# PNH SUPPORT

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1161518
- **Other names:** PNH SUPPORT ENGLAND AND WALES
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 1, 2015
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1161518


## Contact

- **Address:** Blackwell House, Guildhall Yard, London
- **Postcode:** EC2V 5AE
- **Phone:** 07810 352555
- **Email:** contact@pnhuk.org
- **Website:** www.pnhuk.org



## Activities

**Objects:** (1) TO PROMOTE, PROTECT AND PRESERVE THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA (&quot;PNH&quot;) WHO RESIDE IN ENGLAND, WALES AND NORTHERN IRELAND (EITHER PERMANENTLY OR TEMPORARILY) THROUGH THE PROVISION OF SUPPORT, EDUCATION, ADVOCACY AND PRACTICAL ADVICE; (2) TO ADVANCE THE EDUCATION OF PATIENTS WITH PNH IN ENGLAND, WALES AND NORTHERN IRELAND IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF ADVICE AND A POINT OF CONTACT FOR NEWLY DIAGNOSED PNH PATIENTS IN ENGLAND, WALES AND NORTHERN IRELAND.

**Activities:** PNH Support provides support, information and (non medical) advice to the PNH community in England, Wales and Northern Ireland as well as advocating on their behalf.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Other Defined Groups



## Geography

- Northern Ireland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Alexandra Naylor |  | Feb. 27, 2020 |
| Victoria Solovieva |  | March 7, 2025 |
| Virginia Bertelli |  | Nov. 5, 2024 |




