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2023-12-31-accounts

In Sue’s Name

Report and Financial Statements

12 month period ended: 31st December 2023 Charity no: 1164236

Report of the trustees for the 12 month period ended 31st December 2023

The trustees present their annual report and financial statements of the charity for the 12 month period ended 31st December 2023. The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the charity’s trust deed, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland published on 16 July 2014.

Objectives and activities for the public benefit

The purposes of the Trust are for the public benefit and specifically within the area of England and Wales:

(a) To assist in the treatment and care of persons suffering from brain tumours or in need of support as a result of such illness

(b) To promote and protect the physical and mental health of sufferers of brain tumours in England and Wales through the provision of financial assistance, support, education and practical advice

(c) To advance the education and awareness of the general public in all areas relating to brain tumours

(d) To provide grants to fund research into the prevention and cure of brain tumours.

The trustees confirm that they have referred to the Charity Commission’s guidance on public benefit when reviewing the Trust’s aims and objectives, in planning future activities, and setting the grant making policy for the year.

The Trust furthers its charitable purposes for the public benefit through its grant-making policy which aims at funding research and teaching related to the treatment, cure and nursing of sufferers of Brain Tumours and related conditions. To date the charity has donated exclusively to the Blizard Institute at the University of London in Whitechapel to support their research and teaching.

Grant making policy

The Trust has established its grant making policy to achieve its objects for the public benefit. The Trust’s aim is to improve the lives of sufferers with Brain tumours and related conditions now, and to seek a permanent cure in the future. Brain cancer is the biggest cancer-related killer of under 40s and as such it devastates young families, leaving parents without children and children without parents.

Risk management

The principal risks faced by the Trust lie in operational risks from ineffective grant making and the capacity of the Trust to make effective grants. The operational risk from ineffective research and grant awards that are ineffective in the advancing knowledge and practice to the benefit of those suffering from Brain tumours and related conditions is managed by firstly retaining trustees of sufficient skill and expertise to our board of trustees and secondly through the quality of the institutions and people who we support. The process of reporting and review assists us, and those we support, in keeping track of how research and knowledge is developing. This review process retains our focus on the public benefit derived from our funding of their work.

Structure, governance and management

The Trust is a charitable incorporated organisation (“CIO”) with charity number 1164236, and is constituted under a constitution dated 20 August 2015. The Trust was established by the Taylor family in memory of their daughter, Sue Blasotta. The Trust actively undertakes fundraising activity and it seeks to work with research and teaching organisations in making grants to further the charity’s aims.

New trustees are appointed by the existing trustees and serve for terms between 2 and 4 years after which they may put themselves forward for re-appointment. The constitution provides for a minimum of

three trustees, to a maximum of nine trustees. At the quarterly trustees’ meetings, the trustees agree the broad strategy and areas of activity for the Trust, including consideration of fundraising, grant making, and risk management policies and performance. The day-to-day administration of grants is delegated to the Treasurer. Assisting the trustees, a selection of sub committees manage specific events and key focus areas such as marketing. The trustees seek to follow the good practice ‘Charity Trustees Guide’ issued by ICSA and have all been issued with a copy of the governing constitution and a copy of the Charity Commission’s guidance ‘The Essential Trustee: What You Need to Know’

The Trust is an umbrella member of the Brain Tumour Research UK.

Trustees are required to disclose all relevant interests and register them with the Chair and in accordance with the Trust’s policy, withdraw from decisions where a conflict of interest arises. Neither the Trust nor any of the trustees have interests with the pharmaceutical industry but any such interests would be disclosed. No officers of the charity receive any remuneration.

Reference and administrative information

Trustees

Craig Rydqvist, Chair of Trustees Simal Raicha Daniella Siretz Michael Cuschieri Jeremy Silverstone Lawrence Thor Stephen

Officers

David Taylor, Director Nichola Rydqvist, Treasurer

Principal Office

127 Wynchgate Winchmore Hill London N21 1QT

Charity Number: 1164236

Trustees’ responsibilities in relation to the financial statements

The charity trustees are responsible for preparing a trustees’ annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). The law applicable to charities in England and Wales requires the charity trustees to prepare financial statements for each year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, of the charity for that period. In preparing the financial statements, the trustees are required to:

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. They are also responsible for safeguarding the assets

of the charity and taking reasonable steps for the prevention and detection of fraud and other irregularities. The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity’s website in accordance with legislation in the United Kingdom governing the preparation and dissemination of financial statements.

Approved by the trustees on [ ] 2024 and signed on their behalf by: Craig Rydqvist

C RYDQVIST CHAIR of TRUSTEES

In Sue's Name Charity No (if any) 1164236 Annual accounts for the period Period end Period start date Jan-23 To date Dec-23

Section A Statement of financial activities

----- Start of picture text -----
Restricted
Recommended categories by Unrestricted income Endowment Prior year
activity funds funds funds Total funds funds
£ £ £ £ £
Incoming resources (Note 3) F01 F02 F03 F04 F05
Income and endowments from:
Donations and legacies S01 19,897 - - 19,897 30,631
Charitable activities S02 4,472 - - 4,472 3,787
Other trading activities S03 36,536 - - 36,536 38,833
Investments S04 - - - - -
Separate material item of income S05 - - - - -
Other S06 - - - - -
Total S07 60,905 - - 60,905 73,251
Resources expended (Note 6)
Expenditure on:
Raising funds S08 15,733 - - 15,733 8,341
Charitable activities S09 40,000 - - 40,000 54,000
Separate material item of expense S10 683 683 643
Other S11 - - - - -
Total S12 56,417 - - 56,417 62,984
Net income/(expenditure) before investment
gains/(losses) S13 4,488 - - 4,488 10,267
Net gains/(losses) on investments S14 - - - - -
Net income/(expenditure) S15 4,488 - - 4,488 10,267
Extraordinary items S16 - - - - -
Transfers between funds S17 - - - - -
Other recognised gains/(losses):
Gains and losses on revaluation of fixed assets for the charity’s own use S18 - - - - -
Other gains/(losses) S19 - - - - -
Net movement in funds S20 4,488 - - 4,488 10,268
Reconciliation of funds:
Total funds brought forward S21 22,932 - - 22,932 12,664
Total funds carried forward S22 27,420 - - 27,420 22,932
Guidance Notes
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Section B Balance sheet

----- Start of picture text -----
Restricted
Unrestricted income Endowment Total this Total last
funds funds funds year year
£ £ £ £ £
Fixed assets F01 F02 F03 F04 F05
Intangible assets (Note 15) B01 - - - - -
Tangible assets (Note 14) B02 - - - - -
Heritage assets (Note 16) B03 - - - - -
Investments (Note 17) B04 - - - - -
Total fixed assets B05 - - - - -
Current assets
Stocks (Note 18) B06 - - - - -
Debtors (Note 19) B07 - - - -
Investments (Note 17.4) B08 - - - - -
Cash at bank and in hand (Note 24) B09 27,420 - - 27,420 22,931
Total current assets B10 27,420 - - 27,420 22,931
Creditors: amounts falling due within
one year (Note 20) B11 - - - - -
Net current assets/(liabilities) B12 27,420 - - 27,420 22,931
Total assets less current liabilities B13 27,420 - - 27,420 22,931
Creditors: amounts falling due after
one year (Note 20) B14 - - - - -
Provisions for liabilities B15 - - - - -
Total net assets or liabilities B16 27,420 - - 27,420 22,931
Funds of the Charity
Endowment funds (Note 27) B17 - - -
Restricted income funds (Note 27) B18 - -
Unrestricted funds B19 - -
Revaluation reserve B20 -
Total funds B21 - - - - -
Signed by one or two trustees on behalf of all Date of
the trustees Signature Print Name approval
dd/mm/yyyy
Guidance Notes
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Section C Notes to the accounts

Note 1 Basis of preparation

This section should be completed by all charities .

1.1 Basis of accounting

These accounts have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant note(s) to these accounts.

The accounts have been prepared in accordance with:

the Statement of Recommended Practice: Accounting and Reporting by Charities • and with ✓ preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 • and with ✓ the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102)

The charity constitutes a public benefit entity as defined by FRS 102.*

1.2 Going concern

If there are material uncertainties related to events or conditions that cast significant doubt on the charity's ability to continue as a going concern, please provide the following details or state "Not applicable", if appropriate:

An explanation as to those factors that support Not applicable the conclusion that the charity is a going concern; Disclosure of any uncertainties that make the Not applicable going concern assumption doubtful; Where accounts are not prepared on a going Not applicable concern basis, please disclose this fact together with the basis on which the trustees prepared the accounts and the reason why the charity is not regarded as a going concern.

1.3 Change of accounting policy

The accounts present a true and fair view and the accounting policies adopted are those outlined in note { }.

Yes ✓ * -Tick as appropriate No

1.4 Changes to accounting estimates
No changes to accounting estimates have occurred in the reporting period (3.46 FRS 102 SORP).
Yes*
No* * -Tick as appropriate
1.5 Material prior year errors
No material prior year error have been identified in the reporting period (3.47 FRS 102 SORP).
Yes
No

* -Tick as appropriate
Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont)
Note 2 Accounting policies
2.2 INCOME
This standard list of accounting policies has been applied by the charity except for those ticked "No" or "N/a". Where a
different or additional policy has been adopted then this is detailed in the box below.
Recognition of income These are included in the Statement of Financial Activities (SoFA) when:
• the charity becomes entitled to the resources;
·it is more likely than not that the trustees will receive the resources; and Yes No N/a
• the monetary value can be measured with sufficient reliability.
Offsetting There has been no offsetting of assets and liabilities, or income and expenses, unless required
orpermitted bythe FRS 102 SORP or FRS 102.
Yes No N/a
Grants and donations Grants and donations are only included in the SoFA when the general income
recognition criteria are met(5.10 to 5.12 FRS102 SORP).
Yes No N/a
In the case of performance related grants, income must only be recognised to the
extent that the charity has provided the specified goods or services as entitlement to the
grant only occurs when the performance related conditions are met (5.16 FRS 102
SORP).
Yes No N/a
Legacies Legacies are included in the SOFA when receipt is probable, that is, when there has
been grant of probate, the executors have established that there are sufficient assets in
the estate and any conditions attached to the legacy are either within the control of the
charityor have been met.
Yes No N/a
Government grants The charity has received government grants in the reporting period Yes No N/a
Tax reclaims on
donations and gifts
Gift Aid receivable is included in income when there is a valid declaration from the
donor. Any Gift Aid amount recovered on a donation is considered to be part of that gift
and is treated as an addition to the same fund as the initial donation unless the donor or
the terms of the appeal have specified otherwise.
Yes No N/a
Contractual income and
performance related
grants
This is only included in the SoFA once the charity has provided the related goods or
services or met the performance related conditions.
Yes No N/a
Donated goods Donated goods are measured at fair value (the amount for which the asset could be
exchanged) unless impractical to do so.
Yes No N/a
The cost of any stock of goods donated for distribution to beneficiaries is deemed to be
the fair value of those gifts at the time of their receipt and they are recognised on
receipt. In the reporting period in which the stocks are distributed, they are recognised
as an expense at the carryingamount of the stocks at distribution.
Yes No N/a
Donated goods for resale are measured at fair value on initial recognition, which is the
expected proceeds from sale less the expected costs of sale, and recognised in 'Income
from other trading activities' with the corresponding stock recognised in the balance
sheet. On its sale the value of stock is charged against 'Income from other trading
activities' and the proceeds from sale are also recognised as 'Income from other trading
activities'.
Yes No N/a
Goods donated for on-going use by the charity are recognised as tangible fixed assets
and included in the SoFA as incomingresources when receivable.
Yes No N/a
Gifts in kind for use by the charity are included in the SoFA as income from donations
when receivable.
Yes No N/a
Donated services and
facilities
Donated services and facilities are included in the SOFA when received at the value of
the gift to the charity provided the value of the gift can be measured reliably.
Yes No N/a
Donated services and facilities that are consumed immediately are recognised as
income with an equivalent amount recognised as an expense under the appropriate
headingin the SOFA.
Yes No N/a
Support costs The charity has incurred expenditure on support costs. Yes No N/a
Volunteer help The value of any voluntary help received is not included in the accounts but is described
in the trustees’ annual report.
Yes No N/a
Income from interest,
royalties and dividends
This is included in the accounts when receipt is probable and the amount receivable
can be measured reliably.
Yes No N/a
Income from
membership
subscriptions
Membership subscriptions received in the nature of a gift are recognised in Donations
and Legacies.
Yes No N/a
Membership subscriptions which gives a member the right to buy services or other
benefits are recognised as income earned from the provision of goods and services as
income from charitable activities.
Yes No N/a
Settlement of insurance
claims
Insurance claims are only included in the SoFA when the general income recognition
criteria are met (5.10 to 5.12 FRS102 SORP) and are included as an item of other
income in the SoFA.
Yes No N/a
Investment gains and
losses
This includes any realised or unrealised gains or losses on the sale of investments and
any gain or loss resulting from revaluing investments to market value at the end of the
year.
Yes No N/a
2.3 EXPENDITURE AND LIABILITIES AND LIABILITIES AND LIABILITIES
Liability recognition Liabilities are recognised where it is more likely than not that there is a legal or
constructive obligation committing the charity to pay out resources and the amount of
the obligation can be measured with reasonable certainty.
Yes No N/a
Governance and support
costs

Support costs have been allocated between governance costs and other support.
Governance costs comprise all costs involving public accountability of the charity and
its compliance with regulation and good practice.
Yes No N/a
Support costs include central functions and have been allocated to activity cost
categories on a basis consistent with the use of resources, eg allocating property costs
by floor areas, or per capita, staff costs by the time spent and other costs by their
usage.
Yes No N/a
Grants with performance
conditions
Where the charity gives a grant with conditions for its payment being a specific level of
service or output to be provided, such grants are only recognised in the SoFA once the
recipient of the grant has provided the specified service or output.
Yes No N/a
Grants payable without
performance conditions
Where there are no conditions attaching to the grant that enables the donor charity to
realistically avoid the commitment, a liability for the full funding obligation must be
recognised.
Yes No N/a
Redundancy cost The charity made no redundancy payments during the reporting period. Yes No N/a
Deferred income No material item of deferred income has been included in the accounts. Yes No N/a
Creditors The charity has creditors which are measured at settlement amounts less any trade
discounts
Yes No N/a
Provisions for liabilities A liability is measured on recognition at its historical cost and then subsequently
measured at the best estimate of the amount required to settle the obligation at the
reporting date
Yes No N/a
Basic financial
instruments
The charity accounts for basic financial instruments on initial recognition as per
paragraph 10.7 FRS102 SORP. Subsequent measurement is as per paragraphs 11.17
to 11.19, FRS102 SORP.
Yes No N/a
2.4 ASSETS
Tangible fixed assets for
use by charity
These are capitalised if they can be used for more than one year, and cost at least
They are valued at cost. Yes No N/a
The depreciation rates and methods used are disclosed in note 9.2.
Intangible fixed assets The charity has intangible fixed assets, that is, non-monetary assets that do not have
physical substance but are identifiable and are controlled by the charity through custody
or legal rights. The amortisation rates and methods used are disclosed in note 9.5
Yes No N/a
They are valued at cost. Yes No N/a
Heritage assets The charity has heritage assets, that is, non-monetary assets with historic, artistic,
scientific, technological, geophysical or environmental qualities that are held and
maintained principally for their contribution to knowledge and culture. The depreciation
rates and methods used as disclosed in note 9.6.1.4.
Yes No N/a
Yes No N/a
Theyare valued at cost.
Investments Fixed asset investments in quoted shares, traded bonds and similar investments are
valued at initially at cost and subsequently at fair value (their market value) at the year
end. The same treatment is applied to unlisted investments unless fair value cannot be
measured reliablyin which case it is measured at cost less impairment.
Yes No N/a
Investments held for resale or pending their sale and cash and cash equivalents with a
maturity date of less than 1 year are treated as current asset investments
Yes No N/a
Stocks and work in
progress
Stocks held for sale as part of non-charitable trade are measured at the lower or cost or
realisable value.
net Yes No N/a
Goods or services provided as part of a charitable activity are measured at net realisable
based on the servicepotentialprovided byitems of stock.
value Yes No N/a
Work in progress is valued at cost less any foreseeable loss that is likely to occur on the
contract.
Yes No N/a
Debtors Debtors (including trade debtors and loans receivable) are measured on initial recognition at
settlement amount after any trade discounts or amount advanced by the charity. Subsequently,
they are measured at the cash or other consideration expected to be received.
Yes No N/a
Current asset
investments
The charity has has investments which it holds for resale or pending their sale and cash and
cash equivalents with a maturity date less than one year. These include cash on deposit and
cash equivalents with a maturity date of less than one year held for investment purposes rather
than to meet short term cash commitments as theyfall due.
Yes No N/a
Yes No N/a
They are valued at fair value except where they qualify as basic financial instruments.
POLICIES ADOPTED
ADDITIONAL TO OR
DIFFERENT FROM
THOSE ABOVE
None

Section C Notes to the accounts (cont)

Note 3 Analysis of income
Analysis Unrestricted
funds

Restricted
income
funds
Endowment
funds

Total funds
Prior year
£ £
Donations
and legacies:
Donations and gifts 19,897 - - 19,897 30,631
GiftAid 4,472 - - 4,472 3,787
Legacies - - - - -
General grants provided by government/other
charities
- - - - -
Membership subscriptions and sponsorships
whichareinsubstance donations
- - - -
Donated goods,facilities and services - - - - -
Other - - - -
Total 24,369 - - 24,369 34,418
Charitable
activities:
- - - - -
- - - - -
- - - - -
Other - - - - -
Total - - - - -
Other trading
activities:
- - - - -
AnnualGolf Event 16,545 - - 16,545 16,235
ZipWire - - - 3,599
WingWalk 4,398 4,398
Walkof Hope 8,475 8,475 9,311
Skydive 1,600 1,600 9,688
Quiz 5,518 - - 5,518
Total 36,536 - - 36,536 38,833
Income from
investments:
Interestincome - - - - -
Dividendincome - - - - -
Rentalandleasingincome - - - - -
Other - - - - -
Total - - - - -
Separate
material item
of income:
- - - - -
- - - - -
- - - - -
- - - - -
Total - - - - -
Other: Conversionofendowmentfundsintoincome - - - - -
Gain on disposal of a tangible fixed asset held
forcharity's ownuse
- - - - -
Gain on disposal of a programme related
investment
- - - - -
Royalties from the exploitation of intellectual
propertyrights
- - - - -
Other - - - - -
Total - - - - -
TOTAL INCOME 60,905 - - 60,905 73,251

Section C Notes to the accounts (cont)

Note 6 Analysis of expenditure
Analysis Unrestricted
funds

Restricted
income
funds
Endowment
funds

Total funds
Prior year
£ £
Expenditure on
raising funds:
Incurred seeking donations - - - - -
Incurred seeking legacies - - - - -
Incurred seeking grants -
Operating membership schemes and
social lotteries
-
Staging fundraising events 8,028 8,028 7,532
Fudraising agents -
Operating charity shops -
Operating a trading company
undertaking non-charitable trading
activity
-
Advertising, marketing, direct mail and
publicity
7,706 - - 7,706 809
Start up costs incurred in generating
new source of future income
- - - - -
Database development costs - - - - -
Other trading activities -
Investment management costs: - - - - -
Portfolio management costs - - - - -

Cost of obtaining investment advice
- - - - -
Investment administration costs - - - - -
Intellectual property licencing costs - - - - -
Rent collection, property repairs and
maintenance charges
- - - - -
- - - - -
Total expenditure on raising funds 15,733 - - 15,733 8,341
Expenditure on
charitable
activities
Blizzard Institute Grant 2023 40,000 - - 40,000 54,000
- - - - -
- - - - -
- - - - -
Total expenditure on charitable
activities
40,000 - - 40,000 54,000
Separate material
item of expense
Insurance 683 - - 683 643
- - -
- - - - -
- - - - -
Total 683 - - 683 643
Other
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Total other expenditure - - - - -
TOTAL EXPENDITURE 56,417 - - 56,417 62,984

Section C Notes to the accounts (cont)

----- Start of picture text -----
Note 24 Cash at bank and in hand
This year Last year
£ £
- -
Short term cash investments (less than 3 months maturity date)
- -
Short term deposits
Cash at bank and on hand 27,420 22,931
Other - -
Total 27,420 22,931
----- End of picture text -----

In Sue’s Name

Report and Financial Statements

12 month period ended: 31st December 2023 Charity no: 1164236

Report of the trustees for the 12 month period ended 31st December 2023

The trustees present their annual report and financial statements of the charity for the 12 month period ended 31st December 2023. The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the charity’s trust deed, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland published on 16 July 2014.

Objectives and activities for the public benefit

The purposes of the Trust are for the public benefit and specifically within the area of England and Wales:

(a) To assist in the treatment and care of persons suffering from brain tumours or in need of support as a result of such illness

(b) To promote and protect the physical and mental health of sufferers of brain tumours in England and Wales through the provision of financial assistance, support, education and practical advice

(c) To advance the education and awareness of the general public in all areas relating to brain tumours

(d) To provide grants to fund research into the prevention and cure of brain tumours.

The trustees confirm that they have referred to the Charity Commission’s guidance on public benefit when reviewing the Trust’s aims and objectives, in planning future activities, and setting the grant making policy for the year.

The Trust furthers its charitable purposes for the public benefit through its grant-making policy which aims at funding research and teaching related to the treatment, cure and nursing of sufferers of Brain Tumours and related conditions. To date the charity has donated exclusively to the Blizard Institute at the University of London in Whitechapel to support their research and teaching.

Grant making policy

The Trust has established its grant making policy to achieve its objects for the public benefit. The Trust’s aim is to improve the lives of sufferers with Brain tumours and related conditions now, and to seek a permanent cure in the future. Brain cancer is the biggest cancer-related killer of under 40s and as such it devastates young families, leaving parents without children and children without parents.

Risk management

The principal risks faced by the Trust lie in operational risks from ineffective grant making and the capacity of the Trust to make effective grants. The operational risk from ineffective research and grant awards that are ineffective in the advancing knowledge and practice to the benefit of those suffering from Brain tumours and related conditions is managed by firstly retaining trustees of sufficient skill and expertise to our board of trustees and secondly through the quality of the institutions and people who we support. The process of reporting and review assists us, and those we support, in keeping track of how research and knowledge is developing. This review process retains our focus on the public benefit derived from our funding of their work.

Structure, governance and management

The Trust is a charitable incorporated organisation (“CIO”) with charity number 1164236, and is constituted under a constitution dated 20 August 2015. The Trust was established by the Taylor family in memory of their daughter, Sue Blasotta. The Trust actively undertakes fundraising activity and it seeks to work with research and teaching organisations in making grants to further the charity’s aims.

New trustees are appointed by the existing trustees and serve for terms between 2 and 4 years after which they may put themselves forward for re-appointment. The constitution provides for a minimum of

three trustees, to a maximum of nine trustees. At the quarterly trustees’ meetings, the trustees agree the broad strategy and areas of activity for the Trust, including consideration of fundraising, grant making, and risk management policies and performance. The day-to-day administration of grants is delegated to the Treasurer. Assisting the trustees, a selection of sub committees manage specific events and key focus areas such as marketing. The trustees seek to follow the good practice ‘Charity Trustees Guide’ issued by ICSA and have all been issued with a copy of the governing constitution and a copy of the Charity Commission’s guidance ‘The Essential Trustee: What You Need to Know’

The Trust is an umbrella member of the Brain Tumour Research UK.

Trustees are required to disclose all relevant interests and register them with the Chair and in accordance with the Trust’s policy, withdraw from decisions where a conflict of interest arises. Neither the Trust nor any of the trustees have interests with the pharmaceutical industry but any such interests would be disclosed. No officers of the charity receive any remuneration.

Reference and administrative information

Trustees

Craig Rydqvist, Chair of Trustees Simal Raicha Daniella Siretz Michael Cuschieri Jeremy Silverstone Lawrence Thor Stephen

Officers

David Taylor, Director Nichola Rydqvist, Treasurer

Principal Office

127 Wynchgate Winchmore Hill London N21 1QT

Charity Number: 1164236

Trustees’ responsibilities in relation to the financial statements

The charity trustees are responsible for preparing a trustees’ annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). The law applicable to charities in England and Wales requires the charity trustees to prepare financial statements for each year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, of the charity for that period. In preparing the financial statements, the trustees are required to:

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. They are also responsible for safeguarding the assets

of the charity and taking reasonable steps for the prevention and detection of fraud and other irregularities. The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity’s website in accordance with legislation in the United Kingdom governing the preparation and dissemination of financial statements.

Approved by the trustees on [ ] 2024 and signed on their behalf by: Craig Rydqvist

C RYDQVIST CHAIR of TRUSTEES

In Sue's Name Charity No (if any) 1164236 Annual accounts for the period Period end Period start date Jan-23 To date Dec-23

Section A Statement of financial activities

----- Start of picture text -----
Restricted
Recommended categories by Unrestricted income Endowment Prior year
activity funds funds funds Total funds funds
£ £ £ £ £
Incoming resources (Note 3) F01 F02 F03 F04 F05
Income and endowments from:
Donations and legacies S01 19,897 - - 19,897 30,631
Charitable activities S02 4,472 - - 4,472 3,787
Other trading activities S03 36,536 - - 36,536 38,833
Investments S04 - - - - -
Separate material item of income S05 - - - - -
Other S06 - - - - -
Total S07 60,905 - - 60,905 73,251
Resources expended (Note 6)
Expenditure on:
Raising funds S08 15,733 - - 15,733 8,341
Charitable activities S09 40,000 - - 40,000 54,000
Separate material item of expense S10 683 683 643
Other S11 - - - - -
Total S12 56,417 - - 56,417 62,984
Net income/(expenditure) before investment
gains/(losses) S13 4,488 - - 4,488 10,267
Net gains/(losses) on investments S14 - - - - -
Net income/(expenditure) S15 4,488 - - 4,488 10,267
Extraordinary items S16 - - - - -
Transfers between funds S17 - - - - -
Other recognised gains/(losses):
Gains and losses on revaluation of fixed assets for the charity’s own use S18 - - - - -
Other gains/(losses) S19 - - - - -
Net movement in funds S20 4,488 - - 4,488 10,268
Reconciliation of funds:
Total funds brought forward S21 22,932 - - 22,932 12,664
Total funds carried forward S22 27,420 - - 27,420 22,932
Guidance Notes
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Section B Balance sheet

----- Start of picture text -----
Restricted
Unrestricted income Endowment Total this Total last
funds funds funds year year
£ £ £ £ £
Fixed assets F01 F02 F03 F04 F05
Intangible assets (Note 15) B01 - - - - -
Tangible assets (Note 14) B02 - - - - -
Heritage assets (Note 16) B03 - - - - -
Investments (Note 17) B04 - - - - -
Total fixed assets B05 - - - - -
Current assets
Stocks (Note 18) B06 - - - - -
Debtors (Note 19) B07 - - - -
Investments (Note 17.4) B08 - - - - -
Cash at bank and in hand (Note 24) B09 27,420 - - 27,420 22,931
Total current assets B10 27,420 - - 27,420 22,931
Creditors: amounts falling due within
one year (Note 20) B11 - - - - -
Net current assets/(liabilities) B12 27,420 - - 27,420 22,931
Total assets less current liabilities B13 27,420 - - 27,420 22,931
Creditors: amounts falling due after
one year (Note 20) B14 - - - - -
Provisions for liabilities B15 - - - - -
Total net assets or liabilities B16 27,420 - - 27,420 22,931
Funds of the Charity
Endowment funds (Note 27) B17 - - -
Restricted income funds (Note 27) B18 - -
Unrestricted funds B19 - -
Revaluation reserve B20 -
Total funds B21 - - - - -
Signed by one or two trustees on behalf of all Date of
the trustees Signature Print Name approval
dd/mm/yyyy
Guidance Notes
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Section C Notes to the accounts

Note 1 Basis of preparation

This section should be completed by all charities .

1.1 Basis of accounting

These accounts have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant note(s) to these accounts.

The accounts have been prepared in accordance with:

the Statement of Recommended Practice: Accounting and Reporting by Charities • and with ✓ preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 • and with ✓ the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102)

The charity constitutes a public benefit entity as defined by FRS 102.*

1.2 Going concern

If there are material uncertainties related to events or conditions that cast significant doubt on the charity's ability to continue as a going concern, please provide the following details or state "Not applicable", if appropriate:

An explanation as to those factors that support Not applicable the conclusion that the charity is a going concern; Disclosure of any uncertainties that make the Not applicable going concern assumption doubtful; Where accounts are not prepared on a going Not applicable concern basis, please disclose this fact together with the basis on which the trustees prepared the accounts and the reason why the charity is not regarded as a going concern.

1.3 Change of accounting policy

The accounts present a true and fair view and the accounting policies adopted are those outlined in note { }.

Yes ✓ * -Tick as appropriate No

1.4 Changes to accounting estimates
No changes to accounting estimates have occurred in the reporting period (3.46 FRS 102 SORP).
Yes*
No* * -Tick as appropriate
1.5 Material prior year errors
No material prior year error have been identified in the reporting period (3.47 FRS 102 SORP).
Yes
No

* -Tick as appropriate
Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont) Section C Notes to the accounts (cont)
Note 2 Accounting policies
2.2 INCOME
This standard list of accounting policies has been applied by the charity except for those ticked "No" or "N/a". Where a
different or additional policy has been adopted then this is detailed in the box below.
Recognition of income These are included in the Statement of Financial Activities (SoFA) when:
• the charity becomes entitled to the resources;
·it is more likely than not that the trustees will receive the resources; and Yes No N/a
• the monetary value can be measured with sufficient reliability.
Offsetting There has been no offsetting of assets and liabilities, or income and expenses, unless required
orpermitted bythe FRS 102 SORP or FRS 102.
Yes No N/a
Grants and donations Grants and donations are only included in the SoFA when the general income
recognition criteria are met(5.10 to 5.12 FRS102 SORP).
Yes No N/a
In the case of performance related grants, income must only be recognised to the
extent that the charity has provided the specified goods or services as entitlement to the
grant only occurs when the performance related conditions are met (5.16 FRS 102
SORP).
Yes No N/a
Legacies Legacies are included in the SOFA when receipt is probable, that is, when there has
been grant of probate, the executors have established that there are sufficient assets in
the estate and any conditions attached to the legacy are either within the control of the
charityor have been met.
Yes No N/a
Government grants The charity has received government grants in the reporting period Yes No N/a
Tax reclaims on
donations and gifts
Gift Aid receivable is included in income when there is a valid declaration from the
donor. Any Gift Aid amount recovered on a donation is considered to be part of that gift
and is treated as an addition to the same fund as the initial donation unless the donor or
the terms of the appeal have specified otherwise.
Yes No N/a
Contractual income and
performance related
grants
This is only included in the SoFA once the charity has provided the related goods or
services or met the performance related conditions.
Yes No N/a
Donated goods Donated goods are measured at fair value (the amount for which the asset could be
exchanged) unless impractical to do so.
Yes No N/a
The cost of any stock of goods donated for distribution to beneficiaries is deemed to be
the fair value of those gifts at the time of their receipt and they are recognised on
receipt. In the reporting period in which the stocks are distributed, they are recognised
as an expense at the carryingamount of the stocks at distribution.
Yes No N/a
Donated goods for resale are measured at fair value on initial recognition, which is the
expected proceeds from sale less the expected costs of sale, and recognised in 'Income
from other trading activities' with the corresponding stock recognised in the balance
sheet. On its sale the value of stock is charged against 'Income from other trading
activities' and the proceeds from sale are also recognised as 'Income from other trading
activities'.
Yes No N/a
Goods donated for on-going use by the charity are recognised as tangible fixed assets
and included in the SoFA as incomingresources when receivable.
Yes No N/a
Gifts in kind for use by the charity are included in the SoFA as income from donations
when receivable.
Yes No N/a
Donated services and
facilities
Donated services and facilities are included in the SOFA when received at the value of
the gift to the charity provided the value of the gift can be measured reliably.
Yes No N/a
Donated services and facilities that are consumed immediately are recognised as
income with an equivalent amount recognised as an expense under the appropriate
headingin the SOFA.
Yes No N/a
Support costs The charity has incurred expenditure on support costs. Yes No N/a
Volunteer help The value of any voluntary help received is not included in the accounts but is described
in the trustees’ annual report.
Yes No N/a
Income from interest,
royalties and dividends
This is included in the accounts when receipt is probable and the amount receivable
can be measured reliably.
Yes No N/a
Income from
membership
subscriptions
Membership subscriptions received in the nature of a gift are recognised in Donations
and Legacies.
Yes No N/a
Membership subscriptions which gives a member the right to buy services or other
benefits are recognised as income earned from the provision of goods and services as
income from charitable activities.
Yes No N/a
Settlement of insurance
claims
Insurance claims are only included in the SoFA when the general income recognition
criteria are met (5.10 to 5.12 FRS102 SORP) and are included as an item of other
income in the SoFA.
Yes No N/a
Investment gains and
losses
This includes any realised or unrealised gains or losses on the sale of investments and
any gain or loss resulting from revaluing investments to market value at the end of the
year.
Yes No N/a
2.3 EXPENDITURE AND LIABILITIES AND LIABILITIES AND LIABILITIES
Liability recognition Liabilities are recognised where it is more likely than not that there is a legal or
constructive obligation committing the charity to pay out resources and the amount of
the obligation can be measured with reasonable certainty.
Yes No N/a
Governance and support
costs

Support costs have been allocated between governance costs and other support.
Governance costs comprise all costs involving public accountability of the charity and
its compliance with regulation and good practice.
Yes No N/a
Support costs include central functions and have been allocated to activity cost
categories on a basis consistent with the use of resources, eg allocating property costs
by floor areas, or per capita, staff costs by the time spent and other costs by their
usage.
Yes No N/a
Grants with performance
conditions
Where the charity gives a grant with conditions for its payment being a specific level of
service or output to be provided, such grants are only recognised in the SoFA once the
recipient of the grant has provided the specified service or output.
Yes No N/a
Grants payable without
performance conditions
Where there are no conditions attaching to the grant that enables the donor charity to
realistically avoid the commitment, a liability for the full funding obligation must be
recognised.
Yes No N/a
Redundancy cost The charity made no redundancy payments during the reporting period. Yes No N/a
Deferred income No material item of deferred income has been included in the accounts. Yes No N/a
Creditors The charity has creditors which are measured at settlement amounts less any trade
discounts
Yes No N/a
Provisions for liabilities A liability is measured on recognition at its historical cost and then subsequently
measured at the best estimate of the amount required to settle the obligation at the
reporting date
Yes No N/a
Basic financial
instruments
The charity accounts for basic financial instruments on initial recognition as per
paragraph 10.7 FRS102 SORP. Subsequent measurement is as per paragraphs 11.17
to 11.19, FRS102 SORP.
Yes No N/a
2.4 ASSETS
Tangible fixed assets for
use by charity
These are capitalised if they can be used for more than one year, and cost at least
They are valued at cost. Yes No N/a
The depreciation rates and methods used are disclosed in note 9.2.
Intangible fixed assets The charity has intangible fixed assets, that is, non-monetary assets that do not have
physical substance but are identifiable and are controlled by the charity through custody
or legal rights. The amortisation rates and methods used are disclosed in note 9.5
Yes No N/a
They are valued at cost. Yes No N/a
Heritage assets The charity has heritage assets, that is, non-monetary assets with historic, artistic,
scientific, technological, geophysical or environmental qualities that are held and
maintained principally for their contribution to knowledge and culture. The depreciation
rates and methods used as disclosed in note 9.6.1.4.
Yes No N/a
Yes No N/a
Theyare valued at cost.
Investments Fixed asset investments in quoted shares, traded bonds and similar investments are
valued at initially at cost and subsequently at fair value (their market value) at the year
end. The same treatment is applied to unlisted investments unless fair value cannot be
measured reliablyin which case it is measured at cost less impairment.
Yes No N/a
Investments held for resale or pending their sale and cash and cash equivalents with a
maturity date of less than 1 year are treated as current asset investments
Yes No N/a
Stocks and work in
progress
Stocks held for sale as part of non-charitable trade are measured at the lower or cost or
realisable value.
net Yes No N/a
Goods or services provided as part of a charitable activity are measured at net realisable
based on the servicepotentialprovided byitems of stock.
value Yes No N/a
Work in progress is valued at cost less any foreseeable loss that is likely to occur on the
contract.
Yes No N/a
Debtors Debtors (including trade debtors and loans receivable) are measured on initial recognition at
settlement amount after any trade discounts or amount advanced by the charity. Subsequently,
they are measured at the cash or other consideration expected to be received.
Yes No N/a
Current asset
investments
The charity has has investments which it holds for resale or pending their sale and cash and
cash equivalents with a maturity date less than one year. These include cash on deposit and
cash equivalents with a maturity date of less than one year held for investment purposes rather
than to meet short term cash commitments as theyfall due.
Yes No N/a
Yes No N/a
They are valued at fair value except where they qualify as basic financial instruments.
POLICIES ADOPTED
ADDITIONAL TO OR
DIFFERENT FROM
THOSE ABOVE
None

Section C Notes to the accounts (cont)

Note 3 Analysis of income
Analysis Unrestricted
funds

Restricted
income
funds
Endowment
funds

Total funds
Prior year
£ £
Donations
and legacies:
Donations and gifts 19,897 - - 19,897 30,631
GiftAid 4,472 - - 4,472 3,787
Legacies - - - - -
General grants provided by government/other
charities
- - - - -
Membership subscriptions and sponsorships
whichareinsubstance donations
- - - -
Donated goods,facilities and services - - - - -
Other - - - -
Total 24,369 - - 24,369 34,418
Charitable
activities:
- - - - -
- - - - -
- - - - -
Other - - - - -
Total - - - - -
Other trading
activities:
- - - - -
AnnualGolf Event 16,545 - - 16,545 16,235
ZipWire - - - 3,599
WingWalk 4,398 4,398
Walkof Hope 8,475 8,475 9,311
Skydive 1,600 1,600 9,688
Quiz 5,518 - - 5,518
Total 36,536 - - 36,536 38,833
Income from
investments:
Interestincome - - - - -
Dividendincome - - - - -
Rentalandleasingincome - - - - -
Other - - - - -
Total - - - - -
Separate
material item
of income:
- - - - -
- - - - -
- - - - -
- - - - -
Total - - - - -
Other: Conversionofendowmentfundsintoincome - - - - -
Gain on disposal of a tangible fixed asset held
forcharity's ownuse
- - - - -
Gain on disposal of a programme related
investment
- - - - -
Royalties from the exploitation of intellectual
propertyrights
- - - - -
Other - - - - -
Total - - - - -
TOTAL INCOME 60,905 - - 60,905 73,251

Section C Notes to the accounts (cont)

Note 6 Analysis of expenditure
Analysis Unrestricted
funds

Restricted
income
funds
Endowment
funds

Total funds
Prior year
£ £
Expenditure on
raising funds:
Incurred seeking donations - - - - -
Incurred seeking legacies - - - - -
Incurred seeking grants -
Operating membership schemes and
social lotteries
-
Staging fundraising events 8,028 8,028 7,532
Fudraising agents -
Operating charity shops -
Operating a trading company
undertaking non-charitable trading
activity
-
Advertising, marketing, direct mail and
publicity
7,706 - - 7,706 809
Start up costs incurred in generating
new source of future income
- - - - -
Database development costs - - - - -
Other trading activities -
Investment management costs: - - - - -
Portfolio management costs - - - - -

Cost of obtaining investment advice
- - - - -
Investment administration costs - - - - -
Intellectual property licencing costs - - - - -
Rent collection, property repairs and
maintenance charges
- - - - -
- - - - -
Total expenditure on raising funds 15,733 - - 15,733 8,341
Expenditure on
charitable
activities
Blizzard Institute Grant 2023 40,000 - - 40,000 54,000
- - - - -
- - - - -
- - - - -
Total expenditure on charitable
activities
40,000 - - 40,000 54,000
Separate material
item of expense
Insurance 683 - - 683 643
- - -
- - - - -
- - - - -
Total 683 - - 683 643
Other
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Total other expenditure - - - - -
TOTAL EXPENDITURE 56,417 - - 56,417 62,984

Section C Notes to the accounts (cont)

----- Start of picture text -----
Note 24 Cash at bank and in hand
This year Last year
£ £
- -
Short term cash investments (less than 3 months maturity date)
- -
Short term deposits
Cash at bank and on hand 27,420 22,931
Other - -
Total 27,420 22,931
----- End of picture text -----

REPORT I￿lependent examinerfs report lo the Iruslees of In Sue's Name Charitable Incorporated Organisalion I'the cio'i. l ￿port to the charity trustees on my examination of the accounts of the CIO for the year ended 30 December 2023. Responsibilities and basis of report As the charity trustees of the CIO you are responsible for the preparation of the accounts in accordance wlh the requirements of the Charities Act 2011 I'the Act'i. I report in rgspe¢t of my gxamination of the CIO'S ac¢ounts ¢arried out under se¢lion 145 of the Act. In carrying out my examination I have followed all applicable Directions given by the Charity Commission under section 14515Xbl of the 2011 Act. Independent examiner's statement- matter of concern identified I have completed my examination. I confimi that no material mallers have come lo my attention in connection wth the examination giving me cause to believe that in any material respect.. 1. accounting ￿cordS were not kept as required by section 130 of the Act,. or 2. the accounts do not accord with those records. I confimi that there are m matters to which your attention shoLJld be drawn to enable a proper understanding of the accounts to be reached. Signed.. Name.. John Taylor, ACMA Address.. 14 Fairgreen, Bamet, Hertfordshire EN4 OQS Dale.. 24 October 2024