## **ANNUAL REPORT** Year ended A 2021 ## **Sickle Cell Care Manchester** “Your Cares Are Our Cares” Annual Report [insert year] 2 Section 1 ## **Sickle Cell Manchester** **Operating Address City View House 5 Union Ardwick Manchester M12 4JD** **Bank HSBC Sort Code 40-31-30 Account Number 42005735** ## **CONTENTS** Our mission -- Our vision ||| |---|---| |Our mission -- Our vision|[page 3]| |**Section 1 – An overview of Sickle Cell Care Manchester**|| |About Sickle Cell|[page 4]| |About Us|[page 5]| |Yearly event community fund raiser|[page 6]| |Trustees|
[page 7]| |Our Supporters|[page8]| |**Section 2 – Governance**|| |Structure &management|[page 9]| |Chairperson’s report|[page 10-12)| |Our Activities and Objectives|[page 13-14]| |**Section 3 – Our Finances**|| |Treasurer’s report|[page 15-16]| |**Section 4 – Our other important information**|| |Acknowledgements|[page 17-18]| |How you can help|[page 19-21]| |Looking to the future|[page 22-23]| |Contact us|[page 24]| _____________________________________________________________________________________ Annual Report August 2020 Sickle Cell Care Manchester 3 Section 1 ## **Our Mission – Our Vision** ## **Our mission** We are a membership organisation with a network in our local community in Manchester. Members are people affected by Sickle Cell Disease (SCD), those with a family, personal or professional interest, and social or health care professionals. Our aim is to help improve the lives of people of all ethnicities who are living with SCD as much as possible. We provide support to anyone affected by Sickle Cell Disease, not just members. We seek to empower those living with SCD by ensuring they are informed about the condition and are aware of the support and services available to them. We do this by highlighting practical measures that can be taken as well as providing advocacy where needed. To achieve our purpose, we work alongside other charitable bodies and organisations in the UK sharing a common goal and collaboratively with the NHS. ## **Our vision** - To ensure individuals living with sickle cell disease have equitable access to medical services - Raise awareness of the impact of SCD in the professions and within the community - To ensure sustainability _____________________________________________________________________________________ Annual Report August 2020 Sickle Cell Care Manchester 4 Section 1 Street, Ardwick Green, Manchester, M12 4JD ## **About Sickle Cell Disease** Many people often ask what Sickle Cell Disease is. In many cases, individuals have the carrier status of the condition without knowing. ## **What is Sickle Cell?** Sickle Cell Disease (also known as Sickle Cell Disorder or Sickle Cell Anaemia) is an inherited condition that affects the red blood cells. In people with Sickle Cell Disease, not all of their haemoglobin (a molecule in red blood cells that carries oxygen to other parts of the body) works properly. Some of the haemoglobin forms long, rod-like structures that cause the red blood cells to be sickle-shaped and ridged. These cells can clog small blood vessels, preventing some organs or tissues from receiving enough oxygen. When this happens, it can cause episodes of severe pain or damage to organs and tissues, and may lead to other serious medical problems **.** Sickle Cell Disease (SCD) mostly affects people of African and African Caribbean origin, but the condition has been known to affect individuals of any ethnicity. Most people living with SCD spend 90%- 95% of their time living in the community. However, Sickle Cell Disease can be a life-threatening condition, so that stays in hospital and the intervention of medical professionals are also important in an affected person’s life. More emphasis on community management, care and support structures can greatly help those affected and those that care for them. Public awareness can possibly help to reduce the rising number of those being affected. Exceptionally well-structured community support as well advocacy can possibly reduce hospital admissions and patients’ days spent in the hospital setting. Annual Report August 2020 Sickle Cell Care Manchester 5 Section 1 ## **SECTION ONE** ## **AN OVERVIEW OF SICKLE CELL CARE MANCHESTER** _____________________________________________________________________________________ Annual Report August 2020 Sickle Cell Care Manchester 6 Section 2 Governance **SECTION 1** **AN OVERVIEW OF Sickle Cell Care Manchester** ## **ABOUT US** Sickle Cell Care Manchester is a charitable organisation run by people whose lives have been affected by Sickle Cell Disease for people living with Sickle Cell Disease and their families. Our Focus is to enable everyone affected by Sickle Cell Disease (SCD) to live life to their full potential and secure the care and support they need, until we ultimately find a cure. In the interim period until a cure is found our objective is to support those affected by this devastating condition via the measures below: - Promote and support the physical, social and emotional wellbeing of sufferers of SCD. - Offer support, education and practical advice. - Provide resources to inform the general public in all areas relating to Sickle Cell Disease. - ~~Also, to~~ Signpost those who are possibly at risk of carrying the condition to receive free screening and counselling. _____________________________________________________________________________________ Annual Report August 2020 Sickle Cell Care Manchester 7 Section 2 Governance ## **Establishments/Community Groups who have supported us in the Last few Years** ## **Trafford Housing Trust** **Arawak/Walton ASDA** Arawak/Walton Housing, have Trafford Housing, have played a Sickle Cell Care continued to support SCCM for another significant part in helping SCCM to Manchester have been year. Arawak has provided a range of build a better structure to the chosen local by ASDA support for instance: financial, training in Charity, they help with funding also Eastland for its Green certain aspects of policy writing and they have provided a mentor who Token Scheme. We have support with our awareness raising has played an import part in our also been afforded the events. progress. opportunity to bag pack in the store. They also featured us in their news As a well-established organisation letters bringing awareness of the they have tapped us into networks SCD also use the condition to their readers and the wider that have the potential to help us to community room to hold community as their publications are foster possible partnerships and distributed throughout the region. some support group collaborative joint ventures. meetings/ We aim to further strengthen our relationship as time progresses in order to be more effective, efficient and impactful benefitting our service user. We have received a strong support from the Chair, CEO and staff members alike, this has enabled SCCM to better develop the charity structure and impact which in turn will only benefit the service user. The support we have received has been significant and telling, we are very grateful as an organisation. **----- Start of picture text -----**
Members are overwhelmingly people affected by Sickle Cell Disease those with a
family, personal or professional interest, and social or health care professionals. We
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Annual Report August 2020 Sickle Cell Care Manchester 8 Section 2 Governance ## **Trustees** ## **Trustees** **----- Start of picture text -----**
Dates acted
Name Position
(if not for whole year)
Dawne Josephine Bowes Chair Person 29/07/2019
Diana Matthews Treasurer 15/06/2015
Rohan Steele Secretary 15/06/2015
Sheron Patricia Burton - Francis Trustee 25/08/2016
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_____________________________________________________________________________________ Annual Report August 2020 Sickle Cell Care Manchester 9 Section 2 Governance ## **SECTION TWO** ## **GOVERNANCE** Annual Report August 2020 Sickle Cell Care Manchester 10 Section 2 Governance **SECTION 2** **GOVERNANCE** ## **Structure & Management** ## **Sickle Cell Care Manchester** . Sickle Cell Care Manchester is a registered charity, charity number 1162402 constituted date 26/06/2015 Trustees are appointed.... and meet only monthly basis apart from the months of November -March this considers the winter months where trustees maybe affected by the weather and other mitigating circumstances the Charity employs a CEO to help run a govern the day to day running of the charity. We depend on grants, charitable donations fundraising and the support of volunteers to be able to do our work. We have made great efforts to ensure we are in the position to grow in capacity and delivery. We have also made sure that our accounts have been ratified by an officially certified book keeper/ accountant. We are supported partners of a heavily regulated Housing Association, Arawak/ Walton Housing Association, which has over 30 years track record. Arawak/ Walton specialise in meeting the housing needs of Black and Minority communities in cohesive, multi-cultural sustainable communities. They are also firmly established as a financially strong and well managed organisation. **https://preview.tinyurl.com/yy2mxg5b** We have also benefitted from a good working relationship with Trafford Housing Trust which have provided not only financial support but also a mentor all of which has proved invaluable. This has also come with network meetings and insight into possible training in order to be able to scale up our operation both internally and on the ground. This support ranges from financial to training in areas such as health and safety, data management, customer service, DBS checks to name a few areas. . _____________________________________________________________________________________ Annual Report Sickle Cell Care Manchester (SCCM) 11 Section 2 Governance Our governance committee/trustees will look at SCCM’s strategic plans on a regular basis in order to: 1. Strengthen our presence in the community. 2. Enable better management of the condition for those living with and affected by the Condition 3. Strengthen our capacity to serve the community especially our service users 4. Seek new ways to partnership with businesses and local community groups, statutory bodies and other voluntary organisations. 5. Develop ways in which to influence service provision for service users. 6. Develop new projects that encompass the wider community 7. Ensure all our stakeholders are aware of the work that we undertake in the community. 8. Educate the community about the condition. - 9 Develop sustainability for the future of the organisation. _____________________________________________________________________________________ Annual Report Sickle Cell Care Manchester (SCCM) 12 Section 2 Governance _____________________________________________________________________________________ Annual Report Sickle Cell Care Manchester (SCCM) 13 Section 2 Governance ## **OUR ACTIVITIES AND OBJECTIVES** ## **Activities:** In planning our activities in the year our impetus and the prime objective was to serve all service users, promoting awareness and advocating on behalf of those who are affected by this devastating and often underestimated disease. In parallel with this focus, we ensured we were mindful of the Charities Commission guidelines on public benefit in all structures that we undertook. Primarily our activities have significantly enlightened and empowered those affected by the condition within the region in which we serve. This has all been done as best as possible within SCCM current stretched capacity and resources presently to hand. - To advise and help those affected to access welfare benefits and statutory support - To promote awareness of the condition via talks workshops and outreach in the education system via radio and social media presentations in the establishment and the general public. - To organise events and social gatherings to bring awareness and to promote our services - To lobby decision-makers politicians NHS trusts and the community to support the charity. - To facilitate monthly support groups in order to strengthen service users’ support and to reduce isolation. - To provide a drop-in centre which is accessed 3 days a week providing information and advice? - Built a structured website encompassing the contact page 24-hour access to information about the condition and relevant information. - Supported and advocated for the service users in terms of addressing issues surrounding welfare and benefits pertaining to DWP. Annual Report Sickle Cell Care Manchester (SCCM) 14 Section 2 Governance ## **Objectives** : - Strengthen our capacity of service within the community via better level of funding more volunteers and increase our support mechanisms for the service user. - Structure and promote campaigns via social media and community awareness forums to heighten the awareness of the condition in the community. - Partnership with universities and research establishments to look at new and complimentary ways to treat, reduce or alleviate issues surrounding sickle cell disease. - Build up momentum in terms of promotion of the condition and signposting individuals to access free screening at the relevant statutory bodies. - Continue to develop awareness of the condition in the education system employment structures and community in general. - Develop a strategy and support mechanism for carers of those ~~supporting~~ individuals living with the condition. - Facilitate in some part, the four yearly events which fundraise and also profile the service that SCCM provides. - Recruit, train and build upon our volunteer database. - Support more service users affected by the condition, empowering them to better live and cope with the condition in the home and community settings. - Develop case study videos, for our website and social media portal. - Facilitate better SCD self-care management workshops - Look at end of life care and planning and Will workshop - Address a campaign drive to look at blood donation Annual Report Sickle Cell Care Manchester (SCCM) 15 Section 3 Treasurer’s Report ## **SECTION THREE** ## **TREASURER’S REPORT** Annual Report Sickle Cell Care Manchester (SCCM) 16 Section 3 Treasurer’s Report **OUR FINANCES** ## **TREASURER’S REPORT** Continuing to improve financial performance is a key priority tor Sickle Care Manchester; we have faced significant challenges in the light of reduced government spending. Despite this tough climate with the serious financial challenges, we have successfully continued to make steady financial progress. We will endeavour to be creative with whatever income, ensuring we apply it to the most needed areas May I take this opportunity to thank those who have endeavoured to support throughout the last year, and a vote of thanks and appreciation to those who will support us in the coming years. The trustees have complied with their duty under section 17 of the Charities Act 2011 to have due regard to public benefit as in accordance with guidance published by the Charity commission. This year great emphasis has been placed on finances for the office a key base in which state holders’ files can be kept safe and secure in line with data protection. Appointments are made and accommodated for service user to attend and facilitate the premises, support group meetings are also held March – September. Annual Report Sickle Cell Care Manchester (SCCM) 17 Section 3 Treasurer’s Report Annual Report Sickle Cell Care Manchester (SCCM) 18 Our other Important Information Section 4 ## **Section Four** ## **Our other Important Information** Annual Report Sickle Cell Care Manchester (SCCM) 19 Our other Important Information **OUR OTHER IMPORTANT INFORMATION** Section 4 **SECTION 4** ## **ACKNOWLEDGMENTS & THANK YOU** We would like to thank all those who have contributed in various different capacities. Without your help we would not be where we are today; your support is deeply appreciated and we have immense gratitude for all your endeavours. ## **Grants and funding** Buzz Mental Health Well-being ASDA/George Super Store Eastland’s M/cr ## **Corporate & Community partners** Arawak/Walton Housing Community Partner Support Moss Care St Vincent’s Housing Trafford Housing Trust Annual Report Sickle Cell Care Manchester (SCCM) 20 Our other Important Information Section 4 ## **HOW YOU CAN HELP** **Did you know? Sickle Cell is the most commonly inherited in the U.K and the world we fully embrace what every help you can offer.** The task ahead will have its challenges; however, we believe that the need is great and our communities are the transport to success. By that we mean with your help in time, talents or finances will have an immense impact in being the vehicle to carry us through, regular support of £5 or £10 a month will go a great way in helping us to realise the vision, which will help to reduce and alleviate some of the challenges that those who are affected by the condition experience on a daily basis. Your help will also empower us to empower and educate others, advocate on behalf of those affected by the condition and also bring awareness to those who are not aware of the condition and the ramifications impacting on those living with the disease. People are dying from this condition all too often, the condition is often underfunded, scarcely recognised, trivialised in its severity and very poorly understood. Your help can be the key to change!!! Become a member Why not consider offering your skills, creativity and resourceful input to help to develop self-sustaining strategies for the charity. Maybe you have a pioneering idea that you wish to share that will benefit this organisation impacting the wider community in general, get on board. ## Volunteer your time Volunteers have contributed to the delivery of our service ranging from project work, administration, health promotion activities and social events. Volunteering continues to demonstrate reciprocal benefits not only do volunteers contribute to the work that Sickle Cell Care Manchester carries out, they in return _____________________________________________________________________________________ Annual Report Sickle Cell Care Manchester (SCCM) 21 Our other Important Information Section 4 learn new skills, exposed themselves to excellent opportunities for personal and professional development, sharing, networking and developing personal relationships to those in which they help. You will be trained, supported and guided in this role of compassion and empathy, the time you spend can really help those who are in isolation and feel devoid of meaningful interaction. Contact us on 0161 277 7648 www.sicklecellcaremanchester.co.uk admin@sicklecellcaremanchester.co.uk ## **Donate** A financial donation made on a one-off occasion or on a monthly basis of £5, 10, 15 or £20 pound monthly towards a well deserving cause, your contribution will make an immense difference toward a life that has been plagued with illness, struggles and challenges. You will also support the work that is been carried out in the local community to profile the condition bringing awareness and helping to bring a level of sustainability to continue the much-needed work. You can donate by direct debit Bank: HBSC Account Holder: Sickle Cell Care Manchester Account Number: 42005735 Sort Code: 40-31-30 Annual Report Sickle Cell Care Manchester (SCCM) 22 Our other Important Information Section 4 ## **Leave a bequest** You may wish to consider leaving a legacy in terms of a will that can be used to help set up a welfare fund; you could bequeath a level of funds towards the cause. ## **Support an event or fundraising activity** You can join in a fundraising activity such as a sponsored ride, sponsored run, sponsored bake a tournament, sports activity or any creative aspect that furnishes your mind. ## **Become a corporate partner** Why not choose us to be the charity that you support for a year, your logo will be on our website and you will be advertised in all our public events for that year. _____________________________________________________________________________________ Annual Report Sickle Cell Care Manchester (SCCM) 23 Our other Important Information Section 4 ## **LOOKING TO THE FUTURE** We are also looking at further improving social media presence, website enhancement, welfare support, mentoring, cognitive behaviour therapies, chronic fatigue management these are all on the agenda. Transitional development strategies for those leaving paediatric care moving towards adult care this is a very crucial time in the life of someone living with SCD. Better management in the area of support in the educational system and the work environment, also better strategies and support for coping and living within the community with the aim to reduce regular repeat hospital admissions. We are developing support for those who are caring for someone living with SCD There is an urgent need to galvanise support from our community for people to become active blood donors and for them to register on blood donation register we will be playing our part in this area. A key focus on awareness/education of the condition and signposting individuals towards free screening will remain one of our key priorities. Annual Report Sickle Cell Care Manchester (SCCM) 24 ## **CONTACT US** “Your Cares Are Our Cares” ## **CONTACT US** City View House 5 Union Street Ardwick Manchester M12 4JD 0161 227 7648 [Fax] 01618269201 www.sicklecellcaremanchester.co.uk admin@sicklecellcaremanchester.co.uk Face book: https://www.facebook.com/sickle-cell-care-manchester-1794614174083427/ 24