ItEC.I%-I'LRkD CH,IRIII' NLIIIIER.. 1161897 Report ofthe Truslees Lnaudited Financi•l Silemtnts for the I'er Ended 31 Dectmber 2023 for Coloboma Supporti 'ard GmIan Ad]I Seryices Lid 4 Cedar Park. Fenmloiiii Indu%irial F_%iaLe BH?1 7.%F
11..KCS Illitrophihalmi,-.IDophth81rnia and (.-ololM)m# %upporti C'ontents of Ihe i418ll¢ig151ttments ror the I'L'ar Fnded 31 D¢irmbcr 2023 P4g¢ Reporl ofthe Trustet5 Indtpethdcttt Exinikncr's Rtport .%lwlemcnt of Financial Aclii'ilic5 13 BAlnce Sheet 14 'oles to Ihe Tr'in*n¢ial.Statemenis 15 10 ?7
I..IC.-.4 IllirriJphlb1rn1I. tlnuphthalrn1
Coluboma Support)
Rl'purl of ihc 'l'ruslcc5
ror ihe l'ear End.11 Decvmber 7023
Tb¢ Iru.iiees preseni Iheir rEPOn wilh the financial sioiemenis ofthe Lhafii) forihe yeJreTrded 31 Deiejnbei ?O?.l. The Iiusiee
liai L. ddopiLcI Illi P¥OI-i4itsJis 01'.4ciounring al R¢Fx)ning bv C-haiiii¢%.- Siaienieni of Rm?li¢lj PrdCIILL api>liciiblL 10
LlidfiiiiN prei?Jriii¥ Ih¢ir aciounis in arcorJdiii¢ itriih the FI]ial ReTX)tlin¥ SiaTKknrd dppliLablL' Iii ilit LK and RLiJubliL Ill.
IT¢lJiid IFRS Ill'i ieffeLtiie l Jaiiudrv ?0191
Wrl¥ume Iu LIIACS. 20?3 Amllal Trusted Rep)rt.
May I 114 k¢ Ihi¥ opw)riunity. behJlf nf lh¢ Board of TTuslee%. io ihdnk the MACS leam fur ihehr hard i¥ork Ihrtsub1hout ?U?.i.
and ilUI _4uppurleT% and 51dkL'hvldL'rs for Lli¢ dediLdlithi kfml eenL'fostiv Ihai lab]eS i¢} dLli&¢r <)Ul %¢TVi¥¢S 11) M..%C'S
fflenibeT5 clLros5 IIIL UK. It is also impiraiii¢ for &noi%"l¢dge our faHia%iic fjiwiib¢rship- lh¢ 3.IKMI plu% peuple %4"iihi
our lAc.5 ianiinuniiy (ur ihe %uppun Lh¢y Ill¥ iu ¢aili uihei. enabliTrb ilui whoi¢%onie 1dniilv.feel Iliill Is i¥ofveii
Ihruu¥huul e%'eryihiiig we do.
In ?0?3. IhL
I.ICS Tru%lee% ItkiliJted a LVtnpreheTLsise ei'aludliui) of Ihe LhJril) s services impaLI. Thi% i'ei'ie¥%'. shiped
by clireLt inpul froiii niL'nikr& diiiied 10 guille the ihariiy'% tunher dei¢lopin¢ni. Early fiJidiTh¥s ¥iatilyiiig. ree&ling
st¥inilii%ilil b¢iiLfii% Ihai Ihe iharity prui'id¢% io iLS m¢Mhers.
Thanks to Ihis aiiive panilipaiion u(0r mem1 i%'t w¢r¢ able W amass an unpaiallelLxl uNler%ianding of MAC-S, IlllPaLI
Jnd hal'e idenijfied ai'Lue5 lor furtherL'nhdnLemeiii. a> well as revIeing0r Theory ofr.hange 10 adapl a r¢fre5h¢d susiain¢d
IlllP&Li biual thai responds 10 ihe iieeds ofour 1.4C'S comniuniiy.
'¢ aim lo thai all iiidil'idudls M Iih MACS Londiiions iri iht UK aiid thtlr famili feel less isolai¢d. are betier
LonnLILd. and aLLe%s 10 ihe adi'iie. inforniaiioii. quppm Ih¢y ne¢d EV thri¥¢ and lead fuifillins liies LoiifideIiily.
This ivork hal g¥iven NIACS a wlid foutmlaiion froTn which we have buili a Dew Impacl a[ Ei'aluaiion fraineM'I)rk 10 endble
ioniiiiual of our itnpa¥ F715¢d on what our nJetnbeT5hip have told ¥s Ihey need froin MACS.
The %.1.4CS i¢am and Trusi¢es gaiher¢d insigbLS from th¢ afotLmeThliuTred eJide3I'uurs. JYsiniLiuring Ihc %iafliiigy leani u)Id
oll
I..IC% IllÉtropbthalmia. ..Inophthalmia 4nd
CololJ0rn2 SuppDrt
Ri'port ofthc Truslees
ror the I'car tr.Ddrd.lJ Dccernb¢r 2023
()lTrjerliics and aims
1..I('% il'l% L'%labli.%hLd In 1993 as a 5UPPUrt neii¥vrk lor pJrenis oliliildTeii li ill) lIrphihaJn1la..4I1¢>P1iihaIn1l. ¢iiid.()r
I'vli)bLlllld. -I'liL' rtsrL' iundiiiung. alTeLiinLt aPPToxiinai¢l%. 10 in IW.U(K) binhs in l..'K. aLLUUI)I r(IT abuiLI
Iiiliially. parei5 ofchildr¢n l[h ih¢s¢ condilioThs had IirnilKd aLrr%$ 10 IEiliTrrTnalLUn aiid %upp)n. N-1,I(.'S
aJiii¢(I lu allei iJl¢ ihi.¥ i&olaiiun by crvdlln8 & nawoik for faniilies 10 Conl.
()11 I (lili Augu%1 14194. lAc.5 beL-anie a I¢¥l%lL'red chdnly Ichanly Number Ill4(74). SinL IhLlJ. 11 has sigiiiliiaiiil>'.
buildiiig a tnenibership ol"Jitsrly Tr 600 0p]e &ro&s Ihe UK ld &"¥'clopiiigJ vari¥ly of¢ff¢ctii¢_4uppun anLI
111 ?014. niembers appw%'ed ihe proal io conven 10 a Chariiable Incury)ordied Or¥aiii%aiion IC"IOI. On jh May ?¢)15.
l.Q'S b¢£aDie J r¢gi%i¢rtd CIO IChairLy Xumber I161X971. wilh all dssets Iratssleffed frvin Ihe old Lli4iriiv 10 Illl Lieii. Olie
()11 30ih Junv 7015 This Loii%eTsivn allowed MACS 10 becoine a legal Lxilily. pnTrviding 4reuiei' proieilll)D for fws1¢¢% Jii
I..IC'S Illicrophlhalmia...Inophthalmia and
C'olobom# SuppDrtl
Report of the Trustee5
ror the )"car JI Derrrnbcr 2023
H'hilLS Ihe LhaTilJble ubJeLliie% remain lhenIe. a% ouilined in ihe Chaivs forei1[d. KfACS'"nKoiy ofciidiige ha% uii(l¢rgyonL
a rei ILW dii(l our iiui£oiii¢% have sub%cquwiily b¢eD ieli
,11.KCS Illicrophlhalmia..4nophthxlmi attd c'olob% Supporll RcpDrl of the.rrSIteS fur the l'ear Eodtd 31 December 202J ..%C."HIEI'EIIEIT .IND PER TrUR.11.INC-F lii ?11?3. I%VYL dbl¢ io b11 on Ihe ThM)ni¢iitwii Df the prei'ious ye31 with a lulter calendar ofaLlii-IiJ¢s diid d¢tIll1)I¢ll1 LJI. eillll¥J NLr%iLes. Il'e alw Te-r¢gi5red for ihJrilabl¢ slaEU% in &-vilaiMI. in £UprI ofour siraiegii obj¢ili%¢ IcTr gTUII UUT In¢mb¢r%hsp aiid reach ¢%'eryLine h0 u%. The abililv 10 proaiii%¢ly delikeT %¢ri'ic¢% TdJSe ihL' fuiidw 10 dii sts 111 Eliblnd. WlIeS. NoriliL'm Irel11 SioiiJnd yeThes our niix%ioii for peuplv in the LIK w'iih NIAC-S i771117£ diid ih¢ir laEiiiIiLN l() h¢ trnpoie[e iu IhrLie and LuntidL1IY I ftslfillltsts lJ¥es. Otstreath AM'ar¢nes5 yiiIIILani %irides iYeTL' madL 111 InLreasLtt¢ our ouirtalh aiid rai%in¥ awar¢ne%N Iviih ih¢ hiiing nem CL)l111)IlIkKI1l(I4l JIILI OuirL'aLh OttiL¢r. This addsiioiul r¢wuic¢ proi'ed hi¥hly suLYt%sful. m.iih DUI vnline preseiiLL' e%paiidin&Tr l(1 r¢aih 4)- people iii ?U?3 LumparLd io 10?? and i>ur fulloii'er itKr¢asin¥ bv S, Thi% work is viial ID collTh¢ilin¥ iih itLdivLduals wilh MACS cijndiiioiis wkn may iKbl be aw7TC of exisrenLe. As J re%uli. ?67 nem. Fnetnbers joined Ihe NIACS fJniilv iii ?073. reneiliii¥ an X • gTOl4'th in Qui Lommuniiy briiigingi Lxir ioiul nieiiiber5hip 10 3.fi7S. Thi4 e.xpaiision alloiis 10 %uppin oi¢[ 1.4?1 Iivusehoids. i IKCS has iruly helwl me as I kilo. l am 5$ alon¢. ¥T l absolutely ltsve reading Ihe children UF¢ nui¥ IliTlI'iI)v In lilL. li ¥ive4 ni¢ hup¢ Ihai IletLry will k Ihe me.. Ad¥-itL' aiid liifvrni¥tio Oiie vl MACS, ThlOSI %dluthble %ourLes of adi'ice infurniln is meberip. Evet) wh1 infomiaiicNI 1% PTo¥ided bv Ihe l.4('s l¢Jm. li Dften Irotn member inpul aiid Lollaboraiioii. This colleciiie iiisdoni Is hY rt)JLiJ nicnibLr% fiiid ¥TI'aE comlort in ou¥ FilLLk suprx>n oups. These onlin¢ woup¥ hai'e ¥ruii"n from 967 iliLin.r& itt !0!! 10 1.01 I ni¢nibers ?0?3 Eli eiiiLmi Slats 476.. 1.136 W'iih Deli nieTnbe 811 1.136 WLIII dduli MACS Inembers 'Ii'% Jusi nii¢ iv kni>W ls.iih ii'hal¥i'et 4iIL'stion4,u%ds I niiehi hai"e I ha¥e Sonwhere 10 8u fur help m.iih peiiplv are goiiig lind ha¢ beeii Ihn)ugh ii. il's jusi nii¢ Iv Ih31 yiiu Jrenl ¥oiii¥ 1hrOuTrh li alone. Iii M3y ?0?3. we Morked wilh Wl(i 10 c#rr) oui a volunittr-led proje¢l. Wl(N an Indendent cknriiy uiid nieiiib¢r4hip ur¥biinisaiiL)ii. dri¥en by a i¢ani paNional aboul delOping rtsw)nsible. iiillusi¢ aii(l itsllalxiraiiw¢ leadeTS ihruubih n)uiudl ncler%iJn(ling ionsiruLtJie en¥a&Temetbl bdweeii goiemnieni. i11d41T¥ a1 Eli¢ -1[-PrOfiI seLlors. ThL WICJ l LilurL' Lradeis Pru¥TAmnic IFLPI suppons ialeiiied indikiduals io de%elop le[Ship skill% aiid iaLklL TLYI-Ivoi'l(I l¢ad¢r%hip challenges. with opporturtllies for devel)Ment. reneciion and r¢&1¢. FLP iiiLlu(les a priijeii wilh a noi-for-pn)lii oiganisalion lo dL.loP aTMI lest Iho%e %kill% in Ilie re81 M'orld. ()i¢r () mijnihs. a i¢aTn lif FI_P delebrale% hd5 i%u¥ked %¥iih NIAC'S 10 ctaiher Ihe peTe¢lle$ of MAC'S fftenibers their LvniniuiiiLiiliUii ali infi?miaiion nee<ls assiil MACS %ian' il[h reii¢ii i¥ and red¢sigiiiii¥ IIAC'S prinithS leallei%. bwkleis inform411()ii mUltl'l¢ils. Addiiionally. Ihe ¥r(MJP reTrivweiE atMI redesi¥ned the web$iie journey fur Tnwiib¢t5. C01151dvJnb aLLe&sibiliiy dnil IDiIusiL)li Te4UITLm¥nis LoiisiderLXi. I'e pldn iu lake this I%.k in ?024. 10 prodwe Ihe following.. . rJiiLre i)rni71¢r1d7s for ialh ol'member A til for purpl.*¢ it%¢T )OUFnev Ihe IM.4CS iiL'bsiiL IinproNLxi oiitl¢Yship of NIAC'S c4)niiiil bi. finib¢r$ PJg¢4
IlilC-% I,Ilirrophihglmig..Inophihalmig and
Colob# Supptyrt
Repnrl of ilke Tru51t5
for Ihc I'¥xr Endtd 31 De¢enib¢r 2023
%I,KC'¥led eiL'nts and eiperieiilil trip5
¥IA('% NI¢LI-L
Our ilirte LIJIACS Meel-up vven15 111 ?023 saw a la] of 13¥ aiiendets. According ii) uyr li)IIO._up ur%.ek. l UIW.o of
re%poiidiiib p(Ireiii% IhJi Ihese e%eiil5 helpid Iheii cliildr¢D feel le%% isolaiL4 and lliOTe cuiiiieLiLd 10 Liilierb t{h
e.ptriL'liCC ol. M 4c-% iuiiJiiioii%. 110'eer. only of parenE.s feli that IheiT ihildrLm h-te nior¢ ioiifi(leiii. brai L. aiid
ablL ON¢TLÉ)nie ne, LIMllen¥vs. We rL'L0_71Ée the 10 iinprts%'t Ihis Li¥.1 wid ar¢ '0[kIll¥l l(Tr eiihanLe Ihe%c (iuliunie
ror uur members.
'Ii Wiis luvely 10 nieei o¢her parLmlS'c¥rers ii) Opinions. SLwpon every w05 welLoniin¥'.
MAC'% Adul1> Nl¢¢i-L'
Fuurieeii MAQ-S adulis aii¢Jided lh¢ Y oui ID Binnin¥hanL aT suryey iesp(mdeiiis lEtxTrrte fttliiig le%$ aloii¢ uii(I
i%oldied. nlQFe Lonlidenl. uthd hdi in¥ made new friends b5¢ ofihe eielli.
ei)jiiy¢d ¥ieTV minule tsf ii. EspeLidllv bel'ause everyone ai MACS accepis you wkn yi?Ik OTe. and Illai vuiir
blindne%y.vi%ual impibimithii thJes- d¢fLThe you.
It I&..i yo liuud iu se¢ old 4iiME ncu fnends iii aiid li inthk't4 all feel l¢&s and i%()laled. l eiijuvLd Ilie ixe Ihroy'iii¥.
p¢r%uii who did ihe axe ihruwin¥ Ihis weekend. and I never imabDined I11 l ii'ould gei ihe opportunity lu irn .soiiieihiLT like
Ui¢rall. li bu%y %¥eekYtMi packed full ol-pleniy ofsocrdl iinie and ONY111eS. l eartl iiaii for Ihe nLxi lL.
M.4('S ild%ettiuTL' fri
Wilh lh¢ supporl ofuui dedJLaied Ldre pttTrvider. Firsi C-hL)iIL'. we iwk 11 MAC-S men7b. aged IU lo 18. eaLh i4itl) i'aryijig
need4. on ihe Cdlveri residenlial irip. According 10 pJi¢Jial fe¢dbark. ¥if¥o ObTred increJd indeprNletii¢ in th¢ii' childirLI.
aiid all a¥rted Ihai Ih¢ir ihililreTh feli l¢vs isoiaid and tttore PD&ilJi'e aboul Iheiiiieli'es allci Ihe irip.
'Ii is hiird 10 explain ho. ¢noTmQU51y bethefkcial Ih¢5e trips hal'e io my %)n's ci)nfid¢nie. %¢lf-e%t¢eni Jiid 5LX131
-kills b.arli >'¢ill he ¥eis niDTe and illUTe out Dr ii. W'iihi)ul li is hh% fai'ourite wttk of lh¢ year. li is the ullly ¥IACS eveni
lie Ldli fully join ili iiiili btt'ause he is so M'ell wppon¢d b) FiT54 Choii¢'.
'My (taughier just (Nize% LonfidenLe iihLYi she lurned fr¢Mn Ihe irip. %he a5 TeJ(Iv ILI tsk¢ the wvrld. Slie Ivved vi'eiy
miiiuiL. SL1 IILfsLII-challLn¥e5 IT ih¢tp 'hILh ha¥ had a huge iPatI on her can do aiiiiude.
'Ii hu¥e, ht& Lonfldence has iiiLTeased. he's come aaY with n¢w fri¢nd$ he's keen 10 talk 10 dllil he rL'ally %iruggTrleq
iih.%oiial siuff ii0TmJlly_ I le ha5n'l slopl talkin¥ alM>uI the Irkp and hai he did and proud ol'ihe fd¢i he did Ill.
'1 lub7¢ help kih ii)nfidLnve lo b¢ ind¢p¢Ttd¢nl Jtml b¢ aaY from family..
'She ha(1 Ihe opwnttniiy 10 haie ¢xp¢ritnce thijiys thai childrLYi Wuld n(Trrnially able io do ii'¢ih iiij i%sues
like ¥pLnd iinii iliili Inend% ibjihuur niums ur dads IherL'. 51Lep overs iii nK)ni i%iih ITi¢nds.. .Speiidin¥ time M'tih PL"LT
lskL IILr 1% %uni¢iliiTlb5 StK' clue%ii'i Iv do oul Or%chl. %0 il'% been amaziiig for thai aL%o'
'Mii %on loi'¢d thi5 Irip. he has btforL' bui tJLh iinie hi5 conlidaice and indepciKlen¥¢ giv.%. He -ts'l gei ai)! oih
l&lilCS l%lirrophihalmi..Inophlhalmia and C'vltsburna Supporti Repori of tht Truslets ror the I'eAr LDd¢d JI December 2023 M,4C'% 11111¥ ¢xrKLITllQlI. In p2rtnL'fship wilh OLe&n Youih TnJ51 Si)(h. off¢r4 dii empo<11¥ adi'¢nture Ihal 10s1¢T. inJipeiidenLL'. Lunlideni¥. I'rithd5hips. and valuabl¥.%kill% 'hIle experienLe. This yedT. ithi vounv adiilis Ell¢ Trpftied. making sigTrifiiani prLyre&s in wiling sk'ills. ]{h reiuming s4iloT4 are iioi% hi¥hlv prufiLjLII. &ind IhL p>siii%'e ItparI 1% u'id¢¥ii frvvi Iheir feedlTraLk. ii'tih all feediii¥ '1k Iliai Ihiv rtLI morL' Wl%lllI't aboui Iheiii.%¢li¢% J% well has L(mfidence. Indep-Nkiice aiml brd¥erJ' Ily ITY iiew Ihiiig% Ev¢ry(iiie Jiia(ie iiew fTiend5 and YO,; leli IL' dlojie ' i501aied. '1 have l¢arni a loi nwTe ab)ui sailiiig wid I'm defitsiiely nre ethJfMkiit afier the ¢¥Ieie. 11 113% al%u reall). &ireal ILI reLonnLxi iviih liend% I'd Ilie las1 iiiiie. 'Ii has spJrk¢d a o¢w passithi in me r(w sailing and made me push oui ofmy ronifon ion¢ lo le %u neth $kill&.' h¢ ii'ip ha% h¢lped me d¢%ebp %kilL$ Ihal l Laii knn¥ 10 my daily life. A150 Illi% irip hel1 iviih ionlid¢¥LL¢ aiid LII- ¢5te¢ni 'oluotCL'r-led In 20?3. 1?9 maMIJ¢T5 pani¥ipaied In four %.OlLteer4ed Cljnsimas paniomime5. An iinpressii'¢ 44D/a vfaiiettdees leported leeliii¥ more LtsnneL(ed 10 oihers who thare exwienir lIb Mi .4CS rondilion5. 'Ii lui'elv lu 10 meei vther nicmbiys of Ihe IMACS faEnily t5pid11Y 3$ 4 fsrsi ei'etsi for $. li %va% ivell EiSsed ai Kirs1%' Ihe orgaiiis¢r ktpi iDIornd eery. qep ofthe tty. 'GrL'al nil cldLighier li)%ed seeing viher IAAC% ¥hildrcn. tshe always asks heft ihe rtexl eveni WLII be. She ha4 really nii.4sed ceitig ¥1.4C% I'rienLls.sini¢ Coi-id. 'Al%¥ai.¥ lo%'e m¢etin¥ wilh oiheT fvIACS lamilies and th¢ pattkn) is a rtally enjoyable iiine.. Ilelpbn% Iland ¥r¥nls Ilelpiii¥ Iland reliL%e5 finAnLial harilship its support minibeTS in ih¢ nieJnit%gful ii'ay possibl<. Ileiiibcr% Laii apply for I'uniliiig ba%¢(l oil Ih¢ir oiin aiid Helpinb Fldnd %ubsidises the LY) - froin Npeiiali%t 3iJ% É)[ equipii)etJl tu lif¢ LIIAiibijl)b ¢xpen¢iiies. Iii ?11?_l. 'e'l. IKYii Jble 10 ftsnd 7 re4uesLS. including a Ilelpiiig Iland ol. L)IX) hiih I>e0 up Tjlevs world. LoliiielllllT hiiii 10 hi5 faniily. eduiai¥on anLI ihe oui%id¢ 4l.otid in h¢.& neiLr exrxrietlLeil before. 'IW'L 'ipplied lu IIIL II l.ICS I IE'lpinb Eland fund for some .4AC .%ofiwar¢ ilial could ijislall oiilo hi% iPd(l. IVe'K'e liacl Ihe solii%'are a ioiipl¢ ol. iieLk.4 iK)Iv and alieady Tyler has beetl able 10 L1lU1LJ1t Ihrough Ihe AAC- dei'iLe TnJkiii¥F ilioic¥5 and kL'epinbi Luiiiiol uf hi4 Ilfe and keepkng conwol of day-w4lay xiiviltes. IIL5 culle¥e hal'e adapted li IlItL) Iheir day-to- "The .IAC LS brL'iiking Ihroiigh barrier5 al .¢ a fvr MACS foT Ihe UPPOlluiiiiy 10 able iu use wilh Tyli'r. Fg¢ilitatioll of Pc¢r support Wi 1i41I'¢ 4ei up 14 peer groups Involi'ijig 175 memlK't5. I)UT l)iiliiiE support brroups kni"c groivti ¥./ o%eT Ihe lasr vear. %unJoning oi"¢r r0p]e 7() tllLniiK'rs Lon1¢{[ iih ¢J¥h nih¢r i'iJ_j? loo nTreeiings and etrLmis Page 6
%I,ICS Illierophthlniia..,Inophth¥lmia Coloboma Supptsrt) Rcport of Try5tee5 for the I'car £nded JI Der¢mber 2023 .1 I'eel $0 Loiintiied lIhOUl kLlt)ii'in¥ y(ni all thai well thaL'S all 10 ihis group.- Alier piluling unL'.likviiL 'PLLt C'onJiLYiithis' projeil a 11 1¢ in 10?? 'lIh lanLL%iii fL'%uIIN. the liiiWL h¢¥iiii lij olTer 111¢ 4)ppI)riutiii% 10 In¢nib¢r> ai o( enl4'. Ihr()u¥h inirfMIuLlt)¥ relL'i.aiii ques110115 10 diL' I¢ilb¢[shIP r¢¥i%tialii)Jl ri)tm. .4ddiiiuiially. 'e EIlli 10 ialk morL' In menitxrs. communiiaiions 3boyi the berLS LifLunneilJnL peers loi une- 10-OIIL suppun. 'Il'pareni¥ kiiew Ihere a service like ihis Ihai conneas ihcw chil¢tr w.iih (iih¢rs like thein. Il li'ould a biL sllPPOI1." 'XfeL'lili¥ Ferii iiiedn% a Iui lo lidliL. iho neiermd anyune iih heri¢MMliiion before. a> kDow% Ihdl she d.%peiiJl Iriei)d %vho reJlly ui)dersian41% her eKperi¢nLe." Sfrole%Éc partner5hip5 Vlbth Proff55ioR315 in S¢hool¥ 14clthtirr xmd l oluntan Seclor Addilioiially 10 Ihe uuirL'dLh and work. our Qommuiii171ioii% dnd Ouireach orrLLer has beL'li making inr(>&gds li)r tl¢lk LliniLJI 1lIerhipN. IhTvugh buildJn¥ diteLiofiLS foi nelviorkirtLV dnd a Ld1th141ar of biM)kiiigs al i¢¥114 lur Ili¢ raie oiidiiion%. lSUal impdiiY)iei)i aiid relek41lli iliniral commuThiiies. W¢ .71] delsver Ehe iAl bEd¥e vlthis iiork iii ?11?4. Ilirougih L>iiiniuniiaiioiis wilh iliniLiaii% aiid aiiendJnce of¢i'ents. Adtrotgc) and Support to.4tcess Right5 and Entitle¥1. i)rtd Emploi'mertt In ?0?3. rec(Tryised ihe iieed for enhamed suppun in Ihis %rKrifir area. AN iv¢ ¢Dier the firsi veal i?0?41 of oiir Plaii i TliriKe iirJi¢gy. w¢ %%'ill ¢oiir¢Dirate ideniifyinv i)pp()rtUTriiies Cvr .4CS 10 assisi our ieeii% and adult% il'iih ¢niplLikubiliiy Addiiiuiially. ile ivill bJAihL'r informaiion 10 Pfoiidt guidance a[ T¢ferTal.% tiiid eiiiiilLiiii#ll%. TliesL eli ILLp% are plaiiiied foir developiiieni and launth in ?Olj Page 7
11..IC-S l%lÉcrophthalmia. AttoyhihAlmia Cololy)ma %upporti Repurt of the Trustees for the Ytr Ended 31 Dtcernr 2U23 aclii ities P[rrorIan£t agxinsi bud¥el l.ulli)i&inbr a LlidllLIILTIIILf Vi'ar ltir income in ?0?? we wwt deligwhid io ¢xpeilJiivns 2073. exceedLE)L) our budgei bw I I I.WO 4inil ¢xperieiiiing grolh arn)5s the majOTily vf oui fLULding sireams. B). Ihe end of ihe linaiirial yeaT. iutil I'ujiils iai%ed reaLhed l_141.5?8. "rhi ol-(iur Tru%1% FouRdalio#s line playttl a pivo¢al role. COlllTilyJiing 46.fi?• ofour iiiron. and do1]0 iliLVtne ri'otji eelliN Ji %O.¥'ti ofour oierall reiLllUe. Si.¥1! fru%1% FLiuiidalJons gertenNJsly contribuied io MACS. c¢)mpared 61 in lh¢ pr¢vious year. This ha% led 10 & &lighi decrease 01. 3?tJ on Iht prior year. T'elY-5.X of our luttders made their first etrer Lwnlril{loI1. while niiie hJdn'i ¢M)nlribuied i# oi-er IhreL )-ear5. l-lii5 UnLlersiore5 lh¢ i'alue ul-lhe TeJs¢d T¢SQIJTLes allald Ihn)ugli the rurniiiiicni of a I'rusi% Foundaiioiis Fuiidrai%eT ill Aiioili¢r noiable achievem¢iil 15 our $¢5$ raie. which rose frvm 2 in 20?? for small 3pplicalioDs 10 iji ?0?3. Challen L, ei'eni (In.wshi Londuii ni.'IkL% LIP 94., of Lha1k.neS iiKome. wilh (97.494 of this beiiig rni.sed by oyr (¥0 runiier% in tlie ?023 e%"eiii. iiiediiiiig ol. £1.6?5 pe¥ p¢tbon. Ve reieived donaiivn% f¥oEn foul lI]lihrOpIC rOUpS amouniing a IOLqI of l? 750. T1 %Lliools supp)ried in ?0?3. Miih a toial of£5.1 i8 OLsr lania.%iii iiidii idual iUPP)n¢rs rais¢d a collecis¥e LS.7?8 ITUM I'arious communiiy e¥enis iii aid ol. MACS. W'e TeLe1ed Ihree Curporaie donaiii)n$ 10 Ihe iunL of El.470. Oiir Itrsi L% er lline Sileiii Auilj(Nl Tai.Red t-l.()SS. 61) illdi% idual dono¥$ rnade ¥¢DeTal donaiioTh% Iv LIIACS in ?0?3. with an d%trage gift uf f 81. 21 regulttr donors gave in 2023. Perlormance axdin5t siraiE¥lt objettiies Oiir sif4l1igli ubjLLllt¢ rLgardiii¥ inionir foiy%es oii di¢r¥iE oui te Siream% io ensure Ihe long-ieym Nu%iainabilily uf lh¢ cliJriiv. while mJiLilainiii¥ appiuwiai¥ rL¢Thes. Our 10 increase T¥u£is and Foundaii01is inLoie froim 17P7D Io 4U o by year % l?o?fyi. Ihereby reduiingj our relitsiice oil clullenge ¢i'evi iniume. ii'hich PTe%'Luu&I) LVnSlilUIL4d 7.4., IuiiLIs rai%eLI. Il't are pleas¢d 10 obseTh'¢ progi¢&s in this ILLTectKun and dre inien*ifying our tffonts acTOS% all oih¢r incoDI¢ sITedm$ Io aLhieve u more balJnccd disiribuiion follows.. Tru%1% and Follndaliuns." 4(V, C'hcillLiig¥ L.ellI sponsor%liip.' 3¢rh Pa¥e 8
Colobom¥ Supporl Rrport of the"I"rustee5 for ihe I'tr Endtd .11 De¢tmbL'r 2023 Financia5 1)0sition l)ui-iiib ihL lir%i hall- of ?0?3 lh¢ FinanLe commiiiLY r¢1 È¢M'ed lh¢ 10?3 bud¥ei. ali¥nJii¥ iFiih Ihe &iall- un iiherL' 10 IOLII .4C-S' 10 tra¥e ina.xtmum impari on lis iiicvib¢t%. '[h 311oi%ed the fundraJ%itr.g IL'aiii 10 hai'e a loiu%eLI %if%iie& eiidbliiigt M,IC-% 10 end ihe finaDciJI year in a %labEe pv5111th1 iih re%erie% ol- £141.(Tr ILl4X.1 ?OI• Alilioiigh iniome ha% not y¢i rttM)i'eid iu ils pre-pandemic ILfvel. wilh C345 5x3 in )U?3 IL!7q X77 )0)?i. Ihe iTuslees dre coiilidcni wilh lh¢ ilTyniwlional and inLome divetsificaiion 4traiegy for )0?3 MAC 5 will Start iu see IllLM)me inLredse. MAC_'S LoniiiiuL'd 10 back EO facy evth15 7th 10?3 seeine signtftcani increase in eX.dilure oii menIr serNILe%. Resents polkti. A% pr¢viou%ly nuied. ruial re.ts LU¥Tenily 51and dl L141.60? L?h.551 ol. M'hich iLr¢ r¢5irlLd lunds and L19.?96 are deqib?JiJi¢cl. Leaiin¥ £C)4.869 Iree reA.e5 Idtfiiicd as ur¢siTile reserves l¢s% fjxed a%%eL4 aiiil dL'sigriidlL.d riseri L%1. This ¢ClUl(L5 10 ¥routid 3 nithiihs 0ra118 aDd is iTk line '11h ihe curtenl resm.es poliLy 013-6 inoiiih% Lost%. Wilh th¢ iuniinuiftg eLonomiLdl inipail ofihe co ID-IY pandemic anil ¥lubal yoliliial ihdllenges. IN¢¢5 hJ¥'e ci)iiiiiiued moniioriii¥t IliL apprL}priellesS ol. th¢ regn'es polLCy. TY Ihai Ihai IliL chdriii, 5h(iul(l ioniiDue li_% 31m ur rree re%eTe equii'dleiii 10 IhreL' 10 si.x mon18 lo. Thi5 Il'ill J15UTe Ihere art sulTicienl fuT M..XC'S 10 fullil ill C¢171 aiid luiure L)bligiaiioiiN liuch reJundaniv costs. leyl feel and witLd up Losls shciuld Ihe ihariiy ii¢ed ts llusel wliiLh foT 2073 iaiid ai iiriJ £XO.U(M) and ¢ndble IL IACS 10 resp)nd ClillLkly 10 uDeKpeLied ei"eThi.% w'¥ihoui nc¢diii¥ Iv reiluLe seTTriLes. Trusiees al%0 Teiieraied Ihal L&%hflU should n(A fall below £l()O.IJNI ai sny 11171 year. Free re%¢r%'t5 in ol- Ihe rueI p)liey will be used 10 de%"elop ihe infrasiruclu T¢quiied iv iJnpleiiieni Ci)li¢¢led and C'unfideni. Fiiiaiiiial Rc%'icw I'he liiilll)riiN ufined%ures iii place duritig !02? were 1lainl lhiu1 ?O?_l.. Uiiliiie Board Lommilt¢¢ tTheetin l)iilin¥ ACI%q Coniinueil mL'nir n.1(eS online whilsi inLreasitsb face 10 face elents Airel¢rJied plin% iu dL%'er%ify inLome siretsins Initudui¥d muiLihly fiMnLial rekiem. ialls. IlllOTporaiiiig f¢astIng io b¢tier conirol und allocdlt rtwurLes TRLCTL'RE. GOI'ERN.INCE 2lND.11.IS'.IGEIIEYI" Goi'¢rninE docuniont 1,4('S is J CliariiJble InLI)rwwaied Organkiaiion ICIO) wilh wi &%LKiaiivn (l.¢171g du1¢nI Irhe LonsiiiiiiLoiII. This re&Ji%li'rL'II on 79111 May Tro15 and atnended 3rd Au¥u%i ?016 4ih Ma%. ?019I1.AC'S 1% a C'h8riiabl¢ Inlotpvraied Or¥aiiisaiioii IC'IOI lib an u45(Kiaiiun Cj0eIlThg IknLumthi {Ihe C¢511ul1l>1l). This r¢¥iiieF¢d ?Yih Ilay ?(k15 dlitt Inieiided wi Jid August ?016 4th NlJy_Wl9. Recruit¢( #ppoxrttmtnl of trustees The Iru51ee4 $ertrii&t diirijig t period IM jaUary 20,3 10 31$1 tkcenib¢r ?0?3 are li%ied on pdge 10. AII ¥ii'e iheir lime vuluniarily and receive no tKnefiis from the chatilv. Artv expthises rLxlainied froin Ihe iliariiy are sei uui in Iioit 9 10 ihe At eler), AiinuJl Geiier411 le¢llg. on¢ haifofihe TnL%ree% relire from urriceiThe ser¥iiigD lning first) but iliev aTe pei'iniiied lil be r¢-¢l¢¥ieJ iir re-JptM>iJiied bl th¥ m¢mr5. Page 9
I IC-S Illicrophthalmia.-.Inophthalrnix and
C-olol)om8 Supporll
R¢porl ofihc Trusicts
for tht I'ejr Ended 31 Dttember 2021
TRI'C"fLR&.. f.()I'KRN.IYC'E..IND.11..IN..IGF.IIENT
C)rKani5illiuthal siructuri,
Ai illl) l)tie iiiiie. Ilie Li)i14liiUliVn %iipuIJiLs ih¢r¢ %houlil be d njiiiimum uf four Trtle¢ 11-Iih A maiiiiiuni (Il. I¢11¢. Ai lea%l
n.. "IruNiee 1il% Ob%erNer. aLiing Ihe nienilK'r%' reprtallit on Ihe ljoAr¢J (Jl. Tru%1. Th¢ iiieJnbL aTe 41150 able 10
appuiiii iU TnJslL'ei Ihai 41re iioi a iiiembe¥ ufMAC-S. bui ihc lotsl exceLxi Ihe li1M vl"ii%elve Tru%iees.
.411 IiLlI' IfkL4t¢¢% ¥u IliD)Ubli an induLiiOn P14XLbS.
"I'hv B()ard ol" Trusl¢L% tneei four limes a year Jnd ea¥h 11¢[ is deletmind b) d %imple t¥lliii)riiv uf i'oie% of lh¢ Ti'u¥ie¢
pr¢%¢ni 71 ih¢ In¢¢liEI¥. PToiidin¥ a 4UOTum vfai led51 four TmsieL'S drL prL%eni. Iii case uf equaliik i>l' i'oie% ihL C-liiiir ol. IliL'
i¢¢iiii¥ ha% Srtond ur La%tlLigP vole.
Occi5]uN makirt
I'he dA!-Iu-ddy irtdnaeemeni of Nl.4CS is delegai¢d io ihf Chief Fieculii'e. The C'hiel- ExeLuii%'e Jneei& regiilaTlv w'iih Ilie
Ch%iif %in¢l IliL full Board T<l'iei4 prube and adtttess Jn) SlI11l operdlional
Kti m#ll8LPtnieNt remuneralion
klll %alJi'iLi Ji¢ b¢iiihJiiarked againsi siThii13T 517.eLh&rLIILS Uilllg ihe lIalS Hill Salary Sur%¢v. This eDsurv4 %aldrie&. Illiludijib
Ilicil ul. Illi C'IIiLI- LxL*uii%L. r¢mthiii appTopriaie and LomlIlI.¢.
RL'121ed partleS
DiiriiiLr ?O?.A. INI.4C-S CLiniinued work in Part[shiP with the followine 01111sailIIths..
Mwrfield& EJE. Elo4ptial YHS Foundaiion Tj. Youth Trusi Souih: Calert TTusl: oxfo B¢'oi)k4 Uiiiwtrsiiy.
(ietieVJ4ion". C-oiin¢riiiig C'vThitnuniliiiing'. Appvaraiiie Q-olleciiie ('T(TI
Rtr".I.-Tr'RF.".N'C'E .I.ND_4D.IIINISTRATII'E DET..111.S
Ri'LJislI'ri'rt Charili. numbi'r
Principal addre5$
.V AC'% ClidriEY
71 75 SIILlioii Sireei
C"oi'eiil (¥iirde
L(Indihi
.'('?11 yJo
Truslees
L J¢l'ftrie
(i l.lurphy
S IlilL'V lappoiiiied 15.3 )3)
IndepLndettt Examiner
Wdril (ioixlrnaii Audii S¢rvir¢s Lid
4 C'edaT Park
Winibom¢
Dur%ei
Bll?17sr
Pagr 10
lodcpcttdtttt Examintr's Rtp)rt io the Trustees of I I,IC.'% {Ilirrnphthglmia..lThophihalmig C"ulobom Support) I repon 10 Ilit ihariik Iru8ietr ni). e.Kaminail ol.11 iliCWiilS ol-Il)e TTu for Ih¢ v¢arwKl¢d 31 DixeThber ?O?.l. Respurtsibilitits aRkd bysis ol report A¥ ihe Ii-Li%iees ul-lhe Tru%1 vuu Jri. fLWLble for Ihe prepardiion ofihe dLCOWilS iii aiLordaiiiL %411h Ihe reLIUlfeiii¢Di% ()I'ihe C'hilflliL% iiiiti Tru%l¢L' Iiii'Lsimeni ISLtsilandi ALI ?(J)s Iihe'(M)i Ail'l. Iht C'hariiies A¥L(IiIIIIN ISi(It14udi R¢bJuldiicTrii% ?OUCI la% ani¢nde(Ii aii(I Ihe L'hdriiieN Ail ?l)I I I'ihe ?Vl l Ail'l. Yoy dl¢ saii.4li¢J ihai yuur chariiv Is i)ut rv4uired bi Lliiirili law lu be 47udiiecl aiid Lhosen IttsieaLI 10 kns'e itLndL1 exminaiion. rcpon in i-Lp¢ci Iifn)y tiJniitJaiion ul'ihe TnL%i'5 aCLuunls J5 Latried oul undLY seLiivii 44 1 I Illl vl-llil, ?(IUS ALI aiiil LLIILIII 145 vf Ihe ?01 l Aci. Ill L&rrying utsi ms. eX111a110n I hai'e follothtd ihe re4uireln¢lll% of RebyulJiivii I l of ihe C'II4TIII¢4 ALLI)Ulll Isioilanili Rigulaiioiis la% amendcdl Jvd ih¢ appliiabl¢ DirtrLlOllS ¥ii'en by ihe Chdiily Curnjiiissiuii iiiider IndL'pondeDt oxaminer'5 Statcmcnt SItlLe Ihe Tru.%1 hai pr¢par¢d ilh alxounis 811 atii'ual% b&NIN aijd 1% alw regvi%ier¢d iii SLciilaDd youi ex3rkiiiier iiiu%l be a iii¢iiiheT DI. 4 bod>, Iisi¢d in R¢¥ulaiJon I Il_l of the ChaTJlies ALilJUlllS ISL'uilJiidi Re¥ulaiioii% ?IX)6 an1¢ndi. i Laii Lunlinii ihdi l am qudlified lu utbdL'Tiake Ihe examinJlLOn beL'dUse I am a rL'gi%lLYe(I InL'niber of Ic-Al.Il' Ivhiih 1% Ullj (If Ihe IL%ied budies. I ha¢ Li)mplei¢(I my ¢xamiiiaiioTh. l Confinn Ihai hav¢c¢)mc ro Thy aLlenlion l111¥T tThe cause lo belLei'e Iliai in any niaiei'ial re%ptri'. aLLOUTiliiig reLxkrd% were noi kept in ofihe TIu51 as required by section 44 11 I lal ofihe Aci aiid Rcgulaiioii 4 of lh¢ ('lidriiies ALLVUllt% ISiurl&ndi RegLtlalioNs ?(X)6 a]#endedl seLlivii 1311 olihe 701 l Ail: or 2. Ihe aLLOUlil% do noi aicor(l iviih lho records: ur Ihe diLuuiils du tthmply 'l¢h the accuuniLn¥ rwuiremenis Regulaiithi 8 ofihechariiies ALLoullis ISiThlaiidi R¢gyulaiion% ?OOfi lI7}elidE,dI do Lomply iiiih Ili¢ thppliiable re4uir¢n)eiii% conceniing Ihe and Li)nient o>f aLi(iuiils %ei out in Ilit C'liJriii¢5 1 Al¥wl% and R¢pons1 Re¥ulaiiuny ?IK)X oilier Ihan aiiy re4uiiemeni the aLLITrUI)IS brile d Iru¢ di lair 'i<M' %4'liiLII is Liul d m.'Ill<Y Lon%idered pafl indwximk.ni LUIIIIIIJIIOI). I have tto cortcems &tEd hdS'e t¢)me across ho other inaiieTS in conneaion Miih Ihe exaniinaii(Mi 10 M'liich aiieniiobi 4lN)uld br drawii in Ihis report iii order etthic 3 prow UiKleT51anding ofthe rrachzd. I 1 Rodd EISL- FCA FCCA Ward (ivudmaii Audit S¢TViC¢S Ltd 4 Ceddr Park 'Tiiib()ni¥ RII?I ?SF Pd¥el!
,11..ICS Illi£rophthlmi¥. ,lThophthalThi8 C"oloboma Smpporti ror the I"rr Eed 31 Dettmber 202.1 LInrILled RenCle Toial ruiid.¥ IN'COIllE.,IN'D ENDOII'IIENTS TrRUII ?48.?34 93.794 .141 528 171).861 Charitable aclii'itie$ 1.097 ?.40(b 1.09? 2.4(M> ()h7 4.244 Mvniber SvrviLe Delivery" Qilier diliviiies 30¥ ? j5 3011 ?55 105 'rotal ?5? 189 93.294 345.583 ?75.%77 PE.YDII'L'RE OY Rai.%iiiK I'unds 73.21¥ 7.1.7111 46.791) Charilabli. a¢tll'Lties 14.481 1£.016 38.399 l ?y.497 149.43 250.352 klLiiibLr Ser1CC Dell-ery Tolal 198.730 153.415 357 145 387.5?3 E'f I,N'C-ONIF.IIF.NPTr.%DI"I'L'RK> 53.559 IfA).I? I I 16.56? 1111.6461 RKC()NC"II.IAI'ION OF FUNDS I'ulal luiids brou¥hi liwward 61.49! 86.(b7? 148.1( 159.RlO TOT..IL FL.NDS C..%RRIED Tr'ORI%,IRD 141.60? 148.164 nok5 f(Ym pan of these financial 4alen5enls Page13
MAC.5 Illicrophtknalmia. AnophIhaI• and Coloboma Supporll Balance Sheef JI Dec¢mb¢r 20? J ?02_1 unre$eted nds RtsliiLithl runds funds funds is resiaied Note5 FIXF.D A%%ETS l ani*ible .issei8 13 586 586 1.684 CLRREiY-r ASSETS T)L'bii)1-S Ca511 ai bank 14 61.278 61.278 14? 142 l i8.441 176.869 26.551 203.420 183.990 CREDITnRS AniL)Ullts falling due within one yr4r 15 16?.4¢HI 162.4041 137.5101 NET CLRRF.NT A&SETS 114.465 ?6.551 141.016 146.480 TOTAL.45SF."r5 LESS CLIRREYI T LIABILITIE.S 26.551 148.164 NFT ASSETS 15.051 ?6.551 141.602 148.164 FLl%I DS Uni'tsiricled funds r<e%iTi¢ied luiids 16 115.051 76.551 61.49? 86.677 TOTAL FUNDS 141.60? 148.164 26.09.2024 The fjnaiicial 51atements iiere approved by Ihe Board of Trusi¢es aDd authorised for Issue on............... .... ... .. WeT¢ sign¢d OD its behall by-. aiid 1 Iil¥l. TrusiL" The r[¢5 forni pan of Ihe5¢ finwtial siaiemenis
IIACS l.Ili¢rDphihalml#. klnuphihxlmia #ttd CololJom8 Syppvrll 01¢5 ID iht Trinancidl Siaieniertt5 for tb¢ I'er Ended JI December 202J I l..l('% a charsiable ini(Irpur4ilLyI or¥artlkLLion Iciol fui IhL publiL bLYJelil and r¢¥i%iLr¢d 14'iili ili¢ Q'liarii C'i)iJini%%i¢)ii in Eiiglaiid aiid Wales and wilh ihe &.¢Triiish ChJriii' RLsuiaknTrr IOSC'RI. 'fh¢ priiiiipal addiL5% Its nuittl on pdLie 10. elCCOLYI I.NG POI.JC'IE. Ila5is ol preparing the financi¥l slalement5 l-hL' Iiiiii TILldl Nlaienieiiis ol. Ihe ihariij. li hiih is a publii tri1 eniiiy undLY' FR.5 111? hdve bLL'n PTL'PJTed iii aLLOI'ddiiiL li lili Ilie ClidiilLes SORP IFRS 111?I'AcrouTriing and R¢whning by ('hariiies'. Siaieiii¢ni ofRiL()1111)IL'TiIILd Prd¥ll¥L' dppliiiiblE io Lhariiiri pfipdrinsTr IhL'ir aLXXbUIIIs itt a¢LUrdle i4JilJ ihe FiiiaiiLldi Kepuniii& 81-iiiildril appliclbIt in the L'K aiid RepubliL ol- Ireland IFRS 1111 I leffe¥iike l JaJiuaTr .11191,. F1114111Lial Xcpvi'iiiig Siaiilldrd Iul 'The finaiiiiaS Reporiing Siat)dJrd appliLable in ihe LK aiid Republit ol. Irelatyi, diiJ ih¢ C'hJriii¢% Ail ?Ul I. -I-IIL fIlILia1 %lAienieThl> ha%¢ been preparrd nder Ihe hislofiial CO Coni'enison. All lttiurne l feil)Liniyed in lh¢ Sthi¢ni¢nl ol- Fiiianiial .4Lllk-ili¢¥ VnL¢ Ihe iliariis ha% Ltillen1MI 10 Ih li%. IL I PTuhdhlt ihJi Ili¢ iiiionie will be rtiei%cd aiml IhL' amouni l11 be mrdSUTLYI Telidbly. Clithllen¥e evtnis Illime is included when ti1'able bv The chaTiiy. due 10 lh¢ iiaiuT¢ of l.(Indoii MarJihun I'undrJising li iJkt SeVtTxI moiiihs for all rcldlLMI iiiLOlne io be LolleLied. Donal1ls- income is included when re¢eii'ed by the charity_ Gift aid 15 c13imed ¢Jn allowybli doiiaiion. iniome Irom goi'emmetji and oiher grdn15 wheihLY capitsl ot teirnu¢ is rero¥inis¢d when Iht cliariiv hd enliiletn¢ni in lh¢ I'und5. any ronaLe conditio iiached 10 Ihc grdnis hal'e been Ihdl the can b¢ measured rLlithhlv. Gifli Iti kind- DonaiLd Eins and set%'icts we inclwl¢d ai I1r e41imaied Markd i'alue. Lipi'iidiitsrc l_l4ihiliii¢% al'i reLogiiiqed as expendiiure as suon as there is a l¢gal ut wn%tTuilii'e obligaiiots coniiiiiiiing Ili¢ Llidriiy lu Ihai e¥peiidiiur¢. li 15 proN?blL Ihai a Iransler iTrlcLthiuinii tK'nL'fLls .111 rL'qULied In ellIen7¢17l Jnd ili¢ aiiiiiu171 1)1. Ilie i)blIlI011 cart bL' mea%uted Te113bly Exp¢ndiiur¢ 1% aiLiiuiiied fur oil an Lru81$ basis -Iiid hds bL'SI Lla%%ifi¥Él und¢i headings- thai aggregaie Jll Losi relaied 10 IhL idie¥tvry. Illher¢ Lvs15 LatnvI be direcily allrihuted iu pdriiiulJr hedJinbT% IhL'y h3Tre ljeen allocaied to Jciii'iiie% on a b&%1£ consisiii willi Ihe ofrewuties. ltteLoverable V..IT 1$ cIIJTg¢d a(rdji)s1 Ihe aill%'ilV for whiLh li a5 illCUtred. Jr4inis %ubjerl 10 LOTKiilii)n5 which ha%¢ noi been mei ai ihe sear eiid dale ore Ile as a iv1iiniiiin)l bui i)ol aiLru¢d ¢XPtiidiiuTE. T8Moible filed asscI$ DepreLi?IiLln 15 provi(kd ai Il folloing annual raies in tsrikr io write vlYetsLh a&sel i)ver e51s¥naled u%¢ful lif¢. Fixitjres dnd fillinv13*a cosr Eciuipmeiii athd ccimpuier pvnhJ5es are capithlised oi.er Ihe i'alue uf LSIM). 'rhL ih'irily is i'iempi froni lix on IL% ihariuble aciii'iiie 15
IlilC'S 1.Ilicrophihalnii¥..Inophthalmia and Colobum Supwrtl ote5 tu IILC FInrI1 %t21¢ment5- fOJltillued rDr the l'ear Ended 31 Dercrnbcr 2023 C'C ()LNTINC POLIC'lkS- continued ujireIrlEIed luiiJs Ldt) , u%txI in alLoaLe ivith the Chilable obj¢cii%'cs ai I. di4creiion ofihe InÈgiee5. Ris1iiil¢d luiidb Laii unly k used li)r paNtiylar FeqirIi wiihin IhL obJLXl% ol Ihe chariiy. RLtsiriclioii ari wheii ip¢%IliL by Ihe donor or fuTh15 are fut Piiiliiular re5111ft¢d i)urp().*s. Furiher explanaiitsii of Iht Ilalure and putp¢i%e of.•h ful Is ilUEkd in ihe Ilie liiidnLial 4iaienieiits. Pen51VII f0515 and Dthrr p05t-rclirem¢nt lJcAefit5 TIIL. Lli&ifiitr VPLl4ilLS d d¢liiied iuniribuiiuij 11%1{)11 icheme. Conwibuiion% paab]e 10 Ihe ih3riiy's pen>ioll sclieine chdr¥ed iu ihc SiJi¢nieThi of FinatKial Aciii'iiies in the lod io h.hich ihey ielale. Di,blor5. casli and creditor5 Ba%iL finani131 asSel& 'h1h iiillyde irade and oiher reLeii'dbles and Lash dnd bank baldn¢e$, are LnillIV 7¢ared ai Iraii.%ailiutk PTlie InLludin¥ iiati%ailEon iO%LS. BasLC finJtlCldl ILabiliiLe& KnLludiJi¥ trade a[ viher payab1¢5 aT¢ iniiially reiuwiised ai Irdli%dCliOii pfiLe. !0?3 70?? re%idi¢d tlonJiions Gitl ai Graiiis aiid Tru%is InLume 11}ti.794 1.770 166.297 4.661 161.199 341.52X JrdJi¢5 rec¢ived. inrlud¢d in lh¢ above. dre as follo1$.. 2023 !027 as r¢giai¢J Oih¢r ii()El-¥oI'ernmeni giaLIIS 161.199 1()6.?97 Page 16 il)nllllUL'd.
11,tc'% Illicrophthalmi¥. .Invphthalmia Cvlvbtsma %upportl tes lo thi. Fingnrial.%latements- continued ror the Year Ethdcd.11 Dc*ernb¢r 202J o'rFIER TR.IDIN4C' .ICTII'I-I'lkS Uih¢r .10 I%4.F51.,IIFl'I. INC-OIIE ?023 Js r¢slaitLt De%71 acLouni Ilil¢T¢ ?55 IYCOIllE FROII CH.4111T.4BLE..%CTlI-I'fiES •oi! reSled l1'rnb<'r 5¢n"ifts IL'rLhdndi%e Meiiib¢r s¢Trires ChaTiiablL Itciii'iiie C-hariiabl¢ Acii¥iiies Membiy Ser¥ice Delivery 140 75? ?? 4.?44 3.497 4.911 CHtrlRIT.QBLL.Kc"rii'i'riFS COSTS (5tt IivIK' 81 C'osls Toial C'hJi'iiablL' AcliviiTes leriibL'T Seri lie Deli%eTr' 1119.844 149.470 14fj.JRO 259.?84 19.fvlj ?78.9)7 Pa¥e17 contlRued...
,11,KCS Illitrophthalnit...Inophfh#lmia attd C.'oluhnma Supporti Notes lo thL' FiAa¢ia1.aleniet5- tonlinutd (or the I'¢2r Ended 31 DCkner 2011 SL PPOR'T C'OST CY()¢an¢ Toidl -harlbI¢.4ttIlllL¢s IU.571 l L).(A3 Iixluded within suptM)ri Loas are ftts paid iv Ihe Inde¢1]1 examiner ioialling L? 310 17027: L2.20O1. Fees are -4ldi¢d ¢xilusiv¢ ()firyeLvv¢rJble I'AT. TRL,5TF.Tr.5' RF.III"IF.R,ITION,IND BENFTrJTS There ivere iiu Irusiees, remuneraiM)n or oiher Fnefiis lor Ihe year ende4131 Dts.emr ?073 n(>r lor ihe yedr ended .1 l Declbe[ TruslÉs' expenses men?bets l?O??:nill vfihe Board 0fTruSS receii.ed Irdvel and subslstenLe expenses dunnLY yearioialliJi¥ L?9_1 ST..IFF COSTS a¥ resiaicd 173.413 1.4?7 IU.159 ?Ob.345 13.750 ()IbeT pensioll LOSI 2.13.4?5 ThL' Ii?ial L'mploveL FxYiL'fiis of the key mana¥emeni perthit)el ofihe chariiy M'erv £90.8¥0 1?0??: E81.94¥1. The di'¢rd¥e mutLihly nIut4[ of ¢fftpl¢¢% the 3[ follow5- 10?3 re¥itsiL,d No employees reLeis'ed emolumet)Is in exL*SS or[.{MmI. Pagt 18 LOIiIiiiULd...
,11,ICS Illierophth&lmia, .4nophth#lm&A aod
Coloboma %upporti
ole5 to ihe Finantidl Slalemtnfs- ttsntinui.d
for the I'e¥r Ended 31 Dectrnbcr ZOZJ
COIllP,IIi.ITII'ES F()R'fHE STIlTE.IIENI' Ob 11..1.cl.L.1c.Tl%'1.l'I-S
LiiiesiTILied
funds
RtLled
ruthds
as re%iaiLAd
INC'I),NIE .KN'D LNDOII'.IIENT% FROII
1 £5.133
115.7!8
77U.861
C'harilablt a¢tii-ilies
0()7
607
i eTtib¢i S¢Tvire Ikliv¢ry
105
105
Tolal
15.7*8
?75.X77
.IPF.N'DITLRE ONJ
46.799
46.7W
C.haritJbl¢ aclii itlC5
1?4.515
90.37?
1 ?5.¥37
750.357
(J.37)
hqeniber Service tklivery
oixl
261.686
1 ?5.1137
387.5?3
.NET IN'C'O%IEIIE.¥PkN'DITL.REI
11 I l.(dhl
RLCON'C'II.I.4TION' OTr FbND5
Tuidl lutids bwuLplii lur%4'Jrd
163.029
96.781
2i9.S110
I'0'1'..IL b UND% (-IlRRIFD FORII'JtkD
61.49?
86.67?
14%.1(
PRIOR I'EIlR,IDJLSTIIENT
The priur year balattces hdve been reslaied Iv refle¢1 J M&1 dJjuslEn
11..IC% (Nlitrophthalmia. .4nophthalmia and C-nlolwma %upiMJrll ole5 to Ihi. Tr inJncial %latemenis- cotstinu<'d for the l'ear F.Ddcd 11 Deferr 2023 13. 'r.INc'lBLE FIXED..ISSE'rs Fixiuri Ai l Jaiiuarv ?073 aiid 31 [kL¢mr ?0?3 -5.891 DEPRECltrlTION' Ch¢lT¥L for yeaT 1.098 .41 .4 l Deienibcr ?Ory.I i.-105 L-I. BC)OK I'..ILli b. Ai 3 l DeLembLY 20?3 Ai 31 1)Lceiiib¢T ?02? 1.6%4 DEB'foRS.. AIIOUN'TS F..ILLING DIE II'ITFIIN ONL YEIIR ?023 Oilier dclmorb PrL'paytnen S,087 53.191 3.715 45. i4l) 15. C.RE.DITURS: ,I.IIOLNT% F..11.I.ING DI'.E II'ITIIIN C)NF. I'E.,IR ?0:3 20?? Trade Lrediiors Taxaiion and solial securiiy Other ctL'ililor* 211.45? 4.CIlK) 4.458 3.58f> 37.Sln Page 10
I lilC'S Illitrophthlmii (Inophlhalmia LololJomx.Supporll 011 to the FiJaDcial.St¥tenients- conlinucd for thc l Car Ended 31 Detember 2023 iii futMIs l.'nri'slriLlI'd lunds 48.747 ?.750 36.713 1? 75UI 19.596 95.4<5 (ill iiig FJniiliv* th Break G¥()¥rdi)hiLal 19.596 61.41)2 53.559 Restricted funds PL'Jr% f0uiidaii7 C'hilLIT¢n iji Need VilmLi)IL C'hJriiable TTll%t Pl.- QliaTll4ible l-rv%l Mdry Rubinsun Trus1 C.IF Re%iliei3iL Pha%c C41i'¢rl Ad'tl Break Sdi11sig A-¢li1Ur¢ BT¢ak M¢¢nb¢T Ser¥'ices Ilelpinb Ilands Loial Si)Lials fAC8 M¢el Adrnin OIIILL'r Salary 13 10 ?5 Y¢Jr Old.% in l. 8.667 18.6671 16.IX)61 I I.IKK)I 117.71WI 6.lj3 2?.0¥9 116.6451 5.444 1.914 5.IX>O 1.000 -s.}0 I.IH)O 21).i51 I-O'I'.KL FLN'DS 14¥.164 6.5621 Page ?1
Coloboma Support) otcs to tho Financial StatelI11$- tonlinued for thi. l'ear Ended 315)ecember 20?.1 16. Nei nM>i'enwni in funds. included in Ihe almive are as follows. Rewrce expeiided LArtrIcted [ndS 121 X_14 36.713 1) 7iOI 19.i96 (ie<)¥r&phiLal !%.4$5 119¥.7301 Rcsirittcd fund5 %.500 16.IXK)I 1$001 WilmLoiL C'harttJble TTU%I PF- ('liariiabl¢'fnJs1 I taT>' liobinson rt¥Jsi C'AF Resili¢ii¢L Phas¢ L'aSi ert- RldN'cniure Break Sailin¥- A(lieiiiu¥e Break leivber Se¥ksi¢s 15001 11.o(Kii 117.7091 11.OOOi 117.7(>91 13.94% IC)n.4YXI l_thdl Solidls MACSM Ie¥is Acliiiin ()niier Sala l J kn )5 Y¥dr 01. L(dn 117.15861 5.000 -%.Ixio 'TOl'IlL FLND 344 6.56? Loiiiiiiued...
I.ICS l%licrophthglmia..IDophthalmia Coloboma Sopport} 011.5 io the Fin2ncial %tg1i'ments- conlinui'd for ihc I'car £Dded 31 Dccember I13 16. I IlJI''1II-1- IN F'LNDS. LlblltiDued Lumpar#iiii'5 for moi"emtni in fuiids ei Tiaii%f¢r5 moieinfflil in flind% riinds Lnreslritled funds 63.0?y 80.(KKI ?0.¢ 184.?¥7) %II.(MKI {SO.IA)OI (ill'ln¥ Familie% a Breiik 17.250 163.029 1101.-537} 61.4yTr Reslricted funds P¢ar% louiidaiioii Childreii in X'eed ViltlliOl¢ Ch%iriiabli Trst PF C-hariiable l-rusi ry Robi11sL)n Trnsl C'AF. R¢%ilienc¢ Ph& SJilii?¥- Adkenlui¥ Break IL.1b¢'r Seri iles 8.667 8.667 ().90fi Éo(I 7.10 77.708 59.9991 6_1?3 2?.0¥9 17.70¢) M.4C'S M¥tls 3.568 3.56¥ 96.7141 110.109 86.67) 'roT,IL FINDS 1$9.810 148.164 Pave ?3
Il¢lC.-% Illirrophthalmi%..lllDphlhalmia gnd colobornz.%pport} utcs tts ihe lIban¢1] Sl*teinentS- Colitinued ror the l'ear Ended JI December 2023 16. I ICII'ELIITr'N'T IN FL.&DS- cunlinued CumrMralLve nei Mov¢nnI in furtiis. Jncluded in the #rr a% follow4.. IILomiiig Rc4uurce5 expended LnrL'5tritled fund5 100.149 1?44.4361 184.7B71 117 1.SO1 Gii'inb FJinilie5 a Bredk l(rfb.149 1:61.680 Rc51ri¢tcd fund5 CKIF Re%iliLIILe PIINse_ ('ul%'eri- Adiejiture BTeaK Sailing- Adi'eniuTe Break feinber SL'fviLe ?9.U30 2).41KI 8.?05 IX¥.O?91 1 ??.400 l?U¥!I 151).4991 f5.123 7?.08Y MACS Flvlidtsy LLKal Sfvials MAC'S Mel1 Adn)In ()fFiier Salary (Inli1 A¢tiviite$ 1.51)0 20.500 3.90! i.000 5(M> I l.ilX)I 12.3901 11.141 15.0001 1500 15.7!8 175.8371 TOT..IL FIINDS ?75.877 13X7.%?31 11 I1.()461 PagL 74 Loniii)ued...
11..ICS l.Ilierophthalmia4 ilnophthalmi¥ Coloboma Suppurl) for the I'txy JI December 20LI Ib. IOI'£IITr.N'I' IN I.-LN4DS- continui.d .4 iikrrLII yLar 12 nithiihs and prior year l ? movihs. roinhived p)5iiinn is &% li)Ilow%= Nei Traiil¢r At in furnls l.'nre%lricted fund5 63.079 XO.O(Ml 147 5741 8V.(l 111(I.(KKII 95.45_S -JiiiiI W'eek-L'nd (i¢u&irdphiLal 163.029 147.9781 Reslrirted 8.667 IX.6671 16.Y061 C'hililr¢ll ili Nttd Wilin¥(iie Chariiabie TTLL%i PF Chari141 ble Triisl lJry Robinson I'nist C..Il= Rk'511iL'nLL Ph41%L' C&lbiri- .dtillIlrC Break. Ser% ILe SI 11.ow) 177.70111 77.708 7.750 5.444 X.?96 ¥.296 1.9?4 L£31 %uLial .4(Iiiiin oifiieT Salary 13 115 7$ I'Ltir Olds in Londun 96.781 70.7_101 26.551 TOT.IL FUNIDS ig.810 141.hl)? Page 5 LL)niiiiuthl...
,%I.IC'S I,Ilicrophth8lmi. tlnophlhalmia and Cplolioma Suppurt -NotC5 to Ihe Fin#ntial.Sticnienls- continued for Ihe I'e4r F.iid¢d 11 DeCeber V02.1 16. A iurrliii I I t[11¢h% privr y[ I? twnths comb1td mofvemtni in lunds. tiiiluded In ihe aLyii'e are a IIiLoniin resuuries ReM)urLY4 eipendLxl Lllrestrirted 3S3.983 lJ31 5571 147.5741 GE121¥ 1'-amilies a Brtrak 28.455 X.¥5YI 19.SV6 41 ?.438 I41.416) 147.9781 Ristriclid funds ljears luundation Cliildreii in Nted Wilm¢uie Chanlable'fnjsl PF Cliarithble TnL%I lary RobiiiNuii Tru%i CAF ResilienLL' Phd4e_ Cal%Èri Adviiiiure Break -8itilin£ AdNenluTe BTLk Mi'imber S¢rviLe ¥.iOO 18.6671 1().9061 16.()0(?I I?.(KN)I 11.(KK)I 106.73x1 13i.5YXI 29.03 3A.-148 177.7U81 65.944 14.¥96 1.5¢MI ?.( 6.1139 10.¢MxI 160.51X)I Mklcs IlvlidJy 11.5(M)I 120.07fy1 NIAL'S M<eis Acliilin ()fliier %alaTr' 1S.(KM) 15001 5.1100 13 14? ?% I'L'Ar in Lonth i.u( 1279.?5?1 170.2301 TOT,11. FI'.ND5 6?1.460 739.66%1 1118 ?081 Piitpu&es ufre%lJLied futMIs FvundJliun- L'onlnbuLlOrt ioiiJnls ialary cosli for Ilie Rebiional Coordinalw. C'hildren in eld- Delivery ol'a i oun¥ per%LYJs ¢1111¥ £. WiliiiLOlt C'hariiable Trusi- R¢%iriiEed for Laliell aLlii"1lv break. PF C'harilable Tru51- R¥%lriLied I( Cal¥effl aLllI'ily break. lary Rvbiiisthi Tru%1 - Re4riiied ii'ork Iii iN4Tri1in¥hani.'EL Midland5. SdiliD¥- ie4iriiied for adieniure br¥¥k speLifically for mtmbers. 41 ihe Sailiiig ITIP CktF RL'%IIIvLlli Plid5e l &. l . RebirtLied for Cowid eDie[u(Y r¢s5e. ('alvtn- FuiidN resiriiied ICIT 3dl"eniu break %pecifiLallv ltsr mLmik"r% aiiendin¥ Calken IL Triber% %eTi ILes- Fuiids rL¥iriLILxI io any InL'n?ber 5eTh iiti li% iiies FIL'lpinL hatid- fuiid% reilTiiILd 10 Iht purLh&%¢ ofs¢Thice4 ur w(MIuLls loi memters in of linaniithl sijpport in lin¢ iiih helpinbl hand pulicv. I IdLS livliLlas.. fiiiiiL% re%iriiied lo puirha¥e of holiday %ouchers for niembers in iiecd or rinJniial %upporr loal(l4 a fatiiily bl'eak. ID 15De lth nur holsdaj iOULhet tkiliLy. LULJI luJid% r¢sLriiied Lo NIACS eienis limiied io a geogtaphiral IoLJlivn. P¥e ?6 Loniinu¥d...
11.IC-S IllicrophihdlmA#. tlnophlhalmia and (.lObOa Support) .NDtts lo 15¢11.%ltemtatS- continued for the l'ear l.nrted JI Dcrembcr 2023 )l{)l-Eili IEII. IN &"L')DS- tontittued IA(-S iii¥¢l%- r¢grI¢lL to dlly LUS15 1311¥ 10 Ihe or¥aniitng and ruNiing ol'a 11.4C-S JTK-CI. Ildniip oifiL¢I lI[)- CvnirLbulLUlJ luiiords ihL stiltiry cu%ls ofihe Adi1Th 0ITi&U. C)nliJie aLliviiie%- Fundiiig re%iriiied IOT Ihe puryM)N¢ ofiJnlin¢ aLiii 11se% iu ioniiibuiv lu LhdriidblL' obJrilifvL's. 13 10 ?5 yrar ol(Ls Loon- R¢%iTiLi¢d fund chdntsble aLiiviiies in Lond. Purpuses ol'deslgyna fun(is Lieu¥rdphiLal- Desislnaied 10 MAC5 elenis aai%iiies limi1 to a ¥e¢yaphi¢al I110. 17. RF.I.,I"I'kD P.,IR'fi' DJSCLOSI'RES Oiie in¢mber i!0!?: I l ofLh¢ BoJtd ofT¥ustee5 iknnated a iotsl of£i¢M) duriiig thL yew. l!O!?: Ll(Kll. Page ?7