Lynch Syndrome UK
Trustses Report for the year ended 31 May 2021
The truste¢8 meet fouT times a year but due to Tro¢kdo*i all meetin88 have been online with full att¢ndan¢¢. Witb a SDMII
organiMtion and gmup of Lch Syndrome UK does not work throu8b fonnal sul>¢on)mitt¢es. Instead, the
me¢¢ p¢riodi¢ally to prwtss opmtiojwl matters and Prepare for forthcon8 m¢¢titip.
Th¢ir contributions have b¢¢n inv8luabl¢ aDd we thank th¢m ¢nornwly.
The ¢hartty had a Surplus of £l1.520 thi$ y¢ar. This w4s rnis¢d by donation4 fimdrai8in8 and 88ks of mer¢h8ndi¥¢.
The total ¢xpendityre was £3,633 as there w8s no ¢onferNe this y¢ar.
Th¢ ¢harity funds in the bank at the year end of £48,718,
The charity aimy to h#ve ¢nou8h fimds in the bank to pwsu¢ the objects of the ¢barity. such as rai8in8 awarenejs througb
¢onference8 and liternttwt. Given the lost two ye•rs. th¢ trustees do noi f¢¢1 that the amount of re3erYes held 18 ¢XC¢6sive.
Ollr tru51ee8 81¢ responsible for preparing the Teport of the Tnwtees, and the financiAI slatements in a¢cordance with
Bpplicabl¢ law and Charity Commission guidance and rcquiremenlB.
The twstees have prepared the financial ststem¢nts which give true and fair view of the state of affairs of the charity and ot
the in¢omin8 re80urces and appli¢8tion of resources, in¢ludin8 the income aftd expenditur¢. of the charity for thai period.
In pryMrsD8 these financial gtstements. trustees are required to..
Select 8uithble accountiD8poli¢i¢s And apply them ¢onsistently
- Ob8erv¢ the methods and principles in the CbarÉtie$ SORP
- Mth jud8ements and tiMte5 that are tea50nabl¢ and prydenl
- Prewe the fm4ncial 8tstements OD the going concern basis un1¢8S it 18 ioappropri4te to prsume that the
¢harity will ¢ontinu¢ in operation
The Inthe$ are re8ponBibl¢ for keeping proper a¢¢ounti08 trcords that di8cIo8¢ with reagonable accuTacy at 4Dy time the
financial position of the cherity and eD8ble them to enswe thal tb¢ fthancial ststements comply with the Clwity Commi881C
requiremeDts. They gre a]80 respoDsibl¢ for $afe8uardin8 the ass¢ts of the clwity and hence for t&king reosonable Steps fr
the Prevention ond detection of fr4ud oth¢r iThegularities.
Ill w f•r A8 the trllste *r¢ •ware:
- The trustees are r¢sponsible for the maintrnance and integrity of the corpora* and financial information includ
OD thc chariws website. L¢gislation in th¢ United Kingdom 8ov¢rninB th¢ preparation and di&semination of th¢
finallcial $tst¢ments may differ from legislations in other jurisdictions
9t, N 9092
I¥CUI
J Martin
Tntee
Page 4
## **Lynch Syndrome UK**
Charity Number 1161840
## **Statement of Accounts**
**for the Year Ended 31 May 2021**
Stables Thompson & Briscoe Chartered Accountants
## **Lynch Syndrome UK**
## **Contents Page**
||Page||
|---|---|---|
|Charity information||1|
|Trustees Report|2|- 4|
|Independent examiner's report||5|
|Receipts and payments account||6|
|Statement of assets and liabilities||7|
|Notes to the accounts||8|
## **Lynch Syndrome UK**
## **Charity Information**
|**Charity number 1161840**||
|---|---|
|Trustees|J Martin|
||D Hollingworth|
||H Bufton|
||M Cooper|
||T Smith|
||P Secret|
|Registered office:|Linden House|
||9/11 Main Street|
||Ingleton|
||Carnforth|
||Lancashire|
||LA6 3EB|
|Bankers:|Barclays Bank|
||9 Highgate|
||Kendal|
||Cumbria|
||LA9 4DF|
|Independent examiner:|H Holmes FCA|
||Stables Thompson & Briscoe|
||Chartered Accountants & Statutory Auditors|
||Lowther House|
||Lowther Street|
||Kendal|
||Cumbria|
||LA9 4DX|
Page 1
## **Lynch Syndrome UK**
## **Trustees Report for the year ended 31 May 2021**
The trustees present their report and the financial statements for the year ended 31st May 2021.
Reference and administrative information set out on page 3 forms part of this report. The financial statements comply with current statutory requirements and the Statement of Recommended Practice - Accounting and Reporting by Charities (SORP 2015)
## **Structure, governance & management**
The organisation is a charitable incorporated organisation (CIO) - Foundation Registered 26th May 2015. The charity was established under the objects.
All trustees give their time voluntarily and receive no benefits from the charity. Any expenses reclaimed from the charity are set out in the financial summary.
## **Objectives and Activities**
1. To promote and protect the good health of people and the families effected by Lynch Syndrome for the public benefit through support, information and increased public awareness and such other means as the trustees deem fit.
2. Nothing in this constitution shall authorise an application of the property of the CIO for the purposes which are not chari in accordance with Section 7 of the Charities and Trustees Investment (Scotland) Act and Section 2 of the Charities Act (Northern Ireland) 2008. Public benefit focus on ensuring that our activities achieve our charitable aims.
## **Public Benefit focus on ensuring that our activities achieve our charitable aims**
The trustees review the aims, objectives and activities of the charity each year. This report looks at what the charity has achieved and the outcomes of its work within the last twelve months. The trustees report the success of the key and the benefits the charity has brought to those groups of people that it is set up to help. The review also helps the trustees ensure the charity's aims, objectives and activities remain focused on its stated purposes.
The trustees have referred to the guidance contained in the Charity's Commission's general guidance on public benefit reviewing the charity's aims and objectives and in planning its future activities. In particular, the trustees consider how activities will contribute to the aims and objectives that have been set.
## **Beneficiaries of our services**
Lynch Syndrome UK direct beneficiaries are any person who has Lynch Syndrome and their families and friends.
## **Charitable activities in the past year**
Lynch Syndrome UK is a registered charity stemming from a long running support group on Facebook. Our many members are passionate about our cause to educate and empower people living with this genetic condition and offering support to both themselves and their families when they need it most.
Lynch Syndrome UK aims to ensure that for the public benefit, people and their families affected by Lynch Syndrome are provided with support in the form of information, signposting and listening, also to increase public awareness of the
Our vision is that all people affected by Lynch Syndrome in the UK have access to standardised screening, thus enabling prevention of the development of cancer and early diagnosis enabling survival.
Lynch Syndrome UK is an all-volunteer organisation and is founded and governed by Lynch Syndrome survivors and their families. The charity is dedicated towards protecting families and saving lives of those at high risk due to a hereditary predisposition to various cancers which often strike at an early age.
Page 2
## **Lynch Syndrome UK**
## **Trustees Report for the year ended 31 May 2021**
If diagnosed early, we believe Lynch Syndrome survivors have positive outcomes which enhance survival, the longevity an quality of life as well as the emotional wellbeing of those of us who are affected by Lynch Syndrome.
The charity's aim is to be the leading source of information and support for individuals and families affected by Lynch Syndrome in the UK.
In light of this context the charity has delivered the following activities to achieve its charitable objectives:
## **Training and Events**
• In March and April, as Lynch Syndrome UK could not hold their national conference in people due to lockdown restrictions, webinars were held for the support group which currently has over 2.3k members. Many people attended and heard information from healthcare professionals regarding the ground-breaking work being undertaken to identify and provide screening for people with Lynch Syndrome. Webinars were recorded for further viewing later so those unable to attend could access the information too.
• Several the trustees in the past have attended Patient Information Days at Genetic centres to provide information regarding the charity and what we can do to support people with Lynch Syndrome and their families. This year all meetings were held virtually and directly to patients and have also taken part in student educational webinars directly with
• The Charity website holds a great deal of patient information and leaflets can be ordered free of charge
• The Charity has been working closely with St Mark’s hospital to produce a new Lynch Syndrome Passport. This document is a booklet that allows patients to record their healthcare and take along to clinician appointments and have access to it themselves. This booklet is provided to all patients and their families free of charge.
## **Help and Advice**
1. Our information service delivered through the website and social media offers free support and key information to people with Lynch Syndrome and their families. Medical professionals are also members of our social media groups.
2. Our website remains an important source of information and support for the public, to either self-serve or be signposted third-party services and websites.
## **Membership**
## Social Media
Our highest performing and most influential channel was the Facebook support group, which has reached a membership of over 2.3k people. This is a high and significant figure in terms of the number of individuals that have gained access to the c Numbers continue to increase at a steady rate each year.
## **Partnership Working**
Partnership and collaboration is key to Lynch Syndrome UK being able to deliver its aims. We simply could not provide the range and level of support without the help of our growing number of partner organisations that we work with.
## **How Lynch Syndrome UK is run**
## Public Benefit
The trustees confirm that in planning Lynch Syndrome UK's activities, they have given careful consideration to how Lynch Syndrome UK has fulfilled its charitable objectives. The Trustees do not identify any possible detriment or harm arising the activities of the charity. Page 3
## **Lynch Syndrome UK**
## **Trustees Report for the year ended 31 May 2021**
## **The Trustees**
The trustees meet four times a year but due to lockdowns, all meetings have been online with full attendance. With a small organisation and group of trustees, Lynch Syndrome UK does not work through formal sub-committees. Instead, the meet periodically to progress operational matters and prepare for forthcoming meetings.
## **Volunteers**
Their contributions have been invaluable and we thank them enormously.
## **Financial Results**
The charity had a surplus of £11,520 this year. This was raised by donations, fundraising and sales of merchandise. The total expenditure was £5,633 as there was no conference this year. The charity funds in the bank at the year end of £48,718.
## **Reserves Policy**
The charity aims to have enough funds in the bank to pursue the objects of the charity, such as raising awareness through conferences and literature. Given the last two years, the trustees do not feel that the amount of reserves held is excessive.
## **Statement of Responsibility of the Trustees**
Our trustees are responsible for preparing the report of the Trustees' and the financial statements in accordance with applicable law and Charity Commission guidance and requirements.
The trustees have prepared the financial statements which give true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure, of the charity for that period.
In preparing these financial statements, the trustees are required to:
- Select suitable accounting policies and apply them consistently
- Observe the methods and principles in the Charities SORP
- Make judgements and estimates that are reasonable and prudent
- Prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Charity Commissio requirements. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps from the prevention and detection of fraud other irregularities.
## **In so far as the trustees are aware:**
- The trustees are responsible for the maintenance and integrity of the corporate and financial information include on the charity's website. Legislation in the United Kingdom governing the preparation and dissemination of the financial statements may differ from legislations in other jurisdictions
……………………………………..
Date:
J Martin Trustee
Page 4
## **CCAB Accounts Compilation Report**
## **to the Trustees of Lynch Syndrome UK**
Report to the trustees on the preparation of the unaudited statutory accounts of Lynch Syndrome UK for the year ended 31st May 2021.
In order to assist you to fulfil your duties, we have prepared for your approval the accounts of Lynch Syndrome UK for the year ended 31st May 2021 from the accounting records and from any information and explanations you have given
As a practising member of the Institute of Chartered Accountants in England and Wales, we are subject to its ethical and other professional requirements which are detailed at www.icaew.com.
This report is made solely to Lynch Syndrome UK in accordance with the terms of our engagement letter dated 2nd February 2018. Our work has been undertaken in accordance with the requirements of the Institute of Chartered Accountants in England and Wales as detailed at www.icaew.com. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than Lynch Syndrome UK.
It is your duty to ensure that Lynch Syndrome UK has kept adequate accounting records and to prepare statutory accounts that give a true and fair view of the assets, liabilities, financial position and profit of Lynch Syndrome UK. You consider that Lynch Syndrome UK is exempt from the statutory audit requirement for the year.
We have not been instructed to carry out an audit or a review of the accounts of Lynch Syndrome UK. For this reason we have not verified the accuracy or completeness of the accounting records or information and explanations you have we do not, therefore, express any opinion on the statutory accounts.
**Stables Thompson & Briscoe Lowther House Kendal Cumbria LA9 4DX**
**Date:**
Page 5
## **Lynch Syndrome UK**
## **Receipts and Payments Account for the Year Ended 31 May 2021**
|Voluntary Income:
Grants and donations
1
Activities for generating fund
2
Paypal account brought in
3
Total Receipts
**Payments**
Advertising, website and PPS
Conference Costs
Stock Purchases and postage
PayPal fees
Computer costs (incl Zoom)
To be repaid
Accountancy
Total Payments
Net of payments/receipts
Transfers between funds
Cash funds last year end
Cash funds this year end
**Receipts**
**Notes**|**Unrestricted**
**funds**
£
12,046
1,528
3,579
17,153
814
-
3,273
22
558
126
840
5,633
11,520
-
42,336
53,856|**Restricted**
**Designated**
**funds**
**funds**
£
£
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
**2021**|£
12,046
1,528
3,579
17,153
814
-
3,273
22
558
126
840
5,633
11,520
-
37,198
48,718
**Total Funds**|**2020**
£
6,547
-
-
6,547
992
5,766
4,161
-
52
-
714
11,685
(5,138)
-
42,336
37,198
**Total**|
|---|---|---|---|---|
Page 6
## **Lynch Syndrome UK**
## **Statement of Assets and Liabilities as at 31 May 2021**
|**Notes**
**Cash Funds**
Barclays - Current Account
Paypal Account
**Debtor**
**Cash funds are split as follows:**
**Restricted funds**
**Designated funds**
**Unrestricted funds**|£
£
40,757
7,961
48,718
126
126
48,844
-
-
48,718
48,718
**2021**|£
£
37,168
30
37,198
-
-
37,198
-
-
37,198
37,198
**2020**|
|---|---|---|
Page 7
## **Lynch Syndrome UK**
## **Notes to the Accounts for the Year Ended 31 May 2021**
|Note 1
**Grants and Donations**
**Unrestricted:**
Misc donations
Grants - conference
Note 2
**Activities for generating funds**
Online shop income
Note 3
**PayPal balance**|**2020**
12,046
-
12,046
1,528
1,528|**2019**
6,547
-
6,547
-
-|
|---|---|---|
No statements were received for PayPal last year, so the balance at 31 May 2020 was understated by £3,579 which has been brought into the accounts this year. This will have been a combination of sales and donations.
Note 4 **Trustees remuneration**
No trustees received remuneration or expenses in the year.
Page 8