Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
Objectives and Activities
The objects of the Charitable Incorporated Organisation are:
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To advance the health of individuals and families of people at risk of Huntington’s Disease (HD) and those already suffering by, in particularly but not exclusively, promoting safe, medically sanctioned and proven methods of reproduction for people at risk or suffering from HD to have HD-free children.
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Providing the opportunity for those at risk or suffering from HD to access medically sanctioned and proven methods for the reproduction of HD-free children. Helping to relieve the suffering, emotional and psychological, of people suffering or at risk of HD surrounding their reproductive choices. At this time the geographical area is limited to the United Kingdom.
Achievements and Performance
Our previous financial year ended on a positive note with our CEO being asked to be a speaker at the Huntington’s Disease Youth Organization (HDYO) in Scotland in May 2020. We were able to give out another grant, and more and more people were finding ways to fundraise for us and so many donated. All seemed on track for a banner year. However, in the beginning of 2020 Covid19 happened and activity for all including those at Phil’s Kids came to an abrupt halt. The HDYO conference was cancelled as were several fundraising ventures. It was bleak.
In the early days of 2020, another HD colleague gave our contact details to a television production team. The researchers were looking for a young couple at risk to discuss their experience of discussing and deciding about reproduction. Many calls and emails later produced an agreement to take part from our one of our most ardent supporters. More than a few times this couple has been the face of our targeted clientele with selflessness and dignity.
Despite the pandemic, the Board decided to move ahead with what we could and a grant that we awarded brought superb news in February. A phone call came to say that the recipients were expecting a baby.
Even though we were unable to participate in many of our fundraising events our volunteers continued the trend of raising funds for Phil’s Kids by modifying and adapting their challenges:
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Our tv interview couple requested that any fee they were promised should be donated, in full, to Phil’s Kids. This generosity led to out largest single household donation.
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The at-risk member of the aforementioned couple also gave an interview to a national woman’s magazine and once again donated the fee directly to us.
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As one long standing couple had to bring an end to their monthly donation another hero stepped in and began their own monthly donation.
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The Facebook fundraising efforts proved, again, to be a good and consistent method of fundraising. Even when times were hard and funds tight people were still willing to give what they could.
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Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
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One of the greatest adaptations came from three wonderful young men who had originally signed up to compete in the Prudential Surrey to London 100. As this was cancelled they all three decided to cycle, on trainers, in their own house whilst streaming their efforts for people to watch and donate. Each completed 100 miles at home in their homes and travelled not on inch.
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Unfortunately we were again unable to host our annual Backyard Bonanza. Plans were made, changed and then finally abandoned until it is safe for us to do so.
Public Benefit
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a) To educate and raise awareness of reproductive choices for people at risk of Huntingdon's Disease.
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b) To offer financial support to cover travel and subsistence expenses whilst underdoing PGDIVF treatment.
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c) To offer financial support towards the cost of PGD-IVF treatment.
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d) To make sure that the information provided is up to date and accurate. All information is checked against the current data available
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e) To ensure the evidence submitted to secure grants is honest, true and accurate. All information is checked with GPs, consultants and clinics.
The trustees have had regard to the guidance issued by the Charity Commission on public benefit and can confirm they have complied with their duties under section 4 of the 2006 Charities Act.
Structure, Governance and Management
Governance
Phil's Kids was constituted as a Charitable Incorporated Organisation on 27 August 2015. The accounts for the period of trading of the Charitable Incorporated Organisation commence on I November 2019 and run until 31 October 2020.
The trustees who have served during the period and since commencement are set out on page 3r None of the trustees. nor any person connected to them, has received any remuneration or expenses from the Charity in the period to 31 October 2020.
The power to appoint trustees is vested in existing trustees. All major decisions: including those of a financial nature, are made by the Board of Trustees at their meetings, which are held regularly,
The key skills covered by the trustees include financial management and planning and day to day running of the charity.
Finance
The attached financial statements show the current state of the charity's finances which the
committee considers to be sound.
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Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
Reserves
The current level of reserve total is £1996.24, this is not considered an appropriate level of funds to be available for grants now however, applicant’s cases will be reviewed by the board as the year progresses. The trustees have issued one grant this year.
Future Plans
For 2020/2021 onwards the Board of Trustees plans to continue to build on the achievements of the charity by:
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Aiming to inform and support people at risk of Huntingdon's Disease (HD) with the choice of using PGD-IVF to start a family free of HD.
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Continue to award grants, funds dependent, to qualified applicants.
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Increase awareness of Phil’s Kids through print, social media, television, public speaking and promotional events as permitted.
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Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
Reference and Administration Information
1163328
Charity Registration Number: 1163328 Trustees: Appointed 27.8.15 Jacquelyn Stavish — Chair Reappointed 03.08.2020 Phoebe Stavish — Secretary Alan Wilson Chloe Poskitt — Vice Chair Dylan Stavish
Principal Contact Address:
The Grange Church Lane Austerfield Doncaster DNIO 6QY
Website: Bankers:
www.philskids.uk NatWest Bank PLC 23-25 Market Place Bawtry Doncaster 10 6JL
Independent Reviewer
Tom Blair 18 St. Mary’s Road Dunsville Doncaster DN7 4DX
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Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
Declaration
We the Trustees declare we have approved the Trustees Report above and are authorised to sign it on their behalf.
----- Start of picture text -----
Full Name ……Jacquelyn M Stavish……………… Position. Chair/Trustee…
Signature ………………. Date 29/09/2021………
Full Name……Alan M Wilson…………… Position…Trustee/Treasurer….
Signature …………………………………………….. Date 29/09/2021…….
----- End of picture text -----
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Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
Balance Sheet Comparison
As of October 31, 2020
| TOTAL | ||
|---|---|---|
| AS OF OCT 31, 2020 | AS OF OCT 31, 2019 (PP) | |
| Fixed Asset | ||
| Tangible assets | ||
| Fixtures and Fittings Cost | 609.98 | 609.98 |
| Office Equipment Cost | 1,194.46 | 109.97 |
| Total Tangible assets | £1,804.44 | £719.95 |
| Total Fixed Asset | £1,804.44 | £719.95 |
| Cash at bank and in hand | ||
| Cash in bank | ||
| 1,996.24 | 6,039.26 | |
| Total Cash at bank and in hand | £1,996.24 | £6,039.26 |
| Current Assets Other | ||
| current assets | ||
| 300.00 | 300.00 | |
| Stock Asset | 1,427.56 | 1,427.56 |
| Uncategorised Asset | 740.00 | 740.00 |
| Total Current Assets | £2,467.56 | £2,467.56 |
| NET CURRENT ASSETS | £4,463.80 | £8,506.82 |
| NET CURRENT ASSETS (LIABILITIES) | £4,463.80 | £8,506.82 |
| TOTAL ASSETS LESS CURRENT LIABILITIES | £6,268.24 | £9,226.77 |
| TOTAL NET ASSETS (LIABILITIES) | £6,268.24 | £9,226.77 |
| Charity funds | ||
| Opening Balance Equity | 597.56 | 597.56 |
| Retained Earnings | 8,629.21 | 8,629.21 |
| Surplus/(Deficit) | -2,958.53 | |
| Total Charity funds | £6,268.24 | £9,226.77 |
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Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
Financial Activities Comparison
November 2019 - October 2020
| TOTAL | |||
|---|---|---|---|
| NOV 2019 - OCT 2020 | NOV 2018 - OCT 2019 (PP) | ||
| Income | |||
| Charitable activities | |||
| Facebook Birthday Fundraiser | 131.72 | ||
| Total Charitable activities | 131.72 | ||
| Donations and legacies | 3,019.19 | 5,787.51 | |
| Refunds | -95.00 | ||
| Uncategorised Income | 0.01 | ||
| Total Income | £3,019.19 | £5,824.24 | |
| TOTAL | £3,019.19 | £5,824.24 | |
| Expenditures | |||
| Advertising/Promotional | 530.76 | 451.62 | |
| Computer Costs | 561.46 | 189.60 | |
| Entrance Fees - Charity Challenges | 1,379.88 | ||
| Office/General Administrative Expenses | 237.49 | 546.73 | |
| Other Professional Services | 203.60 | ||
| Phone Costs | 570.24 | 507.18 | |
| Printing, Postage and Stationery | 23.97 | 268.33 | |
| Raising funds | 53.80 | 2,336.77 | |
| Serpentine Swim | 79.00 | ||
| Total Expenditures | £1,977.72 | £5,962.71 | |
| NET OPERATING INCOME | £1,041.47 | £ -138.47 | |
| Other Expenditures | |||
| Grant Disbursal | |||
| 4,000.00 | 4,000.00 | ||
| Total Other Expenditures | £4,000.00 | £4,000.00 | |
| NET OTHER INCOME | £ -4,000.00 | £ -4,000.00 | |
| NET INCOME/(EXPENDITURE) | £ -2,958.53 | £ -4,138.47 |
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Phil’s Kids Trustees’ Annual Report Year Ended 31 October 2020
Phil's Kids Financial Review Form
This note is to certify that I have had sight of and reviewed the accounts of Phil's Kids, registered charity, for the financial year ending 31 October 2020.
I hereby also attest to being completely and wholly independent from Phil's Kids and its Trustees. No financial renumeration was offered or taken for these actions.
Signed
Date
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