OpenCharities

Alstrom Syndrome Europe

As EU

Country
England & Wales
Charity number
1160362
Status
Registered
Registered
Feb. 5, 2015
Legal form
Charitable company
Area of benefit
Not Defined

Address

Address
4 St. Kitts Close
TORQUAY
TQ2 7GD

Contact

Phone
07970071675
Email
[email protected]
Website
alstrom.org.uk
Website screenshot

Activities

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

Objects: To Relieve Sickness And To Promote And Protect The Health Of People Affected By Alström Syndrome For The Public Benefit By Advancing Education, Raising Awarenes And Promoting Research Into Alström Syndrome.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability, Recreation
Who
Children/young People, People With Disabilities, People Of A Particular Ethnic Or Racial Origin

Areas of operation

Country
Austria, Belgium, Cyprus, Denmark, Finland, France, Germany, Greece, Hungary, Italy, Netherlands, Norway, Portugal, Spain, Sweden, Switzerland

Finances

Period end Income Expenditure
April 5, 2025 — —
April 5, 2024 — £732
April 5, 2023 — £732
April 5, 2022 — £63
April 5, 2021 — £645

Trustees

Name Appointed
Dr Maffei (Chair) July 2, 2014
Bernd Rosenbichler Jan. 28, 2025
Dr Hiwot July 2, 2014
Dr SELMA DUZENLI Nov. 9, 2017
Kerry Leeson-Beevers July 1, 2024
Professor Diana Valverde Jan. 10, 2016