The PDA Society Annual Review 2024/25
Charity number: 1165038
The PDA Society trustees are pleased to present their annual report and financial statements of the charity for the year ended 31st March 2025.
The financial statements have been prepared in accordance with the accounting policies set out in notes to the accounts and comply with the charity’s governing document, the Charities Act 2011, and the relevant version of the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard in the UK and Republic of Ireland (FRS 102).
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Contents
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|Letter from the Chair...............................................................|4|
|The year at a glance................................................................|5|
|About PDA Society.....................................................................6|
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What we do
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• Charitable objectives • What is PDA?
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Mission, vision and values
Activities and impact...............................................................9
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Support service
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Training
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Research and networks
Community engagement.......................................................16 Thank you to our funders.....................................................17 Governance.....................................................................................18
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Trustee information
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Organisational structure
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Policies and procedures
Financial overview......................................................................21
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Financial review and reserves policy
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Trustees responsibilities
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Independent examiner’s report
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Statement of financial activities
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Dear Friends, Supporters and Partners,
It is an incredible privilege to serve as Chair of a charity so grounded in its purpose and powered by such a passionate community.
The PDA Society was born out of lived experience and driven by the belief that things can be different — and must be better — for PDAers and their families. That belief continues to guide everything we do.
In 2024-25, we made bold strides: supporting thousands of people through our enquiry line, launching our most ambitious research yet, increasing our fundraising, and growing our team as well as new partnerships that will carry us forward into the next chapter.
The scale of unmet need remains significant. But so too is our determination to close that gap. We’ve seen again and again that when PDAers and their families are truly understood — when they’re met with empathy, tailored support and respect — it transforms lives.
This year, we’ve brought the PDA community together with academics, professionals and families to co-create research which is laying the groundwork for even more inclusive, accessible, and impactful support.
Our vision is a world where PDA is no longer misunderstood, where PDAers and their families are recognised, heard and supported. Thank you for helping us bring that vision closer to reality.
Sally Cairns
Chair of Trustees
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The year at a glance
Our support service helped 2417 people and families.
We trained more than 4000 people, 60% of whom were professionals.
Over 967K people learned about PDA through our website.
Our social media following grew by 25%.
We expanded our research networks to share information and raise awareness.
The team has grown, and we now have the equivalent of 10.5 full-time roles.
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About PDA Society
What we do
The PDA Society is the only UK charity focused specifically on the PDA profile of autism. Our mission is to improve the lives of PDA children, PDA adults and their carers, and families. We have been a charity for 9 years. Before that we were a parent support group, first established in 1997. Our work uses published research and lived expertise from PDAers, family members and clinicians to build understanding and support for PDAers and everyone in their lives.
In setting our objectives and planning our activities, our trustees have given serious consideration to the Charity Commission’s general guidance on public benefit. The issues affecting PDA people and their families are found throughout the population. Our services and resources are available to any member of the public who needs information or support around PDA. Through our education, research and policy work, we attempt to raise awareness of PDA in the general public. All of our findings are available to members of the public, service providers, PDA people and their families.
Charitable objectives
To promote the relief of persons with Pathological Demand Avoidance (PDA), an Autistic Spectrum Disorder, and their families and carers, in particular, but not exclusively by:
a) providing information, advice and support to those persons with PDA, their families and carers including those awaiting diagnosis, and
b) advancing the education of the general public, in particular those responsible for the care, treatment and diagnosis of PDA by raising awareness in all matters relating to PDA.
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What is PDA?
The term PDA stands for Pathological Demand Avoidance. This is widely understood to be a profile found within some autistic people.
PDA isn’t a diagnosis, but during an autism assessment a person can be identified as having a PDA profile. This may be described in paperwork by saying a person ‘has a PDA profile’, or that they have ‘demand avoidance traits’. In autism research and clinical practice, a ‘profile’ refers to a pattern of characteristics (traits/behaviours) that shape how an individual experiences and responds to the world.
People with the same ‘profile’ can be very different from each other but will share some common experiences.
To have a PDA profile you will likely have most or all of the ‘characteristics’ of PDA and you will also share some characteristics with the wider autistic population. PDAers benefit from being supported by specific approaches, many of which would also benefit the wider autistic population, and some which are particular to this profile.
There isn’t enough research into the prevalence of PDA for us to make a confident assessment of population numbers, but the sole published research in this area suggests that prevalence could be as high as 1 in 5 autistic people.
PDA can have a profound impact on people’s lives, making everyday tasks impossible. Everyone’s experience is different and what helps one person may not work for another. Without the right support, many people find themselves unable to achieve their potential, trapped in lives that are restricted and deeply unhappy.
Our mission
At PDA Society, our focus is on making life easier for PDAers, their families and everyone affected by demand avoidance. We are building awareness and understanding around PDA and demand avoidance by providing information, training, and personalised support to everyone who needs it.
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Our vision
We want to see a world where PDA and demand avoidance are better understood, so that everyone can get the understanding and support they need to thrive.
Our values
We understand
Our team is made up of neurodivergent people and parents, carers and family members of PDAers. Our personal experience means we know first-hand how challenging life can be.
We listen
We are committed to listening to PDAers, people who experience demand avoidance, and everyone in their lives. We work hard to understand what matters most to people and to ask the right questions.
We work together
We believe everyone has a role to play in making life easier. We bring professionals and researchers together with neurodivergent people and their families to share learning and make sure everyone’s voice is heard.
We are human
We care deeply about making a difference, and we bring compassion, connection and honesty to everything we do. When we do get it wrong, we own up, learn, and focus on what we can do better.
We are focused
As a small charity, we have to make tough decisions about how we use our limited resources to create the greatest impact. We’re transparent about our decisions, balancing individual needs with helping as many people as we can, as fast as we can.
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Activities and impact
Support service
We provide three types of support:
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Solution based support through our support service
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Very occasionally we also provide more in-depth support for families at high risk of significant harm where we identify we can make a difference in a way other organisations can’t
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Peer support through our forum
“I couldn't believe I was receiving a personalised phone call from a parent with lived experience of the same issues we were coping with. I felt heard and understood for the first time and so reassured. I haven't had this from any professional, even if they tried to be understanding they just didn't/don't get it. Thank you PDA Society!”
“The person who emailed me was well informed but was also a parent of a PDAer..... her information was genuine and honest. I knew she understood. It's hard for others to understand...”
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Our support service provides information, guidance and signposting to PDA adults, families and professionals who are looking to get unstuck from a situation they find themselves in. Our trained support service team are made up of people who have lived experience, either as a PDA person or parent. When an enquiry is made through our site, we match the person enquiring with someone with expertise that can help, then they will get in touch via phone or email to:
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Identify and share helpful information
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Signpost to support that is relevant for the person enquiring
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Share their experiences, listen and empathise
This year the team supported 2417 people having on average 2.4 contacts with each person. Many people had their needs met in the first conversation, whilst others needed repeated contacts to support them through multiple and complex issues. The majority of people supported were parents, carers and family members (1782), followed by professionals and PDA people. The team have noted that the complexity of issues that are being brought to the support service is growing year on year.
In a very small number of cases (5 this year) we identify that there is significant risk to a family that is preventable (or minimisable) with our intervention, and where there is no other statutory or charitable body set up to provide support. In these cases we provide a slightly higher level of support and advocacy. This year, this has included taking advice from independent social workers, seeking professional support around PDA and eating disorders, and funding both family counselling and access to our training.
PDA Society’s forum (which is maintained and moderated by volunteers) provides a safe place for community members to ask for information, advice and support from each other. Informally and empathically sharing what works. After consultation with forum users we have plans to move the forum onto a social media platform to increase accessibility in 25/26.
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Case study
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Helping Chloe access the support she deserves
When people contact our support service, they’re often navigating situations that feel overwhelming and unfair. Claire’s story is one of persistence, transformation, and the difference the right support can make.
Claire reached out to us about her 11-year-old daughter Chloe, who has a formal diagnosis of autism which includes reference to pathological demand avoidance (PDA), documented in line with NICE guidelines. Despite this, Chloe’s school was not following her Education, Health and Care Plan (EHCP). She was struggling to attend, and her needs were being ignored. The school leadership team didn’t accept Chloe was experiencing PDA and were refusing to make the adjustments needed for Chloe to be able to manage in school.
We listened to Claire’s concerns and provided practical guidance about Chloe’s rights and the steps she could take. As the situation escalated and Claire considered taking legal action for disability discrimination, we continued to support her with communicating constructively, helping her to feel heard without fueling conflict. At the same time, we offered the school the chance to speak directly with our specialist training team.
Our training team met with school staff and other professionals working with Chloe. Together, we explored how PDA affects children like Chloe, and what approaches could genuinely help her thrive. This collaborative approach helped to shift understanding across the team. Chloe’s support began to reflect her actual needs, and her school attendance rapidly improved. Afterwards, Claire shared this message with us.
“You may have just not only saved my daughter’s education, but her future and life. Not only in not giving up the fight, but also, supporting me to apply wisdom and strategy to that fight that got results... I know because you have been where I have been, that you completely understand how I feel, even if I can’t put it into words.”
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Training and information
This year 967K people accessed information and resources through our website. The site provides a wide range of resources to help people understand what PDA is and how it can be identified, what support is helpful, and what PDA feels like for people in their own words. The resources from our site are used by organisations all over the world to build an understanding of the challenges PDA people face and how to best support them.
This year we worked together with members of the PDA community to review the accessibility of our website, and have undertaken work to make our content easier to find and understand. This culminated in the release of a new website on 14th May 2025.
T raining
The PDA Society’s training and consultancy team has further developed our training offer over the last year, creating new distinct offers for different groups of people. This year we provided:
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CPD accredited courses, aimed at supporting professionals across education, healthcare and social care
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A variety of bespoke courses/consultancy packages that supported organisations to face their particular challenges
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Q&A sessions on issues the PDA community are experiencing where experts focus on questions raised by the audience. These were available both live and recorded for a small fee
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Speakers at national and regional events, such as reaching an audience of over 700 people at the Autism Show.
In total this year the training team reached over 4000 people through training and presentations, 60% of whom were professionals. A further 1200 people were reached through our e-learning offer.
Feedback
Feedback on our training continues to be extremely positive. Based on responses from 800 people, we have a Net Promotor Score of 70.37%. An NPS score is a globally recognised standard where any score above 0 is considered good, and a score above 50 is considered excellent.
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Here is the headline feedback averaged across all courses for the previous year. Attendees are asked to give a point score of between 0-10.
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The ease of the booking process 9/10
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The quality of the content 9/10
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The quality of trainer delivery 9/10
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The interactivity of the session 8/10
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The level of help and support with queries 9/10
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I have a better understanding of what PDA is 9/10
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I have a better understanding of helpful approaches for PDA 9/10
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• I would recommend this course to others 9/10
“The information within this course has been very thought provoking. The strategies discussed will benefit our foster carers, and hopefully help them assume a different approach in meeting the needs of the children in their care.”
“Completely perfectly pitched for me: I have suspected my child has PDA and done some reading, but not sure what strategies would be the most effective. It was also really important to hear from young people and adults with PDA as this is missing from most accounts.”
Future Plans
Over the next year we will be offering new and updated content that will ensure our services reflect current research, and can adapt to the support required by the PDA community and the people in their lives.
We have begun to develop content that will better meet need by:
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Providing flexible access
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Creating focused content on a wider range of topics
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Providing the opportunity for personalised interactive learning
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Research and networks
We believe that meaningful change for PDA people and their families happens when we work together. At the PDA Society, collaboration is core to the way we work. We bring together researchers, professionals, support group leaders, and PDAers themselves to share learning, spark new ideas, and drive progress.
This year, we’ve continued to build and strengthen our network of partners, contributing to and benefiting from collective knowledge and shared goals. Our involvement in a range of networks helps us ensure the voices of PDA people are represented at every level.
Some of the groups we’ve been proud to be part of include:
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The Autism Alliance, where we’ve joined as a member and our CEO now sits on the partnership board
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King’s College London’s research steering group, a focused team working to build a centre of expertise around PDA through two PhD placements we’re supporting
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Our PDA research network, an invite-only group of researchers and academics, which meets every two months to share findings and ideas, helping to shape the future of PDA research
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Our adult PDAers reference group, a flexible, project-led group of 12 PDAers (and growing) who contribute lived experience and insight to key projects
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Our professionals Special Interest Group, a multidisciplinary group offering practical advice on our work and help us spot new opportunities to support PDA people
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Support Group Leaders Network, where people with lived experience who run local support groups share peer support, and help us stay connected to the issues families are facing
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An informal international network of PDA organisations in six countries, sharing resources and approaches to raise awareness globally
Our virtual education network, which feeds into our wider work and provides insight into how we can make education more accessible and inclusive.
Through all of these, our focus remains the same: listening to people with lived experience and using what we learn to make life better for everyone in the PDA community.
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One example of this collaborative approach is our research project, In Our Words, which was released in November 2024. Based on almost 1000 responses from PDA adults and families, this report shares what life is really like for people in our community. Written by 4 PDAers, who we supported to analyse and reflect on the survey findings, the report is already being used to inform our conversations with health professionals and policy makers.
We were also delighted to see 2 PhD students begin their doctorate studies at Kings Colledge London. The students are funded by a philanthropist who has also made a three year commitment to our research and participation work in house, in the hope that together we can increase the amount and quality of research around PDA, and work with academics and institutions to encourage strategic funding of this work and the creation of a center of excellence.
This year we also worked in partnership with the University of Hertfordshire and the University of Birmingham to undertake what we believe to be the first piece of participatory research about PDA. This research will be published next year, and was co-created with a group of PDA adults to understand how PDAers conceptualise PDA and how they prefer to talk about it.
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Community engagement
In 2024-25, our social media following increased by 25% from 106,064 to 133,532. This is slightly lower than the previous year because we took the ethical decision to leave Twitter/X. Interactions with our emails and social content have increased significantly and have become an important touchpoint for us in increasing awareness and understanding about PDA.
For PDA Day and Action Week in May 2024, we released early findings from our new research about the daily experiences of PDA people and their families. Members of the public contributed by sharing their own perspectives on post-it notes which we shared via the hashtag #PDAinOurWords.
The full research, PDA in Our Words, was released in autumn 2024 and was accompanied by a week-long campaign to highlight the human impact of these findings. We used information design and case studies across social media to help people understand how this data translated to people’s daily lives - and what they could do to make a difference for PDA people. Our reach increased by 33% on social media during this week.
During our Christmas campaign we released an animation, You Can’t See How I Feel, which focused on raising awareness about demand avoidance and helping people to understand this aspect of PDA. This was the central asset in our campaign which raised £39,138 for additional support for PDAers and their families. The film had 50,000 views during this week alone and has received overwhelmingly positive feedback from people with lived experienced, who felt that this could help to improve understanding of some of the barriers they face in their daily lives. It now features prominently on the home page of our website.
As part of our fundraising portfolio, this year we began running comedy events which have been a resounding success. This has been a really joyful way to raise funds without focusing purely on the challenges facing PDAers and their families. Some incredible comedians donated their time and talent to help raise money, and our event in July was a complete sell-out. For some people and families in the PDA community, accessing an in-person event isn’t always possible. That’s why in February 2025 we ran the first online streamed event to allow supporters to join in from home. This was well-received and we plan to make this an annual event.
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Our incredible and dedicated supporters continued to participate in community fundraising events this year. This included Ben, a father who raised £2251 when training for a half-marathon (almost double his initial target), and Rianna, who raised £427 through a Christmas Pilates class. Building on these successes, this summer we’ll be running a six-week community fundraising campaign, bringing together the PDA community to raise funds through a range of activities which work for them.
Our corporate partners, Safer Sphere, donated £2000 towards our Christmas Big Give campaign, which we were able to quadruple through their match funding model. After seeing the impact their donation was able to make, they have just decided to renew our partnership for a further year.
Thank you to our funders
The PDA Society can only continue to do the work we do because the community we support put so much effort in to raising funds for us. It means a great deal to us that so many people walk, run, cycle, put on craft auctions, play Minecraft, donate book royalties, ask their companies to donate, donate themselves monthly (or as a one off), or ask their wedding guests to donate - all of which have happened for us this year. The majority of our income comes from your generosity, and we promise to continue to do our best to make the greatest possible impact with every penny you donate. Thank you.
Thank you to the trusts and foundations that have put their faith in us this year. We know funders are oversubscribed, and when paired with how relatively unknown and misunderstood PDA is, this makes it difficult to secure funding. Thank you for seeing the value of our charity and the community we support.
Everyone who funds us is making a vital contribution towards securing happier lives for PDAers and their families everywhere. If we are to continue meeting need in the coming years, we will need your ongoing support.
Find out about how you can visit our website, or contact us directly at comms@ pdasociety.org.uk.
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Governance
Trustee information
The Charity is a Charitable Incorporated Organisation, number 1165038, and is operated under the rules of its constitution, the documents of which are dated 5 January 2016. The charity previously operated as an unregistered group. The assets and liabilities of this organisation were transferred to the CIO on 1 April 2016.
Strategic management of the charity is the responsibility of the trustees who are elected and co-opted under the terms of the constitution. Our employed staff team supported by volunteers (including trustees) and self-employed contractors are responsible for delivering the strategy that is set by the board. The trustees confirm that they have referred to the Charity Commission’s guidance on public benefit when reviewing the Trust’s aims and objectives and in planning future activities.
Trustees
Sally Cairns, Chair Elected chair 30th April 2025 Michael Pleasants, Vice Chair Elected vice chair 30th April 2025 Sally Russell OBE Resigned chair 30th April 25, remains a trustee Hilary Harvey James Hulse Sacha Wheatley Rachel Perrin Yvonne McLintock, Treasurer Appointed 23 April 2024 Craig McCormack Resigned 24th October 2024
Key management
Elizabeth Archer, Chief Executive
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Principal Address
Bankers
PO Box 6080 Sheffield S12 9EW
Accountants
HSBC 5 Wimbledon Hill Road Wimbledon London Sw19 7NF
Seven Hills Accountants Limited 57 Burton Street Sheffield S6 2HH
Organisational structure
This year has been another year of growth and change for our team. Our staff count has now increased to 16 employees, of which two are full time and the remainder are all part time.
New roles include Support Service Coordinator, Training Coordinator, Training Administration and Participation and Networks Co-ordinator, all part time.
The majority of our team are either a parent/carer of a PDA person or are neurodivergent themselves. This influences the way our team works, with everyone working flexible hours from home in order to make the roles accessible to people at a high risk of personal or familial burnout.
Our previous volunteer managers continue to be involved in the organisation, some as trustees, and all of them are available to support the employed team where they feel they need extra help or advice.
We have a bank of volunteers and meet with them every quarter to discuss suggestions and ensure they are involved with the charity and supporting it to reach its goals.
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Policies and procedures
This year we reviewed, updated and added to our whole policy suite, including Safeguarding; Reserves; Governance; Health and Safety; Data Protection and GDPR; Diversity, Equality and Inclusion; Complaints, Compliments and Feedback; Employee handbook; Social Media and Conflicts of Interest. A detailed document on recruitment principles was drawn up as well as a statement on modern slavery.
A statement on sexual harassment was added to the employee handbook following on from the legal changes in October 2024 and training was rolled out to all employees. Further policies are scheduled to be looked at during the next year.
We also implemented several low-cost benefits and employee wellness initiatives for our team including enhancing our holiday and sick pay allowances, introducing life insurance for employees, as well as a healthcare cash back scheme and employee assistance programme that employees are regularly reminded of.
We also continue to improve our systems by carrying out annual demographics reports, changing how we pay our training contractors to ensure fairness and consistency, and conducting annual salary reviews.
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Financial overview
Financial review and reserves policy
The trustees aim to maintain free reserves in unrestricted funds at a level which equates to between 4 and 6 months of costs associated with the operation of essential services. Currently this approximates to £143,694 based on budgeted expenditure for 2025/26. The trustees consider that this level will provide sufficient funds to deliver core services and ensure that office and governance costs are covered.
The free reserves (general funds excluding the value of any tangible fixed assets) as at 31 March 2025 were £178,713 (2024: £157,928).
Trustees responsibilities in relation to financial statements
The charity trustees are responsible for preparing a Trustees’ annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
The law applicable to charities in England and Wales requires the charity trustees to prepare financial statements for each year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, of the charity for that period. In preparing the financial statements, the trustees are required to:
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Select suitable accounting policies and then apply them consistently
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Observe the methods and principles in the applicable Charities SORP
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Make judgements and estimates that are reasonable and prudent
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State whether applicable accounting standards have been followed, subject to any material departures that must be disclosed and explained in the financial statements
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Prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in business
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The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. They are also responsible for safeguarding the assets of the charity and taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity’s website in accordance with legislation in the United Kingdom governing the preparation and dissemination of financial statements.
The Trustees declare that they have approved the above report on 4th October 2025.
Signed on their behalf by:
Name: Yvonne McLintok
Position: Treasurer and trustee
Date: 4th October 2025
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Independent examiner’s report to the trustees of PDA Society (“the CIO”)
I report to the charity Trustees on my examination of the accounts of The PDA Society (“the CIO”) for the year ended 31 March 2025.
Responsibilities and basis of report
As the charity trustees of the CIO you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of your charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner’s statement
Since the Charity’s gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. I confirm that I am qualified to undertake the examination because I am a member of the Institute of Chartered Accountants in England and Wales, which is one of the listed bodies.
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of the Charity as required by section 130 of the Act; or
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the accounts do not accord with those records; or
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the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair view which is not a matter considered as part of an independent examination.
Your attention is drawn to the fact that the charity has prepared the accounts (financial statements) in accordance with the relevant version of the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and
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Republic of Ireland (FRS 102) in preference to the Accounting and Reporting by Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has been withdrawn. We understand that this has been done in order for the accounts to provide a true and fair view in accordance with UK Generally Accepted Accounting Practice.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed:
Susan Cochrane FCA, DChA Seven Hills Accountants Limited 57 Burton Street Sheffield S6 2HH
11 Nov 2025
Date: _______
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The PDA Society Statement of financial activites (incorporating the income and expenditure account) For the year ended 31 March 2025
| Notes 2 3 4 5 12 Income from: Donations, grants and legacies Charitable activities Fundraising activities Total income Expenditure on: Charitable Activities Fundraising activities Total expenditure Net income/(expenditure) Transfers between funds Net movement in funds Total funds brought forward Total funds carried forward |
Unrestricted funds £ 98 558 182 520 45 732 |
Restricted funds £ 85 385 - - |
Total 2025 £ 183 943 182 520 45 732 |
Unrestricted funds £ 83 128 137 403 40 635 |
Restricted funds £ 95 057 - - |
Total 2024 £ 178 185 137 403 40 635 |
|---|---|---|---|---|---|---|
| 326 810 | 85 385 | 412 195 | 261 166 | 95 057 | 356 223 | |
| 275 684 45 694 |
90 285 - |
365 969 45 694 |
160 398 5 195 |
77 413 - |
237 811 5 195 |
|
| 321 378 | 90 285 | 411 663 | 165 593 | 77 413 | 243 006 | |
| 5 432 - |
(4 900) - |
532 - |
95 573 - |
17 644 - |
113 217 - |
|
| 5 432 231 643 |
(4 900) 24 888 |
532 256 531 |
95 573 136 070 |
17 644 7 244 |
113 217 143 314 |
|
| 237 075 | 19 988 | 257 063 | 231 643 | 24 888 | 256 531 |
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
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The PDA Society Balance sheet As at 31 March 2025
| Fixed assets Current assets Debtors Cash at bank and in hand Total current assets Creditors: amounts falling due within one year Net current assets Total assets less current liabilities Creditors: amounts falling due after more than one year Total net assets Represented by: Funds of the Charity General funds Designated funds Total unrestricted funds Restricted income funds Notes 8 9 10 12 13 14 |
Total 2025 £ 1 875 |
Total 2024 £ 964 |
|---|---|---|
| 18 989 281 939 |
12 284 262 299 |
|
| 300 928 (45 740) |
274 583 (19 016) |
|
| 255 188 | 255 567 | |
| 257 063 - |
256 531 - |
|
| 257 063 | 256 531 | |
| 180 588 56 487 |
158 892 72 751 |
|
| 237 075 19 988 |
231 643 24 888 |
|
| 257 063 | 256 531 |
Approved by the Board on 4th October 2025
and signed on behalf of the Board by Yvonne McLintok, Treasurer and trustee
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The PDA Society Notes to the accounts For the year ended 31 March 2025
1 Accounting Policies
a General
The PDA Society is a Charitable Incorporated Organisation. In the event that the charity is wound up, the liability in respect of the guarantee is limited to £nil per member of the charity. The address of the registered office is given in the charity information on page 2 of these financial statements.
The accounts (financial statements) have been prepared in accordance with the relevant version of the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011 and UK Generally Accepted Accounting Practice. The accounts (financial statements) have been prepared to give a ‘true and fair’ view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a ‘true and fair view’. This departure has involved following the relevant version of the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.
The financial statements have taken advantage of the exemption to prepare a Statement of Cash Flows.
The PDA Society meets the definition of a public benefit entity under FRS 102. The financial statements are prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant note(s) to the accounts. The financial statements are presented in sterling which is the functional currency of the charity and are rounded to the nearest £.
b Income - revenue recognition
Income is recognised when the organisation has entitlement to the funds, any performance conditions attached to the item(s) of income have been met, it is probable that the income will be received and the amount can be measured reliably.
Income from Government and other grants, whether ‘capital’ grants or ‘revenue’ grants, is recognised when the charity has entitlement to the funds, any performance conditions attached to the grants have been met, it is probable that the income will be received and the amount can be measured reliably and is not deferred.
Income is deferred when income in received in advance of the service being delivered.
c Expenditure and irrecoverable VAT
Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably.
Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.
d Tangible fixed assets
Depreciation has been calculated to write down the cost or valuation, less estimated residual value, of all tangible fixed assets over their expected useful live, as follows:
Computer equipment
25% Straight Line
All items of capital expenditure below £100 are written off as incurred.
e Cash and cash equivalents
Cash and cash equivalents comprise cash on hand and call deposits, and other short-term highly liquid investments that are readily convertible to a known amount of cash and are subject to an insignificant risk of change in value.
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The PDA Society Notes to the accounts - continued For the year ended 31 March 2025
f Trade debtors
Trade debtors are amounts due from customers for services performed in the ordinary course of business.
Trade debtors are recognised initially at the transaction price. They are subsequently measured at amortised cost using the effective interest method, less provision for impairment. A provision for the impairment of trade debtors is established when there is objective evidence that the company will not be able to collect all amounts due according to the original terms of the receivables.
g Trade creditors
Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of business from suppliers. Accounts payable are classified as current liabilities if the charity does not have an unconditional right, at the end of the reporting period, to defer settlement of the creditor for at least twelve months after the reporting date. If there is an unconditional right to defer settlement for at least twelve months after the reporting date, they are presented as non-current liabilities.
Trade creditors are recognised initially at the transaction price and subsequently measured at amortised cost using the effective interest method.
h Funds
Unrestricted funds are donations and other income receivable or generated for the objects of the organisation without further specified purpose and are available as general funds.
Designated fund are funds set aside by the trustees for a specific purpose.
Restricted funds are to be used for specific purposes as laid down by the funder.
i Pensions
The organisation has a defined contributions pension scheme. Contributions are charged in the accounts as they become payable in accordance with the rules of the scheme.
j Leases
Rental payable and receivable under operation leases are charged to the SOFA on a straight line basis over the period of the lease.
k Taxation
The charity is exempt from tax on income and gains falling within section 505 of the Taxes Act 1988 or section 252 of the Taxation of Chargeable Gains Act 1992 to the extent that these are applied to its charitable objects.
l Going Concern
The financial statements have been prepared on a going concern basis as the trustees believe that no material uncertainties exist. The trustees have considered the level of funds held and the expected level of income and expenditure for 12 months from authorising these financial statements. The budgeted income and expenditure is sufficient with the level of reserves for the charity to be able to continue as a going concern.
2 Income from donations, grants and legacies
| Donations Grants: National Lottery Community Fund Openwork Foundation Jonathan de Pass |
Unrestricted Funds £ 98 558 - - - |
Restricted Funds £ - 85 385 - - |
Total 2025 £ 98 558 85 385 - - |
Unrestricted Funds £ 83 128 - - - |
Restricted Funds £ - 53 457 14 964 26 636 |
Total 2024 £ 83 128 53 457 14 964 26 636 |
|---|---|---|---|---|---|---|
| 98 558 | 85 385 | 183 943 | 83 128 | 95 057 | 178 185 |
28
The PDA Society Notes to the accounts - continued For the year ended 31 March 2025
3 Income from charitable activities
| Training Book royalties Sale of merchandise |
Unrestricted Funds £ 178 700 2 485 1 335 |
Restricted Funds £ - - - |
Total 2025 £ 178 700 2 485 1 335 |
Unrestricted Funds £ 130 794 2 472 4 137 |
Restricted Funds £ - - - |
Total 2024 £ 130 794 2 472 4 137 |
|---|---|---|---|---|---|---|
| 182 520 | - | 182 520 | 137 403 | - | 137 403 |
4 Expenditure on charitable activities
| Note General administrative expenses Other professional expenses Research costs Staff costs 6 Training costs Enquiry line costs Travel & accommodation Postage, printing & stationery Merchandise Website Insurance Accountancy and business advice Independent Examination fee 7 Paypal fees Eventbrite fees- courses Bad debt provision Depreciation Loss on disposal of fixed assets |
Unrestricted Funds £ 5 893 1 242 542 214 405 40 344 1 284 467 467 - 217 1 218 66 2 127 1 951 4 308 747 406 - |
Restricted Funds £ 2 224 138 8 013 76 512 1 352 1 505 - 52 - 354 135 - - - - - - - |
Total 2025 £ 8 117 1 380 8 555 290 917 41 696 2 789 467 519 - 571 1 353 66 2 127 1 951 4 308 747 406 - |
Unrestricted Funds £ 4 179 635 445 102 761 35 872 976 33 1 303 4 777 269 205 1 2 070 193 5 323 1 055 66 235 |
Restricted Funds £ - - 466 76 947 - - - - - - - - - - - - - - |
Total 2024 £ 4 179 635 911 179 708 35 872 976 33 1 303 4 777 269 205 1 2 070 193 5 323 1 055 66 235 |
|---|---|---|---|---|---|---|
| 275 684 | 90 285 | 365 969 | 160 398 | 77 413 | 237 811 |
- 5 Expenditure on Fundraising Activities
| Note Staff costs 6 Event costs Other costs |
Unrestricted Funds £ 30 940 11 318 3 436 |
Restricted Funds £ - - - |
Total 2025 £ 30 940 11 318 3 436 |
Unrestricted Funds £ - - 5 195 |
Restricted Funds £ - - - |
Total 2024 £ - - 5 195 |
|---|---|---|---|---|---|---|
| 45 694 | - | 45 694 | 5 195 | - | 5 195 |
29
The PDA Society Notes to the accounts - continued For the year ended 31 March 2025
6 Staff Costs
| Staff Costs | ||
|---|---|---|
| Salaries Employer's National Insurance Employer's allowance Employer's pension contributions Freelance staff |
2025 £ 258 905 21 796 -5 000 7 342 38 814 |
2024 £ 148 787 12 501 -5 000 2 884 20 536 |
| 321 857 | 179 708 |
There was an average of 12 employees during the year (2024: 7). No employee received emoluments of more than £60,000.
7 Fees paid to the independent examiner's organisation
| Independent examination fee Other fees were paid to the independent examiner's organisation. Other services 8 Tangible Fixed Assets Cost or Valuation At 1 April 2024 Additions At 31 March 2025 Depreciation At 1 April 2024 Charge this period At 31 March 2025 Net Book Value At 31 March 2025 At 31 March 2024 9 Debtors Trade debtors Prepayments |
2025 £ 2 127 |
2024 £ 2 070 |
|---|---|---|
| 324 | 270 | |
| Office equipment £ 1 030 1 317 |
Total £ 1 030 1 317 |
|
| 2 347 | 2 347 | |
| 66 406 |
66 406 |
|
| 472 | 472 | |
| 1 875 | 1 875 | |
| 964 | 964 | |
| 2025 £ 8 813 10 176 |
2024 £ 8 016 4 268 |
|
| 18 989 | 12 284 |
30
The PDA Society Notes to the accounts - continued For the year ended 31 March 2025
10 Creditors: amounts falling due within one year
| Trade Creditors Other creditors Accruals Deferred income 11 11 Deferred income Deferred income b/fwd Released in the year Deferred in the year Deferred income c/fwd |
2025 £ 893 65 27 690 17 092 |
2024 £ - - 5 738 13 278 |
|---|---|---|
| 45 740 | 19 016 | |
| 2025 13 278 (13 278) 17 092 |
2024 - - 13 278 |
|
| 17 092 | 13 278 |
Deferred income relates to training income received in advance of the service being delivered and grant income received in advance of the agreed project start date.
12 Designated funds
| Operational Development Fund | Brought forward £ 72 751 |
Income £ - |
Expenditure £ (16 264) |
Transfers £ - |
Carried forward £ 56 487 |
|---|---|---|---|---|---|
| 72 751 | - | (16 264) | - | 56 487 |
Operational Development fund
Fund designated to support planned operational development costs.
Prior period comparison
| Strategic Growth Fund Operational Development Fund |
Brought forward £ 3 526 - |
Income £ - - |
Expenditure £ (3 526) - |
Transfers £ - 72 751 |
Carried forward £ - 72 751 |
|---|---|---|---|---|---|
| 3 526 | - | (3 526) | 72 751 | 72 751 |
31
The PDA Society Notes to the accounts - continued For the year ended 31 March 2025
13 Restricted funds
| PDA Research Fund PDA Community Project Supporting the PDA Community |
Brought forward £ 24 888 - - |
Income £ - 65 397 19 988 |
Expenditure £ (24 888) (65 397) - |
Transfers £ - - - |
Carried forward £ - - 19 988 |
|---|---|---|---|---|---|
| 24 888 | 85 385 | (90 285) | - | 19 988 |
PDA Research Fund
Funding to contribute towards the five year research goal to "Promote high quality multi-disciplinary research to extend understanding of PDA and the approaches needed, informing policy and practice, with improved outcomes for PDA individuals".
PDA Community Project
Funding from the National Lottery Community Fund to improve the quality of life outcomes for autistic children/ adults with a PDA profile and their parents/ carers.
Supporting the PDA Community
Funding from the National Lottery Community Fund to create a supportive and empowering community for individuals with Pathological Demand Avoidance (PDA) and their families that makes a material change to how professionals treat PDAers and their parents
| Prior period comparison PDA Research Fund PDA Community Project PDA Household Support Project Analysis of net assets between funds Tangible fixed assets Net current assets Prior period comparison Tangible fixed assets Net current assets |
Restated Brought forward £ 7 244 - - |
Income £ 26 636 53 457 14 964 |
Expenditure £ (8 992) (53 457) (14 964) |
Transfers £ - - - |
Restated Carried forward £ 24 888 - - |
|---|---|---|---|---|---|
| 7 244 | 95 057 | (77 413) | - | 24 888 | |
| General Funds £ 1 875 178 713 |
Designated Funds £ - 56 487 |
Restricted Funds £ - 19 988 |
Total 2025 £ 1 875 255 188 |
||
| 180 588 | 56 487 | 19 988 | 257 063 | ||
| Restated General Funds £ 964 157 928 |
Restated Designated Funds £ - 72 751 |
Restated Restricted Funds £ - 24 888 |
Restated Total Funds £ 964 255 567 |
||
| 158 892 | 72 751 | 24 888 | 256 531 |
14 Analysis of net assets between funds
32
The PDA Society Notes to the accounts - continued For the year ended 31 March 2025
15 Trustee remuneration and expenses, and the cost of key management personnel
No trustees received expenses during the financial year (2024: one trustee received £220)
Trustees donated £12,121 (2024: £4,070) before gift aid without conditions
The key management personnel of the charity, comprise the trustees and the CEO. The total employee benefits of the key management personnel of the charity were £66,164 (2024: £56,958).
16 Related Party Transactions
Apart from as detailed in note 15, there were no other related party transactions during the year.
33