Shwachman Diamond Syndrome UK
Sdsuk
- Country
- England & Wales
- Charity number
- 1164269
- Status
- Registered
- Registered
- Nov. 5, 2015
- Legal form
- CIO
Address
- Address
- 5 LINCOLN ROAD
WASHINGBOROUGH
LINCOLN
LN4 1EQ
Contact
- Phone
- 07949036041
- [email protected]
- Website
sdsuk.org
Activities
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
Objects: To Provide Relief To Patients And Families In The UK (Including Scotland And Northern Ireland) Who Are Affected By Shwachman-Diamond Syndrome (Sds) In Particular But Not Exclusively By:? Promoting Access To Health And Educational Services For Affected Patients Throughout The UK,? Supporting Research Into The Pathophysiology Of Sds And Its Current And Potential Treatment And The Public Dissemination Of The Useful Results Thereof, And? Providing And Encouraging Others To Provide Educational Resources And Activities About Sds For The Benefit Of Families, Professionals And The Public, Both Nationally And Internationally.
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Oct. 31, 2024 | £54,760 | £65,637 |
| Oct. 31, 2023 | £61,691 | £11,804 |
| Oct. 31, 2022 | £8,294 | — |
| Oct. 31, 2021 | £28,969 | £15,401 |
| Oct. 31, 2020 | £10,645 | £2,065 |
Trustees
| Name | Appointed |
|---|---|
| Heather Couch (Chair) | Dec. 12, 2025 |
| Andrew Olding | Dec. 9, 2025 |
| Kapil Gotecha | Nov. 3, 2019 |
| Rebecca Cuffe | Nov. 7, 2025 |