## **CYSTIC FIBROSIS CARE** 

# **REPORT AND FINANCIAL STATEMENTS** 

# **FOR THE 12 MONTHS ENDED 30 NOVEMBER 2021** 

**CHARITY NUMBER 1162445** 

**CYSTIC FIBROSIS CARE** 



## CONTENTS OF THE FINANCIAL STATEMENTS for the 12 months ended 30 November 2021 

||Page|||
|---|---|---|---|
|Reference and Administration Details of the Charity, its Trustees and Advisers|||3|
|Trustees’ Annual Report<br>|4|||
|Independent Examiner’s Report|||9|
|Statement of Financial Activities||10||
|Balance Sheet||11||
|Notes to the Financial Statements|<br>|12||



## **CYSTIC FIBROSIS CARE** 



REFERENCE AND ADMINISTRATION DETAILS OF THE CHARITY, ITS TRUSTEES AND ADVISORS for the 12 months ended 30 November 2021 

## Charity Registration Number: 1162445 

**Trustees:** Mr C York (Chairman) Mrs S York Mr M Rose Mrs C J Sunley Mr N Wilson – retired 24[th] May 2021 **Principal Address:** Westgarth House Snape Bedale North Yorkshire DL8 2TJ **Bankers:** HSBC 189 High Street Northallerton DL7 8LG **Independent Examiner:** Suzanne Bolton, FCA Streamline Accountants Barclays Bank Chambers 18 North End Bedale DL8 1AB 

**CYSTIC FIBROSIS CARE** 



## TRUSTEES’ ANNUAL REPORT 

## **for the 12 months ended 30 November 2021** 

The Trustees present their annual report and the financial statements of the charity for the year ended 30 November 2021. The financial statements have been prepared in accordance with the accounting policies set out on pages 12 and 13 and comply with the Charity's trust deed, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102), as updated by Update Bulletin 1. 

## **Structure, Governance and Management** 

## **Governing Document** 

Cystic Fibrosis Care is a Charitable Incorporated Organisation (CIO) which was registered with the Charity Commission on 29 June 2015. The Charity is governed by its constitution, dated 23 March 2015. 

## **Recruitment and Appointment of Trustees** 

It is the policy of the Charity to recruit persons who have the skills, knowledge and experience which will assist in the management and promotion of the Charity. 

The Trustees delegate the day to day running and responsibility of the charity to the executive director Patricia Kilpatrick. 

## **Objectives and Activities** 

The Cystic Fibrosis Care charity is a registered charity, which was established in 2015. The Charity’s objects are to improve the quality of life for those living with cystic fibrosis by providing emotional support and counselling as well as vital medical items and exercise equipment to individuals and Specialist CF Units, and by providing grants for welfare and hospital expenses. 

The Trustees confirm that in exercising their duties they have had due regard to the guidance on public benefit, published by the Charity Commission. 

The Charity has a small team of volunteers who sign a volunteer agreement.  They help at events with collections, registration, marshalling and helping with refreshments and give their time freely. They are covered under the Charity’s insurance policy in the event of an accident. 



## **CYSTIC FIBROSIS CARE** 

## **Our Mission** 

The vision of the Charity is to create a world where those with Cystic Fibrosis can access the care that they need to improve the quality of their life and minimise their daily struggle. 

Breathing is something we take for granted, but for those with Cystic Fibrosis the reality is very different. Cystic Fibrosis (CF) is a life-shortening, life limiting, inherited disease affecting over 10,400 people in the 

UK.  One person in 25 carries the faulty CF gene, usually without being aware. This equates to over two million people in the UK. If two carriers have a baby, there is a one in four chance of their child having Cystic Fibrosis. CF affects the internal organs, especially the lungs and digestive system, clogging them with thick sticky mucus making it hard to breathe and digest food. 

Those with CF have to work very hard to keep their lungs healthy. They have to eat 50% more calories every day, they need daily physiotherapy, and require invasive medical treatment, spending a great deal of time in hospital. A transplant for those with severe lung disease is often the only option, if indeed it is available. Treatments to control the symptoms are improving, however the average life expectancy is still in the early 40’s and there is no cure. 

The nature and treatment of the disease interferes with day-to-day life and the demands of coping with the symptoms and treatments can cause massive financial issues for many patients and families. A shortened life span and frequent hospitalisation is a constant concern, and it is our mission to support those in their lifelong battle with CF. 

## **Achievements and Performance** 

During the past financial year to 30[th] November 2021, we saw our income increase by 136% on the previous year.  Two events held during the year were extremely successful, raising far more than expected, a very entertaining virtual wine tasting and the most memorable day of sport at the Yorkshire Charity Clay Shoot held at Duncombe Park.  We saw repeated support from Trusts and Foundations. However, many events were cancelled due to Covid restrictions, but eventually towards the end of the year we had supporters taking part in the 40[th] Great North Run and London Marathon, with repeat events at Christmas. 

We have continued to provide hardship grants, food vouchers, hospital travel costs, enable emotional support and provided vital medical equipment. We provided an education grant to a Northern Irish student and continue to provide telephone support to CF patients and parents asking for guidance about benefits, emotional support or their financial predicaments.   Our policy is to re- direct them back to their CF Unit and social worker for extra support as well as offering a sympathetic ear. 

CF patients and their families have been adjusting to Kaftrio, the new treatment which became available in August 2020. The triple therapy drug treatment is available for 



almost 90% of patients over 12 years old and is highly effective, improving lung function and general health. Many patients have said Kaftrio is life changing, a ‘miracle drug’ giving them hope for the future, but there are still patients who are unable to tolerate the side effects, or their particular genetic variants are not eligible for the drug. We expect to have more requests for our education and retraining grants because of improved health. 

## **CYSTIC FIBROSIS CARE** 

We supported two main CF Centres with Pari E-flow nebulisers as the NHS continue to refuse to fund these devices at Birmingham Children’s Hospital, James Cook in Middlesbrough and many other units. 

We continue to supply specially designed face masks to over 3,500 CF adults and teenagers around the country, requested via the CF Units and directly to patients with requests through social media and we are grateful to Jess Spoor for her contribution. 

We continue to fund grants requested by the CF Unit Teams and wherever possible we will offer advice to find other options if we cannot fulfil the request ourselves. 

## **Financial Review** 

The pandemic continued to have an adverse impact on income with many of the planned events and activities remaining on hold. Again, various virtual events were organised, including a very successful wine tasting evening which raised £21,570. Income was further boosted with £15,000 from the Swire Charitable Trust. 

A successful application to the Yorkshire Charity Clay Shoot held at Duncombe Park resulted in a donation of £75,000.  These monies are to be used in support of the York Hospital CF outpatients’ clinic and the refurbishment of the Seacroft Hospital outpatients clinic at Seacroft in Leeds. Both of these projects have been delayed but it is anticipated that these monies will be handed over in 2022. 

Details of the income and expenditure are shown in the profit and loss account. The donation from the Yorkshire Charity Clay Shoot is restricted.  The total net income for the year was £114,487 (2020: £5,790) of which £39,487 (2020: £5,790) was unrestricted and £75,000 (2020: £nil) was restricted. 

At end of the year the unrestricted funds held were £304,635 (2020: £265,148) and the restricted funds were £75,000 (2020: £nil). 

## **Reserves Policy** 

The Charity retains the unrestricted reserve to provide sufficient resources to enable the Charity to fund its activities.  The level of reserves is monitored and reviewed by the Trustees throughout the period. 



## **Risk Management** 

The Trustees consider and review the major risks to which the Charity is exposed on a regular basis. They establish systems and procedures to manage these risks to an acceptable level. In particular they scrutinise financial risks relating to its reliance on legacies, donations and gifts to cover the costs of the services it provides. 

## **CYSTIC FIBROSIS CARE** 

## **Plans for Future Periods** 

We will continue to fund emergency grants for those impacted by Covid-19 while the spread of the disease may be decreasing, the long-term impact will continue to be felt by the CF community.  We will also continue to offer CF training for nurses online with the EducateCF course. We will carry on supplying AB face masks to CF adults and CF Units. We hope to finalise our discussions with the clinicians regarding supporting the new York Hospital CF outpatients’ clinic and the refurbishment of the Seacroft Hospital outpatients clinic at Seacroft in Leeds, both of which had been suspended until 2022. 

We identified a funding gap in education for CF adults as there is currently only one other charity offering this help for college age students aged 18 to 24. We offer an education grant to provide CF adult patients aged 21+ with a grant towards further education and retraining for employment as health and life expectancy of patients improves due to new drug treatments now available. 

We continue to seek out new sources of income so that we can continue to support the CF community. 



## **CYSTIC FIBROSIS CARE** 

## Statement of Trustees' Responsibilities 

The Trustees are responsible for preparing the Trustees' Annual Report and the Financial Statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Principles). The law applicable to charities in England and Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources of that charity for that year. In preparing those financial statements the trustees are required to: 

- select suitable accounting policies and then apply them consistently; 

- make judgements and estimates that are reasonable and prudent; 

- observe the methods and principles in the Charities SORP (FRS 102); 

- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the Charity will continue in operation. 

Approved by the Trustees and signed on their behalf on                     2022 by: 

Mr C York (Chairman) Trustee 



## INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF CYSTIC FIBROSIS CARE 

## for the 12 months ended 30 November 2021 

I report on the accounts of the Charity for the period ended 30 November 2021, which are set out on pages 8 to 13. 

## Respective responsibilities of trustees and examiner 

The Charity's Trustees are responsible for the preparation of the accounts. The Charity's Trustees consider that an audit is not required for this period under section 144 of the Charities Act 2011 (the Charities Act) and that an independent examination is needed. 

It is my responsibility to: 

- examine the accounts under section 145 of the Charities Act; 

- to follow the procedures laid down in the general Directions given by the Charity Commission (under section 145(5)(b) of the Charities Act); and 

- to state whether particular matters have come to my attention. 

## Basis of independent examiner's report 

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a 'true and fair view' and the report is limited to those matters set out in the statement below. 

## Independent examiner's statement 

In connection with my examination, no matter has come to my attention: 

(1) which gives me reasonable cause to believe that in any material respect the requirements: 

- to keep accounting records in accordance with section 130 of the Charities Act; and 

- to prepare accounts which accord with the accounting records and comply with the accounting requirements of the Charities Act 

have not been met; or 

- (2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached. 




Suzanne Bolton FCA Streamline Accountants 5 Battalion Court Colburn Business Park DL9 4QN 2022 

## **CYSTIC FIBROSIS CARE** 

## STATEMENT of FINANCIAL ACTIVITIES **for the 12 months ended 30 November 2021** 

||**2021**|**2021**||
|---|---|---|---|
|||**2020**||
||**Unrestricted**|**Restricted**||
|||**Unrestricted**||
||**£**|**£**||
|**Notes**||**£**||
|**INCOMING RESOURCES**||||
|**Income and endowments from:**||||
|Donations and legacies                                             2|35,106|75,000||
|||31,268||
|Other trading activities                                             3|36,055|-||
|||36,547||
|Gain on Investments|16,662|-<br>|-|
|Interest|2,100|-||
|||2,100||
||_______|_______||
|||_______||
|Total Income|89,923|75,000||
|||69,915||
||=======|=======||
|||=======||
|RESOURCES EXPENDED||||
|**Expenditure on:**||||
|Raising funds                                                               4|7,130|-||
|Charitable activities                                                   5|17,122|-||
||35,194|||
|Other                                                                            6|26,184|-||
||28,931|||
||______|______|____|
|Total expenditure|50,436|-||
||64,125|||





|Net income and Net movement in funds|39,487|75,000|
|---|---|---|
|Total funds brought forward|265,148|-                      2|
||_______|______               ______|
|Total funds carried forward|304,635|75,000             265|
||=======|==|
||=======||
|**CYSTIC FIBROSIS CARE**|||
|BALANCE SHEET as at 30 November|2021||
||**2021**|**2020**|
|||**Notes**|
||**£**|**£**|
|**CURRENT ASSETS**|||
|Prepayments & Accrued Income|<br>647||
|8|3,367||
|Cash at bank and in hand|191,188||
||190,881||
|Investments|191,662||
||75,000||
||_______||
||_______||
|**Total Current Assets**|<br>**383**,497||
||269,248||
|Creditors:  Amounts falling due within one year|<br>(   3,861 )|(|
|9|4,100 )||
||_______||
||_______||
|**Net Current Assets**|<br>379,635||
||265,148||
||_______|_______|
|**Total Net Assets**|379,635||
||265,148||
||_______||
||_______||



## **FUNDS OF THE CHARITY** 



Unrestricted Funds 304,635 265,148 Restricted Funds 75,000 - ----------------------- **Total Funds** 379,635 265,148 ======= ======== 

The financial statements were approved by the Board of Trustees on                  2022 and signed on its behalf by: 

Mr C York (Chairman) Trustee 

## **CYSTIC FIBROSIS CARE** 

## **NOTES TO THE FINANCIAL STATEMENTS for the 12 months ended 30 November 2021** 

## **1             ACCOUNTING POLICIES** 

## **Basis of accounting** 

The financial statements have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant note(s) to the accounts. 

The financial statements have been prepared in accordance with the Statement of Recommended Practice: Accounting and Reporting by Charities (SORP) preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014, as updated by Update Bulletin 1, and with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and with the Charities Act 2011. 

The financial statements have been prepared to give a true and fair view of the state of affairs of the Charity as at the end of the financial period and of the net income or expenditure of the Charity for the financial period, and the accounting policies adopted are those outlined below. 

Cystic Fibrosis Care constitutes a public benefit entity as defined by FRS 102. 

The Trustees consider that there are no material uncertainties about the Charity's ability to continue as a going concern. 



## **Income** 

Income is recognised when the Charity has entitlement to the funds, any performance conditions attached to the items of income have been met, it is probable that income will be received and the amount can be measured reliably. 

The Charity ensures that restricted funds are applied in accordance with the wishes of the Donor. 

## **Offsetting** 

There has been no offsetting of assets and liabilities or income and expenditure, unless required or permitted by the FRS 102 SORP or FRS 102. 

## **Volunteer help** 

The value of any voluntary help received is not included in the accounts but is described in the Trustees’ annual report. 

## **Expenditure** 

Expenditure is recognised once there is a legal or constructive obligation committing the Charity to that expenditure, it is probable that settlement will be required and the amount of the obligation can be measured reliably.  Expenditure includes irrecoverable VAT. 

## **CYSTIC FIBROSIS CARE NOTES TO THE FINANCIAL STATEMENTS for the 12 months ended 30 November 2021 (continued)** 

## **Creditors** 

Creditors are recognised at their settlement amount after allowing for any trade discounts due. 

## **2     DONATIONS AND LEGACIES** 

||**2021**|**2020**|
|---|---|---|
||**£**|**£**|
|Donations and gifts - unrestricted|35,106|31,268|
|Donations and gifts – restricted|75,000|-|
||----------||
||106,106||
||=====|=====|
|**3     INCOME FROM OTHER TRADING**|||
|**ACTIVITIES**|||
||**2021**|**2020**|
||**£**|**£**|
|Cycling events|2,608|23,550|
|Running events|3,946|10,040|





|Wine Tasting Evening<br>|21,570|-|
|---|---|---|
|Christmas Events<br>|4,205|-|
|Other<br>|3,726|2,957|
||______|______|
||36,055|36,547|
||======|======|
|**4     OTHER FUNDRAISING COSTS**|||
||**2020**|**2020**|
||**£**|**£**|
|Wine Tasting Evening|4,953|-|
|Other|2,177|-|
||_______|_____|
||7,130|-|
||======|======|
|**CYSTIC FIBROSIS CARE**|||
|**NOTES TO THE FINANCIAL STATEMENTS for**|||
|**the 12 months ended 30 November 2021**|||
|**(continued)**|||
|**5      EXPENDITURE ON CHARITABLE**|||
|**ACTIVITIES**|||
||**2021**|**2020**|
||**£**|**£**|
|Grants paid|16,625|35,051|
|Activity Packs|498|143|
||______|_____|
||17,122|35,194|
||=====|=====|
|**6        OTHER COSTS**|||
||**2021**|**2020**|
||**£**|**£**|
|Wages and salaries|20,514|21,472|
|Advertising|1,632|2,111|
|Printing, postage and ofce|2,291|3,882|
|expenses|||
|Travel and subsistence|588|538|
|Insurance|772|541|
|Independent|150|150|
|examiner’s fee|||
|Accountancy fees|237|237|
||______|______|





|||26,184|28,931|
|---|---|---|---|
|||======|=====|
|**7**|**STAFF COSTS**|||
|||**2021**|**2020**|
|||**£**|**£**|
|Wages|and salaries|20,514|21,472|
|||=====|=====|



The average number of employees during the period was 1 (2020: 1).  No employee had emoluments in excess of £60,000. 

## **CYSTIC FIBROSIS CARE** 

## **NOTES TO THE FINANCIAL STATEMENTS for the 12 months ended 30 November 2021 (continued)** 

## **8      DEBTORS:  AMOUNTS FALLING DUE WITHIN ONE YEAR** 

||**2021**|**2020**|
|---|---|---|
||**£**|**£**|
|Prepayments and accrued income||3,367|
|647|||
||=====|=====|
|**9       CREDITORS:  AMOUNTS FALLING DUE WITHIN ONE YEAR**|||
||**2021**|**2020**|
||**£**|**£**|
|Trade creditors|-|-|
|Taxation and social security|602|856|
|Accruals and deferred income|3,259|3,244|
||______|_____|
||3,861|4,100|
|||=====|
|======|||



## **10      TRANSACTIONS WITH TRUSTEES AND RELATED PARTIES** 

The trustees received no remuneration for their services to the Charity during the year (2020 : nil)