LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP ANNUAL REPORT & FINANCIAL STATEMENTS FOR THE YEAR ENDED 30TH APRIL 2024 Charity Registration No. 1161738
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP CONTENTS Pag• Trustees, Annual Report Statement of Financial Activities Balance Sheet Notes to the Flnanclal Statements
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH TRUSTEES'ANNUAL REPORT FOR THE YEAR ENDED 30 APRIL 2024 The trustees present their report and financial statements for the year ended 30th April 2024 for the Charitable Incorporated Organisation. The financial statements have been prepared in accordan(% with the charity's trust deed, the Charities Act 2011 and Accounting and Reporting by Charities.. Statement of Recommended Practice applicable to charities pparIng their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland published (FRS 102) (effective 1st January 2019). OBJECTIVES AND ACTIVITIES To support and advise those affected by Sickle Cell disorder and Thalassemia. We aim to educate and give information to the public to create awareness about this condition. We also aim to visit affected people in hospitals and act as an advocate for them in health and social car8. We also visit m8mb8rs' homes to offer support and informatb)n on dealing with minor symptoms which don't need hospitalization. We also support all individuals with the condition on how to cope with this debilitating condltlon including support for their carers too. We aim to organize trip5 and activities as a form of respite for the sufferer5 and their careers, that is if we have enough funding. Public Benefit The Trustees acknowledge that the Charitable Incorporated Organisation complies with Section 4 of the Charities Act 2006 regarding providing a public benefit. ACHIEVEMENTS AND PERFORMANCE We continue to have our monthly Group meeting, also we offer support and advice during these meetings. These meetings are held every Friday of the Month except in August and December, The trustee had their first zoom meeting on 1510512023 to discuss upcoming events as we did not have enough funding for the events. This was an urgent meeting to appeal to Award for all to re- assess our application for funding which In the end they agreed to fund us. We managed to update our information leaflet and added a scan code whlch will go direct to our just give account. Included on our leaflet is our social media platforms e.g. Twitter, Face Book and Instagram account. We managed to purchase our public liability insurance for the whole year In October 2023 We also managed to purchase a sum up contactless payment card reader. 1710612023 and 1810612023. Many members attended the Africa Oye Festival in Sefton Park. We shared a stall with Path lab and another organization. We had all our banners and leaflets, raising awareness of this debilitating condition to the Liverpool Community and visitors attending the festival. It was a very popular stall. Although our bank balance was very low, we managed to buy awareness pens, we ordered more leaflets from our supplier and engraved small bottle openers. It was a difficult year for the support group, our costs were paid off by Path lab., we only contributed £100 towards the cost of the venue canopy and chairs. Food arKI drinks were donated by all the Trustee and some members who could afford. Funmi Dairo the visa Chair of the group was appointed to take part in a U.K. Forum Hemoglobin Disorders Peer Review team over the coming year.
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH TRUSTEES'ANNUAL REPORT FOR THE YEAR ENDED 30 APRIL 2024 Part of thls Pro55 is for hospital teams and services to be assessed against Quality Standards. The assessments are taken by health care professionals and services users. 2310712023 Mandela Freedom Festival. Sabrina Manuel, Funmi Dairo and Funke Adeleke attended this festival spreading awareness for sickle cell. 0310612023 Was the first day of our awareness at Granby Street Market We managed to secure an awareness stall in Granby Street Market, This is every Saturday morning event in the summer months. We have also gained more members through migration to Liverpool and Merseyside. We hava a group what's app platfomi where members can ask qu8Stion8 and advice is given. Our group makes phone calls to members to offer some psychological support and social support. Hematology Specialist nurses are invited to our monthly meetings to give advice on the health of support group members with updates on new treatment and its effect on members. There is a lot of new developments within the Sickle Cell and Thalassemia Heath settings. Our members attended Black History month event for the Mersey Care NHS Trust 2110612023 Jazz on a Midsummers night. Fund Raising for Slckle Cell guest performer by Tyrone Lewis, Rebecca Loy Tony Alphonse and Hayli Kincade. it was a glamorous evening of big band jazz and Wavertree Community Choir. Our Trustee attended the event, and we had an awareness table at Ihe event. Members attended a night of Jazz Gospel Choir in Liverpool. The lady who organized it was raising awareness of Sickle Cell Disease. She donated money to our group, Roald Dahl Centre in Royal Liverpool Hospital. We had a table at the event with all our information and leaflets 0611212022 Mrs. Funmi Dairo met with John James Chair Sickle Cell Society, to discuss how this project was carried over to set up mentoring programs for our young adults with SCD in Liverpool. This project wa5 carried over to the next financial year which is 2024 and I will update on that. 2610812023 Sabrina Manuel who is one of our members was appointed as a new patient representative at the Alder Haye Children's Hospital. She is the patient's voice and representation at local and regional meetings. 0510912023 Dorothy Zack-williams our Patron and Aaron Sibanda one of our sickle cell patients had a live BBC Radio Merseyside interview. Brilliant speakers talking about our support group and Aaron talking about living with Sickle Cell and the challenges they face as patients. 1010912023 Rebecca Sibanda who is Vee's daughter In law and her dad Robert Pery run the Great North Run raising awareness and raising money for the Liverpool Sickle Cell and Thalassemia Support Group. 16J0912023 Kahli who is part of our group organized and perfomied at an Ever So Wonderful Variety Show. She was raising money for the Liverpool sickle cell and
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH TRUSTEES'ANNUAL REPORT FOR THE YEAR ENDED 30 APRIL 2024 Thalassemia support group. Dorothy Zack Williams attended and gave a speech about sickle cell and the support group and the importance of blood donation. 1811112023 North England Haemoglobinopathy Coordinating Centre Sickle Cell held patient event. They were raising awareness on the latest treatment e.g. Gene therapy, patient VolS, local support neiworks etc. Venencia Rayson, Dorothy Zack-williams and Sabrina Manuel attended the event. We had our awareness table with awareness material. It was a very infomiative and educational event. The attendee presented the information to the group at the end of November meeting. 0311212023 Natalie Nicholas and her son joined Santa Dash run fundraising for Sickle Cell and Thalassemia Support Group. 16h December 2023 the Support Group Trustees held a Christmas party for the Children and young Adults. It was well attended and the children enjoyed themselves. We had packs of books donated as Christmas presents by Liverpool author by the name of Natalie Reeves Billing 0210412024 Prof Tunde Zack Williams, Mrs. Funke Adeleke who is our event organizer, and her daughter Adeola Adeleke who is a patient herself visited Kim Johnson on behalf of the group. Adeola shared with her some personal and medical advice as a sickle cell patient. Focusing specifically on Gene Therapy decision lissue which was not authorized to be used as a treatment for Sickle cell patients. We managed to apply for internet online banking, which is now operational. FINANCIAL REVIEW Total income for the year was £13,914 (2023: £515), of which £10,000 (2023: £Nil) related to funding for projects upon which r8striclions are placed. Total expenditure for the year was £5,937 (2023.. £1,863), leaving a surplus for the year of £7,977 {2023.' deficit £1,348). At 301h April 2024 the Charitable Incorporated Organisation's reserves stood at £9,068 {2023.. £1,091) of which £8,862 (2023: £ Nil) represented restricted funds. RISK MANAGEMENT The maln risks to which the Charitable Incorporated Organisation's is exposed a5 identrfied by the trustees have been considered and systems have been established to mitigate those risks. RESERVES POLICY It is the policy of the Charitable Incorporated Organisation to maintain unrestricted funds at a level to cover three months, running costs should no further funding be received. As at the end of the financial year the unrestricted funds totalled £207. The Charitable Incorporated Organisation requires £152 for three months, running costs. PLANS FOR THE FUTURE We are planning on an event in Liverpool to raise awareness about Sickle Cell and Thalassaemia involving Alder Hey Children Hospital, Royal Liverpool Hospitsl. Professionals involving the specialist nurses, school nurses, social servicesl benefrt department, patient, carers and public.
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TA TRUSTEES'ANNUAL REPORT FOR THE YEAR ENDED 30 APRIL 2024 We are planning to just do it on a local level in a small way to still be able to create awareness of Sickle Cell Disease. We are aiming to raise awareness on Africa Oye day from 1810612023- 1910612023. We are still planning to look for an office space which can be open to the public to obtain any information with the aim of employing volunteers to work there. We will be looking for funding for this. This is also on hold due to us trying to raise funding, we have a volunteer who will be helping us to look for funding for this purpose. We are now holding our monthly and trustee meeting virtually (Zoom), and face to face. We aim to continue with both faces to face and virtually meetings. As stated in our pVIouS report we commenced meetings from May 22, this was agreed by the Trustees. We are aiming to organize awareness sessions for professionals like GP, medical students, social workers and even schoolteachers to cr8ate understanding and to raise awareness of sickle cell and Thalassaemia disease in Liverpool. We plan on having a session at the Liverpool Medical School on Open Days. Venencia Rayson (chair) has already been in touch with the administrators from Liverpool Medical School. We have been pencilled in their diary for future events. Kristina, a clinical Psychologist from Alder Hey Chlldren's hospital is looking to work with our group regarding giving psychological support. This is still ongoing as many young adults do not attend this session. STRUCTURE, GOVERNANCE AND MANAGEMENT Liverpool Sickle Cell and Thalassaemia Support Group is a registered Charitable Incorporated Organisation (CIO), number 1181738 formed on 19th May 2015, under the terms of the Memorandum and Articles ofAssociation dated 15th April 2007 and amended 29th June 2012. The Board of Trustees also fomis the Executive Committee which appoints officers who are responsible for planning and implementing group activities. REFERENCE AND ADMINISTRATIVE DETAILS Name Liverpool Sickle Cell and Thalassaemia Support Group 1161738 Charlty number Address & Office Abercromby Health Centre Liverpool L7 7HG Trust••8 The members of the Board of Trustees are as follows.. Olufunke Adeleke Funmi Dairo Juliana Hassan Aishat Odunowo Venencia Cleopatra Rayson Alfred Zack-williams Dorothy Zack-williams {Resigned 23rd April 2023)
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH TRUSTEES'ANNUAL REPORT FOR THE YEAR ENDED 30 APRIL 2024 Accountant LCVS 151 Dale Street, Liverpool, L2 2AH Bankers HSBC Bank PLC 99-101 Lord Street Liverpool L2 8PG Slgned on behalf of th8 Trustees Venoncla Cleopatra Rayson, Trustee
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 30 APRIL 2024 Notes Unrestrlcted Restricted Funds Funds 2024 2024 Total Funds 2024 Total Funds 2023 Income and Endowments from Donations Charitable activities 2a 2b 3,702 212 3.702 10,000 515 10,000 Total income 3,914 10,000 13,914 515 Expenditure on Charitable activities 4,799 1,138 5,937 1,863 Total expondlture 4,799 1,138 5,937 1,863 Net (expendlture)nncom•, net movement In funds 1885) 8,862. 7,977 11,348) Total fvnds brought forward 1,091 1,091 2,439 Totsl funds carrled forward 206 8.862 9,068 1,091 The notes on pages 9 to 15 form part of these accounts. All the above amounts relate to continuing activitips of the charity.
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP BALANCE SHEET AS AT 30"APRIL 2024 Notes 30 April 2024 th 30 Aprfl 2023 Flxed a860ts Tangible fixed assets Currant assets Debtors Cash al bank and in hand 331 9,615 1,889 9,946 1,889 Current liabillties Creditors.. amounts falling due within one year (878) (798) Net current asset8 9,068 1,091 Totsl a880ts less curront Ilabllltles 9,068 1,091 Funds: Unrestricted funds Restricted funds 206 8,862 1,091 9,068 1,091 Approved by Trustees on I Venencla Cleopatra Rayson, Trustee
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2024 1. Accountlng Pollcleg Basls of Accountlng The accounts have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherNise stated in the relevant note{s) to these accounts. The financial statements have been prepared in accordance with the Statement of Recommended Practice.. Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (SORP 2019) (effective 1st January 2019) and Charities Act2011. The accounts are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £. The Charrtable Incorporated Organisation has tsken advantage of the provisions in the SORP for Charities applying FRS 102 Update Bulletin 1 not to prepare a Statement of Cash Flows. Golng concern At the time of approving the accounts, the Trustees have a reasonable expectation that the Charitable Incorporated Organisation ha5 adequate reserves to continue in operational 8XiStence for the foreseeable future. The Trustees have therefore adopted the going concem basis of accounting in preparing the accounts. Fund accounting Unr8Stricted funds are the Charltable Incorporated Organisation fre8 reserves available for the trustees to apply in accordance with the charity's objectives. Restricted funds are subject to specific restrictive conditions imposed by the donor. All restricted funds are accounted for as restricted income and expendrture for the purposes 18 charged to the fund. Income recognltlon All income is recognised once the charity has entitlement to the income, there is sufficient certainty of receipt and so it is probable that the income will b8 received, and the amount of income receivable can be measured reliably. Donations and legacies comprise of donations and general grants which are recognised in the accounts when received, with the exception of known legacies which are accounted for when their receipt is certain. Income from charitable activities is recognised on an accruals basis except for grants receivable, which a recognised on the date on which their uncondilional payment bs confirmed by the donor. Fl¥ed Assets Capital expenditure is stated in the balance sheet at cost less accumulated depreciation. Depreciation is provided to write off the cost of each asset over its expected useful life. Expendlture recognition Liabilities are recognised as soon as there is a legal or constructive obligation committing the Charitab company to that expenditure, it is probable that Settrnent will be required, and the amount of the obligation can be measured reliably. All expenditure is accounted for on an accrual's basis. All expenses, including support costs and govemance costs, are allocated or apportioned to the applicable expenditure headings in the Statement of Financial Activities.
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2024 Support and govemance costs are applied to unrestricted funds unless specrfically included in the restrictions, as specified by the donor. Expenditure on charitable activities relate to the operation of the charity comprising of direct charitsble expenditure to meet the objectives of the charitsble company. Support and governance costs relate to the management and operation of the organisation and also compliance with constitutional and ststutory requirements in producing the annual report. These are dealt with in the Statement of Financial Activities when payment has been approved by the charitable company. Cash and cash equivalents Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-tenn liquid investments with original maturities of three months or less, and bank overdrafts. Flnancial instruments Th8 charity has elected to apply the provisions of Section 11 'Basic Financial Instruments, and Section 12 '0ther Financial Instruments 188ues' of FRS 102 to all of its financial instruments. Financial instruments are recognised in the charitys balance sheet when the charity becomes paty to the contractual provisions of the instrument. Financial assets and li8bilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously. Baglc flnanclal assets Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at ,amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised. Baslc financlal Ilabilities Basic financial liabilities, including creditors and bank loans are Initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future receipts discounted at market rate of interest. Financial liabilities classified as payable within one year are not amortised. Debt instruments are subsequentty carried at amortised cost, using the effecttve interest rate method. Derocognltlon of financlal liabllltl88 Financial Ilabilities are der8gnised when the charity's contractual obligations expire or are discharged or cancElled. Critical accounting estlmates and judgements In the application of the charity's accountin9 policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. io-
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2024 The estimates and associaled assurnptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates. The estimates and underlying assumptions are reviewed on an on-going basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that périod, or in the period of the revision and future periods where the revision affects both current and future periods. All expenditure is accounted for on an accrual's basis. All expenses, including support costs and govemance costs, are allocated or apportioned to the applicable expenditure headings in the Statement of Financial Activities. Support and governance costs are applied to unrestricted funds unless specifically included in the restrictions, as specified by the donor. Cost of charitable activities relates to the operation of the charity comprising of direct charitable expenditure to meet the objectives of the charity. Support and governan costs relate to th8 management and operation of the organisation and also compliance with constitutional and statutory requirements in producing the annual report. These are dealt with in the Statement of Financial Activities when payment has been approved by the charity Taxatlon Income and gains are exempt from taxation as they are reiVed and applied for charitable purposes only. The charity beneffts from various exemptions from taxation afforded by tax legislation and is not liable to Gorporation tsx on income or gains falling within those exemptions. The charity is not able to recover Value Added Tax. Expenditure is recorded in the accounts inclusive of VAT. 2. Income and endowmants from: Unrestricted Re8trlctod Fund8 Fund• 2024 2024 Total Fund8 2024 Total Funds 2023 a. Donatlon8 and logacle8 Donations 3,702 3,702 515 Income from donations and legacies for 2023 related wholly to unrestricted funds. Unrestrlctsd R•strlcted Funds Funds 2024 2024 Total Funds 2024 Total Funds 2023 b. Charltablo actlvltles Activities income National Lottery Community Fund 212 212 10,000 10.000 212 10,000 10,212
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH NOTES TO. THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2024 3. Expendituro on charitable activltle8 Dir•ct Support & charltable Govemance Expendlture Costs Total 2024 Total 2023 We aim to educate and give information to public in order to create awareness about Sickle Cell and Tbalassaemia disorder. 2,734 3,2Q3 5,937 1,883 a. analysed as follows.. 2024 2023 Direct Charitable Exp8nditure." Activities and events Sessional fees 2,534 200 1,088 2,734 1,088 2024 2023 Support 8nd govemance costs.. Subscriptions Advertisement Insurance Bank charges Accountancy fees Travel and accommodation Refreshments Investments Grfts Printing and stationary Telephone and internet Computer sofvare Equipment 10 144 150 168 63 418. 460 78 1,117 21 420 119 109 156 479 3.203 775 Total expendlturn on charltabl• activlti6s . 5.937 1,863 £1,138 (2023.. £675) of the above expenditure relates to restricted funding, b. Particulars of employees: There were no employees as at 30th April 2024 (2023.. nil) The trustees are not remunerated for their services and are not included in the above number of employees. No out-of-pocket expenses were reimbursed to trustees in the year (2023: £nil). 12-
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2024 4. Tanglble flxad assets There wera no tsngible fixod assets as at 30° April 2024 {2023'. nil) 5. Debtorn 2024 2023 Prepayments 331 6. Crodltors: amounts falllng due wlthln one year 2024 2023 Accrual8 878 798 7. Analy818 of net assets b?twe¢n funds 2024 Tanglbla Flxad Assets Net Current A880ts Totsl UnrestrIet Funds General Fund 208 206 Restrlctod Fund• National Lottery Community Fund 8,882 8,882 Tots18 9,068 9,068 2023 Tanglbl• Net Fixed Current Assets A88Ot8 Total Unrestrlcted Funds General Fund 1,091 1,091 Restrfctad Fund8 Totsl$ 1.091 1,091 13
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP TH NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2024 8. Unrestricted funds Movomonts In tho year Income Expenditure 2024 Reserves at beginning of year Reserves at End of Year General Fund 1,091 3,914 (4,798) 206 Movements In tho year Incom• Exponditure 2023 Raserves at boglnnlng of year Reserves at End of Year General Fund 1,764 515 {1,188) 1,091 G•n•ral Fund This fund is used to finance the charity's general activities and core costs as outlined in the Trustees, Report. g. R08trfcted funds Movoments in tho year Income Expanditure 2024 Reserves at beginning of year Re8•rve8 at End of Year National Lottery Community Fund 10,000 (1,138) 8,862 2023 Movements In the year Income Expenditur• Reserves at beglnnlng of year Reserves at End of Year Big Lottery Fund Grant- Awards for All 675 (675) Descrfptlon of Funds These are monies given to the organisation to be spent at the discretion of the Board of Trustees for specific charitable purposes.. Big Lottery Fund Grant - Awards for All - Contribution tc)wards special activities programme National Lottery Communlty Fund - Contribution towards special activities programme 14-
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30TH APRIL 2024 10. Guarantees and Other Flnanclal Commltments There are no financtal commitments under non-cancellable operating leases as at 30th April 2024 (2023.. nil) 11. Relatsd Parties There were no material related paty transactions during thls perlod which require disclosure. 12. Limitod liabilty of Members In the event of winding up, the members of the CIO has no liability to contributs to its assets and no personal responsibilty for settling its debts and liabilities. 15
LIVERPOOL SICKLE CELL AND THALASSAEMIA SUPPORT GROUP DETAILED STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 30- APRIL 2024 2024 2023 INCOME Donation "Activities income Grants 3,702 212 10,000 515 Total Income 13,914 515 EXPENDITURE Charitablo activities Activities and events Insurance Advertisement Subscriptions Bank charges Accountancy fees Travel and accornmod8tion Refreshments Investments .Gifts Printing and stationary Telephone and internet Cornputer software Equipment Sessional fees , 2,534 168 1.088 150 144 63 418 10 460 78 1,117 21 420 119 109 158 479 200 Total oxpendltur• on charitable actlvltlas 5,937 1,863 Not Incomel{expendlture) In the year 7,977 11,348) pago does not fonn part of the Statutory financial statsments) (rhis 16-