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2024-02-29-accounts

KD-UK, Kennedy's Disease UK

TRUSTEES' REPORT AND UNAUDITED FINANCIAL STATEMENTS

for the year ended 29 February 2024

Company registration number: CE003657

Charity number: 1160793

KD-UK, Kennedy's Disease UK

Unaudited Financial Statements Year ended 29 February 2024

CONTENTS PAGE
Trustees and Professional Advisers 1
Trustees' Report 2
Independent Examiner's Report 4
Income Statement 5
Statement of Financial Position 6
The following pages do not form part of the financial statements
Detailed Income Statement 7

KD-UK, Kennedy's Disease UK

Trustees and Professional Advisers

Year ended 29 February 2024

Trustees Mr Darren J. Arthur Mr Anthony H. Beazer Mrs Helena M. Conibear Dr Helen E. Devine Mr Kim D.J. Slowe (Chair) Mr Luke C. Tillotson Registered office Suite RA01 195-197 Wood Street London E17 3NU Dorset DT1 3GY Independent Examiner Sheila Stewart Associate Member of the Institute of Certified Bookkeepers 21 Westcliff Road Portland Dorset DT5 2HW Bank CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling

Page 1

KD-UK, Kennedy's Disease UK

Trustees' Report

Year ended 29 February 2024

The trustees present their report and the unaudited financial statements of the company for the year ended 29 February 2024.

The accounts have been prepared on a receipts and payments basis and comply with the Charity's governing document and applicable law.

OBJECTIVES AND ACTIVITIES

Objectives

The objectives of the Charity are to raise awareness of Kennedy's disease in the general population of the UK, to raise funds for research into understanding the mechanisms of the disease with a view to finding suitable treatments and to provide support for Kennedy's disease patients, carers and carriers.

Aims, Strategies and Activities for the year

The Charity continued to raise funds through sponsorship events, to be channelled into research to advance the understanding of the mechanisms of the disease with a view to finding suitable treatments. In addition, the Charity aims to provide funding for clinical support of Kennedy's disease patients and carriers. In planning activities for the year, the Trustees kept in mind the Charity Commission's guidance on public benefit.

ACHIEVEMENTS AND PERFORMANCE Charitable Activities

KD-UK has continued to support the salary of the specialist KD nurse at UCLH in London and has fully funded a clinical research physio. These commitments will continue into the next financial year. The charity also now employs an administrator for one day a week on a contract basis. The main fundraising events for the year were a trans alpine cycling event from Chamonix to Nice and the Boscastle Shanty Festival. Alongside University College London, the charity organised a highly successful International Kennedy Disease Conference in London in November. Other key activity included the strengthening of links with the Motor Neurone Disease Association. A key goal for 2024/2025 is to open up regional treatment pathways for people living with Kennedy Disease.

FINANCIAL REVIEW

Total receipts for the year amounted to £58,094 (2023 - £55,800) and expenses were £27,473 (2023 - £29,867). Unrestricted reserves at 29 February 2024 amount to £230,249 (2023 - £199,628).

Reserves Policy

The Trustees have reviewed their policy, considering recommendations by the Charity Commission with regards to maintaining an acceptable level of reserves. The charity has set a reserve of £20,000. This is sufficient to cover KDUK's very low overheads during a lean fundraising year.

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing Document

The Charity was registered as a Charitable Incorporated Organisation (CIO) on 9th March 2015 and commenced operations immediately.

Organisational Structure

The Charity is managed and operated by the Board of Trustees who meet at least twice a year.

Trustees

Trustees are elected and removed by the Board of Trustees. The maximum number of Trustees shall be 8 and the minimum shall be 4.

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KD-UK, Kennedy's Disease UK

Trustees' Report (continued)

Year ended 29 February 2024

Trustees (continued)

The power to appoint new trustees is vested in the existing trustees. Future trustees will be selected to ensure the board maintains a suitable mix of skills and experience to continue its work and will be given an appropriate induction into the Charity. Trustees attend training courses where it is considered necessary.

The trustees who served the company during the year were as follows:

Mr Darren J. Arthur Mr Anthony H. Beazer Mrs Helena M. Conibear Dr Helen E. Devine Mrs Kate Hopps (resigned 21 November 2023) Mr Kim D.J. Slowe (Chair) Mr Andrew Symington (resigned 27 November 2023) Mr Luke C. Tillotson

Organisational Structure

The Charity is managed and operated by the Board of Trustees who meet at least twice a year.

Major Risks

The Trustees have carried out an assessment of the major risks to which the Charity is exposed. Procedures and systems are in place to mitigate these risks.

STATEMENT OF TRUSTEES' RESPONSIBILITIES

The Trustees are required under Charity law to prepare financial statements for each financial year which give a true and fair view of the state of the affairs of the Charity and of the financial activities of the Charity for that year.

In preparing those financial statements, the Trustees are required to:

The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the Charity and to enable them to ensure that the financial statements comply with applicable laws and regulations. They are also responsible for ensuring that the Charity maintains an adequate system of internal control designed to provide reasonable assurance that assets are safeguarded against loss or unauthorised use and to prevent and detect fraud and other irregularities.

SMALL COMPANY PROVISIONS

This report has been prepared in accordance with the provisions applicable to companies entitled to the small companies exemption.

This report was approved by the board of trustees on …. June 2024 and signed on behalf of the board by:

…........................................... …........................................... Mr Kim D.J. Slowe Mr Anthony H. Beazer Trustee (Chair) Trustee

Page 3

KD-UK, Kennedy's Disease UK

Independent Examiner's Report

Year ended 29 February 2024

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES ON THE PREPARATION OF THE UNAUDITED STATUTORY FINANCIAL STATEMENTS OF KD-UK, KENNEDY'S DISEASE UK FOR THE YEAR ENDED 29 FEBRUARY 2024

I report to the trustees on my examination of the accounts of KD-UK, Kennedy's Disease UK for the year ended 29 February 2024.

Responsibilities and basis of report

As the charity's trustees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the Charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

…...........................................

Sheila Stewart Associate Member of the Institute of Certified Bookkeepers Independent Examiner 21 Westcliff Road, Portland, Dorset, DT5 2HW

Date: 29 June 2024

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KD-UK, Kennedy's Disease UK

Income Statement

Year ended 29 February 2024

Year Year
ended ended
29 February 2024 28 February 2023
Income £58,094 £55,800
Expenses
Costs of raising funds £19,529 £23,540
Costs of charitable activities £7,944 £6,327
£27,473 £29,867
SURPLUS IN THE YEAR £30,621 £25,933

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KD-UK, Kennedy's Disease UK

Statement of Financial Position

Year ended 29 February 2024

29-Feb-24 28-Feb-23
Current assets
Bank account £230,249 £199,628
Reserves
Reserves - carried forward £230,249 £199,628
NOTES TO THE FINANCIAL STATEMENTS

1 General information

The company is a private company limited by shares and is registered in England and Wales. The address of the registered office is Armitage House, Victor Jackson Avenue, Poundbury, Dorchester, Dorset, DT1 3GY.

For the year ending 29 February 2024, the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies.

Trustees responsibilities:

These financial statements have been prepared in accordance with the micro-entity provisions.

These financial statements were approved by the board of trustees and authorised for issue on 29 June 2024, and are signed on behalf of the board by:

…........................................... …........................................... Mr Kim D.J. Slowe Mr Anthony Hadyn Beazer (FCA) Trustee (Chair) Trustee

Company registration number: CE003657

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KD-UK, Kennedy's Disease UK

Detailed Income Statement

Year ended 29 February 2024

Unrestricted Restricted
funds funds 2024 2023
INCOME £ £ £ £
Donations from individuals £3,963 - £3,963 £15,547
Donations - Just Giving £36,947 - £36,947 £15,787
Donations - Enthuse £8,292 - £8,292 £6,464
Donations - Other - - - £267
Grants from trusts and other organisations £1,523 - £1,523 £15,945
Gift aid receipts £879 - £879 £1,790
Event receipts £4,500 £4,500 -
Sale of goods £1,589 - £1,589 -
Interest received £401 £401 -
TOTAL INCOME £58,094 - £58,094 £55,800
EXPENSES
Costs of raising funds
Events and promotional costs £17,732 - £17,732 £22,076
Web site costs £997 - £997 £790
Online giving site fees £800 - £800 £674
£19,529 - £19,529 £23,540
Costs of charitable activities
Administration support £7,091 - £7,091 £3,000
Administration costs £173 - £173 £307
Storage costs - - - £1,922
Insurance costs £96 - £96 -
Independent examination fees £584 - £584 £1,098
£7,944 - £7,944 £6,327
TOTAL EXPENSES £27,473 - £27,473 £29,867
SURPLUS IN THE YEAR £30,621 - £30,621 £25,933
FUNDS AVAILABLE AT 1 MARCH 2023 £199,628 - £199,628 £173,695
FUNDS AVAILABLE AT 29 FEBRUARY 2024 £230,249 - £230,249 £199,628

This financial statement was approved by the board of trustees and authorised for issue on 29 June 2024, and are signed on behalf of the board of trustees by:

…........................................... Mr Anthony Hadyn Beazer (FCA) Trustee

…........................................... Sheila Stewart Independent Examiner

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