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2023-03-31-accounts

Trustees' Annual Report for the period

Period start date Period end date 1 April 2022 31 March 2023 From To

Section A Reference and administration details

Charity name CRPS UK Other names charity is known by Registered charity number (if any) 1165597 Charity's principal address 58 Station Road Aldridge Walsall Postcode WS9 0BN

Names of the charity trustees who manage the charity

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20		 Trustee name Office (if any) Dates acted if not for whole
**year **		 Name of person (or body) entitled
to appoint trustee (ifany)
Amanda Nelson Chair
Rebecca Boot Treasurer
Fiona Armitage Secretary
Julie Weymouth
Richmond Stace
Dr Jacqueline
BaileyPHD
Dr Catherine
Edgeworth PHD

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)

Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document

Constitution

Charitable Incorporated Organisation How the charity is constituted

Elected by the board of trustees Trustee selection methods

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

Section C Objectives and activities

Summary of the objects of the charity set out in its governing document

  1. To relieve suffering and to preserve and advance the health of people with Complex Regional Pain Syndrome (CRPS) by any means as the trustees see fit.

  2. The advancement, for the public benefit, of education of healthcare professionals, CRPS families and carers, and the public in general, in all areas relating to CRPS by the promotion of CRPS health education and research

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by, but not exclusively by, raising awareness through lectures, forums, newsletters and publications and the provision of research grants and carrying out research.

In our activities the trustees regarded the guidance issued by the charity commission on the public benefit.

CRPS UK’s main activities are to work to:

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

Additional details of objectives and activities (Optional information)

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CRPS UK is mainly volunteer run. Without the ongoing dedicated support of our volunteers we would not be able to carry out our activities.

You may choose to include further statements, where relevant, about:

Section D Achievements and performance

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Section D Achievements and erformance p Online support group – CRPS UK has maintained an active online Summary of the main support group which helps to reduce isolation and can aid users by sign achievements of the charity posting them to information about treatment and support services. during the year Individual Support – During the reporting period we began offering online individual support meetings to our members. These enable the member to discuss their issues and ask questions privately with two CRPS UK team members. This offers a more personal and individual focused session where any questions maybe asked and answered in confidence outside of a group setting. During support meetings, team members provide space for the member to talk openly, give them the benefit of their experience and signpost to relevant services best suited to their situation. Online Coffee Mornings – Online coffee mornings were held throughout the reporting period which were well attended. These are still ongoing and have a core group of around 10 regular attendees with others attending occasionally. The coffee mornings have enabled people to form friendships and have fun together. They provide peer support and social interaction to our members in addition to enabling them to access support and advice from members of the CRPS UK team. These coffee mornings have been beneficial to members attending by way of reducing the feelings of isolation. Conference – During the reporting period CRPS UK hosted a conference and social brunch. The CRPS UK 2022 Conference enabled people with CRPS to meet together to connect with one another despite what can be a very isolating condition. We were able to have people with CRPS and their loved ones meet together both formally and informally to learn about the condition, coping techniques, latest treatments and the support available. People were able to attend either in person or online. 38 people attended in person and 45 individuals logged into the zoom call, though a number of people shared screens. People attending in person benefitted from additional social activities and a social brunch while online access meant that the widest possible group of people with CRPS could benefit from the conference even if they found travelling difficult or were nervous about in person evens due to Covid-19. Several people commented that the event was the first time they had met another person with CRPS despite having had the condition for years and left with a sense of community. Saying that they realised for the first time “it’s not just me”. Families learned how to support their loved one with CRPS and were able to connect with others in the same position. Those who attended the social brunch were further able to engage with each other and build community in a relaxed setting. We found that people naturally engaged in talking about their tips and coping mechanisms, amid getting to know one another better. This peer support is crucial for reducing isolation of people with what is an uncommon condition.

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Section D Achievements and erformance p People who attended commented that the felt they better understood how to access support now, many were not aware of the services that existed or that they may be eligible for them. We were able to sign post them to specific services who can assist with their individual needs on an ongoing basis. Production and distribution of literature – CRPS UK continues to distribute a range of literature aimed at health care professionals, people with CRPS and the general public. The education provided through our literature increases understanding about the condition amongst wider audiences, thereby reducing suffering of those with CRPS caused by lack of understanding and knowledge of the condition. Research – During the reporting period CRPS UK continued to work on a research project Mr Ben Miranda, and Mr Alex Smith from the St Andrews Centre for Plastic Surgery and Mid and South Essex Hospital Services NHS Trust on a collaborative patient centred study for people with CRPS. The aim of the study is to find out ‘who is more likely to suffer from CRPS’, ‘which are the most effective treatments for CRPS’ and ‘how much does CRPS affect the lives of patients’. The study aims to a provide positive outcome affecting the future management of patients who are at risk of developing or who have already developed CRPS. This project completed shortly after the during of the reporting period and produced useful data some of which was reported at the summer 2022 conference. The data from the research is being used from the researchers to guide the development of further studies and they hope to be able to publish in the future. CRPS UK continues to work on the ‘Living with CRPS’ research project. It focuses on the impact of living with CRPS on people’s health, wealth and disability. Work continues on this project into the next reporting period. CRPS UK also continues to support clinicians and researchers investigating CRPS, by promoting calls for participation in current research projects and distributing the outcomes of completed research papers.

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Section E Financial review

CRPS UK does not have a reserves policy

Brief statement of the charity’s policy on reserves

Details of any funds materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Fiona Armitage Full name(s) Rebecca Boot Position (eg Secretary, Chair, Treasurer Secretary etc) Date 23.1.24 23.1.24

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CRPS UK 1165597
Receipts andpayments accounts CC16a
For the period
from		 1st April 2022
Period start date		 To 31st March 2023
Period end date
Section A Receipts and payments Section A Receipts and payments Section A Receipts and payments
A1 Receipts Unrestricted
funds
to the nearest
£
256
1,750
603
229
29
19		 Restricted
funds
to the nearest £
-
-
-
-
-		 Endowment
funds
to the nearest £		 Total funds
to the nearest £
-
256
1,750
603
229
29
19
-
2,886
-
-
-
2,886
1,758
660
-
236
149
170
100
9,336
23
35
-
-
-
-
-
12,467
-
-
-
12,467
- 9,581		 Last year
to the nearest £
-
-
-
-
-
-
-		 -
Conference 256 -
Donations 1,750 -
MonthlyGiving 603 -
Merchandise 229 -
Literature
Repayment ofpayment made in error		 29 -
19 -
- - - -
Sub total(Gross income for
AR)

2,886		 -
-
-
-
-
-
-
-
-
-
-
9,336		 - -
A2 Asset and investment sales,
(see table).
- -
-
-
- -
Sub total - -
Total receipts
A3 Payments
- -
-
-
-
-
-
-
Storage Rent 1,758 -
Website and software subscriptions 660 -
-
Insurance 236 -
Volunteer Expenses 149 -
FundraisingEvents 170 -
Trustee Expenses 100
StirlingConference
Bank and paypal fees
DBS checks/ICO register		 23
35
-
-
-
9,336
-
-
-
9,336
- 9,336
-
9,862
526		 -
-
-
-
**Sub total **
- -
A4 Asset and investment
purchases, (see table)
- -
-
-
-
**Sub total ** - -
Total payments
Net of receipts/(payments)
A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end
- -
- 245 - -
- -
-		 -
34,140		 -
24,278 -
24,033 - 24,559 -

CCXX R1 accounts (SS)

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Section B Statement of assets and liabilities at the end of the period

Categories
Signed by one or two trustees on
behalf of all the trustees
B1 Cash funds
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B5 Liabilities
B3 Investment assets		 Signature
Confereces
Balance
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details
Details
Details
Details
Refurbished HP pavillion Laptop		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
526
24,559
-
-
-
24,033
526
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
Unrestricted
478
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
-
-
-
-
-
Print Name
Rebecca Boot
Fiona Armitage		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
Rebecca Boot 23.1.24
Fiona Armitage 23.1.24

CCXX R2 accounts (SS)

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