CYSTIC FIBROSIS CARE REPORT AND FINANCIAL STATEMENTS FOR THE 13 MONTH5 ENDED 31 DECEMBER 2025 CHARITY NUMBER 1162445
CYSTIC FIBR0515 CARE CONTENTS OF THE FINANCIAL STATEMENTS for the 13 months ended 31 December 2025 Page Reference and Administration Details of the Charity, its Trustees and Advisers TIu5lees' Aiinual Report Independent Examinerfs Report Siaiemeni of Fln6nciiil ALlivitie5 Balance Sheet io Notes to the Pinancial Siaiemenis li
CYSTIC FIBROSIS CARE REFERENCE AND ADMIN15TRAI FUN DE IAIL5 OF THE CHARITY, ITS TRUSTEES AND ADVISORS for thc 13 months ended 31 December 2025 Charity Registration Number: 1162445 Trustees: Mr C York Ichairmanl Mrs Syork Mr M Rose Mrs C J Sunley prlncipal Address: We5t8arth House Snape Bedale North Yorkshire DL8 2TJ Bankers: HSBC 189 HiRh Street Northallerton DL7 8LG Independent Examiner: Suzanne Bolton, FCA Streamline Accountants Unit 5 Battalion Court Catterick Catterick Garrison DL9 4QN
CYSTIC FIBR0515 CARE TRUSTEES, ANNUAL REPORT for the 13 months ended 31 December 2025 The Trustees present their annual report and the financial statements of the eharity for the 13 months ended 31 December 2025. The financial statements have been prepared in accordance with the accounting policies set out on pa8ès 11 and 12 and comply with the Charity's trust dppd. the Charities Act 2011 and Accountin8 and Reporting by Ch3rities'. Statement of Rp.e.ommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Repiiblir. nf Ireland IFRS 1021, as updated by Update Bulletin l. Strurture, Governance and Management Governin8 Document Cystic Fibrosis Care is a Charitable Incorporated Organisation {LIOI which was regisiered wlth ihe Charity Commission on 29 June 2015. The Charity is governed by its constitution, dated 23 March 2015. Recruitment and Appointment of Trustees It is the policy of the Charltv to recruit persons who have the skills, knowledge and experience which will assist in the management and promotion of the Charity. The Trustee5 dele8ate the day to day running and responsibility of the Charity to the executive director Patrlcia KilpatllLk. Objectives and ActIvtieS Tlie Cystic Fibrosis Care Charity is a registered charity, which was estabSished in 2015. The Charity's objects are to improve the quality of life for those living with Cystic Fibrosis by providing emotional support and counsellin8 as well as vital medical items and exercise equipment to individuals 3nd Specialisi CF Unlls, and by providing grants for welfare and hospit31 Èxpensp%. Training for both practitioner nurses to become Specialist CF nurses and adults CF patients over 21 are offered education and vocation grants to fund fees and student living costs. The Trustees confirm that in exercising their dutles they have Iidd due regard to the 8uidance on public benefit. published by the Charitv Commission, The Charlty ha5 a small Leam of volunteer5 who si8n a volunteer agreement. They help at p.vents with collection5, registration, marshalling and helping with refreshments and give their time freely. They are covered under the Charitls insurance policy in the event of an accident.
CYSTIC FIBROSIS CARE Our Mission The Charity's vision is to create a world In whlch people Ilvlng With Cystic Fibrosis ICFI can access the care and support they need to enhance their quality of life and reduce the daily challenges associated with the ondition. Breathing is Something most people take for granted, but for those living with CF, it is a constant struggle. Cystic Fibrosis is a life-limiting, inherited condition that affects more than 11,200 people across the UK. Approximatelv one in 25 people carries the faultv CF gene, often without their knowledge, equating to more than two million carriers nationwide. When both parents are carriers, there is a one in four chance that their child will be born with CF. CF primarily affects the lungs and digestive system, causing a build-up of thick, sticky mucus that makes breathing difficult and impairs the body's ability to digest and absorb nutrients effectively. As 3 result, many people with CF must follow intensive daily treatment regimes to maintain their health. This often includes consuming up to 50% more calories than the average person, undertaking daily physiotherapy, and undergoing regular and sometimes invasive medical treatments, often requiring extended periods in hospital. For those with advanced lun8 disease, a lun8 transplant may be the only treatment option, where one is available. While advances in treatment have significantly improved outcomes and quality of life for many people with CF, the condition remains incurable. Average life expectancy is currently in the13te 40s, and individuals ontinue to face significant health challenges throughout their lives. The impact of CF extends far beyond physical health. The demands of managing the condition can disrupt education, employment, family life, and Social participation. Frequent hospital admissions, intensive treatment schedules, and uncertainty about future health can place considerable emotional and financial straln on patients and their families. Supportin8 individuals and families throughout their lifelong journey with CF remains at the heart of the Charity's mission. Achievements and Performance The risin8 Costs continues to place significant financial pressure on people living with Cystic Fibrosis ICFI and their families. particularly those on lower incomes. Individuals affected by CF face average additional annu31 costs exceeding £6,500, driven by increased expenditure on heating, specialised dietary requirements, travel to medical appointments. home medical equipment, and lost income experienced by both adult patients and parents acting a5 carers. During the period we saw an increase in requests for our grants, especially our welfare grant, with referrals from CF Teams around the country for CF families finding themselves struggling to provide the basic necessitie5 for their families whilst dealing with the impact of their condition. The total individual grants awarded In the period were 16612024: 1121 amounting to £30,85212024'. £22,752).
CYSTIC FIBROSIS CARE In addition to the individual support grants, we awarded grants to 14 different hospitals throughout the Country. A total of £80,443 was provided in the form of: Vital equipment such as Pari E-Flows and Body Scanners. 5 training nursin8 grants towards the Management of CF in Adults and Children Course fees to improve the knowledge and confidence in the care of those with CF. A contribution of £20,000 towards the refurbishment of the Children's Ward at Sheffield Hospital. This brings the total grants awarded by the charity to over £500,000. The Charity is forever 8rateful for the volunteers who either attend the various events organised by the Charity or gather funds through event5 of their own. This source of income is invaluable as it not only provides funds but demonstrates the understanding and compassion for the CF community. Financial Revlew Income rose in the period to £330,81612024 £230,044). Other expenditure continued to be tightly controlled leaving unrestricted funds held at the end of the year of £540,99112024'. £426.0781. Reserves Pollcy The Charity retains the unrestricted reserve to provide sufficient resources to enable the Charity to fund its activities. The level of reserves is monitored and regularly reviewed by the Trustees. Rlsk Management The Trustees consider and review the major risks to which the Charity is exposed on 3 regular basis. They establish systems and procedures to manage these risks to an acceptable level. In particular, they scrutinise financial risks relating to its reliance on legacies, donations and gifts to cover the costs of the services it provides.
CYSTIC FIBROSIS CARE Plan5 for Future Periods We continuc to livc in challenging times, with high rates of inflation affecting the most vulnerable and it is vital that we continuè to support these families with individual grants towards thpir living costs. We will contlnue io work wlth the medlcal and 50clal welfare teaffl5 to furg¢ ¥ood relatioiiships Wlth each h95Pltèl so we can work tQ8ether to provide the most effective 5UPPOrt to benefit their paticnts. Internally our priority is to develop the organisation to be more efficient, resilient, and responsible so that we can continue to support the CF community and be able to provide vital medical equipment tor the Specialist CF Units. We look forward to making progress in 2025 and beyond to keep on supporting the m05t vulnerable when there is no other help available. Statement of Trustees, Respon5ibilitie5 Thc Trustces are responsible for preparin8 the Trustees, Annual Report and the Financial Stat@mpnt£ in 2c.c.nrdancÈ with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Principles). The law applicable to charities in England and wales requlre5 the trustees to prepdre fiiidllLial statenieiits for each financial yedl wIIiLlI give a true and fair view of the state of affairs of the charity and of thc incoming resource5 and application of resource5 of that charity for that year. In preparin8 those financial statements the trustees are required to.. seleci sultable accountlng policie5 dwid Iliewi apply tliem consistently. make judgements and estimates that are reasonable and prudent. obseNe the methods and principles in the Charities SORP IFRS 1021. prepare the financial statements on the going concern basls unle55 It 15 inappivpr late to presume that the Charliy wlll continue in upvralioii. Approved by the Trustee5 and si8ned on their behalf on 2026 bv.. Mrcvork Chairman
CYSTIC FIBROSIS CARE INDEPFNDFNT FXAMINFR'£ REPQRT TO THE TRUSTEES OF CYSTIC FIBROSIS CARE for the 13 months ended 31 December 2025 I report to the charity trustees on my examination of the accounts of the Charity for the period ended 31 December 2025, which are set out on pases 8 to 13. Re5yeLLivg rebponsibilities of trustees aiid exaiminer The Charity's Trustees are responsible for the preparation of the accounts. The Charity's Trustees consider that an audit is not required for this period under section 144 of the Charitiès Act 2011 (the Charities Ar.tl And that an independent examination is needed. 11 is Iiiy respoiisibility to-. examine the account under section 145 of the Charities Act,. to follow the procedures laid down in the general Directions given by the Charlty Commission lunder section 14515llbl of ihe Charities Act),. diid to State whether particular matters have come to my attention. Basis of independent examiner's report My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the attounis presented with those records. It also includes consideration of any unusual item5 or disclosure5 in the accounts and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide 311 the evidence that would bc rcquired in an audit and consequently no opinion is given as to whether the accoiints present a 'true and fair view, and the report is limitpd tn those matters set out in the statement below. Independent examiner's statement In connection with my examination, no matter has come to my attention.. (l) which gives me reasonable cause io belleve ihai In any rnateridl re5PeLL Ilie requirements.. 10 keep accounting rei(prds iii accordaiice with section 130 of the Charities Act- and lo prepare accounts which accord with the accounting records and comply with the accountin8 TeqiJirpmp.nts of the Charities Act have not been met; or {2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached. Suzannc Bolton FCA Streamline Accountonts 5 BdlLalioii Court Colburn Business Park DL9 4QN 10 July 2026
CYSTIC FIBROSIS CARE STATEMENT of FINANCIAL ACTIVITIES for thp. 12 mtsnths @ndÈd 31 December 2025 2025 Unie5tricted Restrirted 2025 2024 Unrestricted Restricted 2024 Note5 INCOMING RESOURCES Income and endowments from: Oonations and le8acie5 48,825 61,804 57,586 Other trading activities 210,646 154,752 Gain on Investments 3,343 11.275 iflteresi 6,198 6,431 Total Income 269,012 61,804 230,044 RESOURCES EXPENDED Expenditure on: Raising funds 37,265 23.597 Charitable activities 74,1 37,195 120,321 12,770 Other 67,343 58,717 Total Expenditure 178,708 37,195 202,635 12,770 Net Income / movement in funds 90,304 24,609 27,409 { 12,7701 Total Funds brought forward 426,078 398,669 12,770 Total Funds carried forward 516,382 24,609 426,078
CYSTIC FIBROSIS CARE BALANCE SHEET as at 31 December 2025 2025 2024 Note5 Fixed Assets Investments 308 276,428 279,772 279,772 276,736 Current Assets Stocks Prepayments & accrued income Cash al bank & in hand 1.000 2,630 267,989 184,168 Total Current Assets 271,619 184,168 Creditors.. amounts dve within one year 10,400 34,8261 Net Current Assets 261,219 149,342 Total Net Assets 540.991 426,078 FUNDS OFTHE CHARITY Unrestricted Funds Restricted Fund5 516,382 24,609 426,078 Total Funds 540,991 426,078 The financial statements were approved by the Board of Trustees on behalf by.. 2026 and signed on its Mr Cyork Chairman
CYSTIC FIBROSIS CARE NOTES TO THE FINANCIAL STATEMENTS for the 13 months ended 31 December 2025 ACCOUNTING POLICIES Basis of accounting The financial statements have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant notelsl to the accounts. The financial statements have been prepared in accordance with the Statement of Recommended Practice.. Accounting and Reporting by Charitie5 ISORPI preparing their accounts in accordance with the Financial Reponlng 5tand3rd applicable in the UK Lind Republii ul Irvlrjnd IFRS 1021 issued on 16 July 2014, as updated by Update Bulleliii I, ¢iiid wiilTr ilie Fiiiancial Reportins Sténdaid applicable in the UK and Republic of Ireland IFRS 1021 and with the Charities Act 2011. The financial statement5 have been prepared to give a true and fair view of the State of affairs of the Charity a5 at the end of the financial period and of the net income or expenditure of the Charity for the financial period, and the accounting policies adopted are those outlined below. Cystic Fibrosis Care constitutes 3 public benefit entity as defined by FRS 102. The Trustees consider that there are no material uncertainties about the Charity's ability to continue as a going concern. Income Income is recognised when the Charity has entitlement to the funds, any performance conditions attached to the items of income have been met, it 15 probable that income wi15 be received, and the amount can be measured rellably. The Charity ensures that restricted funds are applied in accordance with the wishes of the Donor. Off5ettlll8 There has been no off5ettinB of assets and liabilities or income and expenditure, unless reqiiired or permitted by the FRS 102 SORP or FRS 102. Depreciation Fixed assets are depreciated over their useful lives, less any residual value, on a straight-line basis. The depreciation rates are: Lompuier- software loo% Computer- hardware 25% Volunteer help Thè value of any voluntary help rproived is not included in the accounts but is descrlbed in the Trustees, annual report.
CYSTIC FIBROSIS CARE NOTES TO THE FINANCIAL STATEMENTS for the 13 months ended 31 December 2025 (continued) Expenditure Expenditure is recognised once there is a legal or construrtive obligation committing the Charity to that expenditure, it is probable that Settlement will be required and the amount of the obligation can bc measured reliably. Expenditure includes irrecoverable VAT. Creditors Creditors are recognised at their settlement amount after allowing for any trade d15COUlIt5 due. DONATIONS AND LEGACIES 2025 2024 Donations and gifts - unrestricted Donations and gifts- restricted 48,825 61,804 57,586 110,629 57,586 INCOME FROM OTHER TRADING ACTIVITIES 2025 2024 Income from events 210,646 154,752 OTHER FUNDRAISING COSTS 2025 2024 Cost of events 37,265 23,597 EXPENDITURE ON CHARITABLE ACTIVITIES 2025 2024 Grants paid - unrestricted Grants paid restricted Activity Packs- unrestricted 73,520 37,195 119,654 12,770 667 111,295 133,091
CYSTIC FIBROSIS CARE NOTES TO THE FINANCIAL STATEMENTS for the 13 months ended 31 December 2025 (continued) OTHER COSTS 20Z5 2024 Wages and salaries Advertising, Social Media Printin8, postage, and office expenses Travel and sub5i5tente Insurance Independent examinerfs fee Accountancy Fees 57,954 3,561 3,310 1,552 629 150 187 53,641 240 2,400 1,478 571 150 237 67.343 58,717 STAFF COSTS 2025 2024 Wages and Salaries 57,954 53,641 The average number of employees during the period was 312024-. 31. No employee had emoluments in exces5 of £60,000. FIXED ASSETS 2025 2024 Cornpute15 NBV b/f Additions Depreciation 308 616 1 3081 1 3081 Computers N8V elf 308 Investments 446.453 356.453 356,761 356,761
CYSTIC FIBROSIS CARE NOTES TO THE FINANCIAL STATEMENTS for the 13 months ended 31 December 2025 (continued) DEBTORS: AMOUNTS FALUNG DUE WITHIN ONE YEAR 2025 2024 Prepayments and accrued income 2,630 io CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2025 2024 Trade creditors Taxation and social security Accruals and Oeferred income 1,991 8,409 266 34,560 10,400 34,826 li TRANSACTIONS WITH TRUSTEES AND RELATED PARTIES The Trustees received no remuneration for their services to the Charity during the year12024: nill.