charitable Activities**
Grant funding
Member fundraising
Services income
Bank interest received
**4. Expenditure from charitable activities**
Attending conferences & events
Hosting conferences & events
Cost of sales
Literature & materials
Website & emails
Accountancy, examination & audit
Director salaries
Wages & salaries
Office expenditure
Bank charges
Computer costs
Insurances
Postage
Subscriptions
Telephone
Training & DBS costs|**Unrestricted**
**Fund**
**£**
2,797
**2,797**
**Unrestricted**
**Fund**
**£**
-
16,470
7,773
-
**24,243**
**Unrestricted**
**Fund**
**£**
655
1,885
3,275
77
197
680
17,245
1,335
199
87
1,623
374
115
333
300
30
**28,409**|**Restricted**
**Fund**
**£**
5,293
**5,293**
**Restricted**
**Fund**
**£**
1,500
-
547
2,723
**4,770**
**Restricted**
**Fund**
**£**
849
6,500
-
-
-
-
-
-
-
-
-
-
-
-
**7,349**|**Total**
**2025**
**£**
8,090
**8,090**
**Total**
**2025**
**£**
1,500
16,470
8,320
2,723
**29,012**
**Total**
**2025**
**£**
1,504
8,385
3,275
77
197
680
17,245
1,335
199
87
1,623
374
115
333
300
30
**35,758**|**Total**
**2024**
**£**
18,140|
|---|---|---|---|---|
|||||**18,140**|
|||||**Total**
**2024**
**£**
4,000
25,765
-
2,247|
|||||**32,012**|
|||||**Total**
**2024**
**£**
2,581
185
-
189
374
250
17,246
-
353
95
219
360
109
277
199
75|
|||||**22,512**|
**3**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025**
|**5. Debtors**
Trade Debtors
**6. Creditors**
Accruals
Taxes and Social Security
**4. Funds analysis**
**Unrestricted**
Running costs
Fundraising
**Designated funds**
Salaries
Overheads
**Restricted funds**
Family Conference
Illumina Research Project
Research Funds
Race Day
Info Materials
**Total restricted funds**
**Totals**|**Balance**
**at 01/04/25**
**£**
28,832
-
13,319
3,000
**45,151**
21,710
1,654
80,262
-
-
**103,626**
**148,777**|**Incoming**
**Funds**
**£**
10,570
16,470
-
-
**27,040**
-
-
2,723
5,840
1,500
**10,063**
**37,103**|**Expended**
**Funds**
**£**
(8,412)
-
(17,245)
(3,000)
**(28,657)**
-
-
-
(5,840)
(1,509)
**(7,349)**
**(36,006)**|**Transfers**
**in/out**
**£**
(2,281)
-
3,926
-
**1,645**
-
(1,654)
-
-
9
**(1,645)**
**-**|**Total**
**2025**
**£**
8,398|
|---|---|---|---|---|---|
||||||**8,398**|
||||||**Total**
**2025**
**£**
3,615
1,094
-|
||||||**2,521**|
||||||**Balance**
**at 31/03/25**
**£**
**28,709**
**16,470**
**-**
**-**|
||||||**45,179**
**21,710**
**-**
**82,985**
**-**
**-**|
||||||**104,695**|
||||||**149,874**|
## **5. Trustee payments**
During the previous financial year, one trustee was remunerated £17,246 as wages during the year. This trustee resigned on the January 2024, and therefore the amount detailed as trustee payments is Nil for this financial year.
## **6. Related party transactions**
There were no related party transactions during the year.
## **7. Key management personnel**
No staff have earned more than £60,000 during the year.
**4**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 MARCH 2025**
I report on the accounts of Ring20 Research and Support UK CIO for the year ended 31 March 2025 which are set out on pages 1 to 4.
## **Respective responsibilities of trustees and examiner**
The Charity’s Trustees are responsible for the preparation of the accounts. The Charity’s Trustees consider that an audit is not required for this year (under section 144 (2) of the Charities Act 2011 (The Act) but that an independent examination is needed.
It is my responsibility to:
- Examine the accounts under section 145 of the Charities Act,
- To follow the procedures laid down in the General Directions given by the Charity Commissioners (under section 145(5)(b) of the Charities Act, and
- To state whether particular matters have come to my attention.
## **Basis of independent examiner’s Statement**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes considerations of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently I do not express an audit opinion on the view given by the accounts.
## **Independent examiner’s statement**
In the course of my examination, no material matters have come to my attention which gives me cause to believe that in, any material respect:
- the accounting records were not kept in accordance with section 130 of the Charities Act; or
- the accounts did not accord with the accounting records; or
- the accounts did not comply with the applicable requirements concerning the form and content of the accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair' view which is not a matter considered as part of an independent examination.
I have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
David Courtier FMAAT AATQB for and on behalf of:
Community360 Winsley’s House, High Street, Colchester, Essex
Date: 28/11/2025
**5**
# **RING20 RESEARCH AND SUPPORT UK CIO**
Charity number 1165651
**FINANCIAL STATEMENTS FOR THE YEAR ENDED 31st MARCH 2025**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **CONTENTS FOR THE YEAR ENDED 31 MARCH 2025**
||Page|
|---|---|
|Statement of financial activities|1|
|Balance Sheet|2|
|Notes to the financial statements|3-4|
|Independent examiner's report|5|
**RING20 RESEARCH AND SUPPORT UK CIO**
## **STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MARCH 2025**
|**Note**
**Incoming resources from charitable activities:**
Donations and legacies
**2**
Charitable activities
**3**
**Total income**
**Resources expended**
**Charitable payments**
Charitable activities
**4**
Fundraising expenditure
**Total expenditure**
**Net receipts/(payments)**
**Transfer between funds**
**Change in accounting policy**
**Net of receipts/(payments)**
**Cash funds brought forward**
**5**
**Cash funds carried forward**
**5**|**Unrestricted**
**Fund**
**£**
2,797
24,243|**Restricted**
**2025**
**Fund**
**Total**
**£**
**£**
5,293
8,090
4,770
29,012
**10,063**
**37,103**
7,349
35,758
-
-
**7,349**
**35,758**
**2,714**
**1,344**
(1,645)
-
-
(248)
**1,069**
**1,096**
103,626
148,777
**104,695**
**149,873**|
|---|---|---|
||**27,040**
28,409
-||
||**28,409**||
||**(1,369)**
1,645
(248)||
||**28**
45,151||
||**45,179**||
The notes on page 3 - 4 form part of these accounts
**1**
## **RING20 RESEARCH AND SUPPORT UK CIO**
## **BALANCE SHEET AS AT 31 MARCH 2025**
|||**2025**|
|---|---|---|
||**Notes**|**£**|
|**Current assets**|||
|Cash at bank and in hand||143,996|
|Debtors|**5**|8,398|
|||**152,394**|
|**Current liabilities**|||
|Creditors|**6**|2,521|
||**6**|-|
|||**2,521**|
|**Total assets less liabilities**||**149,873**|
|**Represented by**|||
|Unrestricted funds|**5**|45,179|
|Restricted funds|**5**|104,695|
|||**149,873**|
These accounts were approved by the Trustees, and signed on their behalf by:
Trustee: Name: Kim Parks
Date: 28/11/2025
**2**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025**
## **1. Accounting policies**
## **Basis of the preparation of the accounts**
From this financial period, the accounts have been completed on an accruals basis. Previously the accounts were prepared on a cash basis. The change in accounting policy has been made by the trustees to better reflect the financials for each year. As a result of the change of policy, there are no comparative figures for the year ended 31 March 2025.
## **Incoming resources**
All material incoming resources have been included on a receivable basis i.e. they are included if the date receivable falls within the period covered by these accounts.
## **Resources expended**
These have been analysed using a natural classification.
## **Going Concern**
The charity is operating on a going concern basis.
|**2. Donations**
General donations
**3. Charitable Activities**
Grant funding
Member fundraising
Services income
Bank interest received
**4. Expenditure from charitable activities**
Attending conferences & events
Hosting conferences & events
Cost of sales
Literature & materials
Website & emails
Accountancy, examination & audit
Director salaries
Wages & salaries
Office expenditure
Bank charges
Computer costs
Insurances
Postage
Subscriptions
Telephone
Training & DBS costs|**Unrestricted**
**Fund**
**£**
2,797
**2,797**
**Unrestricted**
**Fund**
**£**
-
16,470
7,773
-
**24,243**
**Unrestricted**
**Fund**
**£**
655
1,885
3,275
77
197
680
17,245
1,335
199
87
1,623
374
115
333
300
30
**28,409**|**Restricted**
**Fund**
**£**
5,293
**5,293**
**Restricted**
**Fund**
**£**
1,500
-
547
2,723
**4,770**
**Restricted**
**Fund**
**£**
849
6,500
-
-
-
-
-
-
-
-
-
-
-
-
**7,349**|**Total**
**2025**
**£**
8,090
**8,090**
**Total**
**2025**
**£**
1,500
16,470
8,320
2,723
**29,012**
**Total**
**2025**
**£**
1,504
8,385
3,275
77
197
680
17,245
1,335
199
87
1,623
374
115
333
300
30
**35,758**|**Total**
**2024**
**£**
18,140|
|---|---|---|---|---|
|||||**18,140**|
|||||**Total**
**2024**
**£**
4,000
25,765
-
2,247|
|||||**32,012**|
|||||**Total**
**2024**
**£**
2,581
185
-
189
374
250
17,246
-
353
95
219
360
109
277
199
75|
|||||**22,512**|
**3**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025**
|**5. Debtors**
Trade Debtors
**6. Creditors**
Accruals
Taxes and Social Security
**4. Funds analysis**
**Unrestricted**
Running costs
Fundraising
**Designated funds**
Salaries
Overheads
**Restricted funds**
Family Conference
Illumina Research Project
Research Funds
Race Day
Info Materials
**Total restricted funds**
**Totals**|**Balance**
**at 01/04/25**
**£**
28,832
-
13,319
3,000
**45,151**
21,710
1,654
80,262
-
-
**103,626**
**148,777**|**Incoming**
**Funds**
**£**
10,570
16,470
-
-
**27,040**
-
-
2,723
5,840
1,500
**10,063**
**37,103**|**Expended**
**Funds**
**£**
(8,412)
-
(17,245)
(3,000)
**(28,657)**
-
-
-
(5,840)
(1,509)
**(7,349)**
**(36,006)**|**Transfers**
**in/out**
**£**
(2,281)
-
3,926
-
**1,645**
-
(1,654)
-
-
9
**(1,645)**
**-**|**Total**
**2025**
**£**
8,398|
|---|---|---|---|---|---|
||||||**8,398**|
||||||**Total**
**2025**
**£**
3,615
1,094
-|
||||||**2,521**|
||||||**Balance**
**at 31/03/25**
**£**
**28,709**
**16,470**
**-**
**-**|
||||||**45,179**
**21,710**
**-**
**82,985**
**-**
**-**|
||||||**104,695**|
||||||**149,874**|
## **5. Trustee payments**
During the previous financial year, one trustee was remunerated £17,246 as wages during the year. This trustee resigned on the January 2024, and therefore the amount detailed as trustee payments is Nil for this financial year.
## **6. Related party transactions**
There were no related party transactions during the year.
## **7. Key management personnel**
No staff have earned more than £60,000 during the year.
**4**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 MARCH 2025**
I report on the accounts of Ring20 Research and Support UK CIO for the year ended 31 March 2025 which are set out on pages 1 to 4.
## **Respective responsibilities of trustees and examiner**
The Charity’s Trustees are responsible for the preparation of the accounts. The Charity’s Trustees consider that an audit is not required for this year (under section 144 (2) of the Charities Act 2011 (The Act) but that an independent examination is needed.
It is my responsibility to:
- Examine the accounts under section 145 of the Charities Act,
- To follow the procedures laid down in the General Directions given by the Charity Commissioners (under section 145(5)(b) of the Charities Act, and
- To state whether particular matters have come to my attention.
## **Basis of independent examiner’s Statement**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes considerations of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently I do not express an audit opinion on the view given by the accounts.
## **Independent examiner’s statement**
In the course of my examination, no material matters have come to my attention which gives me cause to believe that in, any material respect:
- the accounting records were not kept in accordance with section 130 of the Charities Act; or
- the accounts did not accord with the accounting records; or
- the accounts did not comply with the applicable requirements concerning the form and content of the accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair' view which is not a matter considered as part of an independent examination.
I have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
David Courtier FMAAT AATQB for and on behalf of:
Community360 Winsley’s House, High Street, Colchester, Essex
Date: 28/11/2025
**5**