REPORT OF TH TRUSTEES MD UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 28 FEBRU Y 2023 THE CHI DREN'S HYPERIN CHARITY LINI THE CHILD HYPERINSUUNISM C General infomial Rawt of the Tru8tee8 2to6 Independent Examkws Report Statement of Fknanckl ActNtti8S Balance Sheet Notss to the Ffnandal Statements 10t013 14 Paga 1 ThE CHILDRENB HYPERINSUUNISM CHARTTY GENERAL WFORMATKIN 31 Lakè fM¥o NN173FE LE87 31 Laknt NN17 3FE YHE CHILDREN'S HYPERINSULINISM CHARrrY Tho trustfjos prosent tholr rnport th? finanaal statory￿ of thè d￿rltyf0r thè ￿r ended 28 February 2023. The tru9teo8 ￿ve adoptwj tho provlslons of Iho A(xounllng and Reportlng for Charillas: Statomant of RecoM￿ded Pra￿1￿ applicable to dlaritios weparing tholr a&￿Unty In a(xordan(* *4th the Flnanclal Reportiry Slwthrd in the UK arKI Rwjk4￿ of Iroland (FRS 102) {effectsve 1 January 2015). Objocllvos and actMtle8 Thls Charlty Véill 8UPP)rt faTh￿lIes PAve dblldren ￿lIh CHI by LX)nforencas for th8 . fanalle8 to meot othars andloam alm)￿ CHI Ilwouth we8antsUcffl8 fmm mgdlcal w￿￿onal8. expert in tho condltion. We ￿11 al80 mke regarthg Th￿rfd das8 re880rch into CHI aftera carefvlly v*d sknlm￿nt actmtles The Chlldren's Hyperlnsullnlsm Charfty laurthod In FOW 2016. sic*81w￿ *4th a CrcrAYWlrvJ Campaign partnored by FirKI8¢urn. The of the charity ar? very much family fo(yJsad as c￿genital Ffyp8Finsulinism 18 Vory i8datlng. We want to bring famllle8 together. *ith ctrmldren at the vwy forefront of our ml8810n, to errdurg thoy other larnllieB, thlldrnn arKI 8lbllrwJ8 livlng %%ith th8 condItI￿, 80 thoy fo811888 alone and can fomi filend8hlps. Publlc The tru8tee8 dedare that have conwied *ith their duty to hav8 due rogard to tho guIdaft￿ t publlc publl8hed by the In oxor(48lng Ihw dutle8. ACHIEVEMENT AND PERFORMAN The Children's Hyperinsullnlsm Charity supports famllles of thlldren wlth Hyperlnsulinism. We also raise awareness of Hyperinsulinism and campaign for greater wjblic awareness of the slgns and symptoms of Hypo8lycaemia. In addltlon, we hold family fun d•￿, conferences, teachertraining days and support researth. In 2022 we continued to explore W￿t0 support ourfamilies. We provided summer fun days at Legoland and Hamln8oland a5 well as a Festlve Fun Dayto Harry Potterstudlos. Thls allowed parents, CHI thlldren and their siblings the opportunltyto corne together for friendshlp and fun. THE CHILDREN'S HYPERINSUUNISM CHARITY Our famlly support group contlnued to Brow In membership and wetook on a n Inltlatlve to reath newly dlagnosed famllle& We produced rth diagnosed packs. that ¢ould bÈ 8lven out by the Hyperfnsullnism Specialists to families as a way of siqnposting them to our Charity. This has become an invaluable resouvceto reath famllles atthelr most vulnerabletime wthere the need for our support Is at ftsgfeatesL It allows us to reach them at the very beginning of thelr Hyperinsulinism journey so they no longerfeel Isolated or alone. We plan to continue and extend thls Inltlatfv We have enjoyed anotheryear of belng able to offer ourfamllle5 some fantastleVIP experlences courtesy of our ¢)n-8olng relatlonshlp with the charity Box 4 Klds. Thls has resulted In HI famllies enioyln8 ond beneffttlTr8 from varlous VIP experlences, such as horse radng days, musk ￿ncerts and foothall match& hjl of vthlth provlded a re81 treat to HI chlldren and a much needed boost to thelr self-esteem and we114xln& We took part In Hypo Awareness Wedx and Rare Dlsease Day, offerfng the fdmilleswe support the chance to share thelr courageous storfes of lfving with HypeTingJlinism to Insplre and show unltytowards the rare communlty. We were a150 dell8hted to launch our own sodal medla trdller, desl8ned to ralse awareness of frty￿rfn$ul1n1Wft and our Charlty. We looked Into new waysto supportfamilles and h(M we could achieve thls by networklng wlth other Charltles and organisation& In 2022 we were delighted to work wlth 8reaklng Down Barrlers Nel8hbourly. GeneticAlliance. D55abled thildrerfs Partnershlp. BEAM campalqn, Youn8 Slbs and the SunflowerSthem& Asa resulL we are explorlng how we can reach new communttie4 offer nwre support to ￿￿Ing$ and enable Hyperlnsullnlsm chlldren to access support and understanding In their communttie5 bv worktng wlth the Sunflower scheme and produdng our own bespoke sunfiower card. Our podcast HypoHugs contlnued to Inforni and update our HI communlty. As well as to share famlly experie￿ of daity Ilvln8 and deallng wlth the challenges that Hyperfnsullnlsm bdn8S. During 2022 we were fortunateto have the contlnued siwpcfft of our fundralser& We had Tunners In the Great North Run and CHI famlly or8anised events suth as Lryan's Golf Day hugelvwccessful annual eventwhich was strorth supported byfriends and the local communtty. We are always delighted to hear of CHI chlldren f￿r￿raIsITr8 for us and this year were honoured to received £150 from Amell4 vtho had produced and Sold some beautlful Jewellery. THE CHILDREN'S HYPERINSUUNISM CHARITY ThrougPK)ut 2022 we have contlnued to SUPPOrt re5earth. adw)cats forfarnluesand to seek 501utlons to Improve outcornes. treatm￿ and quallty of li￿ Wlth thls In mlnd we have partldpated In Poll¢y Worklng Groups, worked dosely with the Hyperjnsullnlsrn Speciallst Team and NHSE. We vRre also delighted to work with Profe550r May N8 and the European Society of Paedlatrlc Endocrlnolc8y IEPSE} to c￿Ut1￿r an open access paper callSng for nattonal fundlng of Contlnuous Glucose lrtonitor5 forthildren with IM)erlnsullnlsm. We further advanced thls campalgn Ip February 2023 by belng mentJoned In the House of lo￿ written questlons and we *ill contlnue to pursue this further in 2023. At the end of 2022 we stsrted to plan for our Famlty Confereno whlch wlll lake Pla￿ in Mav. Our alrn Isto ensure famllles recelve expert Infomiatlon on Ftyperingjlinism and howto access care and supporL Followlng our conference we will also produ￿ some videos to be used forfamllles who were unable to attend and as a re50urcefortralnlTrgand awareness purpose& We ended 2022 by pr(Nldln8 our Festi¥* pth to families In Pwltal Chrtsimas perfod. ensurfn8 these packs delivered to GOSH, Alder Hey. Riryal Manchest Children's Hospltsl, URTS and Royal Hospital forchildren. Glasgow. These packs helped U5to show famlllesthey were not alone. and ty had our care/5UPPOrt atthatdlffi¢ufttl￿. 2022 was a year of growth and opportunltyfor our Charfty. We ￿ld farfftb*ll to ourThts ' Mark and thanked hlm forhls all of hls Invaluable work and gJpporL We then welcoTh*d two new Trustees Lornlne and Ga¥ln, who bring vth them somefantastic skllls arKI expwlence whlch wlll help to strengthen ourcharftyfurtherand enable us to deliver on our Charlty . alms and objertlve& l am also delighted to announce Loralne Mldda MBE a5 Ctrchalr provlding addltlonal support and speclfic skllls and expertlse. whlth again wlll enhante and strengthen ourcharltygol forwards. 2023 wlll present us wlth some exdtlng projects and opportuniues to rdlse awareness and reach new communltlekwe are looklng forward to tsrin￿n8 famllies togetherwlth our conferen* and working on lon8ertem) slrntW5 and obiecth& Page 5. THE CHILDREN'S HYPERINSULINISM CHARITY REPORT OF THE TRU3TEE8 Tho bvstsoo have reviewed the ffinanclal p051tlon and a¢￿ints and are 8allsfigd that the ￿TTent lovel of r088pm18 8uffident to rneet the running Costs oftho tharlty. Tho balan¢* on the genornl fund wa8 £42,969 at the ond of the flnandal year. Tho charrty Yth•d to kg•p oxpon808 to a mlnlmum. Tho prln¢lpal lundlng 80urce8 looklng 8h•ad to the noxt financtal yaar ar• •xpected to ba from: Indlvldual donall¢n• Events Incomg Compan108 donatlon• 8TRUCTURE, GOVERNANCE AND MANAGEMENT Gov•mlng documonl Th? chqrlty ha8 boon qetup a• a charltable InCffjOrat￿ oroanllallon (CIO) and18 aov•m•d by It8 o)n•ulallon dated 12 F•bruAry 2016. Rocrnltm•nt and appolnlm•nt of n•w tru•tO•8 We ask people what 8klll8 they can brlng to tha ¢harfty 5.8. any oxpèrlenca ￿1th Data Protèctlon, flnan¢o8, fundral8lng or orqanl8allono18klllo, Thg ￿rrent tru•ts8• thon dl•cu88 tho appllrAtIo and mako a dod810n. D•cl•lon maklng Any de¢l8lon MAY bo lakon elthor at a nwotlng ol th• ohorfty tru•ts0•; or by re801utton In WTlllng or olectronlc form agreed by all of tho ¢hadty truste￿, whlch may wmprf80 8ltrt8r a 8lnolo docum•nt or 1ovaral docum8nt8 eonlalnlng tho text of tho r•8olutlon In Ilke form to Mch of th• wNth on• *x n￿r? charlty tru8too¥ 81gnlflad th•Sr agro•mont. Inducllon and tralnlng of now trn$tao8 Now trust8￿ b8coff• part ol a group vthorn w8 ¢>)rnnwntcatO 8omolmas dally In Nnnlng th• charlty. They ￿11 bo off8Md to attand any tnJ8tee tralnlng days that may bo held near to thom. We hold a m8•tbw la￿ to fa￿ onc8 por ￿•r but hold bl4nonthly mootlng8 vla vldao Ilnk. Pago 6 ThÉ CHILDREN'S HYPERIN8UUNISM CHARITY R18k ftMnagem•nt on$ufO appropFlate c4)ntrols in pl￿￿ to wovkn reaBonthe aS•u￿Ce againat fra￿j and error. REFERENCE AND ADMINISTRATIVE DEr￿S The charitV8 prfncipal addrn8618 08waldivAsle Kfjlls Bu&lws# & Cw)tr Cllfton IRdl, SW A(¥>lngi(m, BB5 IJEY The tru6tO08 8wved dwing the year TA￿. Sarah DeanY￿ (Ctrchalr & T￿￿te0} Loraine MBE ( CtrCh* & TNsto8) Amanda O lfjr8ty Payna Gavln Hepherd￿all Tho tru$to88 are respornble for preparing Iho R8p(*t ofth• Trustoos and tho ffinarKlal StateTr￿ts In ap￿rdanc8 appl1￿10 law and United lfjngdom Acc(￿nting StandarJnomlc tjoneflt on tha open matknL a o)rre8pondlng amtyint Iltho r8wgnl58d In gxpgndwurg In tho pgrfod of r¢ceFpL Exp•ndllurn Lklbm108 are reLX)gnlBed aB •xp8ndlknre 48 800n ￿ Ih8re18 a legal orconslnjcllve oblwllon c*)mmNttng th• ch•rtty to that exp8ndTiurg, tt Is pmbablg thal a tranBf8r of aconomk bongfit ￿11 bg rnqulrod In 8etU8m8nt and the amount of the obllgallon rAn b• m•4sured rellabty. Exwdliure18 oc%•ynt¢d for on an attnml basls and has boen c188s￿ed under hoadlng$ that aggragats 811 cost rel8lad to the cat•gory. Whère c>Jsts cannot b? dlrecty attrfbutod to partlcular headh)g8 thty have boon alEocated to act1￿83 a bo81$ wllh tho use of resourc88. . Tho Charfty IJ oxempt from tax on Its thartlablo adtvlil•8. Fund •c¢ounthig Unre8tslct•d fund8 ¢gn bo u8ed kn 4￿￿0nLY wlth ts ¢harftabl• ob]eLlfvo8 at the d18cr•flon gf the Iwsto98. P8ge11 THE CHILDREN'S HYPERINSULINISM CHARITY NOTES TO THE FINANCIAL STATEMENT8 FOR THE YEAR ENDED 28 FEBRUARY 2023 1. ACCOUNTING POUCIES- Contlnuod Flnanclal Instruments The tharlty h9$ elected to apply the provisions of 8oCtlon 11 '8a8lc Financlal In8truNnnt8' and Sgeknon 12'0ther Fina￿&1 In8trumenW of FRS 102 to all of Its financial instruments. Flnanclal In8trument8 are ro￿gnIsed In the charltV8 balanco 8hoet wthen the charlty becomes p8rty to the contra¢iual provlsions of th8 Instnj￿nt. Financial a88ets and Ilabllltle8 off8gt. vAth thp net armunts pr￿nted In tho financial 8tatom&nts, when there Is a lagally enforceabla right to set off the re¢opn18ed amounts and there18 an Intention to 801118 on a net b8s18 or to reallse the a88et and llablllty￿Th￿￿tAn0oUSly. Ba81¢ Ilnanclal a88ets Basic finanL4al awts, vthl¢h indude d8btOFS and ¢88h and bank balan￿, are Inllially rnea8ured at transactton price Indudlng tran8actlon costs and are 8ubsequently carried at armrftlsed cost U81ng the effectlve Intsrest method unle88 the arrangement con811tu08 a finan￿ng trans8￿10n, wh6ro the Iran88ction Is m&88ufed at the pre8ent valu011 tho future recelpts d18counted at a rate of Intare8t. Ba51c financlal Ilabllltlg8 Ba8ic flnanclal Ilabillli08, Indudlng ¢redltor8 and bank loans. are Intlally recognlsed at tran88don prlL* unlees the arrang•ment ¢on8tllutes a financlng transadlon. where the debt Instrumont Is m8a8ured at the pte8enl value ofthe fulurn paYn￿nIS dlsoounted at a rnrket rate of intere8L Flnanaal Ilabilit6es.da8slfied as payab16 Within one year are not amortised. Financial Ilabllltl88 arg dgrecogniged when the charitys contra(thal obligation8 ewiro or are dl8¢harged or ￿Tre¢ll¢d. 2.DONATIONS AND LEGACIES 2023 2022 Donatlon$ JuBt Givlng donatlon6 Paypal Trfp8 17.096 28,173 7,371 1,098 19,980 20.951 3. CHARITABLE ACTMTIES COSTS 2023 2022 (see nole 4) {88e note 4) Charltable a¢Uvltl06 Govornanca o)sts Support LThts 37 1000 6,556 Pago 12 THE CHILDREN'S HYPERINSUUNISM CHARITY OIRECTCOSTS OF CHARITP3LE ACTIV￿￿8 20¥J Trusteos, oxpon888 V[￿*1 offlc* rnnt Flomlngo Land Wamw 8ro8 SbJdhJ8 Legolarrfl Draylon Manor Great North Run Sub8*llon8lSoli¥Arn W0b81tO e(*t8 37 210 10.070 24.128 515 2.211 900 41.763 TRUSTEES. REMUNERATION AMD BENEFITS Th•r• no I￿$t￿, rnnum•r81kn Lw other trtho pwknd endod 28 F•bruwy 2023.. Tr￿1•￿, •xpong0• and Jub8t8tence. 8TOCK8 2023 Fknknhed good• 510 7. DEBTOR8: AMOUWrn FALUNG DUE ONE YE . 2023 2022 Propaymants 3.9n 3.898 lrtduded In prgpaJThonts arn tho pasTh*)ts b thb knak Flaca afterthe ond ofth Itnandal year. CREofTOR8 . PXOUNTS FALUNQ DUE ONE YE 2022 Acaualj 1.0(Kl 900 Induded In d¢fwr•d arn th8 recelpts k) th& events *)ok r*8 end 01thg ilnandal year. Pag8 13 THE CHILDREN'S HYPERINSULINISM CHARITY g. MOVEMENT W FUND8 ' At 01.032W22 In funds At 28.022023 Unr••trf¢tod fimd• (3•n•ral fvnd 71.379 48,410 42.989 Inc*mlno R•8ouYc4• Movomont r••tyJr¢e• •xpend•d In fund• Uftrg8trl¢tod lund• Goneral fund 19,980 48.390 48,410 10. RELATED PARTY DI8LCOSVRE8 Pag8 14 THE CHILDREN'S HYPERIN5ULIN15M CHARITY DEfAIILED STATEMENT OF FINANCIAL ACTivrrEs FOR THE YEAR E14DED 28 FEBRU￿ 2023 2023 INCOME AND ENDOWMEIITS . Donatlon8 and1ogacle8 17.096 28.173 7,371 Just Qlvlna donatton8 TrtPB Total I￿￿￿n9 mourco 19.980 37.208 EXPENDMJRE Ralslng don•tltyTr and hycl Advorllslng and marf(etFr Onlkne fimthglBlny 1808 Marth8ndi8elGlfts costs 1290 210 4,211 216 3212 4,908 5,717 Charttablo a¢llvlll 37 1020 Graat North Run Ftsmtngo Lan Wamer Bros Studlofj Leuolond Drayton Manor. ¢hifdrnh8Bntert8lnmBnt Sub8ulplon8 Th1ophDne Sthuonory and postago Prfnuro Web8tte co8t# 3,682 10,070 24.126 35 237 300 735 2211 51S 210 Offlca rent R¥p41 InsurarKa Tralnkny Conforon¢o costs 454 185 46,3BO 13,210 NET INCOMW(LOSS) ## ACCOUNTS Final Audit Report 2023-04-13 Created: 2023-04-13 By: Jody Colbert (jody@kemptonaccountancy.co.uk) Status: Signed Transaction ID: CBJCHBCAABAAZCuVT32InXdrgczAMnMV-pCt4IV4rV0q ## "ACCOUNTS" History Document created by Jody Colbert (jody@kemptonaccountancy.co.uk) 2023-04-13 - 13:04:00 GMT- IP address: 51.191.145.78 Document emailed to sarah@hyperinsulinism.co.uk for signature 2023-04-13 - 13:04:39 GMT Email viewed by sarah@hyperinsulinism.co.uk 2023-04-13 - 13:29:51 GMT- IP address: 66.249.93.75 Signer sarah@hyperinsulinism.co.uk entered name at signing as Sarah Dearman 2023-04-13 - 13:34:48 GMT- IP address: 80.5.65.146 Document e-signed by Sarah Dearman (sarah@hyperinsulinism.co.uk) Signature Date: 2023-04-13 - 13:34:50 GMT - Time Source: server- IP address: 80.5.65.146 ## Agreement completed. 2023-04-13 - 13:34:50 GMT Names and email addresses are entered into the Acrobat Sign service by Acrobat Sign users and are unverified unless otherwise noted.