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2023-05-31-accounts

The Arthrogryposis Group

Charity No. 1164158

Company No. CE005508

Trustees' Report and Unaudited Accounts

31 May 2023

The Arthrogryposis Group Contents

Pages
Trustees' Annual Report 2 to 4
Independent Examiner's Report 5
Statement of Financial Activities 6
Summary Income and Expenditure Account 7
Balance Sheet 8
Notes to the Accounts 9 to 15
Detailed Statement of Financial Activities 16 to 17

Page 1

The Arthrogryposis Group Trustees Annual Report

The trustees, who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the unaudited financial statements of the charity for the year ended 31 May 2023.

REFERENCE AND ADMINISTRATIVE DETAILS

Company No. CE005508

Charity No. 1164158

Registered Office

37 Brynteg Avenue Pontllanfraith Blackwood NP12 2BY

Directors and Trustees

The Directors of the charitable company are its Trustees for the purposes of charity law. The following Directors and Trustees served during the year:

C. Ballentine

C. Davis resigned 27 September 2023 M. Edwards S. O'Donovan S. Rayment appointed 16 October 2022 C. Rodwell R. Shearer appointed 16 October 2022 W. Shearer appointed 16 October 2022

Company Secretary

D. Davis resigned 27 September 2023

Accountants

Quantic Accountancy Limited 1 Second Avenue

Bluebridge Halstead Essex CO9 2SU

OBJECTIVES AND ACTIVITIES

Under the terms of the current Constitution, the stated objectives of the charity are to:

  1. Provide contact, support and information to children, young people and adults resident within the United Kingdom who have the condition Arthrogryposis Multiplex Congenita (AMC), and to their families, friends, and carers by:

  2. Promoting the health and wellbeing of children, young people and adults who have Arthrogryposis (and where possible and related condition).

Page 2

The Arthrogryposis Group Trustees Annual Report

• Promoting the understanding and awareness of Arthrogryposis for those affected and within health and social care and the voluntary community sector.

• Providing educational and learning opportunities for the public, and for professionals working with those having Arthrogryposis.

3.�To recognise the needs of persons who have Arthrogryposis and encourage the recognition of the depth of feelings experienced by their families and provide support.

4.�To increase the understanding of the relationship between the physical effects of Arthrogryposis and learning development and aid the development of beneficial therapies and learning programmes. Since COVID-19 charities have been affected in numerous ways. Since most restrictions have been lifted we have again this year tried to grow the charity. We have held several events throughout the country in 2022-2023 so that our members can meet others with similar issues to their own.

ACHIEVEMENTS AND PERFORMANCE

In this financial reporting year the trustees met in person in one meeting: the AGM at the Family Weekend in October 2022. The remainder of the meetings have been held virtually which has enabled cost savings for the charity and the board to train trainees who may potentially be voted onto the board from October 2023, to replace the secretary who, along with the chair and treasurer will step down at this upcoming AGM.

Our secretary secured a £9420 grant from the Lottery Community Fund. The funds were ring-fenced by the grant giver for the Family Weekend and we were therefore able to fund the accommodation, food and entertainment in full for each attendee.

We had one exceptional individual fundraising donation of £13,500. We also received a single fundraising donation of £1,067 and the Barrett Foundation grant for £1,500.

Various other regular fundraising means were continued: Amazon Smile, Just Giving, Charitable Giving and opportunities such as local pubs having TAG collection boxes.

Donna and Chris, our secretary and chair, organised and ran a Santa’s Grotto in their local pub again, in December 2022 which raised extra finds.

In addition, the charity raised funds at the TAG Family Weekend through a raffle, we attended a festival and raised funds there and we received funds from our lottery.

For the first time, the charity was invited to Aston University to be “expert patients” in Arthrogryposis. The University found the experience rewarding and instructive for their trainee medical students and have invited us back again soon. The University also paid for our members to attend, including food, travel and accommodation.

The charity was able to host a couple of general TAG fun events: in London, Glasgow and in Weston-Super-Mare. These events are not fundraising activities but are a return to our events we host for our members to be in contact in fun circumstances throughout the year and we will continue to arrange events in the coming year.

For the most part we still have not been able to send volunteers to the Arthrogryposis clinics and only two clinics, in Oswestry and Leeds, have had us back in attendance since the pandemic. We await the decisions by the various hospitals to have us back at the clinics and once we get the go ahead from the hospital contacts, we shall resume our presence at the clinics. We have a good rapport at the hospitals, and we aim for this to continue for the coming year.

Page 3

The Arthrogryposis Group Trustees Annual Report

The charity continues to move forward in the wake of the COVID-19 pandemic with our funds increasing as we are able to be more active and have more active presence in our communities. We continue as a board to make external contacts with various adaptive equipment companies, medical speakers and other organisations that can benefit our members. Fundraising is our highest priority as we continue to try to grow awareness of our charity to families with babies and young children who have not yet had the opportunity to attend our events because of the pandemic restrictions.

FINANCIAL REVIEW

It is the policy of the trustees to hold sufficient reserves to enable the charity to meet its expenses and liabilities.

Reserves are currently £37,196.47 (on 27 September 2023) which is enough to keep the charity active for the foreseeable future.

STRUCTURE, GOVERNANCE AND MANAGEMENT

Our aim as per our governing document is to help people who have Arthrogryposis Multiplex Congenital (AMC) and their families and the wider community in terms of awareness and involvement.

We do this by offering guidance and general information on the condition as well as organising gatherings for those affected with AMC and their families to meet.

Committee members are elected from those who have full membership of the charity.

The trustees serve a one year term with the trustees and officers being elected or re-elected each year by the members at the Annual General Meeting (AGM), held at the Family Weekend each year.

Newly appointed trustees are given an overview of the charity, a copy of the governing document, copy of the latest Annual Report and Accounts as well as the previous trustee meeting minutes. They are also referred to the Charity Commission’s guidance “The Essential Trustee: What You Need to Know” and to other relevant documentation and guidance.

At any one period, the maximum number of serving trustees is 9.

The Trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Companies Act 2006. The Trustees are also responsible for safeguarding the assets of the charity and hence taking reasonable steps for the prevention and detection of fraud and other irregularities.

The above report has been prepared in accordance with the provisions applicable to companies subject to the small companies regime as set out in Part 15 of the Companies Act 2006 and in accordance with the Charities SORP (FRS 102).

Signed on behalf of the board

C. Rodwell Trustee 16 October 2023

Page 4

The Arthrogryposis Group Independent Examiners Report

Independent Examiner's Report to the trustees of The Arthrogryposis Group

I report to the charity trustees on my examination of the financial statements of The Arthrogryposis Group for the year ended 31 May 2023.

Responsibilities and basis of report

As the charity's trustees of the company (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006 ('the 2006 Act.

Having satisfied myself that the financial statements of the Charity are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's financial statements as carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5) (b) of the 2011 Act.

Independent examiner's statement

I have completed my examination. I can confirm that no material matters have come to my attention in connection with the examination giving me cause to believe:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.

Stuart Foster FCCA ACCA Quantic Accountancy Limited 1 Second Avenue Bluebridge Halstead Essex CO9 2SU 16 October 2023

Page 5

The Arthrogryposis Group Statement of Financial Activities

for the year ended 31 May 2023

Notes
Income and endowments
from:
Donations and legacies
4
Charitable activities
5
Total
Expenditure on:
Raising funds
6
Charitable activities
7
Other
8
Total
Net gains on investments
Net income
9
Transfers between funds
Net income before other
gains/(losses)
Other gains and losses
Net movement in funds
Reconciliation of funds:
Total funds brought forward
Total funds carried forward		 Unrestricted
funds
2023
£
22,364
3,000		 Restricted
funds
2023
£
-
9,420		 Total funds
2023
£
22,364
12,420		 Total funds
2022
£
17,266
1,000
25,364
463
10,045
3,676		 9,420
-
9,420
-		 34,784
463
19,465
3,676		 18,266
706
12,937
3,064
14,184
-		 9,420
-		 23,604
-		 16,707
-
11,180
-		 -
-		 11,180
-		 1,559
-
11,180 - 11,180 1,559
11,180
21,520		 -
-		 11,180
21,520		 1,559
19,961
32,700 - 32,700 21,520

Page 6

The Arthrogryposis Group Summary Income and Expenditure Account

for the year ended 31 May 2023

Income
Gross income for the year
Expenditure
Total expenditure for the year
Net income before tax for the year
Net income for the year		 2023
£
34,784
34,784
23,604
23,604
11,180
11,180		 2022
£
18,266
18,266
16,707
16,707
1,559
1,559

Page 7

The Arthrogryposis Group Balance Sheet

at 31 May 2023

Company No.
CE005508
Notes
2023
£
Current assets
Stocks
11
-
Debtors
12
-
Cash at bank and in hand
33,000
33,000
Creditors:Amount falling due within one year
13
(300)
Net current assets
32,700
Total assets less current liabilities
32,700
Net assets excluding pension asset or liability
32,700
Total net assets
32,700
The funds of the charity
Restricted funds
14
Unrestricted funds
14
General funds
32,700
32,700
Reserves
14
Total funds
32,700		 2022
£
1,545
500
19,875
21,920
(400)
21,520
21,520
21,520
21,520
21,520
21,520
21,520

These accounts have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies.

For the year ended 31 May 2023 the company was entitled to exemption under section 477 of the Companies Act 2006 relating to small companies.

The members have not required the company to obtain an audit in accordance with section 476 of the Companies Act 2006.

The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of accounts.

Approved by the board on 21 October 2023

And signed on its behalf by:

S. Rayment Trustee 16 October 2023

Page 8

The Arthrogryposis Group Notes to the Accounts

for the year ended 31 May 2023

Basis of preparation

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.

Change in basis of accounting or to previous accounts

There has been no change to the accounting policies (valuation rules and method of accounting) since last year and no changes have been made to accounts for previous years.

Fund accounting

Income

Volunteer help The value of any volunteer help received is not included in the accounts. Investment income This is included in the accounts when receivable. Gains/(losses) on This includes any gain or loss resulting from revaluing investments to market value revaluation of fixed at the end of the year. assets Gains/(losses) on This includes any gain or loss on the sale of investments. investment assets

Page 9

The Arthrogryposis Group Notes to the Accounts

Expenditure

Taxation

The charity is exempt from corporation tax on its charitable activities.

Freehold investment property

Investment properties are measured initially at cost and subsequently at fair value at each balance sheet date and are not depreciated. All gains or losses are taken to the Statement of Financial Activities as they arise.

Stocks

Stock is included at the lower of cost or net realisable value. Donated items of stock are recognised at fair value which is the amount the charity would have been willing to pay for the items on the open market.

Trade and other debtors

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.

Cash and cash equivalents

Cash and cash equivalents comprise cash at bank and on hand, demand deposits with banks and other short-term highly liquid investments with original maturities of three months or less and bank overdrafts. In the statement of financial position, bank overdrafts are shown within borrowings or current liabilities. In the Statement of Cash Flows, cash and cash equivalents are shown net of bank overdrafts that are repayable on demand and form an integral part of the company's cash management.

Trade and other creditors

Short term creditors are measured at the transaction price. Other creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

Page 10

The Arthrogryposis Group Notes to the Accounts

Research and development

Expenditure on research and development is written off in the year in which it is incurred.

Foreign currencies

Monetary assets and liabilities denominated in currencies other than the functional currency of the charity are translated at the rates of exchange prevailing at the end of the reporting period.

Transactions in currencies other than the functional currency of the charity are recorded at the rate of exchange on the date that the transaction occurred.

All exchange differences are are taken into account in arriving at net income/expenditure.

Leased assets

Where the charity enters into a lease which entails taking substantially all the risks and rewards of ownership of an asset, the lease is treated as a finance lease.

Leases which do not transfer substantially all the risks and rewards of ownership to charity are classified as operating leases.

Assets held under finance leases are initially recognised as assets of the charity at their fair value at the inception of the lease or, if lower, at the present value of the minimum lease payments. The corresponding liability to the lessor is included in the balance sheet date as a finance lease obligation. Lease payments are apportioned between finance expenses and reduction of the lease obligation so as to achieve a constant rate of interest on the remaining balance of the liability. Finance expenses are recognised immediately, unless they are directly attributable to qualifying assets, in which case they are capitalised in accordance with the charity's policy on borrowing costs.

Assets held under finance leases are depreciated in the same way as owned assets.

Operating lease payments are recognised as an expense on a straight-line basis over the lease term. In the event that lease incentives are received to enter into operating leases, such incentives are recognised as a liability. The aggregate benefit of incentives is recognised as a reduction of rental expense on a straight-line basis.

Pension costs

The charity operates a defined contribution plan for its employees. A defined contribution plan is a pension plan under which the company pays fixed contributions into a separate entity. Once the contributions have been paid the company has no further payments obligations. The contributions are recognised as expenses when they fall due. Amounts not paid are shown in accruals in the balance sheet. The assets of the plan are held separately from the company in independently administered funds.

Receipt of donated goods, facilities and services

All donated goods, facilities and services received are recognised within incoming resources and expenditure at an estimate of the value to the charity.

2 Company status

The company is a private company limited by guarantee and consequently does not have share capital.

Page 11

The Arthrogryposis Group Notes to the Accounts

3 Statement of Financial Activities - prior year

3
Statement of Financial Activities - prior year
Income and endowments from:
Donations and legacies
Charitable activities
Total
Expenditure on:
Raising funds
Charitable activities
Other
Total
Net income
Net income before other
gains/(losses)
Other gains and losses:
Net movement in funds
Reconciliation of funds:
Total funds brought forward
Total funds carried forward		 Unrestricted
funds
2022
£
17,266
1,000
18,266
706
12,937
3,064
16,707
1,559
1,559
1,559
19,961
21,520		 Total funds
2022
£
17,266
1,000
18,266
706
12,937
3,064
16,707
1,559
1,559
1,559
19,961
21,520
4
Income from donations and legacies
Donations
TAG Conference donations
5
Income from charitable activities
Grants		 Unrestricted
£
3,000
3,000		 Unrestricted
£
22,364
-
22,364
Restricted
£
9,420
9,420		 Total
2023
£
22,364
-
22,364
Total
2023
£
12,420
12,420		 Total
2022
£
17,122
144
17,266
Total
2022
£
1,000
1,000

Page 12

The Arthrogryposis Group Notes to the Accounts

Costs of generating voluntary
income
Donations
7
Expenditure on charitable activities
Expenditure on charitable
activities
Grants
Governance costs
8
Other expenditure
Premises costs
General administrative costs
Legal and professional costs
9
Net income before transfers
This is stated after charging:
Independent Examiner's fee
10 Staff costs
No employee received emoluments in excess
11 Stocks
Finished goods
12 Debtors
Prepayments and accrued income		 Unrestricted
£
10,045
10,045
of £60,000.		 Unrestricted
£
463
463
Restricted
£
9,420
9,420
Unrestricted
£
1,336
1,840
500
3,676
2023
£
500
2023
£
-
-
2023
£
-
-		 Total
2023
£
463
463
Total
2023
£
19,465
19,465
Total
2023
£
1,336
1,840
500
3,676		 Total
2022
£
706
706
Total
2022
£
12,937
12,937
Total
2022
£
528
1,936
600
3,064
2022
£
600
2022
£
1,545
1,545
2022
£
500
500

Page 13

The Arthrogryposis Group Notes to the Accounts

13 Creditors:

amounts falling due within one year

Accruals
14 Movement in funds
At 1 June
2022
Restricted funds:
Restricted income funds:
Lottery
-
Total
-
Unrestricted funds:
General funds
21,520
Total funds
21,520
Purposes and restrictions in relation to the funds:
Restricted funds:
Lottery
15 Analysis of net assets between funds
Net current assets
16 Reconciliation of net debt
Cash and cash equivalents
Net debt		 2023
£
300
300
Incoming
resources
(including
other
gains/losses
)
£
9,420
9,420
25,364
34,784		 Resources
expended
£
(9,420)
(9,420)
(14,184)
(23,604)		 2022
£
400
400
At 31 May
2023
£
-
-
32,700
32,700
At 1 June
2022
£		 Unrestricted
funds
£
32,700
32,700
Cash flows
£		 Total
£
32,700
32,700
At 31 May
2023
£
19,875 13,125 33,000
19,875
19,875		 13,125
13,125		 33,000
33,000

Page 14

The Arthrogryposis Group Notes to the Accounts

17 Related party disclosures

Controlling party

The company is limited by guarantee and has no share capital; thus no single party controls the company.

Page 15

The Arthrogryposis Group Detailed Statement of Financial Activities

for the year ended 31 May 2023

Income and endowments from:
Donations and legacies
Donations
TAG Conference donations
Charitable activities
Grants
Total income and endowments
Expenditure on:
Costs of generating donations and
legacies
Donations
Total of expenditure on raising
funds
Charitable activities
Grants
Total of expenditure on charitable
activities
Premises costs
Rent
General administrative costs,
including depreciation and
amortisation
Bank charges
Equipment repairs and
maintenance
General insurances
Software, IT support and related
costs
Stationery and printing
Telephone, fax and broadband
Legal and professional costs
Audit/Independent examination
fees		 Unrestricte
d funds
2023
£
22,364
-
22,364
3,000
3,000
25,364
463
463
463
10,045
10,045
10,045
1,336
1,336
66
-
224
156
1,335
59
1,840
500		 Restricted
funds
2023
£
-
-
-
9,420
9,420
9,420
-
-
-
9,420
9,420
9,420
-
-
-
-
-
-
-
-
-
-		 Total funds
2023
£
22,364
-
22,364
12,420
12,420
34,784
463
463
463
19,465
19,465
19,465
1,336
1,336
66
-
224
156
1,335
59
1,840
500		 Total funds
2022
£
17,122
144
17,266
1,000
1,000
18,266
706
706
706
12,937
12,937
12,937
528
528
25
36
596
1,254
-
25
1,936
600

Page 16

The Arthrogryposis Group Detailed Statement of Financial Activities

The Arthrogryposis Group
Detailed Statement of Financial Activities
Total of expenditure of other costs
Total expenditure
Net gains on investments
Net income
Net income before other
gains/(losses)
Other Gains
Net movement in funds
Reconciliation of funds:
Total funds brought forward
Total funds carried forward		 500
3,676
14,184
-
11,180
11,180
-
11,180
21,520
32,700		 -
-
9,420
-
-
-
-
-
-
-		 500
3,676
23,604
-
11,180
11,180
-
11,180
21,520
32,700		 600
3,064
16,707
-
1,559
1,559
-
1,559
19,961
21,520

Page 17