Charty number.. 1165217
ACTION CERESRAL PAIJY
FIIIAf4¢1ALSTATEMEféTS
FOR THE YEAR ENDED 31 DECEMBER 2024
PNIID Dèane Accountan￿ Ltd
Units i & 2 Neld wav
gavnoids Green
alcester
OX27 7SG

Actlon CorBbraf Pa15¥
Contents
Paye
Lharity Infomatlon
IndÈpendé*t Exèmin6r% Report
ealan¢e Sbeer
Incame and EXPEnd5ts￿e Arcuunt

Action C¢rebrJl Pa15¥
Charlty intDrmaltsrt
Fvr7he Year Ended 31 December 2024
Yru5tees
Kalhanne GoI￿p
Or Hdèn Hunt
Mr Philip Lea
MrAnthonv M¢Gard-GroY¢s
Mr Paul Mavnard lappolnred 10 November 20141
Professor Neem Nodi
Ir Duncan Wa
Charity N￿mber
II652L7
ReglstÈred Olft¢e
Urits l & 2 Neld Wie
baynarts Green
ce5t
OX27 7SG
ountants
Phily Deane knountarw Ltd
units l & Z Yiekl V￿￿
ayn4rts Green
césrer
QXZ7 7SG
PaEe I

Athon Cerebral Pal
Independeat ExarniilattoTr
F¢)r The Year Ended 31 December 2024
T roport ¢n'.ha-.knonclal 5tsternenlq oFAction Ceretral CIO ror th- Y&lr ended 31 Oeffetrhber 1024, ￿h1¢h are set ?Lt o
page5 4 and S.
Resp¢ctive re$poA&ibilifies Qf trustees and exèmlner
The th)Thty's tru5tee5 are r&gPthsibk ftsr thè prepar*tsn & the acco￿￿. Tr.0 chartty'g trultees COTrSide-. that an èu¢ht 1$ not
requlred 4hi5 ye¥ untser 5ecDon 144 ot thè CharitiÈ£ Att 2011 I'the Chantles Acti that an Indepeiaent QX2rnipa'.icr. is
needed. myself ttat rhe cnarlty Is not 51JbJect ro iuttlt under cotnpany law and is e1lc1bj￿ IOT IpAepen¢ent
exèminatiW, it ￿$ My tespon£Lbility LO.. examhè the accounts unJer secckon 145 Jf the Charl[￿s Att, to lollow the procedJr05141¢
os¥r. in the g￿ets1 Lhrettion5 9lven by Chariry CornmyS51¢n (under Sffrtton 145151(bl of th& Charktle5 Actr). and to state
whether particulèr rnattr￿ ￿￿¥¢ oome to tnv att¢ntiof4.
Basls of IndepenQpnt examiner's statement
My QXaryMrthon ufflcd out in accurdan¢¢ Wjth general Direthons Gl'ien by the Charfty ¢ommi55ion. An exam*)2tiCn r￿ude5
a revie¥Y of.he accouDtlng record5 Kcpt by the charity )nd 4 comparison of the 2ccounts ￿ented wiph th￿e records. Ir zlso
IrKlude4 cw5ideT3tion ol Bny Unu￿£1 items ordiscbsUr￿ In the aryounts, Seeking explanaiions from thc trustees
Cor￿rning any SLich natters. The prO￿dureS uDdwtgken do not WDwde the evidence Ihak would te W￿re￿ In an aLdYc. ond
consequentlv no opinion Is as ￿ whQth•r tne accoun￿ pre5eni a'true aDd fair vi&w' and ￿e repcrt ￿ lJnNted lo thGs
iatiers Set out in the statemerit below.
Independent exarnlner's stateffi2nt
in c4nnertiQD wSth ry ¢x4minabon. no tpaterlal Inatiers hav￿ Lwiiitr to niy ailert1￿ wFich ￿yes tne ¢oLEe to Jellw*e Ihal In, any
ma￿rIaL respe
hc 4ccouDllng roÈOrdS woro not keot ip. accordance ivlth sert1￿ 130 af the Chadtres Att..
Lhe accounts did no4 accor4 wilh thp ac¢runEirt0 rQtOrds,' or
the a¢coun'.S DOE comply Wilh the applkible roquiremen:g ¢¢r￿mIng the form and CDntent of aCWunt5 Setout
thE ChartMe5 IAGcaunts arO Reports) Regknlatyiong 2008 oth￿r thaii èny requirefflent that th@ 3ccounf5 95v4 è.true and
fzir" vlew which nDt a mètter con51dered as partof an'.nd4pena￿t ¢xamina%iOn.
I have acro￿ no otherrnuiteffi tmnection wth the exarmnatioD lo whiGh attention Sh￿1￿ drawn In thk reFDtt
grdEr tD Ènable a woper understanding or the Kcounts to bE rE￿hed.
Dète
Philip Oeane ACcOUrt￿Cy Ltd
Units l E4 2 FI¢￿ View
Baynarts Green
QX27 75G
pthg¢2

Aetlon Carebral P4lsy
BalaTr¢e Sheet
As At 31 December 2024
2024
Current ￿Sets (bank acrounti
Cred￿rors.. Amounts Falllng L* Wittwn Owyear
NETCUMRENfASS
42,678
26,185
41678
Z6,184
TOTAL ASSEfs LESS CURRFNT LtA8lLmES
Accrualsand deferred Income laccatsntancyl
NET ASSErs
42.678
26,184
(550 1
42,128
26,IM
CAPITAL ANP RESEXVES
Restrirted
6.275
34,108
26.194
42.128
26.184
NDies
Gtharal Znft*rmatlon
Action Cerebral Pasy is a CharltablÈ tllCCWOrated oryan￿￿ti￿ (CIO) is reg15tered with the Charfty Cummls&onErs und¢r
re9tstr*on nutnber Il65217.
The CIO Wa5 rekis=ered wltn thB Qharity cornmis*on ￿ 19 JOn￿ry 2016 15tandard reglstratlanl and Convert￿ tv a CLO on 7 NIY
Z024.
Number 0¢ Trustses
Numberof
vear wts.. 7 (2023.. SI
Mrknthony McGarel-Gwes
rNstee Treasurer
Oate

Action Cerebral Palsy
Income & Expenditure Actount
ForThÉ Ye&T End*d 31 tTre¢ember 2024
2024
IQ23
Incom¢
Donabons
Donailot￿ReStrttt￿￿
Tralnlng Income
59,870
10.000
750
40,575
L,250
70.620
41*25
Fxp&nthtur
Restrlrte
1,72S
untsstrlrted
436
613
297
44,512
1,498
Atcountanty fees
Consuitsniy fees Public Aff41r5
Sundry expRnÉes
563
51,337
653
(54,676)
SURPLUSIIDEFlCtr)
15.944
È¢4

ACTION |
IDENTIFY
INTERVENE
IMPACT
CEREBRAL PALSY
Registered Charity no= 1165217
Trustees. Annual Report for the Financial Period ending 31.12.2024
Charity Name:
Action Cerebral Pa15y
Registered charlty number: 1165217
Website:
www.actionc
.or
Principal Address:
Units l and 2 Field View, Baynards Green, Bicester, Oxon,
OX27 7SG
The Trustees have pleasure in preserTrting their annual report and financial statements for
the year ended 31st December 2024.
Structure and Governance
In 2024, Action Cerebral Palsy {'Action CP'I converted to a charitable incorporated
organisation I'CIO") registered with the Charity Commission for England and Wales
Iregistered charity number 11652171. Action CP has adopted the Foundation Model CIO
Constitution whereby the only members of the charity are the trustees. Our registered
charity number and charitable aims remain unchanged.
The Trustees who served duringthe period were..
Miss Katharine Gollop KC
Dr Helen Hunt
Mr Philip Lea
Mr Anthony McGarel-Groves (Treasurer and Secretary)
Paul Maynard (appointed 20 November 20241
Professor Neena Modi
Mr Duncan Walsh
The member5 of the CIO are the Charity Trustee5 who form the Board and who are
responsible for managing the affair5 of Action CP. Action CP must have at least three charity
trustees; apart from the first charity trustees named in our Constitution, every trustee 15
appolnted for a term of three years. One of the Trustees serves voluntarily as Treasurer and
Company Secretary. There are four full meetings of charity trustees held each year. One
Trustee is appointed as Chairperson for each meeting. When new trustees are appointed,
they are introduced to the Board and briefed on all aspects of the Charit￿5 objectives and
policies and Charity Commission requirements. Trustees are encouraged to seek training as
appropriate, and to observe and follow the requirements and guidellnes set down by the
ACTION CERE8RAL PALSY TRUSTEES REPORT 2024

Charity Commission. Action Cerebral Palsvs trustees have diverse professional backgrounds
and have direct professional or lived experience supporting children with cerebral palsy and
their families.
In 2024, Attion CP was pleased to be joined by a new member. Paul Maynard, former MP.
was appointed as a trustee by a resolution passed at the Annual General Meeting on 20
November. Paul, who lives with CP, has been involved with Action CP as a Patron since its
founding. In addition, Action CP is pleased that Mary Foy, MP for the City of Durham, has
agreed to become a Patron on the Charity. Mary ha5 a lived experience of supporting a child
with cerebral palsy, and along with Paul Maynard, was Co-chair of the All-Party Parliamentary
Group on Cerebral Palsy of which Action CP was the lead sponsor.
The Éxe¢utive
The Charitws day-to-day operations are managed by the Chief Executive and additional
project work by the Policy Lead. Both posts are part-time.
Our Charitable Objertives:
To engage with policy makers in order to promote the creation of a national CP
strategy and care pathways for intervention and provision for children with cerebral
palsies
To be a source of informed advice on cerebral palsy for policy makers and the public
To represent the best interests of the cerebral palsy community
To facilitate the development of best practice for intervention, care, education and
support for children and young people with cerebral palsies across the United
Kingdom
To facilitate and disseminate research on cerebral palsy and therapeutit and
educational intervention
Public Benefit
In establishing annual objectives and overseeing the Charity's activities, the trustees have
regard to the principles of public benefit at all times. The core purpose of Action Cerebral
Palsy is to work towards better public and professional awareness and understanding of
cerebral palsy and an improved quality of life for all children in the United Kingdom with the
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024

condition. Action Cerebral Palsy needs to raise funds to support the cost of working towards
these outcomes.
About Cerebral Palsy
Cerebral Palsy (CPI, a lifelong neurological condition, is an umbrella term that Is used to
describe a range of movement disorders which can have an impact on many aspects of normal
childhood development-. motor, sensory, communication, cognitive, health and self-care. It
occurs as a result of interference or damage to the development of a baby's central nervous
system (the brain and spinal cord) between conceptiorn and 3 years of age.
Cerebral palsy ICPI is the largest cohort of childhood onset lifelong physical disability
It affects approximately 1.'400 children with approximately 1,800 children diagnosed
each year. Despite advances in healthcare, whilst this figure ha5 fluctuated over the
past 60 years It has not changed considerably.
There are 33,500 children and young people of School age with a physical disability,
the majority of whom have cerebral palsy
There are approximately 30,000 children and 130,000 adults In the UK living with
cerebral pa15y
y 2031, there will be almost a 3-fold increase in the number of people with cerebral
palsy over the age of 65.
The incidence rate for cerebral pa15y IS the same across Europe. the United State5 and
Australia.
1.3 with the condition will be unable to walk; 1.4 are unable to talk; 1.2 has
intellectual impairment
Cerebral palsy is 3 times more common than Down55yndrome and similar in
population to multiple sclerosls and Parkinson's disease
Cerebral palsy 15 nearly 30 times more common than muscular dystrophy
About Action Cerebral Palsy
Action Cerebral Palsy I"Action CP") is the only UK Charity which actively and solely campaigns
on behalf of children with cerebral palsy, a disabling lifelong condition caused by damage to
the immature or developing brain before or after birth. There are an estimated 30,000
children from all social backgrounds and ethnic groups in the UK with cerebral palsy which is
the most common cause of lifelong physical disability startlng in infancy. Action CP began in
2013 as a national consortium of specialist charities working with children with cerebral palsy
and their families and became a registered charity in 2016.
Since 2016, Action CP has raised awareness of the condition through our research,
publications, campaigns and engagement with the public, professionals and policy makers.
Our work is inspired and driven by children with CP and their families who face the manv
challenges of their day-to-day life with courage and resilience. We are a small but aspirational
charity which is committed to improve the daily live5 and life chances of all children with CP
throughout the UK so that they can have the best possible start to life and ongoing help and
support.
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024

Summary of Charitable Activities and Achievements durlng 2024
Policy Engagement to Improve Political Awareness of Cerebral Palsy and the issues facing
chlldren and young people with the condition and their farnilies
This has been a year of significant political change with the General Election in July 2024
bringing in a new Labour Government for the first time since 2010. Children and young
people with CP require high-quality healthcare and Special educational needs and disability
ISENDI provision from experienced, specialist professionals so the impact of their disability
can be mitigated from the earliest opportunity and their full potential maximised throughout
their developing years.
Despite the widespread prevalence of CP, the existing legislative framework is fragmented,
and does not account for CP a5 a condition in its own right. Meanwhile, policy makers,
professionals within education, health and social care as well the PLJblic lack knowledge about
the specific needs of children and young people ICYPI with CP resulting in an unacceptable
variation in the quality of health and educational provision across the UK.
Action CP is a non-partisan charity and has engaged across all parties and within all devolved
regions of the UK to improve the awareness and understanding of CP at local and national
leve15 in order to facilitate the development of models of best practice.
ACTI N
MosfcoMMop4cAiUEaF
PHYSICALD￿lI￿TYIFl
CHILDREPJ
EQEèR4Lp￿Sy
t41FESf0211Z4
Howcanyouhelp childFenaDdyou
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ow cany0￿￿0rk￿t
cerebtatpalsy..
Action CP launched its Election Manifesto on the very day that the General Election was called
22nd May 2024- at an informal drop in event for Parliamentarians in the House of Commons
kindly hosted by Mary Foy, MP - htt
actionc
.or
action-cerebral- als -launches-its-
2024-manifesto
The event was attended by 16 parliamentarians from both House5 of which
14 retained their seats in the election. We were also pleased to have a team from the NHSE
Children and Young People Transformation Group on hand to discus5 their work on the new
NHSE Cerebral Palsy Framework.
The Action CP Manifesto comprised three"asks" all of which have been drawn from the report
and recommendations of the All-Part Parliamenta
Grou
on Cerebral Pals
sessions which
were held between 2020 and 2023..
ACTION CEREBRAL PALSYTRUSTEES REPORT 2024

l. Implement the proposed f ramework for the commissioning of care and services for
CYP with CP developed by the NHSE CYP Transformation Programme.
2. Invest in recruitment and training to increase specialist knowledge of CP across health,
education and social care.
3. Fund dedicated lead professionals to act as advocate, co-ordinator and support from
diagnosis to transitlon to adulthood.
A Source of Informed Advlce on Cerebral Palsy for Policy Makers
Prior to and following the General Election, Action CP continued to meet with, seek meetings
with and to provide briefings for key stakeholders including Parliamentarian5 of all parties,
the Secretaries of State for Education, Health and Social Care and Work and Pensions, key
ministers for Schools, Early Years and SEND, Disability, Mental Health and Employment as well
as the Shadow Mini5ter5 and Spokespeople and key select committees. We have also worked
directly with the SEND team within the Department for Education and the Cabinet Office to
ensure that physical disability and cerebral palsy are no longer overlooked within key national
policies including the previous Government'5 Disability Action Plan, National Disability
Strategy and SEND and AP implementation plan which failed to mention CP or the needs of
children with physical disability.
To highlight World CP Day in October, Action CP wrote to all MPS and Peers seeking their
engagement to broaden their understanding of cerebral palsy and its impact on children and
young people and their families.
The office of the Children's Commissioner invited Action CP to meet to dlscuss waiting time5
for community care for children at risk of or with CP. The Children's Commissionerfs report,
Waitin
Times for Assessment and Su
ortforAutism ADHD and Other Neurodevelo
mental
Conditions was published in October 2024 and revealed that children with cerebral palsy
have the longest mean waiting time between referral and diagnosis of all
neurodevelopmental conditions
1222 days/3 years and 4 months and the Second longest
waiting time between referral and first contact- 827 days.
Action CP successfully applied to join the Special Educational Consortium
ecial
Educational Consortium
councilfordi5abledchildren.or
which is a small membership
organisation that works with Df E, Parliament and other stakeholders on policy, legislatlons,
regulations and guidance that may affect disabled children and young people and those with
SEN.
Overthe course of the year, Action CP has submitted evidence forthe following consultations..
Lord's Committee on Pre-Term Birth which has now been published on their website
htt
committee5.
arliament.uk
writtenevidence
128873
df
Public Accounts Committee Inquiry on Support for Children and Young People with
Special Educational Needs
SEND emer
enc
Unviable s
stem will end in lost
eneration of children without reform - Committees - UK Parliament
Department for Education Curriculum and Assessment Review
Curriculum and
assessment review - GOV.UK for which Attion CP organised stakeholder engagement
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024

meetings and an online survey to solicit feedback from parents, carers and young
people.
HM Treasury stakeholder representation In advance of the Autumn Statement.
Representing the Best Interests of the Cerebral Pa15y Community
We have participated in meetings with other charities focused on disability, healthcare.
specialist and mainstream education professionals and engaged through direct dialogue and
online surveys with our community of parents, carers and young people to gather evidence
of the issues facing the CP community in their ability to access appropriate care, resources.
seNices, support and education and to ensure that these views are represented in all of our
policy engagement.
Over this past year, Action Cerebral Palsy worked in collaboration with a number of
organisations, including:
CP Sport
CP Teens
Council for Disabled Children
El Smart
Embracing Complexity Consortium
Institute of Education Psychologists
Institute of Health Visiting
National Day Nurseries Association
Parent Carer Forum Bristol
PD Net
Riding for the Disabled Association
Royal College of Speech and Language Therapists
Scope
Special Education Consortium
Up Movement and the Up Adult Working Party
Whizzybugs
Researchers and academic institutions who are conducting research related to
neurological conditions such a5 cerebral palsy
Facilitating the Development of Best Practice
In Health¢are- Early Identlficatlon, Interventlon and Pathways of Care
Artion CP'S work in this area has focused on empowering healthcare professionals to identify
and respond and refer rather than wait and see. to ensure that at risk children are referred
promptly, assessed and receive care and intervention at the earliest possible moment, and at
a point when it can have a positive impact on that child's lifelong prospects as well as their
and their familvs well-being.
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024

In 2023, Action CP was invited to participate in a new NHS CP Task Force, driven by Dr
Charlie Fairhurst and chaired by Dr Simon Kenny, as part of the work in NHS England
on the Children and Young People Transformation Programme. Action CP facilitated
engagement with parents and young people to learn more about their experiences of
the NHS services that they or their child has received. Their voices have been
embedded within this groundbreaking framework that has been developed by the
Task Force for the commissioning of services for children and young people with
cerebral palsy. This framework which will serve as a blueprint for all children with
neuro-developmental conditions is due to be published imminently. The NHS ha5
identified a number of pilot ICBS.
Action CP continued to campaign to raise awareness of the early warning signs of CP
and what to do if a parent has concerns about their child's motor development. Our
free If In Doubt Check It Out poster5 and parent information leaflets were shared and
made widely available via conferences and our extended network of health, edu¢atlon
and social care professionals.
IF IN DOUBT.
'.HECK IT OUT
*T•
Your ¢hlld.
ir lutyre
Action CP was invited to join the advisory group for the Institute of Health W151ting
Early Motor Development Toolkit to provide input on the overall content of this
repository of resources for Health Visitors that will also be made available more widely
to other healthcare professionals. Thi5 toolkit will be launched in early 2025.
In 2024, NHSE paused its work on the development of a digital Personal Child Health
Record or Red Book. Action CP continues to advocate for the inclusion of information
on early motor development within the Healthy Start, Start For Life and Family Hubs
prlnt-based and online support materials.
In Educatlon- Workforce Skills and Understanding
Cerebral Palsy primarily affects sensory motor function but can also encompass several
neurological disorders which can affect all aspects of development in the growing child.
Children with CP can have a range of issues with communication, cognitive and learning
issues. hearing or sight issues. and difficultles wSth sensory processing. This has a huge impact
on how they develop, learn, and interact with the world around them. Therefore, cerebral
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024

palsy should not be considered as purely a physical disability nor treated as such within
schools and their approach to supporting children with CP. The unique nature of the
neurological condition requires a cross-sector approach bridging both health and education.
In enabling schools to access specialist training or specialist CP experts would help to bolster
the skills and knowledge that are required for a55essin& supporting, engaging and monitoring
the progress, wellbeing, and ongoing needs of the child with CP within the school.
Furthermore. having expert input in the EHCP process is pivotal to ensure the correct level of
provision to enable a Child with CP to thrive. and will facilitate better overall decision-making
for the care and education of CYP with CP.
Action CP'S work in this area has focused on improving the understanding of CP within the
workforce and ensuring that the needs of children and young people with the condition and
their family are strongly repre5eDted within policy discussions and review:
Action CP is now developing its own CP support materials targeted at non-specialist
education professionals to ensure that Schools and local authorities have acce5S to
Specific information about CP and how it impacts children and young people and how
they can be supported.
Nationa5 Day Nurseries Asso¢latlon- Action CP was invited to meet with this national
charity representing 6,500 private, voluntary and independent children's nurseries
across the UK. An article on cerebral palsy and its early warning signs that Action CP
wrote appeared in the Spring 2024 edition of Nursery News. Action CP used this
opportunity to launch an online survey for early year5 education professionals to gain
a better understanding of their awareness of and experience in identifying early motor
developmental delay and supporting children with motor developmental issues.
Action CP a150 continued to offer CP Awareness training for organisations SUPPOrting
children and young people with CP including..
o Institute of Health Visiting
Riding for the Disabled
o Bristol Parent and Carer Forum
Through our involvement with the Special Education Con50rtium as well as our own
initiatives, Action CP has been advocating for:
An improved EHCP process, with a national EHCP template that is fit for
purpose for children with complex conditions.
o Focus and funding on an expanded SEND module in initial teacher training and
ondition specific CPD training programmes, so early education professionals
and teachers have the necessary skllls.
The existing SEND training for
mainstream teachers is very general and does not provide sufficient skills and
knowledEe to enable these professionals to fully support a child with CP.
Over the course of the year. Action CP continued to meet regularly with colleagues in
the specialist teaching sector to look at the challenges and changes facing that sector
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024

and how we can move the agenda forward to improve education workforce skills.
training and awarene55 of the impact of physical disabilities and complex conditions
such as cerebral palsy.
Facilitating and Sharing Research
This year, Action CP has been asked to support grant application5 and to help facilitate parent
engagement for a number of research projects.
Summary
We are proud of the impact that the charity has had in 2024, the continued momentum from
the APPG on Cerebral Palsy and helping to ensure that the voices of parents and young people
with cerebral palsy were represented in key Government consultations, with policy makers
and across all parties. We are encouraged by the excellent work now happening within the
NHS England CP Task and Finish Group and within NHS England and positive about the
engagement we have had with local authorities, schools, professional governing bodies and
the Parliamentarians who have chosen to engage and who genuinely want to understand
more and improve their offering.
Our determination to improve the understanding of cerebral palsy Wlth those who are tasked
with allocating funding for, making decision5 about or providing services and support to
children and young people with cerebral palsy is paramount to improving the pathways of
care available to these children. Children and their parent5 need to be at the heart of the
provision and not made to feel that they have to fight to get the right care, support or
educational provislon for their child.
In 2025, we will continue to work on our own and with others in the following area5:
Policy and practice change at national and local government level working with all
parties to highlight the challenges and opportunities to improve the services available
to children and young people with cerebral palsy, and supporting the rollout of the
NHS England CP Framework for the Commissioning of Services for Children and Young
People with Cerebral Palsy.
Workforce Skills improvement, practical informatlon and awarene55 raising about
cerebral palsy- Evidence provided at the APPG on CP and our own research identified
that there is a lack of knowledge of cerebral palsy and its impact on the individual and
their family amongst non-specSallst professionals whose job often involves supporting
families with children or young people with CP. These practitioner5 may work in
ommunity health or education settings, local authorities or disability advisorv
services. or in special or mainstream schools. Action Cerebral Palsy is now developing
high quality training materials in conjunrtion with other healthcare, education and
therapeutic professionals that can be delivered in person or virtually by Action
Cerebral Palsy, and that are also accessible via our website.
Parent Support to provide families with much needed practical information about
cerebral palsy and where they can turn to for help, care, support and the
opportunities available for their child
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024

Financials
Action Cerebral Palsy is indebted to the many individuals, families, companies and funding
organisations which have donated to the Charity or chosen to fundraise for us during 2024.
We are pleased to have received the support of new and known Trusts and Foundations this
past year, including the Michael Cornish Charitable Trust, the Grace Trust, the Roger and lean
Jefcoate Trust, the King Cullimore Charitable Trust, the Souter Charitable Trust, and the St.
Jude's Trust as well as individua15 who organised pub quizies, classical music concerts, bake
sales, golf events and undertook challenges on foot, on bicycle and with parachutes to raise
funds for Action CP. We are grateful to have benefited from being chosen as one of 5 charities
supported by Eton Action in the 2023-2024 academic year, as well as for the much-valued
support from our significant indivldual donors and corporate fundraisers. including Tresidor
Investment Management Ltd.
The trustees have a continued focus on strengthening the ChariVs financial sustainability
through proactively seeking new sources of charitable funding, which has included delivering
a number of CP awareness training sessions during the course of this year. as well as looking
at secure ways of growing the Charity's cash reserves. The Charity makes all possible
efficiencies to keep c05t5 to a minimum and spending continues to be tightly controlled. The
Charity has also benefited from generous pro bono administrative support. The Charity does
not employ paid staff but instead uses specialist consuttancy and volunteer services to
support its operations. As a result, the Charity retains sufficient levels of cash reserves.
The tables below identify the Charitvs income by type and expenditure by area of activity.
While the Charity's CEO 15 largely focused on advocacy, awarene55 raising and education and
fundraising, she is also involved in the Charity's policy work. Similarly, the Director of Policv
is involved in advocacy, awareness raising and fundraising. The Charity was awarded a
restricted grant at the end of the f irst trimester of the financial year and will carry into 2025
that portion of the grant that was not fully spent within 2024.
For 2024, the Charity's income and expenditure was as follows..
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024
io

Income
Individual Giving
Community
Corporate
Events
Legacy/ln Memorium
Regular Giving
Training
Trusts INon-Restrictedl
Trusts (Restricted)
2024
2023
15.766.36
2,657.37
5,939.75
9,415.34
£ 20.592.71
5,000.00
42.75
2,405.75
24.00
750.¢)0
£ 23,389.00
£ 10,000.00
£ 71,619.55
1,437.06
24.00
1,250.00
14,750.00
Total Income
£ 41,824.54
2024 Income By Type
7%
0%3%
0%
Individual Giwng
Commtsnity
Corporate
Events
Legacylin Memorlum
Regular Givin8
Training
Trusts INon-Restrictedl v Tru5t5 IRestrictedl
AcfioN CEREBRAL PALSY TRUSTEES REPORT 2024
li

Expendlture
Campaigning
Advocacv
Awarene55 Raising & Education
Fundraising
Administration
2024
2023
27,932.46
2,400.00
10,646.38
4,306.31
1,634.50
46,919.65
36.456.58
3,600.00
6,300.00
5,933.92
2,385.17
54.675.67
Total Expenditure
Expenditure by Area 2024
11%
12%
Campaigning
Advocacy
Awareness Raising & Education
Fundraising
AdMin￿stration
Reserves Policy
The Charity has developed a Reserves Policy to protect its operations by creating financial
support against an unpredictable fundraising environment and to make sufficient provision
for future cash flow requirements and capital procurement. The policy also provides the
framework for future strategic planning and deci5ion-making. The Reserves Policy is based
upon an annual risk assessment of the internal and external operation environment, a5 well
as having due regard to the nature of the activities undertaken by the Charity towards its
charitable aims. In order to ensure there is appropriate financial security, the Trustees will
accumulate minimum reserves to meet immediate outstanding liabilities at any one point.
The Trustees have resolved, in view of the size and operational requirements of the charity,
that the minimum level of reserves should be three months of budgeted expenditure. The
Trustees review this Reserves Policy ors an annual basis.
Going Concern
Further to independent consultation, the Trustee5 have a reasonable expectation that the
Charity has adequate resources to continue in operational existence for the foreseeable
future. For this reason. they continue to adopt the going concern basis in preparing the
financial statements.
ACTION CEREBRAL PALSY TRUSTEES REPORT2024
12

Financial Strategy
Action Cerebral Palsy is ambitious in its rn155ion and is highly consciou5 of its current status as
being the only existing UK charity campaigning solely on behalf of children with cerebral palsy
and their families. We recognise that in the current economic climate we must continue to
focus on organic growth that leverages existing resources and relationships to ensure that we
build from a position of financial stability while continuing to fund our key charitable
activities. The Charity continues to move forward with its f Ljndraising strategy which Seeks to
develop new opportunities and potential income generation across a range of fundraising
activities, delivered services and projects which link us with individuals, other charitie5,
corporate5. trusts and foundations so that we can contlnue to expand our ¢apabilitie5 to
campaign, educate and advocate on behalf of our community of 30,000 children and young
people with cerebral palsy in the UK.
ACTION CEREBRAL PALSY TRUSTEES REPORT 2024
13