Aofac Foundation
Keeping Anthonia’s dreams alive by helping others
Trustees’ Annual Report 2023/2024
Anthonia Oyindamola Folakemi Afelumo Coshare (AOFAC) Foundation Annual Return 01/9/23-31/8/24 Charity Registration Number:1162155
Anthonia Oyindamola Folakemi Afelumo Coshare (AOFAC) Foundation was set up in the name of young lady who died of a rare blood disease called Thrombotic Thrombocytopenic Purpura(TTP)
Our Mission:
We are a patient advocacy group with the following goals:
· Supporting patients, families and friends that are affected by TTP.
· Aiming to raise funds to support vital research into TTP with interest in Sickle Cell Disease and Lupus SLE.
· Promoting greater awareness of the disease in both the medical world and in the public arena
· Supporting and working with medical professionals and National organisations in the UK.
· Preserving the memory of Anthonia through education.
Our Vision:
A world where every person affected by TTP receives timely and accurate diagnoses, compassionate care, and improved quality of life.
We envision a society where TTP is widely understood by both medical practitioners and the public, leading to better treatment options and enhanced support for patients, families/caregivers and friends. Through our efforts, we aim to honour the memory of Anthonia by making a lasting impact on TTP awareness, research, and patient well-being with an Interest in Sickle Cell Disease and Lupus SLE
Street Leafleting: From onset of the charity and in the year ended 2023/2024, we had varieties of TTP awareness events across the country most especially in Essex and in London. We also TTP education seminar virtually and in person
Annual TTP Awareness and Fund Raising Walk:
3 Medlar Road, Thurrock Park, Grays, Essex. RM17 6TU. Telephone:01375 393440 Mob:07404553898. Charity Registered in England and Wales - Registration Number: 1162155
Aofac Foundation
Keeping Anthonia’s dreams alive by helping others
Our Yearly TTP awareness and fund-raising walk is every first Saturday of September, this is open to all; We invite all and community leaders such as the local mayor, councillors and local press to join us for a 5k walk/ Run/Wheel. In 2023/2024 we have two starting points in the UK, one in Grays, Thurrock, Essex and another venue in London. This is to bring awareness to TTP, and to raise funds for the charity
Annual Praise and Prayer Concert
Our Yearly TTP Awareness Concert is a Sunday afternoon event on every first Sunday of September normally done on the High Street with permission from local council and the police, whereby we invite all local residence, Public Health, Faith Leaders, Local MP in the community and community leaders such as the local mayor, councillors and the local press: for music concerts, prayers and inform congregations of TTP by medical professionals including other medical rare blood conditions such as Sickle Cell and other auto-immune conditions such as Lupus SLE - However, we were unable to do this in 2023/2024 due to financial constraint.
Annual Charity Ball and TTP Awareness Evening.
This is one of our biggest annual events that we do on every first Saturday of December.
This is open to everyone across UK and around the world; this is a ticket sales event where we target at least 250 people to attend for a broader awareness of TTP. We supplement for some people that wants to come but cannot afford to pay for tickets Consultant Haematologists are invited to talk on TTP on up-to-date treatments that are available; TTP patient case stories are also presented; We also invites TTP survivors, their family/carer to tell their own stories and experiences.
Grants and Finance
In 2023/24, Our income came from, grants, standing order and direct donations from the public; Standing order and donations =(£650) Ticket sales and donation during our charity ball and other events = (£10286), grant from Sanofi Genzyme (£0), Funding from community Lottery Fund - Lottery grant (£0) and direct donations (£3677) Totalled £14613
Board of Trustees
-
Folake B Afelumo- Founder and Chair of Trustees From August 2013
-
Adeola Fatayo From August 2013
-
Oluwafemi D Afelumo From August 2013
-
Mr Tony Fish From January 2017
Contact Details
AOFAC Foundation 3 Medlar Road Thurrock Park Grays, Essex. RM17 6TU Website: www.aofacfoundation.org Charity Registration Number: 1162155
3 Medlar Road, Thurrock Park, Grays, Essex. RM17 6TU. Telephone:01375 393440 Mob:07404553898. Charity Registered in England and Wales - Registration Number: 1162155
Aofac Foundation
Keeping Anthonia’s dreams alive by helping others
Banker
Barclays Bank Grays High Street Grays, Thurrock. Essex. RM17 6NB England
3 Medlar Road, Thurrock Park, Grays, Essex. RM17 6TU. Telephone:01375 393440 Mob:07404553898. Charity Registered in England and Wales - Registration Number: 1162155
Aofac Foundation Keeping Anthonio's dretsms rJlive by helping others 3 Medlar Road, Thurrock Park, Grays, Essex. RM17 6TU. Telephone.'01375 393440 Mob..07404553898. Charity Registered In England and Wale5 - Registration Number.. 1162155
Anthonia Oyindamola Folakemi Afelumo Coshare(AOFAC) Annual Return 01/9/23-31/8/24 Charity Registration Number:1162155
| Income and Expenditure Summary | |
|---|---|
| INCOME | |
| Capital/Grant | 0 |
| Direct Donation(One-off)incuding justgiving | 248 |
| Capital/Expected Grant | 0 |
| StandingOrder donations | 650 |
| Other(personal contribution/Loan-F Afelumo | 2,869 |
| Other(personal contribution/Loan-Carol) | 440 |
| donations on Merchandise | 120 |
| TTP Event Ticket sales | 10,286 |
| TOTAL £ | 14,613 |
| EXPENDITURE | |
| TTP Event Awareness Expenses | 11,691 |
| Other(Loan repayment -F Afelumo) | 1,000 |
| Other(Loan repayment -Daniella) | 0 |
| Volunteers Expenses | 279 |
| Grant Educational Award-Palmers college | 100 |
| Printing, post & stationery | 211 |
| Advertising&promotion & website | 0 |
| Bank charges | 115 |
| Professional fees,Insurance & Legal Fees | 0 |
| Artwork Design(T-Shirt) | 0 |
| Bank/HP | 0 |
| Equipment -memorycard/data storage | 0 |
| Insurance | 424 |
| Equipment -memorycard/data storage | 0 |
| food stuffs | 0 |
| Capital Expenditure | 0 |
| Owner's wages/salary | 0 |
| Miscelleneous/justgivingcharges/barclays cha | 0 |
| Loan repayments(refund to D Afelumo) | 0 |
| supporters refund | 0 |
|---|---|
| Rent contribution/expenses | 216 |
| DBS/CRB CHECKS | 0 |
| Rent contribution/expenses-justgivingsubscip | 25 |
| Other/companyhouse/webhost/maintenance | / 578 |
| TOTAL £ | 14,638 |
| -25 357 332.0 14,613 |
|
| summary-Income less expenditure | |
| Openingbank balance- 01/09/2023 | |
| Closingbank balance - 30/9/2024 | |
| TOTAL 2023/2024 |