2021-03-31-accounts - Crps UK

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Trustees' Annual Report for the period

Period start date Period end date 6 April 2020 31 March 2021

From

Section A Reference and administration details

Charity name CRPS UK Other names charity is known by Registered charity number (if any) 1165597 Charity's principal address 58 Station Road Aldridge Walsall Postcode WS9 0BN

Names of the charity trustees who manage the charity

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Dates acted if not for whole Name of person (or body) entitled
Trustee name Office (if any)
year to appoint trustee (if any)
1 Amanda Nelson Chair
2 Rebecca Boot Treasurer
3 Fiona Armitage Secretary
4 Julie Weymouth
5 Richmond Stace
Dr Jacqueline
6
Bailey PHD
Dr Catherine
7
Edgeworth PHD
8 Samantha Fields 2/10/2020 9/11/2020
9
10
11
12
13
14
15
16
17
18
19
20
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Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)

Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document

Constitution

(eg. trust deed, constitution)

Charitable Incorporated Organisation How the charity is constituted

(eg. trust, association, company)

Elected by the board of trustees Trustee selection methods

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

policies and procedures adopted for the induction and training of trustees;
the charity’s organisational structure and any wider network with which the charity works;
relationship with any related parties;
trustees’ consideration of major risks and the system and procedures to manage them.

Section C Objectives and activities

Summary of the objects of the charity set out in its governing document

To relieve suffering and to preserve and advance the health of people with Complex Regional Pain Syndrome (CRPS) by any means as the trustees see fit.
The advancement, for the public benefit, of education of healthcare professionals, CRPS families and carers, and the public in general, in all areas relating to CRPS by the promotion of CRPS health education and research by, but not exclusively by, raising awareness through lectures, forums,

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newsletters and publications and the provision of research grants and carrying out research.

In our activities the trustees regarded the guidance issued by the charity commission on the public benefit.

CRPS UK’s main activities are to work to:

reduce the isolation of people with CRPS
increase understanding about CRPS by people with the condition to enable them to access appropriate treatment
increase knowledge and understanding of CRPS among the general public in order to reduce suffering of people with CRPS caused by ignorance

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

increase knowledge and understanding of CRPS among medical professionals to improve diagnosis and treatment outcomes
promote, support and coproduce research into CRPS to enable developments in treatment and support of the condition

Additional details of objectives and activities (Optional information)

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CRPS UK is mainly volunteer run. Without the ongoing dedicated support of our volunteers we would not be able to carry out our activities.

You may choose to include further statements, where relevant, about:

policy on grantmaking;
policy programme related investment;
contribution made by volunteers.

Section D Achievements and performance

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Section D Achievements and performance	Section D Achievements and performance
Summary of the main achievements of the charity during the year	Online support group – CRPS UK has maintained an active online support group which helps to reduce isolation and can aid users by sign posting them to information about treatment and support services. Individual Support – During the reporting period we began offering online individual support meetings to our members. These enable the member to discuss their issues and ask questions privately with two CRPS UK team members. This offers a more personal and individual focused session where any questions maybe asked and answered in confidence outside of a group setting. During support meetings, team members provide space for the member to talk openly, give them the benefit of their experience and signpost to relevant services best suited to their situation. Online Coffee Mornings – At the start of the Covid-19 lockdown CRPS UK began holding online coffee mornings twice a week in order to provide social interaction and peer support for our members. Later, as restrictions eased and the weather improved this was reduced to once a week. These are still ongoing and have a core group of around 10 regular attendees with others attending occasionally. The coffee mornings have enabled people to form friendships and have fun together. These coffee morning have been beneficial to members attending by way of reducing the feelings of isolation. Once a month during the lockdown period of the pandemic, CRPS UK invited a speaker to attend the coffee morning to give a talk on specific aspects of living with CRPS, including treatments available, medications, mental health, benefits and research. This provided education to the members who attended, about the condition, self-management and how they can access support. Leading on from the coffee mornings CRPS UK, organised virtual social evenings, which included quiz nights, bingo and crafting to name but a few. Online Seminars – during the reporting period CRPS UK held online seminars with clinicians and other experts in the field related to CRPS. The majority of these took place during the November ‘CRPS Awareness Month’ when we held 2-3 seminars per week. These were well received and well attended. The following are some of the online seminars held:  Medical treatment options available  Interactive research and the importance of getting involved  Medication and how to get the best from it  Neuromodulation  Tai Chi and the importance of movement  Diet and the role it plays in keeping well  Mental Health and how to stay safe and well during Covid 19  Benefits available All of the above included Q&A sessions. After each of the seminars time was given for peer support and to discuss how useful our members found the information given. Production and distribution of literature – CRPS UK continues to distribute a range of literature aimed at health care professionals, people with CRPS and the general public. The education provided through our literature increases understanding about the condition amongst wider audiences, thereby reducing suffering of those with CRPS caused by lack of understanding and knowledge of the condition.

Section D Achievements and performance

Summary of the main
achievements of the charity
during the year

Online support group – CRPS UK has maintained an active online
support group which helps to reduce isolation and can aid users by sign
posting them to information about treatment and support services.
Individual Support – During the reporting period we began offering online
individual support meetings to our members. These enable the member
to discuss their issues and ask questions privately with two CRPS UK
team members. This offers a more personal and individual focused
session where any questions maybe asked and answered in confidence
outside of a group setting. During support meetings, team members
provide space for the member to talk openly, give them the benefit of their
experience and signpost to relevant services best suited to their situation.
Online Coffee Mornings – At the start of the Covid-19 lockdown CRPS
UK began holding online coffee mornings twice a week in order to
provide social interaction and peer support for our members. Later, as
restrictions eased and the weather improved this was reduced to once a
week. These are still ongoing and have a core group of around 10 regular
attendees with others attending occasionally.
The coffee mornings have enabled people to form friendships and have
fun together. These coffee morning have been beneficial to members
attending by way of reducing the feelings of isolation.
Once a month during the lockdown period of the pandemic, CRPS UK
invited a speaker to attend the coffee morning to give a talk on specific
aspects of living with CRPS, including treatments available, medications,
mental health, benefits and research. This provided education to the
members who attended, about the condition, self-management and how
they can access support.
Leading on from the coffee mornings CRPS UK, organised virtual social
evenings, which included quiz nights, bingo and crafting to name but a
few.
Online Seminars – during the reporting period CRPS UK held online
seminars with clinicians and other experts in the field related to CRPS.
The majority of these took place during the November ‘CRPS Awareness
Month’ when we held 2-3 seminars per week. These were well received
and well attended.
The following are some of the online seminars held:

Medical treatment options available

Interactive research and the importance of getting involved

Medication and how to get the best from it

Neuromodulation

Tai Chi and the importance of movement

Diet and the role it plays in keeping well

Mental Health and how to stay safe and well during Covid 19

Benefits available
All of the above included Q&A sessions.
After each of the seminars time was given for peer support and to discuss
how useful our members found the information given.
Production and distribution of literature – CRPS UK continues to
distribute a range of literature aimed at health care professionals, people
with CRPS and the general public. The education provided through our
literature increases understanding about the condition amongst wider
audiences, thereby reducing suffering of those with CRPS caused by lack
of understanding and knowledge of the condition.

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Section D Achievements and performance

Research – During the reporting period CRPS UK began working with Mr Ben Miranda, and Mr Alex Smith from the St Andrews Centre for Plastic Surgery and Mid and South Essex Hospital Services NHS Trust on a collaborative patient centred study for people with CRPS. The aim of the study is to find out ‘who is more likely to suffer from CRPS’, ‘which are the most effective treatments for CRPS’ and ‘how much does CRPS affect the lives of patients’. The study aims to a provide positive outcome affecting the future management of patients who are at risk of developing or who have already developed CRPS.

CRPS UK continues to work on the ‘Living with CRPS’ research project. It focuses on the impact of living with CRPS on people’s health, wealth and disability. Work continues on this project into the next reporting period.

CRPS UK also continues to support clinicians and researchers investigating CRPS, by promoting calls for participation in current research projects and distributing the outcomes of completed research papers.

Section E Financial review

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CRPS UK does not have a reserves policy

Brief statement of the charity’s policy on reserves

Details of any funds materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

the charity’s principal sources of funds (including any fundraising);
how expenditure has supported the key objectives of the charity;
investment policy and objectives including any ethical investment policy adopted.

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Amanda Nelson Full name(s) Rebecca Boot Position (eg Secretary, Chair, Treasurer Chair etc) Date 13.9.21 13.9.21

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CRPS UK

Recei ts and a ments accou p p y

Period start date

For the period from

6th April 2020

Section A Receipts and payments

Unrestricted funds

Endowment funds

Restricted funds

to the nearest £

to the nearest £ to the nearest £

A1 Receipts

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|||||| |---|---|---|---|---| |Opening Balance|25,888|-| |National Lottery Grant (stirling conference)|9,968|-| |Community Fundraising|5,234|-|-| |Donations|4,779|-|-| |Monthly Giving|713|-|-| |Merchandise|461|-|-| |Literature|18|-|-| |-|-|-| |Sub total|(Gross income for AR)|11,205|9,968|-| |A2 Asset and investment sales,| |(see table).| |-|-|-| |-|-|-| |Sub total|-|-|-| |Total receipts|11,205|9,968|-| |A3 Payments| |Merchandise|6,163|-|-| |Storage Rent|1,758|-|-| |VA Services and volunter DBS checks|1,663|-|-| |Website and software subscriptions|1,583|-|-| |Volunteer expenses|510|-|-| |Insurance|394|-|-| |Fundraising events|350| |Trustee Expenses|138| |Literature|128| |Stirling Conference|106| |Meetups/coffee mornings|100| |Bank and paypal fees|16| |Postage and Stationary|13|-|-| |-|-| |-|-| |Sub total|12,815|106|-|

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||||| |---|---|---|---| |A4 Asset and investment| |purchases,|(see table)| |-|-|-| |-|-|-| |Sub total|-|-|-| |1|18/01/2022|

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CCXX R1 accounts (SS)

~~18/01/2022~~

	*Total payments*	12,815	106		-
	*Net of receipts/(payments)*	- 1,610	9,862		-
A5	Transfers between funds	-	-	-
A6	Cash funds last year end	25,888	-	-
	*Cash funds this year end*	24,278	9,862		-

CCXX R2 accounts (SS)

18/01/2022

Section B Statement of assets and liabilities at the end of the perio

Categories B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds	Details Details Details *Total cash funds* (agree balances with receipts and payments account(s)) Details National Lottery Grant (Stirling Conference) Balance	Unrestricted funds to nearest £

		24,279
		-
		24,279
		Agreement Error
		Unrestricted funds to nearest £
		-
		-
		-
		-
		-
		-
		Fund to which asset belongs





		Fund to which asset belongs

	Fund to which
Details	liability relates

B5 Liabilities

CCXX R3 accounts (SS)

~~18/01/2022~~

~~3~~

Signed by one or two trustees on behalf of all the trustees

Signature	Print N
	Rebecca
	Amanda

CCXX R4 accounts (SS)

18/01/2022

165597

unts CC16a Period end date 31st March 2021

Total funds

Last year

to the nearest £ to the nearest £

25,888		-
9,968		-
5,234		-
4,779		-
713		-
461		-
18		-
-		-
21,173		-

-
-		-
-		-
21,173		-

6,163		-
1,758		-
1,663		-
1,583		-
510		-
394		-
350
138
128
106
100
16
13		-
-
-
12,921		-

-
-
-		-

CCXX R5 accounts (SS)

18/01/2022

~~5~~

12,921		-
8,252		-
-		-
25,888		-
34,140		-

CCXX R6 accounts (SS)

18/01/2022

od

od
Restricted funds to nearest £ 9,862 - - 9,862 OK Restricted funds to nearest £ - - - - - -	Endowment funds to nearest £
	-
	-
	-
	-
	OK
	Endowment funds to nearest £
-	-
-	-
-	-
-	-
-	-
-	-

Cost (optional) - - - - -	Current value (optional)
-	-
-	-
-	-
-	-
-	-

~~7~~ Cost (optional) - - - - - - - - - Amount due (optional) -	Current value (optional)
	-
	-
	-
	-
	-
	-
	-
	-
	-
	When due (optional)
-

CCXX R7 accounts (SS)

18/01/2022

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-
-
-
-
Name Date of approval
a Boot
Nelson
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CCXX R8 accounts (SS)

18/01/2022