## **Trustees' Annual Report for the period** Period start date Period end date 1 April 2021 31 March 2022 **From To** ## Section A Reference and administration details **Charity name** CRPS UK **Other names charity is known by Registered charity number (if any)** 1165597 **Charity's principal address** 58 Station Road Aldridge Walsall **Postcode WS9 0BN** ## **Names of the charity trustees who manage the charity** |1
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**| |---|---|---|---|---| ||Amanda Nelson|Chair||| ||Rebecca Boot|Treasurer||| ||Fiona Armitage|Secretary||| ||Julie Weymouth|||| ||Richmond Stace|||| ||Dr Jacqueline
BaileyPHD|||| ||Dr Catherine
Edgeworth PHD|||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| **Names of the trustees for the charity, if any, (for example, any custodian trustees)** **Name Dates acted if not for whole year** **TAR** March **2012** 1 ## **Names and addresses of advisers (Optional information)** **Type of adviser Name Address** ## **Name of chief executive or names of senior staff members (Optional information)** ## **Section B Structure, governance and management** ## **Description of the charity’s trusts** Type of governing document Constitution - (eg. trust deed, constitution) Charitable Incorporated Organisation How the charity is constituted - (eg. trust, association, company) Elected by the board of trustees Trustee selection methods - (eg. appointed by, elected by) ## **Additional governance issues (Optional information)** You **may choose** to include additional information, where relevant, about: - policies and procedures adopted for the induction and training of trustees; - the charity’s organisational structure and any wider network with which the charity works; - relationship with any related parties; - trustees’ consideration of major risks and the system and procedures to manage them. ## **Section C Objectives and activities** **Summary of the objects of the charity set out in its governing document** 1. To relieve suffering and to preserve and advance the health of people with Complex Regional Pain Syndrome (CRPS) by any means as the trustees see fit. 2. The advancement, for the public benefit, of education of healthcare professionals, CRPS families and carers, and the public in general, in all areas relating to CRPS by the promotion of CRPS health education and research **TAR** March **2012** 2 by, but not exclusively by, raising awareness through lectures, forums, newsletters and publications and the provision of research grants and carrying out research. In our activities the trustees regarded the guidance issued by the charity commission on the public benefit. CRPS UK’s main activities are to work to: - reduce the isolation of people with CRPS - increase understanding about CRPS by people with the condition to enable them to access appropriate treatment - increase knowledge and understanding of CRPS among the general public in order to reduce suffering of people with CRPS caused by ignorance **Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** - increase knowledge and understanding of CRPS among medical professionals to improve diagnosis and treatment outcomes - promote, support and coproduce research into CRPS to enable developments in treatment and support of the condition ## **Additional details of objectives and activities (Optional information)** **TAR** March **2012** 3 CRPS UK is mainly volunteer run. Without the ongoing dedicated support of our volunteers we would not be able to carry out our activities. You **may choose** to include further statements, where relevant, about: - policy on grantmaking; - policy programme related investment; - contribution made by volunteers. ## Section D Achievements and performance **TAR** March **2012** 4 ## Section D Achievements and erformance p Online support group – CRPS UK has maintained an active online **Summary of the main** support group which helps to reduce isolation and can aid users by sign **achievements of the charity** posting them to information about treatment and support services. **during the year** Individual Support – During the reporting period we began offering online individual support meetings to our members. These enable the member to discuss their issues and ask questions privately with two CRPS UK team members. This offers a more personal and individual focused session where any questions maybe asked and answered in confidence outside of a group setting. During support meetings, team members provide space for the member to talk openly, give them the benefit of their experience and signpost to relevant services best suited to their situation. Online Coffee Mornings – Online coffee mornings were held throughout the reporting period which were well attended. These are still ongoing and have a core group of around 10 regular attendees with others attending occasionally. The coffee mornings have enabled people to form friendships and have fun together. They provide peer support and social interaction to our members in addition to enabling them to access support and advice from members of the CRPS UK team. These coffee mornings have been beneficial to members attending by way of reducing the feelings of isolation. Conference – During the reporting period a significant amount of planning and preparation took place for the 2022 conference which took place during the following reporting period including ensuring that the conference would be held in a hybrid manner to increase accessibility. Production and distribution of literature – CRPS UK continues to distribute a range of literature aimed at health care professionals, people with CRPS and the general public. The education provided through our literature increases understanding about the condition amongst wider audiences, thereby reducing suffering of those with CRPS caused by lack of understanding and knowledge of the condition. Research – During the reporting period CRPS UK continued to work on a research project Mr Ben Miranda, and Mr Alex Smith from the St Andrews Centre for Plastic Surgery and Mid and South Essex Hospital Services NHS Trust on a collaborative patient centred study for people with CRPS. The aim of the study is to find out ‘who is more likely to suffer from CRPS’, ‘which are the most effective treatments for CRPS’ and ‘how much does CRPS affect the lives of patients’. The study aims to a provide positive outcome affecting the future management of patients who are at risk of developing or who have already developed CRPS. This project complete shortly after the end of the reporting period and produced useful data. CRPS UK continues to work on the ‘Living with CRPS’ research project. It focuses on the impact of living with CRPS on people’s health, wealth and disability. Work continues on this project into the next reporting period. CRPS UK also continues to support clinicians and researchers investigating CRPS, by promoting calls for participation in current research projects and distributing the outcomes of completed research papers. **TAR** March **2012** 5 Section D Achievements and erformance p **TAR** March **2012** 6 ## **Section E Financial review** CRPS UK does not have a reserves policy **Brief statement of the charity’s policy on reserves** **Details of any funds materially in deficit** ## **Further financial review details (Optional information)** You **may choose** to include additional information, where relevant about: - the charity’s principal sources of funds (including any fundraising); - how expenditure has supported the key objectives of the charity; - investment policy and objectives including any ethical investment policy adopted. ## **Section F Other optional information** ## **Section G Declaration** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** Fiona Armitage **Full name(s)** Rebecca Boot **Position (eg Secretary, Chair,** Treasurer Secretary **etc) Date** 16.1.23 16.1.23 **TAR** March **2012** 7 **CRPS UK 1165597** ## **Receipts and payments accounts** **For the period** Period start date Period end date **To from** 1st April 2021 31st March 2022 ## **Section A Receipts and payments** ||**Unrestricted**
**funds**||**Restricted funds**||**Endowment**
**funds**||**Total funds**| |---|---|---|---|---|---|---|---| ||**to the nearest £**||**to the nearest £**||**to the nearest £**||**to the nearest £**| |**A1 Receipts**|||||||| ||||||**-**||**-**| |CommunityFundraising|**8,361**||||**-**||**8,361**| |Donations|**2,668**||**-**||**-**||**2,668**| |MonthlyGiving|**662**||**-**||**-**||**662**| |Merchandise|**423**||**-**||**-**||**423**| |Literature|**27**||**-**||**-**||**27**| ||||**-**||**-**||**-**| ||**-**||**-**||**-**||**-**| |**_Sub total_**_(Gross income for AR)_|**12,141**||**-**||**-**||**12,141**| |**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest £**
**8,361**
**2,668**
**662**
**423**
**27**
**-**
**12,141**|**Restricted funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Endowment**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Total funds**
**to the nearest £**| |---|---|---|---|---| ||||**-**|**-**| |CommunityFundraising|**8,361**||**-**|**8,361**| |Donations|**2,668**|**-**|**-**|**2,668**| |MonthlyGiving|**662**|**-**|**-**|**662**| |Merchandise|**423**|**-**|**-**|**423**| |Literature|**27**|**-**|**-**|**27**| |||**-**|**-**|**-**| ||**-**|**-**|**-**|**-**| |**_Sub total_**_(Gross income for AR)_|**12,141**|**-**|**-**|**12,141**| |**A2 Asset and investment sales,**
**(see table).**||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**83**
**-**
**-**
**-**
**83**
**-**
**-**
**-**
**83**
**- 83**
**-**
**9,862**
**9,779**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|| ||**-**|||**-**| ||**-**|||**-**| |**_Sub total_**|**-**|||**-**| |**_Total receipts_**
**A3 Payments**||||| |||||**12,141**| |||||| |
Storage Rent|**1,758**|||**1,758**| |Website and software subscriptions|**1,555**|||**1,555**| |Computer equipment|**478**|||**478**| |Insurance|**238**|||**238**| |Volunteer Expenses|**310**|||**310**| |FundraisingEvents|**1,270**|||**1,270**| |Support bagsproject|**143**|||**143**| |StirlingConference||||**83**| |Bank and paypal fees
DBS checks/ICO register|**62**|||**62**| ||**35**|||**35**| |||||**-**| |||||**-**| |||||**-**| |**_Sub total_ **||||**-**| |||||**-**| |||||**5,932**| |||||| |**A4 Asset and investment**
**purchases, (see table)**||||| ||**-**|||**-**| ||**-**|||**-**| |**_Sub total_ **|**-**|||**-**| |**_Total payments_**
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**||||| |||||**5,932**| |||||| ||**6,292**|**- 83**|**-**|**6,209**| ||**-**|**-**|**-**|**-**| ||**24,278**|**9,862**|**-**|**34,140**| ||**30,570**|**9,779**|**-**|**40,349**| CCXX R1 accounts (SS) 27/01/2023 1 ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
**B3 Investment assets**
**B2 Other monetary assets**
**B1 Cash funds**|**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments account(s))
**Details**
National Lottery Grant (Stirling Conference)
Balance|**Unrestricted**
**funds**
**to nearest £**
**30,570**
**-**
**30,570**
OK
**Unrestricted**
**funds**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which asset**
**belongs**|**Restricted funds**
**to nearest £**| |---|---|---|---| ||||**9,779**| ||||**-**| ||||**-**| ||||**9,779**| ||||OK| ||||**Restricted funds**
**to nearest £**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Cost (optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| **B4 Assets retained for the charity’s own use** ## **B5 Liabilities** Signed by one or two trustees on behalf of all the trustees |**Details**
**Details**
Refurbished HP pavillion Laptop|**Fund to which asset**
**belongs**
Unrestricted
**Fund to which**
**liability relates**|**Cost (optional)**| |---|---|---| |||**478**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| |||**Amount due**
**(optional)**| |||**-**| |||**-**| |||**-**| |||**-**| |||**-**| Signature Print Name Rebecca Boot Fiona Armitage CCXX R2 accounts (SS) 27/01/2023 2 ## **CC16a** **Last year** **to the nearest £** **-** **-** **-** CCXX R3 accounts (SS) 27/01/2023 3 **----- Start of picture text -----**
Endowment
funds
to nearest £
**----- End of picture text -----**
OK **Endowment funds to nearest £** **-** **Current value (optional) - - - - -** **Current value (optional)** **-** **When due (optional)** Date of approval 16.1.23 16.1.23 4 CCXX R4 accounts (SS) 27/01/2023