2023-03-31-accounts - Hope For Hypothalamic Hamartomas UK

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	SORP reference
Summary of the purposes of the charity as set out in	Para 1.17	Relief of persons suffering from hypothalamic hamartoma ("HH")by
its governing document		increasing awareness, promoting
		research and the provision of
		information
Summary of the main	Para 1.17 and 1.19		Outreach to
activities in relation to those			patients/caregivers;
purposes for the public			Presenting to medical
benefit, in particular, the			professionals;
activities, projects or		(iii)	Organising and fundraising
services identified in the			for an international
accounts.			symposium on HH
Statement confirming	Para 1.18	Yes.We have read it, and had proper
whether the trustees have		regard.
had regard to the guidance
issued by the Charity
Commission on public
benefit

ou ma choose to include fur	ther statements	where relevant about:
	SORP reference
		We intend to assist our sister
	Para 1.38	organisation (Hope for HH) based in the
Policy on grant making		US in raising money for specific research projects for the benefit of the
		HH community. No grant will	be
		approved without agreement	from the
		Board of Directors of the US charity and
		the trustees of the UK charit	.
	Para 1.38
Policy on social investment
including program related
investment
	Para 1.38

Contribution	made	by	Incomefrom	trustees	=	EI,OOO	per
volunteers			annum
Other

chievements and Per	formance
	SORP reference
		2018-22 we represented patients on a
		National Policy Group for NHS funding
		of Laser Ablation for HH, collating a
Summary of the main	Para 1.20	wide base of evidence and co-authoring
achievements of the charity,		a detailed submission which resulted in
identifying the difference the		the NHS approving and fundinq laser
charity's work has made to		ablation of notjust HH but of other focal
the circumstances of its		epilepsies.
beneficiaries and any wider
benefits to society as a		2018 to date we continue towork with
whole.		EpiCARE as patient representatives on
		behalf of HH patients and also other
		epilepsy sufferers. We have created
		EpiCARE endorsed resources on
		hypothalamic hamartomas for patients,
		caregivers and healthcare
		professionals.

Achievements against	Para 1.41
objectives set
Performance of fundraising
activities against objectives	Para 1.41
set
Investment performance	Para 1.41
against objectives
Other

inancial Review
Review of the charity's	Para 1.21	Good. In creditand movingforward will
financial position at the end		continue to fundraise	for specific
of the eriod		pro•ects.
Statement explaining the	Para 1.22	Our policy is not to hold reserves other
policy for holding reserves		than to cover running	costs, rather to
statin wh the are held		fundraise fors ecific	ro•ects.
Amount of reserves held	Para 1.22	E144,760
Reasons for holding zero	Para 1.22	n/a
reserves
Details of fund materially in	Para 1.24	None
deficit
Explanation of any	Para 1.23	None
uncertainties about the
charity continuing as a going
concern

Structure, Governance	and Manag	ement
Description of charity's
trusts:
Type of governing document	Para 1.25	Trust deed
(trust deed, al charter)
How is the charity	Para 1.25	Trust
constituted?
(e KJ unincorporated
association, CIO
Trustee selection methods	Para 1.25	Appointment will be by unanimous
including details of any		agreement of the current trustees.
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees
Additional information(optional)
You ma choose to include further statements		where relevant about:

Names an	d addresses of a	dvisers (Optional information)
Type of	Name	Address
adviser
Name of	chief executive or names of senior staffmembers (Optional information)

			Unrestricted	Unrestricted	Restricted	Restricted	Restricted	Endowment
	Categories		funds			funds		funds
			to nearestE		to	nearest E		to nearestE
Bl Cash funds		Bank accounts
		Total cash funds
		(agree balanceswith receipts and payments
		account(s))
			Unrestricted		Restricted			Endowment
			funds			funds		funds
		Details	to nearestE		to	nearestE		to nearestE
B2 Other monetary assets
		Details	Fund asset	to which belon s	Cost		(optional)	Current value o tional
B3 Investment assets
		Details	Fund asset	to which belon s	Cost		(optional)	Currentvalue o tional
B4Assets retained for the
charity's own use
			Fund	to which	Amount due			When due
		Details	liabili	relates		o	tional	o tional
B5 Liabilities
Signed behalf	by one or two trustees on of all the trustees	Signature		Print	Name			Date of a roval
								aku-

			Unrestricted	Unrestricted	Restricted	Restricted	Restricted	Endowment
	Categories		funds			funds		funds
			to nearestE		to	nearest E		to nearestE
Bl Cash funds		Bank accounts
		Total cash funds
		(agree balanceswith receipts and payments
		account(s))
			Unrestricted		Restricted			Endowment
			funds			funds		funds
		Details	to nearestE		to	nearestE		to nearestE
B2 Other monetary assets
		Details	Fund asset	to which belon s	Cost		(optional)	Current value o tional
B3 Investment assets
		Details	Fund asset	to which belon s	Cost		(optional)	Currentvalue o tional
B4Assets retained for the
charity's own use
			Fund	to which	Amount due			When due
		Details	liabili	relates		o	tional	o tional
B5 Liabilities
Signed behalf	by one or two trustees on of all the trustees	Signature		Print	Name			Date of a roval
								aku-