Cardior)yopathy
UK
the heart muscle chariiy
Annual Report
The difference we made in 2021







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||||||||31.12.21|31.12.20|
|---|---|---|---|---|---|---|---|---|
||||||Unrestricted|Restricted|Total|Total|
||||||funds|funds|funds|funds|
|||||Notes|E|E|E|E|
|INCOMEAND<br>ENDOWMENTS|||FROM||||||
|Donations and legacies||||2|553,435|262,237|815,672|749,555|
|Charitabte<br>activities|||||||||
|Providing support<br>Public and medical education||||||21,100<br>48,800|21,100<br>48,800|21,100|
|Research||||||59,906|59,906||
|Investment<br>income||||||||1,174|
|Total|||||553,435|392,043|945,478|77L829|
|EXPENDITURE ON|||||||||
|Raising funds||||5|276,593||276,593|271,179|
|Charitable<br>activities||||6|||||
|Providing support<br>Public and medical education<br>Campaigning<br>Research|||||75,351<br>46,439<br>21,887<br>12,236|243,449<br>46,787<br>19,947<br>81,882|318,800<br>93,226<br>41,834<br>94,118|319,348<br>72,674<br>48,049<br>17,184|
|Other|||||60,110|16,569|76,679|64,927|
|Total|||||492,616|408,634|901,250|793,361|
|NET INCOME/(EXPENDITURE)|||||60,819|(16,591)|44,228|(21,532)|
|Transfers between||funds||16|1,891|(1,891)|||
|Net movement<br>in funds|||||62,710|(18,482)|44,228|(21,532)|
|RECONCILIATION|OF FUNDS||||||||
|Total funds brought||forward|||331,200|191,534|522,734|544,266|
|TOTAL FUNDS CARRIED FORWARD|||||393,910|173,052|566,962|522,734|





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||||||||31.12.21|31.12.20|
|---|---|---|---|---|---|---|---|---|
||||||Unrestricted|Restricted|Total|Total|
||||||fund|funds|funds|funds|
||||Notes||8|2|2|2|
|FIXED ASSETS|||||||||
|Tangible assets||||12|8,871||8,871|8,857|
|CURRENTASSETS|||||||||
|Debtors: amounts||falling due within one|year|13|244,659||244,659|161,908|
|Debtors: amounts<br>falling due after more<br>than one year<br>Cash at bank and in hand||||13|29,006<br>183,379|173,052|29,006<br>356,431|4,006<br>440,685|
||||||457,044|173,052|630,096|606,599|
|CREDITORS|||||||||
|Amountsfalling|due within oneyear|||14|(72,005)||(72,005)|(92,722)|
|NET CURRENT|ASSETS||||385,039|173,052|558,091|513,877|
|TOTAL ASSETS|LESSCURRENT||||||||
|LIABILITIES|||||393,910|173,052|566,962|522,734|
|NET ASSETS|||||393,910|173,052|566,962|522,734|
|FUNDS||||16|||||
|Unrestricted<br>funds|||||||393,910|331,200|
|Restricted funds|||||||173,052|191,534|
|TOTALFUNDS|||||||566,962|522,734|



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||||31.12.21|31.12.20|
|---|---|---|---|---|
|||Notes|E|E|
|Cash flows from operating<br>activities<br>Cash generated<br>from operations||1|(79,637)|6,224|
|Net cash (used in)/provided|by operating|activities|(79,637)|6,224|
|Cash flows from investing<br>activities<br>Purchase oftangible fixed assets<br>Interest received|||(4,617)|(5,063)<br>1,174|
|Net cash used in investing<br>activities|||(4,617)|(3,889)|
|Change in cash and cash <br>inthe reporting period|equivalents||(84,254)|2,335|
|Cash and cash equivalents<br>beginning<br>of the reporting|atthe<br>period||440,685|438,350|
|Cash and cash equivalents<br>ofthe reporting<br>period|atthe end||356,431|440,685|





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||RECONCILIATION|OF NET|INCOME/(EXPENDITURE)|INCOME/(EXPENDITURE)|TO NET|CASH|FLOW FROM|OPERATING|
|---|---|---|---|---|---|---|---|---|
||ACTIVITIES||||||||
||||||||31.12.21|31.12.20|
||||||||E|E|
||Net income/(expenditure)||for the reporting|period|(as per the||||
||Statement of Financial Activities)||||||44,228|(21,532)|
||Adjustments<br>for:<br>Depreciation charges<br>Interest received||||||4,603|2,751<br>(1,174)|
||Increase in debtors||||||(107,751)|(19,265)|
||(Decrease)/increase|in creditors|||||(20,717)|45,445|
||Net cash (used in)/provided||by operations||||(79,637)|6,224|
|2.|ANALYSIS OFCHANGES IN NET FUNDS||||||||
||||||At1.1.21||Cash flow|At31.12.21|
|||||||E|E|E|
||Net cash||||||||
||Cash at bank and in hand||||440,685||(84,254)|356,431|
||||||440,685||(84,254)|356,431|
||Total||||440,685||(84,254)|356,431|





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|2.|DONATIONS<br>AND LEGACIES|||31.12.21|31.12.20|
|---|---|---|---|---|---|
||Donations<br>Grants and legacies<br>Fundraising|||192,761<br>361,996<br>260,915|178,166<br>246,868<br>324,521|
|||||815,672|749,555|
||Grants received included above are|||||
||as follows:|||||
|||||2021|2020|
|||Unrestricted|Restricted|Total|Total|
|||2|2||2|
||Browns Solicitors||64,800|e4,eoo|60,800|
||Aiexander Jansons Fund||(290)|(290)||
||BBCChildren<br>in Need||23,925|23,925|10,825|
||Big Lottery Fund-<br>Communitypeer<br>Support<br>Heart Hive<br>The Edward Gostling Foundation<br>Max's Foundation<br>Cunningham<br>Family Trust<br>MyoitardiaNistra<br>IE UK<br>The Moss Family Charitable Trust<br>European Consultancy<br>Burdett Trust Due<br>Arrhythmogenic<br>ACT<br>CAF Resilience Fund||58,821<br>(1,891)<br>2,203<br>57,628<br>10,000|58,821<br>(I',eel)<br>2,203<br>57,628<br>10,000|108,868<br>15,000<br>14,776<br>10,000<br>10,000<br>1,000<br>6,356|
||CAF Main Grant||44,850|44,850||
||The Girdler's Company<br>CharitableTrust|1,450||1,450||
||Edith Florence Spencer<br>MemorialTrust|11,000||11,000||
||Total Grants|12,450|260,046|272,496|237,625|
||Total Legacies<br>Coronavirus Job Retention Scheme|||89,500|4,000<br>5,243|
||||||246,868|





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|INVESTMENT<br>INC|OME|||||
|---|---|---|---|---|---|
|||||31.12.21|31.12.20|
|||||2|2|
|Deposit account interest|||||1,174|
|INCOME FROM CHARITABLE||ACTIV TIES||||
|Grants received included above||are as follows;||||
|||||2021|2020|
|||Unrestricted|Restricted|Total|Total|
|||2||2|2|
|Pfizer Ltd|||21,100|21,100|21,100|
|Online Medical||||||
|Education(AstraZen)|||10,000|10,000||
|Medical education<br>grant<br>(SanofiGenzyme)<br>PSGGrant (Novartis)|||5,000<br>23,800|5,000<br>23,800||
|e-learning courses <br>UKLimited)|(Alnylam||10,000|10,000||
|Growth b Development||||||
|Project (Bristol-Myers<br>SquibbPharmaceuticats|||59,906|59,906||
|Limited)||||||
|Total Grants|||129,806|129,805|21,100|
|RAISING FUNDS||||||
|Raising donations|and legacies|||31.12.21|31.12.20|
|||||2||
|Staffcosts<br>Rates and water||||153,704<br>1,013|175,069<br>605|
|Insurance||||422|926|
|Postage and stationery<br>Sundries||||2,157<br>5,187|4,839<br>146|
|Event costs||||64,351|31,950|
|Marketing<br>Travel and subsistence||||15,953<br>32|23,122<br>56|
|Computer<br>Recruitment||||6,223<br>550|3,456<br>7,692|
|Stafftrainlng<br>Rent||||26<br>11,301|9,486|
|Professionalfees||||917|2,777|
|Donation charges<br>Bankcharges<br>Subscriptions<br>Depreciation||||9,860<br>347<br>3,674<br>876|6,512<br>3,481<br>238<br>824|
|||||276,593|271,179|






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|was due to trustees<br>in relatio<br> Costs|n to expenses.||
|---|---|---|
||2021|2020|
|Wages and salaries<br>Social security costs<br>Other pension costs|464,818<br>39,087<br>12,353|482,236<br>39,020<br>13,463|
||516,258|534,719|



|Transactions|with|key man|agement<br>p|erso|nn|el|||||
|---|---|---|---|---|---|---|---|---|---|---|
||||||||||2021|2020|
||||||||||2|2|
|Total compensation||ofkey management||personnel|||||64,297|64,297|
|The average|monthly|number|ofemployees||during the||year was as|follows:|2021|2020|
||||||||||18|18|
|The number|of employees||whose employee|||beneiits|(excluding|employer|pension|costs) exceeded|
|260,000was:|||||||||2021|2020|
|260,001 - 270,000|||||||||||





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||||||Computer|
|---|---|---|---|---|---|
||||||equipment|
||||||2|
|COST||||||
|At1January 2021<br>Additions|||||28,966<br>4,617|
|At31 December|2021||||33,583|
|DEPRECIATION||||||
|At1January 2021|||||20,109|
|Charge for year|||||4,603|
|At 31December|2021||||24,712|
|NET BOOKVALUE||||||
|At31December|2021||||8,871|
|At 31December|2020||||8,857|
|rs: Amounts|||Falling Due Within One Year|||
|||||31.12.21|31.12.20|
|||||2|2|
|Trade debtors||||69,906|15,982|
|Prepayments<br>and accruedincome||||174,753|145,926|
|||||244,659|161,908|
|ors: Amounts|||Falling Due|Within One Year||
|||||31.12.21|31.12.20|
||||||2|
|Trade creditors<br>Socialsecurityand<br>Other creditors||othertaxes||11,009<br>11,353<br>2,528|8,503<br>12,3'l2<br>4,018|
|Accruals and deferred income||||47,115|67,889|
|||||72,005|92,722|



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|Minimum<br>lease payments<br>under non-cancellable<br>oper|ating<br>leases fall due as follows:||
|---|---|---|
||31.12.21|31.12.20|
||2|2|
|Within one year<br>Between one and five years|26,400<br>105,600|33,393<br>105,600|
|In more than five years|103,400|129,800|
||235,400|268,793|





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|ment<br>in Funds|||||
|---|---|---|---|---|
|||Net|Transfers||
|||movement|between|At|
||At1.1.21|in funds|funds|31.12.21|
||2||2|2|
|Unrestricted<br>funds<br>General fund|331,200|60,819|1,891|393,910|
|Restricted<br>funds<br>Medical education<br>Providing support helpline<br>Youth services|10,018<br>3,974|1,180<br>(3,974)||10,018<br>1,180|
|West Midlands support fund<br>Alexander Janson's Foundation<br>BBCChildren<br>in Need<br>Heart Hive<br>Max's Foundation|924<br>1,260<br>4,314<br>1,891<br>13,929|(1,260)<br>(2,345)<br>(13,278)|(924)<br>(1,891)|1,969<br>651|
|Community<br>Peer Support(National<br>Lottery Community<br>Fundl||(139)|924|785|
|Building Capabilities (National Lottery<br>Community<br>Fundl<br>Online Medical Education<br>Advocacy<br>PPCM Campaign<br>BLFHelpline<br>Building the Community<br>Awareness<br>Campaign<br>CAF Resilience Fund<br>CAFSupport Fund<br>BMSGrant|17,844<br>19,574<br>27,803<br>4,941<br>20,572<br>64,490|(17,844)<br>(16,242)<br>11,672<br>(4,941)<br>(20,572)<br>(53,412)<br>8,794<br>9,201<br>26,938<br>59,631||3,332<br>39,475<br>11,078<br>8,794<br>9,201<br>26,938<br>59,631|
||191,534|(16,591)|(1,891)|173,052|
|TOTAL FUNDS|522,734|44,228||566,962|



|Net movement<br>in funds,|included<br>in the above ar|e as follows:|||
|---|---|---|---|---|
|||Incoming|Resources|Movement|
|||resources|expended|in funds|
|||2||2|
|Unrestricted<br>funds<br>General fund||553,435|(492,616)|60,819|
|Restricted<br>funds<br>Providing support helpline<br>Youth services<br>Alexander Janson's Foundation<br>BBCChildren<br>in Need||30,000<br>10<br>23,925|(28,820)<br>(3,974)<br>(1,270)<br>(26,270)|1,180<br>(3,974)<br>(1,260)<br>(2,345)|
|Max's Foundation|||(13,278)|(13,278)|
|Community<br>Peer Support<br>Lottery Community<br>Fund)|lNational|58,821|(58,960)|(139)|
|Building Capabilities<br>(National Lottery<br>Community<br>Fund)<br>Online Medical Education<br>Advocacy<br>PPCM Campaign<br>BLFHelpline<br>Building the Community<br>Awareness<br>Campaign<br>ACT/UCL<br>CAFResilience Fund||25,000<br>55,900<br>23,800<br>57,628<br>10,000|(17,844)<br>(41,242)<br>(44,228)<br>(4,941)<br>(20,572)<br>(53,4'I 2)<br>(15,006)<br>(57,628)<br>(799)|(17,844)<br>(16,242)<br>11,672<br>(4,941)<br>(20,572)<br>(53,4'I 2)<br>8,794<br>9,201|
|Burdett Trust<br>CAFSupport Fund<br>BMSGrant||2,203<br>44,850<br>59,906|(2,203)<br>(17,912)<br>(275)|26,938<br>59,631|
|||392,043|(408,634)|(16,591)|
|TOTALFUNDS||945,478|(901,250)|44,228|





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|Comparatlves<br>for movement<br>in funds||||
|---|---|---|---|
|||Net||
|||movement|At|
||At 1.1.20|in funds|31.12.20|
|||2||
|Unrestricted<br>funds||||
|General fund|457,553|(126,353)|331,200|
|Restricted<br>funds||||
|Medical education|22,600|(12,582)|10,018|
|Providing support helpline<br>Youth services|164<br>6,664|(164)<br>(2,690)|3,974|
|West Midlands support fund<br>Alexander Janson's Foundation|924<br>116|1,144|924<br>1,260|
|8BCChildren<br>in Need|2,937|1,377|4,314|
|Heart Hive|1,891||1,891|
|Max's Foundation|11,755|2,174|13,929|
|Community<br>Peer Support (National<br>Lottery Community<br>Fund)|4,662|(4,662)||
|Building Capabilities INationalLottery<br>Community<br>Fund)<br>Online Medical Education|25,000<br>10,000|(7,156)<br>9,574|17,844<br>19,574|
|Advocacy<br>PPCM Campaign<br>BLFHelpline||27,803<br>4,941<br>20,572|27,803<br>4,941<br>20,572|
|Building the Community||64,490|64,490|
||86,713|104,821|191,534|
|TOTAL FUNDS|544,266|(21,532)|522,734|



|Comparative<br>net movement<br>in funds, Included<br>in|the above are as follows:|||
|---|---|---|---|
||Incoming|Resources|Movement|
||resources|expended|In funds|
||2|2|2|
|Unrestricted<br>funds||||
|General fund|420,657|(547,010)|(126,353)|
|Restdicted<br>funds||||
|Medical education|179|(12,761)|(12,582)|
|Providing support helpline|30,000|(30,164)|(164)|
|Youth services|15,000|(17,690)|(2,690)|
|Alexander Janson's Foundation<br>BBCChildren<br>in Need|2,924<br>10,825|(1,780)<br>(9,448)|1,144<br>1,377|
|Max's Foundation|14,776|(12,602)|2,174|
|Community<br>Peer Support(National<br>Lottery Community<br>Fund)|63,218|(67,880)|(4,662)|
|Building Capabilities<br>INational Lottery<br>Community<br>Fund)<br>Online Medical Education|30,000|(7,156)<br>(20,426)|(7,156)<br>9,574|
|Advocacy<br>PPCMCampaign<br>6LFHelp line<br>Building the Community|51,900<br>18,700<br>45,650<br>68,000|(24,097)<br>(13,759)<br>(25,078)<br>(3,510)|27,803<br>4,941<br>20,572<br>64,490|
||351,172|(246,351)|104,821|
|TOTALFUNDS|771,829|(793,361)|(21,532)|





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|||31.12.21|31.12.20|
|---|---|---|---|
||||2|
|INCOME<br>AND<br>ENDOWMENTS||||
|Donations<br>and legacies<br>Donations||192,761|178,166|
|Grants and legacies<br>Fundraising||361,996<br>260,915|246,868<br>324,521|
|||815,672|749,555|
|Investment<br>income||||
|Deposit account interest|||1,174|
|Charitable<br>activities||||
|Grants||129,806|21,100|
|Total incoming<br>resources||945,478|771,829|
|EXPENDITURE||||
|Raising donations|and legacies|||
|Wages<br>Social security<br>Pensions||138,826<br>11,662<br>3,216|156,741<br>13,030<br>5,298|
|Rates and water||1,013|605|
|Insurance||422|926|
|Postage and stationery<br>Sundries||2,157<br>5,187|4,839<br>146|
|Event costs||64,351|31,950|
|Marketing<br>Travel and subsistence||15,953<br>32|23,122<br>56|
|Computer<br>Recruitment||6,223<br>550|3,456<br>7,692|
|Stafftraining<br>Rent||26<br>11,301|9,486|
|Professional fees||917|2,777|
|Donation charges||9,860|6,512|
|Bank charges<br>Subscriptions||347<br>3,674|3,481<br>238|
|Depreciation oftangible fixed assets||876|824|
|||276,593|271,179|
|Charitable<br>activities||||
|Wages<br>Social security<br>Pensions||303,533<br>25,698<br>8,587|302,165<br>24,146<br>7,534|
|Insurance||5,200|3,970|
|Carried forward||343,018|337,815|





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||31.12.21|31.12.20|
|---|---|---|
|Charitable<br>activities|||
|Broughtforward<br>Light and heat<br>Telephone<br>Postage and stationery<br>Advertising<br>Sundries|343,018<br>1,623<br>5,000<br>4,021<br>58,767<br>178|337,815<br>662<br>3,254<br>5,494<br>49,375<br>320|
|Medical conferences and events|10,065|2,253|
|Public conferences and events|11,580|14,036|
|Computer<br>Travel and subsistence|7,364<br>1,949|9,167<br>1,402|
|Recruitment|275|11,075|
|Stafftraining<br>Support costs<br>Consultancy<br>Rent|911<br>1,015<br>1,254<br>16,215|1,491<br>1,519<br>210<br>15,975|
|Depreciation oftangible fixed assets|2,861|1,561|
|Grants to institutions|81,882|1,646|
||547,978|457,255|
|Supportcosts|||
|Management<br>Wages<br>Social security<br>Pensions|22,459<br>1,727<br>550|23,330<br>1,844<br>631|
|Rates and water|421|708|
|Insurance||307|
|Light and heat<br>Telephone<br>Postage and stationery<br>Sundries|573<br>1,500<br>4,981<br>1,505|44<br>2,218<br>3,819<br>3,768|
|Computer<br>Rent|21,858<br>6,518|8,232<br>3,226|
|Repairs and maintenance<br>Travel and subsistence|3,438|5,581<br>493|
|Subscriptions<br>Legal and professional fees<br>Bankcharges|868<br>2,696<br>219|1,061<br>4,148<br>102|
|Depreciation oftangible and<br>heritageassets|866|366|
||70,179|59,877|
|Governance<br>costs|||
|Auditors'<br>remuneration|6,500|5,050|
|Totalresourcesexpended|901,250|793,361|
|Net income/(expenditure)|44,228|(21,532)|