SCCM ANNUAL REPORT Year ended August 2024 Sickle Cell Care Manchester 'Y(ILII- edion 1 Sickle Cell Manchester Operating Address Unit 70 Cariocca Business Park 2 Hellidon Close, Ardwick Manchester M12 4AH Bank HSBC Sort Code 40-31-30 Account Number 42005735 CONTENTS Our mi88ion- Our vision [page 31 Sectlon 1- An ov•rvl•w of Slckl• C•ll C•r• IAanchest•r About Sickle Cell [page 41 [page 61 page 6-n Ipage 8] [page9J About Us Over View of SCCM and our Communty Group Supporters Tru8tee$ Our Supporters Soctlon 2- Govomanc• Strudure &management Chairperson's report Our Ac4ivitie$ and ObJ'edive8 Sectlon 3- Our Flnanc Ipage 9-11] [page 12) [pag8 1>151 Accountant rrreasuref 8 report [page 16,Eleven es SKtlon 4- Our other Important Infomiatlon Acknowledgements How you Can help Looking to the future Contact u$ Ipage 20] [page 21-231 [page 24] [page 25] Annual Report August 2024 si¢￿8 Cell Care Manchester ection 1 Our Mission - Our Vision Our mi83ion We are a membership organisation with a network in our local community in Manchester. Members are people affected by Sickle Cell Disease (SCD), those with a family, personal or professional interest, and social or health care professionals. Our aim is to help improve the lives of people of all ethnicities who are living with SCD as much as possible. We provide support to anyone affected by Sickle Cell Disease, not just members. We seek to empower those living with SCD by ensuring they are informed about the condition and are aware of the support and services available to them. We do this by highlighting practical measures that can be taken as well as providing advocacy where needed. To achieve our purpose, we work alongside other charitable bodies and organisations in the UK sharing a common goal and collaboratively with the NHS. Our vision To ensure individuals living with sickle cell disease have equitable ac￿SS to medical services Raise awareness of the impact of SCD in the professions and within the community To ensure sustainability Annual Report August 2024 Stckle Cell Care Man¢hester Section 1 About Sickle Cell Disease Many people often ask what Sickle Cell Disease is. In many cases, individuals have the carrier status of the condition without knowing. What is Sickle Ce117 Sickle Cell Disease (also known as Sickle Cell Disorder or Sickle Cell Anaemia) is an inherited condition that affects the red blood cells. In people with Sickle Cell Disease, not all of their haemoglobin (a molecule in red blood ￿lIS that carries oxygen to other parts of the body) works properly. Some of the haemoglobin fonns long, rod-like structures that cause the red blood cells to be sickle-shaped and ridged. These cells can clog small blood vessels, preventing some organs or tissues from re￿Iving enough oxygen. When this happens, it can cause episodes of severe pain or damage to organs and tissues, and may lead to other serious medical problems. Sickle Cell Disease (SCD) mostly affects people of African and African Caribbean origin, but the condition has been known to affect individuals of any ethnicity. Most people living with SCD spend 900A_ 95 % of their time living in the community. However, Sickle Cell Disease can be a life-threatening condition, so that stays in hospital and the intervention of medical professionals are also important in an affected person's life. More emphasis on community management, care and support structures can greatly help those affected and those that care for them. Public awareness can possibly help to reduce the rising number of those being affected. Exceptionally well-structured community support as well advocacy can possibly reduce hospital admissions and patients, days spent in the hospital setting. Annual Report August 2024 Sickle Cell Care Manchester Section 1 SECTION ONE OVERVIEW OF SICKLE CELL CARE MANCHESTER Annual Report August 2024 Sickle Cell Care Manchester ection 2 Govemance SECTION 1 AN OVERVIEW OF Sickle Cell Care Manchester ABOUT US Sickle Cell Care Manchester is a charitable organisation run by people whose lives have been affected by Sickle Cell Disease for people living with Sickle Cell Disease and their families. Our Focus is to enable everyone affected by Sickle Cell Disease (SCD) to live life to their full potential and secure the care and support they need, until we ultimately find a cure. In the interim period until a cure is found our objective is to support those affected by this devastating condition via the measures below: Promote and support the physical, social and emotional wellbeing of sufferers of SCD. Offer support, education and practical advice. Provide resources to inform the general public in all areas relating to Sickle Cell Disease. Signpost those who are possibly at risk of carrying the condition to receive free screening and counselling. Annual Report August 2024 Sickle Cell Care Manchester Section 2 Govemance Establlshmentslcommunty Groups who have supported us In the Last few Year Arawak Walton IHIft) Housing Association Arnwaklwalton Trafford Hou8lng Trust ArawaklW8tton Housing. have continued to support SCCM for another year. Trafford Housing, have played a s￿nificant part in helping SCCM to build a better structure to the Chafity, they help with funding. They also featured us in their ne4¥sktters bringing awareness of the condttion to their readers and the wider communrty as their publications are distributed throughout the region. The support we have recived has been swnfftsnt and telling, we are very grateful as an organisation. . COMMUNITY FUND MANCHESTER CITY COUNCIL We received £10,000 Towards help wtth nter Packs for our seNice users R•achlng Communltles We received £191,141 funding to develop a blended approach to service delivery wrth in-person and online services. Annual Report August 2024 Sickle Ce51 Care Manchester Seclion 2 ovemance Trustees Trustee8 Name P￿Illon Dats$ arted bf not for whol• 2910712019 Dawne Josephine Bowe$ Rohan Steele Sheron PatncAa Burton - Francis Chair Person Treasurer Secretary 1510612015 2510812016 Annual Report August 2024 Sickle Cell Care Manchestef ection 2 Govem8nce OUR REGULAR FINANCIAL SUPPORTERS Mrs Barbara Allen Mr Vincent Green Miss C C Hemmings Mr Eric Scotland Mrs Veronica Manborde Miss Lorna J Roberts Miss Joy L M Stewart Miss L Burke Miss Yvonne Ward Miss Sonia Ward Miss Vanessa Bridge Mrs Nonna Walters Miss Engrid Smith Annual Report August 2024 Sickle Cell Care Manchester emance Mrs Carol Parkinson Mrs S Beckford P Sewell SECTION TWO GOVERNANCE Annual Report August 2020 Sickle Cell Care Manchesier 10 Section 2 overnance SECTION 2 GOVERNANCE Structure & Management Sickle Cell Care Manchestsr Sickle Cell Care Manchester is a registered charity, charity number 1162402 constituted date 2610612015 Trustees are appointed.... and meet only monthly basis apart from the months of November -march this considers the winter months where trustees maybe affected by the weather and other mitigating circumstances the Charity employs a CEO to help run a govern the day to day running of the charity. We depend on grants. charitable donations fundraising and the support of volunteers to be able to do our work. We have made great efforts to ensure we are in the position to grow in capacity and delivery. We have also made sure that our accounts have been ratified by an officially certified book keeperl accountant. We are supported partners of a heavily regulated Housing Association, Arawakl Walton Housing Association, which has over 30 years track record. Arawakl Walton specialise in meeting the housing needs of Black and Minority communities in cohesive, multi-cultural sustainable communities. They are also fimly established as a financially strong and managed organisation. Our governance committeeltrustees will look at SCCM'S strategic plans on a regular basis in order to.. st￿ngthen our presence in the community. Enable better management of the condition for those living with and affected by the Condition Strengthen our capacity to serve the community especially our service users 4. Seek new ways to partner with businesses and local community groups, statutory bodies and other voluntary organisations. 5. Develop ways in which to Influen￿ service provision for service users. 6. Develop new projects that encompass the wider community Ensure all our stakeholders are aware of the work that we undertake in the community. Educate the community about the condition. 9 Develop sustainability for the future of the organisation. Annual Report Sickle Cell Care Manchester (SCCM) Chair's Report- Sickle Cell Care Manchester This marks my sixth year serving as Chair of Sickle Cell ca￿ Manchester, and l am proud io reflecl on a year of continued ¥ruwth, progress, and impact. The charity has gained wider recognition for its work and is now an active participant on several statutory boards. We continue to collaborate with key partners. including, Manchesler Foundation Trust, Manchesl¢r Local Car¢ Organisation, and the North West Haemoglobinopaihy Coordinating Centre. in efforts to enhance services for individuals living wilh sickle cell across Great¢r Manchester. Key Highlights of the Year: Neiv Staff Appointments: We welcomed a new Outreach Support Worker to help expand our community engFagyem¢nt and supw)rt etTorts. We also app)inied a part-time Citizens Advice Bureau (CAB) s¢ssional work¢r to supwrt clients with benefits and apFeals. Office ExpAnyion: We successfully moved to a new olTice. reflecting the gromrth of our operation5 and providingy improved facilities for both staff and service users. Outreaeh and Engagement: Wc disiributed winter p8¢k4 to boih adults and Children. helping vulnerable lamilies through the coldcr months. Additionally, we secured dedicated office space at the Sickle Cell and Thalassa¢mia Centr¢ to conduct one-t(frone eon8ultstion se8Jiony on a sessional basis. Research and Strgtegic Devdopmenl: W¢ conducied f￿u5 groups and produced a joinl reyeareh report for i)oth NHS Enbyland and the Manchesl¢r Foundation Trust, aimed at ¢nhancing the underslandinby and provision of care for patients with sickle cell disease. Support Group Development: Work is underway io esthblish a sUPPOrt group Speeifically for carers. acknow'ledbFing) th¢ critical role they play in managing lonbp_lcm care. We ar¢ a150 collaborating with suptK)rt gyroups in Luton And Liverpool. helping them to strength¢n their organisalional structures. Advocacy and Represenlation: Wc wcre infvolN'ed in providtng an oral representation and a written presentAtion at the .4merican Soeiety of Haematology (ASII) Conferenee. the larbwest hemoglobinopathy conlerence in the world. clevaling the voice of our service users on a gvlobal slagJe. Appeals Succeys: Our adV{￿a¢Y ¢fTort5 continue to yi¢ld p)sitivc oulcomes, with a suceess rate of 0￿.er 9SO/o in client appeals tribuna15 for Personal Independence Paymenl {PlP). Community Education: We SUPFX)rted the development of a website on nutrition lailored to the African and Caribbean communities, promoting culturally appropriate dielary guidance through the African & Caribbean Food Whe¢l Initiative. Looking Ahead: As a small charity, we remain acutely aware of the limiiations wsed by finiie resources. Nonetheless, w¢ are deeply committed to deliveringy impactful. relevant, and holistic suppN)rt services. Partnership and collaboration will remain al the heart of our stralegy. as they enabl¢ us to stretch our capacity and amplify our impact. We are placing greater emphasis on strategic development and sustainable fundtng. With mor¢ organisations and individuals stepping fon*ard to support us through fundraising initiatives, we are exploring self- sustaining projects and building unrestrict¢d reserves to SUPFK)rt 0￿rational continuity. particularly staff salaries and essential overheads. The truslees will continue to awss risks and implement systems lo mitigate them. ¢nsuring the organisation's resili¢nce and future growth. As I stated in previous rewrts. il remains my aspirntion to help develop a ￿MIeS￿ integrated, and holislic support service for individuals and families aff¢cled by sickle cell. l am confident that with conlinued supw)rt and strategic focus. we are steadily moving toward that vision. Approved by the Trusteej and signed on their behalf Dawne Bowes {Chairperson) Sign4ture.... IE G2oL Date............ Section 2 Govemance OUR ACTIVITIES AND OBJECTIVES We have managed to recover to some extent the ground lost during the pandemic but have still not returned fully to the one to one face to face work. Activities AdvoGacy We continue to support clients with housing, mental health and applications for Personal Independence Payments (PIP). Much of the support in these areas continues to be provided by signposting and partnering with other services or writing correspondence to agencies on behalf of the client. Support was also given to clients attending PIP tribunals. These activities address our aims to advise and help those affected to access welfare benefits and ststutory support and organise events and social gatherings to bring awareness and to promote our services. The activities fulfil our objectives to support more service users affected by the condition, empowering them to better live and cope with the condition in the home and community settings to facilitate better SCD self-care management workshops to support and advocate for the service users in tenns of addressing issues surrounding welfare and benefits pertaining to DWP. Partnership W0￿1ng The CEO participated in the recruitment of stsff for the refurbished Sickle Cell and Thalassemia Centre in Manchester. Our CEO was involved in recruiting clients for the NASEM SCD Report which is a blueprint for acknowledging and addressing existing barriers and gaps in care for individuals living with SCD and offers priorities and recommendations about the programs, policies, and research efforts that are needed to ensure that individuals living with SCD can aC￿sS comprehensive, specialised care and treatrnent. He has also worked with phamiaceutical companies researching treatments. Our CEO was involved in work for a presentation to The American Society of Haematology Conferen￿. Education Our staff team delivered 4 presentations in different settings to raise awareness of sickle cell disease and to give professionals information so they can improve care and treatment of people with sid(le cell disease. Staff also participated in a range of health events to raise awareness. Annual Report Sickle Cell Care Manchester (SCCM) 14 on2 Governance Our CEO was involved in the initial preparats'on work of the Sickle Cell Education Series programme which is now being delivered online to a national and international audience of sickle cell sufferers, carers and health professionals. Annual Report Sickle Cdl Care Manchester (SCCM) 15 Section 3 Treasurerfs Re OUR FINANCES TREASURER'S REPORT Continuing to improve financial perfonnance is a key priority tor Sickle Care Manchester", we have faced significant challenges in the light of reduced government spending. Despite this tough climate with the serious financial challenges, we have successfully conts'nued to make steady financial progress. We will endeavour to be creative with whatever income, ensuring we apply it to the most needed areas May I take this opportunity to thank those who have endeavoured to support throughout the last year, and a vote of thanks and appreciation to those who will support us in the coming years. The trustees have complied with their duty under section 17 of the Charities Act 2011 to have due regard to public benefit as in accordance with guidance published by the Charity commission. This year great emphasis has been placed on finances for the Offi￿ a key base in which state holders, files can be kept safe and secure in line with data protection. Appointmenls are made and accommodated for service user to attend and facilitate the premises, support group meetings are also held March September. Annual Report Si¢￿e Cell Care Manchester (SCCM) 17 Trea SR SECTION THREE TREASURER'S REPORT Annual Report Sickle Cdl Care Manchester (SCCM) 16 Registered Charity Number: _ 1162402 SICKLE CELL CARE MANCHESTER (SCCM) TRUSTEES, REPORT AND FINANCIAL STATEMENTS FOR THE YEAR END 31 August 2024 Sickle Cdl Care Manchester (SCCM) Unit 70. Cariocca Business Park. Hellidon C105e, Ardwick, Manchesler, Ml 2 4AH SICKLE CELL CARE NIANCHESTER (SCCM) CO)TENTS FOR THE YEAR ENDED 31 August 2024 TRUSTEES, REPORT....... . INDEPENDENT EXAMTNER'S REPORT...... STATEMENT OF F￿ANCIAL AcfMTIES....... . BALANCE SHEET..................... NOTES TO THE FINANCIAL STATEMENrs........ SIClkLE LLLL CARE IANCHLSTER (SCCM) TRUSTEES, REPORT FOR THE YEAR EfiDED 31 August 2024 Trustees, responslbllltles In relatlon to the flnanclal statements The Ch￿ty Tn￿leeS are responsible for Preparing a Tn￿[ce$, annual rq)ort and financial statements in accordanc¢ with applicabl¢ law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accouniing Practice). Company law r¢quires the Charity TTU51ees to prepare financial stat¢ments for cach year which give a true and fair view of the slale of affairs of Ihe chariry and of the incoming7 resource.4 and application of resources, includlng the income and expendiiure. of the chariry for that period. In preparin¥ the financial statemenLs. the Ttustees are required ￿. Select suitable accountin8 principl&s and then apply them consistenily: Observe the meihod.s and principle.s in (he applicable Charilie.s SORP: Make judgmenis and estimales thilt ar¢ re•ible for safc¥u4trding (hu dssels ol. thc Ch￿lty and tsk.ing rcasonablc stcps for th¢ prev￿ltI￿n und detCLtion of fraud and other irregularitics. By order of the Board of Trustces Dawnc Bowcs Chairperson SICKLE CELL CARE.%I.4.NCHESTER {SCCM) INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 August 2024 Independent examlner's report to the trustees of Slckle Cell Care Manchester {SCCM) I report lo the charity truslecs on my examination of the accounts of Sickle Cell Care Manchester ISCCM) for the year ended 315t August 2024. Responsibilities and bas15 of report As th¢ chariry truslees of the Trust. you are r¢sponsiblc for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act,). I rcpurt in rcspcLI of my exiimindtion of thc Tn￿l'S *ic¢ounts cdrricd out under Scction 145 of thc Act, and in carying out my cxamination I have followcd all applicablc Dircciions givcn by the Charity Commission und¢r Scction 145(5){b) of thc Acl. Independent examiner's s18tement I have compleied my ¢xamination. I confimi that no malerial matters have come lo my attention in connection with the examination givRn8 me cause io believe that. in any material Kspect: accounting recor&s were not kept in respect of the Trusr ￿ required by Section 130 of the Act: or 2. th¢ accounts do not accord with those records. or 3. the accounts do not comply with the applicablc rcquircmcnis conccrning thc fom and contcnt of accounts set out in ihe Charities IAccounts and Reports) Regulations 2008 other than any r¢quirement that th¢ accounts give a true and lair vi¢w which is not a matter consid¢r¢d as part of an independcnl examination. I hiive no concerns and have come across no other matters in connection with the examtnaiion to which attention should be drawm in this report in order lo enable a proper understanding of thc accounts to be reached. G.J. Singh {FCCA) Accounting Solutions ChLutcr¢d Ccrtified ALcountants 10 Milton Road Stretford Manchester M32 ORD Date.. SICKLE CELL C.4RE M.4JCHESTER (sccTri ST.4TEMENT OF FINANCIAL .4CTIVITIES FOR THE YEAR ENDED 31 August 2024 Rttommended categories by actlvtty Unrestrlcted funds Restricted Income funds Total Funds 2024 Noles Income and endowments from: Charitable activfftti&s 12.913.00 73,42R.(K) 86,341.00 Total 12.913.00 73,428.00 86J41.00 Expendlture on: Charitdblc activities )3.(X) 97.543.00 98.446.00 Total 903.00 97,543.00 98,446.00 Net Incomel(expendlture) 12,010.00 (24.115.00) (12,105.00) Net movement In funds 12.010.00 {24,115.00) (12.105.iKI) Reconclllatlon of funds: Total fijnds brought forward 31293.00 53.037.(K) 84,330.00 Total funds carrled fonyard 43JO3.00 28,922.00 72,225.00 SICKLE CELL CARE MAINCHES'fER (SCCM) BALANCE SHEET FOR THE YEAR ENDED 31 All￿￿5¢ 2024 Restrlcted Income funds Total frunds 2024 Recommended Categorie5 by activity Unrestrl¢ted funds Notes Currenl assets Cash at bank and in hand 47.(X)3.00 27.072.00 74.075.00 Total current assets 47.003.IKI 27,072.00 74.075.00 Creditors.. amounts falling duc within onc yC¢ir 1.850.(KJ 1,850.00 Net current S5ets1(Ilabilltles) 47.1)03.00 25.222.00 72,225.00 Total net 4ssets or liabilities 47.IM13.00 25222.00 72,225.IMI Funds of the Charlty Unr¢striLicd timds 47.(KJ3.lJ) 47,(Ki3.(K) Rcstrictcd incomc funds 25.222.00 25,222.00 Endowment fwids Total funds 47,003.00 25,222.00 72,225.00 The financial ststemcnts were approvcd by the Board on 28 June 2025 and signed on its behalf Dawne Bowes Chairpcrson SICKLL CELL C.41lE.￿1.￿1cHES.[ER (SCCM) NOTES TO THE FINANCIAL ST.4TEMEThTS FOR THE YEAR ENDED 31 Augusi 2024 l Accounting Policies 1.1 Accountfing Pollcles The principal accounting policies adopted by the Charity. which is a public benefit entity. in the preparation of the accounts are as follows. 1.2 Basis of preparatfion These accounLs have been prepared in accordance with "Accounting and Reporting by Charities.. Sthiement of Recommended Practice applicable 10 chariiies preparing their accounLS in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 102)" (effective l January 2019) - (Charities SORP (FRS 102)). the Financial Reporting Slandard applicable in the UK l￿d Republic of Ir¢I￿d (FRS 102) dnd the Chiwities Act 2011. These accounts are prcscntcd in pounds slcrling and round￿ ts) th¢ nel￿est Jx)und. Income All income is recogni2ed in the Statement of Financial Aciivities once the charity has entitlemenl to the tunds. li is probable IhÉil the income will bc received. and the amount can be measured reli(Ibly. Expendlture Liiibililie5 are recognized as expenditure as soon as there is a legal or constructive obligaiion commitlinB the charity to thal expenditure. Ir is probdble that a trdnbfer of economic benefits will be rcquircd in scttlemenl and the amount uf the ubligiltion can b¢ mcasurcd Tcliably. Expcnditurc is aLLOUlltcd for un iin dLLfudils bdsis and bccn classificd undcr hcadings tha( ¢iggrcgatC illl L051 rclatcd to the category. lvhere cosLs cannot be directly atiributed to particular headinbls, tliey have been allocated to activilies on a b&sis consistent with the wse of resources. Taxatlon The charity is exempi from t￿ on its charitable activities. Fund accountlng Unrestncted funds can bc used in accordancc with the charitsblc objcctivcs at thc discrction of th¢ tNstecs. Restricted funds can only be used for particular restricied purwses within the objecls of the harity. Restn"¢lions arise when sp¢cifi¢d by the donor or wli¢n funds are raised for particular restricted purposes. SICKLL CLLL CAIiE I¥IANCHESTER (sccTri) YOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 August 2024 2 Income from Charitable Activities Unrestricted funds Restrl¢led Ineome funds Total funds 2024 Endowment fund5 Analysis Fund Rasing Doniltions 1,297.(M) 1.297.00 General Fundraising 8,440.00 8,4409.00 Just Givin8 1.252.lJ) 1,252.00 Rcfunds 50.00 50.00 Restricted Funding and Grdn 73.428.Crf) 73.428.00 Subscribed Donations 1,874.00 1.874.(K) 12,913.1x1 73.428.(K) 86,341.00 SICKLE CELL C.4RE M.4NCHESTER (SCCM) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 A￿￿$t 2024 3 Expenditure on Charitable Activities Total funds 2024 Analysis Wages and salaries Othcr Siaff-Rclated Expenses Advertising and marketing Rent and Rates Subscriptions Websiie Cost Community Engagement Projccts Vouchers Community Engagcmcnt Compuier Expenses Travel Costs Bank Charges Just Giving Repairs and RcnLwals Printing, Postagc & Stationary Telq)hone Costs Sundry Costs Support Cosis 49,894.00 143.00 9,368.00 6.022.00 220.00 3.924.00 19,231.00 2.0￿.00 2,105.00 i.o(K).00 113.00 245.00 1,775.00 25.00 265.00 266.00 1,850.00 TOTAL EXPEIYDITURE 98,446.00 SICKLE CELL CARE I¥I.4NCHF..STF.R NOTES TO THE F1Tr4ANCIAL STATEMENTS FOR THE YEAR ENDED 31 August 2024 4 Support Costs Total funds 2024 Analysls Govern&nee Cosls Accountant's fees 1.850.00 1,850.00 5 Cash at bank and in hand Total funds 2024 Cash al bank and on hand 74,075.00 74,074.00 6 Creditors: Amounts falling due within one year Total funds 2024 Other Lrcditor6 1,850.00 1,850.00 10 SICliLE CELL C.4RE NI.4NCHESTER NOTES TO THE FTNANCJAL STATEMENTS FOR THE YEAR ENDED 31 August 2024 7 Charity funds 7.1 Detalls of material funds held and movements during the CURRENT reportfng period Fund bilances brought forward Gains And losses Fund balances carrled forward Incorne Eipendlture Trgnsfers Fund names UDrestrlc¢ed funds Unrutrlded General Funds 31.293.00 12,913.(K) (903.00) 43.303.OU Restrleted Ineomt funds Restrlcted Funding and Grgnts 53.037.(X) 73.428.(Ki (97.543.00) 28,922.00 TotAI 84,330.(MJ 86.341.(K) (911,446.00) 72.225.00 7.2 Transfers between funds Thls Year Amounl Between unrestricted and r¢stri¢i¢d funds B¢tween endowment and restricted fimds Between endowment and unrestricted fi￿d5 Section 4 ur other Im rtant Infom)ation Section Four Our other Important Information Annual Report Sickle Cell Care Manchester (SCCM) 10 Section 4 SECTION 4 ur other Im ortant Information OUR OTHER IMPORTANT INFORMATION ACKNOWLEDGMENTS & THANK YOU We would like to thank all those who have contributed in various different capacities. Without your help we would not be where we are today; your support is deeply appreciated and we have immense gratitude for all your endeavours, HOW YOU CAN HELP Did you know7 Sickl• Cell Is th• most commonty Inh•rlt•d In tho U.K and the world we fully embrace what every help you can offer. The task ahead will have its challenges; however, we believe that the need is great and our communities are the transport to success. By that we mean with 20 Annual Report Sickle Cell Care Manchester (SCCM) 8Ction 4 Our rtant Infomation your help in time, talents or finances will have an immense impact in being the vehicle to cary us through, regular support of £5 or £10 a month will go a great way in helping us to realise the vision, which will help to reduce and alleviate some of the challenges that those who are affected by the condition experience on a daily basis. Your help will also empower us to empower and educate others, advocate on behalf of those affected by the condition and also bring awareness to those who are not aware of the condition and the ramifications impacting on those living with the disease. People are dying from this condition all too often, the condition is often underfunded, scarcely recognised, trivialised in its severity and very poorly understood. Your help can be the key to change!!! Become a member Why not consider offering your skills, creativity and reSoUr￿ful input to help to develop self-sustsining strategies for the charity. Maybe you have a pioneering idea that you wish to share that will benefit this organisation impacting the wider community in general, get on board. Volunteer your time Volunteers have contributed to the delivery of our service ranging from project work, administration, health promotion activities and social events. Volunteering continues to demonstrate reciprocal benefits not only do volunteers contribute to the work that Sickle Cell Care Manchester carries out, they in return learn new skills, exposed themselves to ex￿lIent opportunities for personal and professional development, sharing, networking and developing personal relationships to those in which they help. You will be trained, supported and guided in this role of compassion and empathy, the time you spend can really help those who are in isolation and feel devoid of meaningful interaction. Annual Report Sickle Cell Care Manchester {SCCM) 21 Section 4 Our other Im rtant Infomation Contact us on 0161696 5616 ry4vw.sickle￿IECaremanChestef.cO.uk admin sicklecellcaremanchester.co. uk Donate A financial donation made on a one-off occasion or on a monthly basis of £5, 10, 15 or £20 pound monthly towards a well deserving cause, your contribution will make an immense difference toward a life that has been plagued with illness, struggles and challenges. You will also support the work that is been carried out in the local community to profile the condition bringing awareness and helping to bring a level of sustainability to continue the much-needed work. You can donate by direct debit Bank.. HBSC Account Holder: Sickle Cell Care Manchestsr Account Number: 42005735 Sort Code: 40-31-30 Leave a bequest You may wish to consider leaving a legacy in tenns of a will that can be used to help set up a welfare fund. you could bequeath a level of funds towards the cause. Annual Report Sickle Cell Care Manchester {SCCM) 22 Section 4 Our her Im rtant Infomialion Support an event or fundrnising activity You can join in a fundraising activity such as a sponsored ride, sponsored run, sponsored bake a tournament, sports activity or any creative aspect that furnishes your mind. Become a corporate pather Why not choose us to be the charity that you support for a year, your logo will be on our website and you will be advertised in all our public events for that year. Annual Report SiC￿e Cell Care Manchester (SCCM) 23 on4 ur other Im rtant Infomiation LOOKING TO THE FUTURE We are also looking at further improving social media presen￿, website enhan￿Ment, welfare support, mentoring, cognitive behaviour therapies, chronic fatigue management these are all on the agenda. Transitional development strategies for those leaving paediatric care moving towards adult care this is a very crucial time in the life of someone living with SCD. Better management in the area of support in the educational system and the work environment, also better strategies and support for coping and living within the community with the aim to reduce regular repeat hospital admissions. We are developing support for those who are caring for someone living with SCD There is an urgent need to galvanise support from our community for people to become active blood donors and for them to register on blood donation register we will be playing our part in this area. A key focus on awarenessleducation of the condition and signposting individuals towards free screening will remain one of our key priorities, Annual Report Sickle Cell Care Manchester (SCCM) 24 CONTACT US SCCM .4ii.kli. l ¢.11 (':IiMb CONTACT US Unit 70 C8ri0cca BusinwJs Park Ardwick Manchester M124AH 0161696 5616 WbVW.sicklecellcaremanchester.co.uk admin si¢klecelkaremanchester.co.uk Fa￿ book.. htt s.'IAwAv.facebook.comlsickl&cdkcare-manchester-17946141740834271 25