Trustees' Annual Report for the period
Period start date Period end date 1 April 2024 31 March 2025 From To
Section A Reference and administration details
Charity name CRPS UK Other names charity is known by Registered charity number (if any) 1165597 Charity's principal address 58 Station Road Aldridge Walsall Postcode WS9 0BN
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee(if any) |
|---|---|---|---|---|
| Amanda Nelson | Chair | |||
| Rebecca Boot | Treasurer | |||
| Fiona Armitage | Secretary | |||
| Julie Weymouth | ||||
| Richmond Stace | ||||
| Dr Jacqueline BaileyPHD |
||||
| Rowan Riley | Appointed 19.09.24 | Board of Trustees | ||
| Sharon Mcleod | Appointed 19.09.24 | Board of Trustees | ||
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year
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Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)
Section B Structure, governance and management
Description of the charity’s trusts
Constitution
Type of governing document (eg. trust deed, constitution) Charitable Incorporated Organisation How the charity is constituted
(eg. trust, association, company)
Trustee selection methods
Elected by the board of trustees
(eg. appointed by, elected by)
Additional governance issues (Optional information)
You may choose to include additional information, where relevant, about:
-
policies and procedures adopted for the induction and training of trustees;
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the charity’s organisational structure and any wider network with which the charity works;
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relationship with any related parties;
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trustees’ consideration of major risks and the system and procedures to manage them.
Section C Objectives and activities
- To relieve suffering and to preserve and advance the health of people with Complex Regional Pain Syndrome (CRPS) by any means as the trustees see fit.
Summary of the objects of the charity set out in its governing document
- The advancement, for the public benefit, of education of healthcare professionals, CRPS families and carers, and the public in general, in all areas relating to CRPS by the promotion of CRPS health education and research by, but not exclusively by, raising awareness through lectures, forums,
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newsletters and publications and the provision of research grants and carrying out research.
In our activities the trustees regarded the guidance issued by the charity commission on the public benefit.
CRPS UK’s main activities are to work to:
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reduce the isolation of people with CRPS
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increase understanding about CRPS by people with the condition to enable them to access appropriate treatment
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increase knowledge and understanding of CRPS among the general public in order to reduce suffering of people with CRPS caused by ignorance
Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)
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increase knowledge and understanding of CRPS among medical professionals to improve diagnosis and treatment outcomes
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promote, support and coproduce research into CRPS to enable developments in treatment and support of the condition
Additional details of objectives and activities (Optional information)
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CRPS UK is mainly volunteer run. Without the ongoing dedicated support of our volunteers we would not be able to carry out our activities.
You may choose to include further statements, where relevant, about:
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policy on grantmaking;
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policy programme related investment;
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contribution made by volunteers.
Section D Achievements and performance
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Section D Achievements and performance
Online support group – CRPS UK has maintained an active online Summary of the main support group which helps to reduce isolation and can aid users by sign achievements of the charity posting them to information about treatment and support services. during the year Individual Support – During the reporting period we continued to offer online individual support meetings to our members. These enable the member to discuss their issues and ask questions privately with two CRPS UK team members. This offers a more personal and individual focused session where any questions maybe asked and answered in confidence outside of a group setting. During support meetings, team members provide space for the member to talk openly, give them the benefit of their experience and signpost to relevant services best suited to their situation. Online Coffee Mornings – Online coffee mornings were held throughout the reporting period which were well attended. These are still ongoing and have a core group of around 10 regular attendees with others attending occasionally. The coffee mornings have enabled people to form friendships and have fun together. They provide peer support and social interaction to our members in addition to enabling them to access support and advice from members of the CRPS UK team. These coffee mornings have been beneficial to members attending by way of reducing the feelings of isolation. Online talks and seminars – Talks were held throughout the year on a number of topics, including new research into CRPS, methods of managing the condition, and ways to access support. Online talks and seminars provide a valuable alternative to in person events for many of our members who have varying energy levels and difficulty travelling. Online carers course – in the reporting period CRPS UK ran a course for unpaid carers of people with CRPS following requests from members. This was facilitated by Pain association Scotland. This provided pain education, management and regulation techniques, alongside tools for the carers to support their own health. The course ran for two hours once a month for 6 sessions. [6 people attended the full duration of the course] they were additionally provided with a workbook to support ongoing use of the tools from the course. They said that they found it useful [ways]. Production and distribution of literature – CRPS UK continues to distribute a range of literature aimed at health care professionals, people with CRPS and the general public. The education provided through our literature increases understanding about the condition amongst wider audiences, thereby reducing suffering of those with CRPS caused by lack of understanding and knowledge of the condition. Research – CRPS UK also continues to support clinicians and researchers investigating CRPS, by promoting calls for participation in current research projects and distributing the outcomes of completed research papers. Training – During the reporting period CRPS UK delivered two upskilling sessions aimed at DWP staff. This was provided for free in order to ensure operational independence. The content for the training was developed in consultation with our online support group. The training delivered aimed to provide front line staff with: • knowledge of the what Complex Regional Pain Syndrome is
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Section D Achievements and performance
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understanding of what it is like to live with the condition
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connection to the real stories and lives of the people who live with CRPS
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concrete steps to improve people with CRPS’ interactions with the DWP
Around 80 people attended each training session. Staff left feeling engaged and with greater awareness of the condition. One of the training sessions was recorded for future use.
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Section E Financial review
CRPS UK does not have a reserves policy
Brief statement of the charity’s policy on reserves
Details of any funds materially in deficit
Further financial review details (Optional information)
You may choose to include additional information, where relevant about:
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the charity’s principal sources of funds (including any fundraising);
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how expenditure has supported the key objectives of the charity;
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investment policy and objectives including any ethical investment policy adopted.
Section F Other optional information
Section G Declaration
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Fiona Armitage Full name(s) Rebecca Boot Position (eg Secretary, Chair, Treasurer Secretary etc) Date 15.1.26 15.1.26
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| CRPS | UK | 1165597 | ||||
|---|---|---|---|---|---|---|
| Receipts andpayments accounts | CC16a | |||||
| For | the period from |
1st April 2024 Period start date |
To | 31st March 2025 Period end date |
| Section A Receipts and payments | Section A Receipts and payments | Section A Receipts and payments | ||||
|---|---|---|---|---|---|---|
| A1 Receipts | Unrestricted funds to the nearest £ 3 883 790 364 30 |
Restricted funds to the nearest £ - - - - - |
Endowment funds to the nearest £ |
Total funds to the nearest £ - 3 883 790 364 30 - - - 5 067 - - - 5 067 1 878 412 709 269 321 - 1 500 333 59 27 510 - - - - 6 017 - - - 6 017 - 950 |
Last year to the nearest £ |
|
| - - - - - - - |
- | |||||
| Donations | 3 883 | - | ||||
| MonthlyGiving | 790 | - | ||||
| Merchandise | 364 | - | ||||
| Literature | 30 | - | ||||
| - | ||||||
| - | ||||||
| - | - | - | - | |||
| Sub total(Gross income for AR) |
5 067 |
- - - - - - - - - - - |
- | - | ||
| A2 Asset and investment sales, (see table). |
||||||
| - | - - - |
|||||
| - | - | |||||
| Sub total | - | - | ||||
| Total receipts A3 Payments |
||||||
| - | - | |||||
| - - - - - - |
||||||
| Storage Rent | 1 878 | - | ||||
| Volunteer Expenses | 412 | - | ||||
| Website and software subscriptions | 709 | - | ||||
| Insurance | 269 | - | ||||
| Trustee Expenses | 321 | - | ||||
| FundraisingEvents | - | |||||
| Workshops, Coffee Monings and Semi Team uniforms DBS checks/ICO register Bank andpaypal fees |
1 500 | |||||
| 333 | ||||||
| 59 | ||||||
| 27 | ||||||
| Computer equipment | 510 | |||||
| - - - - - - - - - - 526 526 |
- - - |
|||||
| - | ||||||
| **Sub total ** | ||||||
| - | - | |||||
| A4 Asset and investment purchases, (see table) |
||||||
| - | - - - |
|||||
| - | ||||||
| **Sub total ** | - | - | ||||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
||||||
| - | - | |||||
| - 950 | - |
- | ||||
| - | - - |
- 27 329 |
- | |||
| 26 803 | - | |||||
| 25 853 | - | 26 379 | - |
CCXX R1 accounts (SS)
1
Section B Statement of assets and liabilities at the end of the period
| Categories Signed by one or two trustees on behalf of all the trustees B1 Cash funds B2 Other monetary assets B4 Assets retained for the charity’s own use B5 Liabilities B3 Investment assets |
Signature Confereces Balance Details Total cash funds (agree balances with receipts and payments account(s)) Details Details Details Details lenovo thinkpad t49015-8365u |
Unrestricted funds Restricted funds to nearest £ to nearest £ 526 25 853 - - - 25 853 526 OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) unrestricted 438 - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name Rebecca Boot Fiona Armitage |
Endowment funds to nearest £ |
|---|---|---|---|
| - | |||
| - | |||
| - | |||
| - | |||
| OK | |||
| Endowment funds to nearest £ |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| 438 | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| When due (optional) |
|||
| Date of approval |
|||
| Rebecca Boot | 15.1.26 | ||
| Fiona Armitage | 15.1.26 |
CCXX R2 accounts (SS)
2