Lynch Syndrome UK
Charity Number 1161840
Statement of Accounts
for the Year Ended 31 May 2024
Stables Thompson & Briscoe Chartered Accountants
Lynch Syndrome UK
Contents Page
| Page | ||
|---|---|---|
| Charity information | 1 | |
| Trustees Report | 2 | - 4 |
| Accountant's report | 5 | |
| Receipts and payments account | 6 | |
| Statement of assets and liabilities | 7 | |
| Notes to the accounts | 8 |
Lynch Syndrome UK
Charity Information
| Charity number 1161840 | |
|---|---|
| Trustees | J Martin |
| D Hollingworth | |
| H Bates | |
| H Bufton | |
| M Cooper (resigned in July 2024) | |
| T Smith | |
| P Secret | |
| Registered office: | Linden House |
| 9/11 Main Street | |
| Ingleton | |
| Carnforth | |
| Lancashire | |
| LA6 3EB | |
| Bankers: | Barclays Bank |
| 9 Highgate | |
| Kendal | |
| Cumbria | |
| LA9 4DF | |
| Chartered Accountant | Stables Thompson & Briscoe |
| Chartered Accountants & Statutory Auditors | |
| Lowther House | |
| Lowther Street | |
| Kendal | |
| Cumbria | |
| LA9 4DX |
Page 1
Lynch Syndrome UK
Trustees Report for the year ended 31 May 2024
The trustees present their report and the financial statements for the year ended 31st May 2024.
Reference and administrative information set out on page 1 forms part of this report. The financial statements comply with current statutory requirements and the Statement of Recommended Practice - Accounting and Reporting by Charities. As a small charity the trustees have prepared the accounts on a Receipts and Payments basis.
Structure, governance & management
The organisation is a charitable incorporated organisation (CIO) - Foundation Registered 26th May 2015. The charity was established under the objects.
All trustees give their time voluntarily and receive no benefits from the charity. Any expenses reclaimed from the charity are set out in the financial summary.
Objectives and Activities
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To promote and protect the good health of people and the families effected by Lynch Syndrome for the public benefit through support, information and increased public awareness and such other means as the trustees deem fit.
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Nothing in this constitution shall authorise an application of the property of the CIO for the purposes which are not charitable in accordance with Section 7 of the Charities and Trustees Investment (Scotland) Act and Section 2 of the Charities Act (Northern Ireland) 2008. Public benefit focus on ensuring that our activities achieve our charitable aims.
Public Benefit focus on ensuring that our activities achieve our charitable aims
The trustees confirm that in planning Lynch Syndrome UK's activities, they have considered how Lynch Syndrome UK has fulfilled its charitable objectives. The Trustees do not identify any possible detriment or harm arising the activities of the charity.
The trustees have referred to the guidance contained in the Charity's Commission's general guidance on public benefit reviewing the charity's aims and objectives and in planning its future activities. In particular, the trustees consider how activities will contribute to the aims and objectives that have been set.
Beneficiaries of our services
Lynch Syndrome UK direct beneficiaries are any person who has Lynch Syndrome and their families and friends.
Charitable activities in the past year
Lynch Syndrome UK is a registered charity stemming from a long running support group on Facebook. Our many members are passionate about our cause to educate and empower people living with this genetic condition and offering support to both themselves and their families when they need it most. Lynch Syndrome UK aims to ensure that for the public benefit, people and their families affected by Lynch Syndrome are provided with support in the form of information, signposting and listening, also to increase public awareness of Lynch Syndrome.
Our vision is that all people affected by Lynch Syndrome in the UK have access to standardised screening, thus enabling prevention of the development of cancer and early diagnosis enabling survival. A lot of work this year has been aimed at making this vision come to fruition through work with NHS England. Further work is planned with both NHS Wales and Scotland.
Lynch Syndrome UK is an all-volunteer organisation and is founded and governed by Lynch Syndrome survivors and their families. The charity is dedicated towards protecting families and saving lives of those at high risk due to a hereditary predisposition to various cancers which often strike at an early age.
If diagnosed early, we believe Lynch Syndrome survivors have positive outcomes which enhance survival, the longevity and quality of life as well as the emotional wellbeing of those of us who are affected by Lynch Syndrome.
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Lynch Syndrome UK
Trustees Report for the year ended 31 May 2024
The charity's aim is to be the leading source of information and support for individuals and families affected by Lynch Syndrome in the UK. Considering, this context the charity has delivered the following activities to achieve its charitable objectives:
Training and Events
•Lynch Syndrome UK continued to work with the NHS National Lynch Syndrome Oversight Group which was co-hosted by North Thames and South East Genomics. The work with the Oversight group has continued throughout the year and purpose is to streamline NHS care in England. Tracy Smith has been working on this project from its inception and attended all meetings as the face of the charity and as from a patients perspective. Work is still ongoing.
•PRESCORES Study with Dr Ranjit Manchanda
•Bowel Cancer Screenjng Programme- Lunch and Learn sessions over a course of 8 weeks
•Protect-C a research study offering genetic testing to people to see whether they have a genetic change that increases their risk of breast, ovary, bowel, and/or womb cancer. This is regardless of whether they or their families have had cancer. The study is being coordinated by the Women’s Precision Prevention clinical research team from the Wolfson Institute of Population Health, Queen Mary University of London, and funded by Yorkshire Cancer Research
•EHTG meeting in Vilnius- 3 day conference highlighting current and ongoing research into LS. We took part in the patient participation day to showcase the UK’s patient information database and work that we have collaborated on.
•Collaboration with RM Partners, Imperial and Fruitfly Collective on the design of three new resources for patients. Colorectal cancer, Endometrial Cancer and the Family Gene Kit.
•Collaboration with the Polyposis and LS enrichment team which focuses on education for Primary Care services. The work they do is to highlight getting correct coding in GP surgeries which links LS patient records to their screening and surveillance information. We are working alongside a consortium of GP’s across the UK to educate surgeries implementing correct codes. We are also working alongside the supply companies in order to get correct codes on
•Oxford PPI Lynch Vaccine project- Meetings with Dr David Church and Dr Francoise Howe about the development of a vaccine for patients with LS.
•Work with BCUK on the state of services provided to LS patients.
•LSUK Annual Conference
•Collaboration with our European Partners and the sharing of resources across Europe and the UK
•Collaboration with the South East NHS services in providing better Patient information for patients across the south east
•East of England BCSP SSP education and development day. Guest speaker providing a lived patient’s experiences of
•Oncology in Professional Care Conference. Guest speaker providing information from diagnosis to treatment and ongoing
Help and Advice
Our information service delivered through the website and social media offers free support and key information to people with Lynch Syndrome and their families. Medical professionals are also members of our social media groups.
Our website remains an important source of information and support for the public, to either self-serve or be signposted third-party services and websites.
Page 3
Lynch Syndrome UK
Trustees Report for the year ended 31 May 2024
Membership
Social Media
Our highest performing and most influential channel was the Facebook support group, which has reached a membership of over 3.5k people. This is a high and significant figure in terms of the number of individuals that have gained access to the content. Numbers continue to increase at a steady rate each year.
Partnership Working
Partnership and collaboration is key to Lynch Syndrome UK being able to deliver its aims. We simply could not provide the range and level of support without the help of our growing number of partner organisations that we work with.
How Lynch Syndrome UK is run
The Trustees
The trustees meet three times a year and all meetings have been online with full attendance. With a small organisation and group of trustees, Lynch Syndrome UK does not work through formal sub-committees. Instead, the trustees meet periodically to progress operational matters and prepare for forthcoming meetings.
Existing trustees, are voted in by other trustees and members if they are to remain within their existing post. When a trustee position becomes available, as Trustees we firstly approach people who have expressed an interest or have given their time to help and support LSUK. We then discuss and nominate as to who we consider to be beneficial to the charity and offer the position.
At this moment, all trustees give their time on a voluntary basis. It is accepted that once we grow, it will become necessary to look further afield for people with certain skill sets.
Volunteers
Their contributions have been invaluable and we thank them enormously.
Financial Results
The charity had a surplus of £3,235 this year. This was raised by donations and fundraising. The total expenditure was £12,284 which included £7,895 for the conference this year. The charity had funds in the bank at the year end of £98,034.
Reserves Policy
The charity aims to have enough funds in the bank to pursue the objects of the charity, such as raising awareness through conferences and literature. Given the last two years, the trustees do not feel that the amount of reserves held is excessive.
The financial statements were approved and authorised for issue by the Board on …................................
Signed on behalf of the board of trustees
…........................................
J Martin Trustee
Page 4
Chartered Accountants' Report
to the Trustees of Lynch Syndrome UK
In accordance with the engagement letter dated 2 February 2018, we have prepared for your approval the financial information of Lynch Syndrome UK for the year ended 31st May 2024 which comprises The Receipts and Payments Account, Statement of Assets and Liabilities and associated notes from the entity's accounting records and from information and explanations you have given us.
As a practising member of the Institute of Chartered Accountants in England and Wales (ICAEW), we are subject to its ethical and other professional requirements which are detailed within the ICAEW's regulations and guidance at http://www.icaew.com/en/membership/regulations-standards-and-guidance.
You have approved the financial information for the year and have acknowledged your responsibility for it, for the appropriateness of the financial reporting framework adopted and for providing all information and explanations
We have not verified the accuracy or completeness of the accounting records or information and explanations you have given to us and we do not, therefore, express any opinion on the financial information.
Use of Our Report
This report is made solely to you, in accordance with the terms of our engagement letter dated 2 February 2018. Our work has been undertaken solely to prepare for your approval the financial information of Lynch Syndrome UK and state those matters we have agreed to state to you in this report in accordance with ICAEW Technical Release 07/16AAF. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the trustees for our work or
Stables Thompson & Briscoe Lowther House Kendal Cumbria LA9 4DX
Date:
Approval of Financial Information
In accordance with the engagement letter dated 2 February 2018, we approve the financial information which comprises The Receipts and Payments Account, Statement of Assets and Liabilities and associated notes. We acknowledge our responsibility for the financial information, including the appropriateness of the applicable financial reporting framework as set out in note 1, and for providing the accountants with all information and explanations necessary for its compilation.
Signed on behalf of the board of trustees
…........................................
J Martin Trustee
Page 5
Lynch Syndrome UK
Receipts and Payments Account for the Year Ended 31 May 2024
| Voluntary Income: Grants and donations 2 Activities for generating fund 3 Total Receipts Payments Advertising, website and PPS Conference Costs Stock Purchases and postage PayPal fees Computer costs (incl Zoom) Donations Sportsmedia Agency membership Accountancy Total Payments Net of payments/receipts Transfers between funds Cash funds last year end Cash funds this year end Receipts Notes |
Unrestricted funds £ 15,519 - 15,519 1,801 7,895 2,588 - - - - - 12,284 3,235 - 94,799 98,034 |
Restricted Designated funds funds £ £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - 2024 |
£ 15,519 - 15,519 1,801 7,895 2,588 - - - - - 12,284 3,235 - 94,799 98,034 Total Funds |
2023 £ 18,567 133 18,700 1,477 5,838 4,085 - 96 200 1,500 546 13,742 4,958 - 89,841 94,799 Total |
|---|---|---|---|---|
The notes on page 8 form part of these financial statements.
Page 6
Lynch Syndrome UK
Statement of Assets and Liabilities as at 31 May 2024
| Notes Cash Funds Barclays - Current Account PayPal Account Debtor Cash funds are split as follows: Restricted funds Designated funds Unrestricted funds |
£ £ 94,680 3,354 98,034 - - 98,034 - - 98,034 98,034 2024 |
£ £ 92,424 2,375 94,799 - - 94,799 - - 94,799 94,799 2023 |
|---|---|---|
The financial statements were approved and authorised for issue by the Board on …................................
Signed on behalf of the board of trustees
…........................................
J Martin Trustee
The notes on page 8 form part of these financial statements.
Page 7
Lynch Syndrome UK
Notes to the Accounts for the Year Ended 31 May 2024
Note 1
Accounting policies
a) Basis of preparation
The financial statements have been prepared in accordance with the Statement of Recommended Practice - Accounting and Reporting by Charities. As a small charity the trustees have prepared the accounts on a Receipts and Payments basis. The financial statements are prepared in sterling, which is the functional currency of the charity, and rounded to the nearest £.
The significant accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all years presented unless otherwise stated.
b) Going Concern
The trustees consider that there are no material uncertainties about the charity's ability to continue as a going concern.
| Note 2 Grants and Donations 2024 £ Unrestricted: Misc. donations 8,255 Conference 932 Chewbacca Donation - Golden Giving 5,395 Amazon Smile - Barclays donations 550 Charities Trust 387 15,519 Note 3 Activities for generating funds 2024 £ Online shop income - - Note 4 Trustees remuneration No trustees received remuneration or expenses in the year. Note 5 Related Party Transactions |
2023 £ 13,050 663 - 3,902 447 - 505 18,567 2023 £ 133 133 |
|---|---|
There were no related party transactions in the year.
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