|Trustees' Annual Report for the period|Trustees' Annual Report for the period|Trustees' Annual Report for the period|Trustees' Annual Report for the period|Trustees' Annual Report for the period||||
|---|---|---|---|---|---|---|---|
|From|Period start date|||**To**|Period end date|||
||Day
01|Month
April|Year
2023||Day
31|Month
March|Year
2024|
## **Section A Reference and administration details**
Charity name Ring20 Research and Support UK CIO Other names charity is known by Registered charity number (if any) 1165651 Charity's principal address Lytchett House, 13 Freeland Park Wareham Road Poole, Dorset **Postcode BH16 6FA**
## Names of the charity trustees who manage the charity
|1
2
3
4
5|Trustee name|Office (if any)|Dates acted if not for
whole year|Name of person (or body)
entitled to appoint trustee (if
any)|
|---|---|---|---|---|
||LydiaHirst|Chairperson|||
||Allison Watson|CEO/Secretary|||
||Kim Parks|Treasurer|||
||Dale Ward|Patient
Representative|||
||Tim Buckinx|Patient
Representative|||
||Names of the trustees for the charity, if any,||(for example, any custodian trustees)||
||Name||Dates acted if not for whole year||
||||||
Names and addresses of advisers (Optional information) **Type of adviser** Name Address Name of chief executive or names of senior staff members (Optional information) Allison Watson – CEO
## **Section B Structure, governance and management**
Description of the charity’s trusts Type of governing document CIO association constitution
(eg. trust deed, constitution)
How the charity is constituted
CIO association constitution (formed 19 February 2016)
(eg. trust, association, company)
Trustee selection methods By appointment of registered members at general meetings and by (eg. appointed by, elected by) Trustees
## Additional governance issues (Optional information)
You **may choose** to include Other than our part-time CEO (0.4 FTE) Ring20 is run on a voluntary basis. additional information, where Our CEO volunteers an equal amount of her time to that which is paid. relevant, about: In the reporting period Ring20 comprised:
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- policies and procedures adopted for the induction and training of trustees;
- 1 part-time staff member (0.4 FTE)
- 4 part-time volunteers
- 6 student volunteers (various placements)
- the charity’s organisational Activities are overseen by a Board of 5 Trustees supported by our structure and any wider International Scientific Advisory Board network with which the charity works;
- relationship with any related parties;
- trustees’ consideration of major risks and the system and procedures to manage them.
Our CEO is responsible for operations management, volunteer management, communications, families support, fundraising support, research activities and also sits on the Board of Trustees as Secretary. Trustees operate in their specific areas of activity and consult on all significant matters of governance, including policies and strategic direction/oversight. New trustees are asked to abide by a Code of Conduct and are issued with Essential Information for Trustees from the Charities Commission, sign a Trustee Declaration and complete a Fit and Proper persons form. They also undergo a DBS check. Strategic planning is conducted at our annual AWAY DAY in March each year.
We expanded our Medical Advisory Board (MAB) to form a new International Scientific Advisory Board (SAB) comprising members from many countries and clinical disciplines meeting for the first time in October 2023. The SAB is chaired by Dr Antonio Gil-Nagel, Associate Head of Department of Neurology at Ruber International Hospital and director of the Epilepsy Program in Madrid, Spain. The SAB comprises 17 healthcare, researchers, scientists (details on our website here.) We look forward to new opportunities arising from their vast clinical experience and contacts.
The charity has updated its insurance with an international underwriter to cover normal risks and operates the following policies: child protection, safeguarding, data privacy, risk management and volunteer, published on our website.
The charity is a member of:
- Genetic Alliance UK (GAUK): CEO sits on Patient Advisory Group (inputting to the England Rare Diseases Action plan) and UK Patient Empowerment Group (PEG)
- Neurological Alliance, England: CEO represents Ring20 in the Rare Disease sub-group
- CamRARE: CEO attends Companies Forum (2x p.a.) as a Patient Advocacy Group representative and also supports CamRARE/PLRH in developing the Rare Disease Research Network (RDRN) platform
- International Bureau for Epilepsy (IBE) – UK chapter
- EURORDIS, RC NET/RareQOL, Rare Revolution, Rare Epilepsy Network (REN), Brentwood CVS, NCVO
Our CEO founded the UK Rare Epilepsies Together (UKRET) network
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## Section C Objectives and activities
## **What the charity does:**
The Advancement Of Health Or Saving Of Lives Disability
Summary of the objects of the charity set out in its governing document
Ring20 provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy. We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.
Ring chromosome 20 syndrome [r(20)] is a rare epilepsy syndrome with case numbers likely to be under-reported worldwide due to lack of awareness of the signs and symptoms and under-diagnosis.
## **How the charity helps:**
Provides Services
Provides Advocacy/advice/information
## **1. Families Support/Information Services**
Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)
The charity provides a support group for individuals and families affected by the condition and a key aim is to connect families for mutual support and to reduce feelings of isolation. We aim to provide the latest information on r(20) to families and healthcare professionals via our website, eNewsletters and social media. Our website is auto-translated from English into 9 different languages to extend our reach to families affected across the world and the healthcare professionals that care for them. Phone/email support is provided to families of those with the condition, as well as 1:1 video calls. We issue our regular eNews and provided continuous updates on social media every week.
We deliver regular online Coffee and Chat sessions via Zoom for our families to meet each other online and talk in a safe, supportive environment, as well as delivering our ‘Step Into The Ring’ virtual group sessions specifically for adults with r(20) to connect with their peers.
## **2. Promoting opportunities for, and participating in, Research**
We attend various conferences, congresses and events throughout the year (online and in-person) to exhibit, speak and/or otherwise raise awareness of r(20) syndrome – the challenges and the opportunities relating to diagnosis, treatment and care. We use these events to network and build relationships with strategic partners from medics, to researchers and scientists, pharma and biotech, payers and regulators, with whom we may collaborate to engage in educational and research activities into better understanding of r(20).
The Trustees consider the charity’s activities are wholly in the public interest and designed to benefit all those who suffer from r(20), their families and medical professionals dealing with this debilitating and lifelimiting condition, in line with the Charity’s Commission guidance on ‘public benefit’.
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Additional details of objectives and activities (Optional information)
The Ring20 Trustees would like to thank our volunteers for their support throughout the year. Special mention should go to our key volunteers during the period: Belinda Hunt (Bid Writing) Ian Allen (Accounts/Payroll)
- Kallif Garlicki (Step Into The Ring)
- Laura Giordana (Italian families support)
Several of our family members act as Ring20 Champions, meeting fortnightly helping to connect families in their own countries/languages. Dale Ward (UK)
- Yvonne Goodson (UK)
- Carl Darby (UK)
- Andre Reis e Silva (Portugal)
- Steve Baumley (USA)
- Junko Okuda (USA/Japan)
- Tim Buckinx (Belgium/Netherlands)
- Maryse Barette (France)
- Arantxa Miralles (Spain)
You **may choose** to include further statements, where relevant, about:
- Thanks also goes to those who provided pro bono support during the year:
- policy on grantmaking; BlueZoo: helping to manage our social media activities Costello Medical – preparation for dashboard of patient impact
- policy programme related survey results
- investment; LawWorks/Gowlings: contractual support for research contracts
- contribution made by LifeArc: draft T&Cs for research volunteers.
## **Training**
Ring20 Trustees completed NSPCC’s safeguarding training. Our Bid Writer volunteer completed various trainings in relation to her role. Trustee training has continued as needed related to specific areas of activity. Ring20 has benefitted from training webinars provided by EURORDIS and Beacon for Rare Diseases.
## **Mentoring**
Ring20 successfully recruited students mentored by our CEO. Thank you to our placement students in the various tasks undertaken: London Metropolitan University – 30–150-hour placements
- Diana Sescu (brand guidelines)
- Izabela Wesolowska (graphic design templates)
- `o` Louise Harker (leaflet design/content) `o` Alex Tuckey (video editing) `o` Saththiyan Parameswaran (Mailchimp data clean-up)
- Aston University - 30 weeks, 1 day per week placement `o` Aashish Bishwakarma (supporting research)
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Section D Achievements and performance
Summary of the main achievements of the charity during the year
During the period notable achievements include:
## **FAMILIES SUPPORT**
In the reporting period we provided support and information services to >120 member families worldwide, >60% of the reported no. of cases of r(20) syndrome according to the latest medical literature. We welcomed 12 new families, demonstrating a 10% increase in our membership year on year. This is remarkable given as a charity, we have plotted a trend towards diagnostic decline in the last 5-10 years.
## **Ring20 Champions**
Our Champions continue to meet regularly online as a group. A newly formed informal support network has been established in Belgium, supporting families in Dutch and French.
Notably our Champions were instrumental in facilitating interviews in their native languages for the Patient Reported Impact Study and assisted with creation of new information leaflets for families and supporters of the charity.
## **RESEARCH**
## **Research activities pursued in the period**
- A groundbreaking research Ring20 Patient Reported Impact Study co-created with Newcastle University was undertaken. This is the first survey of its kind in r(20) describing the lived experience of people living with Ring Chromosome 20 and their families. 85 respondents from 25 countries contributed to the study. The 75 questions in the study covered topics including demographics, diagnostic journey, seizures and comorbidities, treatments, medical and social support and the impact that living with this ultra rare disease has on everyday life. It was an opportunity for families to describe what it’s really like to live with r(20) and had the additional benefit of forging new connections within the community. Publication of results is expected in 2025.
- Work towards the establishment of a Ring Chromosome Cohort within the NIHR BioResource continued.
- The charity’s funds restricted for a proposed research study into the Natural History of r(20) syndrome remains unspent. The proposal we had been pursuing with Glasgow Children’s Hospital for several years turned out not to be viable so the Trustees, on advice from our SAB, made a decision to tender for new proposals.
- The genomic research study in partnership with Illumina, involving patients supported by Ring20, to try to make diagnosis easier and find clues for better treatments which commenced in February 2023 continued throughout this reporting period. There were no clear findings and due to corporate restructuring at Illumina Inc, the research group undertaking this study was disbanded early in 2024 hence there was no write up of the research findings, which was disappointing.
Our CEO, together with Marco Crimi from Ring14, co-wrote a chapter in the Human Ring Chromosomes A Practical Guide for Clinicians and Families book published by Springer.
## **EDUCATING AND INFORMING**
**Conferences/Events attended including speaker opportunities:** Rare Disease Translational Challenge Launch Reception (Jul 23) RARESummit23, Cambridge (Oct 23)
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Section D Achievements and erformance p
- Research roundtable with Genomics England and (Oct 23) BPNA – drug resistant epilepsies meeting (Nov 23)
- Aspire Partnering event for Neurological/CNS disorders – pitch to pharma/biotech (Nov 23)
- BPNA UK Annual Conference (Jan 24)
- Rare Disease Day Parliamentary reception (Feb 24) Rare and Hot: climate change event (Mar 24)
(Other) Awareness Raising Activities
- Participated in the M4RD/Beacon Student Voice Prize essay competition.
## **LEADERSHIP**
Our CEO leads the UK Rare Epilepsies Together network (UKRET) which she founded. It comprises UK based patient organisations representing all those living with rare and complex epilepsies, to improve diagnosis, treatment and care. UKRET– approx. 2 days per month
- Organising/leading quarterly meetings
- Identifying and welcoming new charities to the network
- Seeking opportunities for collaborative activities
- Representing UKRET at conferences/events – speaker/exhibitor `o` Speaker: Birmingham Epilepsy Research Network (BERN) `o` Co-created a research roundtable with Genomics England `o` Beacon Rare Disease Showcase (Nov 23) `o` BPNA Annual Conference (Jan 24)
- Establishing UKRET as a small charity
## Section E Financial review
**----- Start of picture text -----**
Brief statement of the charity’s The charity receives funding for specific purposes which are restricted
policy on reserves funds – these are dedicated to specific projects or items of expenditure.
Restricted Funds are retained as shown below, primarily towards a
Families Conference and Natural History Research Study planned for
2025.
Restricted Funds 2023-24
£120,000
£100,000
£80,000
£60,000
£40,000 2023
£20,000 2024
£0
Families
Jeans for
Conferen Illumina Research TOTAL
Genes
ce
2023 £21,710 £1,654 £78,015 £3,000 £104,379
2024 £21,710 £1,654 £80,262 £0 £103,626
**----- End of picture text -----**
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Details of any funds materially in deficit
||The general reserves are the unspent unrestricted funds of the charity.|
|---|---|
||The charity currently owns no fixed assets, so the general reserve is held|
||in cash. The general reserve is therefore the free reserves of the charity|
||**plus any designated funds**, also termed ‘unrestricted funds’ in the|
||charity’s balance sheet. The purpose of the general reserve is:|
||To fund working capital and time lags in the receipt of promised|
||funds|
||To fund unexpected expenditure, e.g., when projects overrun, or|
||unplanned events occur|
||Manage economic or regulatory changes which may have|
||unforeseen financial consequences|
||We assess the level of general reserve needed by looking forward and|
||considering the risks to our funding balanced against our expenditure|
||commitments.**Future plans show levels of committed expenditure**|
||**for which we are seeking funding**, but to ensure we can continue to|
||operate in accordance with our plans, we hold a general reserve in the|
||range £10,000 - £12,000 to cover unfunded committed costs for the next|
||6 months.|
||**General Reserves before funds designated**
**£ 44,954**|
||**_Designated Funds_**|
||Salaries
£ 17,245|
||Family Liaison Officer & CRM
£ 9,234|
||Overheads (core costs)
£ 3,000|
||**TOTAL FREE RESERVES**
**£ 15,475**|
||Our general reserve as at 31 March 2024 was £44,954 (of which £29,479|
||has been designated as above) leaving £15,475 of Free Reserves, which|
||is a little more than the reserves policy recommends.|
||n/a|
Further financial review details (Optional information)
You **may choose** to include **INCOME** additional information, where relevant about:
During the period to 31 March 2024 the charity raised £50,152 through multiple income streams including Interest Received of £2,247.
- the charity’s principal sources of funds (including any fundraising);
- how expenditure has supported the key objectives of the charity;
**----- Start of picture text -----**
Income 2023-24
£60,000
£50,000
£40,000
£30,000
£20,000
2023
£10,000 2024
£0
Corpora
Member
Donatio Grant te Bank
fundraisi TOTAL
ns Funding Sponsor Interest
ng
ship
2023 £3,749 £6,064 £10,065 £20,000 £462 £40,340
2024 £25,765 £18,140 £4,000 £0 £2,247 £50,152
**----- End of picture text -----**
- investment policy and objectives including any ethical investment policy adopted.
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**----- Start of picture text -----**
Most funds were raised through donations and member fundraising,
notably:
£10,947 Ton’s retirement donation (Netherlands)
£1,623 Overseas member families’ donations (USA/Germany)
£1,000 Benevity donation (supporter nominated)
£447 In Memory
£27,317 In Memory: Sebastian Burckle, Marathon/Half marathon
runners
We were grateful to receive grant funding of £4,000 from the Ninevah
Trust towards the costs of our CEO’s remuneration.
The charity intends to dedicate more consistent effort to securing grants
in the next financial year with dedicated support from our volunteer bid
writer (up to 2 days per week), to continue to diversify our income
streams, to maintain sustainability of the charity.
EXPENDITURE
The charity spent £22,512 during the year, the majority of which was on
our CEO’s part-time salary (0.4 FTE).
Expenditure 2023-24
£50,000
£45,000
£40,000
£35,000
£30,000
£25,000
£20,000 2023
£15,000
2024
£10,000
£5,000
£0
Director Attending Hosting Core
TOTAL
salaries events events costs
2023 £16,899 £990 £24,081 £3,354 £45,324
2024 £17,246 £2,581 £185 £2,500 £22,512
Notably, salaries and core costs remain relatively unchanged year on
year
**----- End of picture text -----**
## **Section F Other optional information**
## Section G Declaration
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s)
Full name(s) Lydia Hirst Kim Parks Position (eg Secretary, Chair, etc) Chair Treasurer
Date 19 / 10 / 2024
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Audit trail
Sign
Annual Trustee report 2024 DRAFT FINAL Title Annual Trustee re...4 DRAFT FINAL.pdf File name Document ID 84ff2ac71976b0e62cc54e8caf7f5aef9bae0052 Audit trail date format DD / MM / YYYY Status Signed
**18 / 10 / 2024** Sent for signature to Lydia Hirst 17:01:05 UTC (lydia@ring20researchsupport.co.uk) and Kim Parks (kim@parksbookkeeping.co.uk) from allison@ring20researchsupport.co.uk IP: 162.125.31.221 **19 / 10 / 2024** Viewed by Kim Parks (kim@parksbookkeeping.co.uk) 12:24:54 UTC IP: 2.126.243.119 **19 / 10 / 2024** Signed by Kim Parks (kim@parksbookkeeping.co.uk) 12:25:26 UTC IP: 2.126.243.119 **24 / 10 / 2024** Viewed by Lydia Hirst (lydia@ring20researchsupport.co.uk) 08:34:46 UTC IP: 82.39.102.177 **24 / 10 / 2024** Signed by Lydia Hirst (lydia@ring20researchsupport.co.uk) 08:36:14 UTC IP: 82.39.102.177 **24 / 10 / 2024** The document has been completed. 08:36:14 UTC
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# **RING20 RESEARCH AND SUPPORT UK CIO**
Charity number 1165651
# **FINANCIAL STATEMENTS FOR THE YEAR ENDED 31st MARCH 2024**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **CONTENTS FOR THE YEAR ENDED 31 MARCH 2024**
**----- Start of picture text -----**
Page
Receipts and payments account 1
Statement of assets and liabilities 2
Notes to the accounts 3-4
Independent examiner's report 5
**----- End of picture text -----**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **RECEIPTS AND PAYMENTS ACCOUNT FOR THE YEAR ENDED 31 MARCH 2024**
|**Note**
**Receipts:**
Donations
**2**
Sponsorship/grant funding
Member fundraising
Interest received
**Total receipts**
**Payments:**
**Charitable payments**
Charitable activities
**3**
Fundraising expenditure
**Total payments**
**Net receipts/(payments)**
**Prior year adjustment**
**Transfer between funds**
**Net of receipts/(payments)**
**Cash funds brought forward**
**5**
**Cash funds carried forward**
**5**|**Unrestricted**
**Fund**
**£**
18,140
-
25,765
-
**43,905**
15,512
829
**16,341**
**27,564**
-
-
**27,564**
17,587
**45,151**|**Restricted**
**Fund**
**£**
-
4,000
-
2,247
**6,247**
7,000
-
**7,000**
**(753)**
-
-
**(753)**
104,379
**103,626**|**2024**
**Total**
**£**
18,140
4,000
25,765
2,247
**50,152**
22,512
829
**23,341**
**26,811**
-
-
**26,811**
121,966
**148,777**|**2023**
**Total**
**£**
6,064
30,065
3,749
462
**40,340**
45,324
-
**45,324**
**(4,984)**
627
-
**(4,357)**
126,323
**121,966**|
|---|---|---|---|---|
The notes on page 3 - 4 form part of these accounts
**1**
## **RING20 RESEARCH AND SUPPORT UK CIO**
## **STATEMENT OF ASSETS AND LIABILITIES AS AT 31 MARCH 2024**
|**Notes**
**Cash funds**
Current account
Deposit account
**Represented by**
Unrestricted funds
**5**
Restricted funds
**5**
**Non-monetary assets/liabilities**
**Current assets**
Debtors
**Liabilities**
Independent examination fee
Creditors
Total assets less liabilities|**2024**
**£**
2,166
146,611
**148,777**
45,151
103,626
**148,777**
**2024**
**£**
50
50
340
249
589
**(539)**|**2023**
**£**
9,603
112,363
**121,966**
17,587
104,379
**121,966**
**2023**
**£**
50
50
250
-
250
**(200)**|
|---|---|---|
These accounts were approved by the Trustees, and signed on their behalf by:
Trustee:
Date: 23rd September 2024
Name: Kim Parks
**2**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024**
## **1. Accounting policies**
## **Basis of the preparation of the accounts**
These financial statements have been prepared under the historical cost convention and applicable accounting standards. The accounts are prepared on a cash basis.
## **Incoming resources**
All material incoming resources have been included on a receivable basis i.e. they are included if the date receivable falls within the period covered by these accounts.
## **Resources expended**
These have been analysed using a natural classification.
## **Going Concern**
The charity is operating on a going concern basis.
- **1.1** These accounts are prepared on a receipts and payments basis.
|**2. Donations**
General donations
**3. Expenditure from charitable activities**
Cost of sales
Advertising/marketing
Attending conferences & events
Hosting conferences & events
Literature & materials
Website & emails
Accountancy, examination & audit
Director salaries
Office expenditure
Bank charges
Computer costs
Insurances
Postage
Subscriptions
Telephone
Training|**Unrestricted**
**Fund**
**£**
18,140
**18,140**
**Unrestricted**
**Fund**
**£**
-
-
2,187
-
-
-
-
13,246
22
-
-
-
25
32
-
-
**15,512**|**Restricted**
**Fund**
**£**
-
**-**
**Restricted**
**Fund**
**£**
-
-
394
185
189
374
250
4,000
331
95
219
360
84
245
199
75
**7,000**|**Total**
**2024**
**£**
18,140
**18,140**
**Total**
**2024**
**£**
-
-
2,581
185
189
374
250
17,246
353
95
219
360
109
277
199
75
**22,512**|**Total**
**2023**
**£**
6,064
**6,064**
**Total**
**2023**
**£**
-
231
990
24,081
246
255
250
16,899
112
169
292
456
137
236
510
460
**45,324**|
|---|---|---|---|---|
**3**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024**
|**4. Funds analysis**
**Unrestricted**
Running costs
Fundraising
**Designated funds**
Salaries
Overheads
**Restricted funds**
Family Conference
Illumina Research Project
Research Funds
Ninevah Trust
Jeans for Genes
**Total restricted funds**
**Totals**|**Balance**
**at 01/04/23**
**£**
3,170
11,685
2,732
-
**17,587**
21,710
1,654
78,015
-
3,000
**104,379**
**121,966**|**Incoming**
**Funds**
**£**
18,140
25,765
-
-
**43,905**
-
-
2,247
4,000
-
**6,247**
**50,152**|**Expended**
**Funds**
**£**
(15,512)
(829)
-
-
**(16,341)**
-
-
-
(4,000)
(3,000)
**(7,000)**
**(23,341)**|**Transfers**
**in/out**
**£**
23,034
(36,621)
10,587
3,000
**-**
-
-
-
-
-
**-**
**-**|**Balance**
**at 31/03/24**
**£**
**28,832**
**-**
**13,319**
**3,000**
**45,151**
**21,710**
**1,654**
**80,262**
**-**
**-**
**103,626**
**148,777**|
|---|---|---|---|---|---|
## **5. Trustee payments**
During 2024, one trustee received remunerations of £17,246 (2023: £15,999.96) as wages during the year.
## **6. Related party transactions**
There were no related party transactions during the year.
## **7. Key management personnel**
No staff have earned more than £60,000 during the year.
**4**
## **RING20 RESEARCH AND SUPPORT UK CIO**
## **INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 MARCH 2024**
I report on the accounts of Ring20 Research and Support UK CIO for the year ended 31 March 2024 which are set out on pages 1 to 4.
## **Respective responsibilities of trustees and examiner**
The Charity’s Trustees are responsible for the preparation of the accounts. The Charity’s Trustees consider that an audit is not required for this year (under section 144 (2) of the Charities Act 2011 (The Act) but that an independent examination is needed.
It is my responsibility to:
- Examine the accounts under section 145 of the Charities Act,
- To follow the procedures laid down in the General Directions given by the Charity Commissioners (under section 145(5)(b) of the Charities Act, and
- To state whether particular matters have come to my attention.
## **Basis of independent examiner’s Statement**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes considerations of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently I do not express an audit opinion on the view given by the accounts.
## **Independent examiner’s statement**
In the course of my examination, no material matters have come to my attention which gives me cause to believe that in, any material respect:
- the accounting records were not kept in accordance with section 130 of the Charities Act; or
- the accounts did not accord with the accounting records; or
- the accounts did not comply with the applicable requirements concerning the form and content of the accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair' view which is not a matter considered as part of an independent examination.
I have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
David Courtier FMAAT AATQB for and on behalf of: Community360 Winsley’s House, High Street, Colchester, Essex Date 24/09/2024
**5**
# **RING20 RESEARCH AND SUPPORT UK CIO**
Charity number 1165651
# **FINANCIAL STATEMENTS FOR THE YEAR ENDED 31st MARCH 2024**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **CONTENTS FOR THE YEAR ENDED 31 MARCH 2024**
**----- Start of picture text -----**
Page
Receipts and payments account 1
Statement of assets and liabilities 2
Notes to the accounts 3-4
Independent examiner's report 5
**----- End of picture text -----**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **RECEIPTS AND PAYMENTS ACCOUNT FOR THE YEAR ENDED 31 MARCH 2024**
|**Note**
**Receipts:**
Donations
**2**
Sponsorship/grant funding
Member fundraising
Interest received
**Total receipts**
**Payments:**
**Charitable payments**
Charitable activities
**3**
Fundraising expenditure
**Total payments**
**Net receipts/(payments)**
**Prior year adjustment**
**Transfer between funds**
**Net of receipts/(payments)**
**Cash funds brought forward**
**5**
**Cash funds carried forward**
**5**|**Unrestricted**
**Fund**
**£**
18,140
-
25,765
-
**43,905**
15,512
829
**16,341**
**27,564**
-
-
**27,564**
17,587
**45,151**|**Restricted**
**Fund**
**£**
-
4,000
-
2,247
**6,247**
7,000
-
**7,000**
**(753)**
-
-
**(753)**
104,379
**103,626**|**2024**
**Total**
**£**
18,140
4,000
25,765
2,247
**50,152**
22,512
829
**23,341**
**26,811**
-
-
**26,811**
121,966
**148,777**|**2023**
**Total**
**£**
6,064
30,065
3,749
462
**40,340**
45,324
-
**45,324**
**(4,984)**
627
-
**(4,357)**
126,323
**121,966**|
|---|---|---|---|---|
The notes on page 3 - 4 form part of these accounts
**1**
## **RING20 RESEARCH AND SUPPORT UK CIO**
## **STATEMENT OF ASSETS AND LIABILITIES AS AT 31 MARCH 2024**
|**Notes**
**Cash funds**
Current account
Deposit account
**Represented by**
Unrestricted funds
**5**
Restricted funds
**5**
**Non-monetary assets/liabilities**
**Current assets**
Debtors
**Liabilities**
Independent examination fee
Creditors
Total assets less liabilities|**2024**
**£**
2,166
146,611
**148,777**
45,151
103,626
**148,777**
**2024**
**£**
50
50
340
249
589
**(539)**|**2023**
**£**
9,603
112,363
**121,966**
17,587
104,379
**121,966**
**2023**
**£**
50
50
250
-
250
**(200)**|
|---|---|---|
These accounts were approved by the Trustees, and signed on their behalf by:
Trustee:
Date: 23rd September 2024
Name: Kim Parks
**2**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024**
## **1. Accounting policies**
## **Basis of the preparation of the accounts**
These financial statements have been prepared under the historical cost convention and applicable accounting standards. The accounts are prepared on a cash basis.
## **Incoming resources**
All material incoming resources have been included on a receivable basis i.e. they are included if the date receivable falls within the period covered by these accounts.
## **Resources expended**
These have been analysed using a natural classification.
## **Going Concern**
The charity is operating on a going concern basis.
- **1.1** These accounts are prepared on a receipts and payments basis.
|**2. Donations**
General donations
**3. Expenditure from charitable activities**
Cost of sales
Advertising/marketing
Attending conferences & events
Hosting conferences & events
Literature & materials
Website & emails
Accountancy, examination & audit
Director salaries
Office expenditure
Bank charges
Computer costs
Insurances
Postage
Subscriptions
Telephone
Training|**Unrestricted**
**Fund**
**£**
18,140
**18,140**
**Unrestricted**
**Fund**
**£**
-
-
2,187
-
-
-
-
13,246
22
-
-
-
25
32
-
-
**15,512**|**Restricted**
**Fund**
**£**
-
**-**
**Restricted**
**Fund**
**£**
-
-
394
185
189
374
250
4,000
331
95
219
360
84
245
199
75
**7,000**|**Total**
**2024**
**£**
18,140
**18,140**
**Total**
**2024**
**£**
-
-
2,581
185
189
374
250
17,246
353
95
219
360
109
277
199
75
**22,512**|**Total**
**2023**
**£**
6,064
**6,064**
**Total**
**2023**
**£**
-
231
990
24,081
246
255
250
16,899
112
169
292
456
137
236
510
460
**45,324**|
|---|---|---|---|---|
**3**
**RING20 RESEARCH AND SUPPORT UK CIO**
## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2024**
|**4. Funds analysis**
**Unrestricted**
Running costs
Fundraising
**Designated funds**
Salaries
Overheads
**Restricted funds**
Family Conference
Illumina Research Project
Research Funds
Ninevah Trust
Jeans for Genes
**Total restricted funds**
**Totals**|**Balance**
**at 01/04/23**
**£**
3,170
11,685
2,732
-
**17,587**
21,710
1,654
78,015
-
3,000
**104,379**
**121,966**|**Incoming**
**Funds**
**£**
18,140
25,765
-
-
**43,905**
-
-
2,247
4,000
-
**6,247**
**50,152**|**Expended**
**Funds**
**£**
(15,512)
(829)
-
-
**(16,341)**
-
-
-
(4,000)
(3,000)
**(7,000)**
**(23,341)**|**Transfers**
**in/out**
**£**
23,034
(36,621)
10,587
3,000
**-**
-
-
-
-
-
**-**
**-**|**Balance**
**at 31/03/24**
**£**
**28,832**
**-**
**13,319**
**3,000**
**45,151**
**21,710**
**1,654**
**80,262**
**-**
**-**
**103,626**
**148,777**|
|---|---|---|---|---|---|
## **5. Trustee payments**
During 2024, one trustee received remunerations of £17,246 (2023: £15,999.96) as wages during the year.
## **6. Related party transactions**
There were no related party transactions during the year.
## **7. Key management personnel**
No staff have earned more than £60,000 during the year.
**4**
## **RING20 RESEARCH AND SUPPORT UK CIO**
## **INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 MARCH 2024**
I report on the accounts of Ring20 Research and Support UK CIO for the year ended 31 March 2024 which are set out on pages 1 to 4.
## **Respective responsibilities of trustees and examiner**
The Charity’s Trustees are responsible for the preparation of the accounts. The Charity’s Trustees consider that an audit is not required for this year (under section 144 (2) of the Charities Act 2011 (The Act) but that an independent examination is needed.
It is my responsibility to:
- Examine the accounts under section 145 of the Charities Act,
- To follow the procedures laid down in the General Directions given by the Charity Commissioners (under section 145(5)(b) of the Charities Act, and
- To state whether particular matters have come to my attention.
## **Basis of independent examiner’s Statement**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes considerations of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently I do not express an audit opinion on the view given by the accounts.
## **Independent examiner’s statement**
In the course of my examination, no material matters have come to my attention which gives me cause to believe that in, any material respect:
- the accounting records were not kept in accordance with section 130 of the Charities Act; or
- the accounts did not accord with the accounting records; or
- the accounts did not comply with the applicable requirements concerning the form and content of the accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair' view which is not a matter considered as part of an independent examination.
I have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
David Courtier FMAAT AATQB for and on behalf of: Community360 Winsley’s House, High Street, Colchester, Essex Date 24/09/2024
**5**